81. Spina Bifida - DrGreene.com - Caring For The Next Generation or paralysis, decreased sensation, and hydrocephalus. more common in those with spinabifida. http://www.drgreene.com/21_1191.html

QUICK SEARCH A - Z Guide Allergies Allergy Care Guide Asthma Care Guide Bedwetting Breastfeeding Childhood Obesity Diabetes Care Guide Ear Infections Genetics Immunizations Infectious Diseases Parenting Potty Training Rashes Safety Sleep DrGreene.com Topic Centers Mission Reviews Awards Readers Comments Press Room Partners and Supporters Contact Us Pediatric Information A-Z Guide Allergy Care Guide Asthma Care Guide Diabetes Care Guide DrGreene´s Chats FAQ Fast Facts Feature Articles Guidelines Pediatric Updates Special Feature Top Tips Community Activty Guide Advanced Search Community Central Chat Chat Schedule Cute Faces Family Friendly Recipes Parent-to-Parent Resources The DrGreene Team Newsletter Prenatal Newborn Infants Toddlers Pre-Schoolers School Age Teens / Adolescents Multimedia Library Children's Health Fertility Spina Bifida Also known as: Anencephaly, Encephalocele, Myelomeningocele, Neural tube defects Introduction: Before many women even realize that they are pregnant , their unborn baby’s neural tube has formed and closed at both ends. This tube will become the baby’s spinal cord. What is it?

82. Increased Intracranial Pressure In Myelomeningocele (MMC) Patients Never Shunted a prospective protocol in which patients with hydrocephalus associated with SettingMultidisciplinary spina bifida Unit in a tertiary university hospital in http://www.nature.com/cgi-taf/DynaPage.taf?file=/sc/journal/v38/n8/abs/3101032a.

83. BabyCentre | Special Needs A - Z 555 988 Advice and practical support for people with spina bifida and hydrocephalusand their 9am 5pm Information about any aspect of genetics; this is a http://www.babycentre.co.uk/refcap/546150

var ACM; Site Index Features Baby Namer Pregnancy Calendar Baby Calendar Interactive Tools Fun tools to learn and play with. Sound Advice Birth Announcements Create a web page to send to your family and friends. Free BabyCentre Newsletter! Up-to-date parenting news Home BabyCentre's A-Z of Organisations Special needs A - Z Whatever the needs of you or your child, there is an organisation out there who can help. ASBAH (Association for Spina Bifida and Hydrocephalus) BIBIC (British Institute for Brain-Injured Children) Birth Defects Foundation British Epilepsy Association ... Related Topics ASBAH (Association for Spina Bifida and Hydrocephalus) www.asbah.org Tel: 01733 555 988 Advice and practical support for people with spina bifida and hydrocephalus and their carers. email: postmaster@asbah.org BIBIC (British Institute for Brain-Injured Children) www.bibic.org.uk Tel: 01278 684060 Help to overcome disabilities and help children reach their full potential and live a fulfilling and more rewarding life. Birth Defects Foundation www.birthdefects.co.uk

84. Birth Defects Of The Central Nervous System genetics the exact genetic association is unclear, but 10 affected babies also havehydrocephalus, which is spina bifida can be mild, moderate or severe and http://www.disability.vic.gov.au/dsonline/dsarticles.nsf/pages/Birth_defects_of_

85. TBDHU - MSS For Open Neural Tube Defect Or Spina Bifida spina bifida is an opening in the bones around the spinal cord. and bladder controlas well as other medical problems such as hydrocephalus (an accumulation of http://www.tbdhu.com/factsheets/MSS_ONTD.htm

Home About Us Breaking News Pick a Topic Community Involvement Disease Prevention Healthy Living Food Hazard Investigation Inspections Injury Prevention Sexual Health Pick an Audience Medical Professionals Parents Seniors Teachers Teens Women FactSheets Site Map Contact Us MSS for Open Neural Tube Defect What is MSS? MSS is a blood test available to all pregnant women in Ontario. MSS measures three different hormones that have been produced by the baby's liver and the placenta. These hormones pass into the mother's blood stream in small amounts. MSS measures these amounts and compares them to the average level for women in the same week of pregnancy. From this information, the chance of a baby having trisomy 18, Down syndrome, or open neural tube defect (spina bifida) is calculated. What Does Screen Positive Mean? A screen positive result means the chance of the baby having an open neural tube defect is increased compared to other pregnancies. Only further testing can tell if the baby really has an open neural tube defect. When the maternal serum screen is screen positive for an open neural tube defect, most times the baby is healthy and does not have a neural tube defect. What is an Open Neural Tube Defect?

86. Clinical Neurogenetics, Wake Forest The Wake Forest hydrocephalus Index; The Wake Forest Epilepsy Index; The Wake Foresthydrocephalus Index; The Wake Forest spina bifida/Myelodysplasia Index; The http://www.bgsm.edu/bgsm/surg-sci/ns/ngenet.html

Clinical Neurogenetics Department of Neurosurgery Wake Forest University School of Medicine Links to information on neurogenetic diseases treated by neurosurgeons: Neurofibromatosis, Tuberous Sclerosis, and von Hippel-Lindau Disease. Links to more information on neurofibromatosis (NF-1 and NF-2) Links to more information on tuberous sclerosis Links to more information on Von Hippel-Lindau disease Von Hippel-Lindau Disease and Hemangioblastoma Von Hippel-Lindau Disease Family Alliance Homepage VHL Family Alliance Handbook: What you Need to Know about VHL VHL Family Alliance via email More information about VHL What is Von Hippel-Lindau Disease? An International Listing of VHL Support Organizations Information in French Information in Spanish Information in German The Danish VHL Association Danish and English von Hippel-Lindau Disease from the National Institute of Neurological Disorders and Stroke (USA) What is von Hippel-Lindau Disease? Is there any treatment? What is the prognosis? What research is being done? ... Stereotactic Radiosurgery for Hemangioblastomas of the Brain. Ajay Jawahar, M.S., Douglas Kondziolka, M.D., Yolanda I. Garces, M.D., John C. Flickinger, M.D., Bruce E. Pollock, M.D., and L. Dade Lunsford, M.D. UPMC Presbyterian, Pittsburgh, PA. National Cancer Institute Kidney Cancer Web Page Galaxy.Net's

87. Miracle Surgery known as hindbrain herniation or chiari malformation that could have caused hydrocephalus. effectsof this condition that occurs in severe forms of spina bifida http://biology.about.com/library/weekly/aa111899.htm

zfp=-1 About Homework Help Biology Search in this topic on About on the Web in Products Web Hosting Biology with Regina Bailey Your Guide to one of hundreds of sites Home Articles Forums ... Help zmhp('style="color:#fff"') Subjects ESSENTIALS Science Fair Projects Top Biology Programs Biology How Tos ... All articles on this topic Stay up-to-date! Subscribe to our newsletter. Advertising Free Credit Report Free Psychics Advertisement Miracle Surgery Dateline: 11/18/99 It sounds almost too good to be true - correcting potential debilitating defects while a baby is still in the womb. Doctors at the Children's Hospital of Philadelphia have done just that - performed fetal neurosurgery in vivo. The doctors operated and closed a hole in the tissue that covered the baby's spine. This relieved a condition further up the spinal cord known as hindbrain herniation or chiari malformation that could have caused hydrocephalus . By closing the hole while in the womb, the doctors hoped to circumvent the devastating effects of this condition that occurs in severe forms of spina bifida "After making an incision in the mother's abdomen and uterus to expose the back of her fetus, surgeons prepare to correct a spina bifida lesion caused by abnormal development of the spinal cord. The surgery was performed at The Center for Fetal Diagnosis and Treatment at The Children's Hospital of Philadelphia."

88. Neurosurgeons For Children in neurosurgery/human molecular biology and genetics, and a treats patients with congenitalhydrocephalus, congenital quadriplegia and spina bifida. http://www.gillettechildrens.org/resource-center/newsrelease/Neurosurgeons.html

NEWS RELEASE For more information, contact: John Barrett (651) 229-1723 FOR IMMEDIATE RELEASE Previously at Gillette, Partington has concentrated on patients with brachial plexus injuries and lesions, congenital hydrocephalus, congenital quadriplegia (cerebral palsy), and spina bifida. He has replaced shunts to relieve pressure in children with hydrocephalus, inserted intrathecal baclofen (ITB) pumps in children and adolescents with spasticity from cerebral palsy, and performed many spinal canal and spinal cord procedures. Petronio also treats patients with congenital hydrocephalus, congenital quadriplegia and spina bifida. He has replaced shunts, inserted ITB pumps, and performed spinal procedures. In addition, he has a strong interest in craniofacial issues (anomalies of the skull and facial bones). He often works in conjunction with Robert Wood, M.D., during craniofacial surgeries. Gillette Children's Specialty Healthcare, an independent, not-for-profit hospital and clinics, is internationally recognized for its work in the diagnosis and treatment of children, adolescents and young adults with chronic conditions, including cerebral palsy, brain and spinal cord injuries, complex orthopaedic problems, arthritis, epilepsy, chronic pain, spina bifida and craniofacial anomalies.

89. Children With Spina Bifida: A Resource Page For Parents & Professionals Peruse this list of resources, associations, Web resources and online discussion groups. With treatment information. http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx

Spina Bifida Organizations Spina Bifida Online Discussion Groups Hydrocephalus Resources Chiari Malformation ... Prenatal Diagnosis ~ Genetics ~ Fetal Surgery Folic Acid Information Hot Lines Yellow Ribbon for Spina Bifida Awareness ... The Spina Bifida Survey! The Children with Spina Bifida Web Site has been visited 207,324 times since March 6, 1996. This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida. Inclusion of any resource or web site does not imply endorsement. Any medical or health care reference is intended for informational purposes only. If you have any questions relating to your child's condition please consult your child's doctor. Last updated 3/2/2003 by Linda Rowley . E-mail: rowley@waisman.wisc.edu Document Source: http://www.waisman.wisc.edu/~rowley/sb-kids/

90. Abstract Of SANDI Project Life with spina bifida. There are special considerations and medical issues thatmay arise for people with spina bifida. Educating Children With spina bifida. http://ped1.med.uth.tmc.edu/spinabifida/life.html

91. Children With Spina Bifida: A Resource Page For Parents & Professionals spina bifida Survey Results! The spina bifida Survey! The Children with spina bifidaWeb Site has been visited 207,324 times since March 6, 1996. Disclaimer http://www.waisman.wisc.edu/~rowley/sb-kids/

Spina Bifida Organizations Spina Bifida Online Discussion Groups Hydrocephalus Resources Chiari Malformation ... Prenatal Diagnosis ~ Genetics ~ Fetal Surgery Folic Acid Information Hot Lines Yellow Ribbon for Spina Bifida Awareness ... The Spina Bifida Survey! The Children with Spina Bifida Web Site has been visited 207,324 times since March 6, 1996. This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida. Inclusion of any resource or web site does not imply endorsement. Any medical or health care reference is intended for informational purposes only. If you have any questions relating to your child's condition please consult your child's doctor. Last updated 3/2/2003 by Linda Rowley . E-mail: rowley@waisman.wisc.edu Document Source: http://www.waisman.wisc.edu/~rowley/sb-kids/

92. Children With Spina Bifida: A Resource Page For Parents & Professionals spina bifida Survey Results! The spina bifida Survey! The Children with spina bifidaWeb Site has been visited 198,406 times since March 6, 1996. Disclaimer http://thuria.waisman.wisc.edu/~rowley/sb-kids/

Spina Bifida Organizations Spina Bifida Online Discussion Groups Hydrocephalus Resources Chiari Malformation ... Prenatal Diagnosis ~ Genetics ~ Fetal Surgery Folic Acid Information Hot Lines Yellow Ribbon for Spina Bifida Awareness ... The Spina Bifida Survey! The Children with Spina Bifida Web Site has been visited 207,324 times since March 6, 1996. This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida. Inclusion of any resource or web site does not imply endorsement. Any medical or health care reference is intended for informational purposes only. If you have any questions relating to your child's condition please consult your child's doctor. Last updated 3/2/2003 by Linda Rowley . E-mail: rowley@waisman.wisc.edu Document Source: http://www.waisman.wisc.edu/~rowley/sb-kids/

93. Click For Main Page Teratology Society Members' Section spina bifida Organizations http://www.teratology.org/members/memblink.htm

Teratology Society Members' Section Home Directory Publications Meetings ... Discussion Links Teratology-Related Links Index General resources Journals Research funding Transgenic animal databases and vendors ... Government agencies General Resources top Guidelines from governmental agencies National Library of Medicine NetVet Whole Mouse Catalog Magnetic Resonance Imaging ... Molecular and cellular pathways BioCarta's interactive graphic models The Merck Manual of Medical Information - Home Edition Noteworthy is Section 22 that has chapters on pregnancy (High-Risk, Complications, and Diseases), drug use during pregnancy, and labor/delivery. National Center for Biotechnology Information (NCBI) A national resource for molecular biology information. NCBI creates public databases, conducts research in computational biology, develops software tools for analyzing genome data, and disseminates biomedical information. Examples: Online Mendelian Inheritance in Man (OMIM) Databases Research Funding top Funding for Teratology - grant information Scientific Societies top American College of Toxicology Australian Teratology Society Behavioral Toxicology Society ... FASEB - Federation of American Societies for Experimental Biology International Consortium For Oral Clefts Genetics International Federation of Placental Associations Japanese Teratology Society Midwest Teratology Association (MTA) ... Organization of Teratology Information Services (OTIS) Society for the Study of Reproduction Society for Developmental Biology Society of Toxicology Developmental Biology Courses and Information

94. GeneCare Medical Genetics Center Patient Information - Open Neural Tube Defects http://www.genecare.com/ontd.html

Open Neural Tube Defects The most common serious birth defects in the U.S. involve openings of the skull and spine called open neural tube defects (ONTDs). These ONTDs are related in that they all involve defects of the formation of the skull and spine. They occur at about one month after conception, when the tissue which is to become the brain and spinal cord is represented by a flat tissue running down the back of the embryo. This tape-like tissue must form a closed tube (the neural tube). If the tube fails to seal at the skull, the resulting defect is an open skull (anencephalus or encephalocele) . If the tube fails to seal along the spine, the resulting defect is an open spine (meningomyelocele or spina bifida) SPINAL DYSRAPHISM is the association of spina bifida occulta with scoliosis and/or pilonidal cysts or other skin changes on the spine. Spinal dysraphism is an ONTD with the same cause and recurrence risk as other ONTDs. Spina bifida occulta alone is not an ONTD and does not have the same cause or recurrence risks. Heredity and, in many cases, environment, play a role in causing these birth defects. About 95% of couples who have a fetus affected with ONTD have a negative family history. Most ONTDs are caused by multifactorial inheritance.

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