21. Lupus UK Factsheet 5 - Lupus And The Brain brain activity. The second is the clotting disorder associated withsome lupus patients, the antiphospholipid or hughes syndrome. It http://www.kitzbuhel.demon.co.uk/lupus/faqshets/faqs05.htm

Lupus and the Brain Back to Lupus Information Doctors throughout the world are now recognising the importance of subtle forms of brain involvement in lupus as well as the more obvious brain problems. Never underestimate brain involvement. It may vary from mild depression, to memory loss, to much more severe problems such as seizures. In general there are two main causes of brain disease in lupus. The first is lupus disease itself which can cause alterations in the brain activity. The second is the clotting disorder associated with some lupus patients, the antiphospholipid or Hughes syndrome . It is very, very important for the doctor to try to distinguish between these two major causes of neurologic involvement as the treatments are clearly very different. Depression Depression is an important manifestation of lupus - in some it is the presenting sign of the disease. Many patients and, certainly, many doctors wrongly attribute depression in lupus merely to having a chronic illness and all that goes with it. This is not correct. The disease itself causes depression. Depression is an integral part of lupus in some patients - indeed management of the lupus often itself lifts the depression. The management of depression in lupus rests on a combination of treating the underlying lupus itself as well as possibly adding in antidepressant therapy. One of the medical advances in the last decade has been the introduction of newer milder antidepressants with less of the severe side-effects which so hampered older treatments.

22. SupportPath.com: Antiphospholipid Syndrome Also called hughes syndrome. Website includes information about hughes syndrome(Antiphospholipid Syndrome), research, and information on support groups. http://www.supportpath.com/sl_a/antiphospholipid_syndrome.htm

Antiphospholipid Syndrome Also called: Hughes Syndrome About Us Add-A-Link Email Gallery ... here Online Communities / Message Boards... None Listed Online Chats... Note: Regularly scheduled chats are listed on our NEW Online Events Calendar Links in this section are primarily to chat rooms open 24/7 which may or may not be moderated. None Listed Usenet Groups... Note: Your browser must be properly configured to access Usenet groups from this site. None Listed Mailing Lists... None Listed National / International Organizations... UNITED KINGDOM Hughes Syndrome Foundation Website: http://www.hughes-syndrome.org/ Description: The aims of this registered charity: To offer understanding and support to sufferers of Hughes Syndrome; To offer information and education on Hughes Syndrome; To support research into the condition; To raise funds to provide information, education and research. Website includes information about Hughes Syndrome (Antiphospholipid Syndrome), research, and information on support groups. Date Added: 08/08/2002 Note: Groups are listed alphabetically by U.S. state and then country.

23. Hughes Syndrome Live Learn. hughes syndrome. Rare blood disorder, Antiphospholipid Antibody SyndromeAKA hughes syndrome. hughes syndrome Foundation. I Support hughes syndrome. http://pages.ivillage.com/ashley_dea/liveandlearn/id6.html

'); document.writeln(' Click Here! Hughes Syndrome Home About Site About Me My Life Story ... Contact Me Rare blood disorder, Antiphospholipid Antibody Syndrome AKA Hughes Syndrome I was diagnosed with Hughes Syndrome at age 15, but I was sick long before that. Doctors are still finding things out about this disease. The main thing it does is make your blood clot more than it should. A blood clot is what usually gets the disease noticed. When I was 15 I had a clot in my right leg, from my knee to my pelvic area. And some of it broke off into my lungs too. It sure was an experience for me. Hughes Syndrome causes other problems too, just because its an auto-immune disease. It makes the immune system weak and my body fights against itself. It can't tell the good from the bad, so it attacks the good. Hughes Syndrome loves to mimic other diseases, like MS, and Lupus. In fact, some people with Lupus have Hughes Syndrome, and vice-versa. There are two different types of the antiphospholipid antibody. Some people can have the antibody and still live normal lives. But if you have the one that people with Lupus have, often called the Lupus Anticoagulant, then you may have problems. Some people have even been misdiagnosed with MS, when they really had Hughes Syndrome. Hughes Syndrome may run in the family, it has been known to cluster in families.

24. Camera Stella Syndrome (Leonard Hughes Syndrome, Spondyloendochromatosis, Spondy HOME Camera Stella Syndrome (Leonard hughes syndrome, Spondyloendochromatosis,Spondyloepimetaphyseal Dysplasia). Camera Stella syndrome; http://www.bdid.com/camera.htm

HOME Camera Stella Syndrome (Leonard Hughes Syndrome, Spondyloendochromatosis, Spondyloepimetaphyseal Dysplasia) Camera Stella syndrome Irapa Type SPONDYLOEPIMETAPHYSEAL DYSPLASIA, IRAPA TYPE; SEMDIT Micromelic Type SPONDYLOEPIMETAPHYSEAL DYSPLASIA, MICROMELIC Shohat Type SPONDYLOEPIMETAPHYSEAL DYSPLASIA, SHOHAT TYPE Strudwick Type See Strudwick Syndrome Type II SPONDYLOEPIMETAPHYSEAL DYSPLASIA, TYPE II X-Linked SPONDYLOEPIMETAPHYSEAL DYSPLASIA, X-LINKED HOME

25. Birth Disorder Information Directory - Y Young hughes syndrome (XLinked Mental Retardationwith Short Stature and Obesity) http://www.bdid.com/defecty.htm

HOME Y Yim Ebbin Syndrome (Amelia Cleft Lip and Palate with Hydrocephalus and Iris Coloboma) Yim Ebbin syndrome Amelia cleft lip palate hydrocephalus iris coloboma Yorifuji Okuno Syndrome (Pancreatic Hypoplasia with Diabetes and Heart Disease) PANCREATIC HYPOPLASIA, CONGENITAL, WITH DIABETES MELLITUS AND CONGENITAL HEART DISEASE Yorifuji Okuno syndrome Yorifuji okuno syndrome Yoshimura Takeshita Syndrome (Deafness with Tubular Acidosis and Anemia, Hoyeraal Hreidarsson Syndrome) Yoshimura-Takeshita syndrome Outpatient Clinics in France Young Hughes Syndrome (X-Linked Mental Retardation with Short Stature and Obesity) Young-Hughesin oireyhtymä Young-Hughes syndrome Young Hughes syndrome X linked mental retardation short stature obesity Young Maders Syndrome See Pseudotrisomy 13 Syndrome Young McKeever Squier Syndrome (Fatal Infantile Encephalopathy with Olivopontocerebellar Hypoplasia; Olivopontocerebellar Hypoplasia, Lethal Type) ENCEPHALOPATHY, FATAL INFANTILE, WITH OLIVOPONTOCEREBELLAR HYPOPLASIA Young McKeever Squier syndrome Young mc keever squier syndrome Young Simpson Syndrome (Mental Retardation with Unusual Facies and Hypothyroidism) Young Simpson syndrome Young simpson syndrome Young-Simpsonin oireytymä Young Syndrome See Bronchiectasis Oligospermia Yunis Varon Syndrome (Cleidocranial Dysplasia with Micrognathia, Absent Thumbs, and Distal Aphalangia)

26. Fertility Friends hughes syndrome. (The Antiphospholipid Syndrome). At the present time I am goingthrough lots of blood tests to find out whether or not I have hughes syndrome. http://www.fertilityfriends.co.uk/?m=c&c=322

27. Hughes Syndrome - The Syndrome Behind The Name (otherwise Known hughes syndrome the Syndrome behind the Name (otherwise known as AntipholipidSyndrome) Click here for article written by Graham RV Hughes, MD. http://212.199.79.240/imaj/oct99-9.htm

28. Hughes Syndrome And Chronic Fatigue Syndrome hughes syndrome and Chronic Fatigue Syndrome. © MMII, Ken Lassesen, MS. Iwas also her first patient to become symptom free. hughes syndrome. http://lassesen.com/cfids/familyhistory.htm

Hughes Syndrome and Chronic Fatigue Syndrome © MMII, Ken Lassesen, M.S. In 1999, I had sudden onset CFS while I was employed by Microsoft. Microsoft offers self-insured medical insurance that is extremely liberal for all practical purposes there was no deductible or restrictions on any tests that my MD wish to try – of course, living in the US meant a wealth of private facilities and laboratories. As a result of this blessing, not only did I go into full remission from CFS but my wife and two daughters had an accurate diagnosis of their odd symptoms and rational treatment started. Our class of CFS appears to be a variant of Hughes Syndrome (formerly called Antiphospholipid antibody syndrome (APS)). The first paper on this variant was published in 1999 by David Berg and others [i] . Add to this blessing, our existing family practice MD believed that CFS was very real and that she had no treatment for it – but she was willing to listen, learn and cooperate if I could present hard, peer-review research. I was her first CFS patient that she had seen 2 weeks before onset and 2 weeks after onset – very dramatically illustrating the changes. I was also her first patient to become symptom free. Hughes Syndrome Hughes syndrome is caused by antibodies that result in deficiency of certain enzymes, such as

29. Hughes Syndrome Testing The following tests are used to exclude hughes syndrome (and variants)as being the cause of CFS. All tests must be negative (there http://lassesen.com/cfids/isac.htm

Hughes Syndrome Testing Home Up Hughes Syndrome Testing Pathogens Other Tests The following tests are used to exclude Hughes Syndrome (and variants) as being the cause of CFS. All tests must be negative (there are many variants of Hughes Syndrome). Immune System Activation of Coagulation Panel For detection of "sticky blood" there are several tests. The usual US-CFS test is the ISAC Panel from Hemex laboratories (http://www.hemex.com) Anticardiolipin Antibodies This is a cheap test, but it requires two positive tests 6 months apart for a positive result. . It is suggested as a possible pre-ISAC panel test to justify the ISAC expense. (Note: a negative results does not imply a negative ISAC panel) Lupus Anticoagulant The name does not imply Lupus rather an antibody that is also seen with Lupus. Moderate number of positive results. Wasserman Reaction This is a very old syphilis test, a positive test does not imply syphilis, rather one form of Hughes Syndrome. Least amount of positive results. Experience APS-Hughes Search this site Verify ... Comments?

30. Divvy's Home Page hughes syndrome The Blood Disease that Mimics MS - Could you have been given thewrong diagnosis? by Judy Graham. hughes syndrome is easy and cheap to treat. http://www.btinternet.com/~mcbiffa/hughes.html

Home MS Links Fun Links Contact me Hughes Syndrome - The Blood Disease that Mimics MS - Could you have been given the wrong diagnosis? by Judy Graham Case History Jeremiah Sheehan a successful London architect, knows how devastating it is to be told you have MS, and then how stressful to hear it might be something else that you have never heard of and requires completely different treatment. "I had so many things going wrong that I was described by one doctor as a medical chaosity, and although my story is a harrowing one I do feel I have been given a reprieve." Jeremiah, 45, one of the key designers of the much acclaimed Rainforest Cafe in Piccadilly, had always been careful about his health. One of his favourite pastimes was hill-walking. But it was whilst in Scottish Highlands four years ago that he noticed a dramatic change in his health. I had this paralysing fatigue that made it hard for me to even get back to the car. I thought it might be linked to asthma I had suffered from for many years." But other symptoms developed. "I started having double vision, the beginnings of optic neuritis. Then I began to trip up and had problems with my balance. I had something called drop foot where I couldn't lift my toes so I would fall over them. I was getting badly bruised, at one point I ended up in casualty with dislocated ribs and gashes, I looked as though I had been in a war. The doctors didn't know what was wrong."

31. Sticky Blood Explained By Kay Thackray The description by Graham Hughes of the antiphospholipid syndrome orhughes syndrome is one of the medical landmarks of the 20th century. http://www.author.co.uk/thackray/

Kay Thackray Order Form Search this site Site map What's new The description by Graham Hughes of the "antiphospholipid syndrome" or Hughes Syndrome is one of the medical landmarks of the 20th century. Here is a disease, a medical discovery, which should turn such fashions around. In a series of brilliant clinical observations, Dr Hughes, not only pieced together what is now clearly a common and important disease, but also, with his team, set up the blood tests and treatment guidelines, which are used world-wide. This was not an anecdotal observation. It was a prime example of meticulous clinical observation and dogged determination. Hughes Syndrome is now recognised as a major new disease. It has been described, by Dr Josep Font of Barcelona as, "one of the 2 new diseases (with AIDS) of the 20th century". Despite being 20 years old, and being of major importance in the diagnosis of strokes, migraine, multiple sclerosis, and miscarriage, the syndrome is still under diagnosed by doctors. This book by Kay Thackray is an important contribution to the understanding of the syndrome.

32. Peter Elwood hughes syndrome causes many of the strokes that affect people under45 years old. It is preventable, as are many cases of migraine http://www.aspirin-foundation.com/edin_7.htm

Aspirin and the Anti-Phospholipid Syndrome G raham Hughes is consultant rheumatologist at the Guy’s and St Thomas’ Hospital Trust, where he set up, in the Rayne Institute, the Lupus Arthritis Research Unit. He is Editor of the Journal Lupus. His main research interest is in systemic lupus erythematosus (SLE), not in itself a rare disease. However, he is seeing more and more people with anti-phospholipid syndrome, named internationally in 1992 as Hughes’ syndrome. W omen with it have recurrent spontaneous abortions, arterial and venous thromboses, and early myocardial infarctions. His interest in the disease started in 1975, in Jamaica, where he found women with ‘Jamaican neuropathy’, with meningomyelopathy, false positive syphilis tests, and thromboses in veins and arteries. In 1983 he wrote of recurrent thrombosis, abortion, cerebral disease, lupus and a circulating protein pro-coagulant co-factor, as the anti-phospholipid syndrome L ater in 1983, he added thrombocytopenia, livido reticularis, teenage migraine, demyelinating disease, Budd Chiari syndrome and dementia to the list of signs and symptoms. His colleague Nigel Harris developed the tests, and the offending pro-coagulant protein beta-2GP-1 is now well studied. Other protein co-factors that promote clotting include prothrombin. Dr Hughes’ group showed that people who possess anti-phospholipid antibodies and prothrombin antibodies have a 60% risk of thrombosis, and that many develop dementia.

33. Peter Elwood hughes syndrome – Sticky Blood, Obstetrics and the GP, Dr Hughesfirst became interested in the syndrome that now bears his name http://www.aspirin-foundation.com/the_aspirin_age6.htm

Hughes Syndrome – Sticky Blood, Obstetrics and the GP Dr Hughes first became interested in the syndrome that now bears his name in the early 1970s, when studying systemic lupus erythematosus (SLE). In 1983, he gave the Prosser-White Oration, in which he described women with multiple thromboses, neurological disease, thrombocytopenia, livedo reticularis, headaches, migraine, epilepsy, chorea, multiple abortions, peripheral thrombosis, Budd Chiari syndrome and early death from stroke. Many were thought to have 'lupus' but had negative antinuclear antibody tests. The diagnosis was changed to anti-phospholipid syndrome when it was found they had anti-phospholipid antibodies, then was renamed Hughes syndrome when Dr Hughes' part in discovering it was recognised. It is often unrecognised. Of 146 women with primary stroke, 7% had anti-PL antibody. In 55 Italian people under 45 years old with strokes, 20% had anti-PL syndrome: four of the ten went on to have further strokes. Dr Hughes has a weekly clinic of 800 patients, many of whom complain of memory loss. Many know precisely when their INR has fallen, because their dysarthria or headache returns when it falls from 3.2 to 2.9. One sufferer, an author, needs an INR of 3.4: if it falls to 3.1 she writes nonsense.

34. Mypharmacy Shop Health Books Sheldon Press Living with hughes syndrome, Living withhughes syndrome Living with hughes syndrome information Price £6.99. http://www.mypharmacy-secure.co.uk/acatalog/Shop_Living_with_Hughes_Syndrome_364

Health information Medicines Alternative medicines Health products ... Sheldon Press Living with Hughes Syndrome Living with Hughes Syndrome Living with Hughes Syndrome information Price:

35. Babyloss - A Home On The Web For Miscarriage Information And Support hughes syndrome Foundation hughes syndrome (antiphospholipid syndrome) 'stickyblood' is characterised by arterial and venous blood clotting and is an http://homepages.which.net/~charlotte.cornwall/babyloss/support/support.html

home information support forums ... library SUPPORT Communities and organisations dedicated to help you. online communities babyloss forums click here for support and friendship from fellow parents experiencing pregnancy loss StillFathers.org Still Fathers is a new resource for men who have experienced stillbirth, infant death, or miscarriage, and provides support, encouragement, and 'a place to touch base'. Remember Our Angels http://www.geocities.com/rememberourangels2002/index.html Pregnancy and Infant Loss the home of the US Awareness campaign. Amongst the useful info and support is a list of remembrance ceremonies Born Too Soon Following 5 losses, Paula Craven has set up this support website and also written leaflets for use at her local hospital. Please visit her website where you will be assured of comfort and understanding. soc.support.pregnancy.loss

36. Arthritis Research Campaign | Antiphospholipid Syndrome Available from the hughes syndrome Foundation hughes syndrome A Patient's Guide,by Dr Graham Hughes, SpringerVerlag London, 2001, ISBN 1852334576, 63 pp. http://www.arc.org.uk/about_arth/booklets/6059/6059.htm

scotland + n. ireland north wales + midlands east + southeast ... south + southwest What is antiphospholipid syndrome (APS)? Antiphospholipid syndrome (APS) is a disorder in which the blood has a tendency to clot too quickly ('sticky blood' syndrome). The clotting can affect any vein or artery in the body, resulting in a wide range of symptoms. These are described below. (The medical words in italics are explained in more detail in the Glossary at the end of the booklet.) History of APS Most of the early work leading to the detailed description of APS was carried out in the early 1980s by Dr Graham Hughes and his colleagues while studying a disease called lupus (see ARC booklet ' Lupus '). In lupus the immune system goes into 'overdrive' and produces a huge variety of excess antibodies . While studying lupus it became clear that some patients had a tendency to form blood clots in arteries and veins. This clotting was associated with a particular antibody which 'attacks' phospholipids - hence the term antiphospholipid antibodies . It was discovered that the syndrome could exist in people without lupus. This is now known as APS or primary antiphospholipid syndrome. What are the main signs and symptoms?

37. The Miscarriage Association hughes syndrome FOUNDATION. hughes syndrome Foundation a site offering supportand information regarding hughes syndrome (antiphospholipid syndrome). http://www.miscarriage.association.care4free.net/links.htm

38. Ivanhoe's Medical Breakthroughs - Discussion Groups Antiphospholipid Antibody Syndrome (aka hughes syndrome) KuddleUpWthMe 10/07/02» RE Antiphospholipid Antibody Syndrome (aka hughes syndrome) Eyzkrazy4u 10 http://www.ivanhoe.com/discussion/p_discussion.cfm?forumID=3&action=msglist

39. Springer-Verlag London: Medicine hughes syndrome A Patient's Guide Graham RV Hughes £7.99; 2001; 63pages;205x135mm; Softcover; 185233-457-6. As with any delicate http://www.springer.co.uk/medicine_showcase.htm

Showcase Titles Click on a book cover to order... Positron Emission Tomography Basic Science and Clinical Practice Peter E Valk, Dale L Bailey, David W Townsend and Michael N Maisey (Eds) A comprehensive and contemporary reference work covering the basic science and clinical applications of positron emission tomography (PET). This book reflects the tremendous increase in interest in PET as both a clinical and research imaging modality in the past 10 years. Written by experts in the field and edited by those involved in PET development, and training of scientists and medical specialists. Positron Emission Tomography - basic science and clinical practice thoroughly explains the principles, clinical applications and economic aspects of PET today. Chapters go into detail on PET applications in oncology, the central nervous system, cardio-respiratory systems, infectious diseases and pediatrics. Discussions are also found on technology design and evaluation, PET in drug discovery and development in imaging gene expression and therapy. Peter E Valk MB BS FRACP is based in the Northern California PET Imaging Center, Sacramento, CA USA

40. Bokpris.com - Hughes Syndrome: Patients' Guide hughes syndrome Patients' Guide Jämför priser, frakt och leveranstidenpå böcker i svenska och utländska Internetbutiker. http://www.bokpris.com/1852334576

Tävling Information Topplistor Hjälp Sök: Titel Författare ISBN Hughes Syndrome: Patients' Guide Författare: Graham R. V. Hughes Information: Paperback 15 December, 2001 Springer Verlag ISBN: Logga in e-mail: lösenord: Kom ihåg inloggning på denna dator BLI MEDLEM >> Butik Land Leveranstid Frakt Pris Totalt WHsmith.co.uk 4-6 vardagar Länk till butiken Amazon.co.uk 3-5 arbetsdagar Länk till butiken Bokus 5 arbetsdagar Länk till butiken 4-10 veckor Länk till butiken Amazon.com 2-3 veckor Länk till butiken Datorbokhandeln 2-10 vardagar Länk till butiken Information om utlandsköp Du riskerar att behöva betala tull när du beställer från butiker utanför EU replace_search('searching', searching_done); Besökarnas recensioner Det finns inga recensioner för den här boken Skriv recension Jämförelsekorg Lägg till Hughes Syndrome: Patients' Guide i din jämförelsekorg Din jämförelsekorg Betyg Betygsätt: Hughes Syndrome: Patients' Guide Tipsa en vän om den här prisjämförelsen Information om Bokpris.com Hjälp och support Annonsera ... Pressinformation

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