1. Cystic Fibrosis Foundation... Adding Tomorrows Every Day Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those Category Health Conditions and Diseases Foundations...... , Highlights from the North American CF Conference Are Available. •, Aboutthe cystic fibrosis Foundation. •, News. •, Publications. •, Special People. http://www.cff.org/

Cystic Fibrosis Foundation Therapeutics Awards $1.5 million to Inologic for the Preclinical Development of INO-4995 CF Foundation Launches National Volunteer Leadership Initiative Highlights from the North American CF Conference Are Available About the Cystic Fibrosis Foundation Cystic Fibrosis Foundation Therapeutics Awards $1.5 million to Inologic for the Preclinical Development of INO-4995 CF Foundation Launches National Volunteer Leadership Initiative Highlights from the North American CF Conference Are Available About the Cystic Fibrosis Foundation ... Special Event Prizes

2. Cystic Fibrosis Trust: Home in the cystic fibrosis community. Living with CF has practical information for families and gives advice about nutrition http://www.cftrust.org.uk/

Justgiving.com Now you can create your own sponsorship webpage to raise funds for the Cystic Fibrosis Trust. Cystic Fibrosis Trust Helpline s ... on any aspect of Cystic Fibrosis This website is for everybody in the Cystic Fibrosis community Living with CF has practical information for families and gives advice about nutrition and physiotherapy. Fundraising contains information about how you can help us find a cure, either as an individual or as an organisation. Detailed, scientific information about CF can be found in Medical Research . Children, young people and adults can meet and have discussions in Meeting Point CF Trust tells you who we are and what we do. We are very, very sad that Alice has died but we know her music will live on - she is a tribute to all those with CF and was always an inspiration to her family and friends. Click here to nominate for the 2003 CF Trust Awards

3. Cystic Fibrosis Resources For Daily Living And Information A cystic fibrosis community for patients, families and caregivers offering news,messageboards, daily living, associations, cf centers, fund raisers, books and http://www.cysticfibrosis.com/

Welcome! Join our Internet community for cystic fibrosis patients, families and loved ones. CF is a genetic disorder that affects the respiratory, digestive and reproductive systems. The Cystic Fibrosis Foundation promotes "Great Strides" in your area. [click here] Welcome To TransplantBuddies.com. Sharing feelings and thoughts about the transplant process is what we are all about. Cysticfibrosis.com's Claims to Fame: YAHOO! rates us... #1 hot site on Yahoo!/Google Featured in the Washington Post March, 2003 General Health Tips: Medrise and Healthology: Focus on Children's Health Medrise and Healthology: Focus on Teen Health Medrise and Healthology: Focus on Diabetes MedlinePlus Cystic Fibrosis Health News ... Doctors and patients learning about CF test Information in a new brochure from the American College of Obstetricians and Gynecologists proves valuable as cystic fibrosis screening catches on. New Theory Proposed for Cystic Fibrosis Infections TAKING FLIGHT - INSPIRATIONAL STORIES OF LUNG TRANSPLANTATION by Joanne Schum ISBN 1-55369-684-0 http://www.lungsforlife.org

4. Cystic-L - Cystic Fibrosis Info & Support CysticL's popular e-mail list server and support page for CF patients, their friends, and families includes archives and discussion group. http://www.cystic-l.org/

What's New The CF Shop by Thunder-Bay Productions

5. Cystic Fibrosis Mutation Database It was initiated by the cystic fibrosis Genetic Analysis Consortium in 1989 to increase and facilitate communications http://www.genet.sickkids.on.ca/cftr

6. Cystic Fibrosis : Cystic Fibrosis Information cystic fibrosis Over 1 671 links! One of the most complete sites about CF available! Excellent for people with CF, parents, relatives, friends, and students. Some pages are really easy to read, others are very technical medical pages. cystic fibrosis. Be notified. when this. page changes http://personal.nbnet.nb.ca/normap/CF.htm

Cystic Fibrosis Be notified when this page changes it's private powered by ChangeDetection Hi! I made this page because I have CF. I am a 41 y.o. woman, have been married for 21 years, and am fortunate enough to have a beautiful, healthy 19 year old daughter without CF. I would like to educate and inform as many people as I can about CF. It is a genetic disease that affects approximately 3,000 people in Canada, and 30,000 in the US, plus many more throughout the world. It is a disease that affects the exogenous secreting glands of the body, and generates thickened secretions, therefore blocking certain normal functions of certain organs. The organs most affected are the lungs and pancreas, therefore affecting breathing and digestion. There is no cure as of yet, but we hope there soon will be. Research is ongoing, and great strides are being made! Whereas 30 years ago, not many people with CF lived past childhood, nowadays many can live into their 30's. Still too many are dying young though...sadly. Please support CF research! Join Cystic-L, the best e-mail discussion/support group on CF. This is for people with CF (pwcf), parents of children with CF, spouses of, children of, and friends of pwcf, and for anyone else just wanting to learn more about it, such as students, teachers, medical personnel, etc...if you have any questions that may not have been answered here on these pages, please join our group! I have been with them since August of 1996, and love it!

7. MEDLINEplus: Cystic Fibrosis Gene Therapy and cystic fibrosis (cystic fibrosis Foundation). New Theory Proposed for cystic fibrosis Infections http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html

Skip navigation Other health topics: A B C D ... List of All Topics Cystic Fibrosis Contents of this page: From the NIH General/Overviews Diagnosis/Symptoms Prevention/Screening ... Teenagers Search MEDLINE for recent research articles on Cystic Fibrosis You may also be interested in these MEDLINEplus related pages: Lung Transplantation Genetics/Birth Defects Lungs and Breathing From the National Institutes of Health Facts About Cystic Fibrosis (National Heart, Lung, and Blood Institute) General/Overviews Cystic Fibrosis (Patient Education Institute) - - requires Flash plug-in Also available in: Spanish JAMA Patient Page: Cystic Fibrosis (American Medical Association) What Is Cystic Fibrosis? (Mayo Foundation for Medical Education and Research) Clinical Trials ClinicalTrials.gov: Cystic Fibrosis (National Institutes of Health) Clinical Trials (Cystic Fibrosis Foundation) Commonly Asked Questions About Clinical Trials (Cystic Fibrosis Foundation) Diagnosis/Symptoms Sweat Testing Procedure and Commonly Asked Questions (Cystic Fibrosis Foundation) Trypsinogen Test (American Association for Clinical Chemistry) Disease Management Home Oxygen Therapy (American Association for Respiratory Care) Prevention/Screening Cystic Fibrosis Testing: The Decision is Yours (American College of Obstetricians and Gynecologists) Cystic Fibrosis Testing: What Happens If Both My Partner and I are Carriers?

8. Cystic Fibrosis Foundation ... Adding Tomorrows Every Day What Is CF cystic fibrosis is a genetic disease affecting approximately30,000 children and adults in the United States. CF causes http://www.cff.org/about_cf/

What is CF Progress in CF Research Gene Therapy and CF Patient and Family Education ... Special Event Prizes What Is CF Cystic fibrosis is a genetic disease affecting approximately 30,000 children and adults in the United States. CF causes the body to produce an abnormally thick, sticky mucus, due to the faulty transport of sodium and chloride (salt) within cells lining organs such as the lungs and pancreas, to their outer surfaces. The thick CF mucus also obstructs the pancreas, preventing enzymes from reaching the intestines to help break down and digest food. Specialized treatments are available to address these problems at CF Foundation-supported care centers across the country. CF has a variety of symptoms. The most common are: very salty-tasting skin; persistent coughing, wheezing or pneumonia; excessive appetite but poor weight gain; and bulky stools. The sweat test is the standard diagnostic test for cystic fibrosis. This simple and painless test measures the amount of salt in the sweat. A high salt level indicates that a person has CF. The treatment of CF depends upon the stage of the disease and which organs are involved. One means of treatment, chest physical therapy, requires vigorous percussion (by using cupped hands) on the back and chest to dislodge the thick mucus from the lungs. Antibiotics are also used to treat lung infections and are administered intravenously, via pills, and/or medicated vapors which are inhaled to open up clogged airways. When CF affects the digestive system, the body does not absorb enough nutrients. Therefore, people with CF may need to eat an enriched diet and take both replacement vitamins and enzymes.

9. Canadian Cystic Fibrosis Foundation Describes the disorder, lists the foundation's publications and research projects, and presents an events calendar. Join a discussion forum. http://www.ccff.ca/

10. Cystic Fibrosis Trust: Fundraising - Press Office Press Office Welcome to the media relations site for the cystic fibrosisTrust. This section gives you the latest news from the http://www.cftrust.org.uk/fundraising/press_office.htm

Press Office Welcome to the media relations site for the Cystic Fibrosis Trust. This section gives you the latest news from the Cystic Fibrosis Trust and the world of CF. Here you can also find up-to-date press information about the Trust and who to contact if you have a media enquiry. Last updated 13.03.03 CF Week "Inside Outside" Poster - AVAILABLE NOW! Please contact Hazel Briner on 020 8464 7211 to place your order. CF Week 2003 5-13th April - advance warning - Cinema Advert to be shown across the UK. For further details click here Employment opportunities at the BBC The BBC are so committed to reflecting the audience they serve, they provide the equipment or support you may need to do your job enabling you to contribute your talent where it's needed most. www.bbc.co.uk/working

11. Cystic Fibrosis Research, Inc. (CFRI) News about CF research. Site also has a newsletter available.Category Health Conditions and Diseases cystic fibrosis......Enter here http://www.cfri.org/

12. -+=CFRI=+- Cystic Fibrosis Research, Inc. http://www.cfri.org/home.htm

13. Canadian Cystic Fibrosis Foundation Support and resources. Located in Toronto, Ontario.Category Health Conditions and Diseases Foundations...... http://www.cysticfibrosis.ca/

14. Cystic Fibrosis Victoria Inc Current information on cystic fibrosis, cystic fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events cystic fibrosis Victoria. 80 Dodds Street Southbank VIC 3006 http://www.cfv.org.au/

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15. Canadian Cystic Fibrosis Foundation About cystic fibrosis About the foundation CF research clinical care Ourpublications getting involved Resources. Information designed for you. http://www.cysticfibrosis.ca/home.asp

Information designed for you Persons with CF Media Cruising for a Cure Lottery Targeting the Basic Defect in CF: RFA - New Research Program ... Toshiba "Breath of Life®" Celebrity Ski Challenge

16. Genetic Testing For Cystic Fibrosis (CBM 97-2) Current Bibliographies in Medicine 972. Genetic Testing for cystic fibrosis. Bibliographycystic fibrosis and Genetics. Molecular Biology of cystic fibrosis. http://www.nlm.nih.gov/pubs/cbm/cystic_fibrosis.html

Current Bibliographies in Medicine 97-2 Genetic Testing for Cystic Fibrosis January 1989 through February 1997 1224 Citations Prepared by Cynthia B. Love, M.L.S., National Library of Medicine Elizabeth J. Thomson, M.S., R.N., National Human Genome Research Institute 1997 March U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES Public Health Service National Institutes of Health National Library of Medicine Reference Section 8600 Rockville Pike Bethesda, Maryland 20894 Series Note Table of Contents for Genetic testing for cystic fibrosis Introduction to ... Sample Citations Series Note Each bibliography in the Current Bibliographies in Medicine (CBM) series covers a distinct subject area of biomedicine and is intended to fulfill a current awareness function. Citations are usually derived from searching a variety of online databases. NLM databases tm , POPLINE tm Other publications in the Current Bibliographies in Medicine series are available at no cost to anyone with Internet access through the Library's World Wide Web site at http://www.nlm.nih.gov/pubs/resources.html

17. Cystic Fibrosis cystic fibrosis. © SCIENTIFIC AMERICAN, December, 1995. The genetic D.Vade. McGrawHill, 1994. Web Resources on cystic fibrosis. http://www.people.virginia.edu/~rjh9u/cfsciam.html

Cystic Fibrosis December, 1995 The genetic defects underlying this lethal disease have now been shown to eliminate or hobble a critical channel through which a constituent of salt enters and leaves cells by Michael J. Welsh and Alan E. Smith Notice: Scientific American According to Linda Hertz , permissions and rights manager at Scientific American , the magazine cannot grant electronic rights for copies of their articles. However, it is possible to subscribe to the digital version of Scientific American which has monthly issues from 1993 forward. It is not clear if all articles in each issue are available in digital form. And, there is a subscription cost. In any case, the Cystic Fibrosis article cited above will not be available from the Human Biology web site. Maintained by Robert J. Huskey last updated February 12, 2003.

18. Cystic Fibrosis Molecular Biology The most frequently occurring mutation, deltaF508, is a single amino acid deletion in exon 10 which Category Health Conditions and Diseases cystic fibrosis......cystic fibrosis gene to product. Graphic taken (in part) from Human GeneticsConcepts and Applications by Ricki Lewis (1994), Wm. C. Brown. http://www.people.virginia.edu/~rjh9u/cfmap.html

Cystic fibrosis: gene to product Graphic taken (in part) from Human Genetics: Concepts and Applications by Ricki Lewis (1994), Wm. C. Brown The most frequently occurring mutation, delta-F508, is a single amino acid deletion in exon 10 which codes for a portion of the first nucleotide binding function (NBF-1) domain of the cystic fibrosis transmembrane conductance regulation protein. Although the mutant protein is produced since it is only missing one amino acid, it seems to be identified as non-functional and does not undergo the usual final modifications within the endoplasmic reticulum. Instead, the mutant protein is degraded. A list of other CF mutations is available Links to information on CF This document maintained by Robert J. Huskey Last updated on August 24, 1995.

19. Cystic Fibrosis 101 - Over 250 Links Related To CF 250 links all related to cystic fibrosis and classified under the following subjectsGeneral Information on cystic fibrosis; Associations; Books; Genetic http://personal.nbnet.nb.ca/normap/CF101/home.htm

This page has been changed. For CF information, please go to: http://www3.nbnet.nb.ca/normap/CF.htm (Click on link above) Don't forget to update your Favorites, Bookmarks, and Web Page Links!

20. Cystic Fibrosis Worldwide..People Whose Lives Are Affected By International Association of cystic fibrosis Adults web site and International cystic fibrosis Mucoviscid Category Health Conditions and Diseases......This site contains information relating to cystic fibrosis with a worldwidemandate. VOLUNTEERS NEEDED! We are seeking Adults with cystic fibrosis. http://www.iacfa.org/

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