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The partnership between parents and professionals is at the core of caring for children with life-limiting conditions. Although there is an infinite diversity among children with life-threatening illness they share features in common - the progression of the child's disease; the emotional burdens on all the family of severe illness (often long term) and death; and the balance between the child's need for technical and scientific medical care, and the whole family's need for emotional and spiritual support. This book reflects the families' tragic experiences and acknowledges their real expertise in the care of their own children. Key ideas relevant to families and professional carers alike will run though the text; the loneliness and isolation; the need to listen to the child and his family; and the importance of communication and liaison. Contributors present models of good practice in the UK in children's respite hospices, hospitals, and the community. There are also chapters on bereavement, parent self-help groups, care for the professional carers, education, and children with AIDS.The book concludes by indicating how existing services might be improved to provide a comprehensive, flexible, and compassionate network of care for families and children afflicted by life-threatening disease. ... Read more

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Being A Chronicle Of The Extraordinary Adventure Of A Party Of Twelve Men And One Woman In The Great American Blizzard, March 12, 1888. ... Read more

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This is an EXACT reproduction of a book published before 1923. This IS NOT an OCR'd book with strange characters, introduced typographical errors, and jumbled words.This book may have occasional imperfections such as missing or blurred pages, poor pictures, errant marks, etc. that were either part of the original artifact, or were introduced by the scanning process. We believe this work is culturally important, and despite the imperfections, have elected to bring it back into print as part of our continuing commitment to the preservation of printed works worldwide. We appreciate your understanding of the imperfections in the preservation process, and hope you enjoy this valuable book. ... Read more

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Also, Report On Astronomical Work Of 1889 And 1890. ... Read more

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This scarce antiquarian book is a selection from Kessinger Publishing's Legacy Reprint Series. Due to its age, it may contain imperfections such as marks, notations, marginalia and flawed pages. Because we believe this work is culturally important, we have made it available as part of our commitment to protecting, preserving, and promoting the world's literature. Kessinger Publishing is the place to find hundreds of thousands of rare and hard-to-find books with something of interest for everyone! ... Read more