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This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to anencephaly (also ), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on anencephaly. Given parents' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. ... Read more

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Webster's bibliographic and event-based timelines are comprehensive in scope, covering virtually all topics, geographic locations and people. They do so from a linguistic point of view, and in the case of this book, the focus is on "Anencephaly," including when used in literature (e.g. all authors that might have Anencephaly in their name). As such, this book represents the largest compilation of timeline events associated with Anencephaly when it is used in proper noun form. Webster's timelines cover bibliographic citations, patented inventions, as well as non-conventional and alternative meanings which capture ambiguities in usage. These furthermore cover all parts of speech (possessive, institutional usage, geographic usage) and contexts, including pop culture, the arts, social sciences (linguistics, history, geography, economics, sociology, political science), business, computer science, literature, law, medicine, psychology, mathematics, chemistry, physics, biology and other physical sciences. This "data dump" results in a comprehensive set of entries for a bibliographic and/or event-based timeline on the proper name Anencephaly, since editorial decisions to include or exclude events is purely a linguistic process. The resulting entries are used under license or with permission, used under "fair use" conditions, used in agreement with the original authors, or are in the public domain. ... Read more

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This book offers practical guidance to women who are suddenly confronted with medical diagnoses that place them in a high-risk category or indicate abnormalities in their developing babies. The author draws on her own personal experience to provide useful information about a wide range of medical conditions in a way that takes account of the emotional and psychological impact. The sections devoted to the diagnosis of high-risk pregnancy and foetal anomalies include a range of first-person accounts of these experiences. In sections on pregnancy and labour and on the death of a child, the author provides a wealth of advice for dealing with the practical, ethical and emotional issues that can arise in the different stages of these experiences of pregnancy. The author refers to recent scientific findings in this field and provides a comprehensive glossary of medical terms, as well as a further reading section for both adults and children within families affected by these medical conditions.The book has a strong practical focus throughout and the author provides a list of recipes to accompany the dietary advice and suggestions of specific exercises to promote health during this journey. She also supplies comprehensive lists of support organisations throughout the world that specialise in helping people to deal with the requirements of specific medical conditions. ... Read more

Customer Reviews (1)

In touch with the emotions and difficult choices
High-Risk Pregnancy and Foetal Diagnosis: Your Journey by professional family therapy, grief, and women's health counselor Stephanie Azri is a practical guide written especially for women who must cope with medical diagnoses that put them in a high-risk category, or indicate abnormalities in their unborn. High-Risk Pregnancy and Foetal Diagnosis outlines in plain terms the choices expectant mothers and fathers have with regard to screening tests and their risks, cases where the unborn is diagnosed with a potentially fatal disorder, labor and delivery versus means of terminating high-risk pregnancies or pregnancies with a severe malformation, the options for placing a child with Down's syndrome or other severe but nonlethal genetic flaws if the family feels unable to give proper care, and much more. Individual personal written testimonies put the reader in touch with the emotions and difficult choices that others who may have been in the same position have had to make. ... Read more

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This up-to-date and comprehensive set of two CD-ROM discs provides a superb collection of authoritative documents on the subject of neural tube defects. Neural tube defects are birth defects of the brain and spinal cord. The two most common neural tube defects are spina bifida and anencephaly. In spina bifida, the fetal spinal column doesn't close completely during the first month of pregnancy. There is usually nerve damage that causes at least some paralysis of the legs. In anencephaly, much of the brain does not develop. Babies with anencephaly are either stillborn or die shortly after birth. Getting enough folic acid, a type of B vitamin, before and during pregnancy prevents most neural tube defects.For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material. There is no other reference that is as fast, convenient, and portable - everything you need to know, from the federal sources you trust. This thoroughly researched collection presents vital information from many authoritative sources: Food and Drug Administration (FDA), Centers for Disease Control (CDC), National Institutes of Health (NIH) and the relevant institute for this disease, and others.In addition to the comprehensive disease-specific coverage, this disc set also includes our Medical Encyclopedia, a $19.95 value! The Encyclopedia presents a collection of official documents about a wide range of medical topics, diseases, illnesses, health and wellness. There is vital information from the National Institutes of Health (NIH), the Centers for Disease Control (CDC), National Cancer Institute, and more. Topics covered include: major diseases, including cancer, heart and vascular disease, stroke, blood diseases and disorders, lung diseases, and neurological disorders such as dementia and epilepsy * CDC Health Topics A to Z, Foodborne Illnesses, Infants and Children, Injuries, Occupational Health, Older Adults, Women * CDC Travelers' Health - Destinations, Vaccinations, Diseases, Mosquito, Tick, Food, Water, Clinics, Yellow Book, Children, Airplanes, Cruise Ships, Special Needs, Relief Workers * Dietary Guidelines * NIH A to Z from abnormalities to X-rays.Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 67 of the best sites for medical information! Built-in weblinks let you quickly check for the latest clinical updates directly from the government and the best commercial portals, news sites, reference/textbook/non-commercial portals, and health organizations. ... Read more

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This up-to-date electronic book on CD-ROM provides the best collection available anywhere of official Federal government information and documents on the subject of neural tube defects. This CD-ROM uses next-generation search technology that allows complete indexing and makes all files on the disc fully searchable. For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material.

This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), Centers for Disease Control (CDC), the Combined Health Information Database (CHID), the Food and Drug Administration (FDA), and the National Institute of Neurological Disorders and Stroke (NINDS). Contents include clinical and medical information.

In addition, as a bonus we have included an encyclopedic collection of general medical and health documents – thousands of pages with extensive material from the CDC and NIH on hundreds of diseases and health topics from A to Z, along with FDA drug and medical publications, government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers’ health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government.

This CD-ROM has over 27,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable!

Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.) ... Read more

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16 page article on 20# paper in 60# covers, corner-stapled ... Read more

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Fetus, Fetus (biology), Prenatal development,Fertilisation,Miscarriage, Umbilical cord, Anencephaly, Fetal movement,Birth mass, Gestational age, Fetal pain,Fetalcirculation,Ductus venosus, Adaptation to extrauterine life,Congenitaldisorder, Abortion debate,Fetal rights, Abortion law,Late-term abortion,Fetal position,Fetal Position(House) ... Read more

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Targeted to patients, their families and allied health students, The “Gale Encyclopedia of Neurological Disorders” provides in-depth coverage of neurological diseases and disorders, including stroke, multiple sclerosis, Parkinson disease, Tourette Syndrome, Alzheimer's disease, cerebral palsy, vertigo, amnesia and epilepsy. Related topics include communication aids, electric personal assistive mobility devices, medications for treating neurological diseases and conditions, understanding the needs of Alzheimer patient caregivers and more. This two-volume set provides an alternative to resources that either fail to explore neurological disease in any depth and or do so at a level not appropriate for students and general readers.

Product Description

Information on many genetic disorders, and the frequent new findings on them, has been extremely difficult to come by—until now. The “Gale Encyclopedia of Genetic Disorders” addresses the need for current, hard-to-find facts on emerging discoveries. The two-volume Encyclopedia, presented in a single alphabetical sequence, provides clear, complete information on genetic disorders, including conditions, tests, procedures, treatments and therapies, in articles that are both comprehensive and easy to understand, in language accessible to laypersons. The articles are arranged in a standardized format for quick comparison and ease of use, while non-disorder topics are covered in detail with extended entries. Students will want to consult the “Gale Encyclopedia of Genetic Disorders” for useful information on a range of well known disorders, including Down Syndrome, Trisomy, Hemophilia and Tourette Syndrome, and rarely seen diseases such as Meckel Syndrome, Neuraminidase Deficiency and Phenylketonuria.

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This digital document is an article from Environmental Health Perspectives, published by Thomson Gale on February 1, 2007. The length of the article is 495 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Pesticides and anencephaly.(REPRODUCTIVE HEALTH)
Author: Graeme Stemp-Morlock
Publication: Environmental Health Perspectives (Magazine/Journal)
Date: February 1, 2007
Publisher: Thomson Gale
Volume: 115Issue: 2Page: A78(1)

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This digital document is an article from Issues in Law & Medicine, published by National Legal Center for the Medically Dependent & Disabled, Inc. on June 22, 1993. The length of the article is 4990 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Anencephaly - organ transplantation?
Author: Paul A. Byrne
Publication: Issues in Law & Medicine (Refereed)
Date: June 22, 1993
Publisher: National Legal Center for the Medically Dependent & Disabled, Inc.
Volume: 9Issue: n1Page: 23-33

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Chapters: Syringomyelia, Spina Bifida, Pachygyria, Hydrocephalus, Arnold-Chiari Malformation, Anencephaly, Holoprosencephaly, Diastomatomyelia, Encephalocele, Lissencephaly, Microcephaly, Septo-Optic Dysplasia, Hydranencephaly, Porencephaly, Schizencephaly, Polymicrogyria, Megalencephaly, Currarino Syndrome, Rachischisis, Central Nervous System Cyst, Bilateral Frontoparietal Polymicrogyria. Source: Wikipedia. Pages: 118. Not illustrated. Free updates online. Purchase includes a free trial membership in the publisher's book club where you can select from more than a million books without charge. Excerpt: Spina bifida (Latin: "split spine") is a developmental birth defect caused by the incomplete closure of the embryonic neural tube. Some vertebrae overlying the spinal cord are not fully formed and remain unfused and open. If the opening is large enough, this allows a portion of the spinal cord to protrude through the opening in the bones. There may or may not be a fluid-filled sac surrounding the spinal cord. Other neural tube defects include anencephaly, a condition in which the portion of the neural tube which will become the cerebrum does not close, and encephalocele, which results when other parts of the brain remain unfused. Spina bifida malformations fall into four categories: spina bifida occulta, spina bifida cystica (myelomeningocele), meningocele and lipomeningocele. The most common location of the malformations is the lumbar and sacral areas . Myelomeningocele is the most significant form and it is this that leads to disability in most affected individuals. The terms spina bifida and myelomeningocele are usually used interchangeably. Spina bifida can be surgically closed after birth, but this does not restore normal function to the affected part of the spinal cord. Intrauterine surgery for spina bifida has also been performed and the safety and efficacy of this procedure is currently being investigated. The inciden...More: http://booksllc.net/?id=208860 ... Read more

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This digital document is an article from Issues in Law & Medicine, published by National Legal Center for the Medically Dependent & Disabled, Inc. on June 22, 1989. The length of the article is 8024 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: The infant with anencephaly: moral and legal dilemmas.
Author: Debra H. Berger
Publication: Issues in Law & Medicine (Refereed)
Date: June 22, 1989
Publisher: National Legal Center for the Medically Dependent & Disabled, Inc.
Volume: 5Issue: n1Page: 67-85

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This digital document is an article from The Hastings Center Report, published by Hastings Center on October 1, 1988. The length of the article is 8441 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Anencephaly: selected medical aspects.
Author: D. Alan Shewman
Publication: The Hastings Center Report (Refereed)
Date: October 1, 1988
Publisher: Hastings Center
Volume: v18Issue: n5Page: p11(9)

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The first book to synthesize relevant, critically reviewed data for application to the diagnosis and treatment of prenatal patients— updated and in full color

5 STAR DOODY'S REVIEW!
"The book is comprehensive, concise, well illustrated, and an extremely valuable resource for perinatal healthcare providers....This book has rapidly become a go-to reference in the perinatal field and this new edition confirms its place as the gold standard in the field. Perinatologists will find this to be an essential part of their library. As more obstetric practitioners do investigative sonographic procedures in their offices, this book will be a valuable resource for them as well. The new edition is overdue and most welcome."--Doody's Review Service

Fetology: Diagnosis and Management of the Fetal Patient offers a cross-disciplinary approach that goes beyond the traditional boundaries of obstetrics, pediatrics, and surgery to help you effectively diagnose and treat fetal patients. Fetology considers the full implications of a fetal sonographic or chromosomal diagnosis—from prenatal management to long-term outcome—for an affected child. Here, you’ll find all the insights you need to answer the questions of parents faced with a diagnosis of a fetal abnormality—and present them with a coordinated therapeutic plan.

Features

• NEW! Full-color design
• NEW! Five new chapters on Adrenal Masses, Abdominal Cysts, Overgrowth, Mosaic Trisomy, and DiGeorge Syndrome
• NEW! Chapters summarizing contemporary approaches to first and second trimester screening for aneuploidy
• NEW! 3D ultrasound and MRI images: over 450 images clearly illustrate the diagnosis of anomalies with the latest, most precise imaging technology
• NEW! Key Points open each chapter, providing rapid review of a particular condition
• Highlighted treatment/management guidelines deliver quick access to practical, what-to-do information
• Each chapter, which covers a single anomaly, includes description of the medical condition, incidence, characteristic sonographic findings, differential diagnosis, best treatment during pregnancy, treatment of the newborn, expected outcome, and more
• Addresses gaps in our knowledge that highlight unmet clinical needs and areas for future research

Customer Reviews (1)

Essential book for any perinatal library
This is a well written refence book for all those involved inprenatal diagnosis and counseling of pregnant women with a suspectedor known fetal problem. It is concise, offers acurate informationregarding numerous conditions, the follow up during pregnancy,necessary testing prenatally and postnatally, recurrence risks andwhat patients can expect after the birth of their child. It alsocontains many ultrasound images and photographs. Highly recommended. ... Read more

Product Description
This digital document is an article from The Hastings Center Report, published by Hastings Center on October 1, 1988. The length of the article is 7175 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Organ prolongation in anencephalic infants: ethical & medical issues. (includes related article on Loma Linda Hospital protocol)
Author: James W. Walters
Publication: The Hastings Center Report (Refereed)
Date: October 1, 1988
Publisher: Hastings Center
Volume: v18Issue: n5Page: p19(9)

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Product Description
This digital document is an article from Morbidity and Mortality Weekly Report, published by Thomson Gale on January 11, 2008. The length of the article is 2311 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Use of supplements containing folic acid among women of childbearing age--United States, 2007.(Table)(Report)
Author: J.R. Petrini
Publication: Morbidity and Mortality Weekly Report (Newsletter)
Date: January 11, 2008
Publisher: Thomson Gale
Volume: 57Issue: 1Page: 5(4)

Article Type: Report, Table

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This digital document is an article from Humpty Dumpty's Magazine, published by Benjamin Franklin Literary & Medical Society, Inc. on January 1, 2002. The length of the article is 358 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Preventing two of the most common and severe birth defects.
Author: Cory SerVaas
Publication: Humpty Dumpty's Magazine (Magazine/Journal)
Date: January 1, 2002
Publisher: Benjamin Franklin Literary & Medical Society, Inc.
Volume: 50Issue: 1Page: 35(1)

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