Geometry.Net - Health_Conditions: Neurofibromatosis

Neurofibromatosis Webring Home Page
Join Edit neurofibromatosis Webring Home Page. Welcome to the neurofibromatosisWebring home page! TOP Submit a site to neurofibromatosis Webring
http://neurosurgery.mgh.harvard.edu/NFR/webring.htm

Extractions: Join Edit Welcome to the Neurofibromatosis Webring home page! This ring promotes Neurofibromatosis education, enlightenment, and encouragement. It is open to NF organizations, medical sites, and personal homepages. Sites pertaining to all aspects of NF 1 and 2 are welcome, including associated conditions such as learning disabilities, scoliosis, epilepsy, acoustic neuroma, cancer, deafness, blindness, etc. NF information is too scarce, and public awareness is practically non-existent. TOP Submit a site to Neurofibromatosis Webring Site Title: Site URL: Site Owner: EMail Address: Password: Keywords: Enter up to 20 keywords to describe your site.
NEURO-FIBROMA-TOSIS And The Neurofibromatosis Association
A Brief History of neurofibromatosis and The Association. While Well,like everything else about neurofibromatosis, it isn't simple. To
http://www.users.zetnet.co.uk/neurofibromatosis/history.htm

Extractions: While many will have never heard of neurofibromatosis, most people know something about Muscular Dystrophy or Cystic Fibrosis, and yet, with a birth incidence of 1 in 2,500 - which means around 24,000 people are affected in the UK - Neurofibromatosis (Nf for short) is nearly as common as Cystic Fibrosis. On a world-wide basis it is five times more common than Muscular Dystrophy. Why, you may wonder, is it possible that there is a disorder which affects so many people and yet still is so little known? A disorder which can occur in any family, frequently causes learning difficulties and behavioural problems, affects the body's vital nervous system and can lead to serious complications and, occasionally, even premature death. Well, like everything else about neurofibromatosis, it isn't simple. To begin with, there are two different types of neurofibromatosis, "neurofibromatosis type one" and "neurofibromatosis type two" which we refer to as Nf1 and Nf2. To simplify things here, most of the following information is about Nf1. Secondly, the name doesn't help - NEURO-FIBROMA-TOSIS - and, with its political connotations in the UK, the fact that it is called Nf for short, can be quite a problem.
ACNefi - Associació Catalana De Les Neurofibromatosis
InformaciÃ³ sobre aquesta malaltia i possibilitat de contactar amb grups d'ajuda mÃºtua. Activitats de l'associaciÃ³, tauler d'anuncis i llocs web d'interÃ¨s.
http://www.acnefi.com/catala/acnefi.htm

Extractions: Qui som? Al Novembre de 1996, un petit grup d'afectades de NF, va constituir el Grup d'Ajuda Mútua de la Neurofibromatosi (GAM) - Nefi . Poc a poc es va aplegar gent de Catalunya i d'altres indrets d'Espanya, fins que es va veure la necessitat de tenir una organització que ens representés i mitjançant la qual poguéssim actuar i fer-nos sentir. El Gener del 1998 va néixer l' Associació Catalana de les Neurofibromatosis (ACNefi), que és una associació d'ajuda mútua sense ànim de lucre i des d'aleshores oferim ajuda a afectats i als seus familiars mitjançant els grups d'ajuda mútua, activitats informativas i quaderns divulgatius sobre la malaltia. Millorar la qualitat de vida dels afectats de la NF oferint: Suport i assessorament tant als afectats com a llurs familiars, orientant-los a la rehabilitació física, psicològica, i a recuperar l'autoestima perduda. Informació, per mitjà de seminaris, cursos, conferències, publicacions, i congressos, del coneixement que se'n tingui de la NF i dels avenços realitzats pel seu reconeixement, prevenció i tractament.
MEDLINEplus: Neurofibromatosis
Translate this page neurofibromatosis. Otras Otros Recursos neurofibromatosis (Fundaciónde Niños con Defectos de Nacimiento March of Dimes). Información
http://www.nlm.nih.gov/medlineplus/spanish/neurofibromatosis.html
Craniofacial Unit At The Chelsea And Westminster Hospital, London
Service providing multidisiplinary care for cleft lip and palate and craniofacial conditions, as well as neurofibromatosis and vascular malformations.
http://www.cleft-craniofacial.org
The Neurofibromatosis Association
http://www.nfa.zetnet.co.uk/
The Elephant Man's Mistaken Identity
Article showing that Merrick, diagnosed during his life as suffering from neurofibromatosis, actually suffered from Proteus Syndrome.
http://www.parascope.com/articles/0397/elephant.htm
European Associations
Links to European neurofibromatosis laygroups.
http://www.neurofibromatosis-network.org/eur-ass.htm

Extractions: Person of contact: Alena Petrakova, Tel. +0042 24 255 8433 Czech Republick Dansk Forening for Neurofibromatosis Recklinghausen Denmark Suomen Neurofibromatoosiyhdistys r.y. Finland Les Neurofibromatoses France Ligue Française contre les Neurofibromatoses France Von Recklinghausen Gesellschaft e.V. Germany Neurofibromatose - Arbeitskreis Berlin/Brandenburg Germany Neurofibromatose Selbsthilfegruppen Germany Ireland's Web Centre Neurofibromatosis Ireland Associazione Neuro Fibromatosi Italy Lottiamo Insieme per la NeuroFibromatosi Associazione Italy Vereniging Ziekte von Recklinghausen of de Nederlandse neurofibormatose patiëntenvereniging Netherlands Norsk Forening for Nevrofibromatose Norway Association in Portugal
Las Neurofibromatosis
Translate this page Información sobre neurofibromatosis del Instituto nacional de desórdenes y delmovimiento neurológicos/Spanish-language fact sheet on neurofibromatosis
http://www.ninds.nih.gov/health_and_medical/pubs/las_neurofibromatosis.htm

Extractions: Request free mailed brochure ¿Qué son las neurofibromatosis? ¿Qué es la Neurofibromatosis Tipo 1 (NF1)? ¿Cuáles son los signos y síntomas de la Neurofibromatosis Tipo 1 (NF1)? ¿Cuándo aparecen los síntomas? ... ¿Dónde puedo obtener más información? Las neurofibromatosis son trastornos genéticos del sistema nervioso que afectan principalmente al desarrollo y crecimiento de los tejidos de las células neurales (nerviosas). Estos trastornos ocasionan tumores que crecen en los nervios y producen otras anormalidades tales como cambios en la piel y deformidades en los huesos. Las neurofibromatosis ocurren en ambos sexos y en todas las razas y grupos étnicos. Los científicos han clasificado los trastornos como neurofibromatosis tipo 1 (NF1) y neurofibromatosis tipo 2 (NF2). Existen otros tipos o variantes de neurofibromatosis, pero éstos no han sido definidos aún. ¿Qué es la Neurofibromatosis Tipo 1 (NF1)?
Neurofibromatosis Resources - Photographs
Photos of cafe au lait spots and external neurofibroma tumors.
http://neurosurgery.mgh.harvard.edu/NFR/photos.htm

Extractions: Photos which demonstrate different visible aspects of Neurofibromatosis, Type 1 Note: The photos on this page are amateur photos, taken by me. They are intended solely to give the average person an idea of what some of these aspects of the disease look like, and should not be used as references for making a diagnosis of NF-1. This image shows a rather large cafe au lait (CAL) spot which extends nearly to the first knuckles on the back of the hand, and about 2 inches above the wrist. Click on picture for a larger image. This photo shows a moderate number of small to medium neurofibroma tumors. Another condition sometimes associated with NF-1 is pectus excavatum , or sunken chest, which is a congenital deformity of the ribcage. For more information on pectus excavatum, visit this very informative site.
Neurofibrmatosis - Neurologychannel
neurofibromatosis is a genetic disorder that primarily affectsnervous system function, neural cell growth, and the skin.
http://www.neurologychannel.com/neurofibromatosis/

Extractions: Overview Neurofibromatosis (NF) is a genetic neurological disorder that affects cell growth in nerve tissue. NF produces tumors of the skin, internal organs, and nerves that may become cancerous (malignant). It also can affect bones, causing severe pain and debilitation and may result in learning disabilities, behavioral dysfunction, and hearing and vision loss. There is no cure for neurofibromatosis. Types
Neurofibromatosis (NF1, NF2): What Is It?
National neurofibromatosis Foundation link, DNA Learning Center Link,Concept 1 Children resemble their parents. Learn how Mendel
http://www.yourgenesyourhealth.org/ygyh/mason/ygyh.html?syndrome=nf
The NF2Crew Website
Online discussion group for people with neurofibromatosis 2.
http://www.webcrossings.com/nf2crew/
The Texas Neurofibromatosis Foundation
Texas neurofibromatosis Foundation supports individuals and families in Dallas,Houston, Austin, and San Antonio. THE TEXAS neurofibromatosis FOUNDATION.
http://www.texasnf.org/
WebRing: Hub
About this Ring. This ring promotes neurofibromatosis education, enlightenment, andencouragement. No Adult or Illegal material please. neurofibromatosis, Inc.
http://r.webring.com/hub?ring=neurofibroma&list
Policy Statement
Health Supervision for Children With neurofibromatosis (RE9534). AMERICAN ACADEMYOF PEDIATRICS. REFERENCES. 1. Dunn DW. neurofibromatosis in childhood.
http://www.aap.org/policy/00923.html

Extractions: 2. Check the child's blood pressure. Because renal disease (particularly renal artery stenosis), aortic stenosis, pheochromocytomas (more common in adults) and adrenal tumors may occur, regular and careful blood pressure measurements are important. A variety of vascular hypertrophic lesions may be found.
Neurofibromatosis
Disorders and Stroke, NIH The National Organization for Rare Disorders a searchablesite that includes information on neurofibromatosis GeneClinics a medical
http://www.ncbi.nlm.nih.gov/disease/Neurofib.html

Extractions: The NF2 gene has been mapped to chromosome 22 and is thought to be a so-called 'tumor- suppressor gene'. Like other tumor suppressor genes (such as p53 and Rb), the normal function of NF2 is to act as a brake on cell growth and division, ensuring that cells do not divide uncontrollably, as they do in tumors. A mutation in NF2 impairs its function, and accounts for the clinical symptoms observed in neurofibromatosis sufferers. NF-2 is an autosomal dominant genetic trait, meaning it affects both genders equally and that each child of an affected parent has a 50%% chance of inheriting the gene. We are learning more about the function of the NF2 gene through studies of families with neurofibromatosis type 2 and through work in model organisms, particularly mice. The exact molecular function of NF2 in the cell is still unknown, although the protein is similar to the ERM family of cytoskeleton-membrane linker proteins. Further work on the binding partners of NF2 would help to identify potential specific targets for future drug therapies.
Neurofibromatosis; Congressionally Directed Medical Research Programs (CDMRP)
Vision. Decrease the impact of neurofibromatosis. Mission. neurofibromatosis ResearchProgram Fact Sheet. FY02 neurofibromatosis Research Program Integration Panel.
http://cdmrp.army.mil/nfrp/
Genomelink
A description of neurofibromatosis, followed by links to research articles, treatment methods, clinical trials and nonprofit organizations.
http://www.genomelink.org/neurofibromatosis
The Family Village - Neurofibromatosis
Library M N. neurofibromatosis. Related Conditions NF1, von Recklinghausendisease. Who to Contact. neurofibromatosis, Inc. (NF, Inc
http://www.familyvillage.wisc.edu/lib_neuf.htm

Extractions: Web: http://www.nfinc.org/ Neurofibromatosis, Inc. is dedicated to individuals and their families who are affected by the neurofibromatoses. They services the needs through coordinated educational, support, clinical and research programs, and promotes national, state and local community involvement. They have local chapters and provide a directory of these in their newsletter and their NF flyer. They will provide materials and assistance to persons wishing to start a support group in their locality and it provides informal parent-to-parent matching. NF, Inc publishes a semi-annual newsletter, Neurofibromatosis Ink , which is free to members and brochures that provide information about the disease and the organization. They also have a new parent packet that includes, the brochure

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