1. Welcome To The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome.Category Health Support Groups Parryrombergs syndrome......The Romberg's Connection is an international support group made up of over 275individuals and families whose lives are affected by rombergs syndrome. http://www.geocities.com/HotSprings/1018/

The Romberg's Connection is an international support group made up of over individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another. Parry-Rombergs Syndrome Information National Organization of Rare Disorders Medical Searches Romberg's Connection News ... Frequently Asked Questions about the Romberg's Connection Photo Album (New Pictures Added March 16, 2003) Our Stories New Story from Petra (September 21, 2001) Our Kelley's story appeared in the Rocky Mountain News recently. We are so proud of her for letting us all into her life. Read it here A follow-up to Kelley's story can be read here Parent's Page Share your experiences Romberg's Connection Meetings (New January 23, 2003) February 2, 2003 Added: New Photos January 11, 2003 Colorado Meeting July 21, 1999 New York City, New York Meeting August 23, 1998 Dubuque, Iowa Meeting March 7, 1998 Baltimore, Maryland Meeting Where our members are located (Updated December 7, 2002) Our Romberg's Survey Results (New February 1, 2003)

2. Romberg's Syndrome General information, contacts, on-line discussion groups and links.Category Health Support Groups Parry-rombergs syndrome......Library Q R. Romberg's Syndrome. Synonyms Parry-Romberg's Syndrome, ProgressiveFacial Hemiatrophy. Web Sites. The Rombergs Connection. Back to Q - R http://www.familyvillage.wisc.edu/lib_rombs.html

Romberg's Syndrome Synonyms: Parry-Romberg's Syndrome, Progressive Facial Hemiatrophy Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search AltaVista for "Romberg's Syndrome" Who to Contact See: Craniofacial Disorders Where to Go to Chat with Others We are unaware of any discussion forums specifically for this diagnosis. However, there are several forums that may be of interest to parents of children with disabilities or special health care needs regardless of diagnosis. See General Disability On-Line Discussion Groups Learn More About It Parry Romberg Syndrome from NORD Progressive Hemifacial Atrophy from OMIM Web Sites The Rombergs Connection Back to [ Q - R Family Village Home Library Coffee Shop ... Information Last Updated May 6, 1999 by familyvillage@waisman.wisc.edu Document Source: http://www.familyvillage.wisc.edu/lib_rombs.html

3. Parry-Rombergs Syndrome A B C D E F G H I J K L M N O P Q R S T U V W X Y Z . Back Home Next. Parryrombergs syndrome. http://www.ability.org.uk/Parry-Rombergs_Syndrome.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Parry-Rombergs Syndrome The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

4. Parry-Rombergs Syndrome Resources On The Internet millions of published articles for news on Parryrombergs syndrome. The eLibrary newspaper and magazine archive contains http://www.healthcyclopedia.com/parry-rombergs_syndrome.html

Home Health Conditions by Category ... Contact Us Parry-Rombergs Syndrome Health News Search millions of published articles for news on Parry-Rombergs Syndrome The eLibrary newspaper and magazine archive contains articles from current and back issues of hundreds of publications, including: Modern Medicine Aging The Ardell Wellness Report HealthFacts The Journal of Environmental Health Medical Post Medical Update Men's Health and the National Women's Health Report Note: To access the full text of articles, sign up for a seven-day no-risk free trial subscription to eLibrary. Web Directory Web Links: Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome - Personal stories, international support and webforum. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links.

5. Parry-Rombergs Syndrome Information Parryrombergs syndrome Listed below are a few links to clinic descriptionsof rombergs syndrome. rombergs syndrome is also known http://www.geocities.com/HotSprings/1018/info.html

Parry-Rombergs Syndrome Listed below are a few links to clinic descriptions of Rombergs Syndrome. Rombergs Syndrome is also known as Progressive Facial Hemiatrophy (PFH). National Organization of Rare Disorders Online Mendelian IM entry National Institute of Neurological Disorders and Strokes Please understand that Rombergs affects everyone differently. No two cases are alike. Do not substitute these descriptions for a professional diagnosis from your doctor. Back to Main Page Last Updated November 15, 2002

6. Parry-Rombergs Syndrome Information Listed below are a few links to clinic descriptions of rombergs syndrome. rombergs syndrome is also known as Progressive Facial Hemiatrophy (PFH). Please understand that Rombergs affects everyone differently. No two cases are alike. http://www.geocities.com/HotSprings/1018/info.htm

This page has moved!!! If your browser does not automatically redirect you in 3 seconds, click here to go to the new site. Last Updated January 29, 2003

7. Support Groups Parry-Rombergs Syndrome A B C D E F G H I J K L M N O P Q R S T U V W X Y Z . Back Home Next. Support Groups Parryrombergs syndrome. http://www.ability.org.uk/support_groups_parry-rombergs.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Support Groups Parry-Rombergs Syndrome The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

8. Omniseek: /Health /Consumer Support Groups /Facial Differences /Parry-Rombergs S 130 individuals and families whose lives are affected by rombergs syndrome. We have come together to offer our strength, http://www.omniseek.com/srch/{26968}

News Sections Business Community Computing Directory ... Travel Search Engine Omniseek Multisearch Article Archives About AltaVista Ask Jeeves Euroseek Excite Google Goto HotBot Infoseek LookSmart Lycos Omniseek Snap Webcrawler Yahoo Don't forget to come back to this page and click the check mark to vote for a site! Health /Consumer Support Groups /Facial Differences /Parry-Rombergs Syndrome / The Romberg's Connection The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another. (http://www.geocities.com/HotSprings/1018/) Parry-Rombergs Syndrome Information No Description available (http://www.geocities.com/HotSprings/1018/info.htm) Medical Searches for Rombergs Medical Searches for More Information on Romberg's Syndrome First of all, let us say that we are NOT professional medical researchers. We're not even professional researchers. (http://www.geocities.com/HotSprings/1018/medsearch.htm) Featured On Lycos: A brief look at related pages Websites: Links hand-picked by volunteer editors The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by (dir.lycos.com/Health/Consumer_Support_Groups/Facial_Differences/Parry-Rombergs_Syndrome/)

9. Rombergs Syndrome rombergs syndrome. Email Address rombergs@hotmail.com My name is TheresaHildebrand, I live in Chicago, Illinois, and I have rombergs syndrome. http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderF/10.23.976.28PMRombergsS

Rombergs Syndrome This article submitted by Theresa Hildebrand on 10/23/97. Email Address: rombergs@hotmail.com My name is Theresa Hildebrand, I live in Chicago, Illinois, and I have Rombergs Syndrome. I used to think that I was alone in the world until I found Terry. Terry lives in Washington and he has Rombergs too. We decided to join forces and search for other people who also have Rombergs. Today is Thursday, October 22, 1997, and we have found 12 other people with Rombergs. They live mostly in the USA, but some are from Great Britain, South Africa, and Australia. There may be someone with Rombergs in your neighborhood that you could talk to. You are definitely not alone when it comes to Rombergs !! You can get in touch with us by e-mailing: rombergs@hotmail.com Or visit us, on our webpages: http://www.geocities.com/HotSprings/1018 OR http://www.geocities.com/HtoSprings/Spa/4818 Hope to hear from you soon, Theresa Next Article Previous Article Return to Neurological Disorder Topic Menu Here is a list of responses that have been posted regarding this article... Rombergs Syndrome (10/24/97) 3:53 PM question (10/23/97) 10:14 PM Rombergs (10/23/97) 7:09 PM If you want to post a completely new article on any topic you like

10. Omniseek: Health: /Health /Consumer Support Groups /Facial Differences /Parry-Ro 130 individuals and families whose lives are affected by rombergs syndrome. We have come together to offer our strength, http://health.omniseek.com/srch/{26968}

News Sections Business Community Computing Directory ... Travel Search Engine Omniseek Multisearch Article Archives All Health America's Health Network Dr. Greene's HouseCalls DrKoop.com Health Central HealthAtoZ Healthfinder InteliHealth KidsHealth Mediconsult.com Mental Health Net Thrive Online Virtual Hospital Don't forget to come back to this page and click the check mark to vote for a site! Health /Consumer Support Groups /Facial Differences /Parry-Rombergs Syndrome / The Romberg's Connection The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another. (http://www.geocities.com/HotSprings/1018/) Parry-Rombergs Syndrome Information No Description available (http://www.geocities.com/HotSprings/1018/info.htm) Medical Searches for Rombergs Medical Searches for More Information on Romberg's Syndrome First of all, let us say that we are NOT professional medical researchers. We're not even professional researchers. (http://www.geocities.com/HotSprings/1018/medsearch.htm)

11. Rombergs Syndrome rombergs syndrome. This response submitted by Marilyn Neal on 10/24/97. Iam 50 years old and have had rombergs syndrome for over 35 years. http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderF/RombergsSyndrome.html

Rombergs Syndrome This response submitted by Marilyn Neal on 10/24/97. Email Address: rombergs@hotmail.com I, too, am a member of the Rombergs Connection Support Group. I am 50 years old and have had Rombergs Syndrome for over 35 years. I am so grateful to have found this group. Having such a rare disorder can really make one feel alone. I feel we can share our experiences as well as help each other in trying to find a common thread that would help the medical community come up with some answers concerning this disorder. Previous Article Return to original Article Click HERE to return to the main Neurology WebForum Homepage. These forums are maintained by the Department of Neurology at Massachusetts General Hospital John Lester - Webspinner

12. Parry-Rombergs Syndrome Top Health Consumer Support Groups Facial Differences ParryRombergsSyndrome (1). The Romberg's Connection - The Rombergs Connection http://www.foundhealth.com/Health/Consumer_Support_Groups/Facial_Differences/Par

Advertisement Foundhealth.com Search All Terms Any Term Tips Browse foundhealth.com Health calculators Fast Food Database Speakers Bureau How to evaluate sites Submit a site Contact us Home - main directory Top Health Consumer Support Groups Facial Differences : Parry-Rombergs Syndrome The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Parts of the Open Directory made available on foundhealth.com have been modified. Home Health Tools Fast Food Database Vitamins and Minerals ... foundhealth.com The content provided on this web site is for information purposes only. It is intended to provide educational material and is not designed to provide medical advice. Please consult your health care provider regarding any medical issues you have relating to symptoms, conditions, diseases, diagnosis, treatments and side- effects. Terms and conditions.

13. Rombergs Disorder Romberg Syndrome and Plastic Surgery (1/28/98) 243 PM. rombergs syndrome (1/26/98) 156 PM http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderMenu.html

Rombergs Disorder Menu This is a webforum to discuss and comment on Rombergs Disorder. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: Oct 10, 1997 to Present Useful Websites can be found and posted here! New MGH Neurology Webforums! (12/30/99) 7:38 PM forum working OK now (12/27/99) 1:14 PM God centered post- prayer for all (12/7/99) 12:25 AM ... Test Posting (10/16/97) 3:13 PM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page.

14. Facial Differences Syndrome (2). Parryrombergs syndrome (1); Sagittal Synostosis (1);Stickler's Syndrome (4); Treacher Collins Syndrome (2). AboutFace http://www.foundhealth.com/Health/Consumer_Support_Groups/Facial_Differences/

Advertisement Foundhealth.com Search All Terms Any Term Tips Browse foundhealth.com Health calculators Fast Food Database Speakers Bureau How to evaluate sites Submit a site Contact us Home - main directory Top Health Consumer Support Groups : Facial Differences Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... AboutFace - An international organization which provides information and emotional support to individuals with facial differences and their families. Children's Craniofacial Association - A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for facially disfigured individuals and their families. How Come You Look Different?: Resources on Craniofacial Anomalies - Many useful links on this page. Let's Face It - A nonprofit network for people with facial difference, their families, friends and professionals. We link professionals, patients, parents and communities to each other and to networks, books and articles. The Personal Side of Craniofacial Differences - Dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find.

15. Parry-Rombergs Syndrome : Meddie Health Search ITEMS LINKS Parry Romberg Syndrome Stories from people affected byParry Romberg syndrome, support and information. (Rating 0.00 http://www.meddie.com/search/Health/Consumer_Support_Groups/Facial_Differences/P

HOME ADD A LINK MODIFY A LINK NEW LINKS ... TOP RATED Search Meddie: the entire directory only this category More search options Home Health Consumer Support Groups ... Facial Differences : Parry-Rombergs Syndrome ITEMS: LINKS: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. (Rating: 0.00 Votes: 0) Rate It Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. (Rating: 0.00 Votes: 0) Rate It Romberg's Syndrome General information, contacts, on-line discussion groups and links. (Rating: 0.00 Votes: 0) Rate It The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. (Rating: 0.00 Votes: 0) Rate It HOME ADD A LINK MODIFY A LINK ... Design © ISC Enterprises Inc.

16. Facial Differences : Meddie Health Search Cleft Lip and Palate (16). Craniosynostosis (4). LangerGiedion Syndrome (2).Parry-rombergs syndrome (4). Sagittal Synostosis (3). Stickler's Syndrome (4). http://www.meddie.com/search/Health/Consumer_Support_Groups/Facial_Differences/

HOME ADD A LINK MODIFY A LINK NEW LINKS ... TOP RATED Search Meddie: the entire directory only this category More search options Home Health Consumer Support Groups : Facial Differences CATEGORIES: Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... Treacher Collins Syndrome ITEMS: LINKS: AboutFace International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements. (Rating: 0.00 Votes: 0) Rate It Acne Support Group Information and support on acne, including top ten tips, beauty tips and problems. (Rating: 0.00 Votes: 0) Rate It Arhinia and Other Craniofacial Anomalies Dedicated to arhinia (absence of the nose) and other craniofacial anomalies. (Rating: 0.00 Votes: 0) Rate It Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. (Rating: 0.00 Votes: 0) Rate It Cancer Of The Eye Linkline (CELL) UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links. (Rating: 0.00 Votes: 0)

17. HealthCyclopedia: The Guide To Health Care Resources On The Internet Bone Cancer) Ovarian Cancer Ovarian Cysts Pancreatic Cancer Pancreatitis Parkinson'sDisease Parrot Fever Parryrombergs syndrome Pectus Excavatum Pediculosis http://www.healthcyclopedia.com/az.html

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18. Searchalot Directory For Parry-Rombergs Syndrome Related Web Sites. The Romberg's Connection International supportgroup for families whose lives are affected by Romberg's syndrome. http://www.searchalot.com/Top/Health/SupportGroups/ConditionsandDiseases/FacialD

Home Search News Email Greetings Weather ... Global All the Internet About AltaVista AOL Search Ask Jeeves BBC Search BBC News Business Dictionary Discovery Health Dogpile CheckDomain CNN Corbis eBay Education World Employment Encyclopedia Encarta Excite Fast Search FindLaw FirstGov Google Google Groups Infomine iWon Librarians Index Looksmart Lycos Metacrawler Microsoft Northern Light Open Directory SearchEdu SearchGov Shareware Teoma Thesaurus Thunderstone WayBackMachine Webshots WiseNut Yahoo! Yahoo! Auctions Yahoo! News Yahooligans Zeal Sponsored Links Top Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome Related Web Sites The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. All the Internet About AltaVista AOL Search Ask Jeeves BBC Search BBC News Business Dictionary Discovery Health Dogpile CheckDomain CNN Corbis eBay Education World Employment Encyclopedia Encarta Excite Fast Search FindLaw FirstGov Google Google Groups Infomine iWon Librarians Index Looksmart Lycos Metacrawler Microsoft Northern Light Open Directory SearchEdu SearchGov Shareware Teoma Thesaurus Thunderstone

19. Searchalot Directory For P Psuedotabes (5); Parasitic Infections (81); Paresthesia (2); Parkinson'sDisease (75); Parryrombergs syndrome (4); Passive-Aggressive http://www.searchalot.com/Top/Health/ConditionsandDiseases/P/

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20. Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information.Category Health Support Groups Parry-rombergs syndrome...... rombergs syndrome; This is Kelley Sperry's story Back to The Cannylink homepage. You can email us at Webmaster@cannylink. ©The Canny Link 1997-2003. http://www.cannylink.com/diseaseparryromberg.htm

Search mode: "AND" "OR" Parry Romberg Syndrome Marie's History With Romberg's Deformity Progressive Hemifacial Atrophy Rombergs Connection - support group for people with Romberg's. Rombergs Syndrome This is Kelley Sperry's story... Back to The Cannylink home page You can e-mail us at Webmaster@cannylink

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