41. Scleroderma (in Children) The Romberg's Connection is an international support group made up of over 200individuals and families whose lives are affected by rombergs syndrome http://ibis-birthdefects.org/start/sclerode.htm

Tips for printing Scleroderma (in children) Perry Romberg Syndrome About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Please Explore: Peters Plus S. Werner S. Support Groups Professional Associations ... Key Information Sources Contents include Titles and Centromeric Protein C1 Centromeric Protein C1 Pseudogene Coup De Sabre Crest Syndrome Crst Syndrome Hemifacial Atrophy Progressive HFA Increased Chromosomal breakage rate of Scleroderma Localized Scleroderma Morphea Morphoea PCNT Pericentrin Progressive Hemifacial Atrophy Raynaud's Romberg Perry Scleroderma (in children) Systemic Sclerosis Special Resources Scleroderma (in children) A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Group [**] [S] Scleroderma (in Children) An article by Thomas J.A. Lehman MD Scleroderma Foundation in Watsonville, California Scleroderma in childhood may occur as localized morphea, linear scleroderma, progressive systemic sclerosis or the CREST syndrome ... begin as areas of either increased or decreased pigmentation which are reddish at first and then become progressively hardened and "shrunken" ... no intervention is warrented unless the area of involvement overlies a joint ... progressive tightening of the skin and underlying tissues may produce flexion contractures ... Sclerodermatomyositis is an infrequent, but well - described entity ... characteristic changes of linear scleroderma accompanied by a dermatomyositis - like rash, weakness, and muscle inflammation ... Progressive systemic sclerosis and CREST syndrome are potentially severe, life threatening illnesses in children ...

42. Craniofacial Anomalies Syndrome Cranio – Synostosis Crouzon Syndrome Goodman Syndrome Page 2 Jackson– Weiss Langer – Geidon Parry – rombergs syndrome Pfeiffer Syndrome http://ibis-birthdefects.org/start/craniofa.htm

Tips for printing Craniofacial Anomalies Craniostenosis Craniosynostosis About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Please Explore: Cleft Lip Palate Crouzon S. DiGeorge Pierre Robin S. ... Key Information Sources Topics include Titles and Craniosynostoses Special Resources Craniofacial Anomalies A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Group [Hungarian] [Ukrainian] CRANIOFACIAL ANOMALIES (Nicely illustrated) by Neil Feldstein MD, a pediatric neurosurgeon at Columbia - Presbyterian Medical Center in New York City from Pediatric Neurosurgery Craniofacial Anomalies Extramural Information Center [P] The Journal Of Craniofacial Surgery from The Journal Of Craniofacial Surgery An international journal dedicated to the art and science essential to the practice of craniofacional surgery ... Official ... [P] Society of Craniofacial Genetics from Society of Craniofacial Genetics Founded in 1975 to promote education, research, and communication in normal and abnormal development of the craniofacies ...

43. $TITLE Liechtenstein Facial Differences Apert Syndrome Cleft Lip and Palate CraniosynostosisLangerGiedion Syndrome Parry-rombergs syndrome Sagittal Synostosis Smith http://www.slider.com/index/indexfa.htm

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44. Support Groups www.geocities.com/HotSprings/1018/index.html Our group was formed in June of '97by Theresa Hildebrand and Terry Burau for people with Parry rombergs syndrome. http://www.worldcf.org/supportgroups.htm

CRANIOFACIAL TREATMENT CENTERS University of California - Los Angeles Director: H.K. Kawamoto, Jr. MD, DDS UCLA School of Medicine Division of Plastic Surgery 10833 Le Conte Ave. Los Angeles, CA 90024-1665 Phone: 310.825.5898 Fax: 310.825.2785 University of Southern California Director: John F. Reinisch, M.D. Children's Hospital - Los Angeles Division of Plastic Surgery 4650 Sunset Blvd. Phone: 213.669.4542 Fax: 213.669.4106 Stanford University Director: Stephen A. Schendel, MD, DDS Stanford U. Med. Center Stanford, CA 94305 Phone: 650.723.5824 Fax: 650.725.6605 Tampa Bay Craniofacial Center Director: Mutaz B. Habal, MD 802 W. Buffalo Ave. Tampa, FL 33603-3301 Phone: 813.238.0409 Fax: 813.238.1119 University of Kansas Director: Ned Garrigues, MD University of Kansas Plastic Surgery Sutherland Institute 3901 Rainbow Blvd. Kansas City, KS 66160-7389

45. Browsing Health Conditions And Diseases P Category Pancreatic Cancer Pancreatitis Panic Papillotonic Psuedotabes Parasitic InfectionsParesthesia Parkinson's Disease Parryrombergs syndrome Passive-Aggressive http://www.uksprite.com/search/search/Health/Conditions_and_Diseases/P/

46. Browsing Health Support Groups Conditions And Diseases Facial Browse Health Support Groups Conditions and Diseases Facial DifferencesParryrombergs syndrome Top Health Support Groups Conditions http://www.uksprite.com/search/search/Health/Support_Groups/Conditions_and_Disea

47. Sickkidslinks Geniveve cystic fibrosis, Lori lyme, Julie rombergs syndrome, Anon fiberousdysplagia, Kristie KleinLevin syndrome, Jeff chiari malformation, Matt crohns, http://members.aol.com/sharonw1124/page15.html

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48. Therapeutical Areas Romberg Syndrome; Progressive Hemifacial Atrophy; Rombergs Connection support group for people with Romberg's. rombergs syndrome. http://www.rdes.com/rdes/links/therapeutical areas/autoinmune/parry.htm

Therapeutical Areas Autoinmune Diseases Links Parry-Romberg's Syndrome Judy's Parry-Romberg Story Marie's History With Romberg's Deformity NORD - Parry Romberg Syndrome Progressive Hemifacial Atrophy ... Rombergs Connection - support group for people with Romberg's. Rombergs Syndrome Home The Company Services ... Contact us Revised: 26 ene 2001. RDES, SL Tarragona 84, 2º, 1ª 08015 Barcelona (Spain) Telf: +34 932 267 496 Fax: +34 932 263 061 RDES, SL Dr. Esquerdo 102 28007 Madrid (Spain) Telf: +34 902 160 507 Fax: +34 932 265 833

49. Open Directory - Health: Conditions And Diseases: P 80); Paresthesia@ (2); Parkinson's Disease@ (74); Parryrombergs syndrome@(4); Passive-Aggressive Personality Disorder@ (5); Patellofemoral http://www.mptdo.com/Health/Conditions_and_Diseases/P/

about dmoz add URL help the entire directory only in Conditions_and_Diseases/P Top Health Conditions and Diseases : P Description A B C ... O P Q R S T ... Pyromania Conditions and Diseases " search on: All the Web AltaVista Google USENET Google ... Yahoo Last update: 11:05 PT, Monday, July 8, 2002 - edit bfjrio Angebotsseiten: Reisen erotik

50. BigTome.com Hydranecephaly Tricuspid Valve Disease Mad Cow Disease Hay Fever Hematuria MyositisMultiple Sclerosis Eosinophilia Parryrombergs syndrome Hearing Disorders http://disease.bigtome.com/bth/bt1_disease_1.shtml

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51. DISEASE: Parry-Rombergs Syndrome Click to Visit. DISEASE Parryrombergs syndrome. Related Terms. Syndrome,Down syndrome, Irritable bowel syndrome, Chronic fatigue syndrome. http://disease.bigtome.com/big/page/Parry-Rombergs_Syndrome

DISEASE: Parry-Rombergs Syndrome Related Terms Syndrome Down syndrome Irritable bowel syndrome Chronic fatigue syndrome ... Fragile x syndrome Categories (1-1 of 1) Health: Support_Groups: Conditions_and_Diseases: Facial_Differences: Parry-Rombergs_Syndrome Put this Directory on Your Site! Submit a Site Become an Editor

52. The US Bridge Treacher Collins Syndrome Sagittal Synostosis Parryrombergs syndromeLanger-Giedion Syndrome Cleft Lip and Palate Apert Syndrome Other http://www.theusbridge.com/MLM_4_MLM_3_Health_&_Beauty_Consumer_Support_Groups.h

Home Advanced Search Home You are in USA Search Go to Web Matches Treacher Collins Syndrome Sagittal Synostosis Parry-Rombergs Syndrome ... Investor Info

53. Open Directory & Pay Per Click Search Engine: Health/Support Groups/Conditions A Cleft Lip and Palate (34). Craniosynostosis (4). LangerGiedion Syndrome (2).Parry-rombergs syndrome (4). Sagittal Synostosis (3). Stickler's Syndrome (3). http://www.searchpixie.com/Health/Support_Groups/Conditions_and_Diseases/Facial_

Need Traffic TrafficGiveAway.com Search the Web Home Toolbar LinkManager bookmark ... Conditions and Diseases : Facial Differences CATEGORIES: Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... Treacher Collins Syndrome LINKS: AboutFace International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements. http://www.Aboutfaceinternational.org Acne Support Group Information and support on acne, including top ten tips, beauty tips and problems. http://www.stopspots.org/ Beneath the Surface Created for all individuals of facial difference who are looking for support, resources, and a forum to share their stories and read about others. http://beneaththesurfaceweb.com Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. http://www.birthmarksupportgroup.org.uk/ Cancer Of The Eye Linkline (CELL) UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.

54. AnsMe Directory - Health > Conditions And Diseases > P Paresthesia. Parkinson's Disease. Parryrombergs syndrome. Passive-AggressivePersonality Disorder. Patellofemoral Disorder. Pathologic Nystagmus. http://dir.ansme.com/health/43358.html

Search: Web Sites Dictionary - Define Dictionary - Sounds Like Dictionary - Relations Dictionary - Rhymes Dictionary - Translate Sponsors Web Directory P Web Directory Health Conditions and Diseases Sub Directories PCC Deficiency POEMS Syndrome Pain Pallister Killian Mosaic Syndrome ... Submit Site All other brands are property of their respective owners. Directory Dictionary AIM Smileys Contact Us

55. TalkZ.com Florida Internet Access 93); Paresthesia@ (2); Parkinson's Disease@ (74); Parryrombergs syndrome@(4); Passive-Aggressive Personality Disorder@ (5); Patellofemoral http://www.talkz.com/directory.php/Health/Conditions_and_Diseases/P/

56. Omniseek: Health: /Health/Consumer Support Groups/Facial Differences Support Groups Facial Differences Apert Syndrome Cleft Lip and Palate CraniosynostosisLangerGiedion Syndrome Parry-rombergs syndrome Sagittal Synostosis http://health.omniseek.com/dir/Health/Consumer_Support_Groups/Facial_Differences

News Sections Business Community Computing Directory ... Travel Search Engine Omniseek Multisearch Article Archives All Health America's Health Network Dr. Greene's HouseCalls DrKoop.com Health Central HealthAtoZ Healthfinder InteliHealth KidsHealth Mediconsult.com Mental Health Net Thrive Online Virtual Hospital Top Health Consumer Support Groups Facial Differences Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome Parry-Rombergs Syndrome Sagittal Synostosis Stickler's Syndrome Treacher Collins Syndrome Show Sites in this topic Mon Mar 31, 3:50 am

57. What Is Localized (Morphea And Linear) Scleroderma?  By  Surviving Scleroderma Parryrombergs syndrome, The Romberg's Connection; Photo of 'en coup de sabre',Dermatlas; Scleroderma 'en coup de sabre' and progressive facial hemiatrophy. http://sclerodermasupport.com/medical/facts/localized.htm

Site Search SD Facts SD Symptoms SD Involvement SD Medical News ... Our Store About Us: Site Cop yright Finance Issues ... Contact Info by Sherry Messick Read Site Go To Top Return Home Scleroderma Facts What is Localized Scleroderma? There are two main types of the localized form of scleroderma. These are Linear and Morphea. These forms of scleroderma happen most often to children however some cases are reported in young and older adults. Below is an alphabetical listing of information resources I hope will be of value to you. Adopt-A-Page Care Bear For The Scleroderma Fact Pages Sandra Lehman is your Adopt-a-page care bear for the Scleroderma Fact Pages. Sandra volunteers to ensure the links here are current and researches online for related information. Information Resources Book: Raising a Child With Arthritis : Parents Guide by the Arthritis Foundation Good News for Children with Localized Scleroderma , The Arthritis Foundation Juvenile scleroderma, PMID: 12192254, Curr Opin Rheumatol 2002 Sep;14(5):553-61 PubMed Juvenile Scleroderma Network , 501(c)(3) NonProfit Juvenile-onset localized scleroderma activity detection by infrared thermography,

58. CCDD: Physician: References: Links Romberg's Connection, An international support group made up of over 200individuals and families whose lives are affected by rombergs syndrome. http://www.hopkinsmedicine.org/craniofacial/References/Links.cfm?Category=Physic

59. List Of Illnesses - Friends' Health Connection Disorder Papillary Carcinoma Paralysis Paralysis (Vocal Cord) Paraplegia ParasitesParkinson's Disease Parotiditos Parry rombergs syndrome PelizaeusMerzbacher http://www.friendshealthconnection.org/illnesses.shtml

List of Illnesses Below is a list of the health problems for which we currently have members. New members join daily. Please feel free to fill out a membership application even if your health problem is not listed. As new members join with your health problem we will connect you. A B C D ... W X Y Z A Abdominal Adhesions Abdominal Pain Abherrant Regeneration Accident survivors Achalasia Acid Reflux Acne Rosacea Acoustic Neuroma Acute Disseminated Encephalomyelitis Adenocarcinoma Addisons Disease Agoraphobia Adrenal Dysfunction Agnogenic Myeloid Metaplasia AIDS Alcoholism (recovering) Allergic Broncho Pulmonary Aspergillosis Allergies (General) Allergies (Bee) Allergies (Food) Allergies (to chemicals) Allergies (to mold) Alloimmunthrombocytopenia Alopecia Areata Alzheimer's Amputations Amyotrophic Lateral Sclerosis (ALS) Anaphylaxis Anemia Anemia (Hemolytic) Anemia (Pernicious) Angina Angiodema Angogenic Metaplasia Ankylosing Spondylitis (see also Arthritis) Anorectal Problems Anorexia Antiphospholipid Antibody Syndrome Anxiety Aorta Pulmonary Window Aortic Valve Replacement Aphasia Apnea (Sleep) Archnoiditis Arnold-Chiari Malformation Arteriovenous Malformation (AVM) Arteritis (Giant Cell Temple) Artheroclerosis Arthralgia Arthritis Arthritis (Adult Onset) Arthritis (Degenerative) Arthritis (Juvenile Rheumatoid) Arthritis (Non-Rheumatoid Inflammatory) Arthritis (Osteo) Arthritis (Zero-negative) Arthrogrypossis Asperger's Syndrome Aspergillosis Asthma Asthmatic Bronchitis Astigmatism

60. DINO - Language: Englisch - Health - Conditions And Diseases - P Paresthesia Dieser Link verweist auf eine HauptKategorie Parkinson's Disease DieserLink verweist auf eine Haupt-Kategorie Parry-rombergs syndrome Dieser Link http://www.dino-online.de/dino_page_929b53fb0f29c1800f934e42b3cdd50a.html

Suche Profi-Suche Katalog Video ... Produkte Suchen: Web-Seiten Video Audio Bilder Produkte Schon gewusst? Hier suchen Sie in 2 Milliarden Webseiten. Live-Suche: Was suchen andere Dino-Besucher? You are here: DINO Language Englisch Health ... Conditions and Diseases P P Sprache/Language Categories Pain Pallister Killian Mosaic Syndrome Pallister-Hall Syndrome Pancreatic Cancer Pancreatitis Panic Papillotonic Psuedotabes Parasitic Infections Paresthesia Parkinson's Disease Parry-Rombergs Syndrome Passive-Aggressive Personality Disorder Patellofemoral Disorder Pathologic Nystagmus Pathological Gambling PCC Deficiency Pectus Excavatum Pediculosis Pellagra Pelvic Inflammatory Disease - PID Pemphigoid Pemphigus Peptic Ulcers Pericarditis Periodontal Diseases Periodontitis Peripheral Arterial Disease Peripheral Neuropathy Pernicious Anemia Persistent Vegetative State Personality Disorders Pertussis Pharyngitis Phenylketonuria Phobias Pick Disease of the Brain Pickwickian Syndrome Pierre Robin Syndrome Pigmentary Pallidal Degeneration Pink Disease Pinkeye Pinworms Pituitary Disorders Platelet Disorders Pleurisy Pneumonia POEMS Syndrome Poison Ivy Poliomyelitis Polycystic Kidney Polycystic Ovarian Syndrome Polydystrophic Oligophrenia Pompe Disease Popliteal Pterygium Syndrome Porencephaly Porphyrias Portal-Systemic Encephalopathy Post Polio Syndrome Post Traumatic Stress Disorder Postural Orthostatic Tachycardia Syndrome Potter's Syndrome Prader-Willi Syndrome Pregnancy Complications Premature Ejaculation Priapism

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