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$19.07
1. Living Well with Lymphedema
$9.15
2. Lymphedema
$9.09
3. Lymphedema: A Breast Cancer Patient's
$62.81
4. Lymphedema Management: The Comprehensive
$15.26
5. Coping with Lymphedema (Coping
$12.89
6. 100 Q&A About Lymphedema (100
7. A Primer on Lymphedema
$22.99
8. Lymphedema - A Medical Dictionary,
$179.77
9. Foeldi's Textbook of Lymphology:
$22.35
10. Overcoming the Emotional Challenges
$16.07
11. Voices of Lymphedema: stories,
 
$2.30
12. Gale Encyclopedia of Medicine:
$116.87
13. Lymphedema: Diagnosis and Treatment
 
$9.95
14. Lymphedema: an under-treated problem.(CNE
 
$5.95
15. Early diagnosis is essential in
 
16. Textbook of Lymphology: For Physicians
$25.00
17. 21st Century Complete Medical
 
$9.95
18. Secondary Lymphedema in the cancer
 
$5.95
19. Lymphedema: The dirty secret of
 
$9.95
20. Lymphedema awareness.(Disease/Disorder

1. Living Well with Lymphedema
by Ann B. Ehrlich, Alma Vinje-Harrewijn, Elizabeth J. McMahon
Paperback: 284 Pages (2005-05-05)
list price: US$29.95 -- used & new: US$19.07
(price subject to change: see help)
Asin: 0976480611
Average Customer Review: 5.0 out of 5 stars
Canada | United Kingdom | Germany | France | Japan
Editorial Review

Book Description
Lymphedema is swelling caused by the abnormal accumulation of lymphatic fluid in the skin. Lymphedema can be caused by burns, injury, surgery, radiation therapy, obesity, or circulatory problems. Many breast- and prostate-cancer survivors have, or risk developing, lymphedema. There is also an inherited form. If not treated, lymphedema can be painful and lead to life-threatening infections. This book will help you live well with lymphedema through treatment, self-management, and helpful tips for daily living. It will also help you understand how the lymphatic system works, how lymphedema is diagnosed, how to cope with the emotional challenges of lymphedema, how to find treatment, and deal with insurance issues.Living Well is for those with, or at risk for, lymphedema as well as healthcare professionals, caregivers, and friends and family. ... Read more

Customer Reviews (6)

5-0 out of 5 stars Great book for people with lymphedema
This is a wonderful book for anyone with lymphedema or a caregiver.The book covers all aspects of lymphedema and I especially like the chapters on how to manually drain the lymphatic nodes to help reduce the swelling of the affected limb.This is a must have book.

5-0 out of 5 stars Best lymphedema book out there for the patient
I've had lymphedema since 2001 as the result of breast cancer treatment and now I help run a support group for lymphedema patients."Living Well With Lymphedema" is the best book out there for patients and is the most up-to-date book of its kind right now.

We recommend it to all the members of our lymphedema support group. Our organization has bought additional copies to distribute to libraries in our area so anyone who needs it will have free access to it.

This book is a straight forward, readable instruction book for the lymphedema patient. The medical information is
thorough and current.The authors have done an incredible job surveying the patient population for suggestions and practices that work. Plus there is information on the emotional aspects that patients have to contend with and coping recommendations.

With this book, living well with lymphedema is what it's all about and definitely an attainable goal for most patients.What a positive message!

Highly recommended.

5-0 out of 5 stars Very Informative
This book has helped me in so many ways.I agree with Tami and Nancys comments, TOTALLY!!

I actually gave my book away to a Massage Therapist.I am purchasing a second one so I can go back to it over and over again.This book has given me more information than any Dr. has even tried to do.I have been battling LE in my left leg for 33 years and just found out there is help out there.

Great source of information!!

5-0 out of 5 stars Lymphedema's Origins, Expressions and Fixes
THE AUTHORS:
Ann Ehrlich:professional medical writer with Lymphedema following breast cancer treatment.
Alma Vinje-Harrewijn:licensed physiotherapist with more than 15 years of experience and postgraduate training in MLD per Vodder, Foldi, Chikley...
Elizabeth McMahon, PhD:clinical psychologist with over 25 years helping persons with chronic medical conditions manage anxiety, depression and other emotional issues.

WHY READ THE BOOK?The self-care knowledge and techniques presented can thwart a host of illnesses in addition to Lymphedema. Also see www.lymphnet.org

EDEMA:the body's normal swelling response to an injury.

LYMPHEDEMA:abnormal swelling due to damage or improper development of the lymphatic system, which, left untreated, can become worse, dangerous or life-threatening. Primary Lymphedema is hereditary; secondary Lymphedema results from damage to lymphatic system. Treatment is the same. Onset may be immediate or delayed for years. Approximately 5 million Americans affected.

RISK FACTORS, SECONDARY LYMPHEDEMA:biopsies; burns; scars; obesity; circulatory malfunctions; fractures; joint dislocations; other injuries; paralysis; multiple sclerosis; inactivity. Cancer treatments lead in developing nations.

EARLY SYMPTOMS:infection; swelling; pitting edema; "pins & needles;" heaviness; tight skin, ring, bracelet, shoe or sleeve; shoulder/hip aching; decreased joint mobility...

STAGE1: Swollen tissues are soft, and pitting edema is present. Elevation relieves temporarily. Early treatment can improve it greatly.

STAGE2: Tissues feel firm, even hard, and pressure leaves only a slight indentation. There may be more swelling, fibrosis, infections and skin problems. Intense treatment may improve.

STAGE3: Swelling and tissue fibrosis cause the skin to harden. Folds of tissue disfigure and limit mobility. Fungal infections and open wounds develop. Intense therapy improves it or prevents worsening. Reversal is rare.

FIBROSIS: an inflammatory reaction to stagnant, protein-rich lymph, which further slows the lymph circulation, which traps more stagnant lymph and causes additional swelling. Infection risk increases.

DIAGNOSIS:90% based on symptoms and family history. 10% require more sophisticated testing and questioning. Any heart condition will be diagnosed and treated first. Sudden swelling - could be thrombosis; slow progressive swelling of legs - could be chronic venous insufficiency; Rapidly-progressive and painful Lymphedema-type swelling - could be a fast-growing tumor. Check practitioner's credentials.

COMBINATIONS:explanation of Lymphedema interactions with obesity; lipedema; congestive heart failure; chronic venous insufficiency; dependent edema; cellulitis; diabetes; peripheral neuropathy.

SELF-PROTECTION:For the affected or at risk limb, avoid:injections, blood draws, finger pricks, IV placements, acupuncture, burns, injuries, tattoo parlors, excess weight, flying or exercising without compression garment.

TREATMENT-MLD:Manual lymph drainage moves lymph away from the affected area. Contraindicated if cellulitis, fever, infection, developing infection, uncontrolled major illnesses. More often contraindicated for the elderly due to co-occurring illnesses.

TREATMENT-COMPRESSION, FUNCTIONS: Bandages and garments maintain progress; prevent additional swelling; support natural lymph drainage; help muscles pump lymph; soften fibrotic (hardened) tissues. Remove for sleeping.

TREATMENT-PUMP:In the early 1990's Complete Decongestive Therapy (MLD+compression+self-management) was found more effective than the pump, which can increase fibrosis and displace the swelling of the limb into the trunk or genitalia. However, the (newer generation) pump can be used successfully: if therapist sees and evaluates the patient first; if MLD has already been performed on the neck, the abdomen and the uninvolved leg/arm; if there is careful monitoring for progress, fibrosis or increased swelling in surrounding tissues.

POSSIBLE CONSEQUENCES OF NEGLECT:cellulitis, erysipelas, athlete's foot, toenail fungus, orthopedic problems, fibrosis, hyperkeratosis, papillomatosis, weeping Lymphedema, lymphangitis,
lymphangiosarcomalJ(rare)

LYMPHEDEMA THERAPIST CERTIFICATION: Lymphology Assn of North America (LANA) requires 135 hours of specialized education... Prerequisite is a professional license in physical therapy or related profession.

RESOURCES:www lymphnotes.com lists treatment facilities and support groups and other resources, and provides a network. Also contact cancer support groups.

INSURANCE:Excellent chapter on Insurance; Family and Medical Leave Act; Women's Health and Cancer Rights Act of 1998.

EMOTIONS:Handling emotional challenges affects your self-management competence. Dr. McMahon's, Overcoming the Emotional Challenges of Lymphedema, is recommended. Practice relaxation; take action on problems without waiting to feel better; confine worrying to a scheduled time; talk to yourself with respect; get professionals to answer all of your questions.

SELF-MASSAGE:coordinate w/Dr. and Lymphedema therapist; does not replace MLD by trained Lymphedema therapist; technique and sequence are explained and illustrated, but you must be trained; Self-massage not recommended if...certain malignant tumors, leukemia, acute inflammation, infections, tuberculosis, toxoplasmosis, acute allergic reactions, erysipelas, thrombosis, precancerous skin conditions, chronic inflammation, thyroid disorders, bronchial asthma, dysautonomia, granulomas, or occlusive artery disease.

SELF-BANDAGING:Get instructions. Eight pages on technique, safety, materials and effectiveness. Contraindications: infection; open wounds; congestive heart failure; other.

EXERCISE:Illustrations. Precautions. Coordinate with Lymphedema specialist; Wear compression; Exercise increases lymph flow rate 15 times and combats depression & fatigue; Deep breathing moves lymph through abdomen; goal to enjoy 1-hour hike 3 times/week.

AQUATIC THERAPY:The buoyancy enables relaxation, pain decrease, additional motions, reduced joint stress, and cardiovascular system strengthening. Many precautions, guidelines.

NUTRITION:Good nutrition is essential to managing Lymphedema's stress on the body. Obesity is risky. Consume adequate protein. Stay well-hydrated.

HEALTH JOURNAL:calendar, visit records, current medications, healthcare team roster, medical history, Lymphedema records, compression garment records, hospitalization records. Helps with informing doctor and with insurance claims.

HAVING FUN: laughing; tennis; basketball; golf; bowling; travel; saunas & steam rooms (avoid); hiking; backpacking; trampolining; dancing; yoga. Limitations and safe participation are explained.

UNDERSTANDING THE LYMPHATIC SYSTEM: 22 pages of outstanding explanation and illustration. This material can improve one's self-care via own-body respect.

SUGGESTION1:Dual-Purpose Cancer Prevention:Pre-knowledge of the Lymphedema side-effect from cancer sagas would have made more of the recipients of biopsy, surgery, radiation and chemotherapy proactive on prevention. Numerous books teach cancer prevention, and Mary Kerney Levenstein's Everyday Cancer Risks and How to Avoid Them aptly and comprehensively does this. (Enter "Mary Kerney" or "0895295059" for a quick find on Amazon.com.) Also see Singer and Grismaijer's, Dressed to Kill: The Link Between Breast Cancer and Bras, wherein lymph flow restriction is deemed culpable.

SUGGESTION 2:Read, Coping With Lymphedema by Swirsky and Nannery, 1998 - also excellent but significantly different.

SUGGESTION 3:I suggest writing booknotes (mine~5000words) for understanding, reference and retention.

5-0 out of 5 stars very helpful
With this book as a recent purchase I would have to say its one of the best. I diagnosed with LE in the right leg 6 months ago have been trying to find all kinds of info on it to help me understand it more. Also it has helped my family understand what I and the rest of us have to endure. It still makes me mad that we live in a time where Doctors are either not willing to diagnose our conditios correctly or they have no clue about the condition. ... Read more


2. Lymphedema
by American Cancer Society
Paperback: 224 Pages (2006-06-01)
list price: US$16.95 -- used & new: US$9.15
(price subject to change: see help)
Asin: 0944235565
Average Customer Review: 5.0 out of 5 stars
Canada | United Kingdom | Germany | France | Japan
Editorial Review

Book Description

Understand the mystery of cancer-related lymphedema

If you have had cancer treatment, you may be at risk for lymphedema, a buildup of fluid that results in swelling of the arm or leg and other potential complications. Created with the guidance of experts in nursing, oncology, research, and lymphedema care, this up-to-date, practical handbook helps you and your caregiver understand and manage every aspect of lymphedema. Topics include:

  • Current recommendations about day-to-day precautions, diagnosis, and treatment
  • Early symptoms and self-monitoring that can be essential to early diagnosis
  • Methods of coping with emotional stresses and physical challenges
  • Practical issues related to work, insurance, and finding and paying for treatment

Lymphedema: Understanding and Managing Lymphedema After Cancer Treatment offers the information and support you need to cope. You will benefit from this solid and sympathetic discussion of an often-misunderstood and overlooked condition.

"Lymphedema can be managed if you understand your risks, take proper precautions, and receive treatment from knowledgeable and qualified professionals. This outstanding resource from the experts at the American Cancer Society can help you do just that."
--From the Foreword by Sam Donaldson, ABC News Correspondent, treated for lymphedema of the leg

... Read more

Customer Reviews (1)

5-0 out of 5 stars lymphedema
I was delighted to find this book by the American Cancer Society.I have lymphedema in my right leg due to abdominal surgery with ovarian cancer as the outcome.This book has been invaluable because my primary physician does not have an understanding of lymphedema.I am a six year survivor without a recurrence but have the ache and swelling in my right leg as a reminder.The book is even in its treatment of lymphedema whereas other books only address the breast cancer issue. ... Read more


3. Lymphedema: A Breast Cancer Patient's Guide to Prevention and Healing
by Jeannie Burt, Gwen White
Paperback: 245 Pages (2005-09-04)
list price: US$14.95 -- used & new: US$9.09
(price subject to change: see help)
Asin: 089793458X
Average Customer Review: 4.5 out of 5 stars
Canada | United Kingdom | Germany | France | Japan
Editorial Review

Book Description

Women who undergo surgery for breast cancer may end up with lymphedema, a painful, visible swelling, usually of the arm. Coming to their aid, Lymphedema lays out the many options for preventing and treating the condition. The book provides information on reducing lymphedema through professional therapy as well as exercise and self-massage, plus helpful illustrations and additional resources. It also tells encouraging stories of women who have dealt with lymphedema successfully. With updates throughout on the latest research, products, and techniques, this new edition features expanded nutrition and exercise sections and covers naturopathy, acupuncture, and Chinese herbal medicine, as well as potential future therapies being tested.
... Read more

Customer Reviews (6)

5-0 out of 5 stars Great Stuff
My wife and I found lots of great help in this book.Detailed enough for our academic minds.Honest enough to be helpful in a difficult time.And staightforward enough to be understandable.We showed it to our therapist who liked it enough to include it in her list of resources for others with lymphedema.We highly recommend it.

5-0 out of 5 stars Finding Help
I found this book very informative and comforting.It not only tells about lymphedema, about why it starts and what can be done about it, but the book has the stories of other women with lymphedema and shows what they are doing for their condition.It helped make me aware that I am not the only person to have had problems after I was treated for breast cancer.Since my therapy for lymphedema I have used this book to maintain my arm's shape. I think the book is a wonderful guide.It was a real relief for me to find this book.

5-0 out of 5 stars Book Helps Person in Small Town
I have had lymphedema for several years.I live outside a very small town which does not have a person who knows how to treat lymphedema.I found this book on Amazon.com and it gave me information that helped find atherpist in another city.

I must travel nearly two hundred miles to reachmy therapist, but with her help and with the information in this book, theswelling has gone down and my arm is almost back to normal.In anothercouple of weeks I should not need to see the therapist any longer.Becauseof the detailed information in this book, and because of the therapist'sinstructions I know how to bandage my arm, what kind of sleeve to wear onit, exercises I should and should not do, even what kind of breathing helpsmy arm not swell.

I don't know what I would have done if this book hadnot been available.I wish it had been written years ago when my swellingbegan.I recommend it very highly.

5-0 out of 5 stars Book aids with treatment
I found this book incredibly helpful.After two years of having my arm so swollen it would not fit into many of my clothes, I found this book.It showed what exercises to do, how to do self-massage, how to bandage, and where to get help.It is complete with pictures that illustrate each step. I think this book is essential for anyone who's had treatment for breastcancer.

1-0 out of 5 stars A disappointing rehash
This book might be helpful as a starting point for someone who knows nothing about lymphedema. It read like a tired retread of the information the American Cancer Society dispenses for free. Since I experience a directcorrelation between protein intake and arm swelling, I was hoping theauthors would go into far greater diet detail than their short chapter onnutritional supplements. Save your money -- there is nothing new here. ... Read more


4. Lymphedema Management: The Comprehensive Guide For Practitioners
by Joachim E. Zuther
Hardcover: 270 Pages (2005-02-04)
list price: US$69.95 -- used & new: US$62.81
(price subject to change: see help)
Asin: 1588902846
Average Customer Review: 5.0 out of 5 stars
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Editorial Review

Book Description
Covers everything from anatomy, physiology, and pathology to detailedtreatment techniques and patient education, this book is complete andclinically useful in every situation involving lymphedema. ... Read more

Customer Reviews (2)

5-0 out of 5 stars Couldn't ask for more!
Zuther's "Lymphedema Management" certainly is the most comprehensive guide for practioners! The book covers all aspects of lymphedema management in a clear, concise and logical fashion. I would highly recommend this book to practioners and patients alike. I believe that anyone involved in the treatment of Lymphedema should have this book as a valuable reference. Zuther leaves no questions unanswered and his knowledge, experience and expertise is evident in both the content and presentation of the extensive information. 5 Stars!!

5-0 out of 5 stars Thank you!
This book is terrific!I have primary lymphedema and have lived with this for 28 years.I would love to put this book into the hands of the many doc's that shook their head and told me that lymphedema is something I would just have to "Learn to live with".I spent many hours and years researching this condition and want to express my sincere thanks to ACOLS and the many other professionals that help people with lymphedma.This text book is easy to read and written in terms that are easy to understand.I give it 5 stars. ... Read more


5. Coping with Lymphedema (Coping With...)
by Nannery, Swirsky
Paperback: 304 Pages (1998-04-01)
list price: US$14.95 -- used & new: US$15.26
(price subject to change: see help)
Asin: B000H2MIFG
Average Customer Review: 4.0 out of 5 stars
Canada | United Kingdom | Germany | France | Japan
Editorial Review

Amazon.com
More than 100 million people around the world suffer from lymphedema, a painful, chronic swelling of the limbs and, sometimes, other areas of the body. At least five percent of women who undergo lymph-node surgery for breast cancer treatment will experience it. Written by a breast cancer survivor and a nurse, Coping with Lymphedema fills a definite need, with facts about diagnostic tests; manual lymph drainage and complete decongestive physiotherapy (CDP); medications, including antibiotics, steroids, and benzopyrones; compression garments; and experimental treatments, including acupuncture, biofeedback, meditation, and herbal medicine.

The authors also debate the merits of various lymphedema therapists, from chiropractors and physiatrists to osteopaths. There's also plenty of information about natural diuretics, important nutrients, helpful exercises for reducing pain and increasing mobility, and methods for handling depression and self-image troubles. More than 100 resources and lists of phone numbers for support groups in most states further the usefulness of this clearly written, comprehensive reference. ... Read more

Customer Reviews (6)

5-0 out of 5 stars Knowledge is thy shield, thy sword and thy comfort.
THE BOOK: 1998; 286pp; 450 resources listed (products, info, practitioners, researchers, schools, support groups); 122 glossary entries; 52 references; ~800 index entries.43 recommended books listed: Lymphedema(2), cancer(7), general medical(3), alternative medicine(15), diet and nutrition(10), self-help(3).

LYMPHE-WHAT?

Primary (hereditary) Lymphedema (1-in-6000)...may involve blocked/oversized/underdeveloped lymph vessels. More common secondary Lymphedema results from disease/other trauma.

Grade1: Lymphedema often begins with pitting edema - tissues swell due to excess fluid. Small indentations form when pressing with a finger.

Grade2: Lymphedema is chronic, and elevation may no longer help. The skin no longer pits, but hardens as fibrous tissue develops. Thick, coarse skin may ulcerate, and bacteria may enter and bring on extremely painful cellulitis, a soft-tissue skin infection.

Grade3: Lymphedema may be established by repeated attacks of cellulitis as underlying tissue hardens.

DIAGNOSTIC METHODS: tape measure; magnetic resonance imaging; Doppler MRI, lymphangioscintigraphy, color flow Doppler

WHAT INCREASES LYMPHEDEMA VULNERABILITY?
-other family affected
-malformation of veins
-mechanical injuries to lymphatic system
-obesity
-infections impacting lymphatics
-other-leg Lymphedema
-vein surgeries
-lymph node removal
-surgery/treatments...underarm/neck/groin areas
-surgery/treatment for prostate/testicular/colorectal/bladder/pancreatic/liver/skin cancer
-internal scar tissue
-radiation therapy
-chemotherapy(probably)
-Tamoxifen

PREVENTING LYMPHEDEMA BY PREVENTING CANCER:
Numerous books teach cancer prevention, and Mary Kerney Levenstein's Everyday Cancer Risks and How to Avoid Them aptly and broadly does this. (The name, Mary Kerney, or the ISBN, 0895295059, works well in an Amazon search.) Also, impediment to lymph flow by bras is argued as a possible causation for breast cancer in, Dressed to Kill: The Link Between Breast Cancer and Bras.

PREVENTING OF LYMPHEDEMA OR ITS WORSENING:
-get needed Lymphedema treatment
-prevent all skin penetrations/constrictions involving affected limb/area
-during radiation therapy: examine area, use ointment, avoid chlorinated pools, hot tubs/showers
-during chemotherapy: wear pink wristband on affected limb, get IV/mediport installed in unaffected area.
-during hormone therapy: low-salt, low-protein diet; avoid overheating; avoid water retention.

CONVENTIONAL TREATMENTS:
-Staple of medical practice in Europe 100+ years, but recent in U.S.
-Treatment goal: open secondary lymphatic vessels to drain affected limb into normally functioning tributaries.
-Manual lymph drainage, MLD: specialized, sequenced, slow-rhythm, gentle massage pressure that moves lymph fluid.
-Complete/complex decongestive physiotherapy, CDP, may be best (MLD plus scrupulous skin cleansing, plus compression bandages and garments, plus exercise). Nine advantages listed.
---Self bandaging skill necessary due to exercising and airplanes.
---If pregnant, coordinate obstetrician, vascular specialist and Lymphedema therapy expert.
---a compression garment is paramount for reducing swelling and keeping it reduced. Never wear on untreated, swollen limb
---diuretics: Some experts say detrimental. May help if edema plus Lymphedema.
-Pump, newer: peristaltic gradient compression system more closely mimics natural lymph pumping.
---avoid pump if: primary Lymphedema; blood vessel disease; severe arteriosclerosis; massive edema from congestive heart failure; deformity of limb; metastatic cancer in the limb; dermatitis; gangrene; recent skin grafts; deep venous thrombosis; cellulitis(especially).
---should not be used at home
---removes fluid, not protein,...which can become fibrotic and impede lymph flow.
---complications in 30-55% with leg Lymphedema
-Steroids: powerful drugs that can depress immune system, cause water retention and cause mental depression. Occasionally used for inflammation or for enlarged lymph nodes or for tumor obstruction of lymph flow.
-Benzopyrones, in clinical trials in Australia, France, India and China, have improved Lymphedema without compression garments. Minor side effects, but excessive dosage caused liver damage and possibly death. Many US physicians skeptical. National Lymphedema Network and others strongly advise against Benzopyrones. Not FDA approved, but available at 2000 compounding pharmacies stateside.
-Surgery, for the most part, is considered as a last resort - limited success and high risk of complications.
-Injections of a patient's own white blood cells, in one study, rapidly reduced swelling...
-Accessing improved European treatments requires special effort.
-Pain management strategies: monitoring, refitting compression garment, exercise routine, getting help with skin problems, accessing mind-body techniques, discuss with doctor and Lymphedema therapist.

CRITICAL RESEARCH:
The lymph node that receives dye injected around a cancerous tumor drains that tumor and is the "sentinel" and only lymph node requiring removal and examination.

ALTERNATIVE TREATMENTS:
Alternative medicine, with an interest in ancient healing practices, focuses on the mind-body connection and on health rather than illness. An alternative remedy may work even if the medical establishment disagrees. (So far the AMA has remained silent on Lymphedma and its treatments.) Alternative (as complementary) medicine enhances the immune system and one's feelings of well-being, both compromised in Lymphedema. Psychoneuroimmunology, guided imagery, hypnotherapy, acupuncture, biofeedback, herbal medicine, homeopathy and meditation are explained.

Is alternative therapy for you? Read a lot; learn practitioner's qualifications; speak with experienced others; monitor progress; report problems; trust your instincts - replace therapist if necessary. For almost all serious cases, using both medical and alternative treatments, along with comprehensive Lymphedema treatment, symptoms lessened, unwanted body fluid decreased, infections decreased, and a relatively normal life returned.

GETTING TREATMENT:
-Choosing Practitioners: Four pages of specific questions for the doctor and Lymphedema therapist
-Choosing Treatment Facility: A good facility is described.

INSURANCE:
Nine strategies, including using attorney, elected state representatives and state insurance committee.

LIFESTYLE CHANGES:
Instructions regarding:survival kit; activity safety; personal care; wardrobe; writing a journal; traveling; aggressive treatment; diet types/helps/caveats; effects of smoking, caffeine and alcohol; recommended exercise types/amounts; specialized exercises;

DEALING WITH YOURSELF AND OTHERS:
-basically an unknown illness - must repeatedly explain.
-family: explain your needs and limitations, and maintain self-compassion; explain to children.
-sexuality: coping skills
-friends: be open, accept help.
-job: illegal to be fired because of ill health - use your union
-job: employer must make reasonable accommodation... ADA

EMOTIONS ADDRESSED:
getting blind-sided, too busy for depression, the mind & the immune system, reactive/clinical depression, anger, fear, self-blame, self-consciousnessEven for the most frightening conditions, people often show amazing resilience if they know what is happening, what is entailed, and how to help themselves.

RECOMMENDATIONS:
1. These 1000 words cannot replace the authors' 100,000 words - do read the book.
2. The 2005 Living Well With Lymphedema by Ehrlich et al is also excellent - neither can replace the other.

Thanks for reading

Bill Norwood

4-0 out of 5 stars The best of a mighty thin field...
First, anyone who is looking for books on lymphedema will find out fast that books on lymphedema are kind of like treatments for the the disorder: mighty few and far between.Of all the available books, this one is the best of a thin, thin crop.There are chapters on the origins of lymphedema, symptoms, the (few) treatments, diet and exercise, coping and other life issues.And while they are very informative, as other reviewers have pointed out, the authors do focus heavily on upper limb lymphedema.Readers with lower limb lymphedema get tossed a bone of info targeted to their needs every now and then, but the primary emphasis of this book is on lymphedema as the result of breast cancer treatment. Still, readers with lower limb lymphedema can take most of the info in this book and apply it to their own situation.This book is better than nothing, which is pretty much what will be available should this book go out of print.It's a pity that a disorder that affects so many people is virtually ignored by the medical and publishing communities.

2-0 out of 5 stars Reader wanted more
This book gave some helpful hints on dealing with the emotions I was having when my arm swelled after treatment for breast cancer, but seemed to say I was just going to have to learn to live with it.In spite of a good resource section, the book left me depressed and feeling hopeless.I have since found another book I use as a "how to" guide and I am managing the selling very well.If you are like me, "Coping with Lymphedema" may not be the most helpful book for you.

5-0 out of 5 stars I am so happy I found this book
This book was very helpful to me. I have had lymphedema for 30 years, and because it is such a rare disorder, it has been impossible to find much information about it.The book exposedmany treatment options that I wasunaware of previously. Thank you, Joan and Diane, for doing such awonderful job on the book. I know your book has a limited audience, but weneed the information desperately.

3-0 out of 5 stars Coping with Lymphedema Book
Although I commend the authors for addressing an issue that no one else has been able to address through this venue, I find it to be lacking in much information concerning Lymphedema of the lower extremities.While itis true that survivors of breast cancer are at risk for the development oflymphedema those with lower extremity lymphedema have been strugging withit for many years. In other words, lymphedema is not new on the scene. Thebook adequately addresses the issue of LE in relationship with BC butleaves barely touches on the remainder of the population with LE.I didnot enjoy the book and did not find it at all helpful. ... Read more


6. 100 Q&A About Lymphedema (100 Questions & Answers about . . .)
by Debbie J. Daunt
Paperback: 160 Pages (2008-01-25)
list price: US$18.95 -- used & new: US$12.89
(price subject to change: see help)
Asin: 0763749893
Canada | United Kingdom | Germany | France | Japan
Editorial Review

Book Description
It is estimated that as many as 4 million Americans suffer from primary or secondary lymphedema. According to the American Cancer Society, of the two million breast cancer survivors in the U.S., approximately 400,000 must cope with lymphedema on a daily basis. 100 Questions & Answers About Lymphedema provides answers to the most common questions from patients and family members about lymphedema, a painful chronic swelling of the extremities, often associated with cancer treatment. ... Read more


7. A Primer on Lymphedema
by Deborah G. Kelly
Paperback: 100 Pages (2001-10-09)
list price: US$32.00
Isbn: 0130224103
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8. Lymphedema - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References
by ICON Health Publications
Paperback: 216 Pages (2004-01-23)
list price: US$28.95 -- used & new: US$22.99
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Asin: 0597840210
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Editorial Review

Book Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to lymphedema. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to lymphedema.If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages.Download Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to lymphedema. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to lymphedema. If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages. ... Read more


9. Foeldi's Textbook of Lymphology: For Physicians and Lymphedema Therapists
by Michael Foeldi
Hardcover: 736 Pages (2007-01-31)
list price: US$200.00 -- used & new: US$179.77
(price subject to change: see help)
Asin: 0723434468
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Editorial Review

Book Description
Compiled by an internationally renowned pioneer in the field of lymphology with contributions from leading experts, this textbook explores all aspects of lymphological science, including the causes, diagnoses, prognoses, and treatments for primary and secondary Lymphedema. Comprehensive discussions address all the essential topics relevant to lymphology, such as anatomy, physiology, and pathophysiology. Therapists will benefit from practical information on clinical findings as well as instructions for performing manual lymph drainage. ... Read more


10. Overcoming the Emotional Challenges of Lymphedema
by Elizabeth Mcmahon
Paperback: 476 Pages (2005-12-31)
list price: US$34.95 -- used & new: US$22.35
(price subject to change: see help)
Asin: 0976480638
Average Customer Review: 5.0 out of 5 stars
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Editorial Review

Book Description
Overcoming the Emotional Challenges of Lymphedema will help you understand the common emotional reactions to lymphedema and improve your coping by using a wide variety of self-help skills and other resources. These skills will help you understand what is going on, change your thinking and your actions, and improve your communications.

This comprehensive handbook includes specific information for people with lymphedema, their friends and families, parents of children with lymphedema, medical professionals and psychotherapists. ... Read more

Customer Reviews (2)

5-0 out of 5 stars excellent resource
This book has everything, for the person who is just curious about lymphedema to the individual who want answers. With her intrinsically motivational style, Dr McMahon uses helpful checklists, graphs, and exercises in this engaging workbook. It is especially helpful for those people who are depressed or anxious.

5-0 out of 5 stars A must for anyone with lymphedema
I read this book and highly recommend it to anyone with lymphedema. It is supportive, thorough, and
practical.
... Read more


11. Voices of Lymphedema: stories, advice, and inspiration from patients and therapists
Paperback: 256 Pages (2007-09-01)
list price: US$24.95 -- used & new: US$16.07
(price subject to change: see help)
Asin: 0976480654
Average Customer Review: 5.0 out of 5 stars
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Editorial Review

Book Description
Chronic swelling due to lymphatic fluid, or lymphedema, affects 3-5 million Americans including 20-40% of cancer survivors. Lymphedema is so little known-even among doctors-that it has been called the 'silent epidemic' but there is effective treatment that can break the cycle of recurring infections and even reverse lymphedema related disability!Patients, therapists, and doctors share: . Inspiring personal stories. . Advice on getting a diagnosis and finding treatment. . Solutions to common problems and practical tips on self-care. . Activities they enjoy and travel tips. . Support groups and outreach to the medical community. . Issues in treatment coverage and reimbursement.About the Editors: Ann Ehrlich and Elizabeth McMahon are coauthors of Living Well With Lymphedema (Lymph Notes 2005). Ann is a professional medical writer and breast cancer survivor with secondary lymphedema. Elizabeth is a clinical psychologist and author of Overcoming the Emotional Challenges of Lymphedema (Lymph Notes 2005). ... Read more

Customer Reviews (1)

5-0 out of 5 stars Voices of Lymphedema
This book is a must have for anyone with Lymphedema.It is a book you keep picking up over and over again.The stories are so close to home, showing us we are not alone in this world of LE.It also has symptoms of infections that really helped me.Families of LE patients need to read this book, it provides a better understanding of what LE sufferers go through. This book is full of stories, ideas and suggestions. ... Read more


12. Gale Encyclopedia of Medicine: Lymphedema
by J. Ricker Polsdorfer MD
 Digital: Pages (2002-01-01)
list price: US$2.30 -- used & new: US$2.30
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Asin: B00075V0AM
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Editorial Review

Book Description
The article is excerpted fromGale Encyclopedia of Medicine.

Consult the second edition of this authoritative, comprehensive, in-depth medical guide for information on more than 1,700 medical topics in language accessible to adult laypersons. Presented in a single alphabetical sequence, articles range in length from one or two paragraphs for minor topics, to several pages or more for major topics. Disease/disorder articles typically cover definition; description; causes and symptoms; diagnosis; treatments; prevention; and more. Test/treatment articles typically cover definition; purposes; precautions; preparation; risks; normal and abnormal results; and much more. This second edition includes more than 200 new entries, 300 updated entries, approximately 650 color images and illustrations, and a comprehensive subject index. New features include biographical and historical sidebars throughout the text.

Disease/disorder articles contain some or all of the following sections:

  • Definitions -- brief dictionary-style definition of the disorder
  • Descriptions -- overview of the disorder; who gets it and why
  • Causes & symptoms -- process, substance or organism that produces the condition; any risk factors that increase susceptibility to the condition; signs and symptoms of the disease
  • Diagnosis -- overview of procedures and tests used to diagnose the condition; how the test is done; who should be tested and when; time required; cost; whether it's typically covered by insurance
  • Treatments -- overview of conventional methods of care or management of the condition, such as drugs, surgeries, physical therapy, etc.
  • Alternative treatments -- overview of alternative/complementary therapies that may be used to treat the condition
  • Prognosis -- probable outcome of the disease
  • Preventions -- what actions can be taken to prevent the condition from occurring

Test/treatment articles contain some or all of the following sections:

  • Definitions -- brief dictionary-style definition of the test/treatment
  • Purposes -- why and when this test/treatment is prescribed
  • Precautions -- when this test/treatment should not be prescribed
  • Descriptions -- overview of the test/treatment including cost, length of time required, procedures followed, whether typically covered by insurance
  • Preparation -- pre-test treatment procedures, if any
  • Aftercare -- post-test treatment procedures, if any
  • Risks -- any complications/side effects commonly associated with the test/treatment
  • Normal results -- for tests, describes the normal values; for treatments, describes the anticipated outcomes
  • Abnormal results -- defines abnormal test values

Published/Released: December 2001

... Read more

13. Lymphedema: Diagnosis and Treatment
by B.B. Lee, Simon J. Simonian, Benoit Blondeau
Hardcover: 78 Pages (2008-01-16)
list price: US$129.00 -- used & new: US$116.87
(price subject to change: see help)
Asin: 1846285488
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Editorial Review

Book Description
A comprehensive, evidence-based introduction to the area of lymphology, the book is directed mainly to the US audience and will appeal to an interdiscplinary field of health professionals. It describes the unique anatomy and physiology of the lymphatic system and the intimate relationship it shares with the venous system. It explores the differential diagnosis of the "swollen leg/arm", which is often the presenting problem to the health care professional. The necessity of history taking, physical examination and laboratory studies are noted. Treatment methods are described as an introduction and psychosocial and quality of life issues are explored in depth.

The book will appeal to primary care physicians whose cancer patients are sent to radiation oncologists (who themselves must be knowledgeable about possible lymphedema following treatment), to medical and surgical oncologists, physical therapists, occupational therapists, as well asphlebologists and every US medical school. ... Read more


14. Lymphedema: an under-treated problem.(CNE SERIES)(Author abstract)(Disease/Disorder overview)(Clinical report): An article from: MedSurg Nursing
by Kathleen M. Horning, Jacqueline Guhde
 Digital: 15 Pages (2007-08-01)
list price: US$9.95 -- used & new: US$9.95
(price subject to change: see help)
Asin: B000X1F2NQ
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Editorial Review

Book Description
This digital document is an article from MedSurg Nursing, published by Thomson Gale on August 1, 2007. The length of the article is 4482 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

From the author: Lymphedema may affect patients who have had a disease, surgery, or treatments on the lymphatic system. Patient education stressing prevention and early identification of symptoms is essential in controlling this problem.

Citation Details
Title: Lymphedema: an under-treated problem.(CNE SERIES)(Author abstract)(Disease/Disorder overview)(Clinical report)
Author: Kathleen M. Horning
Publication: MedSurg Nursing (Magazine/Journal)
Date: August 1, 2007
Publisher: Thomson Gale
Volume: 16Issue: 4Page: 221(8)

Article Type: Author abstract, Clinical report, Disease/Disorder overview

Distributed by Thomson Gale ... Read more


15. Early diagnosis is essential in patients with lymphedema: 40,000 new cases per year.(Women's Health): An article from: Family Practice News
by Kate Johnson
 Digital: 5 Pages (2004-02-01)
list price: US$5.95 -- used & new: US$5.95
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Asin: B000824S76
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Editorial Review

Book Description
This digital document is an article from Family Practice News, published by International Medical News Group on February 1, 2004. The length of the article is 1279 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Early diagnosis is essential in patients with lymphedema: 40,000 new cases per year.(Women's Health)
Author: Kate Johnson
Publication: Family Practice News (Magazine/Journal)
Date: February 1, 2004
Publisher: International Medical News Group
Volume: 34Issue: 3Page: 65(1)

Distributed by Thomson Gale ... Read more


16. Textbook of Lymphology: For Physicians and Lymphedema Therapists
by M. Foeldi, E. Foeldi, S. Kubik
 Hardcover: 689 Pages (2003-08)
list price: US$149.50
Isbn: 0972953507
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17. 21st Century Complete Medical Guide to Lymphatic Diseases, Lymph Nodes, Lymphedema: Authoritative Government Documents, Clinical References, and Practical Information for Patients and Physicians
by PM Medical Health News
CD-ROM: 32808 Pages (2004-05)
list price: US$25.00 -- used & new: US$25.00
(price subject to change: see help)
Asin: 1592488293
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Editorial Review

Book Description
This up-to-date electronic book on CD-ROM provides the best collection available anywhere of official Federal government information and documents on the subject of lymphatic diseases, lymph nodes, and lymphedema. This CD-ROM uses next-generation search technology that allows complete indexing and makes all files on the disc fully searchable. For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material.

This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), the Combined Health Information Database (CHID), Food and Drug Administration (FDA), and the National Institute of Allergy and Infectious Diseases (NIAID). Contents include clinical and medical information, with information on signs, symptoms, testing, diagnosis, treatment, and more.

In addition, as a bonus we have included an encyclopedic collection of general medical and health documents - thousands of pages with extensive material from the CDC and NIH on hundreds of diseases and health topics from A to Z, along with FDA drug and medical publications, government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers' health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government.

This CD-ROM has over 32,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable!

Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.) ... Read more


18. Secondary Lymphedema in the cancer patient.(Cancer: Caring and Conquering)(lymphatic system caused by an obstruction or a disruption ): An article from: MedSurg Nursing
by Jane E. Lacovara, Linda H. Yoder
 Digital: 11 Pages (2006-10-01)
list price: US$9.95 -- used & new: US$9.95
(price subject to change: see help)
Asin: B000KG5S1K
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Editorial Review

Book Description
This digital document is an article from MedSurg Nursing, published by Thomson Gale on October 1, 2006. The length of the article is 3160 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Secondary Lymphedema in the cancer patient.(Cancer: Caring and Conquering)(lymphatic system caused by an obstruction or a disruption )
Author: Jane E. Lacovara
Publication: MedSurg Nursing (Magazine/Journal)
Date: October 1, 2006
Publisher: Thomson Gale
Volume: 15Issue: 5Page: 302(6)

Distributed by Thomson Gale ... Read more


19. Lymphedema: The dirty secret of the breast cancer establishment.(diagnosis procedure complications)(Brief Article): An article from: Women and Language
 Digital: 2 Pages (2000-09-22)
list price: US$5.95 -- used & new: US$5.95
(price subject to change: see help)
Asin: B0008JAY3G
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Editorial Review

Book Description
This digital document is an article from Women and Language, published by George Mason University on September 22, 2000. The length of the article is 353 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Lymphedema: The dirty secret of the breast cancer establishment.(diagnosis procedure complications)(Brief Article)
Publication: Women and Language (Refereed)
Date: September 22, 2000
Publisher: George Mason University
Volume: 23Issue: 2Page: 60

Article Type: Brief Article

Distributed by Thomson Gale ... Read more


20. Lymphedema awareness.(Disease/Disorder overview): An article from: International Journal of Humanities and Peace
by Susan R. Enerson
 Digital: 9 Pages (2006-01-01)
list price: US$9.95 -- used & new: US$9.95
(price subject to change: see help)
Asin: B000VKC3TA
Canada | United Kingdom | Germany | France | Japan
Editorial Review

Book Description
This digital document is an article from International Journal of Humanities and Peace, published by Thomson Gale on January 1, 2006. The length of the article is 2560 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Lymphedema awareness.(Disease/Disorder overview)
Author: Susan R. Enerson
Publication: International Journal of Humanities and Peace (Magazine/Journal)
Date: January 1, 2006
Publisher: Thomson Gale
Volume: 22Issue: 1Page: 83(4)

Article Type: Disease/Disorder overview

Distributed by Thomson Gale ... Read more


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