Product Description
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Ehlers-Danlos syndrome is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more

Book Description
This up-to-date electronic book on CD-ROM provides the best collection available anywhere of official Federal government information and documents on the subject of Ehlers-Danlos Syndrome (EDS), connective tissue disorders, and hypermobility. This CD-ROM uses next-generation search technology that allows complete indexing and makes all files on the disc fully searchable. For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material.

This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), Centers for Disease Control (CDC), Food and Drug Administration, and the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). Contents include clinical and medical information, with information on signs, symptoms, testing, diagnosis, treatment, and more.

In addition, as a bonus we have included an encyclopedic collection of general medical and health documents - thousands of pages with extensive material from the CDC and NIH on hundreds of diseases and health topics from A to Z, along with FDA drug and medical publications, government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers' health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government.

This CD-ROM has over 32,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable!

Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.) ... Read more

Customer Reviews (1)

Not easy to use
This CD consists of information from various government health- related websites, as well as articles, abstracts, and links to internet sites.However, since the websites are presented in their entiretly the majority of the information has nothing to do with EDS. Although the disk is searchable, the effect is much like cruising the web, you have to go through a lot or irrelevant information to get to a few nuggets of useful information.Most of the useful information I had already located through browser searches or links from EDS websites.I would not recommend this as a good value for the money. ... Read more

Book Description
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to ehlers-danlos syndrome (also E-D Syndrome; EDS), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on ehlers-danlos syndrome. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.Download Description
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to ehlers-danlos syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on ehlers-danlos syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Ehlers-Danlos Syndrome: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Ehlers-Danlos Syndrome; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Ehlers-Danlos Syndrome; Chapter 5. Books on Ehlers-Danlos Syndrome; Chapter 6. Periodicals and News on Ehlers-Danlos Syndrome; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; EHLERS-DANLOS SYNDROME GLOSSARY; INDEX. Related topics include: E-D Syndrome, EDS. ... Read more

Customer Reviews (2)

Ehlers Danlos Syndrome
This is avery good book that gives information for finding all kinds of sources that have information about EDS.It is more of an information resource locator than a text book.

This book is a waste of money
I have Ehlers-Danlos Syndrome (EDS), so I purchased this book as soon as it came out.What a waste of money!It's chock full of factual errors, outdated data, and incorrect references.

In one section the book states that there are 10 types of EDS.In another place, it refers to the 6 types of EDS.In truth, it was believed that there were 10 types, but the Nosology in 1997 reclassified the EDS types, reducing the total to 6.

The book provides resources for EDS with incorrect websites and mailing addresses.Even these references are not consistent within the book.In one place the address is right and in another it uses an address that hasn't been used in a decade.No attempt was made by the authors to check their sources for accuracy.

There is a glossary of medical terms in the book, but this is the same glossary that appears every other "The Official Patient's Sourcebook".The terms included have no relationship to EDS at all.

Much of the book includes a listing of websites and instructions on how to do research online.If you know how to use a search engine, you don't need the book to find these sites.If you don't use the Internet, the book won't help.

In my opinion, the authors made one master sourcebook, then copied it for every disease and disorder known to man.Little effort was made to modify the books beyond the name of the condition.No matter what ails you, they figure they can get your money at least once. ... Read more

Book Description
This digital document is an article from Dermatology Nursing, published by Jannetti Publications, Inc. on October 1, 2004. The length of the article is 3242 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

From the author: As the field of genetics expands, there will be more need for health care professionals to possess basic knowledge of genetic conditions and patterns of inheritance to assist their patients and to make the proper referrals. Ehlers-Danlos syndrome (EDS) is a group of genetic connective tissue disorders that affects approximately 1 in 5,000 live births, including males and females of all racial and ethnic groups. The main characteristics of EDS are skin hyperextensibility, tissue fragility and joint hypermobility. Diagnosis of EDS it often difficult due to the complexity of symptoms and lack of specific genetic tests. However, once a diagnosis is suspected or confirmed, nurses play a vital role in assisting the patient and family to manage the disorder. In this article, EDS symptoms and genetic basis, suggestions for management, and resources available for health care providers, families, and patients with EDS are provided.

Citation Details
Title: Ehlers-Danlos syndrome, classical type: case management.(Disease Management)
Author: Sara E. Whitelaw
Publication: Dermatology Nursing (Refereed)
Date: October 1, 2004
Publisher: Jannetti Publications, Inc.
Volume: 16Issue: 5Page: 433(5)

Distributed by Thomson Gale ... Read more

Book Description

Avoiding hard-to-understand medical jargon, the four-volume Gale Encyclopedia of Childrens Health uses language that parents can understand, while still providing enough depth to benefit today's health science students. The set provides in-depth coverage of pediatric diseases and disorders, along with issues related to physical and cognitive/behavioral development.

Book Description

Information on many genetic disorders, and the frequent new findings on them, has been extremely difficult to come byuntil now. The Gale Encyclopedia of Genetic Disorders addresses the need for current, hard-to-find facts on emerging discoveries. The two-volume Encyclopedia, presented in a single alphabetical sequence, provides clear, complete information on genetic disorders, including conditions, tests, procedures, treatments and therapies, in articles that are both comprehensive and easy to understand, in language accessible to laypersons. The articles are arranged in a standardized format for quick comparison and ease of use, while non-disorder topics are covered in detail with extended entries. Students will want to consult the Gale Encyclopedia of Genetic Disorders for useful information on a range of well known disorders, including Down Syndrome, Trisomy, Hemophilia and Tourette Syndrome, and rarely seen diseases such as Meckel Syndrome, Neuraminidase Deficiency and Phenylketonuria.

Book Description
The article is excerpted fromGale Encyclopedia of Medicine.

Consult the second edition of this authoritative, comprehensive, in-depth medical guide for information on more than 1,700 medical topics in language accessible to adult laypersons. Presented in a single alphabetical sequence, articles range in length from one or two paragraphs for minor topics, to several pages or more for major topics. Disease/disorder articles typically cover definition; description; causes and symptoms; diagnosis; treatments; prevention; and more. Test/treatment articles typically cover definition; purposes; precautions; preparation; risks; normal and abnormal results; and much more. This second edition includes more than 200 new entries, 300 updated entries, approximately 650 color images and illustrations, and a comprehensive subject index. New features include biographical and historical sidebars throughout the text.

Disease/disorder articles contain some or all of the following sections:

• Definitions -- brief dictionary-style definition of the disorder
• Descriptions -- overview of the disorder; who gets it and why
• Causes & symptoms -- process, substance or organism that produces the condition; any risk factors that increase susceptibility to the condition; signs and symptoms of the disease
• Diagnosis -- overview of procedures and tests used to diagnose the condition; how the test is done; who should be tested and when; time required; cost; whether it's typically covered by insurance
• Treatments -- overview of conventional methods of care or management of the condition, such as drugs, surgeries, physical therapy, etc.
• Alternative treatments -- overview of alternative/complementary therapies that may be used to treat the condition
• Prognosis -- probable outcome of the disease
• Preventions -- what actions can be taken to prevent the condition from occurring

Book Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to Ehlers-Danlos syndrome. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to Ehlers-Danlos syndrome.If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages.Download Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to Ehlers-Danlos syndrome. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to Ehlers-Danlos syndrome. If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages. ... Read more

Customer Reviews (1)

A waste of money if you have already searched the web
Nothing more than a list of web sites for people to search.Save your money and google it. ... Read more

Book Description
This digital document is an article from Internal Medicine News, published by Thomson Gale on August 1, 2006. The length of the article is 434 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Name that syndrome: JHS or EDS-HM?(LETTERS)(joint hypermobility syndrome)(Ehlers-Danlos syndrome-hypermobility type)(Letter to the editor)
Author: Gale Reference Team
Publication: Internal Medicine News (Magazine/Journal)
Date: August 1, 2006
Publisher: Thomson Gale
Volume: 39Issue: 15Page: 10(1)

Article Type: Letter to the editor

Distributed by Thomson Gale ... Read more

Book Description
Anonymous, unedited quotations taken from the EDS e-mail support group on the Internet. Contributed by EDS folks and their families. ... Read more

Customer Reviews (1)

Ehlers Danlos Syndrome
This book has helpful information about EDS and is recommended reading for patients with EDS. ... Read more

Book Description
This digital document is an article from Ear, Nose and Throat Journal, published by Thomson Gale on September 1, 2006. The length of the article is 647 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Endoscopic view of a hypermobile tongue in the nasopharynx.(RHINOSCOPIC CLINIC)
Author: Adam J. LeVay
Publication: Ear, Nose and Throat Journal (Magazine/Journal)
Date: September 1, 2006
Publisher: Thomson Gale
Volume: 85Issue: 9Page: 564(2)

Distributed by Thomson Gale ... Read more