41. 1998 Acoustic Neuroma Surgery: A Patient’s Perspective acoustic neuroma Surgery A Patient's Perspective. by Gary Hunt. Disclaimer job!acoustic neuroma Surgery A Patient's Perspective. by Gary Hunt. http://neurosurgery.mgh.harvard.edu/hunt.htm

Acoustic Neuroma Surgery: A Patient's Perspective by Gary Hunt : This account is my own and I make no promises as to every medical detail being accurate, the events are as just as I recalled them. Any opinion expressed is entirely my own. I can't promise that each surgery will go exactly like this one, but hope that it offers some insight from a personal perspective. Consult your physician for details. July 31, 1995 August 18, 1995 At the ENT's office, more sophisticated hearing tests were performed. One of the tests involved sending some sound waves at the ear and noting the wave forms produced, which indicates the functioning of the acoustic nerve. Since the wave patterns produced were not normal for my right ear, they decided to go ahead and order an MRI to get more detailed information. The ENT said that it is probably nothing, but it is not typical to lose hearing in just one ear alone (unless due to noise exposure). It is always nice to have a doctor with a since of humor (I think). At the end, he asked me, have you ever seen the Woody Allen film, "Hannah and Her Three Sisters?" I said I had and vaguely recalled that in the film Woody Allen had to get an MRI and felt that he was going to surely die. The ENT said, "don't be like the character Woody Allen portrayed." I later on learned that in the movie, he was actually going for an MRI scan to check for acoustic neuroma . I had never had an MRI before and wondered what it was like. He said, "I've never lost anybody yet (to an MRI) and you're not allowed to be the first." I left not really worrying about anything.

42. Neurofibromatosis Resources - NF 2 And Acoustic Neuroma Information Online resources addressing Neurofibromatosis type 2, acoustic neuroma,brain tumors, and hearing loss. NF2 and acoustic neuroma. http://neurosurgery.mgh.harvard.edu/NFR/nf2.htm

NF-2 and Acoustic Neuroma Information on the more rare Type 2, also called Central Neurofibromatosis or Bilateral Acoustic Neurofibromatosis , which is a cause of Acoustic Neuroma, or Vestibular Schwannoma Treatment of Acoustic Neuroma Outline U of Wash. Dept. of Neurological Surgery Easy-to-understand patient information which explains what AN is, its symptoms, diagnosis, and treatment. Information is specific to this clinic, but should provide a good idea of what you can expect wherever you go for treatment. ANA Homepage Acoustic Neuroma Association Includes frequently asked questions, local support groups in the USA, e-mail information and support lists, online search resources, and a guestbook where you can find others in similar situations and read their stories. Acoustic Neuromas Brain Surgery Information Center A brief overview, covering the various types of tumors, surgical options, surgical risks. Med Help International A series of specialized articles relating to acoustic neuroma and treatment options. Acoustic Neuroma Acoustic Neuromas Can Be Detected, Treated Early

43. Froedtert & Medical College > Medical Resources > Acoustic Neuroma Program acoustic neuroma Program. Acoustic options. Medical Staff Specialistsin the treatment of acoustic neuroma and skull base tumors. http://www.froedtert.com/medical/neurosciences/acoustic/

Acoustic Neuroma Program Acoustic neuroma is a non-cancerous tumor located at the base of the brain, originating from one of the balance nerves within the internal auditory canal. As it grows, it presses against several nerves and creates problems in hearing, balance, facial movement and facial sensation. Left unchecked, it may press on the brainstem and become life threatening. The cause of acoustic neuromas in most patients is unknown. According to the Acoustic Neuroma Association, estimates of the incidence of symptomatic acoustic neuroma vary from one in every 200,000 people to one in every 3,500 people. Other studies indicate a more frequent incidence, perhaps as high as 1.5% of the population. Most acoustic neuromas are diagnosed on patients between the ages of 30 and 60. For more information call 414-805-3666 or 800-272-3666 (toll free). Table of Contents Overview Information on the program, capabilities, and medical specialists.

44. Froedtert & Medical College > Medical Resources > Acoustic Neuroma Program acoustic neuroma Program Diagnosing acoustic neuroma. Initial symptoms of acousticneuroma are difficult to distinguish from more common medical problems. http://www.froedtert.com/medical/neurosciences/acoustic/diagnosis.html

Acoustic Neuroma Program Diagnosing Acoustic Neuroma Initial symptoms of acoustic neuroma are difficult to distinguish from more common medical problems. In the beginning, 90% of those with an acoustic neuroma experience a reduction in hearing in one ear, often accompanied by tinnitus (ringing). Unsteadiness or balance problems may also be experienced, since the tumor originates on the eighth cranial nerve. As the tumor increases in size, it presses on other cranial nerves, including those that control facial movement and sensation. If abnormalities are identified with audiologic testing, a Magnetic Resonance Imaging (MRI) test will be used to define whether an acoustic neuroma is present and to pinpoint its size and location. Sometimes, a facial nerve test is done to measure the tumor's impact on the nerve. Table of Contents Acoustic Neuroma Program Home Overview Diagnosis Treatment Surgical Options Patient Support Services Rehabilitation ... Medical Staff

45. ACOUSTIC NEUROMA acoustic neuroma. The several names used for this benign tumor includeacoustic neuroma, acoustic neuronoma and vestibular schwannoma. http://www.medhelp.org/lib/neuronom.htm

ACOUSTIC NEUROMA Acoustic neuromas are being more frequently diagnosed as those with hearing loss and sometimes other symptoms are obtaining MRIs (Magnetic Resonance Imaging scans) which can show small tumors at an early stage. The several names used for this benign tumor include acoustic neuroma, acoustic neuronoma and vestibular schwannoma. It involves the 8th cranial nerve which has two branches - acoustic and vestibular and under the microscope resembles schwann cells. For that reason, vestibular schwannoma is a synonym. The phrase "benign" generally implies a course unmarked by progression or death. Unfortunately, in the brain, this is not necessarily the situation. Because the brain is so delicate and encased in bone, there is little extra space for unusual growths of any type. The incidence of acoustic neuromas is modest - approximately 1 per 100,000 people per year. It's equivalent to approximately 2,500 people being diagnosed each year in the United States. That is of little relief to those diagnosed. Because MRI can detect lesions which were previously not visible by other means, it is likely that the true incidence is higher. Symptoms include decreased hearing, ringing in the ears and a change in balance. While acoustic neuromas can affect either ear and sometimes both ears, most often it is unilateral.

46. Acoustic Neuroma Articles, Support Groups, And Resources acoustic neuroma articles, support groups, and resources for patientsfrom Med Help International (www.medhelp.org). acoustic neuroma. http://www.medhelp.org/HealthTopics/Acoustic_Neuroma.html

[Health Topics A-Z] A B C D ... Z Acoustic Neuroma Medical Glossary: ACOUSTIC NEUROMA Ask The Doctor Forums Acoustic Neuroma (Neurology and Neurosurgery Forum) Acoustic Neuroma (Neurology and Neurosurgery Forum) Acoustic neuroma (Neurology and Neurosurgery Forum) acoustic neuroma (Neurology and Neurosurgery Forum) ... occipital nerve pain after acoustic neuroma surgery (Neurology and Neurosurgery Forum) Support Groups: Acoustic Neuroma Association [Med Help Home] [Library Search] [Medical Forums] ... [Patient Network] Revised: 3/30/2003

47. Acoustic Neuroma Resources You can make a bookmark or favorite of this page as an Index for acoustic neuromaresources. Best wishes on your journey. What is an acoustic neuroma? http://neuroma.wahig.com/

Contents About This Page. What is an Acoustic Neuroma? A Personal Story. Support Groups and Organizations. ... Support for Caregivers. About This Page This web page has been online continuously since January 23, 1996. In that regard, it's a piece of Internet history. Back in the olden days, Yahoo was only beginning to roll and Google was yet to be developed. It took some time to find and compile this page back then. I am no longer adding additional links though if I am informed , I will eventually update URLs for pages cited here. An acoustic neuroma is also called a vestibular schwannoma, because it affects the cranial nerve that controls hearing and the vestibular or balance system. I have compiled this list of resources related to Acoustic Neuromas (ANs) and their treatment, since my dad had surgery for an Acoustic Neuroma in 1995. I hope that folks looking for information or themselves, a friend, or a loved one will be able to find what they need here. Most people use this page to begin to find information to help them deal with an initial diagnosis. I have become aware that the effects of surgery can vary from person to person. There are some common problems following surgery and they can be quite upsetting to the unprepared. But remind yourself that this surgery was not even possible with any great success until the last half of this century! This is a benign tumor which you can survive.

48. Acoustic Neuroma Articles List of medical journal articles dealing with acoustic neuroma care and treatment. Hearingpreservation in unilateral acoustic neuroma surgery. http://www.acousticneuroma.neurosurgery.pitt.edu/reference.html

Linskey ME, Lunsford LD, Flickinger JC: Neuroimaging of acoustic nerve sheath tumors after stereotaxic radiosurgery. AJNR Gormley WB, Sekhar LN, Wright D, et al. Acoustic neuromas: results of current surgical management. Neurosurgery 41:50-60, 1997. (Recent review of a large surgical series using modern techniques.) Foote RL, Coffey RJ, Swanson J, et al. Stereotactic radiosurgery using the gamma knife for acoustic neuromas. Int J Radiat Oncol Biol Phys Flickinger JC, Kondziolka D, Lunsford LD. Dose and diameter relationships for facial, trigeminal, and acoustic neuropathies following acoustic neuroma radiosurgery. Radiother Oncol Flickinger JC, Kondziolka D, Lunsford LD, et al. Evolution in technique for vestibular schwannoma radiosurgery and effect on outcome. Int J Radiat Oncol Biol Phys Flickinger JC, Lunsford LD, Linskey ME, et al. Gamma knife radiosurgery for acoustic tumors; Multivariate analysis of four year results. Radiother Oncol Flickinger JC, Lunsford LD, Wu A, et al. Treatment planning for gamma knife radiosurgery with multiple isocenters.

49. Acoustic Neuroma Resources On The Internet HealthCyclopedia, acoustic neuroma. Health News, acoustic neuroma Association Nonprofit organization providing information and support to patients. http://www.healthcyclopedia.com/acoustic_neuroma.html

Home Health Conditions by Category ... Contact Us Acoustic Neuroma Health News Search millions of published articles for news on Acoustic Neuroma The eLibrary newspaper and magazine archive contains articles from current and back issues of hundreds of publications, including: Modern Medicine Aging The Ardell Wellness Report HealthFacts The Journal of Environmental Health Medical Post Medical Update Men's Health and the National Women's Health Report Note: To access the full text of articles, sign up for a seven-day no-risk free trial subscription to eLibrary. Web Directory Web Links: Acoustic Neuroma Archive - Comprehensive informational site by and for acoustic neuroma patients with advice, news, stories, directories and links. Acoustic Neuroma Association - Nonprofit organization providing information and support to patients. Acoustic Neuroma Patient Ring - Links together acoustic neuroma patient sites. Acoustic Neuroma Resources - Emotional support for caregivers, details of support groups, mailing lists, newsgroups, bulletin boards and links. Acoustic Neuroma Story Index - Patients' personal experiences with the disorder with descriptions and email links.

50. Acoustic Neuroma acoustic neuroma links for patients, students, and other hearing healthcare providers. AudiologyNetAudiology Information for the Masses acoustic neuroma http://www.audiologynet.com/acoustic-neuroma.html

AudiologyNet Audiology Information for the Masses Acoustic Neuroma American Brain Tumor Association Very very nice web site that has won several awards. This web site has information about brain tumors and the different research that is currently being done. Dictionary for Brain Tumor Patients This is an excellent page to print out to have on hand. It is 19 pages of terms that may be used while discussing brain tumors. Clinical Trials and Noteworthy Treatments for Brain Tumors Excellent web site! Has a database of over 200 different treatments. Also has a brain tumor forum, address book of doctors, journal links, web links, news, and several other areas. The Brain Tumor Society Excellent site to visit! Has information for patients and healthcare providers. Also has an area where events and conferences are listed. Information on Acoustic Neuroma Very nice web site that gives a large amount of information on a large number of topics associated with acoustic neuromas. It also has illustrations, abstracts, and additional links to visit. Acoustic Neuroma..University of Minnesota

51. Acoustic Neuroma Info acoustic neuroma INFO SOURCES. NAME CHANGE. This site is being renamed AcousticNeuroma Physicians to more accurately reflect the nature of the site. http://pages.prodigy.net/awiggins/acoustic.htm

52. Acoustic Neuroma Physicians acoustic neuroma PHYSICIANS. (Formerly acoustic neuroma Info Sources). DISCLAIMERThe Information. Sandi Wiggins' acoustic neuroma Resources. http://pages.prodigy.net/awiggins/acousticphysicians.htm

53. Acoustic Neuroma acoustic neuroma. One cause of imbalance, dizziness, and occasionally vertigois a benign tumor termed an acoustic neuroma. acoustic neuromas are rare. http://www.vestibular.org/neuroma.html

Acoustic Neuroma (Reviewed by David Wiegand, M.D., Medical Research Advisor, Acoustic Neuroma Association, and Jenny R. Broberg, M.P.H., Member Services Director, Acoustic Neuroma Association.) Balance disorders can have a number of causes. One cause of imbalance, dizziness, and occasionally vertigo is a benign tumor termed an acoustic neuroma. Acoustic neuromas are rare. About 2,000 acoustic neuromas are diagnosed in the U.S. each year. The correct name for this tumor should be vestibular schwannoma , because it arises from the schwann cell (lining) layer of the vestibular portion of the eighth cranial nerve. However, this eighth nerve has two parts, the acoustic (hearing) part as well as the vestibular (balance) part, and since this is a non-malignant tumor (neuroma) on this nerve, the term "acoustic neuroma" is commonly used. An acoustic neuroma usually begins in a tiny tube called the internal auditory canal, which is the passage carrying the eighth and other nerves and blood vessels between the inner ear (where the balance mechanisms are located), and the brain. As the tumor grows inside this bony tube and then out against the brain, it distorts adjacent nerves. As the eighth nerve is stretched by the tumor, both hearing and balance may be affected. Some acoustic neuromas cause a period of unsteadiness or imbalance without other symptoms such as one-sided hearing loss or intense ringing in the ear. Vestibular nerve function may be gradually lost without much balance disturbance. These patients are not as likely to suffer long-term imbalance if the tumor is surgically removed and the non- functioning nerve sacrificed. A functioning vestibular nerve at the time of necessary surgical severing may require some time for bodily adjustment to the quick loss of this part of the balance system, and so the patient may suffer imbalance for several months after surgery.

54. NoFrames Cranial Base / Acoustic Neuroma Index From Wake Forest Neurosurgery The NoFrames index of internet resources on Cranial Base Neurosurgery for tumorssuch as acoustic neuroma (vestibular schwannoma) and other lesions of the http://www.wfubmc.edu/surg-sci/ns/cbase3.html

Acoustic Neuroma Index Department of Neurosurgery Wake Forest University School of Medicine Neurosurgery Home Acoutic Neuroma / Cranial Base Center Gamma Knife Home Schedule Appointment ... Framed version of the Wake Forest Cranial Base Center Homepage Links to resources about acoustic neuroma / vestibular schwannoma and other skull base lesions For more information about how you can contribute to the cure for brain tumors click here. The Acoustic Neuroma Association Homepage Local Acoustic Neuroma Support Groups and Contacts Frequently asked questions about acoustic neuromas Acoustic neuroma detection Treatments for acoustic neuromas Glossary of terms relevant to acoustic neuromas Articles from ANA Notes Gamma Knife Radiosurgery for Vestibular Schwannomas Douglas Kondziolka, M.D., M.Sc., FRCS(C), L. Dade Lunsford, M.D., John C. Flickinger, M.D. UPMC Presbyterian, Pittsburgh, PA. American Brain Tumor Association Homepage American Brain Tumor Association's Primer of Brain Tumors American Brain Tumor Association's Dictionary for Brain Tumor Patients National Brain Tumor Foundation The Brain Tumor Society in Boston, MA

55. Acoustic Neuroma Index (3) acoustic neuroma Frame from the Department of Neurosurgery, Wake ForestUniversity School of Medicine, WinstonSalem, North Carolina. http://www.wfubmc.edu/surg-sci/ns/cbase4.html

Links to resources about acoustic neuroma / vestibular schwannoma and other skull base lesions For more information about how you can contribute to the cure for brain tumors click here. The Acoustic Neuroma Association Homepage Local Acoustic Neuroma Support Groups and Contacts Frequently asked questions about acoustic neuromas Acoustic neuroma detection Treatments for acoustic neuromas Glossary of terms relevant to acoustic neuromas Articles from ANA Notes Gamma Knife Radiosurgery for Vestibular Schwannomas Douglas Kondziolka, M.D., M.Sc., FRCS(C), L. Dade Lunsford, M.D., John C. Flickinger, M.D. UPMC Presbyterian, Pittsburgh, PA. American Brain Tumor Association Homepage American Brain Tumor Association's Primer of Brain Tumors American Brain Tumor Association's Dictionary for Brain Tumor Patients National Brain Tumor Foundation The Brain Tumor Society in Boston, MA Brain Tumor Support Group of the Carolinas and Virginia meets monthly in Winston-Salem. Managament of Acoustic Neuromas (Vestibular Schwannomas) by Robert G. Ojemann, M.D.

56. Cromwell Gamma Knife Centre | Overview | A Short History cromwell gamma knife centre gamma knife surgery stereotactic radiosurgery brainsurgery acoustic neuroma brain metastases brain tumour facial pain help http://www.gammaknife.co.uk/internal/Overview/history.html

SHORT HISTORY - MILESTONES Leksell, professor in Neurosurgery in Sweden, introduces the concept radiosurgery The first Gamma Knife prototype is made and the first patient treated at Studsvik nuclear plant The first patient treated at the Karolinska, Sophiahemmet Hospital in Stockholm, Sweden The first acoustic neuroma patient treated The first patient with an arteriovenous malformation treated An improved Gamma Knife prototype installed at the Karolinska Hospital in Stockholm Introduction of the first computer assisted dose planning program for the Gamma Knife The first patient treated for meningioma New Gamma Knife prototypes delivered to Sheffield, U.K., and Buenos Aires, Argentina The first Gamma Knife model for serial production installed in Pittsburgh, USA Gamma Knife series B installed at the Karolinska Hospital, Sweden

57. Acoustic Neuroma Treatment Treatment options for acoustic neuroma (vestibular schwannoma), a benigntumor that grows from schwann cells of the vestibular nerve. http://www.neurosurgery.pitt.edu/imageguided/an.html

Image-Guided Home Page Faculty and Staff Contact and Referral ... The Gamma Knife Acoustic Neuroma Treatment Neuronal Transplantation Brain Tumor Surgery Movement Disorders ... Support Groups Acoustic Neuroma Treatment (For an extensive discussion of acoustic neuroma treatment options, please see Acoustic Neuroma Treatment: Realities and Expectations An acoustic neuroma is a benign tumor that grows from schwann cells of the vestibular nerve. Also called vestibular schwannomas, these growths commonly lead to progressive hearing loss, ringing in the ear (tinnitus) and balance problems. They often grow first in the auditory canal and then expand to compress the brain. Treatment options for acoustic neuroma include surgical resection, stereotactic radiosurgery or fractionated radiation therapy. The tumors can be slow growing and in some patients are simply observed. When tumors are present on both right and left sides of the brain, a condition called neurofibromatosis type 2 exists. Treatment Options Resection is indicated for patients with larger acoustic neuroma tumors that have caused major neurological deficits from brain compression. Surgeons perform stereotactic radiosurgery as the main alternative to acoustic tumor resection with the goals of preserved neurological function and prevention of tumor growth. The long-term outcomes of radiosurgery, particularly with gamma knife technique, have proven its role in the primary or adjuvant management of this disease. Radiotherapy can be offered to the very few patients with larger tumors in whom radiosurgery may not be feasible. Patients with neurofibromatosis type 2 pose specific challenges, particularly in regard to preservation of hearing and other cranial nerve function.

58. Acoustic Neuroma Association: Triwest Region acoustic neuroma Association. Wyoming, Kansas, Colorado. Provides informationand encouragement to new patients diagnosed with acoustic neuroma. http://members.aol.com/jrhhmh/triwestana.htm

Acoustic Neuroma Association Wyoming Kansas Colorado Abolishing doubt, restoring cheer, Caring and sharing to help wipe out fear Purpose To provide educational information, encouragement, and support to individuals with acoustic neuroma or other benign cranial nerve tumors before, after, and during the months and years that follow treatment. To educate the public about early warning signs that may indicate the presence of an acoustic neuroma, facilitating timely diagnosis and treatment. How Can Triwest ANA Help me? Provides an opportunity for members to socialize, exchange ideas, comfort and support each other by mail, telephone and through personal interaction. Publishes Communications , a quarterly newsletter offering encouragement, information about members, and educational reports. (Members and Health Care Providers are encouraged to contribute to the newsletter). Provides non-medical advice to members. Provides information and encouragement to new patients diagnosed with acoustic neuroma. Holds committee meetings and general meeting sessions to provide educational information and allow members to meet and socialize.

59. HealthlinkUSA Acoustic Neuroma Links medical and health related topics. FindWhat. Click here for page 1of acoustic neuroma information from the HealthlinkUSA directory. http://www.healthlinkusa.com/4ent.htm

60. Acustic Neuroma--Capital Region Otolaryngology Head & Neck Group acoustic neuroma. http://www.capitaloto.com/acoustic.htm

Main Office: 6 Executive Park Dr., Entrance C Albany, NY 1220 Search the Site: Home Northeast Neurotologic Clinic Ear Probems Otosclerosis Chronic Otitis Media Glomus Tumors Tinnitus ... Acoustic Neuroma Balance Problems Balance Problems Balance Testing Meniere's Disease Parixysmal Positional ... Vertigo How the Ear Works Perception of Sound Types of Hearing Impairment Balance Function Cochlear Implants Cochlear Implants How it Works Who is a Candidate Surgical Procedure Implantable Hearing Aids Implantable Hearing Aids Soundbirdge Direct System ... Locations Acoustic Neuroma Treatment Options Considerations Regarding Surgical Approach Hearing Impairment Following Surgery Risks and Complications of Acustic Tumor Surgery Acoustic tumors are non-malignant (benign) growths that do not spread (metastasize) to other parts of the body. They originate most commonly from the balance (eighth cranial nerve). They constitute six to ten percent of all brain tumors and are the most common tumors of the cerebellar pontine angle. Estimates of the incidence of acoustic neuromas in the general population vary from one person in 3,500 to one per million. Asymptomatic acoustic neuromas have been found at autopsy in 2.4% of the population.

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