1. Let's Face It: Facial Differences Information And Support Network A nonprofit network for people with facial difference, their families, friends and professionals .Category Health Support Groups facial differences......Let's Face It USA is a nonprofit network that links people with facial disfigurementand all who care for them to resources that can enrich their lives. http://www.faceit.org/

Let's Face It USA is a nonprofit network that links people with facial disfigurement and all who care for them to resources that can enrich their lives. Click a topic on the navigation bar or one of the links below to find out more about each of our newly reorganized pages: Classic Resources - This page contains organizations and resources that stand out and truly make a difference. General Resources - This page contains organizations and resources that focus on the many aspects of facial disfigurement. In addition, this page contains general information on genetics. Specific Resources - This page contains organizations and resources grouped by specific conditions (i.e., cleft palate, crouzon syndrome, moebius syndrome, cancer, etc.). Parent and Educator Resources - This page contains a wealth of information for parents and educators. There are special sections dedicated to building self-esteem, hospital stays, teaching about difference, etc. Facial Surgery and Recovery Resources - This page contains resources for pain control, eating, prosthetics, and legal resources.

2. The DRM WebWatcher: Facial Differences A Disability Resources monthly guide to online resources about craniofacial differences. http://www.disabilityresources.org/FACE.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Facial Differences Updated 2/10/2001 A B C D ... About/Hint/Link Looking for information about living with facial differences? Here are some good places to start. Craniofacial Anomalies Part of Columbia-Presbyterian Medical Center's Pediatric Neurosurgery Home Page, this page provides an overview of craniofacial differences and pictorial guide to the anatomy and etiology of various types of craniosynostosis. The Craniofacial Surgery Book This online book from the Tennessee Craniofacial Center provides information about surgical techniques used on 32 different craniofacial conditions. Each section is a separate PDF file (you will need the freely available Adobe Reader to view it). Let's Face It The web site of Let's Face It, an informational/support organization, features the complete contents of its excellent resource guide. Included are: organizations, reading and resources for parents and professionals, resources especially for young adults, special resources for cancer survivors, fun and games, speakers and songsters, resources for easing pain, genetic resources, and and resources about vascular birthmarks. Hyperlinks are provided. Other Organizations The following national nonprofit organizations provide information and/or services for people with facial differences. Their web sites provide information about the organization.

3. Facial Differences Support Groups - Charlotte, NC - SupportWorks SupportWorks directory of support groups and other resources in Charlotte, NC addressing facial differences MECK CAT 806. . facial differences. (unusual appearance of a face) http://www.supportworks.org/cat806.htm

S UPPORT W ORKS ONLINE MECK CAT 806 FACIAL DIFFERENCES (unusual appearance of a face) Scroll down to browse, or click your choice below: Support groups in Mecklenburg Nonprofit agencies in Mecklenburg ... to search beyond this page SECTION 1: Support groups in Mecklenburg County About Face (no longer meeting) This group used to meet in Charlotte to provide people with facial differences and their families and friends a chance to find mutual support, hear speakers, and have a good time. If you wish to rekindle the group, call the previous leader at 523-4837 Monday through Thursday evenings from 7 p.m. to 9 p.m. Click for overview of Facial Differences resources SECTION 2: Nonprofit agencies in Mecklenburg County (138, all) Click here Click for overview of Facial Differences resources SECTION 3: Other resources: Internet links National support groups Toll-free numbers Internet links Let's Face It of 4 Want to find more links? Click below to find Medical information on the web Methods to search the entire web Lists of national support groups Click to link to any of these lists of national groups: The Self-Help Sourcebook OnLine Index The Genetic Alliance NORD (National Organization for Rare Diseases) Database Note: If you don't find what you want, or if you have any questions, please feel free to call us at SupportWorks at (704) 331-9500 (Charlotte, NC) for personal assistance.

4. Facial Differences (old Term Disfigurement) Cross References MECK 806 RELATED KEYWORDS Here are key phrases related to facial differences (a term denoting unusual appearance of a person's face) Didn't find what you want? http://www.supportworks.org/ref806.htm

S UPPORT W ORKS ONLINE MECK 806 RELATED KEYWORDS Here are key phrases related to FACIAL DIFFERENCES (a term denoting unusual appearance of a person's face) Alcoholism Drug Abuse Suicide Survivors Didn't find what you want? Try these: Go back to our home page Go back to the alphabet page ... personal assistance

5. Facial Differences facial differences. COMPANY. Additional Resources http://www.eplibrary.com/facialdifferences

Caution! Visit Microsoft's Web site to obtain the newest version of Internet Explorer, or visit Visiting this web site without first upgrading your browser may result in unreliable behavior. COMPANY Additional Resources Additional Resources Frequently Asked Questions Our Product Links Site Overview Sitemap Contact Us Exceptional Parent Library eplibrary@aol.com Near Normal Feeding for Infants Susan R. Hays, M.S., R.N., C.R.R.N. This educational video covers every important issue of feeding an infant born with an oral-facial anomoly. Vision, development, mobilization, baby treatment, speech, home care, positioning and much more are all discussed in this unique video. Children With Facial Differences A Parents’ Guide Hope Charkins, M.S.W. First comprehensive book of its kind. Written by a mother of a child with facial difference in collaboration with a distinguished professional advisory board, covers more commonly occurring conditions plus Apert, Crouzon and Treacher collins syndromes. Monitor this page for changes and updates automatically! it's private by ChangeDetection Information That Matters From People Who Care

6. Let's Face It: Facial Differences Information And Support Network ONLINE RESOURCE LIST. http://www.faceit.org/res_lst.html

ONLINE RESOURCE LIST The Resource List is now available from our web site in Adobe Acrobat format (.PDF). This means you will be able to view the same Resource List that we send through the mail using Acrobat Reader. You can print your own version of the Resource List, which will look exactly as the printed version we send out, right from your browser. If you do not have Acrobat Reader, please click the logo below to download the Reader. Once you have done this, you will be able to view the Resource List. When you click this icon, you will be connected to the Adobe site where you will be led through the downloading process. Once you have downloaded the Reader, return to our site to open the Resource List. If you already have Acrobat Reader, simply click the link below to open the Resource List in Acrobat Reader. You will be able to print out the Resource List right from your browser by simply clicking the print button within the Reader. Download the Resource List Now (210K PDF) © 2002 Let's Face It, Box 29972, Bellingham, WA 98228-1972; (360) 676-7325;

7. AboutFace International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements. http://www.Aboutfaceinternational.org

This site uses Macromedia Flash If you need to download it click the button below http://www.macromedia.com/downloads/ Otherwise click here to continue Intro.html

8. Facial Differences facial differences Study. The Youth Quality of Life Group therefore is conductinga studyto assess the quality of life of adolescents with facial differences. http://depts.washington.edu/yqol/facial differences.htm

Youth Quality of Life Facial Differences Study The second phase of this study is just beginning and the YQOL Group has partnered with researchers at the University of North Carolina at Chapel Hill, the University of Texas at Galveston, the Northwestern University in Chicago and the University of West England at Bristol, to assess the validity and use in clinical settings of these new modules. Adolescents with facial differences and their families will be invited to participate in this study which will use these newly developed instruments to assess preferences for additional surgery from the adolescent’s, parent’s and clinician’s perspective. If you have an acquired or a congenital facial difference (or if you have an adolescent with a facial difference) and are interested in participating in this exciting research project please contact the YQOL Group at yqol@u.washington.edu or at 1-800-291-2193.

9. Welcome To The Childrens' Craniofacial Association Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, dedicated to improving the quality of life for people with facial differences and their families. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's mission is to empower and give hope to facially disfigured children and their families. http://www.ccakids.com

The latest issue of CCA network the CCA's newsletter is now online. Click on the cover to go to the Newsletter page where you can download this issue as well as back issues of our newsletter. Click here to go to the newsletter archive.. It's not to early to plan for the 2003 Retreat. Click here for details. Privacy Statement , Children's Craniofacial Association. Directed Technologies, Inc.

10. Center For Disability Policy And Research - Projects: Patrick held with 6 clinical and academic experts working in the field, in which the newlydeveloped Youth Quality of Life Instrument facial differences module (YQOL http://depts.washington.edu/cdpr/patrick.html

Current Projects Donald Patrick, Ph.D. (principal investigator) Todd Edwards, Ph.D. (project manager) Quality of Life among Adolescents with Craniofacial Conditions: Phase I and II Studies A collaboration of the University of Washington and Children’s Hospital and Regional Medical Center. Funding Agency: the National Institute on Dental and Craniofacial Research Project Participants: Donald L. Patrick, PhD, MSPH, University of Washington - Dept. of Health Services; Principal Investigator Cassandra L. Aspinall, ACSW, Children's Hospital and Regional Medical Center; Michael L. Cunningham, MD, PhD, Children's Hospital and Regional Medical Center, University of Washington - Dept. of Pediatrics; Todd C. Edwards, PhD, University of Washington - Dept. of Health Services; Wendy E. Mouradian, MD, Children's Hospital and Regional Medical Center, University of Washington - Dept. of Pediatrics; Matthew L. Speltz, PhD, Children's Hospital and Regional Medical Center, University of Washington - Dept. of Psychiatry; Tari D. Topolski, PhD, University of Washington - Dept. of Health Services. The analyses of the YQOL data collected from the adolescents with CFCs and their parents are still in progress, but preliminary results show that the total perceptual YQOL score for adolescents with CFCs is significantly lower than that for adolescents without any clinical conditions, and is comparable to adolescents diagnosed with attention-deficit hyperactivity disorder and those with mobility limitations (from data collected in a prior study). Thus, it appears that compared to adolescents without clinical conditions, general quality of life is lower for adolescents with CFCs, and is comparable to adolescents with other clinical conditions and disabilities.

11. Welcome To The Childrens' Craniofacial Association Children's Craniofacial Association is a national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families. http://www.masterlink.com/children

The latest issue of CCA network the CCA's newsletter is now online. Click on the cover to go to the Newsletter page where you can download this issue as well as back issues of our newsletter. Click here to go to the newsletter archive.. It's not to early to plan for the 2003 Retreat. Click here for details. Privacy Statement , Children's Craniofacial Association. Directed Technologies, Inc.

12. Facial Differences : Meddie Health Search International organization providing information and emotional support to individualsand their families affected by facial differences and disfigurements. http://www.meddie.com/search/Health/Consumer_Support_Groups/Facial_Differences/

HOME ADD A LINK MODIFY A LINK NEW LINKS ... TOP RATED Search Meddie: the entire directory only this category More search options Home Health Consumer Support Groups : Facial Differences CATEGORIES: Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... Treacher Collins Syndrome ITEMS: LINKS: AboutFace International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements. (Rating: 0.00 Votes: 0) Rate It Acne Support Group Information and support on acne, including top ten tips, beauty tips and problems. (Rating: 0.00 Votes: 0) Rate It Arhinia and Other Craniofacial Anomalies Dedicated to arhinia (absence of the nose) and other craniofacial anomalies. (Rating: 0.00 Votes: 0) Rate It Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. (Rating: 0.00 Votes: 0) Rate It Cancer Of The Eye Linkline (CELL) UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links. (Rating: 0.00 Votes: 0)

13. Changing Faces - Concerned With Social And Emotional Consequences Of Facial Disf UKbased charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them. http://www.changingfaces.co.uk

Changing Faces - facial disfigurement and its social and emotional consequences FastCounter by bCentral

14. Facial Differences Top Health Consumer Support Groups facial differences (23). Apert Syndrome (1);Cleft Lip and Palate (6); Craniosynostosis (1); LangerGiedion Syndrome (2). http://www.foundhealth.com/Health/Consumer_Support_Groups/Facial_Differences/

Advertisement Foundhealth.com Search All Terms Any Term Tips Browse foundhealth.com Health calculators Fast Food Database Speakers Bureau How to evaluate sites Submit a site Contact us Home - main directory Top Health Consumer Support Groups : Facial Differences Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... AboutFace - An international organization which provides information and emotional support to individuals with facial differences and their families. Children's Craniofacial Association - A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for facially disfigured individuals and their families. How Come You Look Different?: Resources on Craniofacial Anomalies - Many useful links on this page. Let's Face It - A nonprofit network for people with facial difference, their families, friends and professionals. We link professionals, patients, parents and communities to each other and to networks, books and articles. The Personal Side of Craniofacial Differences - Dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find.

15. Support Groups: Conditions And Diseases: Facial Differences | Treasure Coast Hea information and emotional support to individuals and their families affected by facial differences and disfigurements. http://www.tchealth.com/treasurecoasthealth.php/Health/Support_Groups/Conditions

Find Doctors on the Treasure Coast Select Specialty Ambulatory Care Anesthesiology Cardiology Dermatology Emergency Medicine Endocrinology Family Practice Gastroenterology Hematology/Oncology Infectious Diseases Internal Medicine Maxillofacial Surgery Neonatology Nephroology Neurology Neurosurgery Obstetrics/Gynecology Ophthalmology Orthopedic Surgery Otolaryngology Pathology Pediatics Physical Medicine Plastic Surgery Podiatry Psychiatry Psychology Pulmonary Radiation Oncology Radiology Rheumatology Surgery Thoracic Surgery Urology Vascular Surgery Select City Sebastian Palm Bay Vero Beach Fort Pierce Okeechobee Port St. Lucie Jensen Beach Stuart Palm City Hobe Sound Loxahatchee MENU Home Doctor Directory Health Resources Women Only ... About Us Support Groups: Conditions and Diseases: Facial Differences Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... http://www.nutrisystem.com We have helped millions of people lose weight for more than 30 years. Lose up to 10 lbs. in your first month! AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.

16. Facial Differences Support Group facial differences Support Group. Elisabeth Knaack is the facilitator of the FacialDifferences support group and is there to support others like herself. http://healthlink.mcw.edu/article/929025607.html

Search Articles: search tips Please Take the HealthLink Survey Email this article Print this article Find related articles: By topic: By keywords: Receive Health Link via email! Subscribe now >> Facial Differences Support Group "Facial Differences" is a support group for any type of facial injury such as auto accidents, shotgun blasts, birth defects, surgical results, etc. This group deals with the psychological affects of a facial difference. As the group gets going and is stabilized, they also plan to invite guest speakers. Family and friends as well as the facially different persons themselves are invited to attend. Elisabeth Knaack is the facilitator of the "Facial Differences" support group and is there to support others like herself. There also is a psychologist, Calvin Langmade , attending the group each month. Where: The group meets in the medical library in the Plastic and Reconstructive Surgery Department at Froedtert Hospital. When: the second Tuesday of each month from 6:30-8:00 p.m.

17. Healthlink Template Injuries to the Meniscus; Knee Problems; facial differences SupportGroup; Head Injury Support Group; Eye Injury; Carpal Tunnel Syndrome; http://healthlink.mcw.edu/search/search-page.php?injury

18. Dealing With Facial Differences In Children Dealing With facial differences in Children, Child Development Posted by AmyMackin on Monday October 22, @0718AM from the living and-learning- dept. http://www.kinderstart.com:8080/kindertoday/1003760337/index_html

19. Dealing With Facial Differences In Children Dealing With facial differences in Children, Child Development Posted by AmyMackin on Tuesday November 06, @0632PM from the seriousstuff- dept. http://www.kinderstart.com:8080/kindertoday/1005100343/index_html

20. Loving Children With Facial Differences It is an unfortunate fact that many people are born with facial differences .One out of approximately 700 people is born with a cleft lip or palate. http://www.dentalleaders.com/cranio.htm

It is an unfortunate fact that many people are born with "facial differences". One out of approximately 700 people is born with a cleft lip or palate. A myriad of other genetic syndromes and misfortunes leave people with some type of esthetic or functional deficit. Other people have the unfortunate experience of receiving trauma to the face as a result of an accident, injury, or illness. Dr. K. Randall Groh is a founder of the renowned Craniofacial Team at Miami Children's Hospital. This team consists of more than twenty five specialists, including plastic surgeons, orthodontists, otorhinolaryngologists, geneticists, neurosurgeons, anesthesiologists, oral and maxillofacial surgeons, radiologists, pediatricians, speech and language specialists, audiologists, psychologists, and social workers who volunteer their time and many services to help children and adults with facial differences. Dr. Groh contributes to this program by providing dental treatment and implant reconstruction in the office and in the operating room for craniofacial patients. Please contact Dr. Groh if you or a friend or loved one may benefit from this special team approach to facial differences. Also, any charitable donations or financial leads to benefit the team would be most appreciated.

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