21. POST POLIO SYNDROME AN APPROACH TO THE PATIENT WITH SUSPECTED. post polio syndrome. VI. Bibliography 9. AN APPROACH TO THE PATIENT WITH SUSPECTED post polio syndrome. http://www.plee.com/pps/ppspamph.htm

AN APPROACH TO THE PATIENT WITH SUSPECTED POST POLIO SYNDROME Originally written by Dr. Warren Anderson and the Medical Advisory Board of the Post Polio Program Easter Seal Society of Oregon MEDICAL ADVISORY BOARD of the POLIO OUTREACH ADVISORY COUNCIL A Working Advisory Council to the Easter Seal Society of Washington Joshua Benditt, MD, Pulmonologist Evan Cantini, MD, Physiatrist Dianna Chamblin, MD, Physiatrist Margarette Forgette, MD, Physiatrist Bill Kelly, Physical Therapist Dennis Lang, RN, MPH, Polio Survivor Lawrence R. Robinson, MD, Physiatrist Mark Sumi, MD, Neurologist EASTER SEAL SOCIETY OF WASHINGTON 521 Second Avenue Seattle, Washington 98119 March 1995 TABLE OF CONTENTS I. Introduction - 1 A. Definition of Post Polio Syndrome - 1 B. Scope of the Problem - 1 C. Diagnostic Criteria - 1 II. Pathology: Physiologic and Clinical Consequences - 2 A. Extensive Neuronal Involvement in the Average Case - 2 B. Motor Unit Remodeling - 2 C. Decompensation Then Produces Post Polio Syndrome - 2 III. Patient Presentation - 3 A. Prime Symptoms - 3

22. Philip's Quick Start Guide To Post Polio Syndrome Information http://www.plee.com/pps/

23. Post Polio Syndrome - MossRehab ResourceNet these survivors. What causes post polio syndrome? PPS is caused of stability.How is post polio syndrome diagnosed? Doctors arrive at http://www.mossresourcenet.org/polio.htm

Quick Links ResourceNet Home Accessible Travel Fact Sheets I ... n The News Post Polio Syndrome Fact Sheet What causes Post Polio Syndrome? How is Post Polio Syndrome diagnosed? How is Post Polio Syndrome treated? What is the role of exercise in the treatment of Post Polio Syndrome? There has been much debate about whether to encourage or discourage exercise for polio survivors or individuals who already have PPS. Some doctors believe that too much exercise can worsen the patient's condition, and that rest will preserve energy. These doctors think patients will wear out their muscles by overusing them in exercise activities. However, others consider this notion unfounded and not scientifically documented. There is much misinformation on this subject and many doctors do not know what effect exercise has on individuals with PPS. A commonsense approach, in which patients use individual tolerance as their limit, is currently recommended. Tolerance is the level at which one starts having discomfort or fatigue. Researchers at the NIH are addressing the exercise issue, not only to determine if exercise is helpful, harmful, or ineffective, but also to define the most effective type isotonic, isometric, isokinetic, or repetitive. Can PPS be prevented?

24. MossRehab ResourceNet - Post Polio Syndrome Text Homepage MossRehab ResourceNet post polio syndrome Homepage.graphics version. post polio syndrome Fact Sheet. http://www.mossresourcenet.org/txtpolio.htm

MossRehab ResourceNet Post Polio Syndrome Homepage graphics version Home Accessible Travel Fact Sheets ... Translation Post Polio Syndrome - Fact Sheet Fact Sheet Organizations Internet Resources Newsgroups ... Listservs What causes Post Polio Syndrome? How is Post Polio Syndrome diagnosed? How is Post Polio Syndrome treated? What is the role of exercise in the treatment of Post Polio Syndrome? There has been much debate about whether to encourage or discourage exercise for polio survivors or individuals who already have PPS. Some doctors believe that too much exercise can worsen the patient's condition, and that rest will preserve energy. These doctors think patients will wear out their muscles by overusing them in exercise activities. However, others consider this notion unfounded and not scientifically documented. There is much misinformation on this subject and many doctors do not know what effect exercise has on individuals with PPS. A commonsense approach, in which patients use individual tolerance as their limit, is currently recommended. Tolerance is the level at which one starts having discomfort or fatigue. Researchers at the NIH are addressing the exercise issue, not only to determine if exercise is helpful, harmful, or ineffective, but also to define the most effective type isotonic, isometric, isokinetic, or repetitive. Can PPS be prevented?

25. Post Polio Syndrome, By Timothy Pesikaka - A Testimonial - Acupuncture.com A patient improves through his post polio syndrome with acupuncture and Chineseherbal medicine. This article targets consumers. post polio syndrome. http://acupuncture.com/Experiences/polio.htm

Post Polio Syndrome by Timothy Pesikaka Homepage Back In 1990 I was diagnosed as having Post Polio Syndrome after a year of extensive examinations and tests at various clinics and hospitals in and around Vancouver, British Columbia. My initial polio attack was in Scotland, thirty six years earlier and at that time I was paralyzed from the neck down. Years of Hydrotherapy and Physiotherapy got me walking again. My right leg has no movement below the knee and is about 45% above the knee. My right hip developed smaller than the left, and leg length was about three and a half inches short. I had the right leg lengthened three inches at age thirty. I was left with a number of residual effects but my initial recovery allowed me to move to Toronto, Canada, where I became a successful businessman. In 1987 I noticed that I was starting to suffer from an ever worsening fatigue that I attributed to overwork and so decided to move into semi retirement in British Columbia. My pain and fatigue became so noticeable that an accountant friend insisted I go for testing. In 1990 the doctors all concluded that I had Post Polio Syndrome and I joined the local support group. By 1992 I was reduced to four hours of good energy a day. If I attempted a fifth hour then it cost me a full day of rest. The strain on my immediate family was so bad that we decided to return to Toronto for family support. In 1994 I was referred by a friend to a practitioner of Traditional Chinese Medicine and Acupuncture, David Bray, on College Street in Toronto. He told me that he could not repair the damage done by the polio virus but that he could make me a lot more comfortable. David explained that my system was out of balance and that this could be corrected but it would take some time. I am not a cynic by nature and consider myself knowledgeable enough about my condition that I can spot a charlatan pretty quickly. I decided to give This about three months and then I would review my condition.

26. BBC - Inside Out - East - Polio BIG GEORGE Monday 14 October, 7.30pm. READ HOW post polio syndrome IS HAUNTINGPOLIO SUFFERERS. Now it's back in the form of PostPolio Syndrome. http://www.bbc.co.uk/insideout/east/prog_06/index.shtml

CATEGORIES TV RADIO COMMUNICATE ... INDEX SEARCH MONDAY 31st March 2003 Text only BBC Homepage England Inside Out ... Help Like this page? Send it to a friend! READ HOW POST POLIO SYNDROME IS HAUNTING POLIO SUFFERERS WATCH and LISTEN Listen to Robbie Johns' polio story. Watch a sufferer talking about PPS Watch a PPS sufferer talking about treatment BBC download guide ... Free Real player SEE ALSO Inside Out home page WEB LINKS Polio Fellowship International Polio Network Polio Immunisation Lincolnshire Post-Polio Library ... Polio Experience Network The BBC is not responsible for the content of external websites. FACTS Polio used to be called Infantile Paralysis. It is an infectious disease caused by one of three viruses. After initial flu like symptoms, the virus can attack the spinal cord, causing muscle paralysis, which can affect any part of the body. In the 1950s there were 45,000 cases of polio cases in the UK.

27. Post Polio Syndrome post polio syndrome Menu. This is a webforum to discuss and comment on PostPolio Syndrome. Click here to Enter a new Neurology WebForum article http://neuro-www.mgh.harvard.edu/forum/PostPolioSyndMenu.html

Post Polio Syndrome Menu This is a webforum to discuss and comment on Post Polio Syndrome. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: Oct 8, 1998 to Present Useful Websites can be found and posted here! New MGH Neurology Webforums! (12/30/99) 7:29 PM forum working OK now (12/27/99) 1:13 PM God centered post- prayer for all (12/7/99) 12:23 AM ... HELP POST POLIO (10/17/98) 10:59 AM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page.

28. THE ENVIRONMENTAL ASPECTS OF THE POST POLIO SYNDROME THE ENVIRONMENTAL ASPECTS OF THE post polio syndrome. Several subtle ancillary signs,such as rhinosinusitis were elicited in the post polio syndrome patients. http://www.aehf.com/articles/A56.htm

THE ENVIRONMENTAL ASPECTS OF THE POST POLIO SYNDROME *W.J. Rea, M. D., F. A. C. S., A.R. Johnson, D. O., **E. Fenyves, Ph. D., J. Butler, Ph. D. Introduction The environmental aspects of health and disease are becoming much more clearly defined. The adverse influences of environmental incitants on wounded target organs have often been seen by people working in the area of environmental medicine. Because of these observations a preliminary survey of environmental influences on post polio patients who exhibited the post polio syndrome was done. Materials and Methods The scientific basis for our studies is in the development of the controlled less polluted environment for testing and treating. This environmental wing is in an isolated area in the hospital designed specifically to be less polluted. All construction is done to minimize outgassing of fumes and particulates. Usually porcelain steel and ceramic tile are used for the walls and floors. No smoking, perfumes, or synthetics are allowed in the wing. All bedding materials are of natural fibers. Incandescent lights are used. The air is filtered by a series of especially designed depollution devices. (l) Nontoxic cleaning substances are generally used. Air analysis is monitored by particulate counts, gas chromatography, and mass spectrometry to assume continuous depollution. Available less contaminated drinking water is by charcoal filtration, distillation or use of natural spring water in

29. Ability Maine: Post-Polio Syndrome Guide PostPolio Syndrome Guide. The object from the outset was to assist people whowere experiencing the Late Effects of Polio including post polio syndrome. http://www.abilitymaine.org/guides/postpolio.html

Post-Polio Syndrome Guide The information below is intended to help you locate relevant health, medical and personal resources on Post-Polio Syndrome. The links are the most current that we could locate for you. We hope you find them helpful in your search for information. -Russell Anderson Ability Maine does not imply endorsement of these sites, their content or products. Use of this information is intended only for educational purposes, as reference points to prompt your search for accurate information pertaining to your personal issues around Post-Polio Syndrome. Professional advice or consultation should be sought from a qualified and licensed practitioner when inquiring about medical services. Maine Resources Post Polio Support Group of Maine (PPSGM) The Post Polio Support Group of Maine is a private, non-profit 501 [c] (3) organization. We offer the latest information on the late effects of polio to more than nine hundred polio survivors, their families, and health care providers throughout Northern New England and parts of Canada. Support for our work comes from donations from the public and from a grant furnished by the Pine Tree Society. http://www.ppsgm.org/

30. Women With Disabilities - Polio And Post-Polio Syndrome Polio and PostPolio Syndrome. Polio is States. There continue to be casesof post polio syndrome in those who have survived polio. Post http://www.4woman.gov/wwd/wwd.cfm?page=72

31. Polio/ Post Polio Syndrome Polio/ post polio syndrome. The Polio Society defines polio, short for poliomyelitis,as a disease that can damage the nervous system and cause paralysis. http://www.vsarts.org/bestpractices/dag/mobility/polio.html

Polio/ Post Polio Syndrome The Polio Society defines polio, short for poliomyelitis, as a disease that can damage the nervous system and cause paralysis . The polio virus lives in the throat and intestinal tract of infected persons. The virus attacks the nerve cells that control muscle movements . Many people infected with the virus, have few or no symptoms, and other have only short-term symptoms, such as headache, tiredness, fever, stiff neck and back, and muscle pain. More serious problems happen when the virus invades nerves in the brain and causes paralysis of the muscles used in swallowing and breathing. Invasion of the nerves in the spinal cord can cause paralysis of the arms, legs, or trunk. Polio is most common in infants and young children, but complications occur most often in older persons. Post-polio syndrome is a name given to new symptoms of increased weakness, fatigue, and muscle deterioration that occur in survivors of polio after many years of relatively stable physical condition. This syndrome typically shows up in middle age or later. Section Navigation: Best Practices About Best Practices Making your Web site Accessible Disability Awareness Guide About Disability Awareness Acknowledgements Foreword Introduction to the Disability Awareness Guide ... VSA arts Home General Navigation: VSA arts Home About VSA arts Gallery 25th Anniversary ... http://www.vsarts.org/

32. M.E./CFS Other Illnesses - Post-Polio Syndrome - Dr. Richard Bruno OTHER ILLNESSES Dr. Richard Bruno post polio syndrome and CFS. Dr.Richard Bruno is Director of The International Centre for Post http://www.meao-cfs.on.ca/illnesses/ppolio.shtml

DR. RICHARD BRUNO POST POLIO TIPS OTHER ILLNESSES Dr. Richard Bruno: Post Polio Syndrome and CFS Dr. Richard Bruno is Director of The International Centre for Post-Polio Education and Research and is also Director of the Post-Polio Institute at Engelwood Hospital and Medical Centre. Dr. Bruno is the world's leading expert on PPS. He has authored: Rehabilitation of CFS: A Multidisciplinary Approach for the 2002 Consensus Manual for the Management of Chronic Fatigue Syndrome and The Polio Paradox: Uncovering the Hidden History of Polio to understand and treat 'Post-Polio Syndrome and Chronic Fatigue After receiving a grant from the CFIDS Association of America, he conducted the first study of the pathophysilogy of chronic fatigue in children and adolescents. This study confirmed his findings from polio survivors to those with CFS: that chronic fatigue is related to impaired attention that is likely due to brain activating system damage. He was selected as one of the ten specialists to present this research at the first NIH/CDC "State of the Art Workshop" on Chronic Fatigue Syndrome in Adolescents. His most recent study is the 2001 International CFS/ME Survey that was conducted with ME pioneer Dr. Elizabeth Dowsett.

33. M.E./CFS Other Illnesses - Post-Polio Syndrome - Dr. Richard Bruno's Article OTHER ILLNESSES post polio syndrome Dr. Bruno's article. The followingarticle was published in the April 2000 Toronto Peel Post http://www.meao-cfs.on.ca/illnesses/ppolio_article.shtml

DR. RICHARD BRUNO DR. BRUNO'S ARTICLE POST POLIO TIPS OTHER ILLNESSES Post Polio Syndrome - Dr. Bruno's article The following article was published in the April 2000 Toronto Peel Post PolioNewsletter and permission was received to do a summary of their article. CHILDHOOD POLIO INFECTION MAY CAUSE CFS IN BABY-BOOMERS The Post-Polio Institute Englewood Hospital and Medical Center distributed the following Press Release dated January 11, 2000. Contact: Claudie Benjamin (201) 894-3486. A childhood poliovirus infection may cause chronic fatigue in baby-boomers concludes a paper published in the January 1, 2000, issue of the American Journal of Physical Medicine and Rehabilitation Paralytic Versus 'Non-Paralytic' Polio. A Distinction without a Difference by Dr. Richard L. Bruno, director of The Post Polio Institute at New Jersey's Englewood Hospital and Medical Center and chairperson of the International Post-Polio Task Force. However, Bruno reports that another 'mild' poliovirus outbreak did cause symptoms. In the very next year, 1948, over 1,000 Icelanders became ill with a flu-like illness causing stiff neck, some muscle weakness, and fatigue. While many of those with "Iceland Disease" recovered, some who became ill in 1948 still have fatigue today. "Iceland Disease was also apparently caused by relatively mild Type 2 poliovirus", said Bruno, "but one that did more severe and therefore more apparent damage to the brain stem - damage that caused chronic fatigue." Fifteen years of research at The Post-Polio Institute has found evidence of brain stem damage in polio survivors who have fatigue associated with Post-Polio Syndrome, including lesions on MRI of the brain, attention deficits on neuropsychologic testing, reduced levels of brain activating hormones, and brain wave slowing.

34. Post Polio Syndrome Pharmaceuticals). Also includes information on post polio syndrome. post poliosyndrome. Pharmaceuticals). Also includes information on post polio syndrome. http://www.infection-spotlight.com/post-polio-syndrome.htm

35. Symptoms Of Post Polio Syndrome Also includes information on symptoms of post polio syndrome. symptoms of postpolio syndrome. Also includes information on symptoms of post polio syndrome. http://www.infection-spotlight.com/symptoms-of-post-polio-syndrome.htm

36. Post-Polio Syndrome: A Literature Review & Case Report PostPolio Syndrome A Literature Review Case Report. An approachto the patient with suspected post polio syndrome Brochure. http://otpt.ups.edu/Gerontological_Resources/Gerontology_Manual/Todd_J.html

This document is a part of Gerontology Manual, edited by Ronald G. Stone editor School of Occupational Therapy and Physical Therapy University of Puget Sound 1500 N Warner Tacoma, WA 98416 USA OTPT Pages - University of Puget Sound Web Administrator: Ron Stone Created August 1, 1996; Last Updated August 2, 1996

37. POST-POLIO-MED@MAELSTROM.STJOHNS.EDU POSTPOLIO-MED@MAELSTROM.STJOHNS.EDU. Questions and answers about Post-Polio Syndrome(PPS). POST-POLIO-MED post polio syndrome Question and Answer Email List. http://www.lsoft.com/scripts/wl.exe?SL1=POST-POLIO-MED&H=MAELSTROM.STJOHNS.EDU

38. SupportPath.com: Post Polio Syndrome SupportPath.com, post polio syndrome. None Listed. Professional Organizations ofInterest None Listed. Clinical Trials Research on post polio syndrome http://www.supportpath.com/sl_p/post_polio_syndrome.htm

Post Polio Syndrome About Us Add-A-Link Email Gallery ... here Online Communities / Message Boards... Braintalk Communities: Post Polio Syndrome Website: Description: A part of the BrainTalk Communities website. Registration is required to post to this message board. Date Added: 06/06/2002 HealthBoards.com: Post-Polio Syndrome Message Board Website: Description: Located on the HealthBoards.com website. Only registered users may post. Date Added: 07/16/2002 Online Chats... Note: Regularly scheduled chats are listed on our NEW Online Events Calendar Links in this section are primarily to chat rooms open 24/7 which may or may not be moderated. None Listed Usenet Groups... Note: Your browser must be properly configured to access Usenet groups from this site. alt.support.post-polio Website: news:alt.support.post-polio Description: Usenet group. Date Added: 06/15/2002 Mailing Lists... None Listed National / International Organizations... None Listed Note: Groups are listed alphabetically by U.S. state and then country. None Listed None Listed Professional Organizations of Interest...

39. Diseases And Conditions -- Discovery Health -- Post Polio Syndrome If the initial bout with polio was severe, there is a greater chanceof developing post polio syndrome. There symptoms. http://health.discovery.com/diseasesandcond/encyclopedia/2945.html

post polio syndrome By Terry Mason, MPH Images (click to view larger image) Post polio syndrome (PPS) affects people who have had the poliomyelitis virus, or polio , anywhere from 10 to 40 years before. Of the 300,000 polio survivors in the US, one-quarter to one-half will have symptoms of PPS. If the initial bout with polio was severe, there is a greater chance of developing post polio syndrome. There is also a greater chance of developing more severe PPS symptoms. What is going on in the body? Individual nerve terminals in the motor units die, causing deterioration. Muscles that were already weakened by the first bout with the polio virus become even weaker. PPS is usually not life-threatening unless breathing is impaired. Post polio syndrome is not a recurrence of polio. It is a response to polio, rather than a part of it. What are the signs and symptoms of the disease? People with post polio syndrome can have fatigue , muscle and joint pain, and muscular atrophy. Atrophy means a wasting or decrease in the size of muscles. People with PPS have progressive muscle weakness. Sometimes the muscles in the spine atrophy and the symptoms mimic amyotrophic lateral sclerosis , or ALS, also known as Lou Gehrig's disease. Some people also have an intolerance to cold, and trouble with swallowing, breathing, and sleeping.

40. Post Polio Syndrome post polio syndrome. HandiTips Home Page - information for Polio and Post-Poliosurvivors who live in the Houston Texas area. post polio syndrome Responses. http://www.ability.org.uk/Post_Polio_Syndrome.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Post Polio Syndrome Handi-Tips Home Page - information for Polio and Post-Polio survivors who live in the Houston Texas area. Lincolnshire Post-Polio Network Polio Connection of America Polio treatment, prevention, and much more. Polio-PPS Bookstore Resources ... Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

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