41. Pregnancy And Infants' Illness Historical Posts June 1998 I too had a child with potters syndrome and although it was 14 yearsago I am still searching for answers. This is the first page http://askwaltstollmd.com/archives/preg/p061998.html

Pregnancy and Infants' Illness historical posts June 1998 Re: Potter's Syndrome Posted by Walt Stoll on June 02, 1998 at 12:18:01: Dear Georgina, Like many chronic problems, the best solution is prevention. That is a little late once the damage is done. HOWEVER, those who have had a child with this condition are a little more likely to learn how to never have something like that happen again. If everyone would read Paavo Airola, ND's classic "Every Woman's Book" (at least 2 years before conception) there would be less than 1% of the birth defects we see today. There would be much less hyperactivity, learning deficiencies and aggressive children as well. He died about 10 years ago but his family continues to keep this essential knowledge in print. There has been a lot learned in the past 10 years that, once the reader is sensitized to the process, would stick out like sore thumbs in the recent literature. Let us know what you learn. Walt Re: Potter's Syndrome Posted by Fiona Reoch on June 17, 1998 at 19:02:50: In Reply to: Re: Potter's Syndrome posted by Walt Stoll on June 02, 1998 at 12:18:01:

42. Pregnancy, Birth, Infant Care Ask Dr. Stoll' BBS There have been a few posts to the Ask Dr Stoll Bulletin Board(BB) regarding Pregnancy and Infants' Illnesses, including potters syndrome. http://www.findhealer.com/link/pregnancy.php3

M y H o l i s t i c . c o m F i n d H e a l e r . c o m Pregnancy, infant care Articles Sites Birth Page Good News Network Extensive Information and Articles relating to Midwifery Kidz are People Too (Info: Pregnancy, Childbirth, Infant Care, etc.) attachment parenting,attachment, breastfeeding,extended breastfeeding,toddlers,nursing toddlers,mothering,motherhood,Christian parenting,Christian attachment parenting,parenting,vaccinations,vaccines,babies, stay at home mom, GFI, Growing Kids God's Way,SAHM,children, Ezzo, childbirth, newborn, infant, crying, spanking, alternatives to spanking,positive discipline,breastmilk,breast milk,breast feeding,immunizations,childbirth stories,natural childbirth,pregnancy,pro-life,mommy,gentle discipline, discipline,loving guidance,bonding,Dr. Sears,ap,La Leche League, LLL,abortion,shots,Gary Ezzo,the Ezzos,William Sears,fussy baby,childcare, natural mothering,natural parenting,housewife,wife,homemaker,keeper of the home Midwifry Archives Motherstuff Web Page (Extensive! Links: Birth, Breastfeeding, Midwifes, Parenting, etc.)

43. Heaven's Tiniest Angels Page Allison Dawn Ramos February 11th, 1999 (potters syndrome) Parents Royce BonnieRamos They say it is a beautiful journey, From the old world to the new. http://www.intothearmsofangels.com/tiniest3.html

Heaven's Tiniest Angels (Page 3) Heather Marie Fred November 13th, 1999 (Cord Accident) 35 weeks Gestation ~ To My Beautiful Angel In The Sky ~ When the sky turns pink at night, just before the sunset I know you are smiling down on your father and I saying "Don't cry mommy, I am warm and safe in God's arms." I smile knowing you are safe. We had 6 great hours with you, and that will last for the rest of our lives. We hope to be with you someday, but for now you're our guardian angel watching over us. Love, Baby Larsen November 28th, 1999 (Miscarriage) 7 weeks Gestation ~ Little Footprints ~ How Very Softly You tiptoed into my world, Almost Silently. Only a moment you stayed, But what an imprint your footprints have left Upon my heart (Author Unknown) We love you little one You will never be forgotten. Emily Joann Calton November 9th, 1999 (Neural Tube Defects) 18 Weeks Gestation ~ To our Precious Baby Girl ~ Mommy and Daddy miss you very much, There is not a day that goes by that we do not think of you, We will one day get to hold you in our arms again, Until then we have you in our Thoughts and Dreams.

44. Gone To Soon, Birth ~ 10 Yrs. Memorial Page Harry George Solomon May 12th, 2000 potters syndrome 30 minutes Of Age Son Of Neiland Marcheta Solomon Brother To Cherise Tamiko and Olivia A christmas gift http://www.intothearmsofangels.com/2soon4.html

45. M.E.N.D. i have read your very sad storys i know how they feel as i to lost my first daughteri know it was 17 years ago due to her having potters syndrome she only http://www.mend.org/guests_2002.asp?range=20

46. Findsupport Directory - Unclassified : : Findsupport National Directory - Direct Trust PEX Action on Pesticide Exposure Pierre-Robin Contact Group PlanningAid Porencephaly Contact Group potters syndrome Contact Group Prader Willi http://www.findsupport.co.uk/Unclassified/

DIRECTORY - Findsupport Directory - Unclassified : To make it easier to find a relevant group, we have organised them into categories. This is still a new feature of Find support.co.uk so if you think that a group should be in a different category, or if you think categories need renaming, or restructuring, then please let us know CATEGORY Top Unclassified SUB-CATAGORIES There are no sub-categories. Please see below for a list of groups... GROUPS IN THIS CATEGORY Access Travel Action Cancer Active Women's Group Actors' Benevolent Fund ... Zoe's Place Baby Hospice Errors, or incorrect categories? Please let us know. SEARCH Use the search facility to find groups and organisations that provide support and facilitate self-help. DIRECTORY Use the directory to browse the groups and organisations by category. GO TO DIRECTORY NEWSLETTER Subscribe to the findsupport newsletter: The contents of this website are for information purposes only, and should

47. LCOG Prayer Requests As you know, her prior ultrasound in June revealed that the baby had potters syndromewhich showed a bladder that was about to perforate and burst since the http://www.lcog.net/prayerrequests/archview.asp?ID=297

48. Diet, Health, Diseases, Vitamins Iwant2bhealthy.com potters syndrome. potters syndrome CONTACT GROUP – Mrs S Bonsall,46 Borfa Green, Welshpool, Powys, SY21 7QF. · PRADERWILLI SYNDROME. http://www.iwant2bhealthy.com/supportgroups/index_p.shtml

location: support groups healthy iwant2b.com Support groups Parents Parkinson's disease Pelvic inflammatory disease Phobias ... Psoriasis Support groups quick finder Aids / HIV Anorexia Arthritis Asthma ... P Q R S T U ... X Y Z Information supplied by g-text FREEPOST NWW6775, BLACKPOOL. FY4 3GA. PACHYGYRIA contact Lissencephaly Contact Group PAGET'S DISEASE NARPD – 323 Manchester Road, Walkden, Worsley, Manchester, M28 3HH.  Tel 0161 799 4646/Fax 799 6511.  Funds medical research.  Offers information, support and advice.  director@paget.org.uk PAIN see also under Stress PAIN SOCIETY (THE ) – 9 Bedford Square, London, WC1B 3RE.  Tel 020 7636 2750/Fax 020 7323 2015.  General information on chronic pain/details of pain clinics in UK.  www.staff.ncl.ac.uk/r.j.hayes/painsoc.html PAIN WISE UK – Rosalie Everatt, 33 Kingsdown Park, Tankerton, Kent, CT5 2DT.  Tel/Fax 01227 277 993.  Group support and counselling for people with chronic pain.  Relaxation/stress reduction strategies. PALLID SYNCOPE contact Stars under Reflex Anoxic Seizures PANCREATITIS THE PANCREATITIS SUPPORTERS NETWORK – J A Armour, PO Box 8938, Birmingham, B13 9FW.  Tel/Fax 0121 449 0667.  Information and advice for patients, families and friends.

49. Welcome To The TEF / Vater® Web Site! spinabifida, hypospadia, epispadia, hydrocephally, cancer, eye and ear anomalies,teeth anomalies, missing kidneys called potters syndrome, missing brain http://www.tefvater.org/vater.html

Cardiac Home How The Heart Works PDA = Patent Ductus Arteriosis Coarctation of the Aorta ... TOF = Tetrology of Fallot AVC = Atrioventricular Canal TOA = Transposition of Great Arteries Dextrocardia HPLHS = Hypo-plastic Left Heart Syndrome Pacemaker Cardiac Catheterization Other Heart Defects Congenital Heart Defect or Disease Anal Home IA= Imperforate Anus High Imperforate Anus Low Imperforate Anus Colostomy Ileostomy Jejunostomy Cecumostomy Ace Malone Procedure Bowel Continence Bowel Incontinence Surgeries Radial Home Radial Aplasia Radial Dysplasia Missing Finger or fingers Ulnar defects Multiple Fingers (more than 5) Duplication of Fingers Duplication of Hands Pollicization Operation Ilzarod Operation Hand,arm, leg and foot defects Personal Stories Renal Home Polycystic Kidney Horseshoe kidney Kidney Reflux Ureters Bladder problems UTI- Urinary Tract Infection Bladder Exstrophy Cloaca Cloaca Exstrophy Hypospadia Epispadia Omphacele Testicle problems Male Female Oesophagus Home Oesophageal Atresia Anastamosis of Esophagus Cervical Esophagostomy Gastric Tube Replacement Intercolon Position Gastric Pullup Stretching of Esophagus Dilations of Esophagus Gastrostomy Feeding GERD=Gastro-esophageal Reflux Nissen Fundoplications Medications ... History of Oesophageal Atresia Nursing a baby with Esophageal Atresia Interview about Oesophageal Atresia First Survivors Family Stories History of esophageal replacements Scars After Surgery Trachea Home TEF= Tracheo-esophageal FistulaTOF

50. Welcome To Alicia Rose Please use the link listed below to take you to the 'potters syndrome Online SupportGroup' where you will find a wealth of Support and Information regarding http://www.angelalicia.dabsol.co.uk/

Song Playing:~ 'One Sweet Day' Our Beautiful Baby Girl ~ Alicia Rose, born March 23rd 2002, leaving for Heaven shortly after her birth. These pages are dedicated to Our Angel Alicia. We will include many of our most 'treasured photographs' and 'memories' of our precious angel Daughter. Please use the links below to take you through 'Alicia's Treasured Memories'. ~ Our Story ~ (Coming Soon) Our Photos Alicia's Portrait Notice in Newspaper Reflections at Alicia's Memorial UPDATE PAGES Alicia's Online Quilt Please be sure to visit our Alicia's Beautiful 'Online Quilt' sewn especially by Tina from ~ Spreading Smiles ~ Alicia's 1st Heavenly Birthday Wishes * New ~ March 23rd 2003 Please sign our Guest~Book before you leave and tell us a little about yourselves and how you came to meet ~ 'Our Precious Little Angel' ~ 'Alicia Rose'. Please use the link listed below to take you to the 'Potters Syndrome Online Support Group' where you will find a wealth of Support and Information regarding this devastating disease, a Support Group for families worldwide.

51. The Story Of Baby Alica Rose... potters syndrome is an extremely rare condition where the unborn baby's kidneysdo not develop properly and thus don't produce any fetal urine, also known as http://alicia.rose.nettgen.home.mindspring.com/OurStory.htm

The Story of Alicia Rose.. Our beloved baby girl, lost to Potter's Syndrome Home Our Story Alica's Birth The Memorial ... Links We have endured a few rough times in our young lives. My wife and I lost our firstborn children, twins Jonathon and Julia, who were born prematurely in September 1997. Two years later we found great joy in the birth of our healthy daughter, Maria, only to have that joy assaulted by the sudden death of my wife's father from a heart attack at the young age of 59 just 12 days later. Thank God he at least was able to spend four days with us and get to know his baby granddaughter, Maria, before he passed away. It was the summer of 2001 and we were excited when we found out that we were going to have another baby. Having fought infertility the first five years of our marriage and in our late 30's, we were overjoyed to know we were expecting a third time. And then on December 14th of that year tragedy struck us again - we were told that our as yet unborn baby would die shortly after birth because of a rare condition commonly referred to as "Potter's Syndrome." Potters Syndrome is an extremely rare condition where the unborn baby's kidneys do not develop properly and thus don't produce any fetal urine, also known as amniotic fluid. Without this fluid, a cascade of developmental events can't occur during pregnancy, most notably the development of functional lungs with which to breath.

52. Heavenly Lights Childens Memorial Page 7 Kathleen Renee Leukemia 4/28/75 8/22/82. Christal Gayle Gibson Cerebral Palsey2/23/79 8/6/01. Abigail Chrystal Kuzel potters syndrome 3/30/02 3/30/02. http://www.heavenlylights.homestead.com/page7.html

Christopher Roe Acute Lymphocytic Leukemia Aspyn Remar Block ... Cameron Jacob Bryan Heavenly Lights Childrens Memorial Contact the webmaster, with suggestions, comments or questions by the email button above. Best experienced with Internet Explorer. 800 x 600 pixels optimized Childloss Support also includes weekly free newsletter and Light A Candle dedication, Topsites for grieving families, grief poetry, online memorial of stars, death quotes, bereavement resources, grief links, poetry to help the fight for better cures, Childhood Cancer Awareness, cancer/leukemia resources, inspirational poetry, and more. You are listening to 'The Dance' Heavenly Lights Childrens Memorial/Home Index Page Ways To Make A Difference Cancer Leukemia Resources ... Memorial Christmas Stockings by Heavenly Lights To Us You Will Exist To us you will exist in the flowers in the trees and all things of nature God has given us. You are now in a world of peace and happiness forever. Pray for us as...we pray for you, and somewhere...sometime we will join. Author Unknown This star is in loving memory of Jacob...

53. Heavenly Lights Children's Memorial - Master Of All Children Who Have Lost Their Page 1. Kull, Zackery, MDS, 5/14/906/3/02, Page 7. Kuzel, Abigail Chrystal,potters syndrome, 3/30/02-3/30/02, Page 7. Ladner, Haley Brianna, http://www.heavenlylights.homestead.com/listing.html

This is the master index page to all children who have a star displayed in their loving memory on Heavenly Lights Childrens Memorial. This list is alphabetical by the childs last name. It also displays the cause of death, dates, and the page they are located on the memorial. You can go to all other pages of the memorial from the links above....once you find the page # Heavenly Lights Childrens Memorial/Home Index Page Ways To Make A Difference Cancer Leukemia Resources ... Memorial Christmas Stockings by Heavenly Lights Begin HTML566> Alphabetical Disease Dates Page # Aarvig, Skyler Edward Primary Pulmonary Hypertension Page 3 Adelman, Paul Ependymoma Brain Tumor Page 9 Al-Fuwaires', Yousef Thalassemia Page 9 Alimentato, Sam Non Hodgkins Lymphoma Stage 3 Page 5 Allen, Michael Anthony GvH Chediak-Higashi Page 9 Alt, Joshua Aaron CML Page 5 Amore, Ashley Elizabeth Williams Syndrome Page 5 Anastasi, Connell Nicholas Anaplastic Astrocytoma Brain Tumor Page 5 Anderson, Chayton Hunter Rhabdoid Brain Tumor Page 6 Anderson, William Joseph Neuroblastoma Page 4 Andreu, Megan Breanne

54. In Memory Of Anna Guilbert's Dreambook I lost my son to potters syndrome on March 3,2002.I have never experinced anything as painfull. I found your site, while looking up potters syndrome. http://books.dreambook.com/guilbert/anna.html

In Memory of Anna Guilbert Welcome to Dreambook , a nifty new free service from: New Dream Network Dreamhost , and Dreamservers If you have a minute, please sign my Dreambook too! Name: Amanda Mabey E-mail address: beloved140@hotmail.com Comments: I came across your website well looking for other moms with twins. As I read that your daughter Anna is now a big sister to twins. I recently had boy/girl twins, born prematurely but now doing great. My room mate in prenantal(hospital bed rest for a month before babies were born) had her baby too early. She took me to vist him in the NICU when he was barely a day old. 2 wks later he was call to Heaven. Now 6 months have passed and I still find myself in tears whenever I am reminded of him. Death is unfair excepially when it is a child. My deepest sympathys go to u and your family and at the same time Congradulations on the Birth of your Twins. God works In Weird Ways. Monday, January 27th 2003 - 07:37:56 PM Name: tracy E-mail address: abbydoo_uk@yahoo.co.uk Comments: Dear Kelly and Ian On reading your special words about the lost of your daughter Anna, i couldn't help thinking that i am so very lucky not to have had to go through the pain you have both gone though.You have been so very brave and strong, your memories and pictures of your angel can never be taken from you and i am sure when you time comes she will be waiting for her mummy and daddy with all her friends and family too.Good luck with the twins, i hope everything goes well for you both. Take care and enjoy every second with your new arrivals. ((((Hugs))))

55. Garden 16 In Memory Adrian Paul Devenish 25th August 1999 Died from potters syndrome nokidneys 18 weeks Always remembered and sadly missed by Mommy and Daddy. http://www.kaylan.addr.com/lmma.htm

In Memory Carly Suzanne Our sweet baby girl. Crowned without conflict. In Memory James Daniel Clay Baby Chance I am so sorry that I am , in some way, responsible for the ending of your precious lives. If I could go back I would change everything. Every day I will cry a million tears for you. Every day I will regret that I made you and then recklessly took your lives. I cannot ask for your forgiveness, because I am undeserving. I know that when I die myself, I will pay for what I have done. You must know that I love you both and I hope that you do not hate me. Love, Your Mommy In Memory Baby Jack Dodd Miscarried October 25, 2000 Baby Lily Dodd Miscarried mid July 2001 Sleep little ones until we can all be together again. The circle of love cannot be broken. Love, your family. In Memory Dominic Benjamin Born into the arms of Jesus on July 4, 2001

56. Garden 14 mother's life. Joe Fuller. In Memory Jonathan Gage Carson B/D date July25, 1997 Was born without kidneys potters syndrome . In Memory http://www.kaylan.addr.com/jmme.htm

In Memory Scott Michael Carr January 16, 1989 My Precious Little One, I will always keep you in my heart and forever feel you in my arms. From your Great-Grandma, who's arms now cradle you in Heaven. (7-3-00) One little rose for a child that would have made a difference in his mother's life. Joe Fuller In Memory Jonathan Gage Carson B/D date: July 25, 1997 Was born without kidneys "Potters Syndrome" In Memory Hannah Elizabeth Carver Stillborn: April 16, 1997 at 26 weeks How softly you tiptoed into my world. Almost silently, Only a moment you stayed. But what an imprint Your footsteps have left upon my heart. We miss your very much, Love, Daddy , Mommy your big brother Justin and your new brother Hunter From your brothers, Justin and Hunter and Mommy We miss you and love you very much! In Memory Antoinette Marie Casalaspro Lost: October 23, 1995

57. MISS - Support Group Information In May 2000, 19+weeks pregnant, the little girl I was carrying was diagnosed withpotters syndrome/ Renal Agenesis(no kidneys)and I gave birth to her with no http://www.missfoundation.org/friends/mfbaus00.html

M.I.S.S. Friends - Biographies Australia Return to State / Country Index "Add Me To The List" Melissa Richardson Australia I had a stillborn baby girl in 1996 at 27 weeks gestation. She was diagnosed with a rare kidney disease. Then in 1997 I had a miscarriage at 11 weeks gestation. Return to our contact info on The M.I.S.S. Friends List Cheryle-Anne New South Wales, Australia I am a Mother of a baby girl Courtney whom was STILLBORN at 36 weeks. I would like to have contact with others who have gone through such tragedies in there lives. After all we are now joined by our PRECIOUS little ANGELS in HEAVEN with the ANGELS. Return to our contact info on The M.I.S.S. Friends List Marie Hopkins Queensland, Australia In May 2000, 19+weeks pregnant, the little girl I was carrying was diagnosed with Potters Syndrome/ Renal Agenesis(no kidneys)and I gave birth to her with no hope of survival. Please contact me if you have had/having a similar experience. Return to our contact info on The M.I.S.S. Friends List Return to State / Country Index "Add Me To The List" - Other places in this area - MISS Groups Home Page Find A MISS Group In Your Area Find A MISS Support Group Find Other Types Of MISS Support Groups More about the M.I.S.S. Foundation

58. Zachary A memorial page for our son, Zachary, who died ofBilateral Renal Agenesis (potters syndrome). http://www.voglewedefamily.homestead.com/zachary.html

Javascript is either disabled or not supported by this browser. This page may not appear properly. My pictures Poetry About Me Meet my sister Ashton ... Gifts and Awards Zachary Charles Voglewede October 8 1999 7:58 pm-9:25 pm Bilateral Renal Agenesis (Potters Syndrome Some people only dream of angels, We held on in our arms. I'll Be There Daddy please don't look so sad, Momma please don't cry, Cause I am in the arms of Jesus and He sings me lullabies. Please try not to question God, Don't think He is unkind. Don't think He sent me to you, And then He changed His mind. You see, I am a Special Child, And I am needed up above, I'm the special gift you gave Him, The product of your love. I'll always be there with you, And watch the sky at night Find the brightest star that's gleaming, That's my halo's brilliant light You'll see me in the morning frost, That mists your windowpane. That's me, in the summer showers, I'll be dancing in the rain. When you feel a gentle breeze, From a gentle wind that blows, That's me, I'll be there, Planting a kiss on your nose. When you see a child playing

59. Homebirth Association Of Ireland ended in a miscarriage, the second in Ferdia's high intervention delivery and thethird in Phelim's death at home as a result of potters syndrome, which is http://www.iol.ie/~hba/amyhazelmulvanyobrolchain.htm

Home Birth Association of Ireland 21st Anniversary Personal Experiences of Homebirth Birth Account of Amy Hazel Mulvany O'Brolchain 29th September 1997 Mother Niamh Mulvany Midwife Mary Cronin D eciding to try for another baby was not a decision we took lightly. My first pregnancy ended in a miscarriage, the second in Ferdia's high intervention delivery and the third in Phelim's death at home as a result of Potters Syndrome, which is incurable. I I 'm not a fan of ante natal check ups but Bridget made them bearable and I liked her informal antenatal classes, even though this was my fourth pregnancy there was a lot I could learn. This pregnancy felt different from the start. My energy was good even in the mornings. I did not want a scan as I strongly felt that if there was anything wrong with this baby there was nothing that could be done before birth. I heard the baby's strong heartbeat for the first time at 14 weeks when Bridget used her sonic aid. I was a happy person going home that day. A bout five months into the pregnancy we knew for certain that we would be moving to Cork. We decided that a move before the baby was born might be less stressful than after, based on experience. I relaxed when Bridget was able to recommend the midwives in Cork with whom she had previously worked. We contacted Mary Cronin and I met her at 28 weeks of pregnancy and I was once again relieved that she took us on. We had only met a couple of times when Mary left for her much deserved five weeks holiday.

60. JohnPetersAngelFriendsWall Abigail Chrystal Kuzel One Hour Old Born ~ March 30th, 2002 Flew ~ March 30th,2002 Cause ~ potters syndrome Parents ~ Kenneth and Chrystal and Big Sister http://www.johnpeter.net/JohnPetersAngelFriendsWall.htm

Music Control To add your Angel please click on the graphic above. John Peter Twenty Seven Weeks Gestation Born ~ March 23rd, 2002 Flew ~ March 22nd, 2002 Cause ~ Unknown Parents ~ Ron and Kathleen You are in every breathe we take and nestled Forever in our Hearts!! We will hold you again, one day, until then our Hearts Will!! Joseph Benjamin Mazziotta Full Term Born ~ February 28th, 1981 Flew ~ February 28th, 1981 Cause ~ Thrombosis of the Cord Parents ~ JoLynn and Joe Mazziotta Among God's Rose Garden, he needs buds too. Douglas Seventeen Weeks Gestation Born ~ November 27th, 1999 Flew ~ November 27th, 1999 Cause ~ Unknown Parents ~ Amy I Love You Douglas!! William Thirty Minutes Old Born ~ March 3rd, 2001 Flew ~ March 3rd, 2001

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