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$40.00
1. Faces of Huntington's
$22.99
2. Huntington's Disease: The Facts
 
3. Huntington's Disease: A Disorder
$11.87
4. Learning to Live With Huntington's
$8.72
5. The Test: Living in the Shadow
$29.15
6. Huntington's Disease (Genetic
$28.95
7. The Official Patient's Sourcebook
$28.95
8. Huntington Disease - A Bibliography
$27.50
9. Huntington's Disease (The Facts)
$12.00
10. Portraits of Huntington's
$105.68
11. Huntington's Disease (Oxford Monographs
 
$5.95
12. Metabolon collaborates on biomarker
 
13. Living With Huntington's Disease:
 
$5.95
14. Sirna granted patent covering
 
15. A physician's guide to the management
$7.95
16. Disgust and Huntington's disease
 
17. Commission for the Control of
 
$5.95
18. Reliability of speech intelligibility
 
$5.95
19. Speech disorders in mild and moderate
$28.95
20. Huntington Disease - A Medical

1. Faces of Huntington's
by Carmen Leal
Paperback: 368 Pages (1998-05-01)
-- used & new: US$40.00
(price subject to change: see help)
Asin: 1894169107
Average Customer Review: 5.0 out of 5 stars
Canada | United Kingdom | Germany | France | Japan
Editorial Review

Book Description
Faces of Huntington's is an incredible collection of stories, essays, poems, and quotes of those who are in some way connected to Huntington's Disease.

The book focuses on over sixty people who have HD, are at risk, caregivers, other family members, adn friends. It is a beacon of light in what is often a dark world.

30,000 Americans have this terminal neurological disorder. An additional 150,000 are at-risk. Somehow, despite the horror of Huntington's Disease, there is loving support, a positive attitude, and unending hope. There are stories that make you rejoice at the unswerving faith and those that make you cry at the senseless loss.

Faces of Huntington's gives readers a glance at the faces of heroes. It is guaranteed to bring tears of joy, hope, love and compassion to your eyes. ... Read more

Customer Reviews (37)

5-0 out of 5 stars Deeper Appreciation
Leal has done a fantastic job putting faces with a disease that most people know nothing about. She puts the reader right in the midst of the agonizing decisions that people with Huntington's disease have to make.

Since the disease is hereditary, should those with a history of Huntington's in their family get tested for the gene that causes the disease? Should those with the disease have children knowing that they could pass the disease along to the next generation? When, if ever, is it time for the person with the disease to move to a nursing home?

I didn't know anything about Huntington's before I read Leal's book. After reading it, I have a deep appreciation for the struggles that families face after a positive diagnosis.

If you are looking for a book about Huntington's that doesn't gloss over the hard parts of life and yet at the same time shows you what faces of courage, hope and faith can look like during trials, then this book is for you.

5-0 out of 5 stars If You're Interested in Huntington's, Read This Book.

As a healthcare professional I've worked with a few hundred families touched by HD over the last 17 years. Among those families, this book "Faces..." is known as a tool for hope, support and inspiration. I have purchased many copies of this book over the last few years and given it as a gift to families.
The positive reviews here clearly reflect the overwhelming praise that this book reliably receives from folks touched by HD.
I respect the views of the folks who've posted those negative comments. HD is the worst damn disease that can touch a family and it manifests itself in unlimited ways. And everyone handles it in their own unique way. However, it would be sad ifa family looking for a source of hope like this one turned away from it because of those comments. The overwhelming percentage of folks who've read this book talk about it as an important source of hope and support for themselves.
Read it and see for yourself!

1-0 out of 5 stars HD
I am in the early stages of HD and I can understand the negative review.My wife has promised me that if my mind becomes that of a four year old, she will not dress me as a four year old and take me to an amusement park and allow strangers to photograph me.I know at that time I might not notice the loss of dignity, but I care now.If we do go, I want to go as an adult with HD, not wearing a "Goofy" shirt. The author seem insensitive to me.

5-0 out of 5 stars One of the best books I've ever read on the subject
I just re-read Faces of Huntington's and decided it was time to write a review. I am so thankful this book was written and published. Again I was amazed at the author's sensitivity and her ability to pack so much into one book. For far too long there was nothing written about this disease except what was in a medical book. There was certainly nothing about the people themselves. I liked how so many people were included and not just the author. This gave us a much more complete and accurate picture of the disease from all sides.

I was amazed to read the negative review. I understand that not everyone sees the glass half full versus the 99% empty the person who reviewed the book sees. But the review seemed more an attack on the author's character rather than on her work. I feel really sad that someone is so bitter they can't see anything but ugliness no matter where they look. Makes me wonder did they really read the book since in the book I read had stories about suicide, abuse, juvenile Huntington's, death and other real effects of this devastating disease. When I read the review I wondered why this person doesn't write their own book filled with their 42 years of experience.

Faces of Huntington's is one of those books I know I will go back to many times over the years and will recommend to others.

5-0 out of 5 stars Well written and full of information
I have purchased the book Faces of Huntington's,read it,and recommended it to friends.
This was a book that needed to be written.
For the first time I was able to read stories of other people dealing with this disease,like I am.
It is a book that is very easy to read.
Not all stories are sad , and that was encouraging.
You will find ways to handle your problems by reading how others have.
I found my self re-reading the book many times , its comforting. ... Read more


2. Huntington's Disease: The Facts
by Oliver Quarrell
Paperback: 139 Pages (1999-11-15)
list price: US$35.00 -- used & new: US$22.99
(price subject to change: see help)
Asin: 0192629301
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Editorial Review

Book Description
Huntington's Disease is a genetically inherited condition, the result of severe nerve-cell damage in the brain. Due to the recent identification of the gene involved, and the debilitating nature of the disease, a great many more people are now affected either directly or indirectly (families and carers) by this condition. The majority of people develop the disease between the ages of 35 and 55, so for those that are aware of a genetic inheritance, there are enormous problems to confront - should you carry on life as normal? Should you start a family? In this, the first book on Huntington's disease written for sufferers and their families, advice is given on living with this disabling illness. Written as much for carers as for the patients themselves, the book aims to answer some of the questions that both sufferer and carer might have. With the identification of the responsible gene, genetic counselling is now available for those at risk of developing the disease. Though some may wish not to use these services, the book clearly explains the role of the counsellor, and what help is additionally available from the various patient organisations worldwide. ... Read more


3. Huntington's Disease: A Disorder of Families (Johns Hopkins Series in Contemporary Medicine and Public Health)
by Susan E. Folstein
 Hardcover: 264 Pages (1989-11-01)
list price: US$45.00
Isbn: 0801838606
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4. Learning to Live With Huntington's Disease: One Family's Story
by Sandy Sulaiman
Paperback: 176 Pages (2007-05-15)
list price: US$19.95 -- used & new: US$11.87
(price subject to change: see help)
Asin: 1843104873
Average Customer Review: 5.0 out of 5 stars
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Customer Reviews (1)

5-0 out of 5 stars A book for all involved who live with Huntington's Disease!
So many people have written rave reviews to the Sulaiman's and the publisher on this book, I was surprised not to see any posted under Amazon's book review!

Huntington's Disease has been so intricately entwined into the fabric of my life since the early 1980's when my only child, Kelly, was diagnosed with the Juvenile form of this devastating disease.Throughout Kelly's life, and since her death at age 30 to complications of JHD in 1998, I have been deeply involved in trying to help families living with Huntington's Disease by providing resources and support where I can."Learning to Live With Huntington's Disease: One Family's Story" is one of the best non-fictional books on HD to be written since Carman Leal's "Faces of Huntington's" was published in 1998!Whether you are a professional involved in providing support to HD families, a person diagnosed with HD, a young person growing up in an HD family, a person at-risk for inheriting the disease, a friend or a relative of a family living with HD, or a spouse thrown into the role of a "caregiver" in an HD family, each chapter in this book not only will touch your heart but will provide you with insight on how this disease affects every single aspect of the life of anyone who is living with HD!

I highly recommend reading "Learning to Live With Huntington's Disease: One Family's Story"!

Jean E. Miller
HD Patient Outreach
HDSA HD CoE at USF~Tampa, FL.
HD Links: http://get-me.to/hdlinks ... Read more


5. The Test: Living in the Shadow of Huntington's Disease
by Jean Barema
Paperback: 160 Pages (2005-08-30)
list price: US$14.95 -- used & new: US$8.72
(price subject to change: see help)
Asin: 1879957574
Average Customer Review: 3.0 out of 5 stars
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Customer Reviews (5)

4-0 out of 5 stars Food for Thought
I read this book in French, so I cannot comment on the translation, but I do disagree with the above comments regarding the content.Anyone who is considering the test for Huntington's Disease should read this book.I found it thought-provoking and worthwhile.

2-0 out of 5 stars Disjointed and disappointing
My wife has Huntington's Disease and our two sons have this issue to face themselves (whether to take the test that will tell them if they have the rogue gene and will inherit Huntington's Disease, or whether to continue living with uncertainty; with the 50/50 risk of developing the symptoms in their late 30s or 40s). So, I bought The Test to see if there is any insightful thinking in it that could help them. There isn't.

Journalists assume they can write books (the author is a journalist). I know this because I am a journalist and too many of my colleagues assume book-writing is the same skill. It clearly isn't. Also, as no translator is credited at the beginning of the book, I assume Mr. Barema either wrote it in English himself or wrote two versions - one in English and the other in French - on the assumption that his English writing was good enough for the publisher not to get a translator in to do the English version for him (he is French, but spends a lot of time in the USA and studied in the US). Unfortunately, the English is not good enough. It lacks subtlety and, often, clarity. And, as another reviewer has mentioned, below, the facts are too often simply wrong, which is far too casual and thoughtless when the subject matter is so vital for the readers, many of whom will be at risk themselves and will have bought the book for help in dealing with that.

I don't think they will find it, as I don't think it was written to help anyone. It seems to be more of an attempt to turn a personal misfortune into a dramatic work. The material has to be researched and absolutely right so as not to mislead readers who are in the same situation as the author, for whom this is information literally about their own life or death. This book isn't well-researched. Nor is it well structured.

I helped my wife put together her just-published book Learning To Live With Huntington's Disease, and we know how people at risk of this illness need information that has been checked and double-checked to avoid misleading them.

Despite the author's obvious love for his sister and brother, and his horror that they have the disease, there is also a lack of empathy for people with Huntington's in this book that I found shallow. The other people around the author, who are supposed to be central characters to his story, are shadowy and insubstantial and you never get a proper sense of them. You get the feeling the author doesn't either. People with this illness do not have 'nothing in their heads', as Mr. Barema seems to assume sometimes. Nor are they all insane or monstrous, as he says on several occasions. He seems to be over-generalizing from the terrible stories and experiences he had as a child when his mother was dying with Huntington's Disease. Even in the last stages of the illness this is not necessarily always the case. It seems to me his own fear of the illness has led him to play up the cliches.

You can live positively with this illness, even to the last, with enough determination and love.I suspect I am being too harsh. I know my own older son went through several years where he was living a life off the rails, where he was focussed on himself and not on those around him properly. Who can blame him when he had to absorb the information that there was a 50% chance he would not have a future. He pulled through that stage after several years and got himself back together, after we almost lost him.

I feel someone at that stage of the grieving process (this is a process of grieving for your future) who has come through the 'why me?' self-obsessed phase should have written this book to encourage people at risk to realize that yes, it is common to fall apart as your world falls apart around you (which seems to be the stage Mr. Barema was at when writing this book), but that, with love from others AND yourself, you can come thru that stage and become strong again. As Hemingway wrote, the world breaks all of us. But some of us are strong at the broken places. Exactly the same applies to Huntington's Disease. I wish this had been a better book. As it is, I will not be recommending it to my sons as I think it would upset them more than help them.

3-0 out of 5 stars Warm account of a cold dilemma
The Test is a journalist's first-person account of what it means to live at risk for Huntington's Disease. The everyday experience of hundreds of thousands, it is difficult for most people to imagine, and Jean Berera has done well in humanizing what media usually sell as unimaginable. The difficulties that HD brings to relationships within a family are thoughtfully addressed. I didn't give this book a higher rating because I disapprove of the author's (or editor's) decision not to disclose his gene status until the end of the book, using it as a kind of nonfictional plot device. In my reading, the suspense that this decision inevitably promoted detracted from the author's thoughtful reflections.

3-0 out of 5 stars Nothing simple about this test...

Aside from the inaccurate statistics in this book, it does serve another purpose.

Barema focuses on the anxiety, emotional turmoil and obsessive behavior that can occur during the test decision making process, which includes mothers/fathers, sisters/brothers, wives/husbands, children, doctors, etc;

Barema also writes about the issues of Huntington's Disease and the overwhelming struggle to live rationally while feeling irrational.

It seems to be a good book for those considering testing for HD and a real effort to educate anyone who may think that taking "The Test" may be as simple as just getting a blood test.

2-0 out of 5 stars Overshawdowed By Inaccuracy
Couldn't wait to read this book, as my father is struggling with Huntington's Disease, which, of course, meant my own struggle with "to test or not to test."That said, I'm sorry to report that I was sorely disappointed.While I obviously empathize with the subject matter, the inaccuracies in this book drove me nuts and stained this author's credibility with me. Being the journalist that Mr. Barema is I would think an attention to details would be a top priority.Not so, as is evidenced by his bad habit of attributing songs to Woody Guthrie (the most notable public figure with Huntington's) that Woody didn't author."Good Morning America, How Are Ya?" is one.First off, Barema mistitles the song.It's called "The City of New Orleans" and was written by Steve Goodman.It was sung by Arlo Guthrie, NOT Woody."Starry, Starry Night" is another notch inexplicably placed on Woody's song belt.The song was written by Don Mclean.Listen, Mr. Barema, to an author who DID get her facts straight in a book on Bob Dylan, if you're going to make frequent references to a hero like Woody know your game.Also, while the back cover blurb "Huntington's causes death within five to ten years" is gripping and more than likely geared toward sucking in the bookstore browser, it's simply not true.According to every medical web site I've ever haunted since this insidious disease entered our lives (and believe me folks, I've dropped in on them all) death from HD comes within 10-20 years.This is nothing more than an unfortunate and unsettling marketing ploy in my opinion.Apart from facts that fly around like pollen in this memoir, I didn't care for the clipped writing style.Unlike "Publisher's Weekly" it didn't hit me as "moving" or "intense" so much as annoying.Anyway, a real letdown, this one.Save your money and purchase a Woody Guthrie biography instead. ... Read more


6. Huntington's Disease (Genetic Diseases)
by Johanna Knowles
Library Binding: 64 Pages (2006-08-31)
list price: US$29.25 -- used & new: US$29.15
(price subject to change: see help)
Asin: 1404206949
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7. The Official Patient's Sourcebook on Huntington's Disease: A Revised and Updated Directory for the Internet Age
by Icon Health Publications
Paperback: 220 Pages (2002-09-25)
list price: US$28.95 -- used & new: US$28.95
(price subject to change: see help)
Asin: 0597830487
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Editorial Review

Book Description
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to huntington's disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on huntington's disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Huntington's Disease: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Huntington's Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Huntington's Disease; Chapter 5. Books on Huntington's Disease; Chapter 6. Multimedia on Huntington's Disease; Chapter 7. Physician Guidelines and Databases; Chapter 8. Dissertations on Huntington's Disease; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; HUNTINGTON'S DISEASE GLOSSARY; INDEX. Related topics include: Artificial insemination, Chronic Progressive Chorea, Chronic progressive hereditary chorea, Degenerative Chorea, Hereditary Chorea, Hereditary Chronic Progressive Chorea, Huntington chorea, Huntington's chorea, Huntington's disease, Very Early Onset Huntington's Disease, Woody Guthrie's Disease.Download Description
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to huntington's disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on huntington's disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Huntington's Disease: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Huntington's Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Huntington's Disease; Chapter 5. Books on Huntington's Disease; Chapter 6. Multimedia on Huntington's Disease; Chapter 7. Physician Guidelines and Databases; Chapter 8. Dissertations on Huntington's Disease; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; HUNTINGTON'S DISEASE GLOSSARY; INDEX. Related topics include: Artificial insemination, Chronic Progressive Chorea, Chronic progressive hereditary chorea, Degenerative Chorea, Hereditary Chorea, Hereditary Chronic Progressive Chorea, Huntington chorea, Huntington's chorea, Huntington's disease, Very Early Onset Huntington's Disease, Woody Guthrie's Disease. ... Read more


8. Huntington Disease - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers
by Philip M. Parker
Paperback: 222 Pages (2007-07-17)
list price: US$28.95 -- used & new: US$28.95
(price subject to change: see help)
Asin: 0497112353
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Editorial Review

Product Description
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Huntington disease is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more


9. Huntington's Disease (The Facts)
by Oliver W J Quarrell
Paperback: 176 Pages (2008-05-12)
list price: US$27.50 -- used & new: US$27.50
(price subject to change: see help)
Asin: 0199212015
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Editorial Review

Book Description
Huntington's disease is a genetically inherited condition which results in severe nerve-cell damage in the brain. The hereditary and debilitative nature of the disease means that many people are involved either directly or indirectly by this condition. The recent identification of the faulty gene involved has made the diagnosis of this condition simpler. The majority of people develop the disease between the ages of 35 and 55 years, so for those aware of their genetic risk there are dilemmas to consider - should you have a test to see if you have the gene?Should you start a family?The new edition of this successful book specifically designed for families of patients with Huntington's disease has been expanded to include a number of important new developments in research and clinical practice that have occurred in the field in recent years. While there are no drugs currently available that slow down or reverse the neurodegenerative process in Huntington's Disease, there is growing data on the use of existing treatments to manage movement disorder, irritability and depression associated with the condition, which are covered here. This edition also includes completely new chapters covering juvenile Huntington's disease and late-stage Huntington's disease, and a fully updated Appendix of relevant patients' organizations. ... Read more


10. Portraits of Huntington's
by Carmen Leal
Paperback: 237 Pages (2001-07)
list price: US$16.00 -- used & new: US$12.00
(price subject to change: see help)
Asin: 1553062515
Average Customer Review: 4.5 out of 5 stars
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Editorial Review

Book Description
Portraits of Huntington's is a joyful collection of profiles, essays, and quotes for and about those with Huntington's Disease. Portraits of Huntington'sfeatures award winning artist Ruth Hargrave's incredible portraits of eight individuals or family groups who are all in some way touched by this genetic disease.

Joy is a choice. Happiness is based on a set of circumstances, and Portraits of Huntington's asks us to choose joy. As with Faces of Huntington's,in each chapter is thematic, Knowledge, Laughter, Patience, Compassion, Faith, Love, Hope, and Joy.

Whether you are a person with Huntington's Disease, a caregiver, someone at-risk, a family member, a professional, or someone who simply cares, we all need joy in our lives. Somehow, despite the horror of Huntington's Disease, remarkable heroes are choosing joy every day. I hope their inspiring lives, coupled with my stories and Ruth's portraits, will encourage you to choose joy. ... Read more

Customer Reviews (4)

5-0 out of 5 stars What a wonderful book
I know Huntington's is a devastating disease that destroys the person suffering with it and also complete families. But I also know so many people who have come through the experience as better people and that's what this book is about. We are all terminal from the moment we are born yet the author has done a magnificant job of helping the reader understand that joy is a choice.

This book is the perfect companion to Faces of Huntington's since that book features such hard stories about suicide, abuse, family dynamics from hell, and so much more. This book looks at another side of Huntington's. Both books are filled with heros. I love the author's writing style and I was sad when it was over. I know I'll read this book over many times in my life.

4-0 out of 5 stars Compassionate, insightful resource
Carmen Leal has done what few could accomplish.She combines humor, compassion, and love with an insider's view of lives affected by Huntington's Disease.This is the place to go (along with her other book, "Faces of Huntington's") for factual, helpful information in an easy-to-read story format on the devastating genetic illness, Huntington's Disease.
Carmen is an inspiration!She offers light in a dim world, hope where there is despair, and love where none can be returned in kind.
"Portraits of Huntington's" and "Faces of Huntington's" are must-reads for anyone facing the challenges of life with this disease.
...

4-0 out of 5 stars great book
Carmen has touched my heart with her stories of hope in a hopeless situation. She has written straight from the heart an awesome book in a down-to-earth style that anyone would enjoy.

5-0 out of 5 stars Portraits of Huntingotn's
What a joyful book! Living with Huntington's Disease is hard for everyone in the family. But there really are some times filled with love and happiness and joy. Carmen has done a wonderful job of pulling together real life stories of people who choose joy through the lessons they have learned by being caregivers or having the disease or loving someone who does.

I especially liked the profiles of those selected accompanied by portraits drawn Ruth Hargrave. She is a wonderful artist and it was fun to put faces with the stories. I don't have Huntington's in my family, but a good friend does, and I read the book to be a support to that family. What I discovered from reading it is that, like Faces of Huntington's, this book is for everyone. Everyone needs to laugh, cry, be happy, think a lot, look at living heros, look at the good in others, and a lot more that Portraits of Huntington's helps you do.

This is a wonderful book and I am more enriched from having read it. ... Read more


11. Huntington's Disease (Oxford Monographs on Medical Genetics, 45)
Hardcover: 574 Pages (2002-11-14)
list price: US$145.00 -- used & new: US$105.68
(price subject to change: see help)
Asin: 0198510608
Average Customer Review: 5.0 out of 5 stars
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Editorial Review

Book Description
It is now almost a decade since the identification of the Huntington's Disease gene and its mutation, during which time, major advances in our understanding of this disorder have been achieved.Since publication of the first two editions of this book, there have been considerable insights into how the mutation leads to the molecular pathology, neuropathology and clinical symptoms of Huntington's Disease, and experimental tools are now in place to take this research further towards new therapeutic approaches. As a result of these major advances, this well-established series of books has required radical updating.An international group of researchers and clinicians with specialist interests in HD has been commissioned to document the recent advances in our understanding of this disease. Developments in the fields of structural biology, cell biology, neurochemistry and neuropathology, with full coverage of transgenic animal models, are discussed in detail. The clinical sections cover genetic, neurological and psychiatric aspects as well as new developments in therapy.This book will continue to provide an invaluable source of information for clinicians and scientists involved with Huntington's Disease, including geneticists, psychiatrists and neurologists, and basic science research workers in genetics and neurobiology. ... Read more

Customer Reviews (1)

5-0 out of 5 stars Very informative book
This is an excellent, comprehensive book about Huntington's Disease.It is written for doctors, scientists, and other professionals dealing with Huntington's Disease but can also be read by Huntington's Disease families who wish to gain a deeper understanding of the disease. Each chapter is written by experts.There is information about the history of Huntington's Disease, its neuropathology, the psychiatric and behavioral problems, research, genetics, epidemiology, and the treatment of symptoms.

In addition the information about HD that has been published in medical and scientific journals, there is some valuable information from clinical practice that can't be found elsewhere.

I purchased the book to help me answer questions posed by readers of my HD websites and I have found it to be very valuable. ... Read more


12. Metabolon collaborates on biomarker study for Huntington's Disease.(High Q Foundation): An article from: BIOTECH Patent News
 Digital: 2 Pages (2005-01-01)
list price: US$5.95 -- used & new: US$5.95
(price subject to change: see help)
Asin: B000973GDC
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Editorial Review

Book Description
This digital document is an article from BIOTECH Patent News, published by Biotech Patent News on January 1, 2005. The length of the article is 439 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Metabolon collaborates on biomarker study for Huntington's Disease.(High Q Foundation)
Publication: BIOTECH Patent News (Newsletter)
Date: January 1, 2005
Publisher: Biotech Patent News
Volume: 19Issue: 1

Distributed by Thomson Gale ... Read more


13. Living With Huntington's Disease: A Book for Patients and Families
by Dennis Phillips
 Hardcover: 230 Pages (1982-05)
list price: US$30.00
Isbn: 0299086704
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14. Sirna granted patent covering siRNAs targeting Huntington's Disease.: An article from: BIOTECH Patent News
 Digital: 4 Pages (2005-09-01)
list price: US$5.95 -- used & new: US$5.95
(price subject to change: see help)
Asin: B000BYKE6A
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Editorial Review

Book Description
This digital document is an article from BIOTECH Patent News, published by Thomson Gale on September 1, 2005. The length of the article is 1171 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Sirna granted patent covering siRNAs targeting Huntington's Disease.
Publication: BIOTECH Patent News (Newsletter)
Date: September 1, 2005
Publisher: Thomson Gale
Volume: 19Issue: 9

Distributed by Thomson Gale ... Read more


15. A physician's guide to the management of Huntington's disease
 Paperback: 85 Pages (1999)

Isbn: 096377302X
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16. Disgust and Huntington's disease [An article from: Neuropsychologia]
by C.J. Hayes, R.J. Stevenson, M. Coltheart
Digital: Pages (2007-01)
list price: US$7.95 -- used & new: US$7.95
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Asin: B000PDSMSE
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Editorial Review

Book Description
This digital document is a journal article from Neuropsychologia, published by Elsevier in 2007. The article is delivered in HTML format and is available in your Amazon.com Media Library immediately after purchase. You can view it with any web browser.

Description:
The disproportionate impairment for the recognition of facial expressions of disgust in patients with Huntington's disease (HD) forms a double dissociation with the impaired recognition of fear that has been reported in amygdala patients. The dissociation has generated discussion regarding the potential existence of neural substrates dedicated to the recognition of facial signals of specific emotions. The aim of this study was to establish whether the impairment for disgust in HD was restricted solely to the domain of facial perception, or whether HD patients also demonstrate impairment in other kinds of disgust. Fourteen HD patients and fourteen age and education matched healthy controls participated in seven disparate emotion processing tasks. (1) A measure of knowledge for the situational determinants of distinct emotions; (2) recognition of emotion expressed in nonverbal vocalisations; (3) recognition of the emotional content of explicit lexical stimuli; (4) recognition of emotional content in pictures of emotion scenes; (5) a disgust experience questionnaire; (6) a measure of olfactory hedonic responsiveness; (7) a measure of gustatory perception. While verbal aspects of disgust processing were preserved, parallel impairments were revealed for olfactory disgust, vocal disgust expressions, the classification of disgusting pictures, and declarative knowledge of disgust elicitors. The finding of impaired perception of disgust signalled through different input domains suggests that the inability to recognise the facial expression in this population reflects a fundamental problem with disgust processing. ... Read more


17. Commission for the Control of Huntington's Disease and Its Consequences. Volume III, Part 1: Work Group Reports--Research, October, 1977.
by United States Public Health Service.
 Paperback: Pages (1977)

Asin: B000Z6YSP2
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18. Reliability of speech intelligibility ratings using the unified Huntington Disease Rating Scale.: An article from: Journal of Medical Speech - Language Pathology
by Richard I. Zraick, Dena J. Davenport, Samer D. Tabbal, Terri J. Hutton, Gretchen M. Hicks, Jana H. Patterson
 Digital: 22 Pages (2004-03-01)
list price: US$5.95 -- used & new: US$5.95
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Asin: B000827MV0
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Editorial Review

Book Description
This digital document is an article from Journal of Medical Speech - Language Pathology, published by Delmar Learning on March 1, 2004. The length of the article is 6328 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Reliability of speech intelligibility ratings using the unified Huntington Disease Rating Scale.
Author: Richard I. Zraick
Publication: Journal of Medical Speech - Language Pathology (Refereed)
Date: March 1, 2004
Publisher: Delmar Learning
Volume: 12Issue: 1Page: 31(10)

Distributed by Thomson Gale ... Read more


19. Speech disorders in mild and moderate Huntington disease: results of dysarthria assessments of 19 individuals.: An article from: Journal of Medical Speech - Language Pathology
by Lena Hartelius, Anna Carlstedt, Monica Ytterberg, Malin Lillvik, Katja Laakso
 Digital: 24 Pages (2003-03-01)
list price: US$5.95 -- used & new: US$5.95
(price subject to change: see help)
Asin: B0009FYJ5S
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Editorial Review

Book Description
This digital document is an article from Journal of Medical Speech - Language Pathology, published by Delmar Learning on March 1, 2003. The length of the article is 7070 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Speech disorders in mild and moderate Huntington disease: results of dysarthria assessments of 19 individuals.
Author: Lena Hartelius
Publication: Journal of Medical Speech - Language Pathology (Refereed)
Date: March 1, 2003
Publisher: Delmar Learning
Volume: 11Issue: 1Page: 1(14)

Distributed by Thomson Gale ... Read more


20. Huntington Disease - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References
by ICON Health Publications
Paperback: 164 Pages (2004-03-31)
list price: US$28.95 -- used & new: US$28.95
(price subject to change: see help)
Asin: 0597844550
Canada | United Kingdom | Germany | France | Japan
Editorial Review

Book Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to Huntington disease. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to Huntington disease.If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages.Download Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to Huntington disease. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to Huntington disease. If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages. ... Read more


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