81. Caring For Your Newborn With Cleft Lip And/or Cleft Palate Caring for Your Newborn with cleft lip and/or cleft palate For Parents, From Parents edited by Susan K. MacDonald, as suggestions for caring for an infant born with cleft lip and/or cleft palate. It was prepared by a group of parents http://www.samizdat.com/pp2.html

Caring for Your Newborn with Cleft Lip and/or Cleft Palate For Parents, From Parents edited by Susan K. MacDonald, Other Internet Resources Related to Cleft Lip/Cleft Palate The material presented here is intended for use by parents as suggestions for caring for an infant born with cleft lip and/or cleft palate. It was prepared by a group of parents from Prescription Parents whose children were born with cleft lip and/or cleft palate and are being treated at various hospitals in the Boston area. For their invaluable help and contributions, appreciation is extended to: Mrs. Richard J. Carey, Mrs. Lois C. LaBonte, Mrs. Marcia L. McGrath, Mrs. Ann Anderson, Mrs. Lillian Rawan, Mrs. Judy Eagen, Mrs. Sandra Lemmo, Mrs. Naomi Towvim, Mrs. Gay Porter, Mrs. Gael C. Sullivan, and Mrs. Caroyn Malfa. Prescription Parents, Inc., the sponsor of this packet, is a group of parents and professionals interested in the care of the child born with cleft palate. Many of the physicians and specialists treating your infant are active in our group. Further information regarding the group and the special needs of children born with these conditions is available from Prescription Parents on request. You might like to be included on our mailing list and receive our newsletter by mail, you might like to attend one of our informational meetings, or you might like to talk with another mother whose infant is being treated at the same hospital as your baby and who may be able to allay your worries a bit.

82. Smiles - Overview Of Cleft Lip & Palate Management A child born with cleft lip and/or palate can have great difficulty making thisadjustment.The transition into the world can be successful with the help of http://www.cleft.org/overview.htm

A newborn goes through a period of rapid adjustment from fetal life to life outside the womb. A child born with cleft lip and/or palate can have great difficulty making this adjustment.The transition into the world can be successful with the help of many people. C hildren with clefts may have multiple problems which require different specialists during the course of treatment. Many hospitals throughout the country have established cleft teams for this purpose. In such a team, all the specialists work together to meet the needs of a growing child with a cleft. The team approach provides a broad perspective of the child which includes the family, social, emotional, psychological, and educational needs. T he health care providers who frequently participate in a cleft palate team include: Audiologist Ear, Nose, Throat surgeon Geneticist Neurosurgeon Nurse Pediatric dentist Orthodontist/ Prosthodontist/ Maxillofacial surgeon Pediatrician Plastic surgeon Social worker / Psychologist Speech and language pathologist S equence of surgical procedures: Newborn to 12 months Age 1-5 years Age 5-13 years Age 13-18 years

83. Medical References: Cleft Lip And Cleft Palate The causes of cleft lip/palate, an abnormal a separation in the oralfacialregion, are not well understood. What Causes cleft lip/palate? http://www.marchofdimes.com/pnhec/681_1210.asp

View All Chapters Find Your Local Chapter March 30, 2003 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Quick Reference and Fact Sheets Cleft Lip and Cleft Palate A cleft is a separation in a body structure. Clefts that occur in the oral-facial region often involve the lip, the roof of the mouth (hard palate) or the soft tissue in the back of the mouth (soft palate). Two major types of oral-facial clefts are cleft lip/palate and isolated cleft palate. Babies with cleft lip/palate have a cleft lip which usually is accompanied by cleft palate. In isolated cleft palate, the cleft palate occurs by itself, without cleft lip or other malformations. These two forms of oral-facial clefts are considered separate birth defects. Here we refer to each specific type of cleft by name, and use the term oral-facial cleft when the information applies to both. There also are about 400 syndromes in which babies have some form of oral-facial cleft along with a wide variety of other birth defects. The diverse problems of these babies are not described here.

84. Cleft And Craniofacial Program, Cleft Lip/Palate, UC Davis Health If you are a parent who has just learned that your child has a cleft lip or palate,this situation can evoke a multitude of emotions fear, guilt and even http://cleft.ucdmc.ucdavis.edu/guide_cleft/index.shtml

85. Cleft Lip, Cleft Palate, Craniosynostosis, Pediatric Plastic Surgery - Childrens Plastic and Reconstructive Surgery at the Hospital. (Los Angeles)Category Health Medicine Surgery Pediatric...... the drop down menu below. Condition http://www.hopeforkids.com/

The Division of Plastic and Reconstructive Surgery at Childrens Hospital Los Angeles would like to welcome you to our web site. This site is a service to help you find out more about the treatment options available to your child. As a parent, it is important to understand your child's condition as completely as possible. In fact, it is reasonable to question what children's plastic surgery is all about. Pediatric plastic surgery is a medical specialty which aims to correct a child's physical deformity and restore a more normal appearance. As a discipline, this field covers a complex range of conditions. We treat children with birth defects (congenital defects) of the head, face, hands, feet, and other areas: traumatic injuries (accidents, burns); skin and superficial tumors (benign and malignant), and other problems. Some of the most common specific conditions that we see and treat are cleft lip and cleft palate craniosynostosis (abnormal head shape), jaw deformities

86. Children's Health At Doernbecher - Child Health A-Z cleft lip / cleft palate, RELATED SERVICES. What are cleft lip and cleft palate?cleft lip and cleft palate are birth abnormalities of the mouth and lip. http://www.ohsuhealth.com/dch/health/craniofacial/cleft.asp

Craniofacial Anomalies Index Anatomy of the Newborn Skull Overview of Craniofacial Anomalies The Craniofacial Team ... Online Resources You have selected the following Health topic: - Adolescent Medicine - Burns - Cardiovascular Disorders - Care of the Terminally Ill Child - Children Having Surgery - Common Childhood Injuries and Poisoning - Craniofacial Anomalies - Dermatology - Diabetes - Eye Care - Genetics - Growth and Development - High-Risk Newborn - High-Risk Pregnancy - Immunizations - Infectious Diseases - Mental Health - Neurological Disorders - Normal Newborn - Oncology - Orthopaedics - The Pediatrician - Pregnancy and Childbirth - Respiratory Disorders - Transplantations - Well-Care Visits Cleft Lip / Cleft Palate RELATED SERVICES Cleft Palate/Craniofacial What are cleft lip and cleft palate? Cleft lip and cleft palate are birth abnormalities of the mouth and lip. These abnormalities affect about one in every 1,000 births and are more common among Asians and certain groups of American Indians than among Caucasians. They occur less frequently among African-Americans. Cleft lip and cleft palate occur early in pregnancy when the sides of the lip and the roof of the mouth do not fuse together as they should. A child can have cleft lip, cleft palate, or both. Cleft lip and cleft palate together are more common in boys. It is also important to know that most babies born with a cleft are otherwise healthy with no other birth abnormalities.

87. Pediatric Advisor 2002.1: Cleft Lip And Cleft Palate cleft lip and cleft palate. What is a cleft lip or palate? Up to 5,000 babiesare born with a cleft lip or palate in the United States each year. http://www.med.umich.edu/1libr/pa/pa_cleft_hhg.htm

Pediatric Health Topics All Health Topics Mott Children's Hospital Pediatric Services ... Find a UMHS Doctor Search Pediatric Topics Search All Topics T his information is not a tool for self-diagnosis or a substitute for medical treatment. You should speak to your physician or make an appointment to be seen if you have questions or concerns about this information or your medical condition. ( En Espanol McKesson Clinical Reference Systems: Pediatric Advisor 2002.1 Cleft Lip and Cleft Palate What is a cleft lip or palate? The term "cleft" refers to an opening. An opening in the lip is called cleft lip. An opening in the roof of the mouth (palate) is called cleft palate. The separate parts that form a baby's face and palate come together during early pregnancy. A cleft occurs if the parts do not fuse completely. One out of every 700 babies has some form of cleft lip or cleft palate. Up to 5,000 babies are born with a cleft lip or palate in the United States each year. Cleft lip used to be referred to as a hare lip because it was thought the upper lip looked like a rabbit's lip. The term hare lip should not be used. The defect should be referred to as cleft lip.

88. Cleft Lip And Cleft Palate cleft lip and cleft palate. What is a cleft lip/cleft palate? Complete cleft ofsoft palate. cleft of soft and hard palates. Complete cleft of lip and palate. http://www.pedisurg.com/PtEduc/Cleft_Lip-Palate.htm

CLEFT LIP AND CLEFT PALATE What is a cleft lip/cleft palate? A cleft lip is a separation of the two sides of the lip. Sometimes this includes the bone of the upper jaw. A cleft palate is an opening in the roof of the mouth in which the two sides of the palate did not join together. Cleft lips and palates can be unilateral or bilateral. Why did this happen? Sometime between the 6th and 11th week when your baby was developing, the parts of the lip and/or palate failed to come together properly. We all have clefts of our lips and palates initially. Some join together and others do not. Why some do not, we may never know. Sometimes clefts can be found in families who have had clefts in other family members. Some clefts can be linked to certain syndromes. Here are some statistics to help you understand the frequency of clefting: Clefts occur in 1 in 700 newborns Cleft palates are not racially influenced Clefts occur in more males than females There is only a 5%, chance that another child will be born with a cleft. If another child is born with a cleft, the incidence increases. What is the treatment of cleft lip/cleft palate?

89. Cleft Lip And Cleft Palate cleft lip and cleft palate. How do cleft lip and cleft palate occur? About 1 in 600babies has a cleft lip or cleft palate. Race and gender play a small role. http://familydoctor.org/handouts/034.html

This handout is also available in Spanish. Information from Your Family Doctor Cleft Lip and Cleft Palate How do cleft lip and cleft palate occur? Each of us had a cleft lip and cleft palate during the early weeks of development in our mother's womb. Normally, the tissues that form the palate and the upper lip come together in the middle and join (fuse). You can see the lines of fusion in the "Cupid's bow" under your own nose, and the ridge and pale line in the middle of your palate (the roof of your mouth). If your baby has a cleft, this fusion failed to happen when he or she was developing. Why does fusion of the palate fail to happen? In most cases, we simply don't know why lip and palate development go wrong. About 1 in 600 babies has a cleft lip or cleft palate. Race and gender play a small role. Clefts are most common in Asians. They are less common in whites and least common in blacks. Girls are more often affected than boys. In some families, clefts appear in several family members, so heredity is important. Sometimes substances in the environment, called teratogens, may be associated with clefts. But most babies with clefts have no known relatives with clefts and no known exposure to teratogens. A few babies with clefts also have other abnormalities. Your baby's doctor will look for these other abnormalities and tell you what he or she finds. Did we do anything wrong?

90. A To Z Encyclopedia Topic: Cleft Lip / Cleft Palate cleft lip and/or palate are caused by multiple genes inherited from both parents,as well as environmental factors that scientists do not yet fully understand. http://web1.tch.harvard.edu/cfapps/A2ZtopicDisplay.cfm?Topic=Cleft Lip / Cleft P

91. Cleft Lip/Cleft Palate - Lucile Packard Children's Hospital Craniofacial Anomalies. cleft lip/cleft palate What are cleft lip and cleft palate?cleft lip and cleft palate are birth abnormalities of the mouth and lip. http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/craniofacial/cleft.html

Craniofacial Anomalies Ear, Nose, and Throat (ENT) Oral and Maxillofacial Surgery Plastic Surgery Clinic ... Dental and Oral Health Craniofacial Anomalies Cleft Lip/Cleft Palate What are cleft lip and cleft palate? Cleft lip and cleft palate are birth abnormalities of the mouth and lip. These abnormalities affect about one in every 700 births and are more common among Asians and certain groups of American Indians than among Caucasians. They occur less frequently among African-Americans. Cleft lip and cleft palate occur early in pregnancy when the sides of the lip and the roof of the mouth do not fuse together as they should. A child can have cleft lip, cleft palate, or both. Cleft lip and cleft palate together are more common in boys. It is also important to know that most babies born with a cleft are otherwise healthy with no other birth abnormalities. cleft palate Cleft palate occurs when the roof of the mouth does not completely close, leaving an opening that can extend into the nasal cavity. The cleft may involve either side of the palate. It can extend from the front of the mouth (hard palate) to the throat (soft palate). Often the cleft will also include the lip. Cleft palate is not as noticeable as cleft lip because it is inside the mouth. It may be the only abnormality in the child, or it may be associated with cleft lip or other syndromes. In many cases, other family members have also had a cleft palate at birth. cleft lip Cleft lip is an abnormality in which the lip does not completely form during fetal development. The degree of the cleft lip can vary greatly, from mild (notching of the lip) to severe (large opening from the lip up through the nose). As a parent, it may be stressful to adjust to the obvious abnormality of the face, as it can be very noticeable.

92. Cleft Lip/Cleft Palate - Lucile Packard Children's Hospital Dental and Oral Health. cleft lip/cleft palate What are cleft lip andcleft palate? cleft What causes cleft lip and cleft palate? The http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/dental/cleft.html

Craniofacial Anomalies Ear, Nose, and Throat (ENT) Oral and Maxillofacial Surgery Oral and Maxillofacial Surgeons ... Dental and Oral Health Dental and Oral Health Cleft Lip/Cleft Palate What are cleft lip and cleft palate? Cleft lip and cleft palate are birth abnormalities of the mouth and lip. These abnormalities affect about one in every 700 births and are more common among Asians and certain groups of American Indians than among Caucasians. They occur less frequently among African-Americans. Cleft lip and cleft palate occur early in pregnancy when the sides of the lip and the roof of the mouth do not fuse together as they should. A child can have cleft lip, cleft palate, or both. Cleft lip and cleft palate together are more common in boys. It is also important to know that most babies born with a cleft are otherwise healthy with no other birth abnormalities. cleft palate Cleft palate occurs when the roof of the mouth does not completely close, leaving an opening that can extend into the nasal cavity. The cleft may involve either side of the palate. It can extend from the front of the mouth (hard palate) to the throat (soft palate). Often the cleft will also include the lip. Cleft palate is not as noticeable as cleft lip because it is inside the mouth. It may be the only abnormality in the child, or it may be associated with cleft lip or other syndromes. In many cases, other family members have also had a cleft palate at birth.

93. Otolaryngology Cleft Lip/Cleft Palate- Methodist Health Care System, Houston, Te cleft lip and cleft palate What are cleft lip and cleft palate? cleft lip and cleftpalate are congenital birth defects that affect one in every 800 babies. http://www.methodisthealth.com/Oto/cleft.htm

TMH Otolaryngology/Head and Neck Surgery Service Home Audiology/Hearing Service ... Throat Facts Facial Plastic Surgery Nasal Surgery Nose Reshaping Cleft Lip and Cleft Palate Smell and ... Resources Recognized by U.S. News and World Report as one of the country's top hospitals for otolaryngology/head and neck surgery service. Cleft Lip and Cleft Palate What are cleft lip and cleft palate? Cleft lip and cleft palate are congenital birth defects that affect one in every 800 babies. The defect occurs in early pregnancy, when the left and right sides of the lip and roof of the mouth normally fuse together. Cleft lip is a separation in the upper lip. Cleft palate is a separation in the roof of the mouth. The lip and palate (roof of the mouth) develop separately. A baby can have a cleft lip, cleft palate, or a combination of the two. What causes cleft defects? Treatment for cleft defects: Most cleft lips can be repaired within the first few months of life (usually when the baby is about 10 weeks old). A cleft palate is usually repaired later than cleft lips (usually when the baby is between nine and 18 months old). Timing of surgery will be determined by your physician(s) based on: extent of deformity tolerance of specific medications, procedures, or therapies

94. The Cleft Lip & Palate Web Site - CLAPA - Registered Charity 235237 Finchley Road London NW3 6LS England 020 7431 0033 To access CLAPA's website go to http//www.clapa.com. Site Last Modified January 2002 © CLAPA 2002. http://www.clapa.mcmail.com/

235-237 Finchley Road London NW3 6LS England To access CLAPA's web site go to: http://www.clapa.com Site Last Modified January 2002

95. Awesome Library - Special_Education Here Home Library Special Education cleft lip or palate cleft lip or palate. Providessuggestions related to caring for a child with cleft lip or palate. http://www.awesomelibrary.org/Library/Special_Education/Cleft_Lip_or_Palate/Clef

Awesome Talking Library Examples ... Keystone Family Protection Here: Home Library Special Education > Cleft Lip or Palate Cleft Lip or Palate Lists Cleft Lip or Palate Resources (Samizdat Express) Provides over a dozen sources of information. 8-00 Papers Hearing and Behavior in the Child with Cleft Palate (Samizdat Express - MacDonald) Provides research and suggestions related to caring for a child with hearing or behavior problems, along with cleft lip or palate. 8-00 Parent Support Groups - Forming (Samizdat Express) Provides suggestions for establishing a parent support group for cleft lip or palate. 8-00 Parents - A Guide for Caring for a Baby With Cleft Lip or Palate (Samizdat Express - Russell) Provides suggestions for caring for a baby with cleft lip or palate during the first year of life. 8-00 Parents - Caring for a Newborn With Cleft Lip or Palate (Samizdat Express) Provides suggestions for caring for a newborn with cleft lip or palate. 8-00 Speech and Language Considerations for the Child with Cleft Lip or Palate (Samizdat Express - Miller) Provides suggestions related to caring for a child with cleft lip or palate. 8-00 Surgery During the First Year for a Baby With Cleft Lip or Palate (Samizdat Express - Lewis) Describes what may be done during a baby's first year of life. 8-00

96. Cleft Palate / Cleft Lip Library C D. cleft palate / cleft lip. 942-2812 Fax 209 464-1497e-mail widesmiles@aol.com. See also cleft lip, cleft palate http://www.familyvillage.wisc.edu/lib_clft.htm

Cleft Palate / Cleft Lip Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search AltaVista for "Cleft Palate" "Cleft Lip" Who to Contact Wide Smiles P.O. Box 5153 Stockton, California, USA, 955205-0153 Fax: [209] 464-1497 e-mail: widesmiles@aol.com See also: Cleft Lip, Cleft Palate Wide Smiles provides information, inspiration, and support for persons affected by cleft lip and/or cleft palate. They have pamplets for new parents "How different is Anthony", and "Anthony Visits his Cleft Palate Team" , and are planing a parent-to-parent matching program in the near future. Wide Smiles publishes a quarterly newsletter, Wide Smiles . The newsletter is available at $20 for one year and $38 for two years, within the US, and, $24 for one year and $44 for two years, outside the US. (The subscription must be paid in U.S. funds only.) Additionally, Wide Smiles hosts a national conference; call for more information. Where to Go to Chat with Others Cleft-Talk To subscribe send a message to: Listproc@mother.com

97. Cleft Lip & Palate Team Approach to cleft lip palate. What is a cleft of lip or palate?The face forms, in the first few weeks after conception, from http://www.raft.ac.uk/plastics/cleft_lip.html

Your current level is: Main Page What is a Cleft of Lip or Palate? The face forms, in the first few weeks after conception, from several elements joining together: sometimes the process is not quite completed and the elements remain separate with a cleft between them, sometimes on one side (unilateral), sometimes on both sides (bilateral). The cleft may be complete or incomplete, and the problem can be picked up on a scan during the pregnancy. The palate (roof of the mouth) forms by the two shelves growing inward to separate the nasal space from the mouth. Sometimes this process is not quite completed and a cleft remains. This is not visible on a scan. The Team Although a cleft is not a serious deformity in terms of the baby's health it affects the face, the jaws and the palate, and may affect appearance, the teeth and the swallowing and speech mechanism: sometimes there are problems with hearing. A team of experts is therefore required to work together to provide best care for the child from birth until growth is finished at about 18 years. Therefore plastic surgeon, orthodontist, oral and maxillo-facial, and ear nose and throat surgeons work together with nurses, counsellors, anaesthetists and speech and language therapists. A geneticist may advise on the chances of any other child having the same problem. Health visitors and parent support groups are also important.

98. Cleft Lip If you're considering surgery to correct cleft lip or palate . . . Just as in cleftlip, cleft palate may appear on one or both sides of the upper mouth. http://www.face-doctor.com/cleft.htm

If you're considering surgery to correct cleft lip or palate . . . In the early weeks of development, long before a child is born, the right and left sides of the lip and the roof of the mouth normally grow together. Occasionally, however, in about one of every 800 babies, those sections don't quite meet. A child born with a separation in the upper lip is said to have a cleft lip. A similar birth defect in the roof of the mouth, or palate, is called a cleft palate. Since the lip and the palate develop separately, it is possible for a child to have a cleft lip, a cleft palate, or variations of both. If your child was born with either or both of these conditions, your doctor will probably recommend surgery to repair it. Medical professionals have made great advances in treating children with clefts and can do a lot to help your child lead a normal, healthy, happy life. This information will give you a basic understanding of the operation when it can help, how it's performed, and what results you can expect. It can't answer all of your questions, since a lot depends on you individual circumstances. Please be sure to ask your surgeon if there is anything you don't understand about the procedure. The importance of a team approach Children born with a cleft lip or palate may need the skills of several medical professionals to correct the problems associated with the cleft. In addition to needing plastic surgery to repair the opening, these children may have problems with their feeding and their teeth, their hearing, their speech, and their psychological development as they grow up.

99. Cleft Lip/Cleft Palate Bottle Feeding , Cincinnati Childrens Guidelines for bottle feeding your infant with cleft lip or cleft palate,provided by Childrens Hospital Medical Center of Cincinnati staff. http://www.cincinnatichildrens.org/Health_Topics/Your_Childs_Health/Newborn/Test

100. International Institute For Birth Defects Words are being changed on this site without our consent, so we have taken the website offline. Good luck to you and your families. (c) 19992002 http//www.cleft.net http://www.cleft.net/

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