1. Sagittal Synostosis Homepage Information (including details of genetic research) and support for people affected by this condition.Category Health Support Groups sagittal synostosis......sagittal synostosis is a condition in infants where the sagittal suture (the softspot or fontanelle on top of the head between the left and right sides of the http://www.geocities.com/HotSprings/6751/

There are over 100 links "buried" in our site. We've put the top ones all in 1 place for your convenience. Click Here! Dig deep and learn more about this condition, surgical options, and the future. Recent genetics research estimates that sagittal synostosis appears in 1 in 4000 to 1 in 8500 live births, with a 2 - 6% chance of being hereditary. In other words, there is only a 1 in 133,333 to 1 in 850,000 chance of having two children with this rare condition. Well, our two children each have it. Our daughter, Shauna, was born in July, 1997. Although the doctors and literature available in 1994 advised us that sagittal synostosis is not genetic, we now believe otherwise. At one week of age, Shauna was also diagnosed with sagittal synostosis. She ended up having the surgery in November, 1997, when she was 15 weeks old. If you have found this website, it is probably because you are concerned about somebody you know who may have sagittal synostosis (or a related problem). We have put together this web page so that, as parents and other care-givers, you will know that you are not alone and that help and information are out there. We have found the links contained herein very informative and we encourage you to access them for more information. If you have found other interesting websites, please advise us and we will add them to our list so that others may benefit.

2. Sagittal Synostsis Chapter 3 sagittal synostosis. The particular infants with sagittal synostosischaracteristically have normal intelligence. In sagittal http://www.erlanger.org/craniofacial/book/craniosynostosis/cranio_2.htm

Chapter 3 Sagittal Synostosis Craniosynostosis Sagittal Synostosis Metopic Synostosis Unilateral Coronal Synostosis Bicoronal Synostosis Posterior Plagiocephaly ... Crouzon Syndrome CHAPTERS Introduction Clefts of the Lip and Palate Ear Reconstruction Craniosynostosis Orbital Reconstruction Treacher Collins Syndrome Nasal Reconstruction Orthognathic Surgery ... Summary Premature closure of the sagittal suture, the longitudinal suture on the top of the head, stops growth laterally producing a narrow head. There is a compensatory growth in the anteroposterior direction with elongation of the skull and a bulging of the front and back of the head. This particular deformity is called scaphocephaly due to the skull's boat shaped appearance. Synostosis of the sagittal suture is the most frequent type of single suture craniosynostosis. It makes up 50-60% of all patients within North America with craniosynostosis. The particular infants with sagittal synostosis characteristically have normal intelligence. Scaphocephaly Preoperative Postoperative Preoperative Postoperative The Tennessee Craniofacial Center, part of the Erlanger Health System, is located in

3. Sagittal Synostosis Poczta Czat SMS Pomoc Szukaj.wp.pl Katalog -Polskie www -wiatowe www -Wirtualna Polska -Katalog wiatowy -FTP/Pliki -Grupy dyskusyjne R E K L A M A R E K L A M A wp.pl Katalog Katalog wiatowy Health Consumer Support Groups http://cpmcnet.columbia.edu/dept/nsg/PNS/cf/sagittal.html

Also known as scaphocephaly or dolicocephaly , the sagittal suture closes early and restricts groth of the head in the side to side direction. This forces the head to grow in a front to back direction which leads to a narrow elongated head. Usually there is an associated fullness or "bossing" to the forehead.

4. Sagittal Synostosis sagittal synostosis Homepage sagittal synostosis (also known as scaphocephaly,dolicocephaly, sagittal craniostenosis, or sagittal craniosynostosis), is a http://www.foundhealth.com/Health/Consumer_Support_Groups/Facial_Differences/Sag

Advertisement Foundhealth.com Search All Terms Any Term Tips Browse foundhealth.com Health calculators Fast Food Database Speakers Bureau How to evaluate sites Submit a site Contact us Home - main directory Top Health Consumer Support Groups Facial Differences : Sagittal Synostosis Sagittal Synostosis Homepage Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Parts of the Open Directory made available on foundhealth.com have been modified. Home Health Tools Fast Food Database Vitamins and Minerals ... foundhealth.com The content provided on this web site is for information purposes only. It is intended to provide educational material and is not designed to provide medical advice. Please consult your health care provider regarding any medical issues you have relating to symptoms, conditions, diseases, diagnosis, treatments and side- effects. Terms and conditions. Advertisement

5. Sagittal Synostosis Homepage Home About Sagittal Our Story Common Questions. Contact Us Genetics Site Map. MostUseful Links Home About Sagittal Our Story Common Questions . http://www.geocities.com/HotSprings/6751/top10.htm

Most Useful Links: Common Questions Stored Searches Useful Links Case Studies ... What to Expect After the Surgery [ Home ] About Sagittal Our Story Common Questions sagittal@geocities.com

6. Devin's Craniosynostosis Page Devin was born with a condition called Craniosynostosis (sagittal synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada. http://www.geocities.com/mikayla_cutiepatootie/Devin3_cranio.html

Devin's Craniosynostosis Page CRANIOSYNOSTOSIS Craniosynosotosis is the premature closing of one or more of the sutures in the skull. More specifically Devin was diagnosed with Sagittal Synostosis, which is the premature closing of the Sagittal Suture (the suture that runs front to back). Because it had fused prematurely his skull would not be able to grow properly. As the brain was developing his skull would only be able to grow where the sutures were open (the front and the back). Hence Devin's skull was growing in a boat shape - very long and narrow with a bossing forehead and back on the head. Sagittal Synostosis is the most common form and occurs in approx. 1 out of every 2000 births. There is debate as to the cause and the effects that it may have (is there pressure on the brain?), no one really knows for sure but what they do know is that it can have profound psychological effects on the individual (looking abnormal, teasing etc). And that's when we knew we had to do something, something to give Devin the best possible childhood and the best possible chance for a healthy and happy future. To us that meant proceeding with the surgery. Although we were given the choice, to us it hardly seemed like a choice, how could we opt not to have the surgery. I hope as Devin grows up he realizes that everything we did and all the choices we made for him are because we love him so much. When deciding we asked ourselves - At 10, 15 or 20 years old would Devin be happy with the choices we made for him? and the only answer we could come to was YES

7. Sagittal Synostosis - Article Read an article detailing the case of a child with sagittal synostosis. Survey the treatment options available for the condition. I have a 14 month old son diagnosed with sagittal synostosis. There are no http://dem0nmac.mgh.harvard.edu/neurowebforum/ChildNeurologyArticles/SagittalSyn

Sagittal Synostosis This article submitted by Jim Butler on 8/1/96. Author's Email: JBBBUTLER@aol.com I have a 14 month old son diagnosed with sagittal synostosis. There are no problems apart from a long, narrow head shape, i.e., head is symmetrical, no facial deformities, etc. Condition was not apparent until he was 9 months old. Drs. also assure us there is no present health threat we've had CT scans, opthamological exams, etc. However, surgery (major cranial reconstruction) is recommended to restore a "normal" head shape and avoid teasing and problems with self-esteem in later childhood. Surgery is scheduled for September 5. But the trauma and risks associated with surgery are giving us second thoughts. Primary question is: how serious is the problem the surgery will prevent? I'm hoping to hear from parents or Drs. familiar with children with similar condition at a later age. What was the impact? Was surgery subsequently done to prevent social problems? Also interested in hearing about recovery from surgery in an older (> 1 yr) child. Son is extremely active, and we don't know how we're going to keep him quiet for the

8. Sagittal Synostosis I have a 14 month old son diagnosed with sagittal synostosis. It is apparently a "mild" case, as it was not noticeable http://neuro-www.mgh.harvard.edu/neurowebforum/GeneralFeedbackArticles/SagittalS

Sagittal Synostosis This article submitted by Jim Butler on 7/30/96. Author's Email: JBBBUTLER@aol.com I have a 14 month old son diagnosed with sagittal synostosis. It is apparently a "mild" case, as it was not noticeable to pediatrician until 10 months. Head is symmetrical, no facial deformities, but head is long and narrow. Drs assure us there is no present health threat we've had CT scans, opthamological exams, etc. Reason for surgery is to prevent teasing and self-esteem problems in later childhood. Surgery is scheduled for September 5. Trauma and risks associated with surgery are very discomforting. Question is: How serious is the problem the surgery will prevent? I'm hoping to hear from parents or Drs. associated with children with similar condition at a later age. Perhaps surgery done on older child to correct the problems that early surgery is designed to prevent. Also interested in hearing about recovery from cranial reconstruction on 16-month old. Son is extremely active; don't know how we're going to keep him quiet for the several months apparently necessary to prevent injury to healing skull.

9. Introduction approximately 1323% of patients. Preoperative, Postoperative. 3-D scanof sagittal synostosis. The surgical treatment of craniosynostosis http://www.erlanger.org/craniofacial/book/craniosynostosis/cranio_1.htm

Chapter 3 Craniosynostosis Craniosynostosis Sagittal Synostosis Metopic Synostosis Unilateral Coronal Synostosis Bicoronal Synostosis ... Crouzon Syndrome CHAPTERS Introduction Clefts of the Lip and Palate Ear Reconstruction Craniosynostosis Orbital Reconstruction Treacher Collins Syndrome Nasal Reconstruction Orthognathic Surgery ... Summary Preoperative Postoperative 3-D scan of Sagittal Synostosis. The surgical treatment of craniosynostosis has been transformed by the development and applications of craniofacial techniques to reshape the skull and upper face in the infant. Functionally, the goal in treatment is to release the fused sutures to prevent any problems associated with increased intracranial pressure as well as creating the potential for normal growth. Cosmetically, the goal is to obtain normal shape of the skull and face, thus minimizing psychosocial problems. Etiology: While the pattern of embryonic craniofacial development has been well defined through extensive research, very little is known about the etiology of many craniofacial anomalies. There is strong evidence for a genetic role in the occurrence of some craniosynostosis. An inherited tendency or family history has been reported in many cases in the literature, however, most cases of isolated craniosynostosis are usually sporadic in occurrence with no known etiology.

10. Omniseek: Health: /Health /Consumer Support Groups /Facial Differences /Sagittal Facial Differences sagittal synostosis. sagittal synostosis Homepage sagittal synostosis (also known as scaphocephaly, http://health.omniseek.com/srch/{26969}

News Sections Business Community Computing Directory ... Travel Search Engine Omniseek Multisearch Article Archives All Health America's Health Network Dr. Greene's HouseCalls DrKoop.com Health Central HealthAtoZ Healthfinder InteliHealth KidsHealth Mediconsult.com Mental Health Net Thrive Online Virtual Hospital Don't forget to come back to this page and click the check mark to vote for a site! Health /Consumer Support Groups /Facial Differences /Sagittal Synostosis / Sagittal Synostosis Homepage Sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal craniosynostosis), is a condition in infants where the sagittal suture (the ‘soft spot’ or fontanelle on top of the head between the left and right sides (http://www.geocities.com/HotSprings/6751/) Open Directory - Health: Consumer Suppor . . . Facial Differences: Sagittal Synostosis Sagittal Synostosis Homepage - Sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal craniosynostosis), is a condition in infants where the sagittal suture (the ‘soft spot’ or fontanelle on top of the head b (dmoz.org/Health/Consumer_Support_Groups/Facial_Differences/Sagittal_Synostosis/)

11. Sagittal Synostosis frontal bossing, whereas posterior fusion causes an occipital knob. Complete sagittal synostosis results in deformi http://www.neurosurgery.org/focus/sep00/9-3-3.pdf

12. Sagittal Synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly, Scaphoceph HOME sagittal synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly,Scaphocephaly, Sagittal Craniostenosis, Sagittal Craniosynostosis). http://www.bdid.com/sagittal.htm

HOME Sagittal Synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly, Scaphocephaly, Sagittal Craniostenosis, Sagittal Craniosynostosis) scaphocephaly CRANIOSTENOSIS - PROTRUDING EYES (Includes Image) CRANIOSTENOSIS - MALE PROFILE (Includes Image) Craniofacial Surgery...David Herz, M.D. Sagittal Synostosis Homepage craniofacial diseases CRANIOSYNOSTOSIS ... Craniosynostosis (Includes Photos and a Diagram) Brynne and craniosynostosis CRANIOSYNOSTOSIS CRANIOSYNOSTOSIS, TYPE 1; CRS1 Craniosynostosis ... Isolated Craniosynostosis (Includes Photos) HOME

13. Birth Disorder Information Directory - S See Chotzen Syndrome. sagittal synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly,Scaphocephaly, Sagittal Craniostenosis, Sagittal Craniosynostosis) http://www.bdid.com/defects.htm

HOME S Saal Bulas Syndrome (Ectrodactyly with Diaphragmatic Hernia and Corpus Callosum Agenesis) ectrodactyly diaphragmatic hernia corpus callosum agenesis Sabinas Brittle Hair Syndrome (Brittle Hair Mental Deficit) brittle hair mental deficit BRITTLE HAIR AND MENTAL DEFICIT Sackey Sakati Aur Syndrome (Pancytopenia with Multiple Congenital Anomalies) Aur syndrome Sacral Agenesis See Caudal Regression Syndrome Syndrome See Currarino Triad Saethre Chotzen Syndrome See Chotzen Syndrome Sagittal Synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly, Scaphocephaly, Sagittal Craniostenosis, Sagittal Craniosynostosis) List of Sites Related Books Sakati Nyhan Syndrome See Acrocephalopolysyndactyly, Type III Salamon Syndrome (Woolly Hair with Hypotrichosis, Everted Lower Lip and Outstanding Ears) Woolly hair hypotrichosis everted lower lip outstanding ears WOOLLY HAIR, HYPOTRICHOSIS, EVERTED LOWER LIP, AND OUTSTANDING EARS Saldino Noonan McCreanor Syndrome See Short Rib-Polydactyly Syndrome Sammartino Decreccio Syndrome (Corneal Dystrophy Ichthyosis Microcephaly Mental Retardation) Corneal dystrophy ichthyosis microcephaly mental retardation Sandhoff Disease (Type I is from birth, but some of these links include info on Type II and/or Adult Onset as well)

14. NEUROSURGERY://ON-CALL® Craniosynostosis And Craniofacial Disorders For example, simple sagittal synostosis almost always requires onlyone operation; reoperation is less than 5 percent. Coronal http://www.neurosurgery.org/health/patient/askaneuro.asp?disorderID=21

15. SmartEngine - SmartGuide ( DISEASE : Sagittal Synostosis ) All about DISEASE sagittal synostosis from SmartEngine.com Search For . DISEASE sagittal synostosis. Categories (1-2 of 2) http://disease.smartengine.com/shell/smartpage/Sagittal_Synostosis

SmartGuide Web Auctions DISEASE : Sagittal Synostosis Categories (1-2 of 2) Health: Support_Groups: Conditions_and_Diseases: Facial_Differences: Sagittal_Synostosis Health: Conditions_and_Diseases: Musculoskeletal_Disorders: Congenital_Anomalies: Craniosynostosis Web Pages Sagittal Synostosis Homepage Information (including details of genetic research) and support for people affected by this condition. - http://www.geocities.com/HotSprings/6751/ Health: Support Groups: Conditions and Diseases: Facial Differences: Sagittal Synostosis Devin's Craniosynostosis Devin was born with a condition called Craniosynostosis (Sagittal Synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada. - http://www.geocities.com/mikayla_cutiepatootie/Devin3_cranio.html Health: Conditions and Diseases: Musculoskeletal Disorders: Congenital Anomalies: Craniosynostosis About Us Contact Us Our Partners ... Help

16. Member Sign In Just as the entity of sagittal synostosis is protean, so must the treatments be surgical correction must focus on the resultant compensatory changes. http://www.medscape.com/viewarticle/405637

If you are having trouble logging in: In order to use Medscape, your browser must be set to accept "cookies." To find out how to adjust your browser settings, please click here Log In Username Password Forgot your password? Not a Member? Register Now for free access to: MEDLINE (Optimized for Physicians) 200+ Free CME Courses 25 Medical Specialty Sites 100+ Medical Journals Conference Coverage Daily Medical News About Medscape Help WebMD Health

17. Sagittal Synostosis Back Home Next. sagittal synostosis. sagittal synostosis Homepage.Copyright of Ability All Rights Reserved1990 Webmaster . Site http://www.ability.org.uk/Sagittal_Synostosis.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Sagittal Synostosis Sagittal Synostosis Homepage Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

18. Support Groups Sagittal Synostosis Support Groups sagittal synostosis. sagittal synostosis Homepage sagittal synostosis (also known as scaphocephaly, dolicocephaly http://www.ability.org.uk/support_groups_sagittal_synostos.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Support Groups Sagittal Synostosis Sagittal Synostosis Homepage - Sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal craniosynostosis), is a condition in infants where the sagittal suture (the ‘soft spot’ or fontanelle on top of the head between the left and right sides of the skull) closes early and restricts growth of the head in the side to side direction. This forces the head to grow in a front to back direction, leading to a narrow elongated head. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

19. MedFriendly.com: Sagittal Synostosis provides an easy to understand definition for the medical term, sagittalsynostosis. TM, sagittal synostosis MedFriendly.com TM TM. http://www.medfriendly.com/sagittalsynostosis.html

TM Sagittal synostosis MedFriendly.com TM TM A B C D ... Z Sagittal synostosis means the same thing as dolichocephaly Back to main page Contact MedFriendly.com

20. MedFriendly.com: The Letter S lacrimalis Saccus lacrimalis Sacr Sacra Sacrad Sacral Sacralgia Sacred bone Sacro-Sacrococcygeal Sacrodynia Sacrum sagittal synostosis Salify Salubrious http://www.medfriendly.com/letters.html

TM The Letter S MedFriendly.com TM TM A B C D ... Z Information Introduction to Medical Terms Languages of Origin Useful Links About MedFriendly Frequently Asked Questions History of MedFriendly Status of the Database Awards and Honors ... What's New MedFriendly Tools MedFriendly Message Board Submit a Medical Term Instructions and Help Search Tips ... Contact Us Sponsors S1 through S5 Sabulous Saburra Saburral ... Back to top of page

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