Product Description
This digital document is an article from Journal of Neuroscience Nursing, published by Thomson Gale on August 1, 2007. The length of the article is 3235 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Acute disseminated encephalomyelitis.(Disease/Disorder overview)(Case study)
Author: Catherine Harris
Publication: Journal of Neuroscience Nursing (Magazine/Journal)
Date: August 1, 2007
Publisher: Thomson Gale
Volume: 39Issue: 4Page: 208(5)

Article Type: Case study, Disease/Disorder overview

Distributed by Thomson Gale ... Read more

Product Description
This digital document is a journal article from The Arts in Psychotherapy, published by Elsevier in 2006. The article is delivered in HTML format and is available in your Amazon.com Media Library immediately after purchase. You can view it with any web browser.

Description:
This paper explores the narratives of three women who had lived with severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) for many years, and who engaged in art-making as a leisure activity rather than for psychotherapy. Three distinct narratives about the role of art-making in CFS/ME were inferred. One participant represented art as a way of filling time rather than having further psychological significance. In her narrative, art provided satisfaction but also functioned as a witness to time and opportunity that had been lost to an unchanging illness. The second participant narrated both illness and art-making as intertwined journeys towards a more able and useful self. Her narrative had features of the quest described in previous typologies. The third participant also provided a quest narrative, but her struggle focused inwards on understanding her feelings about her illness and its effects on her life. The analytic focus on narrative revealed the distinctive constructions of illness and art-making that are usually submerged when qualitative analysis focuses on themes common to groups of participants. These narratives of art-making in CFS/ME have relevance to understanding the multi-faceted therapeutic benefits of art. ... Read more

Product Description
This digital document is an article from Emerging Infectious Diseases, published by Thomson Gale on September 1, 2007. The length of the article is 4468 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Family clustering of Viliuisk encephalomyelitis in traditional and new geographic regions.(RESEARCH)
Author: Vsevolod A. Vladimirtsev
Publication: Emerging Infectious Diseases (Magazine/Journal)
Date: September 1, 2007
Publisher: Thomson Gale
Volume: 13Issue: 9Page: 1321(6)

Distributed by Thomson Gale ... Read more

Product Description

Product Description
This digital document is a journal article from Social Science & Medicine, published by Elsevier in 2006. The article is delivered in HTML format and is available in your Amazon.com Media Library immediately after purchase. You can view it with any web browser.

Description:
Chronic illness is disruptive, threatening people's sense of identity and taken for granted assumptions. Transformations in values, expectations and life priorities are likely to be experienced and in order to regain a coherent sense of self, people must interpret their experiences. People with difficult to diagnose illnesses can find themselves living with greater uncertainty and stigma. This paper explores how people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) describe and interpret their illness experience by applying Arthur Frank's narrative typologies to analyse interviews with 17 British people with CFS/ME. The analysis proposes that a trajectory of narrative typologies is experienced, starting with a restitution narrative, moving to a chaos narrative and, for most, back to a restitution narrative and on to a quest narrative. The presentation of narrative types put forward by people living with CFS/ME differ to those presented by people who are HIV positive and have been treated for breast cancer. ... Read more

Customer Reviews (1)

Not worth the money whatsoever
This is a research paper with very little beyond references to other people's work. If you are a scholar of medical narrative, you might find it somewhat interesting. But again, since all it really does is refer to other people's research, it is definitely not worth $7.95. It should be free and up on wikipedia or something. I'm very disappointed in Amazon for selling something so useless and not giving me the option to return it. ... Read more

Product Description
THE book on myalgic encephalomyelits, chronic fatigue and missed diagnosis. Byron Hyde is one of the world's most respected experts in clinical medicine. He has worked alongside experts in neurology at Harvard including Dr. Charles Poser and Prof. Frank Duffy. He is also one of the only physicians in the world to have visited and examined patients from all the major ME epidemics. With a foreword by Prof. Malcolm Hooper. ... Read more

Customer Reviews (3)

Essential reading for those with undiagnosed chronic fatigue and/or pain
If you have undiagnosed chronic pain and/or fatigue, you must read this book. You will then understand why the medical system is not doing a very good job of dealing with your illness. The book also provides many clues about what might be wrong. The discouraging thing is that without more doctors and researchers dedicated to this sort of diagnosis, it's very difficult for people to gain access to somebody who can help them. Individuals can try to figure it out themselves and pay privately for extra tests, but it is extensive systematic investigation by a medical expert that is necessary and appropriate. It would save our society money in the long run to invest in this type of research and diagnosis, but nobody is taking the responsibility to improve the situation. If one doctor (the author) can diagnosis 70% of the mystery cases that come to him, just think how much could be done if more doctors had the training and experience and could take the time to actually find the CAUSES of pain and fatigue.

Must read info from Dr. Hyde
Dr. Hyde has a proven history of being the go-to doctor for information regarding ME.ME is not a mystery illness with vague symptoms and there ARE definitive diagnostic tests that can and do reliably and accurately diagnose ME patients.Anyone - patient, doctor or care taker - who wants to know the truth about the organic neurological illness ME should read this book.

Essential reading for doctors and patients alike
This book is essential reading for doctors and patients alike, and those interested in M.E. as well as those interested in 'CFS' or that have been misdiagnosed as 'CFS.'

(As this book explains, there is no such distinct disease as 'CFS' - and every diagnosis of 'CFS' is a MISdiagnosis.)

The Nightingale Definition of Myalgic Encephalomyelitis paper in particular cannot be recommended highly enough.

Finally this is a modern and TESTABLE definition of Myalgic Encephalomyelitis, created by the world's leading and most experienced M.E. expert, Dr Byron Hyde. This is NOT a redefinition of CFS but is instead a pure M.E. definition.

It draws on the long history of M.E., collates the evidence from each of the world's leading M.E. experts (past and present) and combines this with details of the most modern medical tests. This definition also rightly gives no importance at all to the bogus notion of mere `fatigue' having any importance in the diagnosis/definition - unlike each of the `CFS' definitions, including unfortunately the Canadian `ME/CFS' definition which just mixes in a few M.E. facts with what is still primarily a `CFS' redefinition.

Dr Hyde explains that:

"I believe it essential to define clearly Myalgic Encephalomyelitis, returning the definition to its clinical and historic roots and complementing this information with the certitude of modern scientific testing. That is what the Nightingale definition of M.E. sets out to do. But let me first ask you a very important question.

What is the purpose of any medical definition? What is the purpose of any disease definition if it is not to allow the physician to rapidly and accurately diagnose a specific illness in order to attempt to effectively treat the patient before the illness becomes chronic or to call in the appropriate specialists? Our definition solves this problem."

"There is a third purpose for any disease definition. That is to clearly define the disease so that various physicians and researchers can clearly understand that they are talking about the same illness spectrum and so launch research into what will become an effective treatment. Our definition gives a clear baseline for investigation.

The Nightingale definition is based upon the following two criteria: (a) The excellent scientific and clinical work of respected physicians and scientists who investigated the various M.E. epidemics. (b) The results of modern scientific testing techniques and the knowledge accruing from examining thousands of M.E. patients using these and more historical techniques. The proposed M.E. definition is designed to improve early diagnosis and treatment for the tens of thousands of patients stricken with M.E. It is not a new definition of CFS nor should it be conceived as a rewording of any previous CFS definition.

The definition is set out in such a fashion as to enable the physician to make a bedside or office clinical diagnosis and then to scientifically test the hypothesis. This will allow the physician an early diagnostic understanding of this complex illness and a scientific and technological method to investigate and confirm the diagnosis. It is well known by all serious physicians that in order to assist any patient in a partial or full recovery the illness must be (a) prevented from occurring by either immunization or understanding and avoiding the causes, (b) or diagnosed and treated immediately following onset. The Nightingale Definition assists the physician both in diagnosis and early treatment.

What follows is the primary M.E. definition for adults. I believe it essential to define clearly Myalgic Encephalomyelitis. That is what the Nightingale definition of M.E. sets out to do........

To various degrees many if not all of the above historic findings have been observed and discussed by Doctors Alexander Gilliam, Bjorn Sigurdsson, Alberto Marinacci, Andrew Lachlan Wallis, A Melvin Ramsay (Elizabeth Dowsett), John Richardson, Elizabeth Bell, Alexis Shelokov, David C Poskanzer, W.H. Lyle, Sir E. Donald Acheson, Louis Leon-Sotomayor, J. Gordon Parish and many others."


'The complexities of diagnosis' is also very, very good overall and is also recommended.

Buy this book, and an extra copy for your doctor.

We need a hundred Dr Hyde's! Things are getting worse and worse for M.E. patients worldwide, sadly.

Jodi Bassett, severe M.E. patient and founder of the Hummingbirds' Foundation for Myalgic Encephalomyelitis ... Read more

Product Description
CFS/ME is a debilitating disorder which affects both physical and psychological functioning. It is also a poorly understood condition which was not widely accepted as a specific disorder until only a few years ago. Cognitive Behaviour Therapy (CBT), in conjunction with other physical and medical therapies, is now generally accepted as the treatment of choice for people who are affected by CFS/ME. This book provides the perfect companion for patients to develop and apply new insights into overcoming some of their specific symptoms as well as coping with the syndrome, both during the course of their therapy and afterwards. It provides a helpful structure and framework for understanding CFS/ME and its effects as well as practical exercises to help address some of the symptoms that patients may experience. ... Read more

Product Description
This book charts the ways in which the ideas of a 19th Century neurologist became enshrined in the thinking of modern neuropsychiatry. It looks at how the diagnosis of hysteria and conversion disorder was revitalised by a group of like-minded physicians under the terms of "functional weakness" and "functional neurological deficit" in order to"develop constructive ways of talking with patients".Overton claims this approach has fundamentally failed and the often hilarious jibes he makes at some sectors of the medical profession only highlight further the need for doctors to listen to their patients. "Deserves to be part of the literary canon"- Angela Kennedy ... Read more

Customer Reviews (2)

Highly recommended
Simon Overton is a fellow advocate that I communicate with regularly.

Simon was kind enough to ask me to write the forward for this book.

An excerpt from the forward text:

"Substantial medical evidence spanning many decades continues to be ignored by those in positions of power who are abusing that power to further their own vested interests. Once an idea takes root in the scientific community it is not reason but the ability to gather kudos and grab research funding that informs dominant thinking. These groups and individuals are helped immeasurably by the creation of bogus disease categories, categories such as 'Chronic Fatigue Syndrome' and other unscientific concepts such as somatisation disorder, functional weakness, conversion disorder, hysteria, and so on.

Despite an utter lack of scientific legitimacy and the enormous costs to the many patients involved and to the community at large, these massive medical frauds have continued in perpetuity almost entirely unchallenged by the world's media, human rights groups, and governments. It is a worldwide disgrace and one of the biggest scandals in the history of medicine.

How much more extreme do the suffering and abuse caused by these malign scams have to be? How many more very ill patients have to be denied even basic medical care? How many more hundreds of thousands of children and adults worldwide have to be left severely disabled or dead through inappropriate treatment?

Simon Overton is to be congratulated for creating such a timely, intelligent and compelling book on this important topic. More uncompromising educational efforts like this one must be produced if change is ever to occur. The fox has been left in charge of the hen house for far too long already. Knowledge is power.

May the day soon come when such books (and other advocacy projects) are no longer needed, and when patients can rely on something as simple as treatment based on legitimate scientific evidence and on the reality of their pathology - rather than being subjected to various self-serving and illogical pseudo-scientific `theories'. Such ideas are extremely unlikely to help any of the patient groups involved to regain their health."

I highly recommend this book. The chapter which deals with the case of Ean Proctor in particular is a must-read for anyone involved in this field of medicine.

Jodi Bassett, founder of the 'Hummingbirds' Foundation for Myalgic Encephalomyelitis' (HFME)

A triumphant expose of the belief systems that lie behind modern neurology:functional weakness and conversion disorder
"Science must begin with myths and with the criticism of
myths"- Karl Popper

Patients often present to doctors with illness for which there is no
obvious organic explanation despite investigation. Historically
medicine lacks a tradition of ignorance and has a tendency to suggest
explanations for illness and treat the patient accordingly, even when
these explanations and cures are bizarre and absurd. Examples in the
medical canon range from the leeches and bloodletting of the
Ancient Greeks to the lobotomy of pre 1970's neurosurgery. Illness
that is not easily explained can challenge the hegemony of medicine.
Patients and others can see the psychiatric referral that often follows
as a means of controlling this threat to the physician's authority, for
how after millennia of "progress" can medicine itself be deviant or
deficient? Perhaps as a result of this tradition some contemporary
thinkers in neuropsychiatry, (Manu, Sharpe, Wessely and others)
place the blame on the patient for their illness, or more specifically
the ideas held by a patient about their illness1. ... Read more

Product Description
A few notes on this NEW revised and expanded edition which includes Dr. Hyde's chapter from the new Puri & Treasaden textbook:"Thirty years ago when a patient presented to a hospital clinic with unexplained fatigue, any medical school physician would have told the students to search for an occult malignancy, cardiac or other organ disease or chronic infection. The concept that there is an entity called chronic fatigue syndrome has totally altered that essential medical guideline. Patients are now being diagnosed with CFS as though it were a disease. It is not. It is a patchwork of symptoms that could mean anything. The original concepts of searching for occult disease are relevant to patients today with CFS, ME and other fatiguing illnesses. Furthermore, because you do not find pathology does not mean there is none."- Byron Hyde ... Read more