1. BRPS Home Page - London, United Kingdom A self help group fighting blindness in the UK through direct research.Category Health Conditions and Diseases retinitis pigmentosa......Britsih retinitis pigmentosa Society a self help group fightingblindness in the UK through direct research. Over £1m a year http://www.brps.demon.co.uk/

Welcome to The Home Page of The British Retinitis Pigmentosa Society This Web Site aims to provide a better understanding of the inherited Retinal Disorders known as Retinitis Pigmentosa (RP), Macular Degeneration, Usher Syndrome and other allied Retinal Dystrophies. The content of this web site has been written by people who have many years experience of living with RP and by very knowledgeable professionals in the field of Ophthalmology. It is hoped that this web site will be helpful to people who have RP, and also their relatives and friends. In addition it should provide valuable information to those whose work brings them into contact with people who have RP. This Web Site covers such areas as Who is the British Retinitis Pigmentosa Society, Understanding RP and the Changes brought about by RP, Genetics and Inheritance Patterns of RP, Young People with RP, Tests and Questions concerning the Diagnosis of RP at the Eye Clinic, Articles of Interest and Information about RP, Events Happening in the RP World, A RP Email Chat Forum, and an Extensive Lists of Questions and Answers about RP. This Web Site is Viewable as Either Graphics and Text OR Black Text on White Background OR Yellow Text on Black Background Web Site Designed and Created by Jonathan M. Abro

2. Retinitis Pigmentosa - John Wenberg's Page Learn about retinitis pigmentosa and other forms of retinal degeneration. Find research news and discussion groups and forums. Retinitis. Pigmentosa. is an eye disease that affects a person's night vision and peripheral vision. http://www.jwen.com/rp/rp.html

3. A Guide To Retinitis Pigmentosa A Guide to retinitis pigmentosa. LIVING WITH retinitis pigmentosa. Acceptingretinitis pigmentosa. Back to Top. Some Effects Of retinitis pigmentosa. http://www.brps.demon.co.uk/Graphics/G_Guide.html

A Guide to Retinitis Pigmentosa Black Text on White Background ] or [ Yellow Text on Black Background LIVING WITH RETINITIS PIGMENTOSA. Accepting Retinitis Pigmentosa Some Effects Of Retinitis Pigmentosa ... Inheritance Patterns LIVING WITH RETINITIS PIGMENTOSA Accepting Retinitis Pigmentosa You may have been told recently or you have known for some years that you have Retinitis Pigmentosa (RP). This diagnosis could well help to explain the months or years of not being able to see properly in the dark, of stumbling into things and of falling over objects which you did not see. You will possibly have been told that, at present, there is no cure for RP and that you have to face the prospect of slowly deteriorating sight. Slow loss of sight is a difficult disability to live with, especially as you may not receive the immediate sympathy and understanding usually shown to the totally blind. Indeed many people will not believe that you have a loss of sight because you have no obvious sign of visual impairment. The first and hardest step towards living positively with a disability is accepting it. If you have RP this means knowing the limitation of your vision and learning to use intelligently the visual clues you still receive. In certain circumstances a normally sighted person must also do this. For example, the driver who suddenly plunges into fog has two alternatives. He can panic and perhaps cause an accident or he can recognise his visual limitations, take note of what he can see and move cautiously down the road. Likewise those with RP can panic or they can adjust to their changed circumstances and move on down the road of life.

4. Retinitis Pigmentosa retinitis pigmentosa Links. Alternate view Yellow Text on Black Background Black Text on Yellow Background http://www.familyvillage.wisc.edu/lib_retp.htm

Retinitis Pigmentosa See also Usher Syndrome or Turner Syndrome Who to Contact Where to Go to Chat with Others Learn More About It ... Search AltaVista for "Retinitis Pigmentosa" Who to Contact Retinitis Pigmentosa International (HPI) P.O. Box 900 Woodland Hills, California, USA, 91365 Fax: (818) 992-3265 Retinitis Pigmentosa International supports research to end blindness from degenerative eye disease, promote a public awareness and education campaign, and provide human services programs to better the quality of life for those with vision loss. Retinitis Pigmentosa International publishes a quarterly newsletter The Night Lighter, and offers many pamplets on current treatments, and research in progress. They have available "How to Survive Losing Vision" in print and audio versions. Call for charges for these and any other information. Retinitis Pigmentosa International has local support groups and will provide materials and assistance to individuals wishing to start a group in their area. They also provide services for the visually impaired of all kinds, and in all states. Where to Go to Chat with Others Retinitis Pigmentosa Mailing Lists Learn More About It A Guide to Retinitis Pigmentosa Retinitis Pigmentosa From the Molecular Ophthalmology Laboratory at the University of Iowa Search Online Mendelian Inheritance of Man (OMIM) Macular Degeneration Research From the Department of Pharmacology, Program in Neuroscience, University of Connecticut Health Center

5. Retinitis Pigmentosa And Retinal Degeneration In Australia Provides information for people affected by these disorders as well as Macular Degeneration.Category Health Conditions and Diseases retinitis pigmentosa......Information for people interested in retinitis pigmentosa and otherforms of retinal degeneration is abundant on the internet. Find http://www.netserv.net.au/doonbank/rd.html

Dee's Site Map Search Help Australian Retinitis Pigmentosa and Retinal Degeneration Retinitis Pigmentosa (RP) is the name given to a group of eye diseases often characterised by night blindness and the gradual loss of peripheral vision. RP causes visual field loss, and may lead to eventual blindness, by affecting the light sensitive photoreceptors in the retina. A genetic and degenerative disease affecting over four million people world wide and thousands of Australians, RP is a common form of retinal degeneration (RD). Related conditions include Macular Degeneration, Usher Syndrome, Choroideremia, Leber's Amaurosis and Retinoschisis. Information for people interested in retinal degeneration is abundant on the internet. Explore my site to discover some of the more relevant and useful RD resources. Access - Computer access and adaptive equipment. Action - There's 'nothing you can do' except... Chat - RD Chat details and tips (check out the new Australian chat times!). International - Organisations from around the world. Lists - Relevant internet mailing lists.

6. Texas Association Of Retinitis Pigmentosa (TARP) A nonprofit support group for people with RP and other retinal diseases. Includes articles, support, links and general information. http://www.geocities.com/HotSprings/7815/front.htm

Main Founder Ushers Syndrome Getting Support ... Contact Us This page last updated 4/25/1999 Created by John Wenberg http://www.jwen.com What is TARP? The Texas Association of Retinitis Pigmentosa, Inc., TARP is a nonprofit, 501 (c) (3) organization based in Texas. It serves as a national information sharing center to provide services to persons with progressive vision loss. What are our goals? Since the conception of TARP in 1979, our purpose has been to educate the public in general about eye diseases that cause blindness, and in particular, to assist individuals and their families who have just received a prognosis of Retinitis Pigmentosa and "impending blindness." Once a person leaves the doctor's office with the "bad news," their lives are changed forever. However, with better understanding, guidance, emotional support and connecting with others who have lived with it, the experience need not hold a bleak future for the individual. What are the symptoms of RP? Difficulty seeing in the dark or dim light Bumping into objects which seem to appear out of nowhere Missing steps and curbs Tripping, stumbling and fumbling

7. Retinitis Pigmentosa and Usher's Syndrome Understanding the Visual Problems of retinitis pigmentosa Windsor, O.D., F.A.A.O. Laura K. Windsor, O.D. retinitis pigmentosa is a term coined by Donders in 1855. http://www.lowvision.org/retinitis_pigmentosa.htm

Retinitis Pigmentosa and Usher's Syndrome Understanding the Visual Problems of Retinitis Pigmentosa Richard l. Windsor, O.D., F.A.A.O. Laura K. Windsor, O.D. Retinitis pigmentosa is a term coined by Donders in 1855. It is not one disease, rather a group of retinal diseases with common attributes. The incident seems to be about one in every 4,000. It can be inherited by at least three different methods. Severity and speed of vision loss vary with each form of inheritance. The following are problems common to RP. Tunnel Visual Field Progressive loss of visual fields is a hallmark of RP. The visual field loss often begins as a donut like ring in mid-periphery. As it progresses both centrally and peripherally, the resultant tunnel vision begins to affect the patient’s activities, driving and mobility. Many patients still drive automobiles in the early stages of RP, but the risks for accidents increase as the field reduces. The functional field will be worse at night and in bad weather. Even RP patients in the early stages should not drive in these situations. As the field loss progresses, daytime driving must be curtailed. Studies suggest that on average, the visual field of the RP patient declines by 5% of the remaining field per year.

8. Retinitis Pigmentosa One page article on RP, inheritance, symptoms, diagnosis, progression, blindness and treatment from John Hopkins. http://www.jhsph.edu/pubaffairs/Follower/ERwork/er-eye.htm

9. Retinitis Pigmentosa - Questions Discusses RP in a question and answer format. Also includes news releases, research news and tips for teachers. http://www.rpsa.org.za/retinitis.htm

What is Retinitis Pigmentosa? What are Rods and Cones? What causes RP? What are the symptoms of RP? ... Education of RP and Macular Children Created and maintained by Intekom works Intekom

10. Retinitis Pigmentosa - VisionChannel RP is a term that referring to a group of hereditary disorders affecting the retinas ability to respond to light. Diagnosis and treatment options are discussed. http://www.visionchannel.net/retinitis/

Home Search SiteMap Ask the Dr. ... Medical Store advertisement RETINITIS PIGMENTOSA Overview Risk Factors Diagnosis Treatment CONDITIONS Amblyopia (lazy eye) Blepharitis Cataracts Color Vision Deficiency ... Refractive Errors Correction Retinal Detachment Retinitis Pigmentosa Retinopathy of Prematurity Skin Cancer of the Eyelids Tear Duct Obstruction INTERACT VisionForum Links Clinical Trials ABOUT US Healthcommunities.com Pressroom Bibliography Overview Retinitis pigmentosa is a term that refers to group of hereditary disorders that affect the retina’s ability to respond to light. It primarily affects rod cells, the photoreceptor cell that is responsible for night vision, seeing in dim light, and peripheral vision. Cone cells, which are responsible for color vision and seeing in bright light, may also be affected as the disease progresses. Retinitis pigmentosa may be caused by mutations in any one of at least ten different genes, resulting in a malfunction in the retinal pigment epithelial (RPE) cells and a breakdown of a portion of the outer segment disc membrane of photoreceptor cells. When cells are destroyed at an abnormal rate, the build-up of waste products interferes with normal retinal function. The result is the occlusion (blockage) of small blood vessels, an abnormal increase in the number of RPE cells (hyperplasia), and the loss of photoreptor cells. Incidence and Prevalence Retinitis pigmentosa is relatively rare. It affects 50,000 to 100,000 people in the United States. Worldwide, approximately 1.5 million people are afflicted.

11. Retinitis Pigmentosa retinitis pigmentosa. Introduction to retinitis pigmentosa. Low VisionHelp in retinitis pigmentosa. retinitis pigmentosa Low Vision Care. http://www.eyeassociates.com/retinitis_pigmentosa.htm

Retinitis Pigmentosa Introduction to Retinitis Pigmentosa Understanding the Visual Problems from Retinitis Pigmentosa by Richard Windsor, O.D. and Laura K. Windsor, O.D. Vision Enhancement magazine Low Vision Help in Retinitis Pigmentosa Retinitis Pigmentosa Low Vision Care Home Welcome About Our Doctors Practice Awards ... Appointments Special Programs Low Vision Systems Stroke/Brain Injury Care Visual Field Impairment Double Vision Management Retinitis Pigmentosa - Bioptic Driving Macular Degeneration

12. EMedicine - Retinitis Pigmentosa : Article By Anthony De Beus, MD, PhD Article by Anthony de Beus, MD, PhD http://www.emedicine.com/oph/topic704.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Ophthalmology Retina Retinitis Pigmentosa Last Updated: July 18, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: RP, hereditary dystrophies of the retinal pigment epithelium AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Anthony de Beus, MD, PhD , Consulting Staff, Associated Retina Consultants Coauthor(s): Kent W Small, MD , Director of Macular Disease Center, Director of Retina Division Research, Professor, Department of Ophthalmology, University of California at Los Angeles Medical Center Anthony de Beus, MD, PhD, is a member of the following medical societies: American Academy of Ophthalmology , and Association for Research in Vision and Ophthalmology Editor(s): Russell Jayne, MD , Consulting Surgeon, Department of Ophthalmology, Retina Consultants of Nevada; Donald S Fong, MD, MPH

13. Retinitis-Pigmentosa.com - All About RP Website for news and articles relating to RP and related conditions.Category Health Conditions and Diseases retinitis pigmentosa......RetinitisPigmentosa.com - All about RP. with RP. Frequently AskedQuestions Need quick facts on retinitis pigmentosa? Our FAQ is http://www.retinitis-pigmentosa.com/

@import url(/css/white.css); Retinitis-Pigmentosa.com - All about RP Skip navigation Retinitis-Pigmentosa.com F.A.Q. Articles ... Reverse colors Welcome to Retinitis-Pigmentosa.com. A Website written and maintained by people with RP - For people with RP. Frequently Asked Questions Need quick facts on Retinitis Pigmentosa? Our F.A.Q is the first step to getting the information you need. Articles about Retinitis Pigmentosa Find out about Retinitis Pigmentosa from people that have the condition, their families and experts in the field. News about Retinitis Pigmentosa Read and submit news about Retinitis Pigmentosa and related resources and reading within the field. Resources and Links Here you can find a comprehensive list of resources, links and RP Society information from around the world. about us page. Latest news... FDA Issue Warning on Cochlear Implant Future Eye Implants Focus on Neurotransmitters Ambitious plan to sight the blind More news... Recent articles Love conquers all - Living with RP Sometimes humorous - Somtimes sad: A mothers view The making of this site More articles...

14. Retina Suisse Die Schweizer Selbsthilfeorganisation von Menschen mit retinitis pigmentosa (RP), Makuladegeneration, Usher Syndrom und anderen degenerativen Netzhauterkrankungen informiert ¼ber die Erkrankungen und die Organisation. http://www.retina.ch/home_d.htm

Retina Suisse Die Selbsthilfeorganisation von Menschen mit Retinitis pigmentosa (RP), Makuladegeneration, Usher Syndrom und anderen degenerativen Netzhauterkrankungen Generalversammlung 2003 Samstag, 5. April 2003, Hotel Galaxy, Bern Wer sind wir? Retina Suisse stellt sich vor Der Vorstand Der Medizinisch-Wissenschaftliche Beirat Regionalgruppen/Selbsthilfegruppen (Links) Wie sieht ein Mensch mit Netzhautdegenerationen? Zentraler Gesichtsfeldausfall Peripherer Gesichtsfeldausfall Nachtblindheit Blendempfindlichkeit ... Netzhautdegenerationen NEU : In Zusammenarbeit mit der Schweizerischen Ophthalmologischen Gesellschaft SOG . Sondern eine . Inkl. Amsler-Gitter-Sehtest. Kein Stadtplan . Sondern . Inkl. Amsler-Gitter-Sehtest. Detaillierte Weitere Auskunft Melden Sie sich bei uns an! Mitgliedschaft Veranstaltungskalender Jahresbericht 2002 Retina Suisse Journal ... info@retina.ch

15. An Overview Of Retinitis Pigmentosa Information on night blindness, including the relationship between retinal degenerative diseases and the retina as well as basics on genetics and heredity. http://www.geocities.com/retinitis_pigmentosa_rp

Retinitis Pigmentosa var site="sm5retinitis" An overview of retinitis pigmentosa (RP) Retinitis pigmentosa is a group of hereditary diseases that causes the degeneration of the retina. Often called night blindness, retinitis pigmentosa may develop in a family where either one parent or both parents are affected or where there is seemingly no familial history of the disease. In other cases, RP is observed in only the males of the family. Typically, symptoms start in childhood and early adolescents. They include decreased ability to see in dim light such as movie theaters or ball games, night blindness and bumping into or tripping over objects. There may also be loss of color vision and the inability to focus or see objects in detail. The symptoms experienced depend entirely on the type of retinitis pigmentosa. Long-term affects of RP include so called 'tunnel vision'. This loss of peripheral vision is usually gradual, reducing the visual field to a narrow area of the eye, directly in front of the individual. In many cases, people with retinitis pigmentosa are considered 'legally blind' by the time they're 40. In cases where retinitis pigmentosa and hearing loss or deafness occur, there is a chance of Ushers Syndrome. Ushers Syndrome is an inherited disease affecting 3-6 % of the deaf and is usually diagnosed in childhood.

16. BRPS Home Page - London, United Kingdom of the inherited Retinal Disorders known as retinitis pigmentosa (RP), Macular Degeneration, Usher Syndrome and other http://www.brps.org.uk/

Welcome to The Home Page of The British Retinitis Pigmentosa Society This Web Site aims to provide a better understanding of the inherited Retinal Disorders known as Retinitis Pigmentosa (RP), Macular Degeneration, Usher Syndrome and other allied Retinal Dystrophies. The content of this web site has been written by people who have many years experience of living with RP and by very knowledgeable professionals in the field of Ophthalmology. It is hoped that this web site will be helpful to people who have RP, and also their relatives and friends. In addition it should provide valuable information to those whose work brings them into contact with people who have RP. This Web Site covers such areas as Who is the British Retinitis Pigmentosa Society, Understanding RP and the Changes brought about by RP, Genetics and Inheritance Patterns of RP, Young People with RP, Tests and Questions concerning the Diagnosis of RP at the Eye Clinic, Articles of Interest and Information about RP, Events Happening in the RP World, A RP Email Chat Forum, and an Extensive Lists of Questions and Answers about RP. This Web Site is Viewable as Either Graphics and Text OR Black Text on White Background OR Yellow Text on Black Background Web Site Designed and Created by Jonathan M. Abro

17. Pro Retina Augsburg -Selbsthilfevereinigung Von Menschen Mit Netzhautdegeneratio Selbsthilfevereinigung von Menschen mit Netzhautdegeneration, retinitis pigmentosa, MakulaDegeneration, Usher-Syndrom. Regionalgruppe Augsburg. http://home.t-online.de/home/0821581682-0002/

P ro R etina D eutschland e. V -Infoseite Augsburg- Selbsthilfevereinigung von Menschen mit Netzhautdegeneration Reiner Jecho, Telefon (0 82 94) 86 19 95 E-Mail: rjrom22@aol.com Dieter Stanzel Hier erhalten Sie weitere Informationen* Pro Retina Deutschland e.V. Regionalgruppentreffen / Veranstaltungen Jugendhomepage Arbeitskreis Soziales der Pro Retina Deutschland e.V. Das Leben ist wie ein Puzzle... RETINITIS PIGMENTOSA (RP) MAKULADEGENERATION (MD) USHER-SYNDROM Dies sind degenerative Erkrankungen der Netzhaut des Auges (Retinal Degeneration = RD) Typische Zeichen der Sehverschlechterung sind: verlangsamte Hell-Dunkel-Anpassung Nachtblindheit hohe Blendempfindlichkeit Die Schauspielerin Witta Pohl ist Mitglied im Kuratorium der Pro Retina Deutschland e.V. "Der wichtigste Sinn des Menschen ist das Sehen. Der gesunde Mensch nimmt mit den Augen 80-90% allem Umweltinformationen auf. Wer ist die Pro Retina Deutschland e.V. ? Was tun wir ? 1. In der Forschung 2. In der Selbsthilfe: Organisation von Seminaren und Freizeitveranstaltungen soziale und wirtschaftliche Probleme (Renten, Schwerbehindertenausweis, Blindenhilfe, Nachteilsausgleiche)

18. RP Links Page NEW LINKS NEW LINKS NEW LINKS Western Australian retinitis pigmentosaFoundation; County; EMedicine Page on retinitis pigmentosa; http://www.jwen.com/rp/rplinks.htm

19. RetNet - Retinal Information Network Provides tables of genes causing inherited retinal diseases, such as retinitis pigmentosa, macular degeneration and Usher syndrome, and related information. http://www.sph.uth.tmc.edu/Retnet/

Table of Contents: Diseases: Cloned and/or Mapped Genes Causing Retinal Diseases Summaries: Summary Tables ( Genes Diseases , or Graph Symbols: List of Disease Symbols References: References for Disease Tables Links: Resources for Research on Retinal Degeneration What's New: New and Updated Disease Genes RetNet provides tables of genes causing inherited retinal diseases, such as retinitis pigmentosa, macular degeneration and Usher syndrome, and related information. This information is provided to the research community and other interested individuals for research purposes only. The information should not be used for medical or commercial purposes. Although we strive for accuracy and completeness, we cannot guarantee that all information is correct and complete. We welcome comments and suggestions RetNet , the Retinal Information Network, is a service of the Laboratory for the Molecular Diagnosis of Inherited Eye Diseases, a joint program of ... The Hermann Eye Center, Dept. of Ophthalmology and Visual Science , and The Human Genetics Center School of Public Health , at The University of Texas-Houston Health Science Center The RetNet web site was developed by: Stephen P. Daiger, PhD

20. Western Australian Retinitis Pigmentosa Foundation Chat room, links, information and support on retinal disorders and fighting blindness. http://members.iinet.net.au/~warpf/index.html

Western Australian Retinitis Pigmentosa Foundation Fighting Blindness What is Retinitis Pigmentosa? Retinitis Pigmentosa is the name given to a group of diseases which affect the retina of the eye. The retina, located in the back of the eye, is the part of the eye that acts like the film in a camera. It is a delicate layer of cells which picks up the picture and transmits it to the brain - where "seeing" actually occurs. In RP, the retina begins to degenerate, which causes vision to diminish. One of the earliest symptoms of RP is difficulty seeing at night or in dimly lit places (night blindness). Later there is a reduction in side (peripheral) vision. The symptoms of RP generally increase over the years. It is known that certain cells in the retina, known as rods and cones, die in RP. The cause of cell death however, is not known at present, but research provides us with the opportunity to seek solutions. RP bodies throughout the world support research in a number of medical centres and hospitals internationally to find the cause, prevention and treatment of retinal degenerative diseases like Retinitis Pigmentosa, Usher syndrome and Macular Degeneration. Some of these centres also provide a clinical evaluation of the patient's RP or other retinal degenerations. They may also perform special tests requested by the patient's own ophthalmologist. Through the efforts of RP organisations in many countries, the number of highly qualified investigative scientists working full time on RP and related diseases continues to grow. Research efforts into these types of retinal diseases are difficult because there is no opportunity to safely biopsy - that is, remove and examine living retinal tissue under a microscope - the delicate eye.

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