Product Description
Velo-cardio-facial syndrome is a relatively new syndrome--the genetic test to determine its presence has only been available since 1994. There are currently no books available to address the educational needs of this population, yet virtually every child with velo-cardio-facial syndrome needs special educational programming. This new book effectively blends the thoughtful research that has transpired within the past ten years with practical and current educational strategies to help meet the needs of children with VCFS and similar developmental disabilities.

To first address the scientific information that is needed to understand the syndrome and the implications of current research, expert contributors present the results of studies involving brain abnormalities, language/learning profiles, and psychiatric/behavioral difficulties. These valuable chapters are written in a reader-friendly manner to help parents, professionals, and teachers gain useful and necessary comprehension of the unique characteristics of the VCFS population.

The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. Divided into the various stages of development from preschool to adulthood, it includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures (drop in IQ scores and increased learning challenges), as well as behavioral problems in the school setting. Each section includes discussions of the learning challenges and accomodations that can be used at school and at home during that stage of maturity. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child's everyday life.

A pioneer of its kind, this book is an essential resource for teachers, parents, physicians, and therapists of children with velo-cardio-facial syndrome. ... Read more

Customer Reviews (7)

Annoyed I purchased this book
I figured for $50 this book would be an investment, something we'd use long term.I was disappointed when it arrived, it's seriously so small!!For $50!Crazy.And then I couldn't even read the book because it was put together wrong.I can't speak to it's usefulness because I sent mine back immediately.What a waste.

VCFS
Excellent source for understaging Velo Cardio Facial Syndrome. Will help parents of VCFS chidren help cope with the short comings of school administrations, many un aware of children with this disability.

a brilliant insight into V.C.F.S
Educating Children with V.C.F.S is a book I wish I had had from the begining. It covers ALL aspects of teaching a child with a 22q deletion and throws light on a lot of the often perplexing conundrum of problems associated with the syndrome. Highly recommended for parents an educators alike and although maybe a bit pricey, worth every cent.

Educating Children with VeloCardioFacial Syndrome
This book is amazing! It is a "must have" for parents, educators and physicians dealing with children who have been diagnosed with velocardiofacial syndrome. I wish that someone would have handed me this book when our son was diagnosed with 22Q11.2 (velocardiofacial syndrome). Educators especially can glean helpful information from it's pages to better understand the cognitive defecits presented by the syndrome. It is worth every penny of the price. Thank You Donna Cutler-Landsman for taking to time to compile such a comprehensive and concise book.
-Holle McRae

good book
First of its kind, very useful information.It gets 4 stars simply because of the price of $55.00 which I think is outrageous for a soft bound book of its kind ... Read more

Product Description
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading."Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing.This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more

Product Description
With an estimated human population prevalence of 1:2000, Velo-Cardio-Facial Syndrome (VCFS) is the second-most common multiple anomaly syndrome in humans and almost all children with the syndrome have speech and language impairments that are generally recognized to be complex and difficult to treat. However, the authors of this new book contend that treatment techniques are not at all complex and perceived problem arise from a basic lack of understanding, and lack of education in graduate courses. To demonstrate and to provide clinicians with expert guidance, they have produced here a comprehensive combination of text and video demonstrating the clinical features of Velo-Cardio-Facial Syndrome (VCFS); the communication phenotype in VCFS; the natural history of speech and language in VCFS; diagnostic procedures necessary for assessing speech and language disorders in VCFS; the treatment of speech and language impairment in VCFS; and outcomes, demonstrated by video on an accompanying DVD. ... Read more

Product Description
Chapters: Digeorge Syndrome, Chronic Granulomatous Disease, Severe Combined Immunodeficiency, Graft-Versus-Host Disease, Shwachman-bodian-diamond Syndrome, Common Variable Immunodeficiency, Wiskott-Aldrich Syndrome, Chédiak-higashi Syndrome, Selective Immunoglobulin a Deficiency, Hyperimmunoglobulin E Syndrome, X-Linked Lymphoproliferative Disease, Cartilage-hair Hypoplasia, Griscelli Syndrome, Bare Lymphocyte Syndrome, Purine Nucleoside Phosphorylase Deficiency, Whim Syndrome, Complement Deficiency, Transient Hypogammaglobulinemia of Infancy, Nezelof Syndrome, Omenn Syndrome, Myeloperoxidase Deficiency, Janus Kinase 3 Deficiency, Isolated Primary Immunoglobulin M Deficiency, X-Linked Hyper-Immunoglobulin M Syndrome, Immunodeficiency With Hyperimmunoglobulin M, Thymoma With Immunodeficiency, Leukocyte Adhesion Molecule Deficiency, Thymic Hypoplasia, Isolated Primary Igm Deficiency, Immunodeficiency With Hyper-Igm, Warts-hypogammaglobulinemia-infections-myelokathexis Syndrome, Isolated Iga Deficiency, Isolated Immunoglobulin a Deficiency, Duncan's Disease, Acquired Hypogammaglobulinemia, Alymphocytosis, Glanzmann-riniker Syndrome, Severe Mixed Immunodeficiency Syndrome, Thymic Alymphoplasia, Job Syndrome, Quie Syndrome, Good Syndrome, Bridges-good Syndrome, Chronic Granulomatous Disorder, Bruton Syndrome, Sex-Linked Agammaglobulinemia, X-Linked Hypogammaglobulinemia, Digeorge Anomaly, Thymic Dysplasia With Normal Immunoglobulins, X-Linked Neutropenia. Source: Wikipedia. Pages: 226. Not illustrated. Free updates online. Purchase includes a free trial membership in the publisher's book club where you can select from more than a million books without charge. Excerpt: 22q11.2 deletion syndrome, also known as DiGeorge syndrome, DiGeorge anomaly, velo-cardio-facial syndrome, Shprintzen syndrome, conotruncal anomaly face syndrome, Strong syndrome, congenital thymic aplasia, and thymic hypoplasia is a syndrome caused by the deletion...More: http://booksllc.net/?id=3724035 ... Read more

Product Description
This digital document is an article from Pediatric News, published by International Medical News Group on March 1, 2003. The length of the article is 834 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Live vaccines appear safe in DiGeorge syndrome patients. (Varicella, MMR Vaccine).
Author: Timothy F. Kirn
Publication: Pediatric News (Magazine/Journal)
Date: March 1, 2003
Publisher: International Medical News Group
Volume: 37Issue: 3Page: 18(1)

Distributed by Thomson Gale ... Read more

Product Description

Avoiding hard-to-understand medical jargon, the four-volume “Gale Encyclopedia of Children’s Health” uses language that parents can understand, while still providing enough depth to benefit today's health science students. The set provides in-depth coverage of pediatric diseases and disorders, along with issues related to physical and cognitive/behavioral development.

Product Description
The article is excerpted fromGale Encyclopedia of Medicine.

Consultthe second edition of this authoritative, comprehensive, in-depthmedical guide for information on more than 1,700 medical topics inlanguage accessible to adult laypersons. Presented in a singlealphabetical sequence, articles range in length from one or twoparagraphs for minor topics, to several pages or more for major topics.Disease/disorder articles typically cover definition; description;causes and symptoms; diagnosis; treatments; prevention; and more.Test/treatment articles typically cover definition; purposes;precautions; preparation; risks; normal and abnormal results; and muchmore. This second edition includes more than 200 new entries, 300updated entries, approximately 650 color images and illustrations, anda comprehensive subject index. New features include biographical andhistorical sidebars throughout the text.

Disease/disorder articles contain some or all of the following sections:

• Definitions -- brief dictionary-style definition of the disorder
• Descriptions -- overview of the disorder; who gets it and why
• Causes & symptoms -- process, substance or organism thatproduces the condition; any risk factors that increase susceptibilityto the condition; signs and symptoms of the disease
• Diagnosis -- overview of procedures and tests used todiagnose the condition; how the test is done; who should be tested andwhen; time required; cost; whether it's typically covered by insurance
• Treatments -- overview of conventional methods of care ormanagement of the condition, such as drugs, surgeries, physicaltherapy, etc.
• Alternative treatments -- overview of alternative/complementary therapies that may be used to treat the condition
• Prognosis -- probable outcome of the disease
• Preventions -- what actions can be taken to prevent the condition from occurring

Test/treatment articles contain some or all of the following sections:

• Definitions -- brief dictionary-style definition of the test/treatment
• Purposes -- why and when this test/treatment is prescribed
• Precautions -- when this test/treatment should not be prescribed
• Descriptions -- overview of the test/treatment including cost,length of time required, procedures followed, whether typically coveredby insurance
• Preparation -- pre-test treatment procedures, if any
• Aftercare -- post-test treatment procedures, if any
• Risks -- any complications/side effects commonly associated with the test/treatment
• Normal results -- for tests, describes the normal values; for treatments, describes the anticipated outcomes
• Abnormal results -- defines abnormal test values

Published/Released: December 2001

Product Description
This digital document is an article from Gale Encyclopedia of Medicine, 3rd ed., brought to you by Gale®, a part of Cengage Learning, a world leader in e-research and educational publishing for libraries, schools and businesses.The length of the article is 1178 words.The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase.You can view it with any web browser.The third edition of this authoritative, comprehensive, in-depth medical guide features information on medical topics in language accessible to adult laypersons. Disease/disorder articles typically cover definition; description; causes and symptoms; diagnosis; treatments; prevention; and more. Test/treatment articles typically cover definition; purposes; precautions; preparation; risks; normal and abnormal results; and much more. ... Read more