81. Ontario March Of Dimes - Post Polio Services polio Survivors Registry polio survivors who join the polio Survivors Registryreceive a comprehensive information package on post-polio syndrome; along with http://www.dimes.on.ca/Programs/postpolio/postpolio.html

Programs and Services The John and Ruth McCarthy Post-Polio Program 2001/2002 John McCarthy had contracted polio in the summer of 1928 and was taking therapy and rehabilitation at Warm Springs, Georgia when he met another polio survivor, who would one day be President of the United States. John soon introduced "Frank" to his father Leighton, and the two men became fast friends. The McCarthy family soon became part of the foundation of the Warm Springs Rehabilitation Center, with Leighton becoming an important member of the foundation's Board. In 2001/2002, the post-polio Program is financially supported through a generous gift from Mr. John McCarthy, who along with his late wife, Ruth, experienced the debilitating effects of poliomyelitis. John and Ruth were in attendance in 1985 at the inaugural event for Ontario March of Dimes' post-polio Program: the Roosevelt Post-Polio Seminar. In 2001, we gratefully acknowledged the generosity of Mr. John McCarthy during our 50th Anniversary year. Our services include: Polio Survivors Registry - Polio survivors who join the Polio Survivors Registry receive a comprehensive information package on post-polio syndrome; along with a free subscription to our newsletter, local chapter newsletters and bulletins on news and events.

82. NINDS Post-Polio Syndrome Information Page More about NINDS postpolio syndrome Information Page. Content for thispage. NINDS post-polio syndrome Information Page. Reviewed 07-01-2001. http://accessible.ninds.nih.gov/health_and_medical/disorders/post_polio_short.ht

Disorders - National Institute of Neurological Disorders and Stroke (NINDS) Skip menus Main sections of the NINDS web site Home About NINDS Disorders-you are in this section ... Find People Disorders section pages and search Image Description Science For the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system. Select Topic Disorder Quick Links Alzheimer's Autism Cerebral Palsy Chronic Pain Epilepsy Headache Multiple Sclerosis Parkinson's Stroke Traumatic Brain Injury More about NINDS Post-Polio Syndrome Information Page Studies with patients Research literature Press release NINDS Search (search help) Contact us My privacy NINDS is part of the National Institutes of Health Contact us Content for this page NINDS Post-Polio Syndrome Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Post-Polio Syndrome? Is there any treatment? What is the prognosis? What research is being done? ... Related NINDS Publications and Information What is Post-Polio Syndrome? Post-Polio Syndrome (PPS) is a condition that can strike polio survivors anywhere from 10 to 40 years after their recovery from polio. PPS is caused by the death of individual nerve terminals in the motor units that remain after the initial polio attack. Symptoms include fatigue, slowly progressive muscle weakness, muscle and joint pain, and muscular atrophy. The severity of PPS depends upon how seriously the survivors were affected by the first polio attack. Doctors estimate the incidence of PPS at about 25 percent of the survivor population. The only way to be sure a person has PPS is through a neurological examination aided by other laboratory studies (for example, magnetic resonance imaging (MRI), neuroimaging, electrophysiological studies, and muscle biopsies or spinal fluid analysis).

83. Post-Polio Syndrome Fact Sheet postpolio syndrome (PPS) fact sheet compiled by the National Institute of NeurologicalDisorders and Stroke (NINDS). post-polio syndrome Fact Sheet. http://accessible.ninds.nih.gov/health_and_medical/pubs/post-polio.htm

Disorders - National Institute of Neurological Disorders and Stroke (NINDS) Skip menus Main sections of the NINDS web site Home About NINDS Disorders-you are in this section ... Find People Disorders section pages and search Image Description Science For the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system. Select Topic Disorder Quick Links Alzheimer's Autism Cerebral Palsy Chronic Pain Epilepsy Headache Multiple Sclerosis Parkinson's Stroke Traumatic Brain Injury More about a disorder Studies with patients Research literature Press release NINDS Search (search help) Contact us My privacy NINDS is part of the National Institutes of Health Contact us Content for this page Post-Polio Syndrome Fact Sheet Get Web page suited for printing Email this to a friend or colleague Request free mailed brochure Table of Contents What is post-polio syndrome? What causes PPS? How is PPS diagnosed? How is PPS treated? ... Where can I go for more information? What is post-polio syndrome? Post-polio syndrome (PPS) is a condition that affects polio survivors anywhere from 10 to 40 years after recovery from an initial paralytic attack of the poliomyelitis virus. PPS is characterized by a further weakening of muscles that were previously affected by the polio infection. Symptoms include fatigue, slowly progressive muscle weakness and, at times, muscular atrophy. Joint pain and increasing skeletal deformities such as scoliosis are common. Some patients experience only minor symptoms, while others develop spinal muscular atrophy, and very rarely, what appears to be, but is not, a form of amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease. PPS is rarely life-threatening.

84. Marihuana And Post-Polio Syndrome Marihuana and postpolio syndrome. by Anonymous. Before the developmentof effective vaccines, about 20,000 people developed polio http://www.rxmarihuana.com/post_polio.htm

Marihuana and Post-Polio Syndrome by Anonymous I I was born in Tanzania in 1948 and came down with a fever at the age of ten months. Ever since recovering, I have walked with a limp. According to my mother, a registered nurse, no one was sure exactly what disease it was. We usually referred to it as "sleeping sickness" (encephalitis), but recent consultations with a neurologist have persuaded me that it was polio I first used cannabis as part of the social ritual of my circle of friends in the early 1970s. I knew that it felt good, but did not connect it specifically with the treatment of post-polio syndrome until recently, when I read about its use for relief of multiple sclerosis and other neurological ailments and became convinced that it was beneficial for my symptoms. The residual effects of polio include muscle weakness, fatigue, spasms, and pain. Cannabis has an immediate effect on the strength of my right leg, the most obviously affected limb. When I am fatigued, my limp is more pronounced and my foot drags. When I smoke, my leg and foot immediately feel much stronger and the limp is less noticeable. This effect lasts at least several hours. Though I cannot provide scientific confirmation, I am convinced that my regular use of cannabis has prevented the severe symptoms reported by other polio survivors. I cannot compare cannabis with conventional drugs, since I have never had any drugs prescribed for my condition.

85. Post-Polio Syndrome/Sequelae ARTICLES ON postpolio syndrome. (new) added within past 6 months! AnApproach to the Patient With Suspected post-polio syndrome (new). http://www.hamptonroadswebsites.com/pps.html

This Month's Flyer Hampton Roads Websites Welcome to the Hampton Roads Post-Polio Support Group Web Page The Hampton Roads Post-Polio group is made up of polio survivors, and their families and friends mostly from southeastern Virginia. We meet at 2:00 PM on the third Saturday of every month of the year. I have selected many articles from other websites and seminar handouts. The following is an index of those articles. ARTICLES ON POST-POLIO SYNDROME (new) added within past 6 months! 15 Ways to Peace and Goodwill (new) Abnormal Movements in Sleep as a Post-Polio Sequelae Activity and Post-Polio Fatigue Acute Anterior Poliomyelitis, Some Observations ... PPS For more information: Hampton Roads Websites 819 Player Lane Newport News, VA 23602 US Email: pichecarterhelen@aol.com Fax: (757) 877-3576

86. Baptist Hospital East - Services - Post-Polio Syndrome Clinic The postpolio syndrome Clinic at Baptist Hospital East is designed to provide comprehensivecare to people suffering from the late effects of poliomyelitis http://www.baptisteast.com/120000.htm

87. Lichtenstein Creative Media - The Infinite Mind Post-Polio Additional information and links to resources for The Infinite Mind postpoliosyndrome. Home The Infinite Mind post-polio syndrome. Week of March 8, 1999 http://www.theinfinitemind.com/mind998.htm

88. CFS-Information International | Postpolio | Post-polio Professionally selected and organized Research on ME/CFS, Chronic Fatigue syndrome,Fibromyalgia, GWS, MCS, postpolio syndrome and overlapping syndromes. http://www.cfs.inform.dk/Postpolio/postpolio.html

C F S - Information International Post - Polio Syndrome Post - Polio Syndrome Among the syndromes "overlapping" CFS (ME/CFS), the Post-Polio Syndrome stands out. This syndrome has in fact symptoms which are indistinguishable from CFS. Polio virus induces profound changes in mitochondrial function, Kondouris et al., 2000. Dr. Bruno, director of the Post-Polio Institute, has provided interesting research on the Post-Polio Syndrome connecting CFS with this disease, Bruno et al., 1997, and Bruno et al., 1998. Dr. Bruno has expressed the view that CFS and post-polio fatigue (in baby-boomers) could be the result of childhood infection with a non-paralytic Polio virus strain, press, Post-Polio Institute, 2000 and press, Post-Polio, 2000. An 2000-article on Post-Polio appeared in the 'USA Today': press, aftereffects, 2000. Dr. Bruno answers questions on polio virus vaccine, answers, Bruno, 2001. Dr. Bruno's project 'Baby Boomers and Post-Polio/CFS' is still ongoing, Bruno, project, 2002. For a 2002-reply to a very interesting question, mail, Bruno, 2002.

89. Post-Polio Syndrome, Part I: Definition And Diagnosis postpolio syndrome, Part I Definition and Diagnosis. Application for Category1 Credit - 002093 post-polio syndrome, Part I Definition and Diagnosis. http://www.geriatrictimes.com/021031b.html

Geriatric Times Post-Polio Syndrome, Part I: Definition and Diagnosis Circle the correct answer to each question and fill out the evaluation completely to obtain 1.0 CME credits. Please answer these posttest questions to meet the requirements for AAFP prescribed credit. The correct answers are listed at the bottom of the page. The late-life health risks for survivors of acute polio include all of the following except: a. Increasing problems with mobility and greater risk of falling. b. Obstructive sleep apnea. c. Weight loss. d. Depression. The primary symptoms of post-polio syndrome include all but one of the following: a. Gradual onset 15 or more years after the episode of acute polio. b. New weakness and atrophy in muscles previously affected by polio. c. Pain and fatigue. d. Stocking-glove numbness in feet and hands. Individuals who have changes consistent with post-polio syndrome may have: a. peripheral neuropathy b. scoliosis c. carpal tunnel syndrome d. myasthenia gravis Patients with the greatest function recovery relative to the severity of their acute paralysis were at greatest risk to develop symptoms of PPMA. a. true

90. Post-Polio Syndrome, Part II: Treatment Strategies postpolio syndrome, Part II Treatment Strategies. Application for Category1 Credit - GT 002113 post-polio syndrome, Part II Treatment Strategies. http://www.geriatrictimes.com/021231b.html

Geriatric Times Post-Polio Syndrome, Part II: Treatment Strategies Circle the correct answer to each question and fill out the evaluation completely to obtain 1.0 CME credits. Please answer these posttest questions to meet the requirements for AAFP prescribed credit. The correct answers are listed at the bottom of the page. The most effective treatment for the symptoms of post-polio syndrome is . a. Rehabilitation, including nonfatiguing exercise b. Pyridostigmine c. Human growth hormone injections d. Psychological counseling Patients with PPS who achieved the best quality of life had all of the following characteristics except . a. Compliance with rehabilitation recommendations, including the use of assistive devices when appropriate b. Willingness to make lifestyle modifications c. Avoidance of learning about post-polio syndrome, because it would be too depressing d. An interest in getting involved with support groups and national organizations Of the four symptomatic medications explored for the treatment of PPS, which demonstrated no benefit in any domain? a. Pyridostigmine

91. CBS News | Post-Polio Syndrome: The Battle Continues | January 31, 2002 08:44:1 Email This StoryE-mail This Story Printable VersionPrintable VersionPost-polio syndrome The Battle Continues Jun. 5, 2001 (CBS http://www.cbsnews.com/stories/2002/01/31/health/main327647.shtml

Home America At War U.S. World ... CBS News i-Video January 31, 2002 08:44:13 The Early Show CBS Evening News 48 Hours 60 Minutes ... Section Front E-mail This Story Printable Version Post-Polio Syndrome: The Battle Continues Jun. 5, 2001 (CBS) Unlike the battle against cancer, most people probably believe the battle against polio ended decades ago with breakthrough vaccines. The disease, however, has left a hidden and cruel legacy for many who survived it. CBS medical correspondent Elizabeth Kaledin reports. Joanne Kelly's childhood was defined by polio. As a March of Dimes poster child, her ringlet-framed face often upstaged the celebrities with whom she posed. But at 13 years old, when her leg braces were removed, she never looked back. "When I went off to college, I forgot about polio," says Kelly. "I married; I became a teacher; I had a son, and the years went by. It wasn't until 1990 that I started to notice things." What she noticed was a weakening of her upper bodypains, aches, and fatiguethe hallmarks of an emerging phenomenon called post-polio syndrome. The result is that more than 1 million polio survivors, like Chris Templeton, an actress, have spent their lives overworking their already damaged nervous systems. Fifty years after the major polio epidemic, people like Templeton find their bodies are failing.

92. Post-Polio Syndrome Support Group postpolio syndrome Support Group What you need when you are not surewhat you need. post-polio syndrome Support Group. What you need http://www.expage.com/page/postpolio

Post-Polio Syndrome Support Group What you need when you are not sure what you need The Monmouth County Post-Polio Support Group holds monthly meetings to support one another and share information on this affliction. Referrals, discussions, guest speakers, and networking are some of the techniques we use to help one another cope and gain knowledge of the disease. The meetings are held approximately once a month in the Eastern Branch of the Monmouth County Library, Route 35, Shrewsbury, NJ or at Seabrooke Village, Tinton Falls, NJ, just off the New Jersey Turnpike at exit 103. The remaining meetings for the year 2002 are: September - Wednesday Sept 18th Monmouth County Library 7 p.m. October - Wednesday Oct 16th Monmouth County Library 7 p.m. November - Date to be announced: SeaBrook Village 2 p.m. Lunch @ 12:30 is optional but delicious December - Date to be announced Annual Holiday Dinner For additional information please go to Yahoo Groups and join: PPS_Monmouth_NJgroup Sign Guestbook Read Guestbook Please sign the guest book. Feel free to phone, write or email us at any time you think we can help.

93. "The Doctor Is In" | Polio And Post-Polio Syndrome This VHS videotape looks at postpolio syndrome and reviews the history of polio. polioand post-polio syndrome. Length 28 minutes Format VHS videotape http://www.dartmouth.edu/~drisin/videos/polio.shtml

Polio and Post-Polio Syndrome Length: 28 minutes Format: VHS videotape In the first half of this century, polio crippled and killed thousands of people every year in waves of epidemics. Most of them were children. Today many of the survivors are facing new problems. After years of dormancy, their pain and disability are coming back in a condition called post-polio syndrome. This program looks at post-polio syndrome and reviews the history of polio. We meet a mother and her one-year-old boy who is recovering from a rare case of polio, and we talk to Dr. Ciro de Quadros of the Pan American Health Organization about world-wide polio eradication. The show includes interviews with Dr. John Modlin of The Dartmouth-Hitchcock Medical Center and Dr. Lauro Halstead, medical director of the National Rehabilitation Hospital's Post-Polio program. Also see our collection of Health Resources To order, call toll-free (877) 884-6872, or see the How to Order page. T HE D OCTOR I S I N is a nationally syndicated television series on health. Its aim is to inform and sensitize people to a wide variety of illnesses and diseases, and to support those dealing with the challenges. For more information, contact:

94. Welcome To The International Rehabilitation Center For Polio At Spaulding Chapter 2 postpolio syndrome A Guide for polio Survivors and Their Families Withthe advent of the polio vaccines, the country's obsession with the disease http://www.polioclinic.com/chpt2.html

Learn About Polio Dr. Silver's Polio Book Table of Contents Polio A Look Back Post Polio Syndrome Critics ... FAQs Chapter 2 POST-POLIO SYNDROME A Guide for Polio Survivors and Their Families With the advent of the polio vaccines, the country's obsession with the disease ended. The vaccines were effective not only in eliminating the polio but also in erasing its prominence on political and health-care agendas. In an amazingly short time, polio was obliterated as completely as if it had never existed. Polio survivors moved on with their lives, the March of Domes went on to fight birth defects, and politicians promoted other causes. Even medical doctors, if they studied it at all, learned about polio as a historical footnote. Polio was so thoroughly expunged from out national consciousness that it did not seem possible that the nightmares of years gone by could be resurrected.

95. Post-polio Syndrome: Rerun Of An Old Problem postpolio syndrome Rerun of an old problem. And now many of thesesurvivors are facing yet another battle – post-polio syndrome. http://www.wilder.org/goodage/Health/spl801.html

Post-polio syndrome: Rerun of an old problem Bill Kosfeld Publisher tls@wilder.org Articles By Subject Features Legal Social Security Health ... Related Publications By Dr. Michael Spilane Contriburing writer The symptoms of post-polio syndrome (PPS) subtly mimic the original disease. After decades of stability, a person previously afflicted with polio develops increased weakness. The trouble predominately affects previously weakened muscles, but may be generalized and involve muscle groups previously believed to have been normal. Muscle pain and fatigue usually are present. Difficulty in swallowing and shortness of breath are less common, but more ominous. For some, the symptoms may necessitate a return to the wheelchair that was left behind many years before. All are embraced in yet another struggle to retain health and independence, and to conquer. Experts believe that about 40 to 50 percent of those who contracted symptomatic polio at an early age will develop PPS later in life. Some feel that almost all will eventually develop at least some symptoms of the syndrome. A few recent scientific studies suggest that the cause of PPS is reactivation of the polio virus after it has lain dormant for decades in the body of its victims. We know that the chicken pox virus plays this nasty trick as it awakens years later to cause shingles. But too little evidence exists to yet favor reactivated infection as the cause of PPS.

96. InteliHealth: Post-polio Syndrome referenced in an AZ format. postpolio syndrome. Health A to Z, Reviewedby the Faculty of Harvard Medical School post-polio syndrome http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/9617.html

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97. AAEM - Patient Resources - Post-Polio Syndrome Patient Resources post-polio syndrome. post-polio syndrome. polioresults in muscle weakness, in various parts of the body. Decades http://www.aaem.net/aaem/patientInfo/postpolio.cfm

Patient Resources - Post-Polio Syndrome Membership Directory Practice Issues / Advocacy Employment/Training Career Center Fellowship Listing EDX Courses Training Links ... List Rental Post-polio syndrome Polio results in muscle weakness, in various parts of the body. Decades after the initial attack, some people develop additional dysfunction. For More Information: International Polio Network - www.post-polio.org National Organization for Rare Disorders (NORD) - www.rarediseases.org To Main Patient Resources Page 421 First Avenue SW, Suite 300 East Rochester, MN 55902 Telephone: (507) 288-0100 Fax: (507) 288-1225 E-mail: aaem@aaem.net

98. LAS VEGAS REVIEW-JOURNAL: NEWS: POST-POLIO SYNDROME: Disease Strikes Twice Green's postpolio syndrome has made her weak and unable to breath normally.Photo by Jeff Scheid. post-polio syndrome Disease strikes twice. http://www.lvrj.com/lvrj_home/2002/Sep-23-Mon-2002/news/19671115.html

Advertisement Click for printable version Click to send to a friend Caroleanne Green prepares to put on her breathing apparatus while her dog, Fred II, sits on her bed Wednesday morning. Green's post-polio syndrome has made her weak and unable to breath normally. Photo by Jeff Scheid While her husband, Frank, looks on, Caroleanne Green, 65, walks with crutches. Photo by Jeff Scheid Caroleanne Green massages her aching legs in bed while she looks at a book on polio and a photo of her as the runner-up for Ms. Senior Nevada for Nye County in 1997. Photo by Jeff Scheid Monday, September 23, 2002 POST-POLIO SYNDROME: Disease strikes twice Debilitating condition attacks decades after victims defeated initial onslaught By JOELLE BABULA REVIEW-JOURNAL Pain awakens Caroleanne Green each morning. Her husband, Frank, quickly puts drops in her parched eyes, which sting because she sleeps with them open. Green, 65, suffers from post-polio syndrome. The condition has left the former jazz dancer and runway model bedridden much of the time. Many of her muscles, including those that control her eyelids and allow her to eat solid food, no longer work. "Big Mac shakes are my favorite meal," said Green, who can eat only mushy or liquefied food and often relies on a breathing machine.

99. March Of Dimes: Post-Polio Syndrome postpolio syndrome. This occurrence of weakness and fatigue, along with pain,many years after having polio, is called post-polio syndrome (PPS). http://www.noah-health.org/english/pregnancy/march_of_dimes/polio/postpolio.html

Ask NOAH About: Pregnancy Post-Polio Syndrome Public Health Education Information Sheet Introduction What Causes PPS? Who Is Most Likely To Be Affected? How Severely Affected Are Most PPS Patients? ... Where Is More Information on PPS Available? Introduction: Poliomyelitis, or infantile paralysis as it also was known, is a disease that crippled or killed thousands of people, predominately children, during the first half of this century. Today, thanks to the development of the Salk vaccine, and later the Sabin oral vaccine, with funding from the March of Dimes, polio has been virtually eliminated in areas where there is effective administration of these vaccines. Some people who had severe polio when young, usually about 30 to 50 years previously, have found their muscles becoming weaker, including muscles that were believed to be unaffected by polio. Some also are experiencing unusual fatigue, breathing difficulties, swallowing problems, sleep disturbances, and/or pain in their muscles and joints. This occurrence of weakness and fatigue, along with pain, many years after having polio, is called post-polio syndrome (PPS). Studies suggest that between 25 percent and 50 percent of polio survivors in this country have some of these symptoms. According to the National Center for Health Statistics, there are more than 640,000 polio survivors in the U.S. who report some lasting impairment from paralytic polio. However, not all individuals with one or more of the symptoms described above have PPS. Some, after medical evaluation, are found to have arthritis, tendonitis and cartilage damage, all of which can occur in the aging process but which are more common when movement and weight-bearing have been altered by the effects of weakened muscles.

100. Post-Polio Syndrome postpolio syndrome. Over 40 years ago polio was brought strike themagain. It is called post-polio syndrome (PPS). As many as 250,000 http://www.stayinginshape.com/3osfcorp/libv/i40.shtml

HEART CANCER WOMEN CHILDREN ... LOOK IT UP Post-Polio Syndrome Over 40 years ago polio was brought under control by the widespread use of two effective vaccines, one by Dr. Jonas Salk and one by Dr. Albert Sabin. (Read about " Immunizations ") But for those who got polio, there are lingering problems that could strike them again. It is called Post-Polio Syndrome (PPS). As many as 250,000 U.S. polio survivors may have PPS, the March of Dimes says, and as many as 40 percent of polio survivors may get it. Causes The National Institute of Neurological Disorders and Stroke (NINDS) says PPS is caused by the death of individual nerve terminals in the motor units that remain after the initial polio attack. The March of Dimes says the most widely accepted hypothesis is that PPS results from a degeneration of motor nerves that sprouted new connections years earlier to make up for other nerves killed by polio. Because the surviving motor nerves have been supplying many more muscle fibers than nature intended, they may wear out prematurely. The normal aging process and the overuse or disuse of muscles may be contributing factors in development of PPS.

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