Book Description
I was born in 1956 in Kansas City, Kansas, at KU Medical Center. I have had around 100 broken bones and most of them were from just turning or moving the wrong way. You see, with OI (osteogenesis imperfecta, brittle bones), it does not take much at all to break a bone. I was raised in the greater Kansas City area and eventually ended up just southeast of Harrisonville, Missouri, in a small town called Gunn City, where I reside at my home on Zook Street with my husband and our two dogs and my mother. I have a twenty-nine-year-old son who also has OI and a stepson and daughter-in-law who are the best, and an adopted son and his wife and two grandchildren. I might have an unpleasant bone disorder, but I have a great family that helps make up for it. I hope you enjoy reading my book, and I hope it helps the public and the medical field to understand what OI is and to help them to be able to identify the disorder when a child is born with it, and I hopeindividuals who already have it to get the right care that they need. May God bless you all and thank you for your support. ... Read more

Customer Reviews (1)

OI Like Me
Being a person with OI I can relate to a lot of the things that Patricia Minor went through. I found this book because I began writing one of my own and was curious if someone else had already written something about OI. I was excited to find this one. She makes interesting points regarding the medical field being quite ignorant about OI. I like the fact that she gives tips on how to care for a loved one who has OI. She even informs those with OI of the various medical treatments available. This information was rather enlightening to me. Also, I think it's great that she has overcome many obstacles and gives God the glory for it.

However, I am deeply disappointed with the format of the book. The grammar is poor, some sentences makes the reader have to guess as to what the author is trying to say. There were many typos and an order of an event was off. For instance, the author indicates on page 36 that her dad dies. However, on page 45 her dad comes to the scene of the accident just when the paramedics arrive. I don't totally blame the author since it is the publishing company, Publish America, who is responsible for editing. It appears that they didn't even bother to read the book.

Nevertheless, I feel that this book could have been great if more effort and better details were put into it. I truly applaud Patricia Minor's efforts for writing this book because it is a plus for people with OI, as well as the disability community as a whole.
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Book Description
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to osteogenesis imperfecta (also Brittle bone disease; Ekman-Lobstein Disease; Lobstein Disease (Type I); Osteopathyrosis; Vrolik Disease (Type II)), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on osteogenesis imperfecta. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.Download Description
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to osteogenesis imperfecta, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on osteogenesis imperfecta. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Osteogenesis Imperfecta: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Osteogenesis Imperfecta; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Osteogenesis Imperfecta; Chapter 5. Books on Osteogenesis Imperfecta; Chapter 6. Multimedia on Osteogenesis Imperfecta; Chapter 7. Periodicals and News on Osteogenesis Imperfecta; Chapter 8. Physician Guidelines and Databases; Chapter 9. Dissertations on Osteogenesis Imperfecta; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; OSTEOGENESIS IMPERFECTA GLOSSARY; INDEX. Related topics include: Brittle bone disease, Ekman-Lobstein Disease, Lobstein Disease (Type I), Osteopathyrosis, Vrolik Disease (Type II). ... Read more

Customer Reviews (1)

A great beginning
This book was the first good useable source of information other than the osteogenesis imperfecta organization that we found.It explains the basic diagnosis, cause and problems associated with this condition.It gives you a list of things to watch for which are common to those with OI.Then it speaks about research and treatment, but this part may be obsolete when read because of ongoing research.It talks in detail about the social and psychological ramifications on the family.Then, in part 3 it gets to the meat and potatoes of what a new OI parent wants and needs to know.How to handle the baby in the first few weeks of life when you are the most lost.It suggests lots of techniques to use to make life easier, and brakes less common.It then talks about fracture management and goes into exercise, toys, clothing, and adaptive equiptment.
This book was a great help to us and I am sure it will be to you. ... Read more

Book Description

Avoiding hard-to-understand medical jargon, the four-volume Gale Encyclopedia of Childrens Health uses language that parents can understand, while still providing enough depth to benefit today's health science students. The set provides in-depth coverage of pediatric diseases and disorders, along with issues related to physical and cognitive/behavioral development.

Product Description
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with osteogenesis imperfecta is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more

Book Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to osteogenesis imperfecta. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to osteogenesis imperfecta.If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages.Download Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to osteogenesis imperfecta. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to osteogenesis imperfecta.If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages. ... Read more

Book Description
The article is excerpted fromGale Encyclopedia of Medicine.

Consult the second edition of this authoritative, comprehensive, in-depth medical guide for information on more than 1,700 medical topics in language accessible to adult laypersons. Presented in a single alphabetical sequence, articles range in length from one or two paragraphs for minor topics, to several pages or more for major topics. Disease/disorder articles typically cover definition; description; causes and symptoms; diagnosis; treatments; prevention; and more. Test/treatment articles typically cover definition; purposes; precautions; preparation; risks; normal and abnormal results; and much more. This second edition includes more than 200 new entries, 300 updated entries, approximately 650 color images and illustrations, and a comprehensive subject index. New features include biographical and historical sidebars throughout the text.

Disease/disorder articles contain some or all of the following sections:

• Definitions -- brief dictionary-style definition of the disorder
• Descriptions -- overview of the disorder; who gets it and why
• Causes & symptoms -- process, substance or organism that produces the condition; any risk factors that increase susceptibility to the condition; signs and symptoms of the disease
• Diagnosis -- overview of procedures and tests used to diagnose the condition; how the test is done; who should be tested and when; time required; cost; whether it's typically covered by insurance
• Treatments -- overview of conventional methods of care or management of the condition, such as drugs, surgeries, physical therapy, etc.
• Alternative treatments -- overview of alternative/complementary therapies that may be used to treat the condition
• Prognosis -- probable outcome of the disease
• Preventions -- what actions can be taken to prevent the condition from occurring

Book Description
This up-to-date electronic book on CD-ROM provides the best collection available anywhere of official Federal government information and documents on the subject of osteogenesis imperfecta and related bone disorders. This CD-ROM uses next-generation search technology that allows complete indexing and makes all files on the disc fully searchable. For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material.

This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), Food and Drug Administration (FDA), the Combined Health Information Database (CHID), the Centers for Disease Control (CDC), and the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). Contents include clinical and medical Information, with information on signs, symptoms, testing, diagnosis, treatment, and more.

In addition, as a bonus we have included an encyclopedic collection of general medical and health documents - thousands of pages with extensive material from the CDC and NIH on hundreds of diseases and health topics from A to Z, along with FDA drug and medical publications, government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers' health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government.

This CD-ROM has over 31,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable!

Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.) ... Read more

Book Description

Information on many genetic disorders, and the frequent new findings on them, has been extremely difficult to come byuntil now. The Gale Encyclopedia of Genetic Disorders addresses the need for current, hard-to-find facts on emerging discoveries. The two-volume Encyclopedia, presented in a single alphabetical sequence, provides clear, complete information on genetic disorders, including conditions, tests, procedures, treatments and therapies, in articles that are both comprehensive and easy to understand, in language accessible to laypersons. The articles are arranged in a standardized format for quick comparison and ease of use, while non-disorder topics are covered in detail with extended entries. Students will want to consult the Gale Encyclopedia of Genetic Disorders for useful information on a range of well known disorders, including Down Syndrome, Trisomy, Hemophilia and Tourette Syndrome, and rarely seen diseases such as Meckel Syndrome, Neuraminidase Deficiency and Phenylketonuria.

Book Description
This digital document is an article from Ear, Nose and Throat Journal, published by Thomson Gale on February 1, 2006. The length of the article is 2193 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Mandibular distraction osteogenesis with a small semiburied device in neonates: report of 2 cases.
Author: Bruno Brevi
Publication: Ear, Nose and Throat Journal (Magazine/Journal)
Date: February 1, 2006
Publisher: Thomson Gale
Volume: 85Issue: 2Page: 102(4)

Distributed by Thomson Gale ... Read more

Book Description
This digital document is an article from Pediatric News, published by International Medical News Group on May 1, 2002. The length of the article is 524 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: IV pamidronate benefits Osteogenesis impertecta. ('Dramatic' Improvement in Bone Pain).
Author: Nancy Walsh
Publication: Pediatric News (Magazine/Journal)
Date: May 1, 2002
Publisher: International Medical News Group
Volume: 36Issue: 5Page: 45(1)

Distributed by Thomson Gale ... Read more