21. Craniosupport - You Don't Have To Be Alone! Support, information, and research tools to parents of children with craniosynostosis. http://www.craniosupport.com

Craniosupport - You don't have to be alone! A nationwide organization for people who have had craniosynostosis touch their lives. We offer outstanding member benefits. Whether you have concerns about CS, have already had surgery or do not require surgery, please join our family today. You don't have to be alone! PamRanieri,cranio,synostosis,craniosynostosis,abnormal,craniosupport,head,chat,email,message,cranio,lambdoid,saggital,coronal,metopic,sutures Welcome to the "soon to be" Craniosupport Website. Please bookmark this page as it will be up and running soon! For now, go to for information on Craniosynostosis. If you have any questions please email me at . Thank you! Click here to enter http://mywebpages.comcast.net/craniosupport/home.html mydomain.com - Register your domain name

22. Michael's Craniosynostosis Page Michael's craniosynostosis Page, My husband and I was born. Our answerHe had something called Sagittal craniosynostosis. Here is http://members.aol.com/craniosupport/michael.html

htmlAdWH('7005340', '120', '30'); htmlAdWH('7002028', '234', '60'); Main Create Edit Help Michael's Craniosynostosis Page My husband and I had noticed something was not right about our son's skull shape from the day he was born. Our answer: He had something called Sagittal Craniosynostosis. Here is a picture of Michael exactly one week before his surgery. Michael was diagnosed at the age of almost 7 months and had the traditional surgery by the time he was 8.5 months old. Had he not had the surgery, he could possibly have vision and hearing impairments, along with mental disabilities. Here are some pictures right after surgery. Day two Day one Day three Day six (with Daddy) Day five It's been over two years since his surgery. Michael is doing wonderful! You would never know what he has been through by looking at him today. Here is our sweet little boy at almost 3 years old. I have two big sisters too! Aren't they beautiful? Mommy and Mikey page created with Easy Designer

23. A Craniofacial Group - Paris, France Management of anomalies of skull and face including craniosynostosis, facial clefts, hypertelorism, tumors, and trauma. http://www.cranio-facial.org

Management of anomalies of skull and face : craniosynostosis, facial clefts, hypertelorism, tumors and trauma - Daniel Marchac, MD, Plastic Surgeon - Dominique Renier, MD, Pediatric Neurosurgeon - Eric Arnaud, MD, Plastic Surgeon and a pluridisciplinary team French version For 25 years, our group, comprising the specialities of craniofacial and plastic surgery, and paediatric neurosurgery, has been dealing with craniofacial anomalies. Craniofacial surgery is especially involved with treating congenital craniofacial anomalies. The first group is represented by craniosynostosis or craniostenosis, in which the cranial sutures are prematurely fused, distorting the cranial vault (oxycephaly, trigonocephaly, brachycephaly, plagiocephaly) and faciocraniosynostosis, with facial retrusion (Crouzon, Apert, Pfeiffer, and Saethre-Chozten syndromes). Facial and monobloc distraction is often used for these patients. Another group of craniofacial anomalies is represented by facial clefts with hyper-telorism, nasal anomalies, palpebral colobomata, encephaloceles, and Treacher-Collins syndrome. Many of these syndromes require complex orbital surgeries, for orbital dystopia. For example, bringing the orbits together in hypertelorism (widely-spaced orbits) requires complete orbital mobilization, such as in transcranial or subcranial facial bipartition.

24. Page Not Found (404 Error) . 6FEB-2003 55919http//www.csmc.edu/pediatrics/refguide/craniosynostosis/craniosynostosis.html http://www.csmc.edu/pediatrics/refguide/craniosynostosis/craniosynostosis.html

Unable to display the page. (HTTP Error 404) We apologize for any inconvenience. Please try one of the following links: Cedars-Sinai home page Diagnosis and Treatment Programs Contact Us 30-MAR-2003 16:55:26http://www.csmc.edu/pediatrics/refguide/craniosynostosis/craniosynostosis.html

25. Michal Glanz Craniosynostosis English and Hebrew information on craniosynostosis based on the personal case of Michal Glanz from Israel. http://www.geocities.com/michalglanz

This page uses frames, but your browser doesn't support them.

26. Craniosynostosis - DrGreene.com craniosynostosis, an often misdiagnosed condition, is discussed at length includingwhat a parent should do if infant surgery is recommended. craniosynostosis. http://www.drgreene.com/21_767.html

QUICK SEARCH A - Z Guide Allergies Allergy Care Guide Asthma Care Guide Bedwetting Breastfeeding Childhood Obesity Diabetes Care Guide Ear Infections Genetics Immunizations Infectious Diseases Parenting Potty Training Rashes Safety Sleep DrGreene.com Topic Centers Mission Reviews Awards Readers Comments Press Room Partners and Supporters Contact Us Pediatric Information A-Z Guide Allergy Care Guide Asthma Care Guide Diabetes Care Guide DrGreene´s Chats FAQ Fast Facts Feature Articles Guidelines Pediatric Updates Special Feature Top Tips Community Activty Guide Advanced Search Community Central Chat Chat Schedule Cute Faces Family Friendly Recipes Parent-to-Parent Resources The DrGreene Team Newsletter Prenatal Newborn Infants Toddlers Pre-Schoolers School Age Teens / Adolescents Multimedia Library Children's Health Fertility Craniosynostosis Any information concerning craniosynostosis in a newborn . My doctor wants to operate to repair this condition. What can happen if nothing is done? J.T. Hoy El Paso, Texas In the last few years there has been an alarming increase of craniosynostosis, or other conditions that mimic craniosynostosis. This has resulted in an increase in major surgery on infants , some of it unnecessary.

27. EMedicine - Craniosynostosis : Article By Raj D Sheth, MD craniosynostosis craniosynostosis consists of premature fusion of 1or more cranial sutures, often resulting in an abnormal head shape. http://www.emedicine.com/neuro/topic80.htm

document.write(''); (advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Neurology Pediatric Neurology Craniosynostosis Last Updated: February 15, 2001 Rate this Article Email to a Colleague Synonyms and related keywords: anterior plagiocephaly, Apert syndrome, brachycephaly, Carpenter syndrome, Chotzen syndrome, Crouzon syndrome, kleeblattschädel, cloverleaf skull, oxycephaly, Pfeiffer syndrome, plagiocephaly, scaphocephaly, trigonocephaly AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: Raj D Sheth, MD , Director of Epilepsy Program, Chief, Associate Professor, Departments of Neurology and Pediatrics, Section of Pediatric Neurology, University of Wisconsin at Madison Coauthor(s): Bermans J Iskandar, MD , Director, Assistant Professor, Departments of Neurological Surgery, Pediatrics, Children's Hospital, University of Wisconsin Hospital and Clinics Raj D Sheth, MD, is a member of the following medical societies: American Academy of Neurology

28. EMedicine - Craniosynostosis : Article By Majid A Khan, MD craniosynostosis craniosynostosis is the premature fusion of the cranial sutures.craniosynostosis can occur as an isolated defect or as part of a syndrome. http://www.emedicine.com/radio/topic195.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Radiology Pediatrics Craniosynostosis Last Updated: January 17, 2003 Rate this Article Email to a Colleague Synonyms and related keywords: AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Differentials X-ray ... Bibliography Author: Majid A Khan, MD , Staff Physician, Department of Diagnostic Radiology, Nassau University Medical Center Coauthor(s): David I Weltman, MD , Assistant Professor of Radiology, SUNY School of Medicine at Stony Brook; Associate Chair, Program Director, Director of Gastrointestinal Radiology and Body CT, Department of Radiology, Nassau University Medical Center Brian J Webber, DO , Good Samaritan Hospital Medical Center; Dvorah Balsam, MD , Chief, Division of Pediatric Radiology, Professor of Clinical Radiology, State University of New York at Stony B, Department of Radiology, Nassau University Medical Center Majid A Khan, MD, is a member of the following medical societies: American College of Radiology Editor(s): Charles M Glasier, MD

29. Craniosynostosis.Info craniosynostosis.Info. Definition brain. craniosynostosis refers to theearly (premature) fusion of the sutures of the bone of the skull. http://www.craniosynostosis.info/

Related Kelly Webworks BioAnth Web MedAnth Web Torticollis Kids ... HeadShape.info Web Directory About Home Find a Specialist Search by Location Search by Name Recommend a Specialist brachycephaly ... neurogenic cephalic disorders [off site link to the NINDS (USA) Insurance Policy Links News Links Other Online Resources ... Head Shape Info Resources Support the Site Discussion Groups Positional Plagiocephaly Untreated Positional Plagiocephaly Torticollis Kids ... CranioChat Related Links plagiocefalia.com Sponsors Cranial Technologies Kelly Webworks KM Kelly, PhD Craniosynostosis.Info Definition: An infant's skull is made up of several free-floating bones connected by fibrous regions called sutures . These flexible connections allow the infant's head to pass through the birth canal and enable the skull to grow in response to the brain. Craniosynostosis refers to the early (premature) fusion of the sutures of the bone of the skull. Premature fusing of the sutures restricts and distorts the growth of the skull. These cranial growth restrictions often results in increased cranial pressure growth which can cause vision problems and impede intellectual development. In addition, abnormal head shape is associated with low self-esteem and behavioral problems. Correction of these deformities can relieve cranial pressure and in the long-term, improve the child's self-esteem.

30. Asher's CS Home Page An individual's struggle with CS, contains information and links.Category Health Support Groups Facial Differences craniosynostosis......Asher's craniosynostosis home page. Contents. were fused. That was thefirst time I had ever heard the word craniosynostosis . Asher http://www.geocities.com/HotSprings/Villa/3462/

Asher's Craniosynostosis home page Contents Asher's Story Links to information about Craniosynostosis Contact Information Asher's Story Asher Kenan was born in South Korea on April 7, 1995. He arrived in the United States that Labor Day and was placed into the arms of his adoptive family. We had read in his medical reports that his occipital area (the back of his head) was "flattened" and his foster mother had been instructed to position him on his sides when lying down. When he came, his face was absolutely adorable but when he turned sideways it was a startling sight. The back of his head was completely flat and seemed to end evenly with the back of his neck. Later that day we also discovered that he had no soft spot and that his skull seemed to be bulging out over the top of his ears. Still, we believe it was all due to the Korean practice of sleeping babies on their backs and that, in time, his head shape would normalize. Four days after his arrival, we took Asher for a check up with our family doctor. I couldn’t help but notice the doctor’s worried look when he saw us in the hall. The doctor carefully examined Asher and then told me, "I think he is a brachy baby. We’ll need a skull x-ray to be sure". I reluctantly consented but asked few questions believing that the doctor was simply culturally biased and that the condition was purely positional. Late that Friday night, the doctor called us at home. His fears were valid. Both of the lambdoid sutures in Asher’s skull were fused. That was the first time I had ever heard the word "craniosynostosis".

31. Grand Rounds Archives craniosynostosis SYNDROMES J. Cary Moorhead, MD June 24, 1993. SaethreChotzenis possibly the most common of all the craniosynostosis syndromes. http://www.bcm.tmc.edu/oto/grand/62493.html

Grand Rounds Archives The information contained within the Grand Rounds Archive is intended for use by doctors and other health care professionals. These documents were prepared by resident physicians for presentation and discussion at a conference held at The Baylor College of Medicine in Houston, Texas. No guarantees are made with respect to accuracy or timeliness of this material. This material should not be used as a basis for treatment decisions, and is not a substitute for professional consultation and/or peer-reviewed medical literature. CRANIOSYNOSTOSIS SYNDROMES J. Cary Moorhead, MD June 24, 1993 Craniosynostosis arises from the premature closure of cranial suture lines, which leads to maldevelopment of the cranial cavity and other craniofacial features. It is a feature of a multitude of medical conditions. These can be grossly divided into those that are associated with syndromes and those that are not. The syndromes associated with craniosynostosis can be further broken down by etiology into those resulting from a monogenic, or Mendelian, mode of inheritance, from specific chromosomal defects, from environmental teratogens, and from other factors which are as yet unknown. The syndromes covered in this review are inherited in a monogenic fashion, and represent some of the more common syndromes. Apert's syndrome is characterized by irregular craniosynostosis, midfacial hypoplasia, and symmetric syndactyly of the hands and feet. The incidence is quoted at 1 in 115,000 births, although this may be an underestimate. Cases are usually sporadic mutations, although an autosomal dominant mode of transmission from affected parents has been shown.

32. Craniosynostosis craniosynostosis. http://www.bcm.tmc.edu/pednsurg/disorder/craniosyn.htm

Craniosynostosis (See also Craniofacial Malormations Sorry, this page is still Under Construction. To contact us: pednsurg@msmail.his.tch.tmc.edu Author: Dr. John P. Laurent, M.D. Webpage Designer and Editor: Thomas J. Lenert URL: http://www.bcm.tmc.edu/pednsurg/disorder/craniosyn.htm/ (Modified: June 18, 1997)

33. Introduction Chapter 3 craniosynostosis. avoided. Terminology of craniosynostosis.FUSED SUTURE, NAME, DESCRIPTION. Sagittal, Scaphocephaly, Boat Skull. http://www.erlanger.org/craniofacial/book/craniosynostosis/cranio_1.htm

Chapter 3 Craniosynostosis Craniosynostosis Sagittal Synostosis Metopic Synostosis Unilateral Coronal Synostosis Bicoronal Synostosis ... Crouzon Syndrome CHAPTERS Introduction Clefts of the Lip and Palate Ear Reconstruction Craniosynostosis Orbital Reconstruction Treacher Collins Syndrome Nasal Reconstruction Orthognathic Surgery ... Summary Preoperative Postoperative 3-D scan of Sagittal Synostosis. The surgical treatment of craniosynostosis has been transformed by the development and applications of craniofacial techniques to reshape the skull and upper face in the infant. Functionally, the goal in treatment is to release the fused sutures to prevent any problems associated with increased intracranial pressure as well as creating the potential for normal growth. Cosmetically, the goal is to obtain normal shape of the skull and face, thus minimizing psychosocial problems. Etiology: While the pattern of embryonic craniofacial development has been well defined through extensive research, very little is known about the etiology of many craniofacial anomalies. There is strong evidence for a genetic role in the occurrence of some craniosynostosis. An inherited tendency or family history has been reported in many cases in the literature, however, most cases of isolated craniosynostosis are usually sporadic in occurrence with no known etiology.

34. Craniosynostosis (premature Sutural Fusion) craniosynostosis (premature sutural fusion). males (75%). sagittal (56%)scaphocephaly/dolichocephally. bilateral coronal or lambdoidal http://chorus.rad.mcw.edu/doc/00102.html

CHORUS Collaborative Hypertext of Radiology Musculoskeletal system Feedback Search craniosynostosis (premature sutural fusion) males (75%) sagittal (56%) scaphocephaly/dolichocephally bilateral coronal or lambdoidal (11%) brachy-, turri- or acrocephaly associated with: Apert syndrome Crouzon syndrome Pfeiffer syndrome unilateral coronal or lamdoidal (7%) plagiocephaly metopic trigonocephaly closure of all sutures except squamosal oxycephally intrauterine closure of all sutures except squamosal Kleeblatschaedel Charles E. Kahn, Jr., MD - 2 February 1995 Last updated 14 March 2001 Medical College of Wisconsin

35. GeneReviews: Craniosynostosis Syndromes, FGFR-Related Your browser does not support HTML frames so you must view craniosynostosisSyndromes, FGFRRelated in a slightly less readable form. http://www.geneclinics.org/profiles/craniosynostosis/

Your browser does not support HTML frames so you must view Craniosynostosis Syndromes, FGFR-Related in a slightly less readable form. Please follow this link to do so.

36. Craniosynostosis Syndromes (FGFR-Related) GeneReviews Funded by the NIH • Developed at the University of Washington, Seattle.craniosynostosis Syndromes (FGFRRelated). Boston-type craniosynostosis. http://www.geneclinics.org/profiles/craniosynostosis/details.html

Craniosynostosis Syndromes (FGFR-Related) [Acrocephalosyndactyly. Includes: Muenke Syndrome (FGFR3-Associated Craniosynostosis, FGFR3-Associated Coronal Synostosis, Adelaide-Type Craniosynostosis); Crouzon Syndrome; Jackson-Weiss Syndrome; Apert Syndrome; Pfeiffer Syndrome Type 1, 2, and 3; Beare-Stevenson Syndrome] Authors: Nathaniel H Robin, MD Marni J Falk, MD Case Western Reserve University School of Medicine Initial Posting: 20 October 1998 Last Update 13 February 2003 Summary Disease characteristics. The seven FGFR-related craniosynostosis syndromes are characterized by bi-coronal craniosynostosis or cloverleaf skull, distinctive facial features, and variable hand and foot findings. Involvement ranges from severe with neonatal death to mild with no clinical manifestations. Diagnosis/testing. The diagnosis of Muenke syndrome is based on identification of a disease-causing mutation in the gene. The diagnosis of the other six FGFR-related craniosynostosis syndromes is based on clinical findings; however, DNA-based testing of the and genes may be helpful in establishing the diagnosis of these six syndromes in questionable cases. Such testing is available clinically for all six disorders.

37. Craniosynostosis Team At Childrens Hospital Los Angeles craniosynostosis is a condition of the skull at birth and require a dedicatedteam of physicians for the best care of the child. Before after pictures. http://www.hopeforkids.com/body_craniosynostosis.html

A child's brain undergoes rapid growth in the first year of life. To allow for this rapid expansion, the skull is made up of a number of bones rather than a single bone. They are separated by structures called sutures (expansion joints) that allow the brain to grow without being restricted. Craniosynostosis occurs when the sutures either fuse or are unable to expand. Craniosynostosis not only affects the shape of the skull but the appearance of the face. Depending on which sutures fail to expand, the head can be long and narrow or short and wide. In some cases, one eye may appear larger than the other. If the brain cannot expand properly, it can cause increased pressure which can affect mental development. Since the recommendation that infants sleep on their backs to prevent "SIDS" (Sudden Infant Death Syndrome), we have seen an increase in skull deformity related to this positioning. This is not caused by bony fusion and can usually be treated without surgery, often with molding head bands. True craniosynostosis (bony fusion) requires surgical correction by a craniofacial team. If you suspect that your child may have one of these conditions, contact a qualified specialist to correctly diagnose and treat his or her problem.

38. Cleft Lip, Cleft Palate, Craniosynostosis, Pediatric Plastic Surgery - Childrens Plastic and Reconstructive Surgery at the Hospital. (Los Angeles)Category Health Medicine Surgery Pediatric......cleft lip, cleft palate, craniosynostosis, microta, hairy nevus, hemangiomas,children's plastic surgery, cleft lip and cleft palate. http://www.hopeforkids.com/

The Division of Plastic and Reconstructive Surgery at Childrens Hospital Los Angeles would like to welcome you to our web site. This site is a service to help you find out more about the treatment options available to your child. As a parent, it is important to understand your child's condition as completely as possible. In fact, it is reasonable to question what children's plastic surgery is all about. Pediatric plastic surgery is a medical specialty which aims to correct a child's physical deformity and restore a more normal appearance. As a discipline, this field covers a complex range of conditions. We treat children with birth defects (congenital defects) of the head, face, hands, feet, and other areas: traumatic injuries (accidents, burns); skin and superficial tumors (benign and malignant), and other problems. Some of the most common specific conditions that we see and treat are cleft lip and cleft palate craniosynostosis (abnormal head shape), jaw deformities

39. Craniosynostosis PO Box 11082, * Chattanooga, TN 37401. 800, 332-2373. craniosynostosis.What is craniosynostosis? There are four types of craniosynostosis http://www.faces-cranio.org/Disord/Cranio.htm

The National Craniofacial Association P. O. Box 11082 * Chattanooga, TN 37401 Craniosynostosis What is Craniosynostosis? Craniosynostosis is caused by the premature closing of one or more of the sutures of the bones which make up the skull. Usually, CT scans are taken to determine if the abnormal skull shape is craniosynostosis, rather that just a result of fetal head position or birth trauma. There are four types of craniosynostosis: Scaphocephaly is caused by the fusion of the sagittal suture which runs from front to back down the middle of the top of the skull. This is the most common type of craniosynostosis. Characteristics include: a long narrow shaped head from front to back narrow from ear to ear the head appears boat-shaped Trigonocephaly is the fusion of the metopic suture, which runs from the top of the head, down the middle of the forehead, towards the nose. Characteristics include: triangular shaped forehead eyes are closer together than usual Plagiocephaly is the premature fusion of one of the coronal sutures, which extend from ear to ear over the top of the head. Characteristics include: fusion of either the right or left side the forehead and brow look like they are pushed backwards the eye on the affected side has a different shape than the one on the unaffected side Brachycephaly results when both sides of the coronal sutures fuse prematurely. Characteristics include:

40. Isolated Craniosynostosis craniosynostosis is the premature fusion of one or more sutures (the growthcenters) of the skull. This is the most common form of craniosynostosis. http://www.worldcf.org/cran_3a.html

World Craniofacial Foundation 7777 Forest Lane, Ste C-621 P.O. Box 515838 Dallas, TX 75251-5838 fax 972-566-3850 worldcf@worldnet.att.net Scaphocephaly Trigonocephaly Brachycephaly ... Kleeblattschadel Craniosynostosis is the premature fusion of one or more sutures (the growth centers) of the skull. This problem occurs in infants and can lead to an abnormal head shape. The resulting shape of the skull is characteristic of and can be classified by the affected suture. Surgical correction is often necessary depending on the severity of the deformity. Most often this is performed by craniofacial surgeons. Scaphocephaly (from Greek "skaphe"; light boat or skiff) back to top This term describes a boat-shaped head which is associated with the early closure of the fontanelle (soft spot) and sagittal suture. This is the most common form of craniosynostosis. It is usually relatively benign condition in that intracranial pressure is usually in the normal range. Cranial surgery is usually recommended, however, to give a more normal appearance. Trigonocephaly (from Greek "trigonos"; triangular)

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