1. ASAP Site Redirection Information about ASAP and its goals, news, chiari manifestation, doctors corner and additional resources. http://www.asap4sm.org

2. Syringomyelia Facts You may have syringomyelia (SM). You are visitor number to this sitesince Jan. 1, 1997. What is syringomyelia? (searIN-go-my-ELL-ya). http://www.syringo.org/

Do you have any of these symptoms? Back pain; headaches; stiffness, weakness or pain in the back, shoulders, arms or legs; loss of the ability to feel extremes of hot or cold, especially in the hands? You may have Syringomyelia (SM) You are visitor number to this site since Jan. 1, 1997. What is syringomyelia? (sear-IN-go-my-ELL-ya) Syringomyelia (SM) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx , expands and elongates over time, destroying the center of the cord. Since the spinal cord connects the brain to the nerves in the extremities, this damage may result in pain, weakness, and stiffness in the back, shoulders, arms or legs. Other symptoms may include headaches and loss of the ability to feel extremes of hot or cold, especially in the hands and disruption in body temperature. SM may also adversely affect sweating, sexual function and bladder and bowel control. What causes Syringomyelia? Trauma to the spinal cord or congenital developmental problems of the brain and/or spinal cord may result in SM. Spinal cord trauma such as a car accident or serious fall may manifest years later as SM.

3. Welcome To The American Syringomyelia Alliance Project Nonprofit organization offers a free brochure about the disorder and its affects. Also has personal essays by syringomyelia patients. http://www.asap4sm.com/

4. Syringomyelia Fact Sheet Fact sheet compiled by the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/pubs/syringomyelia.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about a disorder Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health Syringomyelia Fact Sheet Get Web page suited for printing Email this to a friend or colleague Request free mailed brochure Table of Contents What is syringomyelia? What causes syringomyelia? What are the different forms of syringomyelia? How is syringomyelia diagnosed? ... Where can I go for more information? What is syringomyelia? Syringomyelia (sear-IN-go-my-EEL-ya) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord. Since the spinal cord connects the brain to nerves in the extremities, this damage results in pain, weakness, and stiffness in the back, shoulders, arms, or legs. Other symptoms may include headaches and a loss of the ability to feel extremes of hot or cold, especially in the hands. Each patient experiences a different combination of symptoms. Other, more common disorders share the early symptoms of syringomyelia. In the past, this has made diagnosis difficult. The advent of one outpatient test, however, called magnetic resonance imaging (MRI), has significantly increased the number of syringomyelia cases diagnosed in the beginning stages of the disorder.

5. NINDS Syringomyelia Information Page Information sheet compiled by the National Institute of Neurological Disorders and Stroke.Category Health Conditions and Diseases syringomyelia......syringomyelia information sheet compiled by the National Institute of NeurologicalDisorders and Stroke (NINDS). More about syringomyelia, Studies with patients, http://www.ninds.nih.gov/health_and_medical/disorders/syringomyelia_short.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Syringomyelia Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Syringomyelia Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Syringomyelia? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Syringomyelia? Is there any treatment? Surgery is usually recommended for syringomyelia patients. Recurrence of syringomyelia after surgery may make additional operations necessary; these may not be completely successful over the long term. In some patients it may be necessary to drain the syrinx, which can be accomplished using a catheter, drainage tubes, and valves. In the absence of symptoms, syringomyelia is usually not treated. In addition, a physician may recommend not treating the condition in patients of advanced age or in cases where there is no progression of symptoms. Whether treated or not, many patients will be told to avoid activities that involve straining.

6. Syringomyelia syringomyelia. Definition Chronic syndrome characterized pathologically by cavitation and gliosis of the spinal cord http://www.neuro.wustl.edu/neuromuscular/spinal/syrinx.htm

Front Search Index Links ... Patient Info SYRINGOMYELIA Definition: Chronic syndrome characterized pathologically by cavitation and gliosis of the spinal cord (usually cervical or thoracic), medulla, or both. Clinical syndrome Epidemiology Onset: Most commonly between ages 25 to 40 Clinical features: Variable depending on anatomical involvement Anterior horns Fasciculations Distribution: Usually "suspended" involving arms & trunk; Sparing legs Pain: Occasional; Boring or lancinating Large fiber sensations: Usually preserved Autonomic pathways Horner's syndrome Skin: Trophic changes Neurogenic bladder Corticospinal tracts: Variable involvement Other Scoliosis Tendon reflexes: Reduced or absent in arms Cranial nerve involvement: With syringobulbia Most often unilateral IX - X: Dysphagia; Dysarthria VII: Facial paresis Descending tract of V: "Onion skin" distribution Course: Very slow progression Radiology: A B Associated disorders Spina bifida ? cervical rib Arnold-Chiari malformation Familial syringomyelia Prior trauma or hematomyelia Spinal cord gliomas Return to Spinal disorders

7. Syringomyelia Hub Links to information and resources. http://www.knowdeep.org/syringomyelia

Syringomyelia hub Syringomyelia is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord. Since the spinal cord connects the brain to nerves in the extremities, this damage results in pain, weakness, and stiffness in the back, shoulders, arms, or legs. Other symptoms may include headaches and a loss of the ability to feel extremes of hot or cold, especially in the hands. Signs of the disorder tend to develop slowly, although sudden onset may occur with coughing or straining. If not treated surgically, syringomyelia often leads to progressive weakness in the arms and legs, loss of hand sensation, and chronic, severe pain. Syringomyelia Fact Sheet - by the National Institute of Neurological Disorders and Stroke. Chiari Malformations and Syringomyelia Fact Sheet - prepared by the Center for Human Genetics, Duke University Medical Center, Durham, NC USA. About Syringomyelia or Syrinx - by Diane Mueller, ND, RN, C-FNP., The Chiari Clinic, University of Missouri-Columbia. Syringomyelia from MEDLINEplus Medical Encyclopedia - updated by Galit Kleiner-Fisman MD, FRCP(C), Department of Neurology, University of Toronto, Toronto, Ontario, Canada.

8. Chiari/Syringomyelia Index, Wake Forest University School Of Medicine Internet Links on Arnold Chiari Malformation and syringomyelia from the Department of Neurosurgery, Wake Forest University School of Medicine, Wake Forest University, WinstonSalem, North Carolina. http://www.bgsm.edu/bgsm/surg-sci/ns/chiarisyrinx.html

Arnold Chiari / Syringomyelia Index Department of Neurosurgery Wake Forest University School of Medicine Links to information about Arnold-Chiari malformation, Dandy-Walker malformation, and syringomyelia (spinal syrinx). Syringomyelia/Syrinx and Arnold-Chiari Malformation Links World Arnold Chiari Malformation (ACM) Association Homepage Arnold Chiari Malformation/Syringomyelia FAQ Syringomyelia Facts (from dataprompt.com) Information on Syringomyelia from the (US) National Institutes of Neurological Disorders and Stroke Workshop Summary: Syringomyelia June 20-21, 1994 from the (US) National Institutes of Neurological Disorders and Stroke Chiari Malformation from the (US) National Institutes of Neurological Disorders and Stroke Dandy-Walker Syndrome from the (US) National Institutes of Neurological Disorders and Stroke Canadian Syringomyelia Network Information from Columbia University College of Physicians and Surgeons Chiari Malformation Chiari Surgery Syringohydromyelia Beth Israel Hospital (New York City) Pediatric Neurosurgery Arnold Chiari Malformation Syringomyelia / Hydromyelia General Pediatric Neurosurgery Links Related Indexes from Wake Forest University School of Medicine Neurosurgery The WFUSM Spina Bifida Index The WFUSM Chiari/Syrinx Index The General Disability Links The WFUSM Brain Tumor Index WFUSM Pediatric/Developmental Neurosurgery Homepage with general peditric neurosurgery links Click on the Medical Center logo at right to go to the Medical School Homepage or the Neurosurgery logo at left to return to the Wake Forest University School of Medicine Neurosurgery Homepage.

9. Syringomyelia Read or post issues related to the disease at this forum maintained by Harvard University. syringomyelia Menu. This is a webforum to discuss and comment on syringomyelia. http://neuro-www.mgh.harvard.edu/forum/SyringomyeliaMenu.html

Syringomyelia Menu This is a webforum to discuss and comment on Syringomyelia. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: Oct 8, 1998 to Present Useful Websites can be found and posted here! SM Specialist Question (1/14/00) 8:39 PM Our daughter's challenge (1/8/00) 3:57 AM Our daughter's challenge (1/8/00) 2:48 AM ... One Description of cystic myelopathies (10/8/98) 9:34 PM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page.

10. Syringomyelia Q & A syringomyelia Q A By Bernard Williams, MD. Below you will find his answersto some common questions. What are the known symptoms of syringomyelia? http://www.asap4sm.com/Article Syringomyelia Q&A.cfm

By Bernard Williams, M.D. Mr. Bernard Williams, M.D., CHM, FRCS was the director of the Syringomyelia Clinic at Midland Centre for Neurosurgery and Neurology in England until his death in 1995. His extensive research and the contributions he made toward the understanding of Syringomyelia are still unrivaled today. Below you will find his answers to some common questions. What are the known symptoms of Syringomyelia? Almost any part of the nervous system below the level of vision can be affected. Because the eye movements are affected, then often the patients complain that the vision is not normal which means that almost any symptom arising from the nervous system (with the exception of disturbance of the sense of smell) may be associated with syringomyelia. I would not like to encourage the more introspective reader of a lay publication but since you ask me I would have to say that the commonest symptoms are approximately the following in diminishing order of frequency: pain in the head, neck, trunk, upper limbs or lower limbs

11. Karine's Chiari Page For Teens A website for teens who have Chiari Malformation and syringomyelia. http://www.angelfire.com/hi3/teenchiaripage/index.html

Karine's Chiari Page for Teens Medical News Hi! My name is Karine, and I am 18 years old. I was first diagnosed with Chiari I malformation in 1994 when I was 11 years old. At that time, I was suffering from headaches and nausea. I had an MRI performed, which revealed that I had a Chiari I malformation. In the last 7 years, I've had 6 surgeries. My first surgery, a standard decompression and laminectomy, was in December of 1994. My second surgery, in July 1995, was for the removal of scar tissue and part of the cerebellar tonsils. A dural graft was also placed. My third surgery, in October 1995, was for the insertion of a pressure monitor. My fourth surgery was performed in March 1999 by Dr. Milhorat, who removed a calcified pseudomeningocele. In other words, bone had grown around a pocket of fluid. Dr. Milhorat described it as looking like a chicken egg filled with water. He also performed a larger decompression by removing a 5x4 piece of occipital bone and placing a titanium plate over the opening. (This created more room for my brain.) My fifth surgery was a cardiac ablation. I had this done because I developed an atrial flutter with 2:1 block along with runs of supraventricular tachycardia. Apparently, this had nothing to do with the Chiari I malformation.

12. Lynzi's Chiari Describes the diagnosis, brain surgery and recovery of this 4 year old girl with Arnold Chiari Malformation and syringomyelia. http://www.hometown.aol.com/stefranv645/page1.html

htmlAdWH('7004944', '120', '30'); htmlAdWH('7002240', '234', '60'); Main Create Edit Help Lynzi's Chiari Lynzi was born a healthy baby with a healthy twin sister. She never had any major medical problems. She developed normal physically, or so we thought. One day when she was 4 years old, she rode a kiddy roller coaster at an amusement park while in Indiana visiting her grandparents. She was fine until she developed a severe headache. She'd never had one before that time. Within a week, I took her to a pediatrician to check this out. The doctor gave us a few opinions of what may have caused the headache: allergies or a brain tumor being the two biggest possibilities. Her diet was changed to check for food allergies. She was given a head CT scan to check for a brain tumor. The CT scan came back with a possible Chiari I Malformation, also known as an Arnold Chiari. Naturally, I had no idea of what that was. Lynzi's pediatrician, Dr. Buonanno, explained that he really knew very little about it himself, but that he did know it had something to do with the brain being malformed in some way. So we set out to work it all out together.

13. What Is Syringomyelia? syringomyelia, often referred to as SM, is a chronic disorder involving the spinal cord. http://www.asap4sm.com/syringo.html

14. MEDLINEplus: Syringomyelia All Topics. syringomyelia. Contents of Organizations Statistics. SearchMEDLINE for recent research articles on • syringomyelia. You may http://www.nlm.nih.gov/medlineplus/syringomyelia.html

Skip navigation Other health topics: A B C D ... List of All Topics Syringomyelia Contents of this page: From the NIH Diagnosis/Symptoms Directories Organizations ... Statistics Search MEDLINE for recent research articles on Syringomyelia You may also be interested in these MEDLINEplus related pages: Spinal Cord Diseases Brain and Nervous System From the National Institutes of Health Syringomyelia (National Institute of Neurological Disorders and Stroke) Syringomyelia (National Institute of Neurological Disorders and Stroke) Clinical Trials ClinicalTrials.gov: Syringomyelia (National Institutes of Health) Diagnosis/Symptoms Do I Need an MRI? (Spine-health.com) Disease Management Exercise Concepts for Individuals with Syringomyelia (American Syringomyelia Alliance Project) Specific Conditions/Aspects Chiari Malformation (National Institute of Neurological Disorders and Stroke) Directories Find a Neurosurgeon (American Association of Neurological Surgeons, Congress of Neurological Surgeons) Organizations American Syringomyelia Alliance Project, Inc. (American Syringomyelia Alliance Project) National Institute of Neurological Disorders and Stroke Statistics Prevalence of SM in the U.S.

15. MEDLINEplus Medical Encyclopedia: Syringomyelia syringomyelia. Definition Return to top syringomyelia is damage to the spinalcord, caused by a formation of a fluidfilled cavity within the cord. http://www.nlm.nih.gov/medlineplus/ency/article/001398.htm

Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Syringomyelia Contents of this page: Alternative names Definition Causes, incidence, and risk factors Symptoms ... Prevention Alternative names Syrinx Definition Return to top Syringomyelia is damage to the spinal cord, caused by a formation of a fluid-filled cavity within the cord. Causes, incidence, and risk factors Return to top Syringomyelia is caused by a formation of a fluid-filled cavity within the spinal cord. This fluid build-up may be a result of spinal cord trauma , tumors of the spinal cord, or congenital defects. The cavity most often begins in the neck area. It expands slowly, causing progressive damage to the spinal cord due to the pressure exerted by the fluid. Symptoms result from the spinal cord damage. Symptoms Return to top Numbness or decreased sensation Neck, shoulders, upper arms, trunk in a cape-like distribution Slowly, but progressively worsens Lessened ability to sense that the skin is being touched Decreased sense of pain or temperature Weakness (decreased muscle strength, independent of

16. Canadian Syringomyelia Network http://www.csn.ca/

17. Canadian Syringomyelia Network We have built the following webpages in the hopes that they will answer some ofyour questions about the Canadian syringomyelia Network (CSN), as well as http://www.csn.ca/syringo.htm

Welcome! WE ARE PLEASED THAT YOU HAVE CHOSEN TO VISIT OUR WEBSITE. CSN 2003 Convention - for more information click here New Fall 2003 We have built the following webpages in the hopes that they will answer some of your questions about the Canadian Syringomyelia Network ( CSN ), as well as Syringomyelia ( SM ) itself. CSN is a non-profit charitable organization established in Scarborough, Ontario, in May of 1993. We offer a support network to people who suffer with Syringomyelia and to all individuals interested in this disorder. It is our sincerest intention that this page become an effective tool in our already successful network, increasing our presence to a level where all those individuals who are affected in any way by Syringomyelia may be helped. This organization was created to "link" together as many people as possible with as many resources as possible, and in the process create support, unity and understanding to move confidently into the future of spinal cord research. It is important to us that the families and friends of those with this debilitating disorder also receive information and support. We want to assist them in their quest to understand the challenges for all involved, and provide care to their loved ones. webmaster

18. SYRINGOMYELIA AND SCOLIOSIS syringomyelia AND SCOLIOSIS. JEFFREY J. METER, MD, Orthopaedic Resident. syringomyeliaand Scoliosis. Definition of syringomyelia http://gait.aidi.udel.edu/res695/homepage/pd_ortho/educate/clincase/syrsco.htm

SYRINGOMYELIA AND SCOLIOSIS JEFFREY J. METER, M.D., Orthopaedic Resident ROBERT STANTON, M.D., Pediatric Orthopaedic Attending January 16, 1996 CLINICAL CASE PRESENTATION ORTHOPAEDIC DEPARTMENT THE ALFRED I. DUPONT INSTITUTE WILMINGTON, DELAWARE CASE HISTORY: HISTORY: J.G. is a ten year old female who presented to the Institute with a spinal curvature noted in a routine camp physical. She had no neurologic complaints. Her birth, medical, and developmental history were all unremarkable. Her father has a vague history of spinal curvature. PHYSICAL EXAM: Physical examination was significant for a moderate left thoracic rib prominence as well as absent abdominal reflexes in the upper and lower quadrants on the left side. XRAYS: A 24 degree left thoracic curve from T5 - Tl1 was noted on scoliosis spine films.With the asymmetric abdominal reflexes and high thoracic left curve she was sent for an MRI scan. This revealed a large syringomyelia with dilatation in the lower cervical and upper thoracic area. Also noted was an Arnold-Chiari malformation. TREATMENT: She was referred to a neurosurgeon who performed a posterior fossa decompression. She tolerated this well.

19. What Is Syringomyelia? syringomyelia that is! What is syringomyelia? (searIN-go-my-EEL-ya).syringomyelia, often referred to as SM, is a chronic disorder http://www.asap4sm.org/syringo.html

Syringomyelia... that is! What is syringomyelia? (sear-IN-go-my-EEL-ya) Syringomyelia, often referred to as SM, is a chronic disorder involving the spinal cord. For reasons that are only now being understood, cerebrospinal fluid enters the spinal cord, forming a cavity known as a syrinx. (Doctors sometimes use other words such as cyst, hydromyelia or syringohydromyelia) This syrinx often expands and elongates over time, destroying the center of the spinal cord. As the nerve fibers inside the spinal cord are damaged, a wide variety of symptoms can occur, depending upon the size and location of the syrinx. There are two major types of SM. In most cases it is related to a congenital malformation involving the hindbrain (cerebellum) called a Chiari I Malformation , named after the physician who first described it. This malformation occurs during fetal development and is characterized by downward displacement of the lower part of the brain (cerebellar tonsils) beneath the foramen magnum, into the cervical spinal canal. This displacement blocks the normal flow of cerebrospinal fluid. When normal flow is obstructed, a syrinx can then form in the spinal cord. Not all patients with Chiari Malformations will develop a syrinx, however.

20. Www.chiari.com And Syringomyelia www.chiari.com and syringomyelia. This article submitted by Dolores Strahanon 1/17/97. Email Welcome. What are Chiari Malformations and syringomyelia? http://neuro-www.mgh.harvard.edu/neurowebforum/NeuralgiaArticles/1.17.972.43AMww

www.chiari.com and Syringomyelia This article submitted by Dolores Strahan on 1/17/97. Author's Email: chiari@icus.com A new website for Arnold-Chiari Malformation and Syringomyelia patients, just click here to jump... CHIARI WEBSITE It's a free non-profit website for information exchange, please post your article in their webboard (a new technology better than this webforum-board - framed index) Please visit also the World Arnold-Chiari Malformation Association WebSite... click here... CLICK and click here to email this free Association... Email Welcome What are Chiari Malformations and Syringomyelia? Images are important to understand... normal brain... The first image is a normal foramen magnum with normal cerebellum position. Second image: herniated cerebellar tonsils DOWN through the foramen magnum and this causes severe pain, numbness, vertigo, and many serious symptoms. And often causes Syringomyelia. Thank you. Feel free to email. keywords: chiari arnold chiari malformation chiari malformation syringomyelia syrinx posterior fossa decompression surgery spina bifida autosomal recessive hereditary skull base neurosurgery Next Article Previous Article Return to Topic Menu Here is a list of responses that have been posted to this article...

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