1. The Progeria Research Foundation Homepage progeria Research Foundation conducts the support of Medical Research,Promotion of Education and Awarness, and Fundraising. http://www.progeriaresearch.org/

About PRF What is Progeria? Hero Highlights Medical Research In Memory of Patient Registry PRF Cell Bank How Can I Help? Donate Here "Get Ready for Night of Wonder 2003!" Click Here Last Updated: 3/15/2003 The Progeria Research Foundation, Inc.

2. Home Forum for the discussion and dissemination of information relating to HutchinsonGilford progeria Syndrome, created in the hope that people with family and friends affected could keep in touch, and be aware of the latest information. http://www.progeria.org/

Look for Sunshine in your travels! Thanks to the generosity of Clear Channel JC Decaux , and the hard work of TKO Visual Communication , we will be spreading the word about Sunshine in airports nationwide! A GLAMOUR-FILLED DREAM FOR THIS 20 YEAR OLD! 20 year old Jenn, who suffers from osteosarcoma, received a make over and glamour shots as her dream from Sunshine! Check out her before picture below! 40 Wishes for 40 Years! In honor of their fortieth anniversary, Roman, Inc. is partnering with Sunshine Foundation to grant the dreams of forty deserving children through the sales of their special Sunshine Collection. To learn more about the collection, visit the Roman, Inc. website! Only 1 in 8 million children suffer from Progeria...Help them see they're not alone! This year's Progeria Reunion will be here before we know it! Each year, children with Progeria and their family members from all over the globe get together for fun and friendship through the Sunshine Foundation. To find out more about this yearly event and how you can be a sponsor, view our Progeria page or e-mail us at Philly@sunshinefoundation.org.

3. The Progeria Research Foundation - About PRF What is progeria? THE progeria SYNDROME FACT SHEET Click here to viewprogeria Publications Abstracts. Written NY. WHAT IS progeria? http://www.progeriaresearch.org/whatIs/whatis.htm

About PRF What is Progeria? Medical Research Patient Registry ... Hero Highlights What is Progeria? THE PROGERIA SYNDROME FACT SHEET Written by W. Ted Brown, MD, PhD Professor and Chairman, Dept. Of Human Genetics NYS Institute for Basic Research Staten Island, NY WHAT IS PROGERIA? Progeria is a rare genetic condition characterized by an appearance of accelerated aging in children. Its name is derived from the Greek and means "prematurely old." The classic type is the Hutchinson-Gilford Progeria Syndrome which was first described in England in 1886 by Dr. Jonathan Hutchinson and again in 1886 and 1904 by Dr. Hastings Gilford. HOW COMMON IS PROGERIA? The classic syndrome has a reported incidence of about 1 in 8 million newborns, and the total incidence is estimated to be about 1 in 4 million. It affects both sexes equally and all races. Since first described, more than 100 cases have been identified around the world. In this decade, children with progeria have been reported in Algeria, Australia, Austria, Canada, China, England, France, Germany, Mexico, Puerto Rico, South Africa, South America, Switzerland, Turkey, the United States, Venezuela, and Vietnam. WHAT ARE THE FEATURES OF PROGERIA?

4. OMIM ENTRY 176670 Article reviews cases of this disorder of premature aging and implies it might be inherited. Read about twins and siblings with progeria. http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176670

5. Progeria (Hutchinson-Gilford) Syndrome a CHORUS notecard document about progeria (HutchinsonGilford) syndrome http://chorus.rad.mcw.edu/doc/00334.html

CHORUS Collaborative Hypertext of Radiology Multisystem entities Feedback Search progeria (Hutchinson-Gilford) syndrome premature aging in children normal at birth "wizened old man": alopecia, atrophy of muscles and skin atherosclerosis ==> coronary artery disease dwarfism abnormal facies: receding chin, beaked nose, exophthalmos Findings: acro-osteolysis hypoplastic facial bones + sinuses open cranial sutures + fontanelles, Wormian bones coxa valga Charles E. Kahn, Jr., MD - 2 February 1995 Last updated 14 March 2001 Medical College of Wisconsin

6. Index „gnar sig ¥t fastighetsf¶rmedling och fortbildning. http://www.progeria.se/

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7. Progeria / The Family Village Also known as HutchinsonGilford progeria Syndrome Who to Contact Since 1976 The Sunshine Foundation® has fulfilled over 23 500 dreams and wishes for chronically ill, terminally ill, and abused children. http://www.familyvillage.wisc.edu/lib_prog.htm

Progeria Also known as Hutchinson-Gilford Progeria Syndrome Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Progeria" Who to Contact Sunshine Foundation Dream Village (Main Office) 5400 C.R. 547 North P.O. Box 255 Loughman, FL 33858 E-mail: florida@sunshinefoundation.org Website: http://www.sunshinefoundation.org/progeria.htm Since 1976 The Sunshine Foundation® has fulfilled over 23,500 dreams and wishes for chronically ill, terminally ill, and abused children. Whether it's a visit with a celebrity hero, a family outing, a trip to Disney World® or a special gift Sunshine has never said "no" to a deserving child. The majority of wishes Sunshine fulfils are to visit Central Florida attractions. Therefore in February of 1990 Sunshine opened the doors of its' Dream Village and since then approximately 1000 special children and their families have enjoyed the facilities at this special place for special children. In a fairytale like setting with a gingerbread facade, the Sunshine Foundation Dream Village is a place where children and their families stay while they briefly forget the pain and suffering that is part of their everyday lives. In addition, each year Sunshine sponsors a worldwide reunion of children suffering from Progeria. The Progeria Reunion gives those children suffering from this rare disease the opportunity to meet and get to know others with this rare genetic disease. International Progeria Registry W.T. Brown, MD, Ph.D.

8. Progeria Syndrome progeria syndrome information, national and international support groups, clinics with genetic counselors, geneticists Syndrome, Werner Syndrome, Cockayne Syndrome, RothmundThomson Syndrome). progeria Research Foundation. P.O. Box 3453 http://www.kumc.edu/gec/support/progeria.html

Progeria syndromes (Hutchinson-Gilford Syndrome, Werner Syndrome, Cockayne Syndrome, Rothmund-Thomson Syndrome) Progeria Research Foundation P.O. Box 3453 Peabody, MA 01961-3453 Phone: 978.535.2594 Fax: 978.535.5849 E-mail: progeria@netzero.net Web site: www.progeriaresearch.org/ Friends of Progeria Foundation , Huron, SD The Sunshine Foundation (for children with terminal, chronic illnesses such as progeria, dedicated to making the dreams of these children possible) 1041 Mill Creek Drive Feasterville, PA 19053 Phone: 1.800.767.1976 or 215.396.4770 Fax: 215.396.4774 E-mail: philly@sunshinefoundation.org Web site: www.sunshinefoundation.org/ Sunshine Foundation, Dream Village PO Box 255, 5400 C.R. 547 North Loughman, FL 33858 Phone: 800.457.1976 or 863.424.4188 Fax: 863.424.4360 E-mail: florida@sunshinefoundation.org Web site: www.sunshinefoundation.org/dream_village.htm Sunshine Foundation, Volunteer Chapters California, Colorado, Delaware, District of Columbia, Georgia, New Jersey, Pennsylvania, West Virginia Black Hills (PO Box 5009, Rapid City, SD 57709-5009, Phone: 605.393.0426, Fax: 605.393.1369, Fax On Demand: 605.393.0426, option 10)

9. Index Overview of the rare disorder, symptoms, and experiences of children with progeria and their families. http://www.progeriafamilycircle.de/

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10. Hutchinson-Gilford Progeria Syndrome Network Provides an overview of the disease as well as links to resources. http://www.laze.net/progeria/index.html

@import "/hgps.css"; Introduction Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease that accelerates the aging process to about seven times the normal rate. Because of this accelerated aging, a child of ten years will have similar respiratory, cardiovascular, and arthritic conditions that a 70-year-old would have. Currently, there is no cure for this disease, and because of its rare nature, no definitive cause can be pinpointed. Progeria affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) children, with a total reported incidence of just over 100 in the century since it's been identified. There are currently between 30 and 40 known cases worldwide of Progeria. Children from all races and cultures from around the world have been affected. Some physical features of Progeria children include dwarfism, wrinkled/aged-looking skin, baldness, and a pinched nose. Mental growth is equivalent to other children of the same age. Most children with Progeria live no longer than their early teenage years, though one or two have lived to be as old as 20 or 21. ... more about Progeria and this site Latest News and Updates Tue, 11 Mar 2003

11. Hutchinson-Gilford Progeria Syndrome Network Outline of this genetic aging disease, with an information section, news, and links to related sites. HutchinsonGilford progeria Syndrome is an extremely rare genetic disease that accelerates the aging process to about http://www.laze.net/progeria

@import "/hgps.css"; Introduction Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease that accelerates the aging process to about seven times the normal rate. Because of this accelerated aging, a child of ten years will have similar respiratory, cardiovascular, and arthritic conditions that a 70-year-old would have. Currently, there is no cure for this disease, and because of its rare nature, no definitive cause can be pinpointed. Progeria affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) children, with a total reported incidence of just over 100 in the century since it's been identified. There are currently between 30 and 40 known cases worldwide of Progeria. Children from all races and cultures from around the world have been affected. Some physical features of Progeria children include dwarfism, wrinkled/aged-looking skin, baldness, and a pinched nose. Mental growth is equivalent to other children of the same age. Most children with Progeria live no longer than their early teenage years, though one or two have lived to be as old as 20 or 21. ... more about Progeria and this site Latest News and Updates Tue, 11 Mar 2003

12. Hutchinson-Gilford Progeria Syndrome Network Introduction. HutchinsonGilford progeria Syndrome is an extremely rare genetic diseasethat accelerates the aging process to about seven times the normal rate. http://www.hgps.net/

@import "/hgps.css"; Introduction Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease that accelerates the aging process to about seven times the normal rate. Because of this accelerated aging, a child of ten years will have similar respiratory, cardiovascular, and arthritic conditions that a 70-year-old would have. Currently, there is no cure for this disease, and because of its rare nature, no definitive cause can be pinpointed. Progeria affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) children, with a total reported incidence of just over 100 in the century since it's been identified. There are currently between 30 and 40 known cases worldwide of Progeria. Children from all races and cultures from around the world have been affected. Some physical features of Progeria children include dwarfism, wrinkled/aged-looking skin, baldness, and a pinched nose. Mental growth is equivalent to other children of the same age. Most children with Progeria live no longer than their early teenage years, though one or two have lived to be as old as 20 or 21. ... more about Progeria and this site Latest News and Updates Tue, 11 Mar 2003

13. About Progeria And HGPS.net [HGPS.net] Home About. About progeria. HutchinsonGilford been identified. Thereare currently between 30 and 40 known cases worldwide of progeria. http://www.hgps.net/about/

@import "/hgps.css"; Home About Progeria Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease that accelerates the aging process to about seven times the normal rate. Because of this accelerated aging, a child of ten years will have similar respiratory, cardiovascular, and arthritic conditions that a 70-year-old would have. Currently, there is no cure for this disease, and because of its rare nature, no definitive cause can be pinpointed. Progeria affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) children, with a total reported incidence of just over 100 in the century since it's been identified. There are currently between 30 and 40 known cases worldwide of Progeria. Children from all races and cultures from around the world have been affected. Some physical features of Progeria children include dwarfism, wrinkled/aged-looking skin, baldness, and a pinched nose. Mental growth is equivalent to other children of the same age. Most children with Progeria live no longer than their early teenage years, though one or two have lived to be as old as 20 or 21. Progeria was first described by Dr. Jonathan Hutchinson in 1886 and Dr. Hastings Gilford in 1904. There is still no cure and due to the extreme rarity of the disease, it's exact cause is not known (though it has been determined to be genetic rather than environmental).

14. The Progeria Research Foundation Homepage Medical research, education, support, and fundraising for this premature aging disease. http://progeriaresearch.org

About PRF What is Progeria? Hero Highlights Medical Research In Memory of Patient Registry PRF Cell Bank How Can I Help? Donate Here "Get Ready for Night of Wonder 2003!" Click Here Last Updated: 3/15/2003 The Progeria Research Foundation, Inc.

15. Home Forum for the discussion and dissemination of information relating to HutchinsonGilford progeria Category Health Conditions and Diseases Rare Disorders progeria...... website! Only 1 in 8 million children suffer from progeria Help them see they'renot alone! This year's progeria Reunion will be here before we know it! http://www.sunshinefoundation.org/

Look for Sunshine in your travels! Thanks to the generosity of Clear Channel JC Decaux , and the hard work of TKO Visual Communication , we will be spreading the word about Sunshine in airports nationwide! A GLAMOUR-FILLED DREAM FOR THIS 20 YEAR OLD! 20 year old Jenn, who suffers from osteosarcoma, received a make over and glamour shots as her dream from Sunshine! Check out her before picture below! 40 Wishes for 40 Years! In honor of their fortieth anniversary, Roman, Inc. is partnering with Sunshine Foundation to grant the dreams of forty deserving children through the sales of their special Sunshine Collection. To learn more about the collection, visit the Roman, Inc. website! Only 1 in 8 million children suffer from Progeria...Help them see they're not alone! This year's Progeria Reunion will be here before we know it! Each year, children with Progeria and their family members from all over the globe get together for fun and friendship through the Sunshine Foundation. To find out more about this yearly event and how you can be a sponsor, view our Progeria page or e-mail us at Philly@sunshinefoundation.org.

16. Progeria Reunions progeria Reunions. In Pinocchio. During his visit to the United States,three other children, also suffering from progeria, met with him. http://www.sunshinefoundation.org/progeria.htm

Progeria Reunions In 1981, the Sunshine Foundation had been in existence for six years and had handled approximately 500 special dreams of seriously ill, chronically ill, and physically challenged children. It was brought to Sunshine's attention via a newspaper article that a young boy in South Africa, named Fransie, had a dream to visit Pinocchio. The inspiration for this dream came from this boy seeing himself in a mirror. Because of his wooden appearance, he felt in some way related to Pinocchio. Having read the article, Sunshine embarked on making yet another dream come true, unaware that this particular endeavor would bring about the knowledge of a very rare illness to the world. Fransie had his dream come true in December 1981. The Sunshine Foundation flew Fransie and his family to Disneyland where he saw Pinocchio. During his visit to the United States, three other children, also suffering from Progeria, met with him. Sunshine began receiving correspondence from other families whose children had similar characteristics. That following June, 1982, Sunshine sponsored the first gathering of all known children suffering from Hutchinson-Gilford Progeria, a rare aging disease. At that first reunion, eight Progeria children and their families gathered at Greenway Lodge in the Pocono Mountains of PA. Since that time, Sunshine has sponsored 20 Annual Progeria Reunions, touching the lives of these special children forever. The reunions give these children a week to enjoy with other children like themselves. The time they spend together is not only fun, but it is something that gives them strength and a sense of anticipation in looking forward to the next year.

17. Lori And Ashley Hegi's Website Pictures, information, and updates about Ashley, her experiences with progeria, and her mom, Lori. http://www.geocities.com/lori_and_ashley/

Home Info What's new In The News ... Links Welcome to Lori and Ashleys website Progeria Facts Progeria is a very rare terminal condition. Derived from the Greek, it means "prematurely old" and is characterized by an appearance of accelerated aging. Progeria, first described in England in 1886, affects both males and females of all ethnic backgrounds. Only one in eight million babies is born with progeria, and only one in four million people contact the disease later in life. Progeria of the adult is called, Werner's Syndrome. Children with progeria have delayed tooth formation, aged-looking skin, baldness and characteristics of dwarfism. Because of this, they all tend to look alike. Along with their unusual appearance, they can suffer from stiff joints, hip dislocation problems, nosebleeds, head aches artheriosclerosis, and cardiovascular problems. Their bodies actually age eight to ten years for every year they are alive. Ironically, they are often of above-average intelligence. Kids about two years old start to exhibit signs of progeria by a tightness of the skin, a failure to gain weight, hair loss and other physical characteristics. At this point the physicians and parents recognize a problem and the diagnosis of progeria is made. Researchers are baffled as to what causes this disease and at this time, there is no cure and no treatments. The average life-expectancy for a child with progeria is 13 years.

18. Hayleys Progeria Page Look out for a special announcement about the 2003 progeria Reunion ComingSoon! Happy New Year! prf sunshine hgps . . .. Hayley's progeria Page. http://markandkez.homestead.com/web.html

Click here webmaster : m@rk Our TV documentary is on TV in the UK on 2nd April. Click here for details. The new galleries are now open! Please let us know what you think. We are unable to reply to every e-mail personally, but every one is read and very much appreciated. Click here for a special announcement about the 2003 Progeria Reunion. Our TV documentary is on TV in the UK on 2nd April. Click here for details. The new galleries are now open! Please let us know what you think. We are unable to reply to every e-mail personally, but every one is read and very much appreciated. Click here for a special announcement about the 2003 Progeria Reunion. Progeria is a disease that makes my body get older 8 times faster than ordinary people. It is very rare and there are just 4 kids in the UK and only about 40 around the world. The average lifespan of children with Progeria is about 13. There is no cure. Hayley's Progeria Page webmaster : m@rk In Memory of Fleur... another star in the sky. This page was last updated on: March 28, 2003

19. Progeria Reunion 2002 Gallery Translate this page progeria Reunion 2002 Gallery. Home, progeria Reunion 2002 1 45 KB, progeria Reunion2002 2 49 KB, progeria Reunion 2002 3 51 KB, progeria Reunion 2002 4 43 KB. http://markandkez.homestead.com/files/Reunion2002WA/

Progeria Reunion 2002 Gallery Progeria Reunion 2002 1 45 KB Progeria Reunion 2002 2 49 KB Progeria Reunion 2002 3 51 KB Progeria Reunion 2002 4 43 KB Progeria Reunion 2002 5 24 KB Progeria Reunion 2002 6 44 KB Progeria Reunion 2002 7 49 KB Progeria Reunion 2002 8 49 KB Progeria Reunion 2002 9 46 KB Progeria Reunion 2002 10 56 KB Progeria Reunion 2002 11 45 KB Progeria Reunion 2002 12 43 KB Progeria Reunion 2002 13 49 KB Progeria Reunion 2002 14 35 KB Progeria Reunion 2002 15 40 KB Progeria Reunion 2002 16 41 KB Progeria Reunion 2002 17 36 KB Progeria Reunion 2002 18 30 KB Progeria Reunion 2002 19 27 KB Progeria Reunion 2002 20 43 KB Progeria Reunion 2002 21 49 KB Progeria Reunion 2002 22 39 KB Progeria Reunion 2002 23 51 KB Progeria Reunion 2002 24 54 KB Progeria Reunion 2002 25 34 KB

20. Progeria_uk progeria a fight against time. progeria is a very rare disorder which causeschildren to age prematurely. progeria in Europe the Family Circle. http://www.privat.schlund.de/p/progeria/progeria_uk.html

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