81. CMRG Online - Search Results For Disease Management Listserver webmaster@sticklers.org. Mission Strives to educate and give supportto people affected by Stickler syndrome, which is a connective tissue disorder http://www.cmrg.com/cmrg_cfmfiles/dmout.cfm?DM=VOL-GEN

82. Let's Face It: Resources For Specific Conditions Web http//www.sticklers.org. TMJ. TMJ Association Ltd. PO Box 26770, Milwaukee,WI 532260770 (414) 259-3223 Web http//www.tmj.org. TREACHER COLLINS syndrome. http://www.faceit.org/spc_org.html

RESOURCES THAT FOCUS ON SPECIFIC CONDITIONS Click a topic of interest from the list below: Acoustic Neuroma Albinism and Hypopigmentation Alopecia Areata Apert Syndrome ... Bells Palsy Blindness (See Visual Impairment Brain/Head Injury Brain Tumor ... Crouzon Syndrome Deafness (See Hearing Impaired Downs Syndrome Freeman-Sheldon Syndrome Golden Har Syndrome ... Reconstructive Makeup Resources " Underneath my disfigured face I am a normal person and I have a tough time talking about it. I think the fact that we cannot talk about it (facial disfigurement) often denies us the opportunity to be "normal." Just talking to another disfigured person has helped me a lot." -Friend of Let's Face It ACOUSTIC NEUROMA Acoustic Neuroma Association Over 56 support groups and a quarterly newsletter. Lois White, Executive Director 600 Peacetree Pkwy, Ste.108, Cumming, GA 30041-6899 (770) 205-8211 - Phone (770) 205-0239 - Fax E-mail: anausa@aol.com

83. Skinema Freeze Frame: What Is It About Body Hair? First, sticklers would like us to distinguish between two different hairy situations. Apparentsoon after birth, this genetic syndrome is characterized by hair http://itsb.ucsf.edu/~vcr/Freeze13Hair.html

Welcome to Skinema.com's online discussion site. Please e-mail your ideas and input and your comments will be added to this page. Lobby What is it about body hair? In the movie "Human Nature" a teen starts to grow body hair. By adulthood, Patricia Arquette's character has developed quite a pelt. With a blond beard to match. From the writer of "Being John Malkovich" comes another eccentric black comedy. Patricia Arquette is involved in a love triangle with a scientist (Tim Robbins) and a man raised in the wild. Complicating the plot is her own characters' tendency to hirsutism (excessive hair). Leave it to one of filmdom's quirkiest writers, Charlie Kaufman, to produce the most truthful portrait of hirsutism ever seen on-screen. Characters with excessive hair are usually portrayed as freakish (circus bearded women), or monstrous (werewolves). Arquette describes the problem developing in puberty and being told it is due to a "hormonal" imbalance. The character, ashamed by her furry appearance, spends hours removing the hair. She even conceals her hirsutism from her lover, Tim Robbins. Why is she (and are we) so disturbed by hair in the "wrong" places? What causes excess facial and body hair?

84. Health/Consumer_Support_Groups/Facial_Differences/Stickler's_Syndrome URL http//www.sticklers.org/ Dave Hawley's Stickler syndrome PageIndexes online information related to Stickler's syndrome. http://www.health-information-resource.com/Health/Consumer_Support_Groups/Facial

Search: Welcome to the health-information-resource.com search portal. Health-information-resource.com is the premiere health and wellness search portal dedicated to providing comprehensive and up-to-date health information. Whether you are a healthcare professional or a healthcare consumer, you are likely to find health, wellness and medical-related information here that is informative and practical. Health-information-resource.com strives to provide the most thorough and reliable health information possible to ensure that every individual and family can better manage their health. Feel free to browse the health-focused directory or conduct a search for your specific wellness-related request. As a healthcare consumer today, you are faced with many important decisions regarding your physical condition. Choosing between hospitals, health care providers, doctors, prescriptions, vitamins, and a variety of other wellness-related choices can be extremely complicated. Finding a single resource that can provide you with all the answers to your health questions may seem like an unbearable task. However, health-information-resource.com can do just that. Our database is updated on a continuous basis with innovative and pertinent content, serving as your guide to reliable health information. Health Stickler's Syndrome Stickler Involved People Medical information networking news and updates.

85. Stickler Involved People Stickler Involved People MEDICAL INFO definition and info ways to cope NETWORKINGshared experiences links and list server supportive listeners NEWS UPDATES http://www.sticklers.org/sip/

MEDICAL INFO definition and info ways to cope NETWORKING ... CONTACT US welcome to the official Stickler Involved People web site

86. WebMetrix :: Premium Web Site Hosting Australian site offers information about symptoms associated with this hereditary disease. With links and support group details. http://dove.mtx.net.au/~mrossnay/stickler.html

www. .com.au .net.au .com .net .info Hosting by: Internet Access: Website Design: Website Design: Welcome to WEBMETRIX WEBHOSTING... Scroll down to view the latest news and products..... Signup for Hosting Here Signup to become a Reseller Here Webmetrix Host Websites for Companies, Individuals, Web Designers and Resellers backed up with Products and Services second to none. Webmetrix Pty Limited was created with the goal of becoming the most successful Web Hosting company, by filling a void in the market, offering Fast Reliable Web Hosting packages with outstanding professional Service, Support and with a list of advantages that would set Webmetrix.com.au apart from our competitors. Unbeatable Service 1 hour setup procedures opposed to days or even a week with some other Web Hosting Companies Ultra Fast Performance International Connectivity via Southern Cross Cable Rock Solid Reliability Servers Backed up Daily Emergency Recovery Servers on standby 4 Diesel backup generators 24/7 Monitoring Full Product Range Linux, MySQL, PHP

87. Eyecondtions.html RETINOBLASTOMA. RETINOPATHY OF PREMATURITY. STARGARDTS syndrome/DISEASE. STICKLERSsyndrome. STRABISMUS. UVEITIS. RETURN TO PREVIOUS PAGE. RETURN TO HOMEPAGE http://www.stjosephsvi.ie/eyeconditions.html

EYE CONDITIONS Click on name for further information ALBINISM AMBLYOPIA ASTIGMATISM BUPHTHALMOS ... NEXT PAGE

88. About Deaf-Blind Services Project Census associated with progressive hearing loss include Norrie syndrome; Sticklerssyndrome; Kniest syndrome; Goldinhar syndrome; Mohr syndrome; http://www.ndcd.org/ndcpd/projects/deaf_blind/about.html

C hildren with Deafblindness Individuals with deafblindness are a heterogeneous group and include: individuals whose hearing and vision evaluation meet legal requirements deafness and blindness; individuals who have hearing and vision impairments of mild to severe degree and additional learning and/or language disabilities individuals who have been diagnosed as having a degenerate disease which will affect vision and/or hearing acuity, and; individuals with multiple disabilities due to central nervous systems dysfunction who may demonstrate inconclusive responses during evaluation or in natural environments. D efinition/Qualifications Children and Youth are both deaf and blind as demonstrated by a accurate vision and hearing tests. have hearing and visual impairments of a mild to severe degree and additional disabilities. may have been diagnosed as having a degenerative condition which will affect vision and/or hearing acuity. have multiple handicaps due to central processing dysfunction who may demonstrate inconclusive vision and/or hearing responses during evaluations or in the natural environment. Sensory impairments can be the result of: Pathology in the auditory/visual system (e.g., Rubella, Usher's Syndrome).

89. Health Information Resource Database: Stickler Involved People Stickler Involved People (SIP) is a national network whose purpose is to increaseawareness of Stickler syndrome by educating medical professionals, educators http://www.health.gov/nhic/NHICScripts/Entry.cfm?HRCode=HR2507

90. Nye Diagnostiske Kriterier For Marfans Syndrom [Informasjon Fra TRS - Om Marfans mild aortadilatasjon, hud og skjelett), familiært mitralklaffeprolapssyndrom, Sticklerssyndrom og Boxer M. Ascertainment and severity of Marfan syndrome in a http://www.trs.dep.no/arkiv/5_marfan/51116.htm

Nye diagnostiske kriterier for Marfans syndrom Svend Rand-Hendriksen, overlege, TRS og Artikkelen er publisert i "Tidsskrift for Den norske lægeforening" nr 18, 1998; 118: 2796-2799 Innledning Bildediagnostikk DNA-testing ved Marfans syndrom Differensialdiagnoser ... Tabell 1 De reviderte diagnostiske kriteriene (Gent-kriteriene): Gent-kriteriene bygger på familiehistorie, funn ved kliniske undersøkelser, røntgen-, CT/MT- og ultralydundersøkelser og DNA-undersøkelser (påvisning av mutasjoner). Seks organsystemer inngår i de kliniske undersøkelsene (skjelett-systemet, øyet, hjerte- og karsystemet, lungene, hud og hinner og dura mater). Kriteriene er inndelt i hovedkriterier, bikriterier og kriterier for at et organsystem karakteriseres som "involvert" (tab 1). For at en person skal få diagnosen Marfans syndrom må to hovedkriterier fra to ulike organsystemer oppfylles samtidig som et tredje organsystem er involvert. Funn fra genetiske undersøkelser kan erstatte et hovedkriterium. Bildediagnostikk DNA-testing ved Marfans syndrom Det er oftest barn med alvorlige symptomer og barn av personer med kjent diagnose som får stilt diagnosen i småbarnsalder. Flere av manifestasjonene ved Marfans syndrom kan utvikle seg først i voksen alder. En person som er under utredning for Marfans syndrom kan derfor ikke alltid "frikjennes" selv om kriteriene ikke er oppfylt. Dette gjelder særlig hovedkriteriene aortadilatasjon og linseluksasjon. Ved TRS har det vært registrert debut av linseektopi etter 40 års alder (etter at tidligere kontroller av samme person gav normalt resultat). Gjentatte undersøkelser er indisert, især ved påviste grensemål av aortaroten eller hos slektninger av personer med Marfans syndrom.

91. Links Directory Canadian Daibetes Association, The Guardian Angels Program, Find out More about SticklersSyndrome. Last modified 24Feb-2002 by our webmaster at Danjo Creations. http://www.kanggah.com/directory/

kanggah.com Home Our Forums Our Directory Surveys ... your Kids COMPLETE LINKS DIRECTORY Environmentally-Friendly Parenting Cloth Diapers Eco-Friendly Companies Environmental Organizations Involving the Kids ... Recycling Parenting on the Cheap Auction Sites Cooking Coupon Exchanges Frugal Living ... Swap Boards Parenting Topics Attachment Parenting Homeschooling Stay-at-Home Parents Single Income Strategies Support Networks Single Parents Single Income Strategies Support Networks Home Business Advertising and Exposure The Balancing Act Business Resources Home Business Directory ... Website Needs Home Business Directory Other Home Businesses to support Steals n Deals from Fellow Home Business Owners Steals n Deals from Across the Border to benefit Canadians Some of Kanggah's Favored Organisations The Guardian Angels Program Last modified: 24-Feb-2002 by our webmaster at Danjo Creations contact@kanggah.com

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