1. Congenital Heart Information Network Interactive forums, Internet links, and peerreviewed informational materials for families, adults with CHD, and health professionals. http://www.tchin.org

Welcome to our site! C.H.I.N. is an international organization that provides reliable information, support services and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them. February 14 is Congenital Heart Defect Awareness Day! Families and individuals, non-profit organizations, support groups, and health professionals join forces in an annual public awareness and advocacy campaign. Learn more about CHD Awareness Day , and find out how you can participate! Please join our thriving organization! Become a part of our dynamic international community of health professionals, families, and individuals affected by Congenital Heart Defects and Childhood Onset Heart Disease. Your tax-deductible donation will help support our web site, online support groups and discussion forums, CHD Awareness Day efforts, Newsletter, and services to organizations and support groups throughout the world. read more...

2. Congenital Heart Disease Resource Page Coping. congenital heart disease and Your Baby How to Care For Your Baby (American Academy of Family Physicians) http://www.csun.edu/~hcmth011/heart

The Congenital Heart Disease Resource Page

3. Welcome To Congenital Heart Disease On The Web congenital heart disease on the Web Intro Screen congenital heart disease ON THE WORLD WIDE WEB http://www.med.umn.edu/radiology/cvrad/chd

CONGENITAL HEART DISEASE ON THE WORLD WIDE WEB William J. Weadock, M.D. Haraldur Bjarnason, M.D. Stephen H. Hite, M.D. David W. Hunter, M.D. Kurt Amplatz, M.D. Most radiographic graphics/cases from the collection of Kurt Amplatz, M.D. Adapted for the World Wide Web by CHD WebMaster

4. HeartPoint: Congenital Heart Disease congenital heart disease HeartPoint is primarily designed for people interested in heart disease in adults. that there is also a great deal of interest in congenital heart disease, disorders that generally affect children. http://www.heartpoint.com/congheartdx.html

CONGENITAL HEART DISEASE The causes are difficult to determine and probably different in each case. There is further evidence of a genetic contribution in that parents who have had one child with a congenital heart abnormality have an increased risk of their next children having some sort of congenital heart abnormality as well. The risk is increased from the 1 in a thousand range to 1 in twenty. (Remember, that means a 19 in 20 chance of having a child without the abnormality). The risk may be higher in occasional families with certain forms of congenital disease which are passed down frequently to children. Infections in the mother, particularly early in pregnancy, such as rubella ("German measles") are associated with congenital heart abnormalities in those children. The therapy of these disorders is sometimes quite complex, and should be discussed with your physician. The following is a brief atlas of some of the more common congenital heart conditions. The normal flow in the heart can be reviewed from the HeartPoint Gallery page regarding "The Heart"

5. Children: Heart Disease & Health The normal heart, defects, heart murmurs, kawasaki disease, treatment, school programs and feeding an infant with congenital heart disease. Information provided by the American Heart Association. http://www.americanheart.org/children/

The two types of heart disease in children are "congenital" and "acquired." Congenital heart disease (also known as a congenital heart defect) is present at birth. Some defects in this category are patent ductus arteriosis, atrial septal defects and ventricular septal defects. Acquired heart disease, which develops sometime during childhood, includes diseases such as Kawasaki disease, rheumatic fever and infective endocarditis. Common diagnostic tests for these diseases are explained here. About 40,000 children are born with a heart defect each year. Most of these children can benefit from surgery even if the defect is severe. When surgery is necessary, many medical treatments are available to help the heart work properly. There is nothing that parents could have done to prevent these defects. Learn about conditions that can interfere with the work of the heart and treatment options in this section. Kawasaki disease is an example of acquired heart disease that occurs primarily in children who are 5 years old or younger. Although medical knowledge of the disease is still developing, there are steps you can take to recognize the symptoms and deal with the disease's effects. At least 8 of every 1,000 infants born each year have a heart defect. About 1 million Americans with cardiovascular defects are alive today. Though research is ongoing, at least 35 defects have now been identified.

6. Congenital Heart Disease On The Web congenital heart disease. A multimedia review of the radiologic characteristics for radiology residents. http://www.med.umn.edu/radiology/cvrad/chd/chd.html

Congenital Heart Disease A multimedia review of the radiologic characteristics for radiology residents. Increased Pulmonary Vascularity Without Cyanosis Ventricular Septal Defect Patent Ductus Arteriosus Atrial Septal Defect Partial Anomalous Pulmonary Venous Return ... Left Ventricle to Right Atrium Increased Pulmonary Vascularity With Cyanosis D- T ransposition of the Great Vessels T ... ricuspid Atresia without Pulmonary Stenosis Normal Pulmonary Vascularity Coarctation of Aorta Aortic Stenosis Decreased Pulmonary Vascularity Tetralogy of Fallot Ebstein's Malformation of the Tricuspid Valve Tricuspid Atresia with Pulmonary Stenosis Pulmonary Stenosis or Atresia Increased Pulmonary Venous Vascularity Scimitar and Stenosis of Individual Pulmonary Veins Total Anomalous Pulmonary Venous Return (with Obstruction) Hypoplastic Left Heart Miscellaneous Lesions L-Transposition of the Great Vessels (From Cardiovascular Radiology , 1985, Gedgaudas, Moller, Casteneda-Zuniga, Amplatz)

7. Congenital Heart Disease - Texas Heart Institute Heart Information Center congenital heart disease in the baby's mother or father. congenital heart disease in the baby's brother or sister. http://www.tmc.edu/thi/congenit.html

//var DOCUMENTGROUP=''; //var DOCUMENTNAME=''; //var ACTION=''; Heart Information Center Congenital Heart Disease Congenital heart defects are heart problems present at birth. They happen when the heart does not develop normally before birth. About 8 out of every 1,000 infants are born with one or more heart or circulatory problems. Doctors usually do not know the cause of congenital heart defects, but they do know of some conditions that increase a child's risk of being born with a heart defect. They include Congenital heart disease in the baby's mother or father. Congenital heart disease in the baby's brother or sister. Diabetes in the mother. German measles, toxoplasmosis (an infection that is passed through contact with cat feces), or HIV infection in the mother. The mother's use of alcohol during pregnancy. The mother's use of cocaine or other drugs during pregnancy. The mother's use of certain over-the-counter and prescription medicines during pregnancy. Even if one or more of these conditions is present, it does not mean that the baby will be born with a heart defect. Also, babies can be born with heart defects even when none of these conditions are present. Rarely can families predict or prevent congenital heart defects. Of course, every pregnant woman needs to do all she can to ensure the health of her baby, like avoiding alcohol, drugs, and exposure to the German measles and environmental toxins.

8. Adult Congenital Heart Association Information, resources and support for adults with congenital heart disease. http://www.achaheart.org/

Adult Congenital Heart Association ACHA Home About Us Contact Us Join ACHA! ... Help ACHA! Welcome to the ACHA web site! The Adult Congenital Heart Association (ACHA) is an international organization that provides information and support for adults and adolescents with congenital heart disease (CHD), their families and healthcare professionals. What's New? National Conference in 2004 ACHA's 2004 national conference will be April 23-25, 2004 at the Mayo Clinic in Rochester, MN. More information will be posted here as it becomes available. DC Conference There will be a conference in DC on May 31-June 1, 2003 at the Key Bridge Marriott in Arlington, VA. Cost is $50 for ACHA members and $60 for non-members. Please see our DC conference page for more information. Chicago Symposium There will be a day-long, free ACHA symposium in Chicago on April 12, 2003. It is being co-sponsored by University of Chicago Hospitals and Loyola University Medical Center . The conference will be held in the Billings Auditorium at the University of Chicago Hospitals . Please see our Chicago symposium page for more information.

9. Congenital Heart Disease congenital heart disease. Return to RCHC Home Page Pediatric Cardiology for the Medical Professionals http://www.rchc.rush.edu/rmawebfiles/chdcontent.htm

Congenital Heart Disease Return to: RCHC Home Page Pediatric Cardiology for the Medical Professionals Acyanotic Congenital Heart Disease Cyanotic Congenital Heart Disease Atrial Septal Defect Tetralogy of Fallot Ventricular Septal Defect Pulmonary Atresia with VSD ... Hypoplastic Left Heart

10. Congenital Heart Disease in a rapidly growing population of adults with congenital heart disease. Some of these patients have cardiac problems http://congenitalheart.hs.columbia.edu/

Successful cardiac surgery in infants and children during the 1960s and 1970s has resulted in a rapidly growing population of adults with congenital heart disease. Some of these patients have cardiac problems which are not typically seen by adult cardiologists. The Joan And Michael Schneeweiss Center for Adult Congenital Heart Disease at New York Presbyterian Hospital was developed to serve the unique needs of this population. Highly specialized care is provided by a team of physicians specifically interested in the problems of adults with congenital heart disease. The Adult Congenital Heart Disease Program is directed by Dr. Marlon S. Rosenbaum, a cardiologist trained in both adult and pediatric heart disease. The Program is a vital resource for patients with both newly diagnosed congenital heart disease and those who had cardiac surgery earlier in life. Diagnostic studies such as echocardiography, cardiac MRI, and cardiac catheterization are performed by physicians knowledgeable about adult congenital heart disease. Our cardiac MRI facility has state of the art software which permits rapid acquisition of images and provides highly detailed anatomic information. Cardiopulmonary stress testing is performed by an exercise physiologist with extensive experience in exercise and congenital heart disease. The cardiac surgical program at the Adult Congenital Heart Disease Center is led by Dr. Jan Quaegebeur and Dr. Ralph Mosca. Our surgeons have had extensive experience in the repair of many different forms of congenital heart disease, including D-transposition of the great arteries, single ventricle, Ebstein's anomaly and aortic valve disease using the Ross procedure.

11. Coping With Congenital Heart Disease In Your Baby Article with some useful information, published by The American Academy of Family Physicians. http://www.aafp.org/afp/990401ap/990401d.html

Advanced Search Please note: This information was as current as we could make it on the date given above. But medical information is always changing, and some information given here may be out of date. For regularly updated information on a variety of health topics, please visit familydoctor.org , the AAFP patient education Web site. An article on this topic is available in this issue of AFP Coping with Congenital Heart Disease in Your Baby What is congenital heart disease? A congenital heart disease is one that a baby is born with. Did I do something during pregnancy that made my baby have this problem? Probably not. Some things that happen in pregnancy can lead to a congenital heart problem in a baby, but often the reason for the heart disease is not known. Talk with your family doctor if you're worried that you caused your baby's heart problem, but don't blame yourself. I felt depressed when I found out my baby has a heart problem. Is that normal? Yes. Feeling angry, guilty or depressed is normal. Knowing that your baby has a heart problem is stressful. When you first found out about your baby's problem, you may have been in shock.

12. Feeding Your Infant With Congenital Heart Disease American Heart Association gives details on baby's growth, how to feed your baby, feeding tips, breastfee Category Health Conditions and Diseases Heart Disease Congenital......Feeding Your Infant With congenital heart disease, But if your baby has congenitalheart disease, you may have to use different feeding methods. http://www.americanheart.org/presenter.jhtml?identifier=4885

13. CHIN: Online Support CHDL congenital heart disease Loss Support. PDHeart. A list for families ofchildren with Congenital Heart Defects and Childhood Onset Heart Disease. http://www.tchin.org/support/

Our Special Family Written by: Dolly Lee They call us a support group, but it is so much more, It is a sad thing, the reason we are here, They are kids with heart defects fighting for their lives. We all ask the same question, how would I survive Without this group, my other family, walking by my side? Most of us have never met and probably never will, Yet, we can still carry each other up the steepest hills. We reach out through the Internet, to those who truly know, Our hands are joined together all around the globe. The Congenital Heart Information Network is pleased to offer online discussion groups for both families and Health Professionals. With the exception of PCNurse , our online groups are currently available as a service to members of the Congenital Heart Information Network. For more information about joining our organization, click here To learn more about our list policies, click here C.H.I.N. Lists For Professionals

14. Oliver W. Caminos, M.D. A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999) http://www.redtail.net/owc

Enter The Book CARDIOLOGY CONGENITAL HEART DISEASES THEIR STUDY AND TREATMENT by Oliver W. Caminos, M.D. Graphics and text by Oliver W. Caminos M.D. owcc@aol.com MCI Publications Enter The Book

15. CHASER - Congenital Heart Anomalies, Support, Education, Resources The organization maintains the national 'heart' parent/child databaseof families with congenital heart disease. By using information http://www.csun.edu/~hfmth006/chaser/

CHASER specializes in children born with congenital heart defects (CHD), "in utero to adult", and also acquired heart disease in infants and children. The primary purpose of the organization is to offer parents, professionals and patients, resources that may help these individuals in their dealings with financial, educational, medical, emotional and other issues that may concern them. CHASER is in essence working to fill a void which exists for many. CHASER collects information nationwide from a variety of clearinghouses, organizations, professionals, and the family. CHASER itself can be a clearinghouse of information for all. From heart defects to syndromes accompanied by heart disorders - from feeding to surgery and beyond - CHASER strives toward finding and linking the family to the "help". The organization maintains the national 'heart' parent/child database of families with congenital heart disease. By using information furnished by families and professional in various fields, they in turn are able to provide parents the opportunity to connect with others who truly understand their concerns and fears - CHASER's Parent to Parent Networking. They employ some of the most precise "matching" capabilities for CHD families found anywhere. Close similarities in condition and experience are considered a prerequisite to "understanding". While at the same time, "new" parents can find not only understanding, but resources and coping skills as well. Isolation and loneliness can be lessened or alleviated by CHASER's networking. They primarily work on a "One-to-One" basis when locating helpful information or contacts, with each case looked upon as being unique.

16. MEDLINEplus: Congenital Heart Disease Search MEDLINE for recent research articles on • Congenital HeartDisease. congenital heart disease (American College of Cardiology). http://www.nlm.nih.gov/medlineplus/congenitalheartdisease.html

Skip navigation Other health topics: A B C D ... List of All Topics Congenital Heart Disease Contents of this page: General/Overviews Coping Diagnosis/Symptoms Nutrition ... Women Search MEDLINE for recent research articles on Congenital Heart Disease You may also be interested in these MEDLINEplus related pages: Birth Defects Heart Diseases (General) Genetics/Birth Defects Heart and Circulation General/Overviews Congenital Cardiovascular Disease (American Heart Association) Congenital Heart Defects (March of Dimes Birth Defects Foundation) Also available in: Spanish Congenital Heart Disease (American College of Cardiology) Clinical Trials ClinicalTrials.gov: Heart Defects, Congenital (National Institutes of Health) Coping Congenital Heart Disease and Your Baby: How to Care For Your Baby (American Academy of Family Physicians) Dealing Psychologically with the Disease (Children's Cardiomyopathy Foundation) Dealing with Developmental Delays (Children's Cardiomyopathy Foundation) If Your Child Has a Heart Defect (Nemours Foundation) Physical Activity and Exercise (American Heart Association) Post-Adolescent Issues in the Future (Children's Cardiomyopathy Foundation) Special Travel Precautions (Children's Cardiomyopathy Foundation) Working with the School (Children's Cardiomyopathy Foundation) Diagnosis/Symptoms Cardiac Magnetic Resonance Imaging Examination (American Heart Association) Cardiac Ultrasound and Doppler Echocardiography (American Heart Association) Chest X-Ray (American Heart Association) Echocardiogram (Mayo Foundation for Medical Education and Research) - RealPlayer plug-in is required to view video files

17. Cardiac Surgery For Children Why undergo surgery using methods decades old! View/ read the newest and most innovative techniques including robotics and fetal surgery to deal with complex anatomical heart problems. http://www.cardiacsurgery4kids.com

Introduction and Benefits of Minimally Invasive Techniques upcoming technologies (fetal surgery) Congenital Defects (Adult and Pediatric) Patient referrals/contact numbers ... Why should you be operated upon with techniques of the past! Pediatric cardiac surgeon Michael Black of the Stanford University School of Medicine, appointed chief of Pediatric Heart surgery in 1999, is a pioneer at using small incisions on very small patients. He is one of the principal investigators in North America for the use of ZEUS in pediatric cardiac surgery. Dr. Black believes that one of the most exciting potential uses for robotic surgery is fetal surgery. Operating on the fetus in the womb will benefit from the precision that robots makes possible. There are certain lesions that are now lethal, but I think have a great potential for this type of surgery. It may not be a large population of babies, but for that one baby it will make all the difference. laptop/july 2001 A recent and favorable trend, a significant reduction in morbidity and mortality in the treatment of congenital heart disease, must be in part credited to recent technological advances. The introduction of routine pediatric cardiac surgery began relatively recent (the mid- to late 1970's), therefore most technological innovations are relatively new. A superior cosmetic repair seems highly desirable regardless of age but especially in children where an obvious and unsightly incision(s) may have significant long-term social implications. In addition to the improved self-esteem with a reduction of an external scar, the concomitant reduction in tissue trauma allows the benefits of reduced pain, earlier discharge and decreased length of hospital stay. A true benefit to all!

18. MEDLINEplus Medical Encyclopedia: Congenital Heart Disease congenital heart disease. congenital heart disease (CHD) is a broad term thatcan describe a number of different abnormalities affecting the heart. http://www.nlm.nih.gov/medlineplus/ency/article/001114.htm

Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Congenital heart disease Contents of this page: Illustrations Definition Causes, incidence, and risk factors Symptoms ... Prevention Illustrations Heart, section through the middle Cardiac catheterization Heart, front view Ultrasound, normal fetus - heartbeat ... Patent ductus arteriosis (PDA) - series Definition Return to top Congenital heart diseases are abnormalities of the heart's structure and function caused by abnormal or disordered heart development before birth. Causes, incidence, and risk factors Return to top Congenital heart disease (CHD) is a broad term that can describe a number of different abnormalities affecting the heart. Congenital heart disease is, by definition, present at birth although its effects may not be obvious immediately. In some cases, such as coarctation of the aorta , it may not present itself for many years and a few lesions such as a small ventricular septal defect VSD ) may never cause any problems and are compatible with normal physical activity and a normal life span.

19. Welcome To CACHNET.ORG Provides information for patients and physicians about the care of adults with congenital heart problems.Category Health Conditions and Diseases Organizations......Our aim is to provide comprehensive care and information to adult patientswith congenital heart disease and their care providers. http://www.cachnet.org/

"SUMMER OF THE HEART" CONTEST! CACHNET.ORG is helping to promote the newly released book "Summer of the Heart: Saving Alexandre" by Paul Adams. A book about a boy diagnosed with a congenital heart defect, and a combination of good fortune, superb medical intervention, and inner resilience enabled him to survive. To learn more about "Summer of the Heart" and how you can win a free copy of the book click here MESSAGE CENTRE Share your knowledge, experience and support! The message centre allows you to interact with patients, family members and physicians about the challenges of coping, methods of prevention, and overcoming the limits imposed by congenital heart problems to achieve a better quality of life. Visit the Message Centre now! ABOUT US CACHNET.ORG is home to the Canadian Adult Congenital Heart Network and the Toronto Congenital Cardiac Centre For Adults at the University of Toronto. Our aim is to provide comprehensive care and information to adult patients with congenital heart disease and their care providers. To view the organizations' websites, "click" on the logos below.

20. A Guide For Adults With Congenital Heart Disease Educational Information A Guide for Adults with congenital heart disease (byElizabeth Hurdman) BACK Living with a heart problem can be a challenge. http://www.cachnet.org/eduinfo_guide.html

Educational Information A Guide for Adults with Congenital Heart Disease (by Elizabeth Hurdman) BACK Living with a heart problem can be a challenge. To meet that challenge it is important that you understand your condition and that you feel comfortable with the medical help you receive. This information is especially written for you, as an adult with a congenital heart defect, and for your family and friends. Its goals are to help you understand what congenital heart disease is, and to answer questions you may have about heart tests, treatments, and lifestyle choices. This resource does not replace medical advice. You are encouraged to talk with your doctor about your specific condition. Remember that your cardiologist thinks of you, not as a case, but as an individual with a special and possibly unique problem. We have tried to eliminate as much technical jargon as we can. When a medical term is printed in italics the meaning is either given within the text or is linked to the Glossary. The information presented here has been reviewed by the Canadian Adult Congenital Heart (CACH) Network. The CACH Network is a national multi-disciplinary organization of congenital heart specialists who, coast-to-coast, promote and provide health care to those with congenital heart disease.

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