Geometry.Net - Health_Conditions: Scleroderma

Tamlynn's Story
A mom shares her story about her daughter's battle with juvenile scleroderma.
http://www.expage.com/TammlynnsStory

Extractions: Hi, my name is Shannon and my daughter Tamlynn is 10 years old. She was diagnosed August 1999 with Morphea/Linear Scleroderma. It covers her right foot and it has spread up to her leg, butt and has a lesion on her stomach. She has a contracture at her knee along with nerve damage in her foot. A doctor tried to straighten her leg which has left her on crutches since February 2000. September 1999, I noticed Tamylnn had started limping on her leg. I took her to see a doctor that in turn referred us to see another doctor in San Antonio. The doctor said Tamlynn had a malformation of blood vessels on her muscle. He recommended it to be removed. Within three weeks we moved from Austin to San Antonio. We were in a collision that wiped out my truck. Thank God no one was hurt. Tamlynn had three surgeries.
United Scleroderma Foundation Inc.
united scleroderma foundation inc. New Mexico Chapter. Long animated contact Unitedscleroderma Foundation The New Mexico State Chapter 4720 Cutting Ave.
http://swcybermall.com/scleroderma/

Extractions: united scleroderma foundation inc. New Mexico Chapter About Our Foundation Upcoming Events About Scleroderma Symptoms ... How You Can Help MISSION STATEMENT It's hard enough to face the debilitating physical and emotional effects of scleroderma, but facing them alone can be devastating. The mission of the United Scleroderma Foundation is to provide educational and emotional support for scleroderma patients and their families. USF is committed to increasing awareness of this devastating disease and raising essential research dollars to determine its cause enhance treatment and find a cure. For More Information contact:
Dana's Story
A story written by a mom regarding her 18 year old daughter's diffuse scleroderma.
http://expage.com/DanasStory

Extractions: Dana was diagnosed with Systemic Scleroderma in September of 1993 when she was ten years old. She also has Raynaud's disease and living in New York City, she struggles with the cold. She has been able to obtain a disability-parking pass from the state and her college. Dana has had bouts with Alopecia Areata, and looses patches of scalp hair, eyelashes, and eyebrows from time to time. As her mother, I find this very hard to handle but she just combs her hair in another direction and goes on. Dana is fine young woman now and we cannot predict what the future holds for her, or for any of us for that matter, but we know that she lives her life with all her heart. She is my hero, the wind beneath my wings. She makes her father and I proud as well as hopeful that soon we can find a way to stop this awful disease. Until then she knows the world what it means to "go with all your heart".
Index
The scleroderma Society of Ontario is committed to promoting increased public awareness,advancing patient wellness and supporting research in scleroderma.
http://www.sarnia.com/groups/sso/

Extractions: Helen Stys Scleroderma Society of Canada Annual General Meeting Saturday, September 21, 2002 Rustik Restaurant Conference Center Chateauguay Quebec Come Join Us 2002 WALK, ROLL OR RUN Fundraiser Date: Saturday, October 5, 2002 Time: Starting at Noon Location: Springbank Park London Ontario Pledge Form Web space kindly provided by:
MedWebPlus Subject Scleroderma
A free service to help you find health sciences information quickly and easily.scleroderma A, , GO, Sherry Messick - Personal Story (scleroderma).
http://www.medwebplus.com/subject/Scleroderma
Disease Category Listing (136): Scleroderma
Clinical Trials scleroderma. Georgia. Marietta scleroderma? New York. NewYork; Rockefeller University Hospital scleroderma Study. International.
http://www.centerwatch.com/patient/studies/cat136.html
Scleroderma - About Scleroderma
Next . scleroderma. Edited by Frederick A. Matsen, III, MD Last updatedFebruary 13, 2002 About scleroderma. What is it? scleroderma
http://www.orthop.washington.edu/arthritis/types/scleroderma

Extractions: Last updated February 13, 2002 About scleroderma Scleroderma is a disease that can affect the skin, joints , blood vessels, and internal organs. The word scleroderma means "hard skin." Most people with scleroderma have problems with their skin and other parts of their bodies. Scleroderma is a chronic disease. This means it may last for months, years, or for a lifetime. There is no cure for it, but it can be treated. With early detection and proper management, many people with scleroderma can lead full, productive lives. Scleroderma is a rare disease. It affects women two to three times more often than men. The disease usually starts between ages 30 and 50. It is sometimes seen in children and the elderly. The cause of scleroderma is unknown. It is not contagious, so you can't catch it from someone or give it to anyone. It is not inherited or passed on from one generation to the next, except in rare instances.
HOME Page For SF-TBC
Race Logo. FRIENDS FOR scleroderma RUN. Inactive at this time.
http://www.scleroderma-texas.org/
DermPath
scleroderma. Sclerotic lesions, smooth and shiny; Localized forms(morphea, linear scleroderma) and generalized form (progressive
http://www.pathology.iupui.edu/drhood/scleroderma.html
LEARNING ABOUT SCLERODERMA
LEARNING ABOUT scleroderma scleroderma Foundation of Victoria. scleroderma, alsoknown as systematic sclerosis, is an uncommon but not rare disorder.
http://www.nevdgp.org.au/geninf/std_misc/LEARNING_ABOUT_SCLERODERMA.htm

Extractions: www.vicnet.net.au/~sclerofv/ Scleroderma, also known as systematic sclerosis, is an uncommon but not rare disorder. Many patients, when told they have this problem, find it difficult to find further information on this condition. In particular, it is common for scleroderma to be portrayed "in the wrong light" without an understanding of the type of scleroderma that they have, and also the extent of the condition in their particular case. This information is extremely important as it provides the patient with an understanding of their outlook - what the disease on average might do to the patient and how the disease will affect their future. An appropriate understanding of scleroderma, especially the way it affects the individual with the problem, is the first pre-requisite for gaining self management skills. The management of any chronic illness requires an interaction between the patient, their doctor, other health professionals and their family and friends. Even in the recent past, scleroderma was regarded as a disease with the potential to cause considerable disability, and one that might even cause death. However, the perspective on scleroderma has changed considerably. It is now recognised that it is far more common than it was believed to be, and milder form manifest in many people who never develop more serious disease. Furthermore, whilst a cure is not yet available, a large number of treatment options are now available for the various manifestations of the condition. There is no doubt that the outlook for someone with scleroderma diagnosed nowadays is considerably better than ever before.
Scleroderma / Systemic Sclerosis By Drdoc On-line
scleroderma / Systemic sclerosis, by drdoc online. abnormal nailfoldcapillaries. The clinical features Of scleroderma. The main clinical
http://www.arthritis.co.za/scleroderma.htm

Extractions: drdoc on-line Table of contents Definition and Epidemiology Musculoskeletal involvement in Scleroderma Classification Renal disease in Scleroderma ... Go to Arthritis index page Systemic sclerosis is a generalized disorder of connective tissue, leading to progressive tissue fibrosis. The condition characterized by fibrosis of the skin, but with involvement also of joints, tendons, muscles, and internal organs The condition was first described by Curzio in the 1753. Initially it was seen as a condition affecting the Skin but in 1945, Goetz proposed a description of progressive systemic sclerosis. He described visceral lesions in autopsy cases, whilst studying Medicine and forensic pathology at the University of Cape Town, South Africa. In addition, a limited Scleroderma was described in 1964 by Winterbauer. He referred to a syndrome with calcinosis raynauds phenomenon esophageal dysmotility sclerodactyly , and Telangiectasia . This subsequently became known as the C R E S T syndrome.
OBGYN.net - Scleroderma & Pregnancy - A. Iqbal, MD
return scleroderma Pregnancy by Asim Iqbal, MD Department of Obstetrics Gynecology Nishtar Hospital, Multan, Pakistan. scleroderma
http://www.obgyn.net/displayppt.asp?page=/english/pubs/features/presentations/iq
HJD | Department Of Rheumatology
Fibromyalgia Lyme Disease Paget's Disease Bursitis Tendonitis Back NeckPain Pain Management New Medications Studies Department Home, scleroderma.
http://hjd-www.med.nyu.edu/Rheumatology/sclerod.html

Extractions: MM_preloadImages('images/nav_osteoon.gif'); MM_preloadImages('images/nav_painon.gif'); MM_preloadImages('images/nav_backneckon.gif'); MM_preloadImages('images/nav_bursitisoff.gif'); MM_preloadImages('images/nav_pagetoff.gif'); MM_preloadImages('images/nav_lymeoff.gif'); MM_preloadImages('images/nav_fibroon.gif'); MM_preloadImages('images/nav_autoimmuneon.gif'); MM_preloadImages('images/nav_jarthritison.gif'); MM_preloadImages('images/nav_arthritison.gif');
Localized Scleroderma Morphea
scleroderma means hard skin and is pronounced sklero-derma. sclerodermais a disease that causes fibrosis (hardening) of the skin
http://www.skinsite.com/info_scleroderma_localized.htm

Extractions: Localized Scleroderma I. Definition: Scleroderma means "hard skin" and is pronounced skler-o-derma. Scleroderma is a disease that causes fibrosis (hardening) of the skin and sometimes the internal organs. Scleroderma can range from a form localized to the skin to a severe disease the effects the internal organs known as systemic scleroderma. Localized scleroderma can range from just a few spots on the skin to covering almost the entire skin surface. The skin lesions of localized scleroderma feel firm and hard. The color is ivory to yellowish in color. The skin lesions of localized scleroderma are usually seen on the trunk but can also occur on the face, arms, and legs. Localized scleroderma may last for a few months to many years. The condition is four times more common in women and usually starts between the ages of twenty and fifty. II. Cause: III. Treatment: There is not a known medication that will stop or reverse the process of scleroderma. Milder forms of scleroderma may be helped by topical cortisone medications or cortisone injections.
The Contact A Family Directory - SCLERODERMA
printer friendly, scleroderma, Rheumatologist, Royal Free Hospital, London,UK. scleroderma SOCIETY. scleroderma Society 3 Caple Rd London NW10
http://www.cafamily.org.uk/Direct/s18.html

Extractions: printer friendly SCLERODERMA home more about us in your area conditions information ... how you can help search this site Scleroderma (hard skin) is a little-known disease of the connective tissue, immune system and blood vessels which primarily affects women in the child-bearing years, though it can affect anyone of any age. It results in taut, hard, discoloured skin and may also affect the internal organs. Scleroderma is divided into localised forms (morphoea, linear scleroderma) and generalised scleroderma (systemic sclerosis, SSc). SSc has a severe form with patients having wide spread skin involvement and a mild form with patients having skin involvement only in the hands, lower arms, feet, lower legs and face. The severe form, diffuse cutaneous SSc, affects 40% of sufferers; the mild form, limited cutaneous SSc, 60%. In the severe form, wide areas of the skin are affected and internal organ involvement occurs early. Scleroderma can be fatal, with lung disease as the chief cause of death. Survivors may have a reduced quality of life with breathlessness, kidney disease, heart disease, digestive problems and reduced function in joints, muscles and hands. In the mild form, there is limited skin involvement with the later development of gut disease (and thus difficulty in swallowing and eating) and lung problems, usually pulmonary hypertension. Additionally there may be calcinosis (deposits of calcium which mass under the skin and protrude), dry eyes and mouth, ulceration and a very poor circulation.
Page 43 Home
scleroderma. scleroderma is a chronic autoimmune disease that involves theskin and connective tissue. There are two types, localized and systemic.
http://www.aarda.org/page43.html

Extractions: Scleroderma Scleroderma is a chronic autoimmune disease that involves the skin and connective tissue. There are two types, localized and systemic. In the localized type, the skin shows one or more patches of sclerosis (thickening and hardening). The systemic type involves the skin and the connective tissue. This article deals with the systemic forms of scleroderma. Systemic forms of scleroderma include progressive systemic sclerosis (PSS), also known as systemic sclerosis (SS), and the CREST syndrome. Systemic scleroderma involves body systems such as the esophagus, intestines, lungs, heart and kidneys. Diffuse scleroderma is a term which describes systemic sclerosis and skin changes on many parts of the body. Tight, glossy skin may be present on the trunk and upper arms as well as on the face, chest and extremities. The CREST syndrome is an acronym made up of the first letters of the five most prominent manifestations of this form of scleroderma. They are: calcinosis (accumulation of calcium salts under the skin), Raynaud's phenomenon, esophageal dysfunction, sclerodactyly and telangiectasia. Systemic scleroderma can occur in both men and women, and it typically affects women in their thirties and forties. Each case is different, and the severity of the disease varies among patients. For more information on scleroderma or other autoimmune disorders, please click on the request information icon below.
LookSmart - Scleroderma
Search the Web for. LookSmart Home. Featured Sponsors. scleroderma. 1UpHealth scleroderma Know its causes, diagnosis, and treatment.
http://www.looksmart.com/eus1/eus302562/eus317837/eus317920/eus53948/eus273036/e
Scleroderma
scleroderma,, Print this article, scleroderma has frequently been difficult todifferentiate from other disorders associated with induration of the skin.
http://www.amershamhealth.com/medcyclopaedia/Volume III 1/scleroderma.html

Extractions: *For Medical Professionals only, registration required Scleroderma, also called progressive systemic sclerosis, a generalized disorder of connective tissue of unknown cause that affects principally the skin, lungs, gastrointestinal tract, heart, kidneys and musculoskeletal system. Another name for this disease is progressive systemic sclerosis. Severe fibrosis and alterations of small blood vessels are among its pathologic features. Many of the diverse clinical manifestations in this disease are represented on radiographs as atrophy and calcification of soft tissue and bone resorption. Frequently the abnormalities predominate in the phalanges of the hand, although diffuse subcutaneous calcification, widespread periarticular calcification, and bone resorption are encountered at other sites, such as the mandible, the ribs and the clavicles. Joint alterations include erosive arthritis and intra-articular calcific collections. Scleroderma has frequently been difficult to differentiate from other disorders associated with induration of the skin. Among the conditions with similar features are
Scleroderma
scleroderma. scleroderma can be divided into those with limited skininvolvement or those with more generalized skin involvement.
http://www.hjd.org/hospitals/hjd/html/body_scleroderma.html

Extractions: Lupus ... Clinical Immunology Lab Scleroderma Scleroderma is a connective tissue disease, the origin of which is unknown, characterized by fibrosis, or thickening by scar tissue, of the skin and sometimes internal organs. Since many of the patients have autoantibodies in the blood it is considered an autoimmune disorder. Almost all patients with scleroderma have Raynauds phenomenon and with exposure to cold temperature their fingers and sometimes toes become painful and turn first white, then blue and red. Scleroderma can be divided into those with limited skin involvement or those with more generalized skin involvement. Limited skin disease can be accompanied by additional features including skin Calcinosis, Raynauds phenomenon, abnormalities of the Esophagus (food pipe), Sclerodactyly (tightening of skin on the fingers) and skin Telangiectasias (spider veins). This type of scleroderma is referred to as CREST syndrome. Patients with diffuse, generalized skin fibrosis may have the type of sclerodenna known as systemic sclerosis and may develop fibrosis involving the lungs, heart, gastrointestinal tract and kidneys.
Sclero
The scleroderma Center at Boston University School of Medicine and Boston MedicalCenter is a multidisciplinary effort encompassing basic and clinical research
http://medicine.bu.edu/sc/sclero.htm

Extractions: Joseph H. Korn, MD, Director Robert Simms, MD, Associate Director, Clinical Programs Peter Merkel MD, Clinical Trials Kate Schrade, Admin. Asst. Clinical Programs Tina Elias-Todd, MD Fellow Harrison Farber MD, Pulmonary Eugene Kissin, MD, Fellow Dennis Liu, MD Fellow Arthur Theodore MD, Pulmonary Basic Research Programs Allesandra Farina, MD Robert Lafyatis, MD Raphael Lemaire, Ph.D. Lauren Kim, MD Fellow Tako Ogawa, MD David Strehlow, PhD Russell Widom, PhD The Scleroderma Center at Boston University School of Medicine and Boston Medical Center is a multidisciplinary effort encompassing basic and clinical research, clinical trials and patient care. The Scleroderma Center is part of the Boston University Arthritis Center, which has an extensive research program in immunology, molecular and cell biology, biochemistry and epidemiology. Clinical care is provided at the Boston Medical Center, including clinical trials at the NIH-funded Clinical Research Center of Boston University Medical Center. Research is supported by grants from the NIH, Arthritis Foundation, Scleroderma Research Fund, and kind gifts from patients and corporate donors. The support we receive allows us to provide a broad range of clinical and advisory services to patients with scleroderma and other autoimmune diseases. Clinical Programs Over the last 9 years, approximately 800 patients with scleroderma have been evaluated, including patients from Southeast Asia, South America, the Middle East and various parts of the U.S. Special programs for the evaluation of lung disease and pulmonary hypertension are in place. Our program is part of the international Scleroderma Clinical Trials Consortium, a group that conducts multicenter trials of therapies in scleroderma. We currently have two studies for skin disease in early scleroderma, anti-body to TGFß and interferon ß-1.

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