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21. MRKH Listserv And Online Support Group Homepage
Welcome to the mayerrokitansky-Kustur-hauser syndrome Listserv and To Read the mayer-rokitansky-kuster-hauser syndrome (and Related Issues) Index to Articles, Books, Etc.
http://www.surrogacy.com/online_support/mrkh
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The information contained in the website may not be published, broadcast, rewritten or otherwise distributed without the prior written authority of The American Surrogacy Center, Inc. If you would like to include this information on your website, you may link to the page directly on our site. Guest commentary and representations by others do not necessarily reflect the opinions of the principals of TASC, and should furthermore be independently verified. Welcome to the Mayer-Rokitansky-Kustur-Hauser Syndrome Listserv Online Support Center, a forum open only to women with this syndrome. Because this is a closed area, members can communicate freely and openly with each other without the worry of unwanted visitors. We hope that you will enjoy your visit and make the most of this opportunity express your concerns, offer your support, or share your knowledge and experiences with other members. To Join MRKH-L or to learn more about it, click

22. Mayer-Rokitansky-Kuster-Hauser Syndrome
mayerrokitansky-kuster-hauser syndrome. I was born without a uterus.I This is called mayer-rokitansky-kuster-hauser syndrome. It
http://www.womenshealth.org/a/no_uterus.htm
Mayer-Rokitansky-Kuster-Hauser Syndrome I was born without a uterus. I have been trying to find out more information on this. Is there another name for this besides primary amenorrhea?
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23. Mayer-Rokitansky-Kuster-Hauser Syndrome Information Page
mayerrokitansky-kuster-hauser syndrome Information Page. mayer-rokitansky-kuster-hausersyndrome (MRKH) affects about 1 in 5000 women.
http://home.earthlink.net/~mrkh3/
Mayer-Rokitansky-Kuster-Hauser Syndrome Information Page Welcome to Jenn's MRKH Information Page! The following is information about birth defects that affect some women! If you do not wish to continue please go back now! If you would like to learn more about Mayer-Rokitansky-Kuster-Hauser Syndrome, please continue to read on. This is a condition that affects many women, but is generally not spoken about in public. I hope this makes you aware and more sensitive to this condition and the women affected by it. I am a women with MRKH. I am not a medical doctor. This information was collected from my personal experiences with MRKH and researching MRKH. I suggest you see your doctor if you think you have MRKH. The information and links listed on this site are for informing the public about mrkh and helping women with mrkh find information and support! I hope you enjoy your visit to my website!
Mayer-Rokitansky-Kuster-Hauser Syndrome (MRKH) affects about 1 in 5000 women. The women are born without a uterus, cervix, fallopian tubes, and a short or nonexistent vagina. They are genetically female (46XX) with normal external genitalia. They do not have periods. Usually they have normal ovaries. Other problems may include kidney problems, skeletal problems and/or hearing loss. Not all women have all of these symptoms.
There are many treatments available to these women who want to create a vagina. Some have surgery to create a vagina. Some use dilators to stretch the short vagina to the proper length. The dilators are devices that are inserted into the vagina to apply pressure to the lengthen the vagina. Dilation usually has great results, but does take time. Most women are able to have sexual intercourse after treatment to create a vagina. The Women can also choose no treatment at all. These women do not "need" to have treatment, only if they choose to do so.

24. MAGIC FOUNDATION
General Information What is mayerrokitansky-kuster-hauser syndrome?mayer- rokitansky-kuster-hauser (MRKH) syndrome is an uncommon
http://www.magicfoundation.org/brochure/mrkh.htm

General Information

PDF Brochure

General Information
What is Mayer-Rokitansky-Kuster-Hauser syndrome?

Mayer- Rokitansky-Kuster-Hauser (MRKH) syndrome is an uncommon variation in the prenatal development of the female genital tract. Its features include an absent or very short vagina and a uterus that can be absent or immaturely formed. Females with MRKH syndrome have functioning ovaries, normal external genitalia and the typical, 46, XX, female chromosome pattern. Breast development and growth of pubic hair are also normal. Associated renal and/or skeletal abnormalities are common. MRKH syndrome is also known as Mullerian (female internal sex organs) Agenesis (no growth) syndrome (a group of related medical findings). How often does MRKH syndrome occur?
The incidence of MRKH syndrome is approximately 1 in 4,000 - 5,000 female births. Although it has been determined that the absence of a vagina and uterus is a result of the Mullerian ducts failing to form properly early in embryonic development, its underlying cause is unknown. When is a diagnosis of MRKH syndrome made?

25. Comment About Mayer-Rokitansky-Kuster-Hauser Syndrome (Congenital Total Or Parti
mayerrokitansky-kuster-hauser syndrome (congenital total or partial absenceof uterus and vagina). Dr. Nelson Soucasaux, Brazilian gynecologist.
http://www.mum.org/mayersyn.htm
news first page contact the museum art of menstruation ... books (and reviews cats company booklets directory costumes ... LIST OF ALL TOPICS More articles by Dr. Soucasaux Anatomical drawings Anovulatory cycles The breasts: some morphological aspects Endocrinology of menstruation ... Gynecological assistance : the three basic areas - Mayer-Rokitansky-Kuster-Hauser (MRKHauser) Syndrome Menstrual toxin : An old name for a real thing? - Nature and the ovaries Oral hormonal contraceptives (the "Pill") The Ovaries : Some Functional and Archetypal Considerations - Physiology of menstruation - Polycystic ovaries syndrome - Premenstrual congestion of the breasts Premenstrual syndrome (PMS) Psychosomatic and symbolic aspects of menstruation - Psychosomatic gynecology Uninterrupted use of hormonal contraceptives for menstrual suppression: why I do not recommend it The uterine cervix Uterine contractility ... Women's corporeal consciousness and experience , and see his Art of Menstruation
Mayer-Rokitansky-Kuster-Hauser Syndrome (congenital total or partial absence of uterus and vagina)
Dr. Nelson Soucasaux, Brazilian gynecologist

26. Purchase Viagra Online Now! - Rokitansky Syndrome
syndrome This is also called rokitansky syndrome rokitansky syndrome, MRKH (mayerrokitansky-kuster-hauser)syndrome, rokitansky syndrome mullerian dysgenesis
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27. Menstrual Toxin: An Old Name For A Real Thing? By Dr. Nelson Soucasaux, At The M
Endocrinology of menstruation Gynecological assistance the three basic areas -mayer-rokitansky-kuster-hauser (MRKhauser) syndrome - Menstrual toxin An old
http://www.mum.org/menotox2.htm
news first page contact the museum art of menstruation ... books (and reviews cats company booklets directory costumes ... LIST OF ALL TOPICS
Read also Menotoxin : a short, incomplete introduction to the "poison" in menstrual discharge
More articles by Dr. Soucasaux Anatomical drawings Anovulatory cycles The breasts: some morphological aspects Endocrinology of menstruation ... Gynecological assistance : the three basic areas - Mayer-Rokitansky-Kuster-Hauser (MRKHauser) Syndrome Menstrual toxin : An old name for a real thing? - Nature and the ovaries Oral hormonal contraceptives (the "Pill") The Ovaries : Some Functional and Archetypal Considerations - Physiology of menstruation - Polycystic ovaries syndrome - Premenstrual congestion of the breasts Premenstrual syndrome (PMS) Psychosomatic and symbolic aspects of menstruation - Psychosomatic gynecology Uninterrupted use of hormonal contraceptives for menstrual suppression: why I do not recommend it The uterine cervix Uterine contractility ... Women's corporeal consciousness and experience , and see his Art of Menstruation
Menstrual toxin: An old name for a real thing?

28. JRM Mar98: Laparoscopy For Pelvic Pain In The Mayer-Rokitansky-Kuster-Hauser Syn
Title Laparoscopy for Pelvic Pain in the mayerrokitansky-kuster-hauser syndrome A Case Report Authors Konstantinos Giatras, M.D., Frederick Licciardi, M.D., and Jamie A. Grifo, M.D., Ph.D.
http://www.jreprodmed.com/abs/JRM380.htm
Title: Laparoscopy for Pelvic Pain in the Mayer-Rokitansky-Kuster-Hauser Syndrome A Case Report
Authors: Konstantinos Giatras, M.D., Frederick Licciardi, M.D., and Jamie A. Grifo, M.D., Ph.D.
Background : The Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome occurs in 1 of every 4,000-5,000 female births. It is characterized by normal external genitalia, an absent vagina, absent or rudimentary uterus, and normal fallopian tubes and ovaries. When associated with a rudimentary uterine horn, cyclic catamenial pelvic pain may result. The standard procedure for pain relief has been removal of the uterine horn by laparotomy.
Case: A rudimentary uterine horn was diagnosed in a woman with MRKH syndrome who developed monthly severe pelvic pain. Removal of the structure was performed via laparoscopy. The patient had complete resolution of her pain.
Conclusion: As an alternative to laparotomy, laparoscopic resection of a rudimentary horn in patients with MRKH syndrome is both feasible and beneficial in the treatment of pelvic pain. (J Reprod Med 1998;43: 203-206)
Keywords: laparoscopic surgery; birth defects; Mayer-Rokitansky-Kuster-Hauser syndrome

29. Mayer-Rokitansky-Kuster-Hauser Syndrome Information Page
Enter a brief description of your site here If you would like to learn more about mayerrokitansky-kuster-hauser syndrome, please continue to read on.
http://www.home.earthlink.net/~mrkh3
Mayer-Rokitansky-Kuster-Hauser Syndrome Information Page Welcome to Jenn's MRKH Information Page! The following is information about birth defects that affect some women! If you do not wish to continue please go back now! If you would like to learn more about Mayer-Rokitansky-Kuster-Hauser Syndrome, please continue to read on. This is a condition that affects many women, but is generally not spoken about in public. I hope this makes you aware and more sensitive to this condition and the women affected by it. I am a women with MRKH. I am not a medical doctor. This information was collected from my personal experiences with MRKH and researching MRKH. I suggest you see your doctor if you think you have MRKH. The information and links listed on this site are for informing the public about mrkh and helping women with mrkh find information and support! I hope you enjoy your visit to my website!
Mayer-Rokitansky-Kuster-Hauser Syndrome (MRKH) affects about 1 in 5000 women. The women are born without a uterus, cervix, fallopian tubes, and a short or nonexistent vagina. They are genetically female (46XX) with normal external genitalia. They do not have periods. Usually they have normal ovaries. Other problems may include kidney problems, skeletal problems and/or hearing loss. Not all women have all of these symptoms.
There are many treatments available to these women who want to create a vagina. Some have surgery to create a vagina. Some use dilators to stretch the short vagina to the proper length. The dilators are devices that are inserted into the vagina to apply pressure to the lengthen the vagina. Dilation usually has great results, but does take time. Most women are able to have sexual intercourse after treatment to create a vagina. The Women can also choose no treatment at all. These women do not "need" to have treatment, only if they choose to do so.

30. Mayer – Rokitansky – Kuster – Hauser Syndrome
mayer – rokitansky – kuster – hauser syndrome,, Print this article,(August mayer, 1787–1865, German physician, Karl von rokitansky
http://www.amershamhealth.com/medcyclopaedia/Volume IV 2/MAYER ROKITANSKY KUST
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*For Medical Professionals only, registration required Mayer – rokitansky – kuster – hauser syndrome, (August Mayer, 1787–1865, German physician, Karl von Rokitansky, 1804–1878, Austrian pathologist, Herman Kuster, 20th century, German gynaecologist and G.A. Hauser, 20th century, Swiss physician), the most common abnormality in the class 1, Buttram and Gibbons classification (class 1 indicating agenesis of the Mullerian duct). The syndrome includes a combined agenesis of the uterus and cervix and upper two thirds of the vagina. The Fallopian tubes and ovaries are usually present. After gonadal dysgenesis, Rokintansky – Kuster – Hauser syndrome is the second most common cause of primary amenorrhoea. While sonographic evaluation may indicate absence of the uterus, findings on MRI often add additonal information and demonstrate the absence of the uterus or show a fibrous uterine remnant, (which demonstrate a low signal intensity on T2-weighted image). In this syndrome, there is no chromosomal abnormality, and the female usually exhibits 46XX. See

31. Rokitansky – Mayer – Kuster – Hauser Syndrome
rokitansky – mayer – kuster – hauser syndrome,, Print this article, rokitansky– mayer – kuster – hauser syndrome, Fig.
http://www.amershamhealth.com/medcyclopaedia/Volume VII/ROKITANSKY MAYER KUSTE
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*For Medical Professionals only, registration required Rokitansky – mayer – kuster – hauser syndrome, (Karl von Rokitansky, 1804–1865, Austrian pathologist; August Mayer 1787–1865, German physician; Herman Kuster, 20th century, German gynaecologist; G.A. Hauser, 20th century, Swiss physician), the association of congenital absence of or atresia of the vagina and uterine abnormalities, which range from a double uterus, absence or partial absence of the uterus, fusion abnormalities of the uterus or a uterus without an opening to the introitus and renal anomalies. This may be seen in association with cloacal anomalies ( Fig.1 ) or occur in children with normal external genitalia. Menstruation takes place but because of the absence of the vagina, the menstrual products accumulate in the uterine cavity and may reflux into the broad ligament. The children present with amenorrhoea and abdominal pain. A hydrometrocolpos is visible on ultrasound or MRI, often with cystic masses in the broad ligament. See

32. Mayer-Rokitansky-Kuster-Hauser Syndrome
mayerrokitansky-kuster-hauser syndrome Clinical Information The patient is a16 year old white female who had undergone normal development of secondary sex
http://cats.med.uvm.edu/cats_teachingmod/radiology/radiology_html/teaching/radio
MAYER-ROKITANSKY-KUSTER-HAUSER SYNDROME
Clinical Information:

The patient is a 16 year old white female who had undergone normal development of secondary sex characteristics, yet remained amenorrheic. Her pelvic exam was notable for pain, and the cervix was not visualized on speculum exam. Hormonal tests (estradiol, FSH, LH, TSH, prolactin) were all within normal limits for an adolescent female in the follicular stage. This enabled the physician to rule out androgen insensitivity (testicular feminization), and suggest that a pituitary tumor was not the cause of amenorrhea. An ultrasound exam was attempted (study not available). Transabdominally, the uterus was not identified. An endovaginal US exam could not be performed, secondary to pain. She was referred to MR for evaluation of the pelvic organs. Radiographic Findings:
View MRKH Syndrome Images

MRI of the abdomen and pelvis:
T1 axial and T2 axial of the pelvis were obtained, confirming the diagnosis of MRKH syndrome.

33. Mayer-Rokitansky-Kuster-Hauser Syndrome
mayer rokitansky- kuster- hauser syndrome
http://cats.med.uvm.edu/cats_teachingmod/radiology/radiology_html/teaching/radio
Mayer-
Rokitansky-
Kuster-
Hauser
Syndrome
Clinical

Information
Radiographic
Findings
... References

34. EMedicine - Mayer-Rokitansky Syndrome : Article By Suzanne M Carter, MS
Chervenak FA, Stangel JJ, Nemec M mayerrokitansky-kuster-hauser syndrome. Congenitalabsence of vagina. The mayer-rokitansky-kuster-hauser syndrome.
http://www.emedicine.com/ped/topic1381.htm
(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Pediatrics Gynecology
Mayer-Rokitansky Syndrome
Last Updated: May 18, 2001 Rate this Article Email to a Colleague Synonyms and related keywords: MRK anomaly, Rokitansky-Küster-Hauser (RKH) syndrome, vaginal atresia, Von Mayer-Rokitansky anomaly, Von Mayer-Rokitansky-Küster (MRK) anomaly, Mayer-Rokitansky-Küster-Hauser syndrome AUTHOR INFORMATION Section 1 of 9 Author Information Introduction Clinical Differentials ... Bibliography
Author: Suzanne M Carter, MS , Senior Genetic Counselor, Associate, Department of Obstetrics and Gynecology, Division of Reproductive Genetics, Montefiore Medical Center, Albert Einstein College of Medicine Coauthor(s): Susan J Gross, MD, FRCS(C), FACOG, FACMG , Codirector, Division of Reproduction Genetics, Associate Professor, Department of Obstetrics and Gynecology, Albert Einstein College of Medicine Suzanne M Carter, MS, is a member of the following medical societies:

35. Bibliografía
BenRafael Z; Bar-Hava I; Levy T; Orvieto R Simplifying ovulation inductionfor surrogacyin women with mayer-rokitansky-kuster-hauser syndrome.
http://caibco.ucv.ve/vitae/VitaeSiete/CasosClinicos/Cirugia/ArchivosHTML/bibliog
Bibliografía
  • Madeleine R. MacDonald, MD, Ann Haskins Olney, MD,PegKolodziej Ben-Rafael Z; Bar-Hava I; Levy T; Orvieto R Simplifying ovulation induction for surrogacyin women with Mayer-Rokitansky-Kuster-Hauser syndrome. Hum Reprod 1998 Jun;13(6):1470-1 (ISSN: 0268-1161) Department of Obstetrics and Gynecology, Rabin Medical Center, Petah Tikva, Israel. Major T; Borsos A; Bacsko Application of minimally invasive surgery in Mayer-Rokitansky-Kuster-Hauser syndrome. Acta Chir Hung 1997;36(1-4):219-20 GDepartment of Obstetrics and Gynecology, University Medical School of Debrecen, Hungary. Malik E; Mangold R; Rossmanith WG Laparoscopic extirpation of an aplastic ectopic uterus in a patient with Mayer-Rokitansky-Kuster-Hauser syndrome. Hum Reprod 1997 Jun;12(6):1298-9 (ISSN: 0268-1161) Klinik fur Frauenheilkunde und Geburtshilfe, Medizinische Universitatzu Lubeck, Germany. Lenaghan R; Wilson N; Lucas CE;

36. PhysicalSurvey
mayerrokitansky-kuster-hauser syndrome. ….Was named in 1838 (and again in 1910)for the men who discovered physical commonalties in an unusual situation.
http://mrkhorg.homestead.com/files/home/PhysicalSurvey.htm
March 17, 2001 Esther Morris M AYER- R OKITANSKY- K USTER- H AUSER SYNDROME ….Was named in 1838 (and again in 1910) for the men who discovered physical commonalties in an unusual situation. This is a condition that involves congenital absence of the vagina, fallopian tubes, cervix and uterus. Some women have uterine remnants, or horns. External genitalia are normal . Chromosome karyotype is 46XX (normal female). The incidence rate is approximately one in 5000. Other symptoms involved can include kidney abnormalities, skeletal problems and hearing loss. The cause is somewhat unclear, but the Syndrome occurs sometime during the 4th-6th week of fetal development…. INTRODUCTION This report should not be used for diagnostic information or medical advice. For the last year I have been listening to women with MRKH talk about other physical problems that seem to be common in many of us. One woman would mention a particular health problem and other women would reply that they have similar physical issues. Knowing how lack of information has harmed me I felt it was important to gather more information about what women with MRKH have in common. Most often our ‘other’ physical problems are overlooked in the need to prepare us for vaginal intercourse. We all know what we don’t have. I want to look at what we do have. I am reporting the symptoms they way they were reported to me. I used a control group for this survey to determine if the reported physical symptoms were common to all women or more prevalent to women with MRKH.

37. ¤¤µØ¥Á°ê°ü²£¬ìÂå¾Ç·|±M¬ìÂå®vºÂ¼f°ü¬ì¯f¾úºK­
2. mayerrokitansky-kuster-hauser syndrome. 1.?. mayer-rokitansky –kuster-hauser syndrome.
http://www.cgmh.com.tw/heal/journal/gr0213.htm
Discussion ©m¡@¡@¦W ªLÎr§g ¯f ¥X ¤J ¥X ¶E¡@Â_¡] Diagnosis ¡^¡G ¡@¥D­n¶EÂ_¡] Main diagnosis ¡^¡G Primary amenorrhea with Meyer- Rokitansky ¡V Kuster-Hauser syndrome ²­n¯f¥v¡] History ¡^¡G This 16 y/o female was well before except no menstruation till now. No abdominal intermittent or cyclic pain was noted. She went to our OPD for help on 90-1-29. At OPD, well-developed breasts were noted. Secondary sexual characteristics were normal. Pubic hair also showed well-developed. Vagina introitus showed one pouch. Hormone level (FSH , E2 ) was checked and both were under normal range. Sona was performed. No Uterus was found. Bilateral ovary were in normal size . Under the impression of R/O Rokitansky syndrome, L¡¦scopy was performed. Physical findings ¡^¡G Vital sign :stable. Conj: not pale Chest :Symmetric expansion , Breathing sound :clear Breast :well-developed , Nipple and areolae : normal color Abd :soft, no tender
Ext :free
Pelvic examination: Pubic hair: normal Vagina orifice : one pouch ­«­n¹êÅç«ÇÀˬdµ²ªG¡] Laboratory data ¡^¡G «e«á©Ê¡G±`³WÀˬd¦b«e¡A¯S§OÀˬd¦b«á¡C ¨t¦C©Ê¡G±N¦h¦¸Àˬdµ²ªG«ö®É¶¡¥ý«á¶¶§Ç¦C­z¡C¡^ CBC D/C data: Hb :13.2 , Hct :39.1 , MCV :83

38. UCL Hospitals - Links To Other Useful Web-sites
This is also called rokitansky syndrome, MRKH (mayerrokitansky-kuster-hauser)syndrome, mullerian dysgenesis and mullerian dysplasia.
http://www.uclh.org/links/index.shtml

uclh

useful links

These links to other external web-sites have been compiled for your information. Please note, UCL Hospitals has no responsibility for the content of these sites. Broken link? Let us know Last updated: June 26 2001 Archives
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The hospital school

39. UCL Hospitals - Gynaecology
Insensitivity syndrome, Congenital Adrenal Hyperplasia (CAH), Swyers syndrome,Vaginal Agenesis (mayer rokitansky - kuster - hauser syndrome) and any
http://www.uclh.org/services/reprodev/index.shtml

uclh

Gynaecology - Middlesex clinic
The Middlesex clinic at the EGA hospital
Welcome to the Middlesex clinic at the EGA hospital. We are an NHS clinic based at University College Hospitals London (UCLH) which includes the Middlesex Hospital and the Elizabeth Garrett Anderson Hospital. We provide information, diagnosis and clinical care for a broad range of conditions including Complete and Partial Androgen Insensitivity Syndrome, Congenital Adrenal Hyperplasia (CAH), Swyers syndrome, Vaginal Agenesis (Mayer-Rokitansky-Kuster-Hauser syndrome) and any variations of development of the genital system or intersex conditions. We are also a research centre working on many projects in these areas.
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40. Klassische Behandlung
Translate this page Syndrom von mayer­rokitansky­kuster­hauser Er wird durch die Agenesie der proximalenzwei Drittel mayer rokitansky-Küster-hauser syndrome dieses ist
http://www.8ung.at/trix/klassische_behandlung.htm
http://www.youngwomenshealth.org/
http://www.youngwomenshealth.org/vaginalagenesis.html http://www.youngwomenshealth.org/instructions.html http://www.youngwomenshealth.org/mcindoe.html
Die "klassische" körperliche Behandlung ist der chirurgische Aufbau einer künstlichen Vagina, indem sie einen "Tunnel" öffnen, wo normalerweise nichts vorhanden ist man formt diesen "Tunnel" mit Hauttransplantationen. Momentan gibt es eine neue Technik mit dem Becken- Peritoneum anstelle von den Hauttransplantationen. Die neue Vagina, die auf diese Art errichtet wird, arbeitet verhältnismäßig gut und erlaubt sexuellen Verkehr. Im klassischen Haupt- und Johnsonsbuch "die menschliche sexuelle Antwort" (veröffentlicht in den sechziger Jahren) gab es bereits eine ausführliche Studie der künstlichen Antwort der Vagina zur sexuellen Anregung. Für Frauen mit dem Syndrom, die eine kleine Vagina haben, hat es nicht-chirurgische Versuche der Vergrößerung sie durch stufenweise Ausdehnungmethoden gegeben. Dennoch - und es ist sehr wichtig, dieses im Verstand zu halten -, gibt es einen anderen seltenen pathologischen Zustand, der auch durch Primäramenorrhea und Fehlen Gebärmutter und Vagina gekennzeichnet wird: ein sehr merkwürdiges Syndrom nannte früher "Testikular- feminization" und momentan "Androgenunempfindlichkeitsyndrom.", Folglich muß eine vorsichtige differentiale Diagnose zwischen Syndrom MRKHauser und Testikular- feminization sofort sein .

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