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In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Friedreich ataxia is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more

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This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to friedreich's ataxia, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on friedreich's ataxia. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Friedreich's Ataxia: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Friedreich's Ataxia; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Friedreich's Ataxia; Chapter 5. Books on Friedreich's Ataxia; Chapter 6. Multimedia on Friedreich's Ataxia; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; FRIEDREICH'S ATAXIA GLOSSARY; INDEX. Related topics include: familial ataxia, Friedreich's Disease, Friedreich's Tabes, hereditary ataxia of Friedreich, Hereditary Ataxia, Friedrich's Type, hereditary spinal ataxia, Spinal Ataxia, Hereditofamilial, spinocerebellar ataxia, Spinocerebellar degeneration.Download Description
This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to friedreich's ataxia, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on friedreich's ataxia. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Friedreich's Ataxia: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Friedreich's Ataxia; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Friedreich's Ataxia; Chapter 5. Books on Friedreich's Ataxia; Chapter 6. Multimedia on Friedreich's Ataxia; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; FRIEDREICH'S ATAXIA GLOSSARY; INDEX. Related topics include: familial ataxia, Friedreich's Disease, Friedreich's Tabes, hereditary ataxia of Friedreich, Hereditary Ataxia, Friedrich's Type, hereditary spinal ataxia, Spinal Ataxia, Hereditofamilial, spinocerebellar ataxia, Spinocerebellar degeneration. ... Read more

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The article is excerpted fromGale Encyclopedia of Medicine.

Consult the second edition of this authoritative, comprehensive, in-depth medical guide for information on more than 1,700 medical topics in language accessible to adult laypersons. Presented in a single alphabetical sequence, articles range in length from one or two paragraphs for minor topics, to several pages or more for major topics. Disease/disorder articles typically cover definition; description; causes and symptoms; diagnosis; treatments; prevention; and more. Test/treatment articles typically cover definition; purposes; precautions; preparation; risks; normal and abnormal results; and much more. This second edition includes more than 200 new entries, 300 updated entries, approximately 650 color images and illustrations, and a comprehensive subject index. New features include biographical and historical sidebars throughout the text.

Disease/disorder articles contain some or all of the following sections:

• Definitions -- brief dictionary-style definition of the disorder
• Descriptions -- overview of the disorder; who gets it and why
• Causes & symptoms -- process, substance or organism that produces the condition; any risk factors that increase susceptibility to the condition; signs and symptoms of the disease
• Diagnosis -- overview of procedures and tests used to diagnose the condition; how the test is done; who should be tested and when; time required; cost; whether it's typically covered by insurance
• Treatments -- overview of conventional methods of care or management of the condition, such as drugs, surgeries, physical therapy, etc.
• Alternative treatments -- overview of alternative/complementary therapies that may be used to treat the condition
• Prognosis -- probable outcome of the disease
• Preventions -- what actions can be taken to prevent the condition from occurring

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Avoiding hard-to-understand medical jargon, the four-volume Gale Encyclopedia of Childrens Health uses language that parents can understand, while still providing enough depth to benefit today's health science students. The set provides in-depth coverage of pediatric diseases and disorders, along with issues related to physical and cognitive/behavioral development.

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This digital document is an article from Original Internist, published by Thomson Gale on September 1, 2005. The length of the article is 439 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Co[Q.sub.10] and vitamin E slow progression of some aspects of Friedreich's ataxia while reversing others.(ABSTRACTS OF INTEREST)
Author: Steve Austin
Publication: Original Internist (Magazine/Journal)
Date: September 1, 2005
Publisher: Thomson Gale
Volume: 12Issue: 3Page: 138(1)

Distributed by Thomson Gale ... Read more

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Information on many genetic disorders, and the frequent new findings on them, has been extremely difficult to come byuntil now. The Gale Encyclopedia of Genetic Disorders addresses the need for current, hard-to-find facts on emerging discoveries. The two-volume Encyclopedia, presented in a single alphabetical sequence, provides clear, complete information on genetic disorders, including conditions, tests, procedures, treatments and therapies, in articles that are both comprehensive and easy to understand, in language accessible to laypersons. The articles are arranged in a standardized format for quick comparison and ease of use, while non-disorder topics are covered in detail with extended entries. Students will want to consult the Gale Encyclopedia of Genetic Disorders for useful information on a range of well known disorders, including Down Syndrome, Trisomy, Hemophilia and Tourette Syndrome, and rarely seen diseases such as Meckel Syndrome, Neuraminidase Deficiency and Phenylketonuria.

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Targeted to patients, their families and allied health students, The Gale Encyclopedia of Neurological Disorders provides in-depth coverage of neurological diseases and disorders, including stroke, multiple sclerosis, Parkinson disease, Tourette Syndrome, Alzheimer's disease, cerebral palsy, vertigo, amnesia and epilepsy. Related topics include communication aids, electric personal assistive mobility devices, medications for treating neurological diseases and conditions, understanding the needs of Alzheimer patient caregivers and more. This two-volume set provides an alternative to resources that either fail to explore neurological disease in any depth and or do so at a level not appropriate for students and general readers.

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A book of poems by Al Eakes, Jr.. In 1966 he was diagnosed with Friedreich's Ataxia, amuscular and nervous system disorder. The photographic illustrationsare are the work of Jean Vanzant. ... Read more

Customer Reviews (1)

Important and Informative Book
This is such a good book. It is a must read-especially for a person, like me, who has Cerebellar Ataxia.

This book chronicals the lives of the Schut family from 1908-1972. This family had (has) hereditary Cerebellar Ataxia. It shows the struggle that each person had with the possibilty of showing symptoms of the disease and the anguish of watching relatives die of complications of Ataxia. This large family faced fear and grief, but always carried hope for a cure in the future.

Their pain and anguish created the search for a cure. Various members of the family participated in research studies. In 1957, THE NATIONAL ATAXIA FOUNDATION (see website for current contact information), a non-profit organization, was founded. These were some of the individuals that began the search for a cure.

The charts in the appendix provide further explaination of the text. The geneological charts were so interesting-so full of data. The handwriting smaple on the last page looks so similar to my own writing. Those pages received a lot of attention.

With all the knowledge that has been gained over the years we are closer. Medications and supplements can and do alleviate (take my word for it) some of the symptoms of Ataxia.

I am the author of Dreams in August: Life, Love, and Cerebellar Ataxia ... Read more