41. Our Daughter's Arthrogryposis Our Daughter's arthrogryposis. More Extensive Page on Josepha's disabilityarthrogryposisGreat Resource Page to new parents with AMC-many photos. http://www.angelfire.com/journal/adoptionhelp/arthro.html

ME! I have a special kind of smile, A special kind of talk. I hold my head a special way, And I've a special walk. My laughing always sounds like me, No one sings like I sing. I have a special kind of way of doing everything. For I'm a special person. There's no one quite like me. And if I had a choice, I guess I'de just choose being me! -Ruth Dana Pederson We find delight in the beauty and happiness of children that makes the heart too big for the body. Our Daughter's Arthrogryposis More Extensive Page on Josepha's disability-Arthrogryposis Great Resource Page to new parents with AMC-many photos Our family has come in contact with so many beautiful children and families struggling with Arthrogryposis. They have been such an inspiration and encouragement to our family! My husband and I did some ground work prior to accepting the referral of our daughter from the adoption agency. We consulted with our Genetic Specialist, who knew little about this condition but was more than willing to research it. My husband and I attended a full-day seminar on Arthrogryposis at our local Children's Hospital. This was headed by Dr. Judith Hall, the leading expert on the subject. She has researched this condition for the past 20 years and revealed cutting-edge information on the subject. I also contacted a few parents who were raising children with arthrogryposis and found them most helpful. Initial Contact We first heard of our daughter residing in a babies home in Seoul, Korea when she was 4 months old. At that time, she had been diagnosed as being born with a type of Arthrogryposis known as Amyoplasia, affecting only her upper limbs. Within 10 days of life, her biological parents placed her in the care of an agency for adoption because they were given little hope for her future, and felt unable to afford the needed care. We first met Soo(Excellent) Hee (Brilliant) through a picture at age four months. She was born with shoulders internally rotated, elbows fixed in extension,and flexion contracture of her wrists. She received range of motion by a therapist visiting her 3x's weekly in the orphanage. The US doctors believe this saved her small muscles from atrophying.

42. Index Living with arthrogryposis multiplex congenita. http://www.geocities.com/Lil_Miss_Speedie/

NAME: Jennifer Lee D.O.B: Home: New Zealand Hobbies: Listening to music (Loud!!!) Going Cross Country through the local forest in my Motorised Wheelchair yeeeehaaa!!!! Motor Sports WATCHING :o( Cuz my chair doesn't go fast enough YET for me to join in LOL :oP Crafts and Folkart Painting Graphic Design My Pets Family And best of all Entertaining my Baby Neice Britney Living with Arthrogryposis Multiplex Congenita Hey there, my name is Jenny, I was born with a condition called Arthrogryposis Multiplex Congenita, (AMC). AMC has effected both of my shoulders, elbows, wrists, knees and feet. I was born with one straight leg and one bent leg (which I broke in the womb), and both feet are clubbed. I've had several corrective surgeries on both legs from the age of 1 to 12 years old. And thankfully have had no surgery on my arms. I walk around the house and use an motorised wheelchair outside. They gave me my first motorised wheelchair at the age of 4, but like alot of people with disabilties, they had me trying all sorts of contraptions to get me mobile, I tried trolleys 3 inches off the ground (boye did spiders look big ...), my first trolley was made by my Father. Then I tried walkers that always seemed to wheel too fast, they almost had me running before I could walk... :o)

43. Roche Lexikon Medizin (4. Aufl.) - Arthrogryposis Multiplex Congenita arthrogryposis multiplex; arthromyodysplasia. http://www.gesundheit.de/roche/ro00000/r2287.html

Arthro gry po sis multi plex congenita Arthromyodysplasia congenita, G *-S TERN * Syndrom engl.: congenital arthrogryposis multiplex; arthromyodysplasia path-anat Verwandte Themen Aase*-Smith* Syndrom Amyoplasia congenita Arthromyodysplasie Gliederstarre ... Starre

44. Ileana Hernandez I was born with a disability called arthrogryposis multiplex congenita, aka AMC. http://www.geocities.com/tinkerilie/main.html

45. Arthrogryposis arthrogryposis MULTIPLEX CONGENITA (AMC). http://www.dpo.uab.edu/~birmie/amc.htm

ARTHROGRYPOSIS MULTIPLEX CONGENITA (AMC) Definition Epidemiology Pathophysiology Etiology ... Reference Page Definition AMC is a nonprogressive congenital neuromuscular syndrome characterized by severe joint contractures, muscle weakness, and fibrosis. Epidemiology AMC occurs in 1 out of every 3000 live births. Amyoplasia, characterized by fatty and fibrous tissue replacement of the limb muscles, is the most common form (43%). Pathophysiology The principle cause of AMC is believed to be decreased fetal movements (akinesia) caused by maternal or fetal abnormalities. It is associated with neurogenic and myopathic disorders. It is believed that the neuropathic form of AMC involves a deterioration in the anterior horn cell leading to muscle weakness and fibrosis. Etiology Several factors are implicated in AMC including hyperthermia of the fetus, prenatal virus, fetal vascular compromise, septum of the uterus, decreased amniotic fluid, muscle and/or connective tissue developmental abnormalities. Clinical Manifestations The primary joints involved (in order of decreasing prevalence) include the foot, hip, wrist, knee, elbow, and shoulder. AMC is typically symmetrical and

46. Stetson's AMC Help Page I have severe arthrogryposis but I am making incredible progress with a lot of love and craniosacral therapy. http://members.hometown.aol.com/_ht_a/mommy2stetson/myhomepage/profile.html

Stetson's AMC Help Page Basic Facts My name is Stetson Frogge' and I was born on January 10th, 2001. I have severe arthrogryposis but I am making incredible progress with a lot of love and cranio-sacral therapy. I have blue eyes, red hair, and a heart warming smile. I have been undergoing cranio-sacral therapy and it has improved my condition a lot. My mom would love to hear from you if you would like more information about this therapy. Her e-mail address is mrs_frogge@yahoo.com My Online Life My mom is helping me to get the word out about the incredible differance that cranio-sacral therapy is making in my life and how it has helped other people with AMC too. Please see my links. They tell you about the institute that teaches this therapy and where you can locate a therapist in your area. Cranio-sacral links The upledger institute Cranio-sacral therapists Neat page on AMC child Download AOL Instant Messenger page created with Easy Designer

47. Arthrogryposis This is the plight of children with arthrogryposis. arthrogryposis, fromthe Greek terminology meaning hooked or curved joints, describes http://www.msnyuhealth.org/hospitals/hjd/html/body_arthrogryposis.html

Pediatric Rehabilitation Medicine Elly Hammerman Center for the Treatment of Neuromuscular Disorders ... Spasticity Center - Arthrogryposis First Chance/Pre-School Program Wallace B. Lehman, M.D. Center for Pediatric Orthopaedic Surgery Club Feet ... Osteoporosis in Children The Center for Athrogryposis Treatment Imagine children unable to groom or dress themselves because their elbows are completely straight and cannot bend. Or children unable to walk with any efficiency because their hips and knees are not only deformed, but also are incapable of motion. This is the plight of children with arthrogryposis. Arthrogryposis, from the Greek terminology meaning hooked or curved joints, describes not a single diagnosis but a spectrum of congenital deformities. What each condition shares are the multiple joint contractures , poorly developed and contracted muscles, and limb deformities. There is a wide spectrum of involvement and severity, from children having only a deformed hand or foot, to those with both arms and legs completely affected. At the Center for Arthrogryposis Treatment, director Harold J.P. van Bosse, M.D. coordinates a team approach to these complex children. The children are carefully evaluated and followed by both the orthopaedic and pediatric staff. At their first visit, they are also referred to a geneticist and a neurologist to help establish which underlying condition, if any, may be present. Other specialists' opinions are sought as needed, depending on the diagnosis. These include cardiologists

48. Andrea's World My life story with arthrogryposis. http://www.geocities.com/sweet_stuff172002/Andrea_s_world.html

Andrea's World Hi! My name is Andrea Dawn Gerloff. I was born on November 19, 1983. I am a seventeen year old female and I am going to tell you my life story with Arthogryposis. When I was born I stay in the hospital for one week. First time I went to the hospital I was 13 days old, the first time I got a cast was when I was 5 months old. I had my first surgery when I was 13 months old and I came home on Christmas Eve. My first broken arm was when I was 5 years old. I have had at least 12 surgery. The hardest thing of me having AMC has been the way people treat me. They treat me like I am going to give them a disease (Artho-Annie or something). Throughout my high school years, it has gottin easier for me to except the way they treat me because they are the one who has the problem, not me. This is my last year of High school, and my class is treating me diffrent. I think they are seeing i'm not as bad as they thought. Well that's my story.. Prom of '01 My Favorite Links: Yahoo! Yahoo! Games Humor.com Sony My Info: Name: Andrea Gerloff Email: Sweet_stuff172002@yahoo.com

49. Links To Other Arthrogryposis Resources Lists of Doctors interested in arthrogryposis, Hospitals, and Therapists.Directory of Therapists. arthrogryposis Medical/Reference Sources. http://www.amc-info.org/links.htm

50. Personal Page Of Lise' My name is Lise' (pronounced Lisa) have had arthrogryposis since birth. http://www.geocities.com/jmr4ku2/GIMPETTE.html

51. Tucker's Home On The Web All about a child who was born with arthrogryposis. http://members.aol.com/_ht_a/momlov4u/

Welcome to Tuckers home on the web. This is me at one hour old! This is me now! This is me eating for the first time by myself. I hate having my mom feed me now I really do like "doing it all by myself! This is my way cool Nascar room. My mom just got done doing for me! FACTS ABOUT ME! When I was born it was noted that I had a condition called Arthrogryposis (AMC.). It is said to be rare only happending 1 in 3000 births. Even so my mom and I have met alot of people with AMC. As many of you may know from my other pages I have come a long way since the day I was born. I am now five years old and walk by myself with very little help, sometimes I do get a little off balance but my mom is always there to catch me. I attend a regular preschool and can keep up with the other kids just fine. When I was just 3 months old my mom started taking me to an early intervention program where I stayed until I was 2 1/2 years old. At that time my mom enrolled me in a private monsori preschool that attended for two years there I learned alot. The first year went really well due to the funding I had in place for a one on one aide. As for the second year it wasn't as well as the first.

52. Arthrogryposis By centralizing stateof-the-art techniques, the arthrogryposis Center at the Centerfor Children provides an alternative for patients who travel to different http://www.nyuhjdcenterforchildren.org/hospitals/hjd/html/ped_ellyhamm_arthro.ht

The Center for Pediatric Rehabilitation and Pediatric Medicine Genetics Center for Growth Center for Pediatric Bone Health Center for Childhood Arthritis and Autoimmunity Growth Limb Lengthening Reconstruction Elly Hammerman Center for the Treatment of Neuromuscular Disorders Spasticity Center Arthrogryposis ... Pediatric Orthopaedic Surgeons Athrogryposis Center Very few centers are devoted to treating arthogryposis. By centralizing state-of-the-art techniques, the Arthrogryposis Center at the Center for Children provides an alternative for patients who travel to different locations for treatment. This multi-disciplinary clinic integrates a variety of services from the Hospital for Joint Diseases and the Rusk Institute of Rehabilitation Medicine. Through this clinic, each child is evaluated by a team consisting of a pediatrician, neurologist, orthopedic surgeon, geneticist, and physical and occupational therapist. Conditions We Treat Arthrogryposis does not describe a single diagnosis, but a spectrum of congenital

53. Stacie K. G.'s Web Profile Page I happen to be confined to an electric wheelchair, due to a disability called arthrogryposis Multiplex Congenita (AMC). http://members.aol.com/_ht_a/stacie1972/myhomepage/profile.html

The Basics My Online Life Basically my online life consists of keeping up with my e-mail, surfing the net, searching for people that I either have not seen or talked to in a while, or people that have similar interests and would like to get to know each other better (hopefully end result being making new friends or more), playing games, keeping up on news and current events and doing research for whatever it is I may be interested in at that time or need to find out information about. My Favorite Places MSN/Instant Messaging Adults With Disabilities MANY OTHERS Download AOL Instant Messenger page created with 1-2-3 Publish

54. Arthrogryposis - DrGreene.com - Caring For The Next Generation Although arthrogryposis is not a familiar term to most people, arthrogryposis multiplexcongenita (AMC) affects about 3 out of 1000 people, or about 750000 http://www.drgreene.com/21_107.html

QUICK SEARCH A - Z Guide Allergies Allergy Care Guide Asthma Care Guide Bedwetting Breastfeeding Childhood Obesity Diabetes Care Guide Ear Infections Genetics Immunizations Infectious Diseases Parenting Potty Training Rashes Safety Sleep DrGreene.com Topic Centers Mission Reviews Awards Readers Comments Press Room Partners and Supporters Contact Us Pediatric Information A-Z Guide Allergy Care Guide Asthma Care Guide Diabetes Care Guide DrGreene´s Chats FAQ Fast Facts Feature Articles Guidelines Pediatric Updates Special Feature Top Tips Community Activty Guide Advanced Search Community Central Chat Chat Schedule Cute Faces Family Friendly Recipes Parent-to-Parent Resources The DrGreene Team Newsletter Prenatal Newborn Infants Toddlers Pre-Schoolers School Age Teens / Adolescents Multimedia Library Children's Health Fertility Arthrogryposis My daughter has been diagnosed as having "Arthrogryposis". None of her doctors have told me anything about this muscular/joint disease. I would like to know if you have ever heard of it, and if you can give me any info on it. She was supposed to have ear tubes put in, because of chronic

55. Hannasstory2 The story of Hanna, a young girl with arthrogryposis. http://www.HannasStory.homestead.com

Hanna's Web Address has been changed to deny access to unwanted visitors. If you would like the new site address please click below to email me. At that time I expect the site name to remain the same for years to come. I apologize for the inconvience. I have worked for years on this site and it upsets me to have to change things, but certain family members were using this site other than intended.

56. Personal Page Of Bryce My parents say that having arthrogryposis will limit the things I will be able to do, but at this point I am a very active and determined little boy. http://www.geocities.com/all_4_baby_bryce/mypage.html

Baby Bryce Hello, my name is Bryce. I am 5 months old and I have a condition called Distal Arthrogryposis. My parents say that having this will limit the things I will be able to do. But at this point I am a very active and determined little boy. I love playing in my swing and my excersaucer. I also love playing on the floor with toys. But what makes me laugh the most is playing with my mom,dad and my brothers. I have two wonderful parents. They are making sure i have everything to be able to function like a normal little boy. I have two brothers who make me laugh, I can't wait until I can play with them You can see them below. I think we look good together. Avenues-Arthrogryposis Please make sure you e-mail me my mom and dad will make sure they get back to you as soon as possible. Thanks for visiting my page. Bryce Today is Nov.6,2002 and we just want to let everyone know we are heading to the Dupont Hospital in Delaware tomorrow for Bryce to be fitted for hand splints, we will update everyone once we return. Thanks for your support. Today is Nov.7,2002, we went to the Dupont Hospital today and they made hand splints for Bryce. I think these splints will give him more range of motion and allow us to work with his hands more. He tolerates them very well, he didn't seem to mind them at all.

57. Arthrogryposis Multiplex Congenita (AMC) - Homepages Of People Who Have A Disabi arthrogryposis Multiplex Congenita (AMC) This website links together the homepagesof disabled individuals. arthrogryposis Multiplex Congenita (AMC). http://www.manasota.com/disabled-homepages/arthrogryposi.html

Please click on the above banner/s to visit our Sponsor/s) Personal Pages of People who have Arthrogryposis Multiplex Congenita (AMC) Arthrogryposis: A Text Atlas Amazon.com has Books about Arthrogryposis Amazon.com has books about Arthrogryposis Home What's New Guestbook Read Sign Sponsors/ Donations ... Alicia Hoppus - Girl from Nebraska with arthrogryposis. Alina Echemendia - My world. Andrea Rust Andrea's World - My life story with arthrogryposis. AMC Roy - Roy Silvernail"s Page - my name is peter van hemert,i live in the hague,holland and i was born with arthrogryposis. Art By Lori - I am a disabled artist who paints by holding a brush in my mouth. Art Carlson - I'm a handicapped comedian based out of Denver, Colorado. Casey Linn - Provides photographs, family and personal information and favorite links. Casey's Corner - Pictures of me and the love of my life. Cici's Arthrogryposis Page - I was born with arthrogryposis so I'm creating this site for arthrogryposis patients. Clay's arthrogryposis homepage Colby's Arthrogryposis Multiplex Congenita Information Page - Personal site with information on AMC. confoozled.com

58. Emily, Born 8/30/2002 Emily was born with arthrogryposis, affecting her arms, hands and legs. http://www.babiesonline.com/babies/h/hunnybunches/

MY NEW PRECIOUS BABY GIRL!!! Emily Marie Mommy and Emily (1 day old) Emily was born Friday, August 30, 2002 at 1:57pm. She weighed in at 6 pounds, 2 ounces and was 17 and 3/4 in. long. She had dark brown hair(very little) and big beautiful blue eyes. Emily Marie 2 1/2 mo. old Emily 4 mo. March 28 2003 Hi! Emily is doing well, and progressing a lot! She is now 7 mo. old. Ever since Superbowl Sunday, she has been drinking her whole bottle without choking! Hopefully she will get that G-tube out soon! She has grown so much and is now 15lbs! Right now she is in no casts or harness, but they are in the process of making splints for her to wear that will keep her knees bent. She'll wear them for about an hour a day or maybe at night! She is cooing a lot now too - we we're worried about that because she wasn't making any baby noises, but she showed us, she won't be quite now! Hope everyone is doing well! Keep Praying! Holly ... I will be posting new pix soon! Want to see more pictures of me? Check out my Photo Gallery Sign My Guestbook View My Guestbook Click here to see "This Day in History" for Emily's birthday

59. Www.nlm.nih.gov/cgi/mesh/2K/MB_cgi?term=Arthrogryposis Similar pages arthrogryposis multiplex congenita (AMC)Multiple Congenital Anomaly/Mental Retardation (MCA/MR) Syndromes. Viewthe Full Record Syndrome, arthrogryposis multiplex congenita (AMC). http://www.nlm.nih.gov/cgi/mesh/2K/MB_cgi?term=Arthrogryposis

60. UNSW Embryology-OMIM Arthrogryposis Syndrome List links below. Back to UNSW EmbryologyMusculoskeletal Notes. 51 entriesfound, searching for arthrogryposis syndrome . 212540 CATARACT http://anatomy.med.unsw.edu.au/cbl/embryo/OMIMfind/skmus/OMIM-arthrogryposis_lis

UNSW Embryology MUSCULOSKELETAL DEVELOPMENT Embryology Home Page Select Entries from OMIM Online Mendelian Inheritance in Man (Internet Link) This page is for computers without external internet access. Internet access computers can see the full description of the abnormality from the links below. Back to UNSW Embryology-Musculoskeletal Notes 51 entries found, searching for " arthrogryposis syndrome CATARACT, MICROCEPHALY, FAILURE TO THRIVE, KYPHOSCOLIOSIS SYNDROME ARTHROGRYPOSIS AND ECTODERMAL DYSPLASIA ARTHROGRYPOSIS MULTIPLEX CONGENITA, DISTAL, TYPE 2B; AMCD2B PENA-SHOKEIR SYNDROME, TYPE I ARTHROGRYPOSIS, RENAL DYSFUNCTION, AND CHOLESTASIS CAMPTODACTYLY, CLEFT PALATE, AND CLUBFOOT ARTHROGRYPOSIS MULTIPLEX CONGENITA WITH WHISTLING FACE MOEBIUS SYNDROME WITH CLUBFOOT, ARTHROGRYPOSIS, AND DIGITAL ANOMALIES PTERYGIUM SYNDROME WHISTLING FACE-WINDMILL VANE HAND SYNDROME ARTHROGRYPOSIS MULTIPLEX CONGENITA, NEUROGENIC TYPE; AMCN

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