Customer Reviews (13)

Nothing more you need to know.
This book was recommended by a friend when my 26 year old son was diagnosed with hemachromatosis, before I even knew my husband and I are both carriers. I ended up getting two of my sons (2 of my 3 have hemachromatosis)a copy. It relieved a lot of fears and answered a lot of questions, questions that my family doctor didn't know the answer to. It also gave us direction as to what to do and what to expect. Very easy to read, very easy to understand.

Excellent
This book should be much easier to find.The information is badly needed.If it were more accessable more people would see the symtoms and perhaps get better diagnosis. All doctors need this in their offices. My gastrointerologist said he'd have to do some research on this!!! He's suppose to be the "specialist"!This has helped me understand that with proper diagnosis and treatment this disease need not be a serious problem. Well written. A must read. Many thanks to Dr. Phatak for writing this.

solid information for people with this problem
Finally, there is definitive information out there, instead of just people passing word of mouth warnings.This books is worth gold for people of Celtic ancestry. I was diagnosed with HHC, laughingly called the Celtic Curse because it can strike people of Scottish and Irish ancestry, there was not a lot of information out there about it.One in four people can carry the gene that causes the body to store too much iron in the deep muscle tissue, kidneys, liver and heart.It can be fatal if not caught.This book helps those find a way to live with this problem.

When I learnt I suffered from this, I had not heard of it, no one I knew had it.However, within in the last five years, many people I know are aware of a friend or family member that now has it.It often mimics many other health problems, so it's good to get early treatment and have books such as this one that help you manage your lifestyle.

This book addresses all the issues and give people a sound understanding of the problem, how to face it and how to live with it.

The Iron Disorders Institute Guide to Hemochromatosis
At long last, a single source of invaluable information about diagnosis and treatment of Hemochromatosis along with many personal trials and tribulations of those who have experienced the frustrations of obtaining an appropriate diagnosis."The Iron Disorders Institute's Guide to Hemochromatosis" is a tremendously welcome resource.I was so impressed I purchased 7 additional copies for my 5 adult children and 2 of the RNs who conduct my frequent phlebotomies.

I'm also relieved that newly diagnosed "Rusties" do not have to go through the agony of research as I did back in 1979 when I was diagnosed as a result of my younger sister's autopsy results.There was scant information available in the medical journals of the period. I recall one occasion spending more than 4 hours in a medical library only to locate a single 2 year old article about Hemochromatosis, which was replete with statements that have since been proved mythical. No one will have to endure that again with the advent of IDI's "Guide".

The "Web" has certainly provided considerably more accessibility to Hemochromatosis information, yet much of what is available still has to be validated.The "Guide to Hemochromatosis" overcomes this problem by providing in a single-source forthright testimony, easy-to-understand charts and time-tested data contributed by highly recognized scientists in their fields.

The "Guide" can reduce, even eliminate, the frustration often experienced when trying to convince a family member of how crucial it is for having the appropriate blood tests conducted to determine stored iron levels. The feedback I've received from those whom I have given this book to has been overwhelmingly positive. There is little doubt as to the value of this book in one's arsenal for educating loved ones about the insidiousness of excess iron and the damage iron can do to the human body.

I found that one can simply read individual chapters in no particular order and assimilate a plethora of knowledge without being bogged down in technical jargon.This book relates well on a very personal level.I can not emphasize enough the value of this book.It commands a highly visible location in my reading library, replacing the "Reader's Digest".

I also highly recommend this book as being very germane to every individual, worldwide, who has Irish, Scottish, or English ancestry.

guide to hemochromatosis
An incredible find that will save many lives.It explores the world of iron overloading and hemochromatosis in an easy to read style. HH sufferers no longer have to rely on the medical profession's sometimes outdated ideas of diagnosis and treatment of HH or the sometimes questionable web info in order to get a diagnosis and proper treatment.It will answer the questions you may have and others you haven't thought of yet.If someone has suggested that HH may be a possable diagnosis of an ailment/s that you have, you owe yourself this book. It will make a great resource for your doctor also. ... Read more

Book Description

Hemochromatosis is one of modern medicine's greatest oversights. An inherited metabolic iron disorder, it is most common in people of Northern European descent and most prominent in North America among the Scotch-Irish. For people with metabolic iron disorders, controlling the intake of iron contributes to wellness and the prevention of such chronic diseases as heart disease, diabetes, arthritis, liver disease, impotence, and depression.

Book Description
One of the most common genetic disorders in America is also one of the most frequently misdiagnosed. But anyone who has just learned they have hemochromatosis will have lots of questions: How did I get it? Can I pass it to my children? How can I avoid organ damage? The answers are in Living with Hemochromatosis by Dr. Gregory T. Everson and Hedy Weinberg.

Over 30 million people in the United States carry the gene for hemochromatosis, and almost 2 million have developed the condition. Hemochromatosis, also known as "iron overload" or "bronze diabetes," causes the body to retain much more iron than it should. Because it is often not diagnosed until the patient is over 40 years old, the long-term iron buildup can damage not only cells and tissues, but also larger organs including the heart and liver.

But there is hope. Living with Hemochromatosis guides patients through the whole spectrum of this condition, from early to delayed diagnosis, and answers their questions. It contains valuable information about recognizing the signs and symptoms of hemochromatosisÐand why it is frequently misdiagnosed.

Living with Hemochromatosis also offers advice about genetic testing, and how to interpret the results. There is up-to-date information about treatment options, including phlebotomy, liver transplants, and new areas of research. The authors provide patients and their families with guidance on coping with the physical, emotional, and financial issues, as well as nutritional recommendations and much more. 25 b/w photos. ... Read more

Customer Reviews (3)

Misinformation
On page 34, second paragraph, the author states unequivically, that two mutations of H63D do not cause HH.The author is way behind the times.My father was genetically tested in 1999 for mutations that cause HH.He had been diagnosed with HH in 1998.His results showed that he had two mutations of H63D.In case anyone questions the results, the tests were done at Kimball Genetics in Denver, Colorado (800-320-1807).The genetics counselor who spoke with my father about his results said that a year earlier (1998), his diagnosis of HH would have been thrown out because it was thought that you could only get HH from the C282Y mutation.In the last five years, genetics research has discovered more mutations that may cause or affect iron overload.The Iron Disorders Institute's book, Guide to Hemochromatosis, speaks about H63D causing hemochromatosis, and the copyright on that book is 2001.The author of this book is inexcusably behind the times.He is at the University of Colorado, yet Kimball Genetics in Denver, Colorado, had information five years ago that disproves what he put in his book.The Iron Disorders Institute had information two years before this book was published that disproves what he put in his book.Readers beware!!Please research what you read in this book!

life saving
I was diagnosed with HHC, laughingly called the Celtic Curse because it can strike people of Scottish and Irish ancestry, there was not a lot of information out there about it.One in four people can carry the gene that causes the body to store too much iron in the deep muscle tissue, kidneys, liver and heart.It can be fatal if not caught.This book helps those find a way to live with this problem.

When I learnt I suffered from this, I had not heard of it, no one I knew had it.However, within in the last five years, many people I know are aware of a friend or family member that now has it.It often mimics many other health problems, so it's good to get early treatment and have books such as this one that help you manage your lifestyle.

Valuable information: Recommended
This book is truly the most comprehensive book on hemochromatosis I have seen. It contains all the information you need to know and is written in a way that is easy to read. Recommended. ... Read more

Book Description
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to hemochromatosis (also Bronze Diabetes; Cirrhosis, congenital pigmentary; Familial Hemochromatosis; Hemochromatosis Syndrome; Hemosiderosis; Iron Overload Disease), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on hemochromatosis. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. ... Read more

Customer Reviews (3)

Good book for those of us with Hemochromatosis
Its about time there that a technical book about Hemochromatosis was available.I found that this book was both scientific and extremely readable.This is by far the best text i have read on the topic.

WOW! user friendly!
WOW! sooo much info in one book! Well worth the money. Some info is a little dated, but if you call the organizations, they'll send you updated info. User friendly. Not only used for hemochromatosis. Listings for different medical conditions also found. Good for all levels of knowledge. **** book!

Very comprehensive
This book contained a lot of information about hemochromatosis in a clear, concise format. ... Read more

Book Description
This digital document is an article from Medical Laboratory Observer, published by Thomson Gale on October 1, 2005. The length of the article is 6728 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Hereditary hemochromatosis.(Cover Story)
Author: Julie A. Meeker
Publication: Medical Laboratory Observer (Magazine/Journal)
Date: October 1, 2005
Publisher: Thomson Gale
Volume: 37Issue: 10Page: 10(8)

Article Type: Cover Story

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Book Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to hemochromatosis. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to hemochromatosis.If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages.Download Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to hemochromatosis. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to hemochromatosis. If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages. ... Read more

Book Description
Once considered a rare condition, hemochromatosis is now acknowledged as one of the commonest inherited disorders, affecting one in two hundred people of Western Caucasian descent and in the U.S. alone, over one million people.This is the most comprehensive clinical reference yet on hemochromatosis. The international team of 94 authors from twelve countries includes specialists in internal medicine, hematology, hepatology, genetics, biochemistry, and molecular biology.In 57 in-depth chapters they cover all aspects of pathophysiology, epidemiology, diagnosis and treatment. The text thoroughly explains the latest developments in the genetics of the disorder, including sections on screening, diagnostic techniques, and clinical complications. In addition, chapters consider social and ethical issues.With over 200 illustrations--including 40 color plates--this is today's definitive resource for all clinicians involved in the management of hemochromatosis, and for scientists interested in iron metabolism and iron overload. ... Read more

Book Description

Information on many genetic disorders, and the frequent new findings on them, has been extremely difficult to come byuntil now. The Gale Encyclopedia of Genetic Disorders addresses the need for current, hard-to-find facts on emerging discoveries. The two-volume Encyclopedia, presented in a single alphabetical sequence, provides clear, complete information on genetic disorders, including conditions, tests, procedures, treatments and therapies, in articles that are both comprehensive and easy to understand, in language accessible to laypersons. The articles are arranged in a standardized format for quick comparison and ease of use, while non-disorder topics are covered in detail with extended entries. Students will want to consult the Gale Encyclopedia of Genetic Disorders for useful information on a range of well known disorders, including Down Syndrome, Trisomy, Hemophilia and Tourette Syndrome, and rarely seen diseases such as Meckel Syndrome, Neuraminidase Deficiency and Phenylketonuria.

Book Description
This digital document is an article from Skin & Allergy News, published by International Medical News Group on October 15, 2002. The length of the article is 2481 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Test all PCT patients for hereditary hemochromatosis. (Porphyria Cutanea Tarda).
Publication: Skin & Allergy News (Magazine/Journal)
Date: October 15, 2002
Publisher: International Medical News Group
Volume: 33Issue: 11Page: 9(1)

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Book Description
This digital document is an article from Family Practice News, published by International Medical News Group on April 15, 2000. The length of the article is 568 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Routine Hemochromatosis Screening Is Premature.(Brief Article)
Author: Timothy F. Kirn
Publication: Family Practice News (Magazine/Journal)
Date: April 15, 2000
Publisher: International Medical News Group
Volume: 30Issue: 8Page: 12

Article Type: Brief Article

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Book Description
The article is excerpted fromGale Encyclopedia of Medicine.

Consult the second edition of this authoritative, comprehensive, in-depth medical guide for information on more than 1,700 medical topics in language accessible to adult laypersons. Presented in a single alphabetical sequence, articles range in length from one or two paragraphs for minor topics, to several pages or more for major topics. Disease/disorder articles typically cover definition; description; causes and symptoms; diagnosis; treatments; prevention; and more. Test/treatment articles typically cover definition; purposes; precautions; preparation; risks; normal and abnormal results; and much more. This second edition includes more than 200 new entries, 300 updated entries, approximately 650 color images and illustrations, and a comprehensive subject index. New features include biographical and historical sidebars throughout the text.

Disease/disorder articles contain some or all of the following sections:

• Definitions -- brief dictionary-style definition of the disorder
• Descriptions -- overview of the disorder; who gets it and why
• Causes & symptoms -- process, substance or organism that produces the condition; any risk factors that increase susceptibility to the condition; signs and symptoms of the disease
• Diagnosis -- overview of procedures and tests used to diagnose the condition; how the test is done; who should be tested and when; time required; cost; whether it's typically covered by insurance
• Treatments -- overview of conventional methods of care or management of the condition, such as drugs, surgeries, physical therapy, etc.
• Alternative treatments -- overview of alternative/complementary therapies that may be used to treat the condition
• Prognosis -- probable outcome of the disease
• Preventions -- what actions can be taken to prevent the condition from occurring

Book Description
This up-to-date electronic book on CD-ROM provides the best collection available anywhere of official Federal government information and documents on the subject of hemochromatosis. This CD-ROM uses next-generation search technology that allows complete indexing and makes all files on the disc fully searchable. For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material.

This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), Centers for Disease Control (CDC), Food and Drug Administration, and the National Heart, Lung, and Blood Institute (NHLBI). Contents include clinical and medical information, with information on signs, symptoms, testing, diagnosis, treatment, and more.

In addition, as a bonus we have included an encyclopedic collection of general medical and health documents - thousands of pages with extensive material from the CDC and NIH on hundreds of diseases and health topics from A to Z, along with government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers' health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government.

This CD-ROM has over 33,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable!

Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.) ... Read more

Customer Reviews (1)

This CD crashed our computer.
Don't buy this!My son had to do a report about hemochromatosis.The information was comprehensive, but there's a virus or something wrong with the disc.It completely crashed my son's computer; he had to reboot everything. ... Read more

Book Description
This digital document is an article from Medical Update, published by Benjamin Franklin Literary & Medical Society, Inc. on December 1, 1997. The length of the article is 445 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Discarded blood could be put to good use, say experts. (blood from patients with hemochromatosis could have therapeutic use)
Author: Edwin W. Brown
Publication: Medical Update (Newsletter)
Date: December 1, 1997
Publisher: Benjamin Franklin Literary & Medical Society, Inc.
Volume: v21Issue: n6Page: p1(1)

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Book Description
This digital document is an article from Human Biology, published by Wayne State University Press on February 1, 2001. The length of the article is 2753 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Hemochromatosis Gene Variants in Three Different Ethnic Populations: Effects of Admixture for Screening Programs.
Author: Alexandre C. Pereira
Publication: Human Biology (Refereed)
Date: February 1, 2001
Publisher: Wayne State University Press
Volume: 73Issue: 1Page: 145

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Book Description
This digital document is an article from Pediatric News, published by International Medical News Group on December 1, 2001. The length of the article is 645 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Hemochromatosis perfect for genetic screening. (Common Condition, Easy Intervention).
Author: Nancy Walsh
Publication: Pediatric News (Magazine/Journal)
Date: December 1, 2001
Publisher: International Medical News Group
Volume: 35Issue: 12Page: 39(1)

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Book Description
This digital document is an article from Southern Medical Journal, published by Southern Medical Association on November 1, 2001. The length of the article is 482 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: The Iron Disorders Institute Guide to Hemochromatosis. (Book Reviews). (book review)
Author: Ronald C. Hamdy
Publication: Southern Medical Journal (Refereed)
Date: November 1, 2001
Publisher: Southern Medical Association
Volume: 94Issue: 11Page: 1132(1)

Article Type: Book Review

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Product Description
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with hemochromatosis is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more