61. Facial/ Craniofacial Anomalies Syndrome , Nager Miller Syndrome, neurofibromatosis, Microtia (Ear Atresia), MoebiusSyndrome, Opitz, Pfeiffer Syndrome, pierre robin syndrome, Robinow Syndrome http://www.kumc.edu/gec/support/craniofa.html

Facial anomalies / Craniofacial conditions Apert Syndrome Arhinia (absent nose) Blepharophimosis , Carpenter Syndrome, Chotzen Syndrome, Crouzon Syndrome ear anomalies Goldenhar Syndrome (hemifacial microsomia) ... Costello Syndrome , Jackson-Weiss, Kabuki Syndrome Nager Miller Syndrome neurofibromatosis , Microtia (Ear Atresia) , Moebius Syndrome, Opitz, Pfeiffer Syndrome, Pierre Robin Syndrome Robinow Syndrome Romberg Syndrome Stickler Syndrome , Sturge-Weber Syndrome, Treacher Collins syndrome , and other craniosynostosis conditions AboutFace International, information and emotional support to individuals with facial differences and their families 123 Edward St., Suite 1003, Toronto, Ontario, Canada M5G 1E2 Phone: 416.597.2229 or 1.800.665.3223 (FACE) - Fax: 416.597.8494 E-mail: info@aboutfaceinternational.org Web site: www.aboutfaceinternational.org/main.html Syndromes and Conditions Craniosynostosis and Positional Plagiocephaly Support Web site: www.cappskids.org/ Children's Craniofacial Association PO Box 280297, Dallas, TX 75243-4522 Phone: 972.994.9902 - Fax 972.240.7607

62. WebGuest - Open Directory Health Conditions And Diseases Top Health Conditions and Diseases Rare Disorders pierre robin syndrome (4).See also Health Conditions and Diseases Musculoskeletal Disorders (964). http://directory.webguest.com/index.cgi/Health/Conditions_and_Diseases/Rare_Diso

63. MOEBIUS SYNDROME EXPLANATION Moebius Syndrome is sometimes accompanied by pierre robin syndromeand Poland's Anomaly. TOP . CAUSE. Children are born with it. http://www.moebius1.org/explanation.html

RETURN TO INDEX WHAT IS MOEBIUS SYNDROME ? DESCRIPTION SYMPTOMS CAUSE TREATMENT ... WHAT IS SMILE SURGERY ? DESCRIPTION Moebius Syndrome is a very rare disorder characterized by lifetime facial paralysis. People with Moebius Syndrome can not smile or frown. In many cases, they can not blink and have no lateral eye movement. The syndrome can also be associated with physical problems in other parts of the body. The sixth and seventh cranial nerves are not fully developed, resulting in eye muscle and facial paralysis. Movements of the face such as blinking, lateral eye movements, and facial expressions are controlled by these nerves. Many of the other may also be affected. TOP SYMPTOMS The most apparent symptoms are related to facial expressions and function. In newborn infants, the first sign is an impaired ability to suck. Excessive drooling and crossed eyes may be present. In addition, there can be deformities of the tongue and jaw, and even of some limbs, including club foot and missing or webbed fingers. Most children have low muscle tone, particularly of the upper body. Symptoms May Include Lack of facial expression; inability to smile

64. Directory :: Look.com pierre robin syndrome (4) See Also. NORD pierre robin syndrome A general discussionabout this disorder, a list of alternative names and resources. http://www.look.com/searchroute/directorysearch.asp?p=523654

65. Links To Pierre Robin And Tracheostomy Sites The Cleft Lip and Palate Association UK. pierre robin syndrome, A definition.Or search for other related sites using Google Google. Home. http://homepage.tinet.ie/~samaei/page3.htm

Links to Pierre Robin and Tracheostomy sites WideSmiles The best Cleft Lip and Palate Resource on the web Aaron's Tracheostomy Page A guide to home care for a child with a tracheostomy Pierre Robin Network A network for families of children diagnosed with PRS and information on PRS. The Cleft Lip and Palate Association - UK Pierre Robin Syndrome A definition. Or search for other related sites using Google Home

66. Mioti: Medical Condition Condition pierre robin syndrome. MEDLINEplus pierre robin syndrome.MEDLINEplus, a Medicine. NORD pierre robin syndrome. Information http://www.mioti.com/cat/condition/condition.asp?Cat=PierreRobin

67. The Health Library — Genetics And Birth Defects Pierre Robin Sequence. Pierre Robin Sequence/ComplexCleft Palate Foundation.pierre robin syndromeOMIM, NCBI. Treacher Collins Syndrome. http://healthlibrary.stanford.edu/resources/internet/bodysystems/genetics2.html

Diseases and Disorders Use these links to jump directly to your topic of interest: Birth Defects (General) Cardiovascular Defects Chromosome Disorders Connective Tissue Disorders ... Nervous System Defects Genetics and Birth Defects: Page 1 Page 3 Page 4 Page 5 Cardiovascular Defects Arteriovenuous Malformations See Cardiovascular, Arteriovenous Malformations Heart Defects See Cardiovascular, Congenital Heart Diseases Vascular Birthmarks Vascular Birthmarks:American Academy of Dermatology Vascular Malformations and Hemangiomas:Lucile Packard Children's Hospital Diagnosis and Treatment of Cutaneous Vascular Lesions:American Academy of Family Physicians Hemangiomas:Vascular Birthmarks Foundation ... Understanding Klippel-Trenaunay Syndrome:Klippel-Trenaunay Syndrome Support Group Craniofacial Abnormalities Overview of Craniofacial Anomalies:Lucile Packard Children's Hospital Craniofacial Syndrome Descriptions:Children's Craniofacial Association Craniofacial Research:National Institute of Dental and Craniofacial Research Cleft Lip and Palate Cleft Lip and Palate:MEDLINEplus Cleft Lip/Palate:Lucile Packard Children's Hospital Cleft Lip and Cleft Palate:March of Dimes Cleft Palate Fact Sheets:Cleft Palate Foundation ... Cleft Lip and Palate Surgery:American Society of Plastic Surgeons Craniosynostosis Craniosynostosis:Lucile Packard Children's Hospital Craniosynostosis:Texas Pediatric Surgical Associates Apert Syndrome:MEDLINEplus Medical Encyclopedia A Guide to Understanding Apert Syndrome:Children's Craniofacial Association [PDF]

68. Health Content Encyclopedia Article Pierre Robin Syndrome pierre robin syndrome Causes and Risk. The specific causes of Pierre Robinsyndrome are unknown; it can be part of many genetic syndromes. http://www.centralbap.com/adamcontent/ency/article/001607.asp

69. Baillement-pierre.robin with pierre robin syndrome and isolated cleft palate. Scand. Plast. http://baillement.chez.tiscali.fr/abadie-sequence-pr.html

Introduction Charcot mardi 23 oct 1888 Nouvelles conceptions en anglais ... embryologie et examen clinique Complications Que sont les tics et les tocs? Maladie de Gilles De La Tourette ... Dr Walusinski Recherche par mot du site : avec l'aide de FreeFind lexique Diagnostics Nombre (%) Anomalies chromosomiques 8 (21 %) Sd de Franceschetti 3 (7 %) Sd de Nager 1 Sd de Kabuki 1 Squelette 5 Autres 11 3. - Anatomie faciale et Pierre Robin Evaluation post-natale Gorlin R.S., Cohen M.M., Levin L.S. Syndromes of the head and the neck. 3th Ed Oxford : Oxford University Press, 1990 ; 649-68. Shprintzen R.J. The implications of the diagnosis of Robin sequence. Cleft Palate Craniofac. J., 1992 ; 29 : 205-9. Couly G Kjaer I. Human prenatal palatal closure related to skeletal maturity of the jaws. J. Craniofac. Genet. Dev. Biol., 1989 ; 9 : 265-70. Sadewitz V.L. Robin sequence : changes in thinking leading to changes in patient care. Cleft Palate Craniofac. J., 1992 ; 29 : 246-52. Abadie V., Champagnat J., Fortin G. Branchiomotor activities in mouse embryo. Neuroreport, 2000 ; 11 : 141-5. Kjaer I. Correlated appearance of ossification and nerve tissue in human fetal jaws. J. Craniofac. Genet. Dev. Biol., 1990 ; 10 : 329-36.

70. Medicalseek - Search Engine For The Healthcare Industry Conditions and DiseasesRare Disorderspierre robin syndrome Drkoop.com MedicalEncyclopedia pierre robin syndrome, a description, risks, symptoms, tests http://www.medicalseek.net/Conditions_and_Diseases_Rare_Disorders_Pierre_Robin_S

CATEGORIES ADD A LINK ADVERTISE CONTACT US ... Rare Disorders Pierre Robin Syndrome Conditions and Diseases:Rare Disorders:Pierre Robin Syndrome Drkoop.com: Medical Encyclopedia Pierre Robin syndrome, a description, risks, symptoms, tests, treatment, prognosis and possible complications. umm.drkoop.com/conditions/ency/article/0016... NORD - Pierre Robin Syndrome A general discussion about this disorder, a list of alternative names and resources. stepstn.com/cgi-win/nord.exe?proc=Redir... Pierre Robin Network Information from a network of parents and family members who have children with Pierre Robin syndrome pierrerobin.org The CaF Directory A look at what Pierre Robin Syndrome is, the causes, treatments and a support group based in the United Kingdom. cafamily.org.uk/Direct/p24.html CATEGORIES ADD A LINK ADVERTISE CONTACT US ... FORUMS

71. Rare Disorders Pierre Robin Network Your starting point for pierre robin syndromeinformation on the web. A network of parents and family members http://www.foundhealth.com/Health/Conditions_and_Diseases/Rare_Disorders/

Advertisement Foundhealth.com Search All Terms Any Term Tips Browse foundhealth.com Health calculators Fast Food Database Speakers Bureau How to evaluate sites Submit a site Contact us Home - main directory Top Health Conditions and Diseases : Rare Disorders Cyclic Vomiting Syndrome See also: Health: Conditions and Diseases: Genetic Disorders National Organization for Rare Disorders, Inc. - An organization helping people with rare disorders and disabilities. "Working toward the prevention, treatment, and cure of rare 'orphan' diseases." Site includes both a Rare Disease and Orphan Drug Database. Campylobacter Information - Frequently asked questions about Campylobacter from The Centers for Disease Control and Prevention. Canadian Organization for Rare Disorders - Committed to the enhancement of the lives of persons affected by rare disorders. Includes history of CORD and informational support network. Depersonalisation Support Forum - Sensation of feeling as if living in a dream, feeling of nothing being real, feeling detached from oneself, yet remaining aware this is just a sensation.

72. Syndromic Hearing Losses What is pierre robin syndrome? pierre robin syndrome is a dominant craniofacialskeletaldisorder. Cleft palate is often associated with this syndrome. http://www.earaces.com/syndrome.htm

Syndromic Hearing Losses What is a syndrome? A syndrome is a group of symptoms or characteristics that, taken together, identify a certain disease or disorder. Syndromes may be dominant (one or both parent's show signs of the syndrome) or recessive (neither parent shows signs, but one or both may be carriers), or may appear spontaneously. What are some syndromes associated with hearing loss? Some of the more common syndromes that have associated hearing loss include: Michel aplasia, Mondini aplasia, Scheibe aplasia, cleft palate, Down's syndrome, hemifacial microsomia, osteogenesis imperfecta, Pierre-Robin syndrome, Treacher Collins syndrome, Usher's syndrome, von Recklinghausen's neurofibromatosis and Waardenburg's syndrome. What is an aplasia? An aplasia is an abnormal development of either the bony or membranous portion of the inner ear (cochlea). There are three major types: Michel aplasia, Mondini aplasia and Scheibe aplasia: Michel aplasia is the complete absence of the inner ear and auditory nerve, resulting in total absence of hearing. It may appear in one ear (unilaterally) or both ears (bilaterally). Patients cannot be helped by either a hearing aid or a cochlear implant if the hearing nerve is absent. They may be assisted by a vibrotactile device.

73. Morten Dirch Hartvigsen: Cleft-Palate Homepage, Links pierre robin syndrome links. Søge maskiner Alta Vista søgning PierreRobin syndrome. Personlige hjemmesider (mangler). Apert Syndrome links. http://www.netby.dk/Syd/Flygelstraede/MDO/cleftlip/links.htm

LINKS go! -> go!-> Pierre Robin syndrom go!-> Apert Syndrom go! -> Home Danske links Nyheder / Nye links Feb. 2000 , publiceret af Undervisning af elever med tale-/sprogvanskeligheder MEDLINE Liste af danske Patient foreninger fra http://www.netpatient.dk/ Liv og Helse ISDN 56K-Modem ... 28K-Modem Personlige sider ( Dennis brev fra Molly Mikkel's Organisationer, behandling mm. http://www.llg.dk Patientforeningen om LLG http://www.netdoktor.dk/Patientforeninger/Fakta/laebegane.htm Rigshospitalet http://www.rigshospitalet.dk/ http://www.tandlaegebladet.dk/ Andre kilder, forskning Egmont giver 5 millioner kroner til forskning Kaare Christensen Feb. 2001 http://www.forsk.dk , Det sundhedsvidenskabelige Fakultet og Odontologi Artikel om Hunde og ganespalte fra http://www.netdyredoktor.dk Cleft Lip and Palate and Intrauterine Growth of CL/Fr Mouse Fetuses Udenlanske links Sverige http://www.lkg-stockholm.org.se Norge Leppe-/ganespalte foreningen http://www.lgs.no/ E-mail: lgs@lgs.no Bredtvet Kompetansesenter http://www.ks-bredtvet.no/fagomrader/lkg/ganespalte.htm Finland unknown England http://www.clapa.com

74. Pierre Robin Malformation From Pediatrics / Otolaryngology Pierre Robin Malformation Robin sequence (see Picture 1, Picture 2), alsoknown as pierre robin syndrome, consists of the followingMicrognathia or http://author.emedicine.com/PED/topic2680.htm

eMedicine Journal Pediatrics Otolaryngology Pierre Robin Malformation Synonyms, Key Words, and Related Terms: Pierre Robin syndrome, Robin sequence, Pierre Robin anomalad, Robin complexes, Pierre Robin malformation complex Author Information Introduction Clinical Differentials ... Bibliography AUTHOR INFORMATION Section 1 of 12 Authored by Marie M Tolarova, MD, PhD, DSc , Professor and Executive Director, UOP Craniofacial Team, Professor, Cleft Prevention Program, Department of Orthodontics, University of the Pacific School of Dentistry Coauthored by Craig W Senders, MD , Professor and Program Director, Department of Otolaryngology, University of California at Davis School of Medicine; Director, Cleft and Craniofacial Team, Department of Otolaryngology, University of California at Davis Medical Center; Alex M Espinoza, MD , Medical Director, Infant Follow-up Clinic, Department of Neonatology, Alta Bates Medical Center and John Muir Medical Center Marie M Tolarova, MD, PhD, DSc, is a member of the following medical societies: American Cleft Palate/Craniofacial Association , and American Society of Human Genetics Edited by Orval Brown, MD

75. International Craniofacial Institute - Cleft Lip And Palate Treatment Center Pfeiffer Syndrome, Pfeiffer Syndrome. pierre robin syndrome, pierre robin syndrome.Plagiocephaly and Orbit Deformity, Plagiocephaly and Orbit Deformity. http://www.craniofacial.net/before_after/craniofacial_before_after/craniofacial_

Contact Us Maps and Driving Directions Your Privacy Doctor's Area ... Before and After Pictures Craniofacial Syndromes and Deformities CRANIOFACIAL SYNDROME AND DEFORMITIES BEFORE AND AFTER PICTURES Anopthalmus with Frontonasal Dysplasia Aperts Syndrome Aplasia Cutis with Multiple Deformities Arnold-Chiari Malformation Syndrome Associated with Hydrocephalus ... Treacher Collins with External Distraction Device Anopthalmus with Frontonasal Dysplasia Preoperative frontal view of patient with hypertelorism and right microophthalmus with increased interorbital distance and nasal deformity due to frontonasal dysplasia. Postoperative frontal view at 21 years of age, 13 years after surgery. Pre and postoperative lateral views. Every patient's case is unique. Please contact us for a consultation. Contact Us Your Privacy Legal Notices Web Design by Christopher Media

76. [DYSPHAGIA] Pediatric Pierre Robin Syndrome Date PrevDate Next Chronological Thread Top DYSPHAGIA Pediatric PierreRobin Syndrome. Subject DYSPHAGIA Pediatric pierre robin syndrome; http://www.b9.com/dysphagia/1999-May/msg00157.html

77. [DYSPHAGIA] Pediatric Pierre Robin Syndrome Date PrevDate Next Chronological Thread Top DYSPHAGIAPediatric pierre robin syndrome. Subject DYSPHAGIA Pediatric http://www.b9.com/dysphagia/1999-May/msg00141.html

78. Association Tremplin Destin© aux parents d'enfants pr©sentant le syndrome de pierre robin, lieu d'information et d'©change. http://tremplin.free.fr/

Tremplin - Syndrome de Pierre Robin Association Loi 1901 - JO 16 du 17 avril 1999 Responsable du site Pierre Vandaele Pourquoi Tremplin ? Actualités ... Pour mettre en relation les parents d'enfants présentant le syndrome de Pierre Robin. Parce qu'il nous a paru important de construire un lieu d'échanges de nos expériences. la page internationale The international page la página ... nternacional L'assemblée générale de l'association Tremplin 2002-2003 aura lieu le 10 mai 2003 à l'hôpital Broussais à Paris Les nouvelles dispositions sur l'AES (Allocation d'Education Spéciale) Vous êtes adhérents à l'association Tremplin ! L' Espace Adhérent est fait pour vous. T éléchargement de la plaquette de présentation de l'association ...à diffuser ! " Je vais tout vous expliquer ", comédie en 4 actes jouée au profit de notre association à Longuenesse (62), le 26 janvier 2003 . Découvrez les photos du spectacle. Tremplin a participé au Téléthon 2002 ! Tremplin est membre d' A lliance M aladies R ares , collectif national regroupant des associations de malades atteints d'une maladie rare.

79. Virtual Children's Hospital: Paediapaedia: Pierre-Robin Syndrome Paediapaedia Neurological Diseases pierrerobin syndrome. MichaelP. D'Alessandro, MD Peer Review Status Internally Peer Reviewed http://www.vh.org/pediatric/provider/radiology/PAP/NeuroDiseases/PierreRobin.htm

Paediapaedia: Neurological Diseases Pierre-Robin Syndrome Michael P. D'Alessandro, M.D. Peer Review Status: Internally Peer Reviewed Clinical Presentation: Has severe, symmetric mandibular hypoplasia (micrognathia) that is present at birth that is coupled with a widely cleft palate that allows for backward displacement of the tongue into the pharynx obstructing the epiglottis and blocking air flow. Etiology/Pathophysiology: Have associated congenital heart disease, external ear deformities, microphthalmus, bird like faces. Also can be associated with multiple rib abnormalities - cerebro-costomandibular syndrome. Pathology: Not applicable Imaging Findings: Micrognathia DDX: Not applicable References: See References Chapter. Section Top Title Page See related Provider Textbooks about Radiology See related Provider Topics Diagnostic Imaging Procedures and Therapies or Radiology See related Patient Textbooks about Radiology See related Patient Topics Diagnostic Imaging Procedures and Therapies or Radiology Virtual Children's Hospital Home Virtual Hospital Home Site Map ... UI Health Care Home http://www.vh.org/pediatric/provider/radiology/PAP/NeuroDiseases/PierreRobin.html

80. Pierre Robin Sequence/Syndrome pierre robin SEQUENCE. A New Parents' Guide. Overview. The aim thisguide. Michelle Cruse. CONTENTS. What is pierre robin Sequence? http://www.widesmiles.org/syndrome/prs/

PIERRE ROBIN SEQUENCE A New Parents' Guide Overview The aim here is to give you an outline of Pierre Robin Sequence, some of the situations you may encounter and some direction in preraring questions to ask your child's medical team. This guide will not tell you all you need to know. Pierre Robin problems are not the same for all children and some of the information here may not be relevant to you. More information can be sought by following the links provided or, for more technically specific information, by accessing the medical journal articles listed in the reference pages. These pages are dedicated to my nephew Evan (pictured), born with Pierre Robin Sequence. With so little information easily available, a search through the medical literature was essential and has subsequently progressed to the development of this guide. Michelle Cruse. CONTENTS What is Pierre Robin Sequence? Causes Airway Management Feeding Your Baby ... On-going Reference List A-K and L-Z Personal Stories Wide Smiles Photo Gallery Back to syndromes and related conditions ... Back to Wide Smiles Home Page Author: Michelle Cruse , R.N., B.Nurs.

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