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41. Pervasive Developmental Disorders:
42. Pervasive developmental disorders:
43. Keeping Katherine: A Mother's
44. Grief Dancers: A Journey into
45. A NEATS Analysis of Autism Spectrum
46. What is PDD?: Pervasive developmental

41. Pervasive Developmental Disorders: An entry from Gale's <i>Gale Encyclopedia of Medicine, 3rd ed.</i>
by Donald, RN Barstow, Teresa Odle
 Digital: 3 Pages (2006)
list price: US$4.90 -- used & new: US$4.90
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Asin: B002DGQTY0
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This digital document is an article from Gale Encyclopedia of Medicine, 3rd ed., brought to you by Gale®, a part of Cengage Learning, a world leader in e-research and educational publishing for libraries, schools and businesses.The length of the article is 1460 words.The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase.You can view it with any web browser.The third edition of this authoritative, comprehensive, in-depth medical guide features information on medical topics in language accessible to adult laypersons. Disease/disorder articles typically cover definition; description; causes and symptoms; diagnosis; treatments; prevention; and more. Test/treatment articles typically cover definition; purposes; precautions; preparation; risks; normal and abnormal results; and much more. ... Read more

42. Pervasive developmental disorders: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i>
by Rebecca, PhD Frey
 Digital: 4 Pages (2005)
list price: US$3.45 -- used & new: US$3.45
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Asin: B000M5B2JG
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Information on many genetic disorders, and the frequent new findings on them, has been extremely difficult to come by—until now. The “Gale Encyclopedia of Genetic Disorders” addresses the need for current, hard-to-find facts on emerging discoveries. The two-volume Encyclopedia, presented in a single alphabetical sequence, provides clear, complete information on genetic disorders, including conditions, tests, procedures, treatments and therapies, in articles that are both comprehensive and easy to understand, in language accessible to laypersons. The articles are arranged in a standardized format for quick comparison and ease of use, while non-disorder topics are covered in detail with extended entries. Students will want to consult the “Gale Encyclopedia of Genetic Disorders” for useful information on a range of well known disorders, including Down Syndrome, Trisomy, Hemophilia and Tourette Syndrome, and rarely seen diseases such as Meckel Syndrome, Neuraminidase Deficiency and Phenylketonuria.

... Read more

43. Keeping Katherine: A Mother's Journey to Acceptance
by Susan Zimmermann
Paperback: 240 Pages (2004-12-28)
list price: US$14.00 -- used & new: US$9.83
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Asin: 1400052017
Average Customer Review: 4.0 out of 5 stars
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Katherine was a beautiful, perfect baby for the first year of her life. Then, without warning, she changed forever. She started crossing her eyes. She cried at night for hours at a time and could not be soothed. She stopped saying words, stopped crawling, and began what would become a lifelong habit of wringing her hands. Hospital visits and consultations with doctors offered no answers to the mystery. Soon Katherine slipped away to a place her mother and father could never reach.

In Keeping Katherine, Susan Zimmermann tells the story of her life with her daughter Katherine, who has Rett syndrome, a devastating neurological disorder. Writing with honesty and candor, Zimmermann chronicles her personal journey to accept the changed dynamic of her family; the strain of caring for a special needs child and the pressure it placed on her marriage, career, and relationship with her parents; the dilemma of whether Kat would be better cared for in a group home; and most important, the altered reality of her daughter’s future. A story of personal transformation that reminds us that it isn’t what happens to us that shapes our humanity, but how we react, Keeping Katherine shows the unconditional love that exists in families and the gifts the profoundly disabled can offer to those who try to understand them. ... Read more

Customer Reviews (5)

5-0 out of 5 stars the truth about Rett
This book was exactly what I've been looking for. Rett is not common in my area so no one knows what it's like. I needed something from a parent's perspective that was brutally honest, and this is it. Susan is truly a hero, and did the world a favor by writing the truth in her book.

4-0 out of 5 stars The Challenge of Love
If you don't love, you aren't challenged.This book presents a journey of love and loss and acceptance.

The most difficult thing a parent can experience is losing a "normal" child to a disease or condition and then parenting the "new" child.One can never forget the child whom was lost, despite the love and devotion to the disabled child.

As a mother of a disabled child for 29 years (whom we suspected had Rett Syndrome but didn't), this book gave me another voice in the wilderness.

Margaret Marshall Rhyne, Remembering Alexis, Finding Perspective in Love and Loss

5-0 out of 5 stars A fine balance
I just finished reading your touching account of your journey with Katherine. I found your book while in search of "models" for a book I've been invited to help publish. Your book is the perfect starting place for me to help.

You balance love and loss, the emotional and the practical, the personal and the public, so eloquently. You made me love Kat and I haven't even met her. You mirrored my thoughts about terminating a life because you may learn of a probably handicap. I've always thought that these children bring a special message. True, I live in my own glass bubble ... I didn't have to face the hardships of raising such a child year after year. Both my boys are healthy young men now, but I did have a short-lived scare with the oldest. He spent the first week of his life in NICU.

In only that short time, I experience a wide range of emotions ... including not being able to name my baby because he might not live ... then realized I HAD to name him because he might not live.

I'm glad you shared that part of you that our society wants us to hide. The "not nice" thoughts and contemplations. It only makes sense to me that you wouldn't be able to include Katherine on all of your life experiences and why shouldn't you take some time to refresh and renew so you would be able to give more to your beloved child. It was ever clear to me that although you had trouble accepting her condition, you loved/love her very much. You struck a fine balance.

1-0 out of 5 stars Honestyisn't always the best policy.
Yes, the author is honest, to the point of heartbreak. I really disliked this book, and it just broke my heart how Katherine was treated. It seems as though the author was very self absorbed and couldn't accept Katherine for who she is. I too have a non-verbal, non-ambulatory daughter, so I understand how it feels, I live it.

What I didn't understand was the author's several trips and conferences and most of all the family trips and vacations and then they would leave Katherine at HOME with a caregiver so they didn't have to deal with her. I also couldn't wrap my head around the Grandparents totally ignoring Katherine and the Author allowing them to treat her so shabby. There was a point in the book where the family leaves to go stay at the Grandparents and when they are leaving Katherine is crying, but they go without her anyway!

The author went on and on about HER grief and how she needed the trips etc...but what about Katherine? Just because a person can't talk doesn't mean they can't feel. The author made it seem as though just because she kept Katherine at home that was better than putting her into a care home, yet she was ignored in the home! She wrote about her younger daughter paying more attention to Katherine than she as a Mother did, and how the daughter's felt bad that Katherine was left alone in her room and the times they went away without her.

The only redeeming thing was the end when Katherine has a caretaker that takes her on all kinds of trips and spends so much time with her.

5-0 out of 5 stars Honest Words
I always scan the newest titles in the special needs section when I visit bookstores. My son, like Zimmermann's daughter, is profoundly disabled. I look for books that connect me to the author's experiences. It helps me to feel less alone. I really scored with this one.

Keeping Katherine is a wise book, exceptionally well-written and honest. Although I didn't go through the extended period of repressed grieving that the author did, I understand it. Among most of us with non-verbal, profoundly affected children, there is the ongoing experience of mourning. It rises and falls, and it doesn't take away the beauty we see in our sons and daughters, nor does it negate the powerful love we feel for them.

In the book, she writes, "To cope with Kat, I have sought out those people like Rita and Linda Orona, who loved Katherine as she was and took comfort from her. Those who held her close and looked directly in her eyes. Those who felt no embarrassment, but understood the peace of her presence."

Those words spoke to me. The book is a wonderful read for parents of children with disabilities, as well as anyone interested in the power of love.
Carolyn Murray
... Read more

44. Grief Dancers: A Journey into the Depths of the Soul
by Susan Zimmermann
 Paperback: 245 Pages (1996-10)
list price: US$14.95 -- used & new: US$9.19
(price subject to change: see help)
Asin: 0965269523
Average Customer Review: 5.0 out of 5 stars
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Customer Reviews (6)

5-0 out of 5 stars TOUCHING THE SOUL..........
I just re-read this book. It is one of the most valuable books for parents, teachers and those who deal with crisis in their life-- which probably means all of us. The author writes poetically of one of the greatest challenges anyone can have --coming to terms with what life gives you. A lawyer, lecturer, teacher and parent, Zimmerman's book goes well beyond talking about the challenges of raising a handicapped daughter and its impact on her family, friends and others. She bares her soul to reveal how you can create a valuable life day by day. Her vitality, her wisdom and her sensitivity are a gift to the world. She writes cinematically and this deserves to be shared with the world. I had the good fortune to meet Zimmerman and she touches everyone she meets with her kindness and warmth. How to go on in the darkest of hours, how to live life to the fullest despite obstacles, hurdles and no guarantees.

5-0 out of 5 stars Not just for parents of disabled kids
This is a wonderful story, a tribute to the human spirit.It's a tribute to Zimmermann's determination, too.I read in Zimmermann's later book that Grief Dancers was turned down by 30 publishers.Then she published it herself.There is much to learn from this story.Just one tidbit to whet your appetite:Zimmermann is concerned as to the effect of the disabled child on the other children.Her young daughter says: "Don't you get it, Mom? She keeps us from just living on the surface."(Despite my name, I am not the author or any of her relatives!)

5-0 out of 5 stars It will leave you laughing, crying, and will touch your soul
This book touched me deeply because I can relate so closely to how Susan was feeling while raising a daughter with Rett syndrome. Her book takes you not only through her daughter's struggles and challenges but it alsotouchesyour heart as you begin to see how Susan grows with her ownrealization ofhow wonderful life can be with a child with special needs.

5-0 out of 5 stars What others say about Grief Dancers...
"I have spent most of the day reading Grief Dancers, and am awed by its honesty and beauty. It's a wonderful book, and I wish it could be required reading." Madeleine L'Engle, Newbery Award winning author. "Susan Zimmermann portrays, with honesty, passion and wisdom, a chapter of her life that is both deeply terrifying and wholly inspiring. It is a story of loss and gain, pain and joy, and -- above all -- profound truth. It is a story with the power to change your life." T.A. Barron, author of Heartlight, The Ancient One, and The Merlin Effect. "Susan Zimmermann has written a book about her daughter, but also a book about each of us -- the fragile, damaged, but insistently precious part deep inside, that refuses to be cast off. To read these pages is to be reminded of the value of life itself. I have rarely been so moved." Swanee Hunt, former U.S. Ambassador to Austria.

5-0 out of 5 stars spellbinding story of a family who triumphs over "tragedy"
Susan Zimmermann's story about Katharine is NOT for readers with special needs kids only! It is for all people who have an interest in raising children who will appreciate the different gifts that "different"people have to offer. It is about cultivating in our children an appreciation for, rather than disdain or despair for, people who are "disabled". This is a quick read,very compelling true storythat deserves widespread attention! I look forward to Susan's next work!!!!! ... Read more

45. A NEATS Analysis of Autism Spectrum Disorders
by Ph.D., LICSW Jane F. Gilgun
Kindle Edition: Pages (2009-11-23)
list price: US$1.99
Asin: B002YK45B4
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This article describes autism spectrum disorders (ASD) and shows that early intervention may change developmental pathways so that some children with the potential for ASD can join the social world & succeed in school. Written for parents and professionals, this article discusses the neurobiology, executive function, attachment, trauma, & self-regulation (NEATS) issues related to ASD. ... Read more

46. What is PDD?: Pervasive developmental disorders in school age children a handbook for parents, teachers and concerned professionals
by Richard Paul Morriss
 Unknown Binding: 39 Pages (1993)

Asin: B0006PH8HW
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