81. A Journal And Other  Interesting Stuff Enjoy the journal of a young girl with the condition. Find family photos, personal info, and Colorado SWS resources, and assorted links. http://www.geocities.com/HotSprings/1477

Welcome to Breezy's Sturge-Weber Home Page A Journal and other interesting stuff Contents Breezy 2002 Last Revised: January 03, 2003

82. HealthlinkUSA Sturge Weber Syndrome (SWS) Links Try it, you'll love it! AhHa. Click here for page 1 of Sturge Weber syndrome(SWS) information from the HealthlinkUSA directory. Save on Drugs Here. http://www.healthlinkusa.com/296ent.htm

83. Sturge Weber Syndrome (SWS); Treatment, Prevention, Cure Sturge Weber syndrome (SWS)Search information from many of the bestSturge Weber syndrome (SWS) health sites. Quickly find information http://www.healthlinkusa.com/content/296.html

Latest Health News Find Drug Information Health Calculators All Words Any Words A B C D ... Z Sunday, March 30, 2003 Alternative therapy struggles to bridge East-West divide Click here to read more Doctors are not following guidelines recommending flu and pneumonia vaccinations for hospitalized adults, leaving millions of elderly patients vulnerable to potentially deadly ailment Click here to read more A helping hand for uninsured; Agencies find ways to provide health care for area children Click here to read more The government has approved the first generic version of the acne drug, Accutane Click here to read more Gates to give India $100m for AIDS; Microsoft CEO begins controversy-laced trip to fight virus Click here to read more Allergies and Asthma Alternative Medicine Arthritis and Your Health ... Women's Health Monday March 31, 2003 Spina Bifida: Spina Bifida is a rare birth disorder, affecting approximately 1 in 12-1400 live births. Click here to learn more Craniosynostosis: Sagittal Synostosis...males are affected about three times as often as females. Click here to learn more Spinal Cord Injury: Acts of violence have now overtaken falls as the second most common source of spinal cord injury.

84. Sturge Weber Syndrome: Jordan's Story When Jordan was almost six months old, he was diagnosed with SturgeWeber syndrome. Come read his story of hope Hello and welcome. http://www.geocities.com/HotSprings/Spa/6754/

Hello and welcome. My husband and I have a 3.5 year-old son, Jordan, who was diagnosed with Sturge Weber Syndrome at six months of age. I wanted to share his story because it is optimistic and one of hope. When Jordan was first diagnosed, we were so eager to hear about someone with a good story . On July 15, 1996, we received the best gift that God has ever given us: Jordan Ray. From a visual and developmental standpoint, all was perfect. About six months later, Jordan started having mild seizures. We believe he had three or four in a 24-hour period. Basically, his type of seizure has three signs: eyes deviate and pulsate to the left, his left arm jerks toward his body, and he just lays still. We went to our local emergency room, did a CT scan, and were told that he may have a birth defect known as Sturge Weber Syndrome. We spent the night and he was given a startup dosage of Phenobarbital. The next morning he had another more severe seizure, so we were taken by ambulance to Shands Hospital in Gainesville, Florida. The next 24 hours were so frightening. Jordan had an EEG, another CT scan, an MRI, and an MRE. We have never felt so helpless and dependent on strangers in our lives; we cried and prayed. The minute we arrived at Shands, my husband went to the medical library to research SWS. It seemed like a good idea, but it was not. Everything he found on SWS was terribly grim, mainly because most of the literature discussed the worst-case scenarios, which scared us all the more. That is the main reason why I wanted to share Jordan’s story.

85. Norsk Forening For Sturge-Weber Syndrom Norsk Forening for sturgeweber syndrom. Norwegian Foundation for sturge-webersyndrome. (NFSW). Vi har lagt opp sidene våre med såkalte vinduer (frames). http://home.c2i.net/knut.sletten/NFSW.htm

Norsk Forening for Sturge-Weber syndrom Norwegian Foundation for Sturge-Weber syndrome (NFSW) Vi har lagt opp sidene våre med såkalte vinduer (frames). Siden du ikke har mulighet til å vise vinduer med din netlos, vil vår indeks vises som første side. This page is using frames. And since your browser do not support frames, our index is presented instead. Våre sider er inndelt i følgende temaer: See the last topic: Vår logo Our logo Foreningen's hjemmeside NFSW Syndromet Forløp og prognose ... In english please ! Steder for laste ned siste versjoner av netloser: Sites to download modern browsers: Microsoft Internet Explorer versjon 3.0. http://www.microsoft.com/ie/download/ Nescape Navigator 3.0

86. Sturge Weber Syndrome Glaucoma Sturge Weber syndrome Glaucoma. Sturge Weber syndrome 9 to 16. SturgeWeber syndrome is a common cause of blindness during childhood. http://www.futureoptometrist.com/glaucoma1/sturge_weber_syndrome_glaucoma.htm

Sturge Weber Syndrome Glaucoma Sturge Weber Syndrome is a somewhat common condition that is characteristically identified by port-wine stain located on the face. These port wine stains are large reddish purple angiomas caused by an abnormal distribution of blood vessels. They can occur at birth or during infancy, but most commonly develop between the ages of 9 to 16. Sturge Weber Syndrome is a common cause of blindness during childhood. If the angioma affects two branches of the trigeminal nerve which innervate the eyelids and the vascular abnormalities can affect the sclera, eyelids, iris, choroid and the conjunctiva of the eye. If the port wine stain is located on the upper eyelid and forehead, it is most likely that glaucoma will occur. There is usually an increase in intraocular pressures due to the abnormal vasculature of the sclera and damage to the trabecular meshwork. Glaucoma can develop at any age, and can be unilateral (usually the same side as the port wine stain) or in some cases bilateral. Early diagnosis and treatment is key to preventing severe vision loss in these patients. BACK Home What is Glaucoma?

87. Sturge – Weber Syndrome Sturge – weber syndrome,, Print this article, see Sturge Weber syndrome andSturge Weber syndrome ALB The Encyclopaedia of Medical Imaging Volume IV1. http://www.amershamhealth.com/medcyclopaedia/Volume IV 1/Sturge Weber syndrome.

Medcyclopaedia About Medcyclopaedia Amersham Health Search for: Type a word or a phrase. All forms of the word are searchable. Advanced search Browse entry words starting with: A B C D ... Other characters Try our Medcyclopaedia Premium Edition with added tools and functionality tailored to make your working day easier. The following tools are presently available: Expanded search *For Medical Professionals only, registration required Sturge – weber syndrome, see Sturge Weber syndrome and Sturge Weber syndrome ALB The Encyclopaedia of Medical Imaging Volume IV:1 Welcome to Medcyclopaedia. This site is open to a public audience, still we want to know a little more about our visitors. Please tick off the boxes that match your profile. Do you live in Europe? Yes No Are you a medical professional? Yes No This frame will disappear when submitted Legal Privacy Policy Contact us Making Waves

88. Sturge – Weber Syndrome Sturge – weber syndrome,, Print this article, NW The Encyclopaediaof Medical Imaging Volume VII. Sturge – weber syndrome, Fig. http://www.amershamhealth.com/medcyclopaedia/Volume VII/Sturge Weber syndrome.h

Medcyclopaedia About Medcyclopaedia Amersham Health Search for: Type a word or a phrase. All forms of the word are searchable. Advanced search Browse entry words starting with: A B C D ... Other characters Try our Medcyclopaedia Premium Edition with added tools and functionality tailored to make your working day easier. The following tools are presently available: Expanded search *For Medical Professionals only, registration required Sturge – weber syndrome, (William A. Sturge, 1850–1919, English physician; Frederick Parkes Weber 1863–1962, English physician), a neurocutaneous syndrome also known as encephalotrigeminal angiomatosis. Clinical features are the presence of a port wine naevus involving the facial skin, primarily the forehead and cheek, seizures, hemiparesis, mental retardation, glaucoma and hemianopsia. These result from angiomatous vessels of the pia mater in the occipital and occipitoparietal regions. Although it is generally considered to be a non-inherited condition, a few familial cases are reported. Skull radiography may show evidence of serpiginous, unilateral cortical calcification in the occipital region (

89. Braintf8-Sturge Weber Syndrome-T1W Axials-Contrast Sturge Weber syndrome, menigeal, angioma, angiomatosis, pia mater, phakomatoses,nevus, MRI, mribhatia,. To BrainTF8Sturge Weber syndrome. http://www.mribhatia.com/braintf8/braintf8_t1-axial_contrast.html

BrainTF8-Sturge Weber Syndrome-T1W Axials-Contrast Enhanced Click on the image to enlarge.

90. Braintf8-Sturge Weber Syndrome-T1W Axials Sturge Weber syndrome, menigeal, angioma, angiomatosis, pia mater, phakomatoses,nevus, MRI, mribhatia,. BrainTF8Sturge Weber syndrome-T1W Axials. http://www.mribhatia.com/braintf8/braintf8_t1-axial.html

BrainTF8-Sturge Weber Syndrome-T1W Axials Click on the image to enlarge.

91. Sturge - Weber - Dimitri Syndrome Note! Sturge Weber syndrome may be confused with Klippel Trenaunay syndrome. Sturge- Weber syndrome (Great Britain) British Epilepsy Association. http://ibis-birthdefects.org/start/stursyn.htm

Sturge - Weber - Dimitri Syndrome About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Notice! For more about parental and patient support resources explore Support Groups . For general sources of information see Professional Associations and Information Sources Encephalotrigeminal Angiomatosis Fourth Phacomatosis Leptomeningeal Capillary - Venous Angiomatosis Sturge Weber Dimitri Syndrome Note! Sturge - Weber Syndrome may be confused with Klippel Trenaunay Syndrome Special Resources Sturge - Weber - Dimitri Syndrome A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Group [Danish] [Dutch] [French] [Norwegian] [Spanish] [*][P] Sturge - Weber Syndrome by OMIM Sturge - Weber Syndrome by Michael P. D'Alessandro, M.D ... Sturge - Weber Disease Encephalotrigeminal angiomatosis - illustrations of face and microscopic ... Picture Gallery - Surge - Weber syndrome - hands Occasionally seizures or learning disorders are also associated with Sturge - Weber syndrome. [P][Spanish] Síndrome de Sturge weber. Revisión

92. Sturge Weber Syndrome Induced Secondary Glaucoma Sturge Weber syndrome induced secondary glaucoma. International GlaucomaAssociation. Registered Charity No.274681. The Sturge Weber http://www.iga.org.uk/SimpFact/sf105.htm

Sturge Weber syndrome induced secondary glaucoma International Glaucoma Association Registered Charity No.274681 The Sturge Weber syndrome is recognised by the 'port wine stain' type of birthmark which, if on the face or forehead may involve the eye and be associated with obstruction of aqueous fluid drainage and glaucoma. It usually affects the eye in infancy, but occasionally is partial and delayed. If delayed it is sometimes overlooked and all patients with such a birthmark should have their eyes checked using all three glaucoma tests ( ophthalmoscopy (an examination of the optic disc, tonometry , a measurement of the pressure within the eye and perimetry a check of the field of vision). Treatment usually follows similar lines as that for primary open angle glaucoma. BACK HOME IGA LINKS ... CONTACT US page last modified 22nd July 1999

93. Sturge Weber Syndrome Back Home Next. Sturge Weber syndrome. Limb Anomalies Sturge Weber syndrome,Epidermolysis Bullosa, Nail Patella syndrome, VATER Association. http://www.ability.org.uk/Sturge_Weber_Syndrome.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Sturge Weber Syndrome Limb Anomalies - Sturge Weber Syndrome, Epidermolysis Bullosa, Nail Patella Syndrome, VATER Association. Sturge Weber Syndrome - dedicated to our daughter, Stephanie Linell Yarbrough, and all others that have been affected by Sturge Weber Syndrome. Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

94. NORD - National Organization For Rare Disorders, Inc. Sturge Weber syndrome. View Cart/Checkout. Copyright 1986, 1987, 1988, 1989,1991, 1993, 1996, 1997, 1998, 1999, 2002 Synonyms of Sturge Weber syndrome http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sturge Weber

95. Living With Sturge Weber Syndrome Living With Sturge Weber syndrome. Hello, my God! You see, Alyssa was bornwith a very rare brain disorder called Sturge Weber syndrome. I http://www.angelfire.com/tv2/octjam/

Living With Sturge Weber Syndrome Hello, my name is Suzanne and I would like to introduce you to My Little Angel Alyssa is a very special child sent to me by an angel of God! You see, Alyssa was born with a very rare brain disorder called Sturge Weber Syndrome. I'd like to take some time to share our story in hopes of touching the lives of others who suffer from this and other birth defects and also for those who don't. FROM THE BEGINNING BABY DAYS TODDLERHOOD PHOTO ALBUM ... Sign My Guestbook Characteristics of Sturge Weber Syndrome Port Wine Stain Seizures Glaucoma CLICK HERE FOR GREAT RATES ON LONG DISTANCE Email: octjam@pacbell.net

96. Sindrome Sturge Weber Syndrome Bambi Translate this page Sindrome Sturge Weber Sturge Weber syndrome http//www.aidweb.org/ http//utenti.tripod.it/fmfpc/RSTUVWXYZ.htmhttp//www.birdfoundation.org/malattie.asp http http://fastnet.it/enti/bambi/sindrome-sturgeweber.htm

Sindrome Sturge Weber Sturge Weber Syndrome http://www.aidweb.org/ http://utenti.tripod.it/fmfpc/RSTUVWXYZ.htm http://www.birdfoundation.org/malattie.asp http://home.everyday.no/knut.sletten/nfsw.htm ... http://www.nlm.nih.gov/medlineplus/ency/imagepage/2536.htm BAMBI -INFORMAZIONI SULLE MALATTIE RARE DEI BAMBINI- E' ON LINE DAL 1997 E-mail ruffelli@tin.it

97. Qango : Health: Diseases And Conditions: S: Sturge Weber Syndrome (SWS) category Options Help. Home Health Diseases and Conditions S Sturge Weber syndrome (SWS), Suggest a Site. Health, etc. If you http://www.qango.com/dir/Health/Diseases_and_Conditions/S/Sturge_Weber_Syndrome_

Chat Forums Free Email Personals Classifieds ... Help Qango Directory Sturge Weber Syndrome (SWS) all of Qango only this category Options Help Home Health ... S > Sturge Weber Syndrome (SWS) Suggest a Site Health, etc If you would like to suggest a site for this category please click here Home Health Diseases and Conditions ... S > Sturge Weber Syndrome (SWS) Suggest a Site Home Suggest a Site Search ... Login

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