1. Association For Spina Bifida And Hydrocephalus - Information Pages Information about spina bifida, hydrocephalus, the services offered by the Association for spina bifida and Hydrocephalus and related topics. Home pages of the Association for spina bifida and Hydrocephalus. Association for spina bifida and Hydrocephalus. Registered in England Charity No 249338 http://www.asbah.org/

Association for Spina Bifida and Hydrocephalus Registered in England Charity No: 249338 The Association for Spina Bifida and Hydrocephalus beneficial area is England, Wales and Northern Ireland. If you have a query which is specific to your country please refer to 'Other Links' below. These pages have been designed to be easy and quick to download and print. If you publish any of the information elsewhere please credit the Association for Spina Bifida and Hydrocephalus and set up a link back to these pages. To take part in a survey on perceptions of disadvantaged children click here ASBAH Information Other Links ... Hydrocephalus - Information for Parents/Parents to be A series of three articles by Dr Roger Bayston MMedSci MRCPath: Hydrocephalus - what it is and what causes it The effects of hydrocephalus The treatment of hydrocephalus Specialist Support ... Research Information Sheet to GPs on Hydrocephalus available from Rosemary Batchelor Download Information Sheets and Leaflets in pdf Format Discussion groups for people with Benign Intracranial Hypertension A Constant Fight - and summary of ASBAH's report on the need for accessible and coordinated services for children and adults with hydrocephalus and/or spina bifida International Federation for Hydrocephalus and Spina Bifida ('if') Medical Search Engine Related Links email: postmaster@asbah.org

2. Spina Bifida Association Of America - Welcome Promotes prevention of spina bifida and addresses needs of people affected.Category Health Conditions and Diseases Organizations......spina bifida Association of America. 4590 MacArthur Blvd., NW, Suite 250 Washington,DC 200074226. Copyright spina bifida Association of America. http://www.sbaa.org/

SBAAWeb Resources Advocacy Alert! Write Your Representative Today Sample Letters Click Here Donate Online Español Parent's Tributes ... SBAA Advocacy Work in Progress, please visit often! Join the SBAA Emailing List! Name: E-Mail: Add/Update List Delete from List Search SBAAWeb Internet consulting and development By SocialNet Web InterActive Spina Bifida Association of America 4590 MacArthur Blvd., NW, Suite 250 Washington, DC 20007-4226 Voice: Fax: Email: sbaa@sbaa.org Click Here for 2003 Conference Information! 2002 Back-to-School Guide The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year. SBAA provides services such as: Toll Free 800 Information and Referral Service Bi-monthly Newsletter

3. NINDS Spina Bifida Information Page Read about this neural tube defect, and find treatment options and research. Get contact info for organizations. What is spina bifida? spina bifida (SB) is a neural tube defect (a disorder involving incomplete development of the http://www.ninds.nih.gov/health_and_medical/disorders/spina_bifida.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Spina Bifida Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Spina Bifida Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Spina Bifida? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Spina Bifida? Is there any treatment? There is no cure for SB because the nerve tissue cannot be replaced or repaired. Treatment for the variety of effects of SB may include surgery, medication, and physiotherapy. Many individuals with SB will need assistive devices such as braces, crutches, or wheelchairs. Ongoing therapy, medical care, and/or surgical treatments may be necessary to prevent and manage complications throughout the individual's life. Surgery to close the newborn's spinal opening is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. What is the prognosis?

4. SBH Queensland For any enquiries or comments about spina bifida, hydrocephalus, our services or this Web site, please email me. http://www.spinabifida.org/

Welcome to the SBH Queensland Web site. Charity Auctions SBH Queensland is raising funds by conducting on-line honeymoon and holiday auctions with Wedding Links and Window Shopping Directory Centre To find out more about the auctions please click here. Current auctions are for honeymoons or holidays at The Eyrie At The Sound Kingfisher Bay Resort This site contains information about spina bifida and hydrocephalus as well as spina bifida occulta When you have finished having a look around this site, please take a look at some of the other great spina bifida and hydrocephalus sites These generous firm s donated its time and assistance to help us establish our first Web site. This site is maintained by Bill Shead, the Information Officer at SBH Queensland and was last updated on 01 February 2002. For any enquiries or comments about spina bifida, hydrocephalus, our services or this Web site, please email me. SBH Queensland is located in Brisbane, Australia. The centre is at: 21 Tillot St Dutton Park PO Box 8022 QLD 4102 Australia Phone (07) 3844 4600 Fax (07) 3844 4601 There is also a branch in Townsville, North Queensland about 1600 kilometres (1000 miles) north of Brisbane.

5. Spina Bifida And Hydrocephalus Association Of Nova Scotia Find facts about spina bifida and hydrocephalus, as well as spinal cord regeneration research, from this Nova Scotia organization. http://www.chebucto.ns.ca/Health/SBANS

Spina Bifida and Hydrocephalus Association of Nova Scotia Last Updated July 31, 2000 - New Stuff Spina Bifida (latin, meaning "divided spine") , is a congenital birth defect which occurs in approximately 1 out of every 750 live births in Canada. There is currently no cure for Spina Bifida, though research is ongoing. Hydrocephalus , a condition found in %80 of people with Spina Bifida, is the excessive build-up of cerebrospinal fluid (CSF) on the surface of the brain, resulting from the brain's lack of natural absorption capabilities. Keep track of developments, and items of interest related to SB and Hydrocephalus. (Not updated often.) If you're in a hurry to find something, the Quick Index provides easy navigation of our site. And, if you can't find what you're looking for on our site, check out the Resource List , a categorized list of on-line and off-line resources. Visit our parent organization, The Spina Bifida and Hydrocephalus Association of Canada June 27, 1999 December 23, 1999

6. Children With Spina Bifida: A Resource Page For Parents & Professionals Features web resources and links for parents of children with spina bifida and health professionals. http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx

Spina Bifida Organizations Spina Bifida Online Discussion Groups Hydrocephalus Resources Chiari Malformation ... Prenatal Diagnosis ~ Genetics ~ Fetal Surgery Folic Acid Information Hot Lines Yellow Ribbon for Spina Bifida Awareness ... The Spina Bifida Survey! The Children with Spina Bifida Web Site has been visited 207,324 times since March 6, 1996. This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida. Inclusion of any resource or web site does not imply endorsement. Any medical or health care reference is intended for informational purposes only. If you have any questions relating to your child's condition please consult your child's doctor. Last updated 3/2/2003 by Linda Rowley . E-mail: rowley@waisman.wisc.edu Document Source: http://www.waisman.wisc.edu/~rowley/sb-kids/

7. Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH) Peruse this list of resources, associations, Web resources and online discussion groups. With treatment information. spina bifida Organizations ~ spina bifida Articles Web Sites ~. ~ spina bifida Online Discussion Groups http://www.asbh.de/

Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. (ASbH) Termine Seminare Selbsthilfe Bibliothek ... Diskussion

8. Fetal Surgery For Spina Bifida Features various information regarding fetal surgery for spina bifida. http://www.fetal-surgery.com

fetal-surgery.com Your starting point for information regarding fetal surgery for spina bifida. Home News Articles Research Pictures Links ... Dedicated in the Memory of Zane "We think we can alter the natural history of this disease and avert its devastating consequences," says Noel Tulipan, Vanderbilt Neurosurgeon. "This is a new third option to either having an abortion or doing nothing. ... This is new hope," said Dr. Joseph Bruner. This site is not affiliated with Children's Hospital of Philadelphia Vanderbilt University Medical Center , or any other medical institution. This site is a resource center of information. See the MOST asked for photos on the web. This page is dedicated to providing information information regarding an exciting surgical option, offering hope and additional choices to parents faced with the grim news that their unborn child has Spina Bifida. This site is a resource, pointing parents and family to appropriate medical institution for additional information. As the father of a child with spina bifida, I know first hand the pain of such a discovery. I also know the joy, of fetal surgery for spina bifida. My son was one of the first ever to have this type of surgery. It was providential that we learned about this new surgery. My hope is that this page will make it easier for you to find information, and be pointed to those who can help.

9. International Federation For Hydrocephalus & Spina Bifida Its mission is to improve the quality of life of people with Hydrocephalus and spina bifida throughout the world. To decrease the prevalence of Hydrocephalus and/or spina bifida by primary prevention. http://www.ifglobal.org/

home contact sitemap About if Spina Bifida Hydrocephalus Pregnancy Human Rights Developing Countries Newsroom Forum Links WELCOME! We welcome you to the official website of the International Federation for Hydrocephalus and Spina Bifida called if if is a world-wide umbrella organisation and has a contact net on every continent. Its members and contacts are organisations for Spina Bifida and Hydrocephalus in more than 40 countries, making a unique network of experience and knowledge. Pierre Mertens Subscribe to our newsletter! Hot News HABLEMOS ! Décimo quinta if -conferencia del mundo de la hidrocefalia y de Espina Bifida Espina Bifida y hidrocefalia y todos los aspectos de la comunicación 2 - 3 de octubre de 2003 en Arequipa, Perú. Idiomas de la conferencia españolas son el inglés y el español. Evitar tiempo innecesario de viaje y altos gastos de viaje, reservando antes de febrero de de 2003. Co-organizacion : Paz- Holandesa; CAT travel Informacion turistica : nuestro socio para los arreglos turisticos Programa de la conferencia Haga su reserva ahora y por aqui!

10. Spina Bifida Association Of America - Facts About Spina Bifida Presents facts about this serious form of birth defect.Category Kids and Teens Health Conditions and Diseases spina bifida......Facts About spina bifida What are Neural Tube Defects? There are 3types of NTDs anencephaly, encephalocele, and spina bifida. http://www.sbaa.org/html/sbaa_facts.html

SBAAWeb Resources Home Donate Online Parent's Tributes Facts About Spina Bifida ... Search SBAAWeb Facts About Spina Bifida What are Neural Tube Defects? Neural tube defects (NTDs) are serious birth defects that involve incomplete development of the brain, spinal cord and/or protective coverings for these organs. There are 3 types of NTDs: anencephaly, encephalocele, and spina bifida. Babies born with anencephaly have underdeveloped brains and incomplete skulls. Most infants born with anencephaly do not survive more than a few hours after birth. Encephalocele results in a hole in the skull through which brain tissue protrudes. Although most babies with encephalocele do not live or are severely retarded, early surgery has been able to save a few children. What is Spina Bifida? Spina bifida is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. Spina bifida, the most common NTD, is one of the most devastating of all birth defects. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord.

11. Disability Info: Spina Bifida Fact Sheet (FS12) spina bifida means cleft spine, which is an incomplete closure in the spinal column. http://www.nichcy.org/pubs/factshe/fs12txt.htm

NICHCY Our Publications Disability Info A publication of the National Information Center for Children and Youth with Disabilities Spina Bifida Table of Contents Definition Incidence Characteristics Educational Implications ... Organizations Fact Sheet 12 (FS12) January 2003 Approx. 4 pages when printed. PDF version Definition Spina Bifida means cleft spine, which is an incomplete closure in the spinal column. In general, the three types of spina bifida (from mild to severe) are: Spina Bifida Occulta: There is an opening in one or more of the vertebrae (bones) of the spinal column without apparent damage to the spinal cord. Meningocele: The meninges, or protective covering around the spinal cord, has pushed out through the opening in the vertebrae in a sac called the "meningocele." However, the spinal cord remains intact. This form can be repaired with little or no damage to the nerve pathways. Myelomeningocele: This is the most severe form of spina bifida, in which a portion of the spinal cord itself protrudes through the back. In some cases, sacs are covered with skin; in others, tissue and nerves are exposed. Generally, people use the terms "spina bifida" and "myelomeningocele" interchangeably. Back to top Incidence Approximately 40% of all Americans may have spina bifida occulta, but because they experience little or no symptoms, very few of them ever know that they have it. The other two types of spina bifida, meningocele and myelomeningocele, are known collectively as "spina bifida manifesta," and occur in approximately one out of every thousand births. Of these infants born with "spina bifida manifesta," about 4% have the meningocele form, while about 96% have myelomeningocele form.

12. Centro Spina Bifida Università Cattolica Sacro Cuore Roma Presso l'Istituto di clinica pediatrica dell'universit  cattolica del Sacro Cuore ¨ attivo il Centro per lo studio e l'assistenza al bambino affetto da questa patologia. Le attivit  di cura, di prevenzione, d'orientamento e di informazione. http://www.centrospinabifida.it/

ENTRA realizzato da Artisticom ENTRA realizzato da Artisticom

13. Spina Bifida - Keep Kids Healthy Information about the most common symptoms and treatment for children with spina bifida, or myelomeningocele. http://www.keepkidshealthy.com/welcome/conditions/spinabifida.html

Bookstore Site Map Contact Us Help ... Free Web Pages! Search this site: Advanced Search Free Newsletters Main Menu Useful Tools Index of Topics Pediatric Problems New! Parenting Tips Symptom Guide Nutrition Immunizations ... Web Links Online Resources What's New Reviews New! Growth Charts Online Forums Vaccine Schedule Baby Names Guide ... Height Calculator Newsletters: Subscribe to get free news, tips and updates. Recommend Us tell a friend about us or email this page to a friend spina bifida Main Diseases and Conditions Spina Bifida Spina bifida is a type of congenital malformation of the central nervous system. In its mildest form, spina bifida occulta , there is a malformation of the vertebral arches of the spinal cord without other problems. This occurs in 5% of the population and does not cause any symptoms or problems and no treatment is required. Some children with this disorder also have a patch of hair or skin discoloration on the skin of the lower back with the defect occurs. Children with spina bifida , or myelomeningocele also have a malformation of the vertebral arches of the spinal cord and they have abnormalities of the spinal cord, in which the spinal cord and nerve roots protrude out. The malformation is most commonly found in the lumbosacral area of the lower back, but it can occur anywhere along the spinal cord.

14. Spina Bifida, Wet Voorzieningen Gehandicapten En Overige Voorzieningen In de volksmond wordt het meestal open rug genoemd. http://home.hccnet.nl/dam.willemsen/

Op deze pagina kunt u meer te weten komen over spina bifida, stoma en diverse voorzieningen voor mensen met een handicap.

15. Spina Bifida Association Louisiana's constituency of the national organization. Contact, resource and membership information Category Regional North America Louisiana Health Associations......spina bifida Association of Greater New Orleans Post Office Box 1346Kenner, Louisiana 70063 (504) 7375181 What Is spina bifida? http://www.gnofn.org/~sba/

Spina Bifida Association of Greater New Orleans Post Office Box 1346 Kenner, Louisiana 70063 Main Menu What Is Spina Bifida? What Causes Spina Bifida? Can Anything Be Done to Prevent Spina Bifida? How is Spina Bifida Treated? ... Send E-Mail Last Updated: August 20, 1998 Webmaster: Brent Smith Send questions and comments about this site to: sba@gnofn.org What Is Spina Bifida? Spina Bifida (spy-nuh-bi-fi-duh) is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. More children are affected by this condition than muscular dystrophy, multiple sclerosis, and cystic fibrosis combined. Spina Bifida (myelomeningocele) is a disabling birth defect of the spinal column resulting from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back. Surgery to close the newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. The condition may cause varying degrees of paralysis and loss of feeling in the lower limbs, and bowel and bladder complications. A large percentage of children born with spina bifida have hydrocephalus, the accumulation of fluid in the brain. Hydrocephalus is controlled by a surgical procedure called "shunting" which relieves the fluid build up in the brain by redirecting it into the abdominal area. Although spina bifida is relatively common, until recently most children born with myelomeningocele died shortly after birth. Due to a revolutionary surgical techniques, today we can expect 85-90% of newborns to survive.

16. Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH) Informationen ¼ber den Verein und seine Aktivit¤ten. Neben der Beschreibung der Krankheitsbilder finden sich wissenschaftliche Beitr¤ge, Antworten auf Sozialrechtsfragen, Hinweise auf die regionalen Selbsthilfegruppen und die M¶glichkeit zum Austausch im Forum und im Chat. http://www.paritaet.org/asbh/

Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. (ASbH) Termine Seminare Selbsthilfe Bibliothek ... Diskussion

17. Web Hosting, Domain Name, Free Web Site, Email Address Web Offers information about spina bifida, complete with diagrams and links.Category Health Conditions and Diseases spina bifida......Information On spina bifida. I also have some great links on SpinaBifida. What is spina bifida ? spina bifida is the most frequently http://www.fortunecity.com/millenium/plumpton/268/sb.htm

web hosting domain names email addresses related sites Information On Spina Bifida I also have some great links on Spina Bifida What is Spina Bifida ? Spina bifida is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. More children have spina bifida than have muscular dystrophy, multiple sclerosis, and cystic fibrosis combined. Spina bifida, the most common neural tube defect (NTD), is one of the most devastating of all birth defects. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. Because of the paralysis resulting from the damage to the spinal cord, people born with spina bifida may need surgeries and other extensive medical care. The condition can also cause bowel and bladder complications. A large percentage of children born with spina bifida also have hydrocephalus, the accumulation of fluid in the brain. Hydrocephalus is controlled by a surgical procedure called "shunting" which relieves the fluid build up in the brain by redirecting it into the abdominal area. Most children born with spina bifida live well into adulthood as a result of today's sophisticated medical techniques.

18. Spina Bifida Features a chat room, information, pictures, stories, facts, diagrams, and resources for living with Category Health Conditions and Diseases spina bifida...... http://www.geocities.com/HotSprings/2474/

19. The Spina Bifida Hydrocephalus Association Of Ontario Information, resources, support.Category Health Conditions and Diseases Organizations......spina bifida Hydrocephalus Association of Ontario To improve the quality of lifeof all individuals with spina bifida and/or hydrocephalus, through research http://www.sbhao.on.ca/

Home FAQs Contact Us "To improve the quality of life of all individuals with spina bifida and/or hydrocephalus, through research, awareness, care and advocacy." Home FAQs Contact Us Charitable Registration #10799 9310 RR0001

20. Redirection Vers Spina Bifida (Suisse) Site personnel, cr©© par les parents d'un enfant atteint de ce handicap. Suisse. http://www.perso.ch/dupuism/

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