Customer Reviews (7)

I wish I had this book a long time ago...
After my daughter was diagnosed with Autism. I searched everywhere for stories about other families and how they were coping and living.This book has packaged it all up and sorted it into catagories. Very clever.

Easy to read and I especially like these features:

1.Real stories from real families
2.Tips from the parents at the end of their story
3.Ages of children are included in the story intro
4.Well-organized catagories to easily find a story to read about

This is a great book and would even make an excellent gift to a parent of a child with autism.Excellent book!

DDAY
This book is an Excelent resours for Parents just learning an Autism Diagnosis because it shares what other parents and children have already lived thru and lets them say they are not alone .Autism really isnt the end of the world .It hurts but it but it also teaches us so much and in that we grow as people and as parents
Angela AKA Codys Mom

Excellent
I found that this book helped me in many ways.Ideas for correcting problems with my autism spectrum child as well as encouragement and the acknowlegement that we are not fighting this battle alone.I highly recommend this book.It is easy and fun to read.I have marked several of the pages for later reference and frequently pull it out to quote to a friend.

Hey, You can't review your own book...
So I purchased a couple copies (of my own book) to give to friends.I reread the 1st couple of stories and I was crying by the third.Lots of personal accounts.Helps you feel like you aren't the only one dealing with some really hard stuff.

A must read!
I am a teacher and summer residential camp director who has the pleasure of working with children, adults and their families on the autism spectrum.This book was a great read and provided me with much insight that I have already shared with my coworkers at school and plan to share with my staff at camp this summer.It provides a real down to earth outlook.Thank you! ... Read more

Book Description
Tuberous Sclerosis is a genetic disease characterized by lesions of the skin and central nervous system, seizures, and sometimes sever mental retardation. Infants with this disease may appear overactive, autistic, or socially impaired. Because tuberous sclerosis involves abnormal cellular differentiation, aberrant neuronal migration, and excessive cell proliferation, this thoroughly revised edition will be of interest to a wide range of professionals involved in the study of biological mechanisms underlying many genetically determined neurological disorders. ... Read more

Customer Reviews (1)

Excellent resource.
This is an excellent resource for adult and pediatric neurologists.It isconcise and up to date.Those outside the medical profession will find itunderstandable.I recommend it. ... Read more

Book Description
This up-to-date electronic book on CD-ROM provides the best collection available anywhere of official Federal government information and documents on the subject of tuberous sclerosis (TSC). This CD-ROM uses next-generation search technology that allows complete indexing and makes all files on the disc fully searchable. For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material.

This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), Food and Drug Administration (FDA), the Combined Health Information Database (CHID), the Centers for Disease Control (CDC), and the National Institute of Neurological Disorders and Stroke (NINDS). Contents include clinical and medical information, with information on signs, symptoms, testing, diagnosis, treatment, and more.

In addition, as a bonus we have included an encyclopedic collection of general medical and health documents - thousands of pages with extensive material from the CDC and NIH on hundreds of diseases and health topics from A to Z, along with FDA drug and medical publications, government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers' health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government.

This CD-ROM has over 28,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable!

Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.) ... Read more

Book Description
"This is clearly the most authoritative and contemporary statement of current knowledge yet published."
from the Foreword by H. Sarnat

Tuberous sclerosis is the prototype of a category of malformations uniquely characterized by disturbances in cellular differentiation and growth. It presents with a complex association of different neurological phenotypes, including seizures, cognitive impairments and autism. It is important not only because it is a relatively common hereditary neurological disease with high morbidity, but because it has implications in other pathological processes, such as dysplasia and neoplasia, hamartoma formation and other disturbances in morphogenic processes.

This book correlates new genetic data and basic science, covers clinical presentation, reviews the historical background and current diagnostic criteria, and deals with the recent advances in neuropathology, molecular genetics and neurobiology which give a better understanding of the pathogenesis of the disease.

Paediatricians and child neurologists will find this book uniquely useful. ... Read more

Product Description
A collection of 25 stories of TSC (tuberous sclerosis) children which will touch the heart. A book that seeks to inform and support families of children who suffer with TSC. ... Read more

Book Description
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to tuberous sclerosis (also Adenoma sebaceum; Bourneville disease; Bourneville Pringle Syndrome; Epiloia; Phakomatosis TS; Tuberose Sclerosis), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on tuberous sclerosis. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.Download Description
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to tuberous sclerosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on tuberous sclerosis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Tuberous Sclerosis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Tuberous Sclerosis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Tuberous Sclerosis; Chapter 5. Patents on Tuberous Sclerosis; Chapter 6. Books on Tuberous Sclerosis; Chapter 7. Multimedia on Tuberous Sclerosis; Chapter 8. Periodicals and News on Tuberous Sclerosis; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Tuberous Sclerosis; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; TUBEROUS SCLEROSIS GLOSSARY; INDEX. Related topics include: Adenoma sebaceum, Bourneville disease, Bourneville Pringle Syndrome, Epiloia, Phakomatosis TS, Tuberose Sclerosis, Tuberous Sclerosis Complex, Tuberous Sclerosis-1. ... Read more

Book Description
This digital document is an article from Skin & Allergy News, published by International Medical News Group on January 1, 2003. The length of the article is 1016 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Ash leaf--shaped patch only sign of tuberous sclerosis. (Two Cases).
Author: Nancy Walsh
Publication: Skin & Allergy News (Magazine/Journal)
Date: January 1, 2003
Publisher: International Medical News Group
Volume: 34Issue: 1Page: 26(1)

Distributed by Thomson Gale ... Read more

Book Description

Targeted to patients, their families and allied health students, The Gale Encyclopedia of Neurological Disorders provides in-depth coverage of neurological diseases and disorders, including stroke, multiple sclerosis, Parkinson disease, Tourette Syndrome, Alzheimer's disease, cerebral palsy, vertigo, amnesia and epilepsy. Related topics include communication aids, electric personal assistive mobility devices, medications for treating neurological diseases and conditions, understanding the needs of Alzheimer patient caregivers and more. This two-volume set provides an alternative to resources that either fail to explore neurological disease in any depth and or do so at a level not appropriate for students and general readers.

Book Description

Avoiding hard-to-understand medical jargon, the four-volume Gale Encyclopedia of Childrens Health uses language that parents can understand, while still providing enough depth to benefit today's health science students. The set provides in-depth coverage of pediatric diseases and disorders, along with issues related to physical and cognitive/behavioral development.

Book Description
This digital document is an article from Dermatology Nursing, published by Thomson Gale on October 1, 2005. The length of the article is 588 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

From the author: The "Clinical Snapshot" series provides a concise examination of a clinical presentation including history, treatment, patient education, and nursing measures. Using the format here, you are invited to submit your "Clinical Snapshot" to Dermatology Nursing.

Citation Details
Title: Tuberous sclerosis complex.(Clinical Snapshot)
Author: Laura Musse
Publication: Dermatology Nursing (Magazine/Journal)
Date: October 1, 2005
Publisher: Thomson Gale
Volume: 17Issue: 5Page: 376(2)

Distributed by Thomson Gale ... Read more

Product Description
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with tuberous sclerosis is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more

Book Description
This digital document is an article from Pediatric News, published by International Medical News Group on June 1, 2002. The length of the article is 509 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Neurologic symptoms affect most tuberous sclerosis patients. (Seizure Disorder Very Common).
Author: Helen Lippman
Publication: Pediatric News (Magazine/Journal)
Date: June 1, 2002
Publisher: International Medical News Group
Volume: 36Issue: 6Page: 26(1)

Distributed by Thomson Gale ... Read more

Book Description
This digital document is an article from Southern Medical Journal, published by Southern Medical Association on May 1, 2004. The length of the article is 1743 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Tuberous sclerosis complex in a young woman diagnosed incidentally on the basis of pregnancy ultrasonography.(Case Report)
Author: Cassandra Caprez
Publication: Southern Medical Journal (Refereed)
Date: May 1, 2004
Publisher: Southern Medical Association
Volume: 97Issue: 5Page: 512(4)

Distributed by Thomson Gale ... Read more

Book Description

Information on many genetic disorders, and the frequent new findings on them, has been extremely difficult to come byuntil now. The Gale Encyclopedia of Genetic Disorders addresses the need for current, hard-to-find facts on emerging discoveries. The two-volume Encyclopedia, presented in a single alphabetical sequence, provides clear, complete information on genetic disorders, including conditions, tests, procedures, treatments and therapies, in articles that are both comprehensive and easy to understand, in language accessible to laypersons. The articles are arranged in a standardized format for quick comparison and ease of use, while non-disorder topics are covered in detail with extended entries. Students will want to consult the Gale Encyclopedia of Genetic Disorders for useful information on a range of well known disorders, including Down Syndrome, Trisomy, Hemophilia and Tourette Syndrome, and rarely seen diseases such as Meckel Syndrome, Neuraminidase Deficiency and Phenylketonuria.