41. You Are Entering The Home Of The Pseudotumor Cerebri Support Network You are entering the home of The pseudotumor cerebri Support Network.Come On In ..Welcome to The pseudotumor cerebri Support Network http://www.angelfire.com/ok/PTCSupportNetwork/

You are entering the home of The Pseudotumor Cerebri Support Network There are currently two ways to join the support group. You may send me a message by clicking on my e-mail link, below. You also may use the link below to subscribe directly from this page. I strive to make this support group one where you are loved and treated with respect at all times. I want this to truly be a place where you loved and treated gently. Sometimes there are differences of opinion among our members. This is good and I try not to allow these differences to come between us, but try to help all to understand that we were created with these differences and they should not cause division but are truly reasons to celebrate. Diversity in our disease makes each of us respond differently to treatments and diversity in our personal lives make us unique individuals. You are "UNIQUELY YOU" and not like any other. I love having people of every color and creed in out group. I hope you will visit here often and send me suggestions for improving "OUR" page. This site is intended to be a friendly site. It is intended to be a haven in the midst of the very impersonal World Wide Web and a refuge from the cruel world. I hope you will feel at home here and want to tell others about it. I will be featuring PTC patients on this site. I will use their stories and pictures (with their permission, of course) I have been unable to get any of my PTC Profile stories because the people I have asked, have been too ill. I do have some other stories in the works. Don't give up on coming back here for the new stuff. My computer was down for three weeks and that delayed things. But I am back on the job and looking forward to meeting YOU!

42. Trach-ties So until this happens we will continue to chase symptoms rather than find acure or better treatment for pseudotumor. FAQ about pseudotumor cerebri. http://www.angelfire.com/va2/trachties/PTC.html

PTC and other Headache Information Page Trach-ties Links listed are in no particular order. Any products included are neither endorsed or encouraged by Trach-ties and are listed solely for information purposes. Pseudotumor Cerebri a.k.a. Idiopathic Intracranial Hypertension, Benign Intracranial Hypertension The main means of treating pseudotumor is to relieve symptoms. Medications that decrease the production of spinal fluid or increase its absorption are used quite frequently. In doing this the headache and pressure on the optic nerve, which causes the vision loss, is relieved to some point. Spinal taps drain some of the fluid, but within a day that pressure starts to build again. Shunting is another means of relieving this pressure. A small-diameter tube is placed either in the head or spinal column, with a one way pressure sensitive valve in it,that drains the excess fluid to another place in the body to be absorbed. Another procedure that is done is primarily to relieve the vision problems associated with pseudotumor. It is called an Optic Nerve Sheath Fenestration, meaning they put slits into the sheath that covers the optic nerve to relieve the pressure. There have been many theories about pseudotumor over the years. It was first believed to be only women. But there are males that have this diagnosis now to dispell that myth. It was also believed to only be in obese patients. There are now normal weight as well as underweight patients who have documented pseudotumor. Some have gone so far to attribute it to eating polar bear meat. There aren't too many that eat polar bear meat anymore so that has fallen by the way side as well. They are making correlations between the use of some medications and pseudotumor, but time will tell which of these is true medical finding or just coincidence. It was also believed that pseudotumor is "self-limiting" and would "only" last up to two years. Another myth. There are some that have had this syndrome for many years and continually have symptoms.

43. Pseudotumor Cerebri pseudotumor cerebri. What is pseudotumor cerebri? Is there any treatment?Treatment for pseudotumor cerebri is generally symptomatic. http://www.clevelandclinic.org/health/health-info/docs/1300/1326.asp?index=6097

44. Eye Conditions > Pseudotumor Cerebri -- EyeMDLink.com Last Updated 10/13/2001. pseudotumor cerebri. Also referred to asIncreased Intracranial Pressure. The edges of this swollen optic http://www.eyemdlink.com/Condition.asp?ConditionID=367

45. Pseudotumor Cerebri pseudotumor cerebri. idiopathic, increased CSF production; increased intracranialpressure, papilledema. CT slitlike ventricles. tx steroids. http://chorus.rad.mcw.edu/doc/00339.html

CHORUS Collaborative Hypertext of Radiology Nervous system Feedback Search pseudotumor cerebri idiopathic, increased CSF production increased intracranial pressure, papilledema CT: slit-like ventricles tx: steroids Charles E. Kahn, Jr., MD - 2 February 1995 Last updated 14 March 2001 Medical College of Wisconsin

46. Thrombophilia And Hypofibrinolysis: Pathoetiologies Of Pseudotumor Cerebri pseudotumor cerebri Message BoardThrombophilia and hypofibrinolysis Pathoetiologiesof pseudotumor cerebri. pseudotumor cerebri Message Board. HOME. http://www.health-alliance.com/hospitals/Jewish/glueck/Thrombophilia.html

Home Hospitals Jobs webBabies ... News Thrombophilia and hypofibrinolysis: Pathoetiologies of Pseudotumor Cerebri A free, new (9/12/00) clinical research study at the Jewish Hospital Cholesterol Center, 3200 Burnet Avenue, Cincinnati, OH, 45229. Phone 513-585-7800, Fax 513-585-7950, email glueckch@healthall.com Contact us by email or by phone if you are interested in participating. 1. Purpose: Our specific aim is to assess major thrombophilic and hypofibrinolytic pathoetiologies of pseudotumor cerebri ('benign' intracranial hypertension). Our second specific aim is to determine whether treatment of the intracranial hypertension with Diamox will produce symptomatic relief. We postulate that when exogenous thrombophilic factors (estrogen-containing oral contraceptives, estrogens, corticosteroids) are superimposed on heritable thrombophilic and/or hypofibrinolytic coagulation disorders, multiple ischemic cerebral strokes occur. We postulate that as these strokes resolve, they leave a residual effect of increased intracranial pressure, either by virtue of reduced cerebral clearance of cerebrospinal fluid (CSF), or increased production of CSF, or both. We expect that most patients seen by ophthalmologists with pseudotumor cerebri can be shown to have a coagulation disorder as the pathoetiology, particularly when exogenous estrogens are superimposed on a coagulation disorder. Significance in Relationship to Human Health: Recently, it has been realized that sequelae of ischemic stroke, particularly those ischemic strokes mediated by coagulation disorders, may be pseudotumor cerebri (intracranial hypertension).

47. Pseudotumor Cerebri In Lyme Disease: A Case Report And Literature Review. Title pseudotumor cerebri in Lyme disease a case report and literature review. Abstractpseudotumor cerebri is an unusual presentation of Lyme disease. http://www2.lymenet.org/domino/abstract.nsf/93f8e80bc39b4757852565bd00022dfd/c2b

48. AaoPseudotumor Cerebri - Weight Presenation pseudotumor cerebri Weight Loss as Treatment Lenworth N. Johnson, MD Professor ofOphthalmology and Neurology Director, NeuroOphthalmology Service Mason Eye http://www.muhealth.org/~ophthalmology/Pseudotumor.html

Pseudotumor Cerebri: Weight Loss as Treatment Lenworth N. Johnson, MD Professor of Ophthalmology and Neurology Director, Neuro-Ophthalmology Service Mason Eye Institute University of Missouri-Columbia (Columbia, Missouri) 2,000 new cases of pseudotumor cerebri will be identified in the U.S. in 2001 , yet there are no prospective randomized controlled trials. Quincke (1), in 1897 , was the first to describe the condition known today as pseudotumor cerebri (PTC). The hallmark of this disorder includes: 1) symptoms and signs of increased intracranial pressure (e.g., headache, diplopia, pulsatile tinnitus, transient visual obscuration, visual acuity and visual field loss, and papilledema), but with mental alertness; 2) normal neuroradiologic imaging, apart from possible small ventricles; 3) documented elevated intracranial pressure (ICP) of greater than 250 mm of water; and 4) normal cerebrospinal fluid analysis. It is important to recall that there is a small subset of patients who have PTC with headache and elevated ICP, but with intact spontaneous venous pulsation and absent papilledema (2,3). Pseudotumor cerebri has been ascribed various terminologies including otitic hydrocephalus, toxic hydrocephalus, hypertensive meningeal hydrops, serous meningitis, menstrual edema with intracranial hypertension, increased intracranial pressure without brain tumor, and idiopathic intracranial hypertension. In 1955, Foley (4) introduced the term benign intracranial hypertension. However, the study by Corbett et al (5), which documented approximately half of their 57 patients with PTC having visual acuity or visual field loss - six of whom had bilateral blindness, indicated that this condition was certainly not benign. The term introduced in 1904 by Nonne (6) and which has withstood the test of time is, however, "pseudotumor cerebri."

49. Health Library - Pseudotumor Cerebri pseudotumor cerebri. Self Help Clearinghouse. pseudotumor cerebri Society.National network. Founded 1992.Brings together http://bhagh.nhshealth.org/Library/HealthGuide/SelfHelp/topic.asp?hwid=shc29psc

50. Health Library - Pseudotumor Cerebri pseudotumor cerebri. Self Help Clearinghouse. pseudotumor cerebri Society.National network. Founded 1992.Brings together http://yalenewhavenhealth.org/Library/HealthGuide/SelfHelp/topic.asp?hwid=shc29p

51. UCLA NEUROSURGERY | Adult Hydrocephalus Diseases & Disorders ADULT HYDROCEPHALUS DISEASES DISORDERS pseudotumor cerebri. Whatis pseudotumor cerebri? Patients with pseudotumor cerebri have http://www.neurosurgery.medsch.ucla.edu/Diagnoses/Adult/AdultDis_2.html

Pseudotumor Cerebri ADULT HYDROCEPHALUS PROGRAM ADULT HYDROCEPHALUS DIAGNOSES INDEX What is pseudotumor cerebri? Patients with pseudotumor cerebri have elevated intracranial pressure unrelated to tumor, hydrocephalus, or frank brain swelling. Unfortunately, the term has been used to describe patients with a potpourri of clinical conditions. Accordingly, pseudotumor cerebri likely represents multiple and different disease entities. What types of people get pseudotumor cerebri? Much more common in females Obesity is reported in 11-90% of cases Incidence in obese women of childbearing age is 19 per 100,000 Peak incidence is in the 3rd decade What are the diagnostic criteria? Normal CSF composition Symptoms and signs are of elevated intracranial pressure Normal CT or MRI scan with the exception of small ventricles What are the symptoms of pseudotumor cerebri? Symptoms Headache: commonest symptom in 94%, worse in the morning Dizziness: 32% Nausea: 32% Visual changes: 48% Double vision: 29% Signs on physical exam (usually restricted to visual system): Swelling of the optic nerve: 100% 6th cranial nerve deficit: 20%, causes double vision

52. Health Library - Pseudotumor Cerebri Saint Luke's Health System eLibrary. pseudotumor cerebri. Self Help Clearinghouse.pseudotumor cerebri Society. National network. http://hvelink.saint-lukes.org/library/healthguide/SelfHelp/topic.asp?hwid=shc29

53. Information About Pseudotumor Cerebri From The NINDS - About Headaches And Migra Information about pseudotumor cerebri from the Nantional Institute for NeurologicalDisease and Stroke. More about pseudotumor cerebri, Studies with patients, http://headaches.about.com/bl-ptumor-ninds.htm

zfp=-1 About Headaches/Migraine Search in this topic on About on the Web in Products Web Hosting Headaches/Migraine with Teri Robert Your Guide to one of hundreds of sites Home Articles Forums ... Help zmhp('style="color:#fff"') Subjects ESSENTIALS Is it Migraine? Tension? What? Coping With Busy Doctors A Different Kind of Diary ... All articles on this topic Stay up-to-date! Subscribe to our newsletter. Advertising Free Credit Report Free Psychics Advertisement National Institute of Neurological Disorders and Stroke Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Pseudotumor Cerebri Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Pseudotumor Cerebri Information Page Synonym(s): Benign Intracranial Hypertension, Intracranial Hypertension

54. Pseudotumor Cerebri As A Presenting Sign In Behcet's Disease. Case Report pseudotumor cerebri as a presenting sign in Behcet's Disease. We report a caseof Behcet’s disease in whom pseudotumor cerebri was a presenting sign. http://med.ege.edu.tr/norolbil/1999/1999_3_31.htm

Journal of Neurological Sciences (Turkish) Online Resources Table of Contents Norol Bil D, Volume 16, Issue 3: July-September 1999, #31 Pseudotumor cerebri as a presenting sign in Behcet's Disease. Case report G Akdal , E. Idiman , F. Idiman , and Y. Mengus Dokuz Eylul University , Dept. of Neurology , Izmir , Turkey ABSTRACT Behcet’s disease is recognized as a multi system disease. Besides, the classical triad of recurrent oral ulcers, genital ulcers and uveitis, a wide spectrum of signs have been reported. We report a case of Behcet’s disease in whom pseudotumor cerebri was a presenting sign. This case is found interesting because Behçet disease is not frequently considered in the differential diagnosis of pseudotumor cerebri. Key words: Behcet's disease, pseudotumor cerebri (In Turkish) Full-text (21 KB) This page is run by Aegean Neurological Society , Ege University Faculty of Medicine, Dept. of Neurological Surgery, Bornova, Izmir-35100TR as part of the Ege Neurological Surgery World Wide Web service. Comments and feedback: noktar@med.ege.edu.tr

55. Pseudotumor Cerebri: XtraMSN Health A to Z Conditions. pseudotumor cerebri Health24 pseudotumor cerebri is also calledBenign Intracranial Hypertension. In some cases, pseudotumor cerebri recurs. http://xtramsn.co.nz/health/0,,8065-1670023,00.html

Advanced Search Home Hotmail Search ... Help navBG = '#336699'; navOverBG = '#6699FF'; casText = '#FFFFFF'; casTextOver = '#FFCC00'; casBG = '#6699FF'; casOverBG = '#336699'; Ask The Expert Beauty Fitness Health Library Natural Health Relationships Parenting SEARCH WEB FOR: BROWSE XTRAMSN: -Select - Academy Awards Auto/Bike/Boat Business Careers Entertainment Games Iraqi War 2003 Kids Money Motoring News Personals Shopping Sport Xtra Super 12 Travel Help SEARCH HEALTH RELATED ITEMS: Xtra Travel XtraMSN Sport Contact Us Health Headlines Now - Sudden Adult Death Syndrome SARS - Latest Advice Lice Therapies Carry Warning Using Herbs To Treat Depression ... Echinacea Pills Had No Echinacea You are here : XtraMSN Health Library A to Z Conditions Mon 31 March 2003 A to Z Conditions Pseudotumor Cerebri Pseudotumor Cerebri is also called Benign Intracranial Hypertension. It literally means "false brain tumor." It is caused by increased pressure within the brain and is most common in young, obese females. The symptoms are similar to those that may occur due to certain brain tumors, but no tumor is involved. Treatment for pseudotumor cerebri is generally symptomatic.

56. Pseudotumor Cerebri pseudotumor cerebri. Definition A benign process affecting the brainwhich appears to be, but is not a tumor. It is characterized http://www.pennhealth.com/ency/article/000351.htm

Disease Injury Nutrition Poison ... Prevention Pseudotumor cerebri Definition: A benign process affecting the brain which appears to be, but is not a tumor. It is characterized by increased intracranial pressure and normal brain ventricle size. There is no evidence of tumor, infection, blocked drainage of the fluid surrounding the brain or any other cause. Alternative Names: Idiopathic intracranial hypertension; Benign intracranial hypertension Causes, incidence, and risk factors: The major symptoms of pseudotumor are increased pressure within the skull ( increased intracranial pressure ICP ). The cause for the condition itself is unknown, and the diagnosis is made when other health conditions are ruled out. The mechanism causing the elevated ICP is not well understood. Possible causes of pseudotumor cerebri include a defect in Cerebral Spinal Fluid (CSF) absorption, increased cerebral swelling ( edema ) or increased cerebral blood volumes. Other factors which are possibly associated with this condition are recent weight gain, menstrual irregularities, and the presence of too much Vitamin A (hypervitaminosis A). Oral retinoid drugs and some antibiotics are other possible causes as is the stopping of steroid use after an extended period. Other conditions that have been associated with pseudotumour cerebri include renal failure, sleep apnea, and some lung diseases which lead to the retention of carbon dioxide. Less frequently, Guillain-Barre syndrome has been found to be associated.

57. Pseudotumor Cerebri pseudotumor cerebri. Alternative Names Idiopathic intracranial hypertension;Benign intracranial hypertension. Treatment Treatment http://www.pennhealth.com/ency/article/000351trt.htm

Disease Injury Nutrition Poison ... Prevention Pseudotumor cerebri Alternative Names: Idiopathic intracranial hypertension; Benign intracranial hypertension Treatment: Treatment must be directed at the condition causing the pseudotumor. An initial lumbar puncture is both diagnostic and therapeutic. Repeated lumbar punctures may be done to decrease the intracranial pressure and to help prevent progressive papilledema and visual loss. Other treatments may include: Fluid and/or salt restriction. Medications: Corticosteroids, glycerol, acetazolamide, and furosemide. Shunting procedures from the lumbar subarachnoid space to the peritoneal cavity. Incision of the optic nerve sheath for relief of the papilledema, and to prevent further deterioration of vision. Weight loss is usually recommended. Close follow-up and monitoring of vision, since there is potential for progressive and sometimes permanent visual loss. Follow-up MRI or CT scan is sometimes necessary to exclude hidden (occult) malignancy (cancer). Expectations (prognosis): The outcome varies, and sometimes the condition disappears on its own within 6 months. About 10-20% of the people diagnosed with pseudotumor cerebri experience recurrences, and there is a small percentage who become progressively worse and may eventually become blind.

58. University Of Miami School Of Medicine - Glossary - Pseudotumor Cerebri Diseases and Conditions. pseudotumor cerebri. What is pseudotumor cerebri? Pseudotumorcerebri mimics a brain tumor in elevating the CSF pressure. http://www.med.miami.edu/patients/glossary/art.asp?articlekey=7334

59. Chronic HA And Pseudotumor Cerebri Chronic HA and pseudotumor cerebri. Headaches due to pseudotumor cerebri in childrenare rare in childhood. 8.4 per 1,000,000 in childhood (Gordon et al, 1994). http://www.stanford.edu/group/neurology/tutorial/hsld038.htm

Chronic HA and Pseudotumor Cerebri Headaches due to pseudotumor cerebri in children are rare in childhood 8.4 per 1,000,000 in childhood(Gordon et al, 1994) HA + Papilledema = MRI Previous slide Next slide Back to first slide View graphic version

60. Pseudotumor Cerebri pseudotumor cerebri. A syndrome of cerebrospinal fluid shunting. Pseudotumorcerebri pathophysiology. Return to uscneurosurgery.com Homepage. http://uscneurosurgery.com/glossary/p/pseudotumor cerebri.htm

Pseudotumor cerebri A syndrome of increased intracranial pressure (determined usually by lumbar puncture) with normal sized ventricles (no hydrocephalus) or mass lesion seen CT or MR imaging of the brain. The cause of pseudotumor is unknown but in some patients may be related to obesity or taking medications (including some vitamins). The increased intracranial pressure is associated with the development of papilledema which can result in injury to the optic nerve with blindness. The treatment of pseudotumor is directed to the prevention of blindness and can include fenestration of the optic nerve sheath as well as ventricular or lumbar cerebrospinal fluid shunting. Pseudotumor cerebri - pathophysiology Return to uscneurosurgery.com Homepage

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