1. UK Creutzfeldt-Jakob Disease Surveillance Unit Summarizes the research in progress at the CJD unit and also provides background information about Category Health Conditions and Diseases creutzfeldt jakob disease......The UK CreutzfeldtJakob Disease Surveillance Unit. The incidence of Creutzfeldt availableon the Web. Creutzfeldt-Jakob Disease Surveillance. http://www.cjd.ed.ac.uk/

The UK Creutzfeldt-Jakob Disease Surveillance Unit The incidence of Creutzfeldt-Jakob disease (CJD) is monitored in the UK by the CJD surveillance unit based at the Western General Hospital in Edinburgh, Scotland. The unit brings together a team of clinical neurologists, neuropathologists and scientists specialising in the investigation of this disease. This document is intended to summarise the research in progress at the CJD unit and also provide some background information about CJD and other human spongiform encephalopathies. We have also provided some links to other resources and contrary points of view available on the Web. Creutzfeldt-Jakob Disease Surveillance. Figures for the number of confirmed cases of the new variant of CJD and referrals of suspected cases of CJD to the surveillance unit over the last twelve years. NCJDSU protocol for CJD surveillance across the UK. Text and figures of the latest annual report of the CJD unit (published 9th July 2002). Reporting CJD cases to public health departments - guidance document Potential treatments for Creutzfeldt-Jakob disease.

2. Bovine Spongiform Encephalopathy: Main Index, CDC of Health investigate a likely case of variant creutzfeldt jakob disease in a U.K. citizen residing in the U.S. April http://www.cdc.gov/ncidod/diseases/cjd/cjd.htm

Site Contents BSE and CJD CJD: Infection Control Practices vCJD Fact Sheet BSE and CJD Home BSE and CJD Information and Resources New Information: Probable Variant Creutzfeldt-Jakob Disease in a U.S. Resident Florida, 2002 Update 2002: Bovine Spongiform Encephalopathy and Variant Creutzfeldt-Jakob Disease July 2002 Variant CJD: Fact Sheet Since 1996, evidence has been increasing for a causal relationship between ongoing outbreaks in Europe of a disease in cattle, called bovine spongiform encephalopathy (BSE, or "mad cow disease"), and a disease in humans, called variant Creutzfeldt-Jakob disease (vCJD). Both disorders are invariably fatal brain diseases with unusually long incubation periods measured in years, and are caused by an unconventional transmissible agent. BSE has not been detected in the United States, despite active surveillance efforts since May 1990. It is extremely unlikely that BSE would be a foodborne hazard in this country. CDC monitors the trends and current incidence of CJD in the United States, while the U.S. Department of Agriculture has conducted active surveillance efforts for BSE since May 1990.

3. The Many Faces Of CJD Factsheet, latest news and families'/CJD victims' personal stories and tributes. http://www.fortunecity.com/healthclub/cpr/798/cjd.htm

web hosting domain names email addresses related sites The Many Faces of Creutzfeldt-Jakob Disease (CJD) Creutzfeldt-Jakob Disease (CJD) is a horrendous infectious rapidly progressive fatal brain-deteriorating disease for which there is no treatment or cure. One strain, nvCJD, is linked to bovine spongiform encephalopathy (i.e. Mad Cow Disease) in Great Britain. CJD often escapes detection. A common misdiagnosis is Alzheimer's Disease. The personal stories on this website put a face on CJD. The stories are written by teenagers and adults. Most of the stories tell of people who have died of CJD or currently have CJD. These stories describe the symptoms and progression of the disease as well as the problems in getting it correctly diagnosed. Other stories tell what it is like to receive a notice that the blood products your child received as a baby have been recalled from the market due to the theoretical risk of Creutzfeldt-Jakob Disease. While the risk may be theoretical, the anxiety that results from receiving such a notice is very real and changes one's life forever. Another story that deals with the theoretical risk of blood transmission of CJD is by a USAF Retired serviceman and former blood donor.

4. NINDS Creutzfeldt-Jakob Disease Information Page CJD information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/cjd.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Creutzfeldt-Jakob Disease Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Creutzfeldt-Jakob Disease Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Creutzfeldt-Jakob Disease? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Creutzfeldt-Jakob Disease? Creutzfeldt-Jakob disease (CJD) is a rare, degenerative, invariably fatal brain disorder. Typically, onset of symptoms occurs at about age 60.. There are three major categories of CJD: sporadic CJD, hereditary CJD, and acquired CJD. There is currently no single diagnostic test for CJD. The first concern is to rule out treatable forms of dementia such as encephalitis or chronic meningitis. The only way to confirm a diagnosis of CJD is by brain biopsy or autopsy. In a brain biopsy, a neurosurgeon removes a small piece of tissue from the patient's brain so that is can be examined by a neurologist. Because a correct diagnosis of CJD does not help the patient, a brain biopsy is discouraged unless it is need to rule out a treatable disorder. While CJD can be transmitted to other people, the risk of this happening is extremely small.

5. EMERGENCY CONTRACEPTION World Health Organization factsheet on CJD. Includes brief history, different forms of the disease, clinical features, diagnosis, epidemiology, CJD/BSE link and WHO involvement. http://www.who.int/inf-fs/en/fact180.html

Fact Sheet N° 180 VARIANT CREUTZFELDT-JAKOB DISEASE (vCJD) To find the new version of this fact sheet please see http://www.who.int/mediacentre/factsheets/fs180/en/ For further information, journalists can contact the Spokesperson’s Office, WHO, Geneva. Telephone (+41 22) 791 2599. Fax (+41 22) 791 4858. E-mail: inf@who.int All WHO Press Releases, Fact Sheets and Features can be obtained on Internet on the WHO home page: www.who.int Press Releases 2001 Press Releases 2002 Fact sheets ... Contact WHO

6. Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD) Details of the BloodCJD international e-mail support group for blood product withdrawal notification recipients due to the theoretical risk of CJD. http://members.aol.com/debbieoney/blood.htm

Never doubt That a small group Of dedicated people Can change the world. Indeed, It is the only thing That ever has. Margaret Mead Welcome to the Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD) website. This website was created to fill the needs of people who have received notices that the blood products that they, or their children, received, or that were used in the In Vitro Fertilization (IVF) cultures that produced their children, were recalled/withdrawn from the market because a member of the donor pool was diagnosed with Creutzfeldt-Jakob Disease (CJD) or was at risk for the disease. CJD is an infectious rapidly progressive fatal brain-deteriorating disease for which there is no treatment or cure. It is a member of the class of diseases called Transmissible Spongiform Encephalopathies (TSEs). Another TSE is Bovine Spongiform Encephalopathy (i.e. Mad Cow Disease) which is found in England . The jury is still not in on whether CJD is transmitted through blood. The risk is said to be theoretical. There have been no documented cases of such transmission in humans. However, the CJD infectious agent has been found in blood. People who have received blood recall/withdrawal notifications can still donate blood.

7. Please Help Fight Creutzfeldt-Jakob Disease Personal stories of CJD and virtual memorials. Links to information and research related to CJD. http://www.angelfire.com/nc/NATURAL1/PAGE2.html

Sonny's Personal Home Page ~ Page 2 PLEASE HELP FIGHT CREUTZFELDT-JAKOB DISEASE "Links" To Information And Research About CJD ~ What Is It? National Institute of Neurological Disorders and Stroke The Creutzfeldt-Jakob Disease Foundation CJD Is NOT "Mad Cow Disease" Spiroplasma May Cause Creutzfeldt-Jakob Disease ... The "CJD VOICE" Shirley's Memorial and "Reflections" Page at Virtual Memorials This page also has been set up so that the Sponsor's Sites listed below generate income. It is my intention to donate any funds from these to THE CJD FOUNDATION, Inc. and to the "TRIANGLE HOSPICE" in Hillsboro, North Carolina My desire in creating this Web Site is not for "commercial enterprise", but instead it is to raise public awareness, to promote understanding and to raise funds to combat a truly awful human illness, Creutzfeldt-Jakob Disease And I wanted to honor the One Very Special Person in my life, my wife and love Shirley, who was afflicted by CJD. Since it was always Quality and not Quantity that counted to her (and to me, too)

8. Without A Title - F02.1 Dementia In Creutzfeldt Jakob Disease Article on CJD. Clinical description and diagnostic guidelines; diagnostic criteria for research. http://www.informatik.fh-luebeck.de/icd/icdchVF-F02.1.html

Categories Chapter Index A-Z All pages ... Forum F02.1 Dementia in Creutzfeldt Jakob disease Clinical description and diagnostic guidelines Diagnostic criteria for research Clinical description and diagnostic guidelines A progressive dementia with extensive neurological signs, due to specific neuropathological changes (subacute spongiform encephalopathy) that are presumed to be caused by a transmissible agent. Onset is usually in middle or later life, typically in the fifth decade, but may be at any adult age. The course is subacute, leading to death within 1-2 years. Diagnostic guidelines Creutzfeldt-Jakob disease should be suspected in all cases of a dementia that progresses fairly rapidly over months to 1 or 2 years and that is accompanied or followed by multiple neurological symptoms. In some cases, such as the so called amyotrophic form, the neurological signs may precede the onset of the dementia. There is usually a progressive spastic paralysis of the limbs, accompanied by extrapyramidal signs with tremor, rigidity, and choreoathetoid movements. Other variants may include ataxia, visual failure, or muscle fibrillation and atrophy of the upper motor neuron type. The triad consisting of rapidly progressing, devastating dementia

9. CREUTZFELDT JAKOB DISEASE FACT SHEET 1/1998 of CJD, who gets it, symptoms, CJD and the internet, plus a resource list....... http://www.kansas.net/~cbaslock/cjd1.html

Skip Navigation Bar Home Disability Resources Site Map ... Webrings CREUTZFELDT-JAKOB DISEASE FACT SHEET 1/1998 BY DEBORAH ONEY, MASTER OF SOCIAL WORK CO-FOUNDER, BLOOD RECALL/WITHDRAWAL - CJD Creutzfeldt-Jakob Disease (CJD) is an infectious rapidly progressive fatal brain-deteriorating disease for which there is no treatment or cure. Most scientists believe CJD is caused by a prion, which is a protein. People in the United States and throughout the world get CJD. One strain nvCJD is thought to be related to bovine spongiform encephalopathy (i.e. Mad Cow Disease) in the United Kingdom. To date no nvCJD cases have been observed in the United States. Normal sterilization procedures do not inactivate the CJD infectious agent. The incubation period varies greatly with symptoms emerging in known cases in 15 months to 30 years after exposure. There is no preclinical test to determine if infection took place after a possible exposure. WHO GETS CJD AND HOW? CJD most frequently appears in people ages 50-75. However, there are victims in their 40s, 30s and even 20s. The officially stated mortality rate of about one person per million per year appears to be an under statement since CJD often escapes detection. In a Yale University study 13% of clinically-diagnosed Alzheimer patients were found on autopsy to have CJD. There are three forms of CJD: familial (about 5-10% of cases), sporadic (cause unknown, about 90-95%) and iatrogenic (caused by a medical procedure such as contaminated cadaver-derived growth hormones, dura mater implants, and cornea transplants, less than 1%). Athletes who use cadaver-derived growth hormones are at risk for CJD.

10. Creutzfeldt-Jakob Disease Contacts, links and information about CJD from Family Village. http://www.familyvillage.wisc.edu/lib_cjd.htm

Creutzfeldt-Jakob Disease Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search AltaVista for "Creutzfeldt-Jakob Disease" Who to Contact Creutzfeldt-Jakob Disease Foundation, Inc. P.O. Box 611625 North Miami, FL 33261-1625 Email: crjakob@aol.com Website: http://members.aol.com/crjakob/index.html This foundation was created on April 7, 1993, by two families who had each lost a relative to CJD, and the neurologist who treated the CJD patients. It seeks to promote the research, education and awareness of CJD, as well as to reach out to people who have lost loved ones to this illness. Where to Go to Chat with Others Blood Recall/Withdrawl Creutzfeldt-Jakob Disease Web Board CDJ Voice This site offers a mailing list, web board, chat room, and more. Creutzfeldt-Jakob Disease Web Board Learn More About It Creutzfeldt-Jakob Disease: Answers to Common Questions From Bayer Pharmaceutical Division Creutzfeldt-Jakob Disease: Epidemiology, Risk Factors, and Decontamination. From the Hospital Infections Program Creutzfeldt-Jakob Disease: What is it?

11. Tufts Neurology: Creutzfeldt-Jakob Disease And Other Prion Diseases Image of brain biopsy specimen of patient with CJD, and links to relevant articles. http://tuftsneurology.org/webres/prion.htm

Creutzfeldt-Jakob Disease Plastic-embedded section of a brain-biopsy specimen from a patient with sporadic Creutzfeldt-Jakob disease, showing intracytoplasmic vacuoles containing fragments and loops of membranes (arrow). (Cresyl violet, x300) N Engl Med 1998 Dec 31;339(27):1994-2004 MEDLINE Medical Progress: Creutzfeldt-Jakob Disease and Related Transmissible Spongiform Encephalopathies .N Engl J Med 1998 Dec 31;339(27):1994-2004.Johnson RT, Gibbs CJJ Jr. Dr. Johnson at Meyer 6-181, Johns Hopkins Hospital, Baltimore, MD 21287. The 14-3-3 brain protein in cerebrospinal fluid as a marker for transmissible spongiform encephalopathies . N Engl J Med 1996 Sep 26;335(13):924-30 Hsich G, Kenney K, Gibbs CJ, Lee KH, Harrington MG. Laboratory of Central Nervous System Studies, National Institutes of Health, Bethesda, MD 20892-4122, USA. Loss of cerebellar Purkinje cells in aged mice homozygous for a disrupted PrP gene . Nature 1996 Apr 11;380(6574):528-31. Sakaguchi S, Katamine S, Nishida N, Moriuchi R, Shigematsu K, Sugimoto T, Nakatani A, Kataoka Y, Houtani T, Shirabe S, Okada H, Hasegawa S, Miyamoto T, Noda T. Department of Bacteriology, Nagasaki University School of Medicine, Nagasaki, Japan. Altered circadian activity rhythms and sleep in mice devoid of prion protein.

12. Infectious Disease News: Spiroplasma May Cause Creutzfeldt-Jakob Disease Interview with Frank O. Bastian MD. http://www.slackinc.com/general/idn/199606/cjd.htm

a SLACK Incorporated newspaper Infectious Disease News Homepage] [Current Issue] [Back Issues] ... [Search] Ask the Expert Spiroplasma may cause Creutzfeldt-Jakob Disease An interview with a leading expert in infectious diseases Frank O. Bastian, MD, is professor of pathology and director of neuropathology at the University of South Alabama, Mobile. He has published numerous research articles relating to the etiology of Creutzfeldt-Jakob Disease. In 1991, Bastian edited a book entitled Creutzfeldt-Jakob Disease and Other Transmissible Spongiform Encephalopathies (Mosby-Year Book). In 1992, Bastian arranged an international symposium on bovine spongiform encephalopathy (BSE), popularly referred to as mad-cow disease. [What is Creutzfeldt-Jakob Disease (CJD?)] [How do these British cases compare with classic CJD?] [Spiroplasmas] [How did you connect spiroplasmas with CJD?] ... [Your turn] June 1996 What is Creutzfeldt-Jakob Disease (CJD?) Electron microscopic study of brain biopsy from a patient with CJD showed coiled membranous structure in neuronal process. This structure closely resembles spiroplasma morphology. CJD is a transmissible disease characterized by spongy degeneration of the brain. It strikes about one in 1 million people annually. About 5% of CJD cases occur in families or among certain ethnic groups. The disease has been transmitted inadvertently during medical treatment and surgical procedures. CJD has been transmitted by administration of growth hormone derived from the pituitary glands of people who died from CJD. The disease also has been transmitted by transplantation of corneas and dura tissue obtained from people who died from CJD. CJD has been transmitted experimentally to monkeys by oral feeding of contaminated tissue and to lab animals by infusion of white cells.

13. CJDVoice.org    Support  - Education - News Updates - Chat find help, support, understanding and information concerning creutzfeldt jakob disease, CJD. http://members.aol.com/larmstr853/cjdvoice/cjdvoice.htm

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14. CJD Foundation, Inc. On The World Wide Web Information about CJD, interactive pages, profiles, polls and details of conferences.Category Health Conditions and Diseases creutzfeldt jakob disease......CreutzfeldtJakob Disease Foundation, Inc. The Foundation has moved. Our newwebsite address is cjdfoundation.org. Please update your bookmarks! http://members.aol.com/crjakob/

Creutzfeldt-Jakob Disease Foundation, Inc. The Foundation has moved. Our new website address is: cjdfoundation.org Please update your bookmarks!

15. Document Link Article and links about Japanese research findings. http://aepo-xdv-www.epo.cdc.gov/wonder/PrevGuid/m0049829/m0049829.htm

The document you requested, m0049829.htm, is now m0049829.asp.

16. CJD/BSE Guidance Documents May 2001 Guidance on local reporting of creutzfeldt jakob disease (CJD) and localaction by Consultants in Communicable Disease Control (CsCDC) This document http://www.doh.gov.uk/cjd/cjdguidance.htm

A-Z site index Search Links Contact DH ... DH Home You are here: CJD/BSE Guidance CJD Key documents Committees Links ... CJD contacts Guidance documents See also: Publications Professional Letters 21st May 2001 Guidance on local reporting of Creutzfeldt Jakob Disease (CJD) and local action by Consultants in Communicable Disease Control (CsCDC) This document describes a system for reporting cases of CJD to Consultants in Communicable Disease Control and their equivalents in the UK 9th April 2001 Protocol for the investigation of Geographically Associated Cases of variant Creutzfeldt-Jakob Disease This document describes a system for investigating geographically associated cases of vCJD 18th October 2000 HSC 2000/032 Decontamination of medical devices August 2000 Creutzfeldt-Jakob Disease: Guidance for Healthcare Workers Provides guidance for healthcare professionals caring for patients with Creutzfeldt-Jakob Disease and their families April 2000 Variant Creutzfeldt-Jakob Disease (vCJD): Advice to Practitioners of Complementary and Alternative Medicine 13th August 1999 HSC 1999/179 Controls Assurance in Infection Control: Decontamination of medical devices HSC 1999/178 Variant Creutzfeldt Jakob Disease: minimising the risk of infection

17. Australian CJD Support Group Network Inc - CJDSGNI - Creutzfeldt-Jakob Disease S Australian CJD Support Group Network Inc CJDSGNI - Creutzfeldt-Jakobdisease support website. creutzfeldt jakob disease - an Overview. http://www.cjdsupport.org.au/cjdoverv.htm

Creutzfeldt Jakob Disease - an Overview text courtesy of Jennifer Cooke From the jungles of Papua New Guinea in the 1950s, through Australian fertility clinics, to the butcher shops of Britain in the 1990s, a creeping epidemic has claimed the lives of thousands of men, women and children. The Eastern Highlanders of PNG called it kuru - the shivering disease In the West, we know it as Creutzfeldt-Jakob disease (CJD). To the world's media, it is now notorious as mad cow disease. All three are among a group of rare human and animal diseases that induce neurological disaster - microscopic holes in the brain, sticky plaques of protein that prevent vital messages between nerve cells - and a plethora of symptoms including staggering, jerking, memory loss, personality change and dementia. Collectively, they are known as transmissible spongiform encephalopathies, or TSE. Their incidence in humans, sheep farmed mink, deer and elk and, more recently, in cows, cats and zoo animals, has created a global jigsaw for which the pieces are only gradually coming together. Several theories about the elusive cause of TSE remain just that - despite two Nobel prizes among the elite group of scientists and researchers battling to identify the diseases' source. The biggest TSE killer in humans is CJD, first identified in the 1920s by German neuropsychiatrists Hans Creutzfeldt and Alfons Jakob. Since then, painstaking detective work by scientists in the United States, Europe and Japan has followed the zigzag course of the disease.

18. Creutzfeldt-Jakob Disease/Prion Diseases Public Health Links. creutzfeldt jakob disease. General Health Links. MiscellaneousLinks. Articles Written by Donna Alden. CreutzfeldtJakob Disease/Prion Diseases. http://imanurse.tripod.com/bse.html

Welcome To Communicable Diseases Tuberculosis Public Health Links Creutzfeldt Jakob Disease ... Articles Written by Donna Alden Creutzfeldt-Jakob Disease/Prion Diseases CJD Voice Official Mad Cow Disease Home Page The Prion Diseases Creutzfeldt-Jakob Disease Foundation, Inc. ... Outbreak

19. Document Link Article and links about Japanese research findings.Category Health Conditions and Diseases creutzfeldt jakob disease......The document you requested, m0049829.htm, is now m0049829.asp. http://wonder.cdc.gov/wonder/PrevGuid/m0049829/m0049829.htm

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20. ScienceNet - Biology & Medical Science - What Is Creutzfeldt Jakob Disease And W What is creutzfeldt jakob disease and what causes it. What are the symptoms? WhoCan Be Stricken By CreutzfeldtJakob Disease? Creutzfeldt http://www.sciencenet.org.uk/database/Biology/0106/b00972d.html

What is Creutzfeldt Jakob Disease and what causes it. What are the symptoms? Creutzfeldt-Jakob Disease ("CJD") is a rare, fatal brain disorder which causes a rapid, progressive dementia and associated neuromuscular disturbances. The disease is often referred to as a subacute spongiform encephalopathy because it usually produces microscopic vacuoles in neurons that appear "sponge-like". Who Can Be Stricken By Creutzfeldt-Jakob Disease? Creutzfeldt-Jakob Disease can afflict anyone. The disease affects both men and women of diverse ethnic backgrounds usually between the ages of 50 to 75 years. Reports indicate that the disease occurs worldwide, with an incidence of one case per million people each year. What Causes Creutzfeldt-Jakob Disease? Scientists recognise that a transmissible agent is responsible for causing Creutzfeldt-Jakob Disease, as shown by experiments involving the injection of CJD-affected brains into the normal brains of healthy animals. The identification of this transmissible agent has been the subject of much scientific inquiry and debate. Virus Or Prion Other Diseases Caused By Similar Agents How Does One Get Creutzfeldt-Jakob Disease?

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