Book Description
This digital document is an article from Pediatric News, published by Thomson Gale on October 1, 2005. The length of the article is 865 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Know skin-related signs of dermatomyositis, SLE.(Clinical Rounds)
Author: Doug Brunk
Publication: Pediatric News (Magazine/Journal)
Date: October 1, 2005
Publisher: Thomson Gale
Volume: 39Issue: 10Page: 56(2)

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Book Description
This digital document is an article from Family Practice News, published by International Medical News Group on February 1, 2004. The length of the article is 629 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Antimalarial combo may help photoinduced autoimmune disease: two are better than one.(Clinical Rounds)
Author: Sherry Boschert
Publication: Family Practice News (Magazine/Journal)
Date: February 1, 2004
Publisher: International Medical News Group
Volume: 34Issue: 3Page: 42(1)

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Book Description
The article is excerpted fromGale Encyclopedia of Medicine.

Consult the second edition of this authoritative, comprehensive, in-depth medical guide for information on more than 1,700 medical topics in language accessible to adult laypersons. Presented in a single alphabetical sequence, articles range in length from one or two paragraphs for minor topics, to several pages or more for major topics. Disease/disorder articles typically cover definition; description; causes and symptoms; diagnosis; treatments; prevention; and more. Test/treatment articles typically cover definition; purposes; precautions; preparation; risks; normal and abnormal results; and much more. This second edition includes more than 200 new entries, 300 updated entries, approximately 650 color images and illustrations, and a comprehensive subject index. New features include biographical and historical sidebars throughout the text.

Disease/disorder articles contain some or all of the following sections:

• Definitions -- brief dictionary-style definition of the disorder
• Descriptions -- overview of the disorder; who gets it and why
• Causes & symptoms -- process, substance or organism that produces the condition; any risk factors that increase susceptibility to the condition; signs and symptoms of the disease
• Diagnosis -- overview of procedures and tests used to diagnose the condition; how the test is done; who should be tested and when; time required; cost; whether it's typically covered by insurance
• Treatments -- overview of conventional methods of care or management of the condition, such as drugs, surgeries, physical therapy, etc.
• Alternative treatments -- overview of alternative/complementary therapies that may be used to treat the condition
• Prognosis -- probable outcome of the disease
• Preventions -- what actions can be taken to prevent the condition from occurring

Book Description
This digital document is an article from Skin & Allergy News, published by International Medical News Group on September 1, 2004. The length of the article is 1654 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Be aware of patient's IgA status before IVIg treatment.(Dermatologic Therapy)(Immunoglobulin G and A)
Author: Debra Wood
Publication: Skin & Allergy News (Magazine/Journal)
Date: September 1, 2004
Publisher: International Medical News Group
Volume: 35Issue: 9Page: 38(1)

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Book Description
This digital document is an article from Pediatric Nursing, published by Jannetti Publications, Inc. on January 1, 2000. The length of the article is 4045 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

From the author: Chronic cavity wounds are not commonly seen in pediatrics, and little literature is available on their management. A pediatric patient with juvenile dermatomyositis (JDMS) who had a chronic cavity surgical wound with an enterocutaneous fistula presented a nursing challenge. The patient had complex medical and surgical problems that greatly influenced her ability to heal. Nursing management of the wounds had to be innovative and flexible to adapt to these challenges. Factors affecting the patient's wound healing included JDMS; decreased mobility; persistently low serum magnesium, zinc and albumin; malnutrition; infection; and prolonged glucocorticosteroid therapy. Nursing management of her complex wounds included the following strategies: absorption of excessive exudate, wound support, debridement, wound irrigation, wound bagging, healing by secondary intention, and control of hypergranulation.

Citation Details
Title: The Wound That Nearly Got Away: A Case Presentation.(Statistical Data Included)
Author: Bridget Kool
Publication: Pediatric Nursing (Refereed)
Date: January 1, 2000
Publisher: Jannetti Publications, Inc.
Volume: 26Issue: 1Page: 55

Article Type: Statistical Data Included

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Book Description
This digital document is an article from Skin & Allergy News, published by International Medical News Group on May 1, 2004. The length of the article is 1635 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Scant data no impediment to growing use of IVIg.(Dermatologic Therapy)(intravenous immunoglobulin)
Author: Jeff Evans
Publication: Skin & Allergy News (Magazine/Journal)
Date: May 1, 2004
Publisher: International Medical News Group
Volume: 35Issue: 5Page: 34(1)

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Book Description
This digital document is an article from Skin & Allergy News, published by International Medical News Group on October 1, 2004. The length of the article is 457 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Case of the month.
Author: Nancy Walsh
Publication: Skin & Allergy News (Magazine/Journal)
Date: October 1, 2004
Publisher: International Medical News Group
Volume: 35Issue: 10Page: 1(2)

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Book Description
Myositis refers to inflammation of the muscles ("MYO" means muscle and "ITIS" means inflammation). Myositis is a mystery disease in several diseases:

Polymyositis (PM) means inflammation of many muscles.

Dermatomyositis (DM) means inflammation of many muscles and skin

Inclusion Body Myositis (IBM) means inflammation of many muscles with "Inclusion" (abnormal protein deposits) and vacoules (holes) in the muscle cells and fibers.Virtually 95% of physicians are unlearned about this chronic, lifetime muscle disorder. So little information is given to the patients after they have finally been diagnosed, but offered no further information about the future expectations might be.

The four Myositis diseases have individual case reports from patients with the diseases, telling how the disease affected them, their families, their working and the dark future that no physician had told them would happen.

The Myositis patients are telling their stories to help newly diagnosed Myositis individuals learn more about the disease, what to expect.Several Neurologists who have read the stories have said the book will be a great teacher to the medical profession because the stories give a glimpse into the daily life, the philosophy on the mind and inner workings of the patient's body; whereas the medical profession can only ascertain what they learn through diagnostic procedures. ... Read more

Customer Reviews (13)

Review of Coping with a Myositis Disease
This was a very interesting, although somewhat disheartening, book. It is a group of case studies told by the patients who suffer from myositis.Often the cases seemed quite hopeless, therefore, it was hard for someone also suffering the disease to have much hope.The book also should have been edited for grammatical mistakes.

A fantastic insight into Mysosis for a DM sufferer
There are very few publications out there providing supporting information for Myosis sufferers.This one provides a great insight into the disease as well as the specific variations ie (DM).The case studies are particularly interesting and useful. It's great to see how others are coping with their disease and how most are recovering well.This is an American publication, I have not managed to find any UK publications for this condition.

Myositis Patients Beware!
As a person diagnosed with Signal Recognition Particle Antibody Syndrome, a very rare and agressive type of Polymyositis, I feel compelled to "warn" Myositis patients about this book.Yes, it does make patients realize others are experiencing the same
debililitating symptoms you are; however, I found this book to be VERY NEGATIVE.It doesn't list the positive aspects of this disease today--there is hope with ongoing research; knowledgeable specialists; medicines available to relieve symptoms; and effective therapies.I KNOW personally--a positive attitude is essential in successfully dealing with this difficult illness.

Incredibe View of Myositis from the Patients
In two medical training centers, I first saw the book, "Coping with a Myositis Disease."The real life stories of those suffering from a Myositis disease was written from the heart of the writers, in their own words without editorial interference.

The book can not be praised enough for the benefits especially for new Myositis patients.

No wonder the book has a five star rating and first place Best Seller of Myositis books.

Finally, Mr. Kilpatrick was able to capture the common person's feelings about dealing with Myositis.

Thank you, Amazon.com, for making the book possible on the Internet.

Comments of Contributor (DM)
When I gave my story to be included in this book, it was explained to me that it would be in my own words.This made me a little nervous and I took pains to use proper spelling and grammar.Well, my published story in the book contains numerous spelling and grammatical errors which were not made by me.This is very distressing for me.I must not be the only one, because this seems to be a pattern throughout the book.Anyway, all this aside, this book is a must have for anyone diagnosed with myositis.The stories helped me so much. People have thanked me for my contribution.How I wish this would have been available when I was newly diagnosed!But I do feel a great need to set the record straight in that the words of the patients were published with grammar and spelling errors they did not make.This must have happened during editing or data entry.Still, the book is very readable. ... Read more

Book Description
As a young child and teenager growing up with Dermatomyositis, Helen discovers how indubitably frustrating it can be at times to find acceptance among her peers and the people she encounters on a daily basis. We experience firsthand just how uncomfortable the human stare can be, and what one would do in desperation for that ¿miracle cure.¿ Told candidly and at times humorously, this is a story of a young girl¿s determined odyssey into young adulthood. ... Read more

Customer Reviews (3)

This will tug at your heart
Exposed is a story that will tug at your heart strings.This is a nice hard back book that is a quick read.

The story is that of the author's, Helen Leung, and her disease known as Dermatomyositis,and Dermatomyositis is one of a group of acquired muscle diseases called inflammatory myopathies. The disease, which has a somewhat severe onset, affects both children and adults. Females are more often affected than males, Dermatomyositis is characterized by a rash accompanying, or more often, preceding muscle weakness.Eventually, people have difficulty rising from a sitting position, climbing stairs, lifting objects, or reaching overhead. In some cases, muscles further away from the trunk of the body may be affected later in the course of the disease. Problems with swallowing (dysphagia) may occur. Occasionally, the muscles ache and are tender to the touch. Affected individuals may also feel fatigue and discomfort and experience weight loss or a low-grade fever.(Being a nurse had to explain a little of the facts of the disease so you can come to an understanding of this disease and its effects).

The story begins while Helen is at a young age, she discusses her somewhat abusive family life, her illness, and her diagnosis and the hardship and struggles and the attempts to cure her.She visited many physicians both in New York and China.As the years pass Helen begins to accept her illness.She is very courageous and overcomes her disease, even though she spends the high school years confined to a wheelchair.She is strong and her will to overcome all that she faces is amazing, she talks of other students starring and whispering, but determined to be strong she uses all their stares and whispers to full fill her dreams and desires to succeed against it all.

I highly recommend this compelling read, and commend such a strong lady, both her and her book get 5 stars, and her story is an inspiration to us all.

Courtesy of Teens Read Too
I was very excited to read this book.This memoir is about a young girl who grows up with dermatomyositis (dur-muh-to-mi-uh-SI-tis), which is an uncommon disease marked by muscle weakness and a distinctive skin rash.It is a very quick read at only 142 pages, but is very fascinating.

Helen is diagnosed with the disease when she is very young.She describes how she functions with not being able to walk and at times not even being able to hold up her head. She describes the feelings of her family and her frustration at not being able-bodied.At times it is very intense and you can feel the anger and the rage that Helen has for the world and why she questions God about why she got this disfiguring condition.

I found that a lot of the things that Helen railed against were some of the same things that I was unhappy about when I was younger.One of the things I could identify with was not having a date for the prom.A lot of teens don't go to their senior prom.I think, as does Helen, that we as a society have put too much pressure on going to it.She remarks that she felt alone many times in her life even when she was with many people.I have felt that way also.

Pick up this book so that when you meet someone in a wheelchair or who is "different" than you, you can put yourself in their place and make their life a little bit easier for them.EXPOSED is a good, quick read that will give you empathy for others.

Reviewed by:Marta Morrison

an engrossing read
If you are looking for a quick and easy read, that will leave your heart aching, I'd recommend you go get a copy of Exposed and sit down and read it.

The story is that of Helen, the author, and her life long struggle with the disease called dermatomyositis.The book starts with Helen at a young age in her borderline abusive family, moves on to her illness, her diagnosis and her parents' struggles and attempts to cure her.Throughout her childhood, she visited a mulititude of doctors; both in New York, and in China.

As Helen grows, so does her acceptance of her illness.Rather than succumb to it, she overcomes it.She goes through high school in a wheel chair, and while her peers aren't exactly kind to her, Helen uses their stares and whispers to fuel her desire to succeed.

Exposed is honest and raw; a tale about beating the odds that will stay with you for years to come. ... Read more