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         Barth Syndrome:     more detail
  1. Endoskopie postoperativer Syndrome (German Edition)
  2. Quelques considérations générales à propos du syndrôme du corps strié. by Cécile (Mugnier) (1875-1962). VOGT, 1911

61. CHIN: Defects And Syndromes
Treatment Heart Center Encyclopedia. barth syndrome. Information andSupport. barth syndrome Foundation. Cardiomyopathy. Information.
Inclusion on the following lists does not necessarily imply endorsement, nor do we guarantee the accuracy of the information contained on these sites. Always consult your physician(s) with your questions and concerns.
Adults with CHD
Informational Resources Defect/syndrome Specific sites Organizations ... Humanitarian Organizations Return to the Internet links Home Page
Defect/Syndrome Specific Sites
The following is a collection of carefully selected links for many specific congenital heart defects and conditions. Before you begin your search for information, please understand that the resources you find may not accurately reflect your child's specific situation, especially when you or your child have more than one defect or condition. Many people find it helpful to have their physician give them a diagram of their (child's) heart. A detailed diagram, along with a good explanation by a member of your medical team, may be the best way for you to understand how your (child's) heart works, and what may need to be done to help the heart work better. Arrhythmias Information Indications for Anticoagulation in Atrial Fibrillation Atrial Fibrillation Diagnosing Arrhythmia Explaining Arrhythmia ... Patient Education - NASPE (Information about specific types of arrhythmia) Directory of Pediatric Electrophysiologists Organizations

62. K-State Research - Funding Bulletins 2002
1914 barth syndrome Research (BSF). The barth syndrome Foundation is seekingproposals for research that may shed light on any aspect of the syndrome.
Funding Bulletin
May 24, 2002 (Vol. 11, No. 19)
19-1 Tibet Development, Professional and Cultural Exchange (State)
The State Department's Bureau of Educational and Cultural Affairs is inviting applications for professional development, education and cultural exchange projects that promote understanding between the people of the U.S. and the Tibetan ethnic group living in China. Project areas include: public health management; sustainable development and eco-tourism, vocational education; developing entrepreneurship/ and cultural preservation. ECA/PE/C/WHAEAP-02-66 (FR 05/07/02) Deadline: 6/14/2002
19-2 Advanced Technology Program (ATP) (NIST)
The Commerce Department's National Institute of Standards and Technology is inviting proposals under the Advanced Technology Program, which provides cost-shared awards to industry to accelerate the development and dissemination of challenging, high-risk technologies that promise significant commercial payoffs. Awards are made to small, medium or large for-profit companies and for joint ventures. Universities may participate as subcontractors for companies or as partners in a joint venture. Technology areas include biotechnology, including animal and plant biotechnology; electronics, computer hardware and communications; information technology; manufacturing and advanced materials.

63. Listings Of The World Health Conditions And Diseases Rare
barth syndrome is a rare but serious genetic disorder that affects males.Search, Complete Directory. Alstrom Syndrome

64. Pfam 8.0 : Acyltransferase
involved in phospholipid biosynthesis and other proteins of unknown function 1.This family also includes tafazzin Q16635, the barth syndrome gene 2.

65. RSSP: News
Awards will be announced in April 2003. barth syndrome Foundation RFP.barth syndrome is an Xlinked recessive, cardioskeletal myopathy
Site Map: Home News Navigation General News Funding Opportunities Proposal Preparation Post Award ... Reporter Articles Online Tips June 10, 2002
New Program Announcements For more information about any of these programs, call Phillip Stafford at 575-8411 or e-mail
National Science Foundation, E-Bulletin
The E-Bulletin announces key dates on which grant proposals are due at NSF for the current 4 months. These dates are subject to change; dates changed since original announcement appear in red. In most cases, the time between announcement and deadline is at least three months. Key dates for other periods of time (for example, for an entire calendar or fiscal year) can be viewed from the NSF Online Documents - Deadlines page.
Department of Education
The Education Department has issued its annual forecast of grant activity for the coming year. ED has decided not to publish the forecast of direct grant competitions in the

66. Medicalseek - Search Engine For The Healthcare Industry
Conditions and DiseasesRare Disordersbarth syndrome barth syndrome Family NetworkOffers details about the disease, message board, research sites, events and
Conditions and Diseases:Rare Disorders:Barth Syndrome

  • Barth Syndrome Family Network
    Offers details about the disease, message board, research sites, events and private chats. Numerous links to other resources.
    Barth Syndrome Foundation

    Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
    Clinical Mass Spectrometry Laboratory

    An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management.

67. Funding Alert -- May 22, 2002
WEB http// NOT-AI-02-023. NIH Guide, May 17, 2002. barth syndrome.
May 22, 2002
Volume 8, Number 17
Download this week's issue:
MS Word 6 version
Adobe Acrobat version
(get Adobe Acrobat Reader
Funding Alert Archives

(these listings were recently added or updated on the ORS webpages) On the Faculty Support page: On the Junior Faculty Funding page: On the Postdoctoral Funding page: On the

68. Pediatric Cardiology 18:143-145 (1997)
1997. Heart Transplantation for barth syndrome. We report a patient withbarth syndrome who underwent successful heart transplantation.
Pediatr Cardiol 18:143-145 (1997)
Heart Transplantation for Barth Syndrome
S.S. Adwani, B.F. Whitehead, P.G. Rees, A. Morris, D.M. Turnball, M.J. Elliott, M.R. de Leval Subscribers may view full text in PDF HTML (see notes on formats here
Barth syndrome is an X-linked recessive disorder comprising dilated cardiomyopathy, muscular hypotonia, and cyclical neutropenia. Affected children usually die during infancy as a consequence of septicemia, cardiac failure, or both. We report a patient with Barth syndrome who underwent successful heart transplantation.

69. Descriptions Of Mitochondrial Diseases
barth syndrome/ LIC (Lethal Infantile Cardiomyopathy). Symptoms skeletal myopathy,cardiomyopathy, short stature, and neutropenia. Cause Xlinked recessive.
Symptoms listed here are those commonly found in each disease. Sources, where not specified, include publications by Drs. Salvatore DiMauro (Metabolic Myopathies; Handbook of Clinical Neurology ; 1992; 18(62); 479-522) and Richard Haas (Disorders of Oxidative Metabolism and Mitochdondria; Neurology in Clinical Practice , Bradley, et al, Chapt 69; 1996; 1523-32). Suggestions and questions are welcome, contact Alpers Disease Long name: Progressive Infantile Poliodystrophy. Symptoms: seizures, dementia, spasticity, blindness, liver dysfunction, and cerebral degeneration. Links Source: Dr. Rolf Luft; The development of mitochondrial medicine. [Review] ; Proceedings of the National Academy of Sciences of the United States of America Barth syndrome LIC (Lethal Infantile Cardiomyopathy) Symptoms: skeletal myopathy, cardiomyopathy, short stature, and neutropenia.

70. UMDF Resource Map
Europe barth syndrome Group; England Children's Mitochondrial DiseaseNetwork (main page not viewable in older versions of Netscape);
Resources by Area Resources Click below to find resources for a specific area Click below to search all resources On-Line Support
UMDF Chapters

Support Groups

General Medical
... Submit a Resource General Medical Mitochondrial Related Organizations

71. Untitled
Annette Galley 04/06/00 082908 My How did you find usthrough barth syndrome Home Page Childs heart defect barth syndrome Did you
Welcome to Heart to Heart's Guestbook
Thank you for taking the time to view our guest book Karen Carnes
My Email:
How did you find us: booklet
Childs heart defect: transposition of the great arteries
Did you find our website helpful: yes
My Email:
How did you find us: TPCH Childs heart defect: Aortic valve stenosis/regurgitation Did you find our website helpful: yes Comments: Joanne Horne My Email: How did you find us: search Childs heart defect: ASD repaired Did you find our website helpful: yes Comments: My daughter had surgery in May at TPCH and is doing GREAT. It's good to have an aussie site on the net. Keep up the good work. Bev My URL: My Email: Did you find our website helpful: yes Comments: Great page! Stephen Kent My URL: My Email: How did you find us: HeartKids ACT Inc Childs heart defect: Ebstein's Anomoly (severe) Did you find our website helpful: Yes - It's great!

72. Josiah's BabyBook Volume 5
224846 My, Comments i am sorry but i have lost youremail address.I have received your letter back to me regarding barth syndrome.
Josiah's BabyBook Volume 5
6-15-98 through 7-4-98
Deidre Cannon
My Email:
Your sweet little Josiah reminds me so much of my baby boy Caden who died when he was six and a half months old on January 2, 1997. My Caden was misdiagnosed and could have been saved with the proper treatment. That has been really hard to live with. Being a Christian is the only thing that has helped me deal with it. Your Josiah looks as though he had chubby little cheeks like my Caden. I sure do miss those chubby cheeks and that beautiful smile. I know that I'll see them again when I also get to see my Lord and Savior. Thank you for your web site and God bless you!!
Kim Neblett
My Email:
What a special page you have set up for your son. I have also lost a son he was still born. What a bunch of little angels we have running around in heaven.God bless.
Josiah Royse My URL: Comments: we need more josiah's! Lissette My URL: My Email:

73. Funding Highlights Vol
HEALTH and LIFE SCIENCES barth syndrome Research Grants. In 2002,the barth syndrome Foundation, Inc. (BSF) will award its first
Funding Highlights
Vol. 8, No. 20
June 7, 2002
Contact: Jennifer Vertetis, Telephone: (212) 655-3063; E-mail:
Deadline: None RGK Foundation The RGK Foundation awards program support grants in three areas: education, community and medicine/health. In the area of education, grants support programs that focus on formal K-12 education, integrating technology into curriculum; teacher development; and higher education. Community grants support human services programs, community improvement projects that enhance nonprofit management and promote philanthropy and voluntarism; and cultural arts programs, including educational and outreach activities. Grants in the area of medicine/health focus on efforts to promote the health and well being of children and families. Limited support is available for medical research programs. Internet:

74. UD Biological Sciences/Nemours Program - V. Funanage Profile
Iris Gonzalez, Ph.D. Senior Research Scientist (Ph.D., University of Delaware)Studying the genetics of barth syndrome and spinal muscular atrophy.
Vicky L. Funanage, Ph.D.
Director, Biomedical Research of the Nemours Foundation
Head, Muskuloskeletal Inherited Diseases Laboratory
Shortcut To: Contact

Research Interests

Current Projects
Selected Publications
Contact Top A.I. duPont Hospital for Children
Nemours Biomedical Research
1600 Rockland Road Wilmington, DE 19803 Phone: (302) 651-6819 Fax: (302) 651-6876 E-mail address: Education Top B.S., Pennsylvania State University M.S., Pennsylvania State University Ph.D., University of Delaware Postdoctoral, Alfred I. duPont Hospital Research Interests Top One area of interest concerns children afflicted with neuromuscular disease. Ongoing research conducted in Dr. Funanage's laboratory (Musculoskeletal Inherited Disease Laboratory [MID]) involves several projects designed to provide benefit to these children. The first involves the use of the compound hemin as a possible treatment for muscular dystrophy. Past research has shown that hemin increases the expression of muscle-specific genes and decreases the fibrosis associated with muscular dystrophy. In work conducted in the dystrophic dog model, intravenous administration of hemin showed positive trends in improving muscle strength; however, further work showed that very little of the administered hemin was reaching skeletal muscle. Together with Dr. Tatiana Samoylova of Auburn University, the MID laboratory is working on a novel method that is expected to increase the delivery of hemin to muscle tissue.

75. BLESSAHEART Product 2
Works Down Syndrome Down Syndrome Health Issues Down Syndrome WWW Page Health CareGuidelines For Individuals With Down Syndrome barth syndrome barth syndrome
View International Organisations, Societies and Foundations Page Congenital Heart Surgery
Atrial Septal Defect
Atrial Septal Defect: Surgical and Trans-catheter Management
Cachnet Consensus Conference
Diagram: Atrial Septal Defect (Secundum
Atrio-ventricular Canal Defect
Atrio-ventricular Septal Defect
Royal Children's Hospital
Coarctation of the Aorta
Cachnet Consensus Conference
Heart Surgery Online
Vanderbilt Pediatric Interactive Digital Library

Congenitally Corrected Transposition of the Great Arteries
Mayo Clinic
D0uble Outlet Right Ventricle (DORV)
Heart Surgery Online
Hypoplastic Left Heart Syndrome
Children's Health Care System
Literature Search: Heart Surgery Forum
Online Support Group
Double Aortic Arch
Vanderbilt Pediatric Interactive Digital Library
Ebstein's Anomaly

Eisenmenger's Syndrome
Cachnet Consensus Conference
Mayo Clinic
Patent Ductus Arteriosus
Patent Ductus Arteriosus: A Parent's Guide
Cachnet Consensus Conference


Patent Ductus Arteriosus: A Parent's Guide
Pulmonary Hypertension PHCentral Primary PAH)
Pulmonary Hypertension

Pulmonary Hypertension Association
Tetralogy of Fallot
Cachnet Consensus Conference
Literature Search: Heart Surgery Forum
Diagram Diagram: TOF Repaired ... Multimedia Module
Total Anomalous Pulmonary Venous Return (TAPVR)
Transposition of the Great Arteries
Complete Transposition of the Great Arteries Heart Surgery Online Tricuspid Atresia

76. Non-Federal Funding: Funding Interest
Autism, National Alliance for Autism Research, RG, PD, D, Jan, Feb, 888 7776227.barth syndrome (Cardioskeletal Myopathy), barth syndrome Fdn, RG, June, 914 834-1771.
Non-Federal Funding (by Funding Interest)
For more information, click on source name to go to their web site. x = current AECOM grant
Note: The funding interest " biomedicine " denotes funding in a variety of disciplines.
RG = research grant JF = junior faculty (requires faculty appointment) PG = program grant (non-research)
PD = post-doctoral award (PhD or MD) D = dissertation grant (pre-PhD) Tv = travel grant Tn = training grant
* = U.S. citizenship/permanent residency required # = AECOM nomination required
If searching for a specific foundation, you may wish to do a page search (find-Ctrl F) Funding Interest Source Award Type Deadline(s) Phone Addiction American Fdn for Addiction Research RG Addiction Peter McManus Charitable Trust RG Aug Aging Amer Fed for Aging Res X RG,JF,PD,D several Aging Ellison Medical Fdn X RG,JF Feb Aging Fox (Fan) and Samuels (Leslie R.) Fdn. RG Aging Reynolds (Donald W.) Fdn Tn Oct AIDS AMFAR (Amer Fdn for AIDS Res) X RG, PD

77. Below Are The Program Materials Received May 20
June 3. barth syndrome Foundation. Funding for research on the natural history,biochemical basis, and treatment of barth syndrome. June 30. Log 149.htm

78. Barth Syndrome Website Results :: Linkspider UK
barth syndrome Websites from the Linkspider UK. barth syndrome Directory.Complete Results for barth syndrome Related Topics. Barth
Barth Syndrome Websites from Linkspider UK Keyword: Barth Syndrome Linkspider UK Directory
Barth Syndrome
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Directory Tree: Top Health Conditions and Diseases Rare Disorders : Barth Syndrome (3) Add URL Advertise Here! Personalize Amazon ... Weather
See Also:

79. EMedicine - Limb-Girdle Muscular Dystrophy : Article By Glenn Lopate, MD
Synonyms and related keywords barth syndrome, Bethlemmyopathy, Mcleod syndrome, sarcoglycanopathies, LGMD.
document.write(''); (advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Neurology Neuromuscular Diseases
Limb-Girdle Muscular Dystrophy
Last Updated: November 9, 2001 Rate this Article Email to a Colleague Synonyms and related keywords: Barth syndrome, Bethlem myopathy, Mcleod syndrome, sarcoglycanopathies, LGMD AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography
Author: Glenn Lopate, MD , Assistant Professor of Neurology, Department of Neurology, Division of Neuromuscular Diseases, Washington University School of Medicine; Chief of Neurology, St Louis ConnectCare Glenn Lopate, MD, is a member of the following medical societies: American Academy of Neurology, American Association of Electrodiagnostic Medicine American Neurological Association Muscular Dystrophy Association , and Phi Beta Kappa Editor(s): Raj D Sheth, MD , Director of Epilepsy Program, Chief, Associate Professor, Departments of Neurology and Pediatrics, Section of Pediatric Neurology, University of Wisconsin at Madison;

80. NFI - Rapport For Prosjekter
Identification of new mutations in the gene responsible for barth syndrome, in Xq28.In American Journal of Human Genetics. Vol. 59, (1996) pp. A1469A1469.

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