21. Health/Consumer_Support_Groups/Facial_Differences/Parry-Rombergs_Syndrome as your guide to reliable health information. / Health / Consumer_Support_Groups/ Facial_Differences / Parryrombergs syndrome. http://www.health-information-resource.com/Health/Consumer_Support_Groups/Facial

Search: Welcome to the health-information-resource.com search portal. Health-information-resource.com is the premiere health and wellness search portal dedicated to providing comprehensive and up-to-date health information. Whether you are a healthcare professional or a healthcare consumer, you are likely to find health, wellness and medical-related information here that is informative and practical. Health-information-resource.com strives to provide the most thorough and reliable health information possible to ensure that every individual and family can better manage their health. Feel free to browse the health-focused directory or conduct a search for your specific wellness-related request. As a healthcare consumer today, you are faced with many important decisions regarding your physical condition. Choosing between hospitals, health care providers, doctors, prescriptions, vitamins, and a variety of other wellness-related choices can be extremely complicated. Finding a single resource that can provide you with all the answers to your health questions may seem like an unbearable task. However, health-information-resource.com can do just that. Our database is updated on a continuous basis with innovative and pertinent content, serving as your guide to reliable health information. Health Parry-Rombergs Syndrome The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome.

22. 1Up Health > Health Links Directory > Support Groups: Conditions And Diseases: F Categories. Apert Syndrome (10) Cleft Lip and Palate (33) Craniosynostosis(4) LangerGiedion Syndrome (2) Parry-rombergs syndrome (4). http://www.1uphealth.com/links/conditions-and-diseases-facial-differences.html

Home Contact Us Privacy Caring For Your Well Being Alternative Medicine Clinical Trials Health News Poisons ... Health Topics A-Z Search 1Up Health Health Directory Addictions Alternative Animal ... Weight Loss By Demography Child Health Teen Health Men's Health Women's Health ... Conditions and Diseases : Facial Differences Categories Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... Treacher Collins Syndrome Sites AboutFace International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements. Acne Support Group Information and support on acne, including top ten tips, beauty tips and problems. Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. Cancer Of The Eye Linkline (CELL) UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links. Changing Faces UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.

23. Parry-Rombergs Syndrome Web Directory. Top / Health / Consumer Support Groups / Facial Differences/ Parryrombergs syndrome The Romberg's Connection The http://www.reference.com/Dir/Health/Consumer_Support_Groups/Facial_Differences/P

(info) Premium: Sign up Login YOUR AD HERE Almanac ... Thesaurus Web Directory Web Directory Top Health Consumer Support Groups Facial Differences / Parry-Rombergs Syndrome The Romberg's Connection The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another. ADVERTISEMENT ADVERTISE WITH US Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Lexico Publishing Group, LLC ... Help

24. A'dan Z'ye Skleroderma: Cizgisel Skleroderma Nedir? Linear Scleroderma Treatments Doctors Bulletin Board UC Davis. ParryRombergsSyndrome Includes patient stories. Parry-rombergs syndrome. http://www.sclero.org/lang/turkish/linear.html

ISN: How We Help ISN Representatives Join or Donate Search This Site The Web Scleroderma from A to Z Hope on Horizon Welcoming Email MEDICAL ... EMAIL We're dedicated to helping you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email me at any time. Shelley Ensz, Webmaster The International Scleroderma Network (ISN) Now Available in 18 Languages: Bahasa Malaysia Chinese Deutsche (German) English ... Worldwide Support Groups Turkish: Skleroderma Nedir? Skleroderma Tipleri: Genel Bakis Cocukluk Cagi Sklerodermasi Nedir? Cizgisel Skleroderma Nedir? Morphea Nedir? CREST Nedir? Yaygin Skleroderma Nedir? Overlap (Ust Uste Binmis) Skleroderma Hikaye sunusu veya Yenileme Formu Gonderiniz Icin Tesekkurler Cizgisel Skleroderma Nedir? Bu sayfa Shelley Ensz tarafindan yazilmistir, ve Mehmet Kalender Cizgisel Skleroderma Nedir? En Coup de Sabre Parry-Rombergs Syndrome ... See Also Cizgisel Skleroderma Nedir? Cizgisel Skleroderma altindaki kas ve kemikleri de etkileyebilen cizgi seklinde derinin kalinlasmasidir, boylelikle etkilenen eklemlerin ve kaslarin hareketlerini kisitlar. En cok kollar, bacaklar ve alin tutur. Ayni anda birden fazla bolgeyi tutabilir.

25. Linear Scleroderma By Scleroderma From A To Z Parryrombergs syndrome. Parry-rombergs syndrome, is also known as ProgressiveHemifacial Atrophy or HFA. Parry-rombergs syndrome Includes patient stories. http://www.sclero.org/medical/about-sd/types/linear.html

ISN: How We Help ISN Representatives Join or Donate Search This Site The Web Scleroderma from A to Z Hope on Horizon Welcoming Email MEDICAL ... EMAIL We're dedicated to helping you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email me at any time. Shelley Ensz, Webmaster The International Scleroderma Network (ISN) Now Available in 18 Languages: Bahasa Malaysia Chinese Deutsche (German) English ... Worldwide Support Groups Select Medical Topic Here What is Scleroderma? Causes of Scleroderma Difficult Diagnosis Types of Scleroderma Localized: - Linear Scleroderma - Morphea Scleroderma - Juvenile Scleroderma Systemic: - CREST Syndrome - Diffuse Scleroderma - Limited Scleroderma - Overlap/MCTD/UCTD Photos of Scleroderma Symptoms Scleroderma Specialists Scleroderma Registries U.K. Registry Ineffective or Unproven Alternative Medicine Scleroderma Symptoms Cardiac (Heart) Dental/Mouth Gastrointestinal Liver Pulmonary (Lungs) Raynaud's (Cold Hands/Feet) Renal (Kidney) Calcinosis Fibrosis (Hardening) Telangiectasia (Spider Veins) Xerosis (Dry Skin) SIMILAR TO SCLERODERMA Arthritis/Dermatology (General) Atrophoderma of Pierini/Pasini Eosinophilic Fasciitis Eosinophilia-Myalgia (EMS) Glossary of Skin Disorders Lichen Sclerosis

26. Online And Offline Support: R Romberg Syndrome/ParryRomberg Syndrome. The Rombergs Connection and The Romberg'sConnection Annex People served Individuals dealing with rombergs syndrome; http://www.widesmiles.org/support/r.html

R Robinow Syndrome Robinow Syndrome Foundation People served: Individuals and families dealing with Robinow Syndrome Services provided: Information and support Address: 15955 Uplander Street NW, Andover MN 55304-2501 Phone number: (612) 434-1152 Contact person: Karla Kruger Romberg Syndrome/Parry-Romberg Syndrome The Rombergs Connection and The Romberg's Connection Annex People served: Individuals dealing with Rombergs Syndrome Services provided: Information and support Email address: rombergs@hotmail.com Main Website: http://www.geocities.com/HotSprings/1018/ Annex Website: http://www.geocities.com/HotSprings/Spa/4818/ Rubinstein-Taybi Syndrome Please note: Children, teens, and adults with Rubinstein-Taybi Syndrome have specific facial features that do not require reconstructive surgery. Rubinstein-Taybi Parent Group (RTPG) People served: Parents of children with Rubinstein-Taybi Syndrome Services provided: Support, parent-matching, information, and newsletter Address: PO Box 146, Smith Center KS 66967 Phone number: (785) 697-2984 Contact people: Garry and Lorrie Baxter Email address: lbaxter@ruraltel.net

27. Online And Offline Support: P ParryRomberg Syndrome/Romberg Syndrome. The Rombergs Connection and The Romberg'sConnection Annex People served Individuals dealing with rombergs syndrome; http://www.widesmiles.org/support/p.html

P Pallister-Hall Syndrome Pallister-Hall Foundation People served: Families dealing with Pallister-Hall Syndrome Services provided: Information and referral, networking, and printed materials Address: RFD Box, 3000 Fairground Road, Bradford VT 05033 Pallister-Killian Syndrome Pallister-Killian Family Support Group People served: Individuals and families dealing with Pallister-Killian Syndrome and related syndromes Services provided: Information and support Address: 3700 Wyndale Court, Fort Worth TX 76109 Phone number: (817) 927-8854 Parry-Romberg Syndrome/Romberg Syndrome The Rombergs Connection and The Romberg's Connection Annex People served: Individuals dealing with Rombergs Syndrome Services provided: Information and support Email address: rombergs@hotmail.com Main Website: http://www.geocities.com/HotSprings/1018/ Annex Website: http://www.geocities.com/HotSprings/Spa/4818/ Pituitary Disorders Please note: Pituitary disorders can occur with craniofacial conditions. Pituitary Tumor Network Association Network People served: Individuals and families dealing with pituitary tumors or other disorders of the pituitary gland Services: Offline: Information and referral, resource guide, news on diagnosis and treatment, and support

28. WebGuest - Open Directory Health Support Groups Conditions Parryrombergs syndrome (4). Sagittal Synostosis (3); Smith-Magenis Syndrome@(4); Stickler's Syndrome (3); Treacher Collins Syndrome (5). Sites http://directory.webguest.com/index.cgi/Health/Support_Groups/Conditions_and_Dis

29. Directory :: Look.com Parryrombergs syndrome (4) Sites. Parry Romberg Syndrome Stories frompeople affected by Parry Romberg syndrome, support and information. http://www.look.com/searchroute/directorysearch.asp?p=58495

30. Directory :: Look.com Pancreatitis (9) Panic (21) Papillotonic Psuedotabes (5) Parasitic Infections (81)Paresthesia (2) Parkinson's Disease (75) Parryrombergs syndrome (4) Passive http://www.look.com/searchroute/directorysearch.asp?p=43358

31. Burn Support Groups Database hotmail.com; Link to the Parry rombergs syndrome web site in the USA.To the top of this page Return to Home page Return to database. http://www.burnsupportgroupsdatabase.com/files/south-af.htm

32. Parry-Rombergs Syndrome Website Results :: Linkspider UK Parryrombergs syndrome Websites from the Linkspider UK. Parry-rombergs syndromeDirectory. Complete Results for Parry-rombergs syndrome Related Topics. http://www.linkspider.co.uk/Health/SupportGroups/ConditionsandDiseases/FacialDif

Parry-Rombergs Syndrome Websites from Linkspider UK Keyword: Parry-Rombergs Syndrome Linkspider UK Directory Parry-Rombergs Syndrome Search for Directory Tree: Top Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome (4) Add URL Advertise Here! Personalize Amazon ... The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.

33. P Website Results :: Linkspider UK Disease@ (75); Parryrombergs syndrome@ (4); Passive-Aggressive PersonalityDisorder@ (5); Patellofemoral Disorder@ (8); Pathologic http://www.linkspider.co.uk/Health/ConditionsandDiseases/P/

P Websites from Linkspider UK Keyword: P Linkspider UK Directory P Search for Directory Tree: Top Health Conditions and Diseases : P (0) Add URL Advertise Here! Personalize Amazon ... Pyromania

34. The DRM WebWatcher: Parry Romberg Syndrome personal website represents an international support group made up of over 200 individualsand families whose lives are affected by rombergs syndrome and who http://www.disabilityresources.org/PARRY.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Parry Romberg Syndrome Updated 7/24/2001 A B C D ... About/Hint/Link Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder characterized primarily by the wasting away of the tissue on one side of the face. Beyond the Mirror This well-written article from the Rocky Mountain News describes the impact of Parry Romberg syndrome on a 10-year-old girl and her family. Hemifacial Atrophy, Progressive A technical overview and references from the Online Mendelian Inheritance in Man (OMIM) database. NINDS Parry Romberg Syndrome Information Page A brief overview of Parry Romberg syndrome from The National Institute of Neurological Disorders and Stroke. Parry Romberg Syndrome An overview from the National Organization for Rare Disorders database. The Romberg's Connection This personal website represents "an international support group made up of over 200 individuals and families whose lives are affected by Rombergs Syndrome [and who have] come together to offer our strength, courage, support and friendship to one another." Its contents include a message board relating to surgery, frequently asked questions, a short online newsletter, family photos and stories, and some links. Related Subjects Craniofacial Disorders Neurological Disorders Rare Disorders Resources in your state (c) 1997-2001 Disability Resources, inc.

35. The Personal Side Of Craniofacial Differences Personal accounts of living with craniofacial conditions, and related webrings.Category Health Support Groups Facial Differences...... CranioSynostosis; Crouzon Syndrome; Goodman Syndrome. Page 2 Jackson-Weiss; Langer-Geidon;Parry-rombergs syndrome; Pfeiffer Syndrome; Pierre-Robin Syndrome/Sequence; http://members.tripod.com/~Craniofacial/

To the Personal Side of Craniofacial Differences This page is dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find. We are starting out with just 15 disorders, so please feel free to e-mail me with any craniofacial disorders that are not listed here. Thanks to all who have sent me links already. Page 1 Antley-Bixler Syndrome Apert Syndrome Arhinia Baller-Gerold Syndrome Carpenter Syndrome Cranio-Synostosis Crouzon Syndrome Goodman Syndrome Page 2 Jackson-Weiss Langer-Geidon Parry-Rombergs Syndrome Pfeiffer Syndrome Pierre-Robin Syndrome/Sequence Saethre-Chotzen Syndrome Sagittal Synostosis Shprintzen-Goldberg Stickler Syndrome Treacher-Collins * Website updated March 18, 2002 *

36. Electricbrain Home: Index: Health: Consumer Support Groups: Facial Differences: electricbrain Index Health Consumer Support Groups Facial DifferencesParryrombergs syndrome, home index write privacy. Famous quotes http://www.electricbrain.com/index/Health/Consumer_Support_Groups/Facial_Differe

electricbrain Index Health Consumer Support Groups ... Facial Differences : Parry-Rombergs Syndrome home index write privacy Famous quotes: A single flow'r he sent me, since we met. All tenderly his messenger he chose; Deep-hearted, pure, with scented dew still wet One perfect rose. I knew the language of the floweret; "My fragile leaves," it said, "his heart enclose." Love long has taken for his amulet One perfect rose. Why is it no one ever sent me yet One perfect limousine, do you suppose? Ah no, it's always just my luck to get One perfect rose. Dorothy Parker, "One Perfect Rose" Find someone: Old Friends New Friends Lost Love New Love ... privacy

37. Electricbrain Home: Index: Health: Consumer Support Groups: Facial Differences LangerGiedion Syndrome Apert Syndrome Craniosynostosis Parry-rombergs syndrome SagittalSynostosis Stickler's Syndrome Treacher Collins Syndrome Cleft Lip and http://www.electricbrain.com/index/Health/Consumer_Support_Groups/Facial_Differe

electricbrain Index Health Consumer Support Groups : Facial Differences home index write privacy ... Cleft Lip and Palate Famous quotes: WARNING: Reading this fortune can affect the dimensionality of your mind, change the curvature of your spine, cause the growth of hair on your palms, and make a difference in the outcome of your favorite war. Find someone: Old Friends New Friends Lost Love New Love ... privacy

38. Listings Of The World Health Support Groups Conditions And Listings World Health Support Groups Conditions and Diseases Facial DifferencesParryrombergs syndrome. Listings World, http://listingsworld.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Di

39. Listings Of The World Health Support Groups Conditions And Apert Syndrome (10) Cleft Lip and Palate (35) Craniosynostosis (5), LangerGiedionSyndrome (3) Parry-rombergs syndrome (5) Sagittal Synostosis (4), Stickler's http://listingsworld.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Di

40. Facial Difference / Disfigurement / Scars Deformity - Dr.Bermant's Plastic Surge http//www.geocities.com/HotSprings/1018/, We are a newly founded internationalsupport group for people whose lives are affected by rombergs syndrome. http://www.plasticsurgery4u.com/web_links_folder/facial_difference.html

PlasticWeb - websites of interest to plastic surgery patients. Explore PlasticWeb sites of interest to our plastic cosmetic hand and reconstructive surgery patients having concerns of facial difference. Learn about cleft lip and palate, makeup, deformity, scar treatment, prosthetics, and many other resources. Michael Bermant, MD Board Certified by the American Board of Plastic Surgery Reconstructive Hand Cosmetic Congenital Breast Skin Cancer Microsurgery About Dr. Bermant Find us Multimedia Lectures Kid's view Bulletin boards PlasticWeb PlasticArt Home Facial Difference on the Net Search Barnes and Noble for Plastic Surgery and Cosmetic Surgery Visit Barnes and Noble for cleft lip and cleft palate Visit Barnes and Noble for facial difference Visit Barnes and Noble - living with facial difference Ability OnLine www.ablelink.org E-mail: craig.mabee@ablelink.org Tel: (416) 650-6207 Fax: (416) 650-5073 " Ability OnLine is an electronic mail system that connects young people with disabilities or chronic illness to disabled and non-disabled peers and mentors. This easy-to-use network gives "wings" to thousands of children and adolescents by removing the social barriers that can come with having a disability and illness, and by providing opportunities to form friendships, build self-confidence, exchange information, and share hope and encouragement through E-mail messages

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