21. FFB Home - Foundation Fighting Blindness The Foundation Fighting Blindness is a publiclysupported charity raising money to fund research for macular degeneration, retinitis pigmentosa (RP), Usher syndrome, Stagardt disease, related diseases, and providing information, resources and http://redirect-west.inktomi.com/click?u=http://www.blindness.org&y=0236788957C5

22. Retinitis Pigmentosa retinitis pigmentosa Mailing Lists. Mailing Lists. RPLIST RETPIG RetinitisPigmentosa Discussion list based in the Netherlands. To http://www.familyvillage.wisc.edu/lists/retinitis.html

Retinitis Pigmentosa Mailing Lists Mailing Lists RPLIST Discussion includes: Retinitis pigmentosa, macular degeneration, low vision, blindness, support, vision, blind, and vision research. To subscribe, send a message to: listserv@maelstrom.stjohns.edu In the body of the message type: Subscribe RPLIST Your Name RET-PIG Retinitis Pigmentosa Discussion list based in the Netherlands. To subscribe, send a message to: listserv@nic.surfnet.nl In the body of the message type: Sub RET-PIG Your Name Tammi-L FAQ A list for RP and other visual handicaps. For more information click here. If you know of an on-line discussion group that should be added to the list, please send a note to Linda Rowley at: rowley@waisman.wisc.edu Last updated June 29, 1998 by rowley@waisman.wisc.edu.

23. Macular Degeneration, Retinitis Pigmentosa, Stargardt, Usher Syndrome : FFB Home Funds research at over 50 institutions in the US and the world in the area of degenerative retinal diseases.Category Health Medicine Ophthalmology Research......The Foundation Fighting Blindness is a publiclysupported charity raising moneyto fund research for macular degeneration, retinitis pigmentosa (RP), Usher http://www.blindness.org/

Macular Degeneration Retinitis Pigmentosa Usher Syndrome Stargardt Disease ... Why Register? Click here for more information. Login Register Benefit Search: Scientific Advisory Board Meeting The Foundation just held its annual Scientific Advisory Board (SAB) meeting on January 30-31. more Genvec Begins Phase I Clinical Trial of Gene Therapy Treatment Designed to Prevent Vision Loss more Encapsulated RPE Cells Reduce Photoreceptor Degeneration in Animal Models of Retinitis Pigmentosa Through an innovative partnership with Neurotech, a biotechnology company based in the U.S. and France, The Foundation is working to harness the therapeutic quality of retinal pigment epithelial cells in the treatment of retinitis pigmentosa. more Mother's Day Celebration Feb 01, 2003 - May 11, 2003 National Event Send A Card...Find A Cure. Volunteer to send special FFB greeting cards. B/W/R Fashion Show Apr 02, 2003 Eastchester, NY The annual spring fashion show. The Kelly Family-Living with Macular Degeneration By The Foundation Fighting Blindness Janet sat in disbelief as she learned that both she and her son, John, had Best disease, an early-onset form of macular degeneration that causes loss of central vision and often results in legal blindness.

24. Macular Degeneration, Retinitis Pigmentosa, Stargardt, Usher Syndrome : Retiniti retinitis pigmentosa. The Foundation Fighting Blindness is a publicly FFBHome retinitis pigmentosa Click here to go to FFB Research http://www.blindness.org/disease/default.asp?type=3

25. Welcome To RP International Promotes RP research to prevent blindness.Category Health Conditions and Diseases retinitis pigmentosa......Time is running out for RP victims;each day represents gradual loss of sight.With enough research, we can find a cure and stop RP in this generation. http://www.rpinternational.org/

Time is running out for RP victims;each day represents gradual loss of sight. With enough research, we can find a cure and stop RP in this generation. After all, children should see forever .... CONTINUE... 1997-2001 RP International Web Design By: PointMall.com

26. Texas Association Of Retitinits Pigmentosa The homepage of tarp, the Texas Assocaition of retinitis pigmentosa. Welcometo the. TARP Homepage. The Texas Association of retinitis pigmentosa Inc. http://www.geocities.com/HotSprings/7815/

Welcome to the TARP Homepage The Texas Association of Retinitis Pigmentosa Inc. Click HERE to enter Click HERE an announcement from Dorothy Click HERE for a shortnote about Lax-Optic Pinhole Glasses You are visitor number Since December 15, 1997 This page hosted by Get your own Free Home Page retinitis pigmentosa ushers syndrome retinal degenerartion retinitis pigmentosa ushers syndrome retinal degenerartion retinitis pigmentosa ushers syndrome retinal degenerartion retinitis pigmentosa ushers syndrome retinal degenerartion retinitis pigmentosa ushers syndrome retinal degenerartion retinitis pigmentosa ushers syndrome retinal degenerartion retinitis pigmentosa ushers syndrome retinal degenerartion retinitis pigmentosa ushers syndrome retinal degenerartion retinitis pigmentosa ushers syndrome retinal degenerartion retinitis pigmentosa ushers syndrome retinal degenerartion

27. Western Australian Retinitis Pigmentosa Foundation Chat room, links, information and support on retinal disorders and fighting blindness.Category Health Conditions and Diseases retinitis pigmentosa......Western Australian retinitis pigmentosa Foundation, Fighting Blindness.What is retinitis pigmentosa? retinitis pigmentosa http://members.iinet.net.au/~warpf/

Western Australian Retinitis Pigmentosa Foundation Fighting Blindness What is Retinitis Pigmentosa? Retinitis Pigmentosa is the name given to a group of diseases which affect the retina of the eye. The retina, located in the back of the eye, is the part of the eye that acts like the film in a camera. It is a delicate layer of cells which picks up the picture and transmits it to the brain - where "seeing" actually occurs. In RP, the retina begins to degenerate, which causes vision to diminish. One of the earliest symptoms of RP is difficulty seeing at night or in dimly lit places (night blindness). Later there is a reduction in side (peripheral) vision. The symptoms of RP generally increase over the years. It is known that certain cells in the retina, known as rods and cones, die in RP. The cause of cell death however, is not known at present, but research provides us with the opportunity to seek solutions. RP bodies throughout the world support research in a number of medical centres and hospitals internationally to find the cause, prevention and treatment of retinal degenerative diseases like Retinitis Pigmentosa, Usher syndrome and Macular Degeneration. Some of these centres also provide a clinical evaluation of the patient's RP or other retinal degenerations. They may also perform special tests requested by the patient's own ophthalmologist. Through the efforts of RP organisations in many countries, the number of highly qualified investigative scientists working full time on RP and related diseases continues to grow. Research efforts into these types of retinal diseases are difficult because there is no opportunity to safely biopsy - that is, remove and examine living retinal tissue under a microscope - the delicate eye.

28. Was Ist RP ? Giessen.Grauer Star und retinitis pigmentosa. Vererbung Erbkrankheit http://www.gsi.de/~schuell/rp/was_inh.html

29. Retinitis Pigmentosa Home Page Secretary) RP Foundation of South Africa at the Press Conference announcing the discoveryof the first South African gene mutation causing retinitis pigmentosa. http://www.rpsa.org.za/

NEWS FLASH !!! ST SOUTH AFRICAN GENE CAUSING RETINAL BLINDNESS DISCOVERED CLICK HERE FOR MORE INFORMATION Professor Raj Ramesar (Director MRC Research Unit for Human Genetics at UCT) with Claudette Medefindt (National Secretary) RP Foundation of South Africa at the Press Conference announcing the discovery of the first South African gene mutation causing Retinitis Pigmentosa Created and maintained by Intekom works Intekom

30. Understanding Retinitis Pigmentosa Understanding retinitis pigmentosa. What is retinitis pigmentosa? Retinitispigmentosa (RP) is the name given to a group of hereditary eye disorders. http://www.rnib.org.uk/info/retpig.htm

Search RNIB site for: Understanding retinitis pigmentosa What is retinitis pigmentosa? Retinitis pigmentosa (RP) is the name given to a group of hereditary eye disorders. These disorders affect the retina, which is the light-sensitive tissue lining the back of the eye, in which the first stages of seeing take place. In RP, sight loss is gradual but progressive. It is unusual for people with RP to become totally blind as most retain some useful vision well into old age. What is the retina? The retina in your eye serves a similar purpose to a film inside a camera. Light is focused by a lens at the front of the camera onto a light-sensitive film at the back, to form a picture. In a similar way, light entering your eye is focused onto a light-sensitive tissue which lines the inside of the eye at the back. This tissue is the retina. The retina consists of two main layers, a thin one called the pigment epithelium and a thicker one, made up of many layers of cells, called the neural retina.

31. Retinitis Pigmentosa Foreningen I Norge For English speaking visitors! retinitis pigmentosa Foreningen i Norgeønsker å spre informasjon om øyesykdommen retinitis pigmentosa. http://www.rpfn.no/

For English speaking visitors! Nyheter og aktuelt fra RP-foreningen post@rpfn.no Retinitis Pigmentosa Foreningen i Norge Majorstuveien 17 boks 1480 0367 Oslo Kontonummer: 7874.06.42927 Organisasjonsnr: 984 079 230 Noen Linker: Ukas site: RI verdenskongress i 2004 finner sted i Nederland! Aktuelt: Les siste nummer av svenskenes RP-info Artig: Oversikt over filmer med funksjonshemmede Svenske RP-foreningen Retina International Youth, for alle under 35 med RP Retina International ... Interessegruppa for synshemmede EDB brukere Flere Linker webmaster@rpfn.no

32. Retinitis Pigmentosa Or RP - AllAboutVision.com retinitis pigmentosa. By Gretchyn Bailey; reviewed by Dr. Vance Thompson.A shrinking blindness. Signs of retinitis pigmentosa. Usually http://www.allaboutvision.com/conditions/retinapigment.htm

Eye Health Topics Introduction Allergies Amblyopia or Lazy Eye AMD AMD News Astigmatism Cataracts Cataract News CMV Retinitis Color Blindness Conjunctivitis Crossed Eyes Diabetic Retinopathy Drooping Eyelids Dry Eyes Farsightedness Floaters and Spots Glaucoma Glaucoma News Keratoconus Light Sensitivity Macular Degeneration Nearsightedness Ocular Hypertension Pink Eye Presbyopia Ptosis Retinal Detachment Retinitis Pigmentosa Safety Strabismus Styes or AllAboutVision.com home Retinitis Pigmentosa By Gretchyn Bailey ; reviewed by Dr. Vance Thompson A shrinking field of vision is one of the early warning signs of retinitis pigmentosa. Retinitis pigmentosa is a rare, inherited disease in which the light-sensitive retina of the eye slowly and progressively degenerates, eventually causing blindness. Signs of Retinitis Pigmentosa Usually the signs of this disease first occur in early childhood. Vision at night is poor and gets worse, and the field of vision narrows. During later stages of retinitis pigmentosa, only a small area of central vision remains, along with slight peripheral vision What Causes RP?

33. Handbook Of Ocular Disease Management - Retinitis Pigmentosa retinitis pigmentosa SIGNS AND SYMPTOMS Patients with retinitis pigmentosa(RP) may present with varying symptoms. The onset is http://www.revoptom.com/handbook/sect5q.htm

RETINITIS PIGMENTOSA SIGNS AND SYMPTOMS Patients with retinitis pigmentosa (RP) may present with varying symptoms. The onset is often gradual and insidious, and many patients fail to recognize the manifestations of this condition until it has progressed significantly. When patients do report symptoms, they commonly include difficulty with night vision (nyctalopia) as well as loss of peripheral vision. Many patients with RP also experience photopsiae as the disorder progresses; typically they report small flashes of light or a twinkling, shimmering sensation in the midperipheral or peripheral field. These are believed to represent aberrant electrical impulses from the degenerating retina. Central visual acuity is generally not affected until the very late stages of RP, although variants have been encountered that cause devastating macular compromise early in the disease course (e.g., X-linked recessive RP). Color vision is typically remains intact as long as visual acuity is better than 20/40. Attenuation of the retinal arterioles is the earliest observable sign in RP. Retinal pigmentary changes occur in the form of fine mottling or granularity with surrounding areas of atrophy. Later, stellate pigment hyperplasia may be noted at perivascular locations in the midperipheral retina. These hyperplastic formations are often referred to as "bone spicules."

34. Retinitis Pigmentosa Norsk Øyelegeforening. retinitis pigmentosa. retinitis pigmentosa Foreningeni Norge. retinitis pigmentosa Foreningen i Norge Svenskerud 155 3408 Tranby. http://www2.legeforeningen.no/yf/nof/retiniti.htm

Norsk Oftalmologisk Forening Norsk Øyelegeforening Retinitis Pigmentosa Retinitis pigmentosa (RP) er blant de hyppigste årsaker til alvorlig nedsettelse av synet hos barn og voksne. Synsnedsettelsen kan starte i barne- og ungdomsårene eller først i voksen alder. Begrepet Retinitis Pigmentosa dekker en gruppe av arvelige sykdommer i øyets netthinne. RP er knyttet til mer enn 20 forskjellige tilstander. Men de bakenforliggende årsaker til RP er ukjente. Felles for dem alle er at de medfører en langsom og vedvarende ødeleggelse av netthinnen. Et typisk trekk i starten er nedsatt mørkesyn (nattblindhet). Senere følger innsnevret synsfelt (sidesyn) og i mange tilfeller blindhet. Utviklingshastigheten varierer meget fra person til person. BEHANDLING Det finnes i dag ingen behandlingsform som helbereder Retinitis Pigmentosa. De senere år har imidlertid forskningen omkring sykdommen for alvor kommet i gang, og ett av RP-foreningens mål er å stimulere norsk forskermiljø til å bidra til å løse noen av sykdommens gåter. DU ER IKKE ALENE!

35. Retina International Retina International is seeking a cure for retinitis pigmentosa (RP), Macular Degeneration,Usher Syndrome and allied retinal distrophies. Retina International. http://www.retina-international.org/home.htm

Retina International Seeking a cure for Retinitis Pigmentosa (RP), Macular Degeneration, Usher Syndrome and allied retinal distrophies Retina International (formerly International Retinitis Pigmentosa Association IRPA) Who is Retina International? Retina International introduces itself Retinal degenerative diseases An explanation what retinal degenerative diseases are and how patients see the world News and Events Retina International News, Conferences and Events Declaration of Warsaw Retina Europe - Fighting Blindness Non-member organisation web-pages Links to other organisations covering additional aspects of retinal degenerative diseases. For more information, please contact the Retina International president or the member society in your country. Last Updated: August 2002 For suggestions or comments, please mail to the webmaster

36. Retina International Retina International. Seeking a cure for retinitis pigmentosa (RP),.Macular Degeneration, Usher Syndrome. and allied retinal distrophies. http://www.retina-international.org/

Retina International Seeking a cure for Retinitis Pigmentosa (RP), Macular Degeneration, Usher Syndrome and allied retinal distrophies Retina International Scientific Newsletter An extensive collection of integrated data on retinal disorders, proteins and genetics for both, the researcher and clinician. The Newsletter also features a number of useful web links to other associations, researchers, databases as well as off-/online software. Retina International Learn more about retinal degenerations including the ways in which a person with a retinal degeneration sees his world. Find out what Retinal International does and about its member societies together with contacts in your country. Last Updated: August 2002 For suggestions or comments, please mail to the webmaster

37. Prevent Blindness America--Retinitis Pigmentosa FAQ Frequently Asked Questions about retinitis pigmentosa. Q What is retinitispigmentosa? retinitis pigmentosa (RP) is a group of diseases http://www.preventblindness.org/eye_problems/rpFAQ.html

Frequently Asked Questions about Retinitis Pigmentosa Q: What is retinitis pigmentosa? Retinitis pigmentosa (RP) is a group of diseases that cause deterioration of the retina, the thin layer of tissue that lines the inside of the back of the eye. The retina captures images that are transmitted to the brain by the optic nerve. Two types of cells within the retina are necessary for vision: rod-shaped cells and cone-shaped cells. Although the reasons are not fully understood, these rod-shaped cells slowly stop functioning in patients with RP. Peripheral (side) vision and night vision depend on these rod-shaped cells of the retina. As the disease progresses over the years, peripheral vision diminishes so that patients often can see only a small tunnel of vision straight ahead. In more severe cases, RP can affect certain cone cells, which are used to see colors and for optimal central vision. Approximately 400,000 Americans have retinitis pigmentosa and other related retinal disorders. Q: What are the symptoms of RP?

38. Retinitis Pigmentosa Eye Research Foundation retinitis pigmentosa Eye Research Foundation. New Brunswick Chapter. retinitis pigmentosaEye Research Foundation 140 Riverhill Dr. Saint John, NB E2M 4T7 Canada. http://www.sjfn.nb.ca/community_hall/R/RETI2791.html

Retinitis Pigmentosa Eye Research Foundation New Brunswick Chapter Contact Information Mailing Address Retinitis Pigmentosa Eye Research Foundation 140 Riverhill Dr. Saint John, NB Canada Business Days Open: Contact can be made anytime. Description of Services Retinitis Pigmentosa is a tegenerative disease of the retina. The Foundation assists people who suffer from RP, family member and friends. Promotes public awareness in the Atlantic Provinces. Offs regular meetings a support group, public awareness, up to date information and fundrainsing for research. Meetings and support groups -last week of month -day. Location varies - many times we meet at CNIB. Program Days: Contact can be made anytime. Fundraising Events 96/97 Flea Markets, etc. Program Delivery Charitable Tax #: yes. Legal Status: Non-Profit Disability Accessability: Fully Language: English Geographic Area Served: New Brunswick MAIN MENU SEARCH HELP DESK R INDEX ... COMMUNITY HALL Last Modified Apr. 30, 1997

39. Retinitis Pigmentosa - Lighthouse International Vision Resources retinitis pigmentosa. retinitis pigmentosa A congenital degeneration of the pigmentedlayer of the retina that leads to a severe loss of peripheral vision. http://www.lighthouse.org/resources_lv_retinitis.htm

Retinitis Pigmentosa Retinitis Pigmentosa - A congenital degeneration of the pigmented layer of the retina that leads to a severe loss of peripheral vision. Even though central vision may remain clear, traveling is difficult because of side vision loss. In retinitis pigmentosa the reading area is reduced, although the print may be clear. Parts of Visual System Involved: retina, optic nerve Visual Characteristics: night blindness, decreased response to magnification, loss of peripheral (side) vision, increased illumination requirements Treatment Options: medical/surgical, limited response to magnifying devices, absorptive lenses, increased illumination, prism lenses, minifying devices, video magnification, mobility training More information on Low Vision Normal Vision and the Eye Cataract Corneal Pathology Macular Degeneration ... Glaucoma Retinitis Pigmentosa Hemianopia Partial Sight Comparisons Top of Page Text Only Version If you have any questions or comments about our site, please E-mail the webmaster . If you would like more information on low vision, vision rehabilitation or Lighthouse International programs, please E-mail

40. Was Ist Retinitis Pigmentosa? Translate this page werden. 4.0 Vererbungsformen der retinitis pigmentosa. Zum Verständnis wollen.5.0 Wie kann man retinitis pigmentosa feststellen? Meist wird http://www.ortegalink.com/sozial/behindert/rp/

Bad Nauheim, 5. Auflage 1989 Herausgeber: Deutsche Retinitis Pigmentosa Vereinigung e.V. (DRPV) Ernst-Ludwig-Ring 44 6350 Bad Nauheim Inhaltsverzeichnis 2.0 Zeichen und Merkmale der Erkrankung 3.2 Bildungs- und Berufsplanung 4.0 Vererbungsformen der Retinitis Pigmentosa 4.1 Rezessive (verdeckte) Vererbungsform ... 10.1 Weitere Informationen 2.0 Zeichen und Merkmale der Erkrankung 3.2 Bildungs- und Berufsplanung 4.0 Vererbungsformen der Retinitis Pigmentosa 4.1 Rezessive (verdeckte) Vererbungsform Wie man sieht, ist die Situation nicht ganz einfach. Durch diese Informationsschrift kann die humangenetische Beratung im Einzelfall nicht vorweggenommen werden. Zwei generelle Regeln lassen sich jedoch aufstellen: In Familien, in denen bereits RP vorgekommen ist, sollten Verwandtenehen auch zwischen nicht erkrankten Personen vermieden werden, damit nicht erneut zwei schadhafte Anlagen zusammentreffen. 4.2 Dominante Vererbungsform 4.3 Geschlechtsgebundene Vererbungsform 5.0 Wie kann man Retinitis Pigmentosa feststellen? 5.1 Gesichtsfeldbestimmung

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