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Cystic Fibrosis: more books (100)

Chronic Respiratory Disorders : Cystic Fibrosis (DVD)

Cystic Fibrosis (European Respiratory Monograph) by A. K. Webb & F. A. Ratjen, 2006-04-01

Cystic Fibrosis: Directory of Authors of New Medical and Scientific Reviews With Subject Index by Science & Life Consultants Association S, 1996-05

A Parent's Guide to Cystic Fibrosis (University of Minnesota Guides to Birth and Childhood Disorders) by Burton L. Shapiro, Ralph C. Heussner, 1991-02

Family Nursing: The Case of Cystic Fibrosis by Dorothy A. Whyte, 1994-05

The 2002 Official Patient's Sourcebook on Cystic Fibrosis

Cystic Fibrosis (Wellcome Witnesses to Twentieth Century Medicine)

Cystic Fibrosis: Manual of Diagnosis and Management by Mary C. Goodchild, John A. Dodge, 1985-10

Textbook of Cystic Fibrosis by J.D.Lloyd- Still, 1983-09

Mucus Secretions and Cystic Fibrosis: Conference on Mucus Secretions and Cystic Fibrosis, Southern Ontario, October 24-27, 1976 (Modern Problems in Paediatrics)

Troubled Dream of Genetic Medicine Ethnicity & Innovation in Tay-Sachs, Cystic Fibrosis, & Sickle Cell Disease by KeithWailo&StephenPemberton, 2006

Cystic Fibrosis (Health Alert) by Ruth Bjorklund, 2008-09

Cystic Fibrosis, Basic and Clinical Research: Proceedings of the 17th Annual Meeting of the European Working Group for Cystic Fibrosis, Copenhagen, (International Congress Series) by Niels Hoiby, 1993-04

Cystic Fibrosis (Lung Biology in Health and Disease)

lists with details

Cochrane Cystic Fibrosis & Genetic Disorders Review GroupMain Page
cystic fibrosis Genetic Disorders Group. cystic fibrosis . Phenylketonuria. Sickle Cell . Haemophilia . Other Genetic Disorders.
http://www.liv.ac.uk/cfgd/
Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
http://www.cysticfibrosiswa.org
Cystic Fibrosis
Learn more about this condition, the causes, and what it is like to live with CF.Category Kids and Teens Health cystic fibrosiscystic fibrosis affects the lungs and makes it hard to breathe and easyto cough. Learn more about this written especially for kids!
http://kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html

Extractions: Every day when she wakes up, Lisa's parents thump her back and chest for at least 20 minutes to help clear her lungs of the thick mucus that sometimes makes it difficult for her to breathe. At school, Lisa coughs a lot. She keeps a box of tissues on her desk - just in case - that she uses to cough up mucus. In gym class, she participates in sports but often gets tired easily. At lunchtime, Lisa takes pills to help her digest her food and get all the vitamins she needs. It's especially important that she keep up her strength so she can deal with a condition she's known all her life - cystic fibrosis (say: sis -tick fi- bro -ses). What Is CF? Cystic fibrosis (CF) is an illness that affects more than 30,000 children and young adults in the United States. It can be mild or severe, depending on the person. Cystic fibrosis affects the lungs , plugging them with mucus that often makes breathing difficult. If the mucus isn't cleared out of the lungs, it will trap bacteria and other germs , sometimes leading to serious infections.
Cystic Fibrosis
cystic fibrosis (CF) is a lifeshortening inherited disease of young people,currently affecting more than 30000 American children and young adults.
http://kidshealth.org/parent/medical/lungs/cf.html

Extractions: Cystic fibrosis (CF) is the number-one life-shortening inherited disease of young people, currently affecting more than 30,000 American children and young adults. It is a genetic disorder that particularly affects the lungs and digestive system, and it makes a child more vulnerable to repeated lung infections. Now, thanks to high-tech medical advances in drug therapy and genetics, children born with CF can look forward to longer and more comfortable lives. In the last 10 years, research into all aspects of CF has helped us to understand the illness better and to develop new therapies. In the future, ongoing research may help us find a cure. Cystic fibrosis makes children sick by disrupting the normal function of epithelial cells - cells that make up the sweat glands in the skin and that also line passageways inside the lungs, liver, pancreas, and digestive and reproductive systems. In CF, the inherited CF gene directs the body's epithelial cells to produce a defective form of a protein called CFTR. When the CFTR protein is defective, epithelial cells can't regulate the way chloride (part of the salt called "sodium chloride") passes across cell membranes. This disrupts the essential balance of salt and water that is needed to maintain a normal thin coating of fluid and mucus inside the lungs, pancreas, and passageways in other organs. The mucus becomes thick, sticky, and hard to move.
Boogerwoods
Benefits cystic fibrosis.
http://www.boogerwoods.com
Ask NOAH About: Cystic Fibrosis
Español. Ask NOAH About cystic fibrosis. What is cystic fibrosis? Careand Treatment. Trials. Living with cystic fibrosis, Information Resources.
http://www.noah-health.org/english/illness/respiratory/cystic.html

Extractions: Information for Parents, Teachers, and Children ... To Genetic Diseases Main Page Diagnosis and Genetic Testing Carrier Testing for Cystic Fibrosis - Canadian Cystic Fibrosis Foundation PDF File of 12 Page) (also in French Causes - Cystic Fibrosis Trust The CF Gene - Cystic Fibrosis Trust Cystic Fibrosis (CF) Carrier Screening - March of Dimes ... PDF File of 2 Page) Cystic Fibrosis: Confidentiality and Genetic Information - Canadian Cystic Fibrosis Foundation PDF File of 7 Page) (also in French Cystic Fibrosis Testing: The Decision is Yours - American College of Obstetricians and Gynecologists Cystic Fibrosis Testing: What Happens If Both My Partner and I Are Carriers? - American College of Obstetricians and Gynecologists
Connecticut Children's Medical Center: Pulmonary Medicine
Provides services for children of all ages with asthma, apparent life threatening events, and bronchopulmonary dysplasia, as well as children and adults with cystic fibrosis.
http://www.ccmckids.org/departments/pulm.htm

Extractions: The Division also provides care for children and adults with cystic fibrosis as well as for children with all types of acute and chronic respiratory disease. Fiberoptic bronchoscopy, pulmonary function testing for infants and older children including exercise testing and bronchial challenge testing can be performed by members of the division. Sweat tests may be ordered by contacting the Division.
Cystic Fibrosis - Doctor's Guide To The Internet
The latest medical news and information for patients or friends/parents of patientsdiagnosed with cystic fibrosis and cystic fibrosisrelated disorders.
http://www.pslgroup.com/CF.HTM
If You Ask James About Cystic Fibrosis
If You Ask James About cystic fibrosis. ASK JAMES MENU).
http://azcowboy88.tripod.com/

Extractions: If You Ask James About Cystic Fibrosis preload("twe44152A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44152B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44153A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44153B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44154A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44154B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44155A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); preload("twe44155B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); ... preload("twe441515A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); preload("twe441515B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); Cystic Fibrosis,CF links,diagnosis of cystic fibrosis,CF treatments,CF medications,cystic fibrosis foundations,cystic fibrosis awareness,complications of CF,symptoms of cystic fibrosis,causes of cystic fibrosis,Pseudomonas,Burkholderia cepacia,Pseudomonas aeruginosa,respiratory treatment,chest physiotherapy,cpt,digestive enzymes,mal absorption,chronic lung infections,antibiotics,James,James Binegar
Connecticut Children's Medical Center: Otolaryngology
Special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway.
http://www.ccmckids.org/departments/otol.htm

Extractions: Staff Office Locations Links The Department of Otolaryngology maintains a full service pediatric program. In addition, special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway. The service coordinates its activities as part of the craniofacial team to serve these children with special needs. OFFICE LOCATIONS
If You Ask James About Cystic Fibrosis
cystic fibrosis, CF links, cystic fibrosis information including personal experiencewith CF, treatments, medications, complications, coping, support groups
http://azcowboy88.tripod.com/askjames/

Extractions: If You Ask James About Cystic Fibrosis preload("twe44152A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44152B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44153A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44153B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44154A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44154B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44155A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); preload("twe44155B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); ... preload("twe441515A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); preload("twe441515B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); Cystic Fibrosis,CF links,diagnosis of cystic fibrosis,CF treatments,CF medications,cystic fibrosis foundations,cystic fibrosis awareness,complications of CF,symptoms of cystic fibrosis,causes of cystic fibrosis,Pseudomonas,Burkholderia cepacia,Pseudomonas aeruginosa,respiratory treatment,chest physiotherapy,cpt,digestive enzymes,mal absorption,chronic lung infections,antibiotics,James,James Binegar
Research Interests
Studies of cystic fibrosis gene therapy. From the University of Edinburgh in Scotland.
http://www.ed.ac.uk/~pthorpe/research.htm

Extractions: Cystic Fibrosis (CF) and our Gene Therapy research (including lab. Publications) are briefly summarised as part of the Medical Genetics Cystic Fibrosis group within the Medical Genetics Section . Note this site is still under development. At the MRC Human Genetics Unit Edinburgh. My research was involved with developing and utilising a variety of assays to study the efficacy of gene delivery and expression of our Gene Therapy reagents. We used quantitative PCR in situ hybridisation to study gene delivery to the lungs; and epitope tagged versions of CFTR to study protein synthesis and localisation. The aim is to have available an array of assays which enable a thorough analysis of the efficiency of gene therapy reagents in all experimental systems, including potential clinical trials. References;
CYSTIC FIBROSIS FOR KIDS
This site is for children with cystic fibrosis designed by a man from the Netherlands with CF.Category Health Conditions and Diseases Personal PagesThis site is made by acenl webdesign the netherlands for children with cysticfibrosis. - - - Welcome to cystic fibrosis for KIDS !!! ).
http://members.tripod.com/~jtatton/
Cystic Fibrosis - Information And Support Resources
Page with basic information on cystic fibrosis symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
http://www.mazornet.com/genetics/cystic_fibrosis.asp
Hope Chest Publishing -- Children's Books To Last A Lifetime In Your Heart And I
Offers sample illustrations and excerpts from the spiral bound fantasy story, part of whose sales proceeds benefit cystic fibrosis Foundation.
http://www.hopechestpublishing.com/

Extractions: This book is a wonderful story that allows young children to step inside RAINY DAY MAGIC and discover their imaginations, hidden treasures, secret rooms, and great adventures. The book is a beautifully illustrated spiral-bound book printed on very durable glossy card stock. Your children will enjoy passing this book onto their children.
Informationdocuments
From the European Thematic Network for cystic fibrosis. In depth information in PDF.
http://www.med.kuleuven.ac.be/cme/cf/Informationdocuments.htm

Extractions: Information documents A manual for Cystic Fibrosis patients and their families A manual for the CF patients and their families has been designed to provide cystic fibrosis-patients and their families a better understanding of the disease. This leaflet is part of a European initiative undertaken by the European Concerted Action for Cystic Fibrosis. The text is based on the manual of the World Health Organisation (WHO) and the International Cystic Fibrosis (Mucoviscidosis) Association (ICF(M)A). The manual includes the following topics: These leaflets are presently available in sixteen languages: English French German Spanish ... Polish and Macedonian version We would like to thank the translators (translation bureau of AstraZeneca Diagnostics, Milan Macek Jr., Katarina Stepankova, Adriana Zigova, Antonija Redovnikovic, Branko Simat, Jadranka Sertic, Zita Krumina, Dragica Radojkovic, Tatyana K. Kascheeva, Ludmila A. Livshits, Natalia V. Gryschenko, Krisztina Nemeth, Gyorgy Fekete, V. Kucinskas, A. Utkus, J. Kasnauskiene, K. Konciute, Michal Witt, Lucyna Majka, Svetlana Koceva) for all their efforts and cooperation, Orchid, Innogenetics and Nanogen for printing these manuals!
Richard Collyer
A sponsored cycle ride, by three Norfolk police officers from Lands End to John o'Groats, in June 2000 to raise money for the cystic fibrosis Trust.
http://www.collyer.clara.net/

Extractions: This is me, Richard Collyer (in the yellow), Nick Gatward (in the red) and Paul Claxton. Between the 7 th and 16 th of June 2000, we cycled from Land's End to John O'Groats to raise over £5000 for the Cystic Fibrosis Trust (reg charity no 281287) Also in the picture is Paul's 7 year old daughter Melissa, who has Cystic Fibrosis. These pages are an account of our planning, preparation and our cycling endeavours. [About Us] [Diary] [Route] [The Cystic Fibrosis Trust] ... homepage
Cochrane Cystic Fibrosis & Genetic Disorders Review Group At The Dept Of Child H
Cochrane cystic fibrosis Genetic Disorders Review Group. cystic fibrosis. Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders.
http://web.bham.ac.uk/walterss/CFcochrane1.htm
Andy Nicolls Racing
A small group of people, all batty about bikes for one reason or another, just happened to be sitting around (well, drunkenly slouching) in their local pub, and decided to comepete to raise money for cystic fibrosis.
http://www.anracing.co.uk/
Cysitic Fibrosis - Pulmonology
Information on cystic fibrosis.Category Health Conditions and Diseases cystic fibrosiscystic fibrosis (CF) is the most common fatal, inherited disease inthe US. CF causes the body to produce abnormally thick and sticky
http://www.pulmonologychannel.com/cf/

Extractions: Cystic fibrosis (CF) is the most common fatal, inherited disease in the United States (see Statistics ). CF causes the body to produce abnormally thick and sticky mucus in several different parts of the body, most prominently in the lungs and other parts of the respiratory system. It also affects the pancreas, leading to serious digestive problems. CF alters the mucus secretions of the bodys epithelial cells. Epithelial cells make up the outside layer of tissue that lines every open surface of the body, inside and out, including the various tunnels and cavities in the lungs, urinary tract, liver, and reproductive tract. In patients with CF, the mucus that the epithelial cells secrete is much thicker and stickier than normal. It clogs the airways of the lungs, blocking the flow of air and making the tissue vulnerable to continual lung infections. It blocks the flow of pancreatic juices in the pancreas, impeding digestion and the absorption of fats and fat-soluble vitamins, leading to nutrition deficiencies and intestinal complications. CF is a genetic disease resulting from the inheritance of a defective autosomal recessive gene (see Genetics of Cystic Fibrosis ). A recessive gene is one that is expressed only when both copies of the gene are present, so a person with CF must have inherited the gene that causes CF from both parents. A person who has only one copy of the gene is known as a "CF carrier."

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