1. The Contact A Family Directory - FLOATING-HARBOR SYNDROME printer friendly. floatingharbor syndrome. home. more about us http://www.cafamily.org.uk/Direct/f30.html

printer friendly FLOATING-HARBOR SYNDROME home more about us in your area conditions information ... how you can help search this site The unusual name of this syndrome is derived from the Boston Floating Hospital and the Harbor General Hospital where the first two patients were described. This condition is characterised by an association of three features: short stature with delayed bone age language delay usually in the presence of normal motor development a characteristic triangular face with a prominent nose and deep set eyes. Inheritance patterns None identified at the present time, all cases have been sporadic Pre-natal diagnosis None known Medical text last updated September 2000. Approved by Dr J Clayton-Smith, Consultant Clinical Geneticist, St Mary's Hospital, Manchester, UK. FLOATING-HARBOR SYNDROME CONTACT GROUP Floating-Harbor Syndrome Contact Group 9 Crown Hill Seaford Tel 01323 891676 The current Floating Harbor Syndrome Contact Group was re-established in 2002 having been originally founded in 1991. It offers support to families of affected children. Group details last updated January 2003.

2. Floating-Harbor Syndrome (FHS) floatingharbor syndrome, the synonyms, a summary and a list of major features. http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome300.html

Multiple Congenital Anomaly/Mental Retardation (MCA/MR) Syndromes View the Full Record Syndrome Floating-Harbor syndrome (FHS) Synonym Pelletier-Leisti syndrome Summary A triad of short stature, speech and psychomotor development delay, and facial anomalies. The original cases were reported at the Boston Floating Hospital and Harbor General Hospital, Torrance, California, hence the name Floating-Harbor syndrome. Major Features Head and neck: Triangular face and prominent occiput. Ears: Posteriorly rotated ears. Eyes: Deeply set eyes and long eyelashes. Nose: Bulbous nose with short philtrum. Mouth and oral structures: Thin lips, short upper lip, wide downturned mouth, and malocclusion. Neck: Short neck. Abdomen: Distention may be associated. Hand and foot: Finger abnormalities include brachydactyly, and clinodactyly. Clubbing may be associated. Extremities: Loose joints. Skin: Seborrheic rash. Skin appendages: Hirsutism, low posterior hairline. Cardiovascular system: Cardiac septal defect. Gastrointestinal system: Celiac disease may be associated.

3. Floating Harbor Syndrome Support Group Of North America Provides a description, including a list of symptoms, things to do and links to other resources. Also Category Health Conditions and Diseases floatingharbor syndrome......Floating Harbor Syndrome Support Group of North America. FLOATING HARBORSYNDROME. **None FEATURES OF FLOATING HARBOR SYNDROME. *Short http://hometown.aol.com/jdswanson

htmlAdWH('7005340', '120', '30'); htmlAdWH('7002028', '234', '60'); Main Create Edit Help Floating Harbor Syndrome Support Group of North America FLOATING HARBOR SYNDROME **None of this information is intended to be medical advice. Please see a geneticist for diagnosis and more information. Floating Harbor Syndrome is a rare genetic disorder that was named for the first two identified patients who were seen at Boston Floating Hospital and Harbor General Hospital in California. While a more extensive list can be found below, the main characteristics of this syndrome are: *short stature *delayed bone growth *delay in expressive language *distinct facial features. The exact cause is not known, and only around 20 cases have been indentified in medical journals and literature. More information can be obtained by contacting: Floating Harbor Support Group of North America 160 Guild NE Grand Rapids, Mi 49505 JDSwanson@aol.com The support group was founded when one mom contacted another mom whose child also had Floating Harbor Syndrome. Our desire is to help others find a diagnosis (this can take years!) and to offer solutions that we have found helpful in dealing with our own precious kids who have this syndrome. FEATURES OF FLOATING HARBOR SYNDROME *Short Stature (very low percentiles, off the charts eventually)

4. The Contact A Family Directory - Index F see GuillainBarré Syndrome Fish Odour Syndrome see Metabolic Diseases Fits andFaints see Reflex Anoxic Seizures floating-harbor syndrome Focal Dermal http://www.cafamily.org.uk/Idx/f.html

printer friendly home more about us in your area ... how you can help search this site Please use the Index below to access the condition on which you require information. If you do not find what you want in the Index then try our search facility in the navigator on the left. Contact a Family also has information on many other specific conditions and rare disorders. If you cannot find the information you require in The Contact a Family Directory Online , you may wish to use our Contact a Family Helpline service. FAS see Fetal Alcohol Syndrome FCMD see Lissencephaly FJHN see Fabry-Anderson Disease see Fabry Disease Fabry Disease Facial Disfigurement Facioauriculovertebral Spectrum see Goldenhar Syndrome Facioscapulohumeral Muscular Dystrophy Facioscapuloperoneal Muscular Dystrophy see Facioscapulohumeral Muscular Dystrophy Factor V Leiden see Hereditary Thrombophilia Familial Combined Hyperlipidaemia see Familial Hyperlipidaemias Familial Dysautonomia Familial Haemorrhagic Telangiectasia see Hereditary Haemorrhagic Telangiectasia Familial Hypercholesterolaemia see Familial Hyperlipidaemias Familial Hyperlipidaemias Familial Hypertriglyceridaemia see Familial Hyperlipidaemias Familial juvenile hyperuricaemia nephropathy see Familial Rectal Pain Familial Spastic Paraplegia Familial Splenic Anaemia see Gauchers Disease Fanconi's Anaemia Fatty Acid Oxidation Disorders Feminising Testes Syndrome see Androgen Insensitivity Syndrome Fetal Abnormality Foetal Alcohol Effects see Fetal Alcohol Syndrome Fetal Alcohol Syndrome Fetal Anti-Convulsant Syndrome Fibrosing Alveolitis see

5. Google Directory - Health > Conditions And Diseases > Genetic Disorders > Floati Search only in floatingharbor syndrome Search the Web http://directory.google.ch/Top/Health/Conditions_and_Diseases/Genetic_Disorders/

Directory Help Search only in Floating-Harbor Syndrome Search the Web Floating-Harbor Syndrome Health Conditions and Diseases Genetic Disorders Go to Directory Home Web Pages Viewing in Google PageRank order View in alphabetical order Floating Harbor Syndrome Support Group http://hometown.aol.com/jdswanson Provides a description, including a list of symptoms, things to do and links to other resources. Also contact detail. The CaF Directory http://www.cafamily.org.uk/Direct/f30.html A brief discussion about floating harbor syndrome, with some history and information about a support group located in Essex, United Kingdom. National Library of Medicine: FHS http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome300.html Floating-harbor syndrome, the synonyms, a summary and a list of major features. Readers Digest Health http://www.rd.com/common/nav/index.jhtml?articleId=8612919 A general discussion about floating harbor syndrome and some resources for further information. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Advertise with Us

6. Floating-Harbor Syndrome : Meddie Health Search ITEMS LINKS Floating Harbor Syndrome Support Group Provides a description,including a list of symptoms, things to do and links to other resources. http://www.meddie.com/search/Health/Conditions_and_Diseases/Genetic_Disorders/Fl

HOME ADD A LINK MODIFY A LINK NEW LINKS ... TOP RATED Search Meddie: the entire directory only this category More search options Home Health Conditions and Diseases ... Genetic Disorders : Floating-Harbor Syndrome ITEMS: LINKS: Floating Harbor Syndrome Support Group Provides a description, including a list of symptoms, things to do and links to other resources. Also contact detail. (Rating: 0.00 Votes: 0) Rate It National Library of Medicine: FHS Floating-harbor syndrome, the synonyms, a summary and a list of major features. (Rating: 0.00 Votes: 0) Rate It Readers Digest Health A general discussion about floating harbor syndrome and some resources for further information. (Rating: 0.00 Votes: 0) Rate It The CaF Directory A brief discussion about floating harbor syndrome, with some history and information about a support group located in Essex, United Kingdom. (Rating: 0.00 Votes: 0) Rate It HOME ADD A LINK MODIFY A LINK ... Design © ISC Enterprises Inc.

7. Genetic Disorders : Meddie Health Search Ectodermal Dysplasia (5). Familial Hypercholesterolemia (6). Fatty Oxidation (4).floatingharbor syndrome (4). Fragile X Syndrome (16). Glutaricaciduria (4). http://www.meddie.com/search/Health/Conditions_and_Diseases/Genetic_Disorders/

HOME ADD A LINK MODIFY A LINK NEW LINKS ... TOP RATED Search Meddie: the entire directory only this category More search options Home Health Conditions and Diseases : Genetic Disorders CATEGORIES: Aarskog Syndrome Aase Syndrome Ablepharon-Macrostomia Syndrome Alagille Syndrome ... Zellweger Syndrome ITEMS: LINKS: Acid Maltase Deficiency A brief summary of AMD along with links and news. (Rating: 0.00 Votes: 0) Rate It Chromosome Deletion Outreach. Provides support and information to families. Includes family stories, a library, FAQs and resources. (Rating: 0.00 Votes: 0) Rate It Dr. Greene's HouseCalls A discussion of medical information on trisomy, trisomy 13, genetics, and his own personal family experience with this rare disease. (Rating: 0.00 Votes: 0) Rate It GeneClinics: Medical Genetics Knowledge Base NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients. (Rating: 0.00 Votes: 0) Rate It Genetic and Rare Conditions Site Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z. (Rating: 0.00 Votes: 0)

8. A Further Report On A Case Of Floating-Harbor Syndrome In A Mother And Daughter 483495, 1380-3395/98/2004-483$12.00 © Swets Zeitlinger. A FurtherReport on a Case of floating-harbor syndrome in a Mother and Daughter. http://www.szp.swets.nl/szp/journals/jc204483.htm

Journal of Clinical and Experimental Neuropsychology 1998, Vol.20, No.4, pp. 483-495 A Further Report on a Case of Floating-Harbor Syndrome in a Mother and Daughter Allyson A.C. Rosen , R.F. Newby , C.M. Sauer , T. Lacey , T.A. Hammeke and M.S. Lubinsky Medical College of Wisconsin, Milwaukee, USA Children's Hospitalof Wisconsin, Milwaukee, USA This study examined the effects of weight loss and nutritional status on the cognitive performance of patients with anorexia nervosa. The intellectual, memory, attentional, verbal fluency and visuospatial abilities of 34 females with anorexia were compared to that of 31 normal weight-for-height females. Group differences in anxiety and depression were found but neither variable was related to the cognitive performance of patients with anorexia. Moreover, nutritional status and weight loss bore little relationship to the cognitive scores of the patient group. Overall, patients with anorexia were found to be deficient in their ability to recall meaningful prose and visuospatial information. The failure to find many cognitive deficits in this sample may reflect the fact that few patients with anorexia exhibited frank nutritional deficiencies.

9. Journals Allyson AC Rosen, RF Newby, TA Hammeke, CM Sauer, T. Lacey and MS Lubinsky A FurtherReport on a Case of floatingharbor syndrome in a Mother and Daughter. http://www.szp.swets.nl/szp/journals/jc204.htm

Journal of Clinical and Experimental Neuropsychology Volume 20 Number 4 1998 Robin R.G. Morris, Charles C.E. Polkey and Timothy T. Cox Independent Recovery of Memory and Language Functioning During the Intracarotid Sodium Amytal Test Michael M.E.R. Nicholls and Rochelle R.E. Whelan Hemispheric Asymmetries for the Temporal Resolution of Brief Tactile Stimuli John J.L. Woodard, Ralph R.H.B. Benedict, Timothy T.A. Salthouse, Jeffrey J.P. Toth, Holly H.E. Hancock and Dennis D.J. Zgaljardic Normative Data for Equivalent, Parallel Forms of the Judgment of Line Orientation Test Merrill M. Hiscock, Jerome J.S. Caroselli and Laura L.E. Kimball Paced Serial Addition: Modality-Specific and Arithmetic-Specific Factors Mark M.B. Ferland, Jason J. Ramsay, Christopher C. Engeland and Patricia P. O'Hara Comparison of the Performance of Normal Individuals and Survivors of Traumatic Brain Injury on Repeat Administrations of the Wisconsin Card Sorting Test Allyson A.C. Rosen, R.F. Newby, T.A. Hammeke, C.M. Sauer, T. Lacey and M.S. Lubinsky A Further Report on a Case of Floating-Harbor Syndrome in a Mother and Daughter Miguel M. Pérez and Juan J. Godoy

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Home Contact Us Privacy Caring For Your Well Being Alternative Medicine Clinical Trials Health News Poisons ... Health Topics A-Z Search 1Up Health Health Directory Addictions Alternative Animal ... Weight Loss By Demography Child Health Teen Health Men's Health Women's Health ... Conditions and Diseases : Rare Disorders Description Categories Aarskog Syndrome Aase Syndrome Abetalipoproteinemia Ablepharon-Macrostomia Syndrome ... Zollinger-Ellison Syndrome See Related Categories Health: Conditions and Diseases: Genetic Disorders Sites National Organization for Rare Disorders, Inc. Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching. Cherubs A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. Contact a Family Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. Fibrous Dysplasia Support Online For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.

11. Searchalot Directory For Floating-Harbor Syndrome Sponsored Links. Top Health Conditions and Diseases Genetic Disorders FloatingHarborSyndrome (4). Related Web Sites. http://www.searchalot.com/Top/Health/ConditionsandDiseases/GeneticDisorders/Floa

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13. Floating-Harbor Syndrome Information Sites Floating Harbor Syndrome Support Group Provides a description, including a listof symptoms, things to do and links to other resources. Also contact detail. http://www.medicalorg.com/ConditionsandDiseases/GeneticDisorders/Floating-Harbor

MEDICALorg.com Search SPYorg.com (Not sure of spelling? Use first letters and * such as abc* or abcd* or abcde*) Match:.. All Any Format: Long Short Search Words: Top Health Conditions and Diseases Genetic Disorders : Floating-Harbor Syndrome Floating Harbor Syndrome Support Group - Provides a description, including a list of symptoms, things to do and links to other resources. Also contact detail. National Library of Medicine: FHS - Floating-harbor syndrome, the synonyms, a summary and a list of major features. The CaF Directory - A brief discussion about floating harbor syndrome, with some history and information about a support group located in Essex, United Kingdom. Readers Digest Health - A general discussion about floating harbor syndrome and some resources for further information. Click Here for a fast ON-LINE APPLICATION Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor The content of the SPYorg.com directory is based on the Open Directory and is enhanced using Spyorg.com technology. Privacy Statement Add Your Site to SPYorg.com

14. Floating-Harbor Syndrome CATEGORIES. Home Up Fabry's Disease floatingharbor syndrome. Floating-HarborSyndrome The CaF Directory - http//www.cafamily.org http://www.medlina.com/floating-harbor_syndrome.htm

Academic Medicine Addiction Aging AIDS-HIV ... Women's Health The Web MEDLINA.com (partial) CDC WHO FDA NIH CATEGORIES Search: All Products Books Magazines Popular Music Classical Music Video DVD Baby Electronics Software Outdoor Living Wireless Phones Keywords: Home Up Floating-Harbor Syndrome Floating-Harbor Syndrome The CaF Directory - http://www.cafamily.org.uk A brief discussion about floating harbor syndrome, with some history and information about a support group located in Essex, United Kingdom. Floating Harbor Syndrome Support Group - http://hometown.aol.com Provides a description, including a list of symptoms, things to do and links to other resources. Also contact detail. National Library of Medicine: FHS - http://www.nlm.nih.gov Floating-harbor syndrome, the synonyms, a summary and a list of major features. Readers Digest Health - http://www.rd.com A general discussion about floating harbor syndrome and some resources for further information. SUBCATEGORIES Up powered by A merica M edica

15. Directory :: Look.com floatingharbor syndrome (4) Sites. National Library of Medicine FHS Floating-harborsyndrome, the synonyms, a summary and a list of major features. http://www.look.com/searchroute/directorysearch.asp?p=521611

16. Directory :: Look.com Dystonia (33) EhlersDanlos Syndrome (12) Erythromelalgia (4) Fabry's (8) FamilialDysautonomia (8) Fanconi Anemia (20) floating-harbor syndrome (4) Friedreich http://www.look.com/searchroute/directorysearch.asp?p=87697

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Home Top Health > Floating-Harbor Syndrome ADULT CARS SHOPPING FINANCE ... Floating Harbor Syndrome Support Group - Provides a description, including a list of symptoms, things to do and links to other resources. Also contact detail. National Library of Medicine: FHS - Floating-harbor syndrome, the synonyms, a summary and a list of major features. The CaF Directory - A brief discussion about floating harbor syndrome, with some history and information about a support group located in Essex, United Kingdom. Readers Digest Health - A general discussion about floating harbor syndrome and some resources for further information. WEBSEARCH POPULAR SEARCHES Auction Books Car Hire Cheap Flights ... Contact Us

18. Listings Of The World Health Conditions And Diseases Genetic 6) Down Syndrome (78) Dubowitz Syndrome (6) Ectodermal Dysplasia (7) Familial Hypercholesterolemia(6) Fatty Oxidation (5) floatingharbor syndrome (5) Fragile http://listingsworld.com/Health/Conditions_and_Diseases/Genetic_Disorders/

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