1. Sickle Cell Information Center Home Page Overview of hemoglobin disorders, iron overload, and their treatment http://www.emory.edu/PEDS/SICKLE

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2. Sickle Cell Disease Brief History of sickle cell disease. Hemoglobin Basics. Hemoglobin Synthesis http://sickle.bwh.harvard.edu/menu_sickle.html

3. Fight Sickle Cell Disease Personal fight against this disease. Poems, articles, links and photos. http://www.fightscd.com

Fight Sickle Cell Disease Unite the World to Save Our Children's Dreams Home Biography Sickle Cell Articles Poems Photo Gallery How to Help Ribbon Donations Need a Speaker? Contact Me Links Welcome to Fight SCD, a website dedicated to the fight against sickle cell disease. I have created a red and white ribbon to symbolize this fight. My name is Patricia Imah Imadomwanyi. We must unite the world to fight this horrible disease, and save our children's dreams. Sickle cell disease does not belong to one race or culture, and has no respect for money or gender. This disease was discovered over 80 years ago, but has not been given the attention it deserves. Please send me your comments. I have also included links to other sickle cell disease sites.

4. Information Center For Sickle Cell And Thalassemic Disorders Gives an evaluation of the causes and treatments of sickle cell disease as well as current research .Category Health Conditions and Diseases Blood Disorders Sickle Cell...... Enter. Kenneth R. Bridges, MD. Welcomesickle cell diseaseThalassemiaInformationInformation Center OverviewLinks StudyWeb. http://sickle.bwh.harvard.edu/

5. Information For Health Professionals - Sickle Cell Society Basic facts, symptoms, how to recognise a crisis, diagnosis and management are some of the topics covered. http://www.sicklecellsociety.org/healthpr.htm

Information for Health Professionals What Is Sickle Cell? Day to Day Care Employee Information Employer Information Health Profession Information Society News Diary of Events Teaching Resources Inheritance Prenatal Testing Directory of Centres More about the Society Image Gallery Membership and Donations Reports and Research Publications Issues in the News Contacting Us This page is intended to give you the information you need to recognise sickle cell disease and to help someone who has it to lead a good life. This site has been approved by OMNI and can also be accessed through their site and through NHS Direct. Contents Basic Facts What are haemoglobin SC disease (Hb SC) and Sickle Beta-Thalassaemia (Hb S-Thal)? What are the symptoms of sickle cell disease? How to recognise a sickle cell crisis ... Where to get further information Basic Facts Sickle Cell Disorders is the name given to a group of inherited conditions of haemoglobin formation. It includes Sickle Cell Anaemia (Hb SS), Haemoglobin SC Disease (Hb SC) and Sickle Beta Thalassaemia (Hb Beta-Thal). Of these the most common and severe is sickle cell anaemia. There are over 300 different types of haemoglobin. The most common type is haemoglobin A (Hb A) and most people inherit Hb A from both parents (Hb AA). Sickle cell anaemia occurs when most of the haemoglobin in the red cells is Sickle Haemoglobin (Hb S).

6. Natural History Of Sickle Cell Disease In India Lists and describes the contribution of Dr. Bimal Chandra Kar. Patient resources, papers and publications. http://bimal_chandra_kar.tripod.com/SicklecellinIndia/

document.isTrellix = 1; Natural History of Sickle Cell Disease in India Our Services Meet your Doctors Directions Patient Resources ... Papers and Publications Welcome to our web site! This web site highlights the research and the contribution of Dr. Bimal Chandra Kar in the field of Sickle Cell Disease. Choosing a healthcare provider is one of the most important decisions you can make. You want someone who is caring, knowledgeable, and accessible. Someone willing to take the time to go over all of your options and treat you as a person, not just a patient. At our clinic, we pride ourselves on our patient service. We offer a knowledgeable staff, safe and proven procedures, and the latest in medical technology. We've created this web site for both new and current patients. It includes specific information on our practice and our doctors along with general wellness information. If you need more information, please don't hesitate to contact us by phone or e-mail. Dr. B. C. kar Main Market, Burla Dt: Sambalpur, Orissa, 768017

7. Sickle Cell Disease Review Promotes and disseminates research into the scientific, clinical and social aspects of this disorder. Literature review, bibliography, and general information on the disease. http://scdreview.tripod.com/

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8. Sickle Cell Disease Association Of America Historic sickle cell disease Webcast! View the Opening Plenary Session of the 30thAnniversary Convention. sickle cell disease Association of America, Inc. http://www.sicklecelldisease.org/default.htm

Home Bookmark This Site (IE Only) Historic Sickle Cell Disease Webcast! View the Opening Plenary Session of the 30th Anniversary Convention Our History Dr. Roland B. Scott: Pioneer Passes On

9. Sickle Cell Disease Association Of America Education, advocacy and other initiatives which promote awareness and support for sickle cell programs and patients. http://sicklecelldisease.org/

Home Bookmark This Site (IE Only) Historic Sickle Cell Disease Webcast! View the Opening Plenary Session of the 30th Anniversary Convention Our History Dr. Roland B. Scott: Pioneer Passes On

10. Sickle Cell Disease Association Of America National group furnishes educational materials and programs pertaining to this blood disease primarily afflicting African Americans. Page Updated February 19, 2003. sickle cell disease Association of America, Inc. http://www.sicklecelldisease.org/

Home Bookmark This Site (IE Only) Historic Sickle Cell Disease Webcast! View the Opening Plenary Session of the 30th Anniversary Convention Our History Dr. Roland B. Scott: Pioneer Passes On

11. SCDAA - History - Dr. Roland B. Scott Roland B. Scott, 93, a Washington pediatrician who founded Howard University'sCenter for sickle cell disease and received international acclaim for http://www.sicklecelldisease.org/hist_scott.htm

Dr. Roland B. Scott Roland B. Scott Dies; Sickle Cell Researcher By Adam Bernstein Washington Post Staff Writer Thursday, December 12, 2002; Page B06 Roland B. Scott, 93, a Washington pediatrician who founded Howard University's Center for Sickle Cell Disease and received international acclaim for researching the painful genetic blood disorder that predominantly affects blacks, died Dec. 10 at Washington Adventist Hospital. He had congestive heart failure. more...

12. Sickle Cell Disease / Family Village sickle cell disease. Who to Contact. Where to Go to Chat with Others http://www.familyvillage.wisc.edu/lib_scd.htm

Sickle Cell Disease Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Sickle Cell" Who to Contact Sickle Cell Disease Association of America 200 Corporate Pointe, Suite 495 Culver City California 90230-8727 (310) 216-6363 Office (310) 215-3722 Fax (800) 421-8453 General Public E-Mail: scdaa@sicklecelldisease.org Website: http://sicklecelldisease.org/ Sickle Cell Disease Association of America, Inc. is helping to promote finding a universal cure for sickle cell disease, and helping to improve the quality of life for individuals and families where sickle cell disease related conditions exist. Sickle Cell Parent and Family Network P.O. Box 19854 Cincinnati, Ohio 45219 513-398-9620 (fax) E-mail: muhjahmarshall@sprintmail.com Web: http://www.cintishares.com/sickle_cell_parent.htm Sickle Cell Parent and Family Network works to find a cure for sickle cell disease and to help families and individuals lead full lives until a cure is found. Our activities center on communication, education, advocacy, support and emergency assistance. The members of the network collaborate with medical, educational, community and religious institutions to meet the many needs of individuals with sickle cell disease and other chronic conditions and disabilities. Through learning programs designed by and for impacted families, our members are empowered to make wise decisions in meeting their life challenges. The American Sickle Cell Anemia Association

13. Sickle Cell Information Center Home Page Palm friendly Problem Oriented Clinical Guidelines; sickle cell disease In ChildrenAnd Adolescents Diagnosis, Guidelines For Comprehensive Care, And Care http://www.emory.edu/PEDS/SICKLE/toc.htm

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14. ICAGEN Discovers and develops pharmaceutical products to treat medical conditions such as atrial fibrillation, urinary incontinence, central nervous system disorders, and sickle cell disease. http://www.icagen.com/

15. SickleCellKids.org Animated site with information, games, letters from celebrities and a quiz show to keep kids with sickle cell disease healthy. http://www.sicklecellkids.org/

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16. Sickle Cell Disease Association Of America Statewide nonprofit organization providing sickle cell patients and their families with a variety of support programs and services. http://www.sicklecellct.org/

About Research Links Support ... Contact Site designed and hosted by web-worx Email the webmaster

17. James R. Clark Sickle Cell Foundation Web Page Foundation working to optimize the social, psychological and physiological well being of residents with sickle cell disease through the provision of services to individuals, families, and communities. http://www.midnet.sc.edu/jrcsc

The James R. Clark Memorial Sickle Cell Foundation 1420 Gregg Street Columbia, South Carolina 29201 Executive Director Lena Stevenson Phone: 803-765-9916 Free: 800-506-1273 Fax: 803-799-6471 Email: jrcsc@bellsouth.net HISTORY The James R. Clark Memorial Sickle Cell Foundation, Inc. was chartered in 1972 in Columbia, South Carolina as a comprehensive community-based health organization to serve the needs of patients with sickle cell disease. The foundation is named after James R. Clark, MD, who was a founder and advocate for patients with the sickle cell disease. MISSION The mission of the James R. Clark Memorial Sickle Cell Foundation is to optimize the social, psychological and physiological well being of residents with sickle cell disease with in the fifteen county area of the State that we serve. This mission shall be accomplished through the provision of comprehensive services to individuals, families, and communities and shall be further enhanced by collaboration with appropriate federal, state, and local resources and through the involvement of volunteers and contributors. SERVICES A staff of thirty-one (31) full-time, part-time and paid staff members assure accessible services for our clients.

18. Patient Information If you inherit two sickle cell genes you have sickle cell disease. Is Sickle Cellonly in African Americans? Are there different types of sickle cell disease? http://www.scinfo.org/sicklept.htm

Sickle Cell Anemia Sickle Cell anemia is a group of inherited red blood cell disorders. Normal red blood cells are round like doughnuts, and they move through small blood tubes in the body to deliver oxygen. Sickle red blood cells become hard, sticky and shaped like sickles used to cut wheat. When these hard and pointed red cells go through the small blood tube, they clog the flow and break apart. This can cause pain, damage and a low blood count, or anemia. What makes the red cell sickle? There is a substance in the red cell called hemoglobin that carries oxygen inside the cell. One little change in this substance causes the hemoglobin to form long rods in the red cell when it gives away oxygen. These rigid rods change the red cell into a sickle shape instead of the round shape. How do you get sickle cell anemia or trait? You inherit the abnormal hemoglobin from your parents, who may be carriers with sickle cell trait or parents with sickle cell disease. You can not catch it. You are born with the sickle cell hemoglobin and it is present for life. If you inherit only one sickle gene, you have sickle cell trait. If you inherit two sickle cell genes you have sickle cell disease. Is Sickle Cell only in African Americans?

19. The Sickle Cell Disease Association Of Illinois (SCDAI) Seeks to enhance the quality of life for people with sickle cell disease and their families. Includes information on healthcare programs and services, events calendar, and contacts. http://www.sicklecelldisease-il.org/

SCDAI What is Sickle Cell? Support Services You Can Help ... Site Map Mission Statement The Sickle Cell Disease Association of Illinois (SCDAI) primary mission is to enhance the quality of life for people with sickle cell disease and their families. To effectively achieve this goal, SCDAI acts as an advocate for improved health care and services for sickle cell patients by educating and informing the community through outreach programs. OBJECTIVES To fund research for the prevention, treatment, and cure of the disease. To encourage the legislature to enact public policies that benefit sickle cell patients and their families. PROGRAMS Provides counseling, referral services, and direct emergency grants to patients in need of food, clothing, shelter, prostheses or other necessities. Sponsors a summer camp for children with sickle cell disease (ages 7-13) where campers are provided with positive values of their own self-worth. Assists deserving sickle cell students with scholarships to achieve their higher education goals. Sponsors a Christmas party with food, games, and gifts for children with sickle cell disease, their siblings and other family members.

20. Sickle Cell Information Center News Page New Hall of Champions for Children with sickle cell disease and Asthmahospitalized at Hughes Spalding Children's Hospital in Atlanta. http://www.scinfo.org/news.htm

Sickle News Web Update - March 2003 This is where we'll announce the most recent additions to our web site. If you've visited us before and want to know what's changed, take a look here first. If you would like to obtain a monthly e-mail newsletter about the latest website changes and sickle cell news, send an e-mail request to aplatt@emory.edu For the latest news, visit this page that is updated weekly at www.scinfo.org/news.htm Search the news for the latest sickle cell news story at Google news New teaching CD-ROM /Website - Genetics in Clinical Practice: A Team Approach http://www.acmg.net/resources/cd-rom-01/intro.asp - This excellent genetics program, based on the "Virtual Practicum" model, is intended for primary care health care providers who have no formal training in genetics. It includes medical conditions, including sickle cell disease, seen today in which knowledge of clinical genetics can positively affect outcomes. It also provides case scenarios and case discussions by leading experts to be used in the training of students in these professions, genetic counselors, medical laboratory professionals, public health professionals, and others who may have a need to understand genetic testing. The price is $25. The Dartmouth-Hitchcock Medical Center offers up to 10 hours of Category I CME credit for this program for an additional charge of $15.

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