41. NHLBI, Facts About Cystic Fibrosis Facts About cystic fibrosis Table of Contents. What Is cystic fibrosis?How Common Is CF? For More Information. WHAT IS cystic fibrosis? http://www.nhlbi.nih.gov/health/public/lung/other/cf.htm

Facts About Cystic Fibrosis Table of Contents What Is Cystic Fibrosis? How Common Is CF? What Are the Signs and Symptoms of CF? When Should You Suspect That a Child May Have CF? ... For More Information WHAT IS CYSTIC FIBROSIS? Cystic fibrosis (CF) is a chronic, progressive, and frequently fatal genetic (inherited) disease of the body's mucus glands. CF primarily affects the respiratory and digestive systems in children and young adults. The sweat glands and the reproductive system are also usually involved. On the average, individuals with CF have a lifespan of approximately 30 years. CF-like disease has been known for over two centuries. The name, cystic fibrosis of the pancreas, was first applied to the disease in 1938. Back to Table of Contents HOW COMMON IS CF? According to the data collected by the Cystic Fibrosis Foundation, there are about 30,000 Americans, 3,000 Canadians, and 20,000 Europeans with CF. The disease occurs mostly in whites whose ancestors came from northern Europe, although it affects all races and ethnic groups. Accordingly, it is less common in African Americans, Native Americans, and Asian Americans. Approximately 2,500 babies are born with CF each year in the United States. Also, about 1 in every 20 Americans is an unaffected carrier of an abnormal "CF gene." These 12 million people are usually unaware that they are carriers. Back to Table of Contents WHAT ARE THE SIGNS AND SYMPTOMS OF CF?

42. NHLBI Home Page: Jump To New Location Category Health Conditions and Diseases cystic fibrosis http://www.nhlbi.nih.gov/nhlbi/lung/other/gp/cystfib.htm

The NHLBI Web Site has moved. Please reset your bookmarks. This page will take you to the new location in a few seconds. If you wish to go now, select the first link below. To go directly to a certain Web page, select either the site index or the search engine link. The new home page. The new site index. The new search engine. Note to users of screen readers and other assistive technologies: Please report any accessibility problems here.

43. Cochrane Cystic Fibrosis & Genetic Disorders Review GroupMain Page cystic fibrosis Genetic Disorders Group. cystic fibrosis . Phenylketonuria. Sickle Cell . Haemophilia . Other Genetic Disorders. http://www.liv.ac.uk/cfgd/

Cystic Fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders About the Review Group About the Cochrane Collaboration Reviewer Resources Links ... Contact the Group Feedback: cfgd@liv.ac.uk An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders. Welcome : Click on the Cochrane Collaboration logo to enter our site Last reviewed 17 June 2002.

44. Ask NOAH About: Cystic Fibrosis Español. Ask NOAH About cystic fibrosis. What is cystic fibrosis? Careand Treatment. Trials. Living with cystic fibrosis, Information Resources. http://www.noah-health.org/english/illness/respiratory/cystic.html

Ask NOAH About: Cystic Fibrosis What is Cystic Fibrosis? Care and Treatment The Basics Diagnosis and Genetic Testing Information for Parents, Teachers, and Children ... To Genetic Diseases Main Page What is Cystic Fibrosis? The Basics About CF - Canadian Cystic Fibrosis Foundation (also in French Check Your Cystic Fibrosis I.Q. - American Association of Respiratory Care Cystic Fibrosis - American Association of Respiratory Care Cystic Fibrosis - New South Wales Genetics Program, Australia ... Cystic Fibrosis - MEDLINEplus (also in Spanish ) (Interactive Flash Presentation) Cystic Fibrosis - Methodist Health Care System, Houston TX (also in Spanish Cystic Fibrosis - Your Genes, Your Health (Interactive Flash Presentation) Facts About Cystic Fibrosis - National Heart Blood Lung Institute Facts About Cystic Fibrosis (PDF) - National Heart Blood Lung Institute PDF File of 6 Page) What is CF? - Cystic Fibrosis Foundation You Were Asking - Canadian Cystic Fibrosis Foundation PDF File of 6 Page) (also in French Diagnosis and Genetic Testing Carrier Testing for Cystic Fibrosis - Canadian Cystic Fibrosis Foundation PDF File of 12 Page) (also in French Causes - Cystic Fibrosis Trust The CF Gene - Cystic Fibrosis Trust Cystic Fibrosis (CF) Carrier Screening - March of Dimes ... PDF File of 2 Page) Cystic Fibrosis: Confidentiality and Genetic Information - Canadian Cystic Fibrosis Foundation PDF File of 7 Page) (also in French Cystic Fibrosis Testing: The Decision is Yours - American College of Obstetricians and Gynecologists Cystic Fibrosis Testing: What Happens If Both My Partner and I Are Carriers? - American College of Obstetricians and Gynecologists

45. Cystic Fibrosis In Beweging: Welkom! De CFiB is opgericht om de bekendheid onder het Nederlandse publiek te vergroten en voor onderzoek.Category World Nederlands Gezondheid Aandoeningen en Ziekten......De Stichting cystic fibrosis in Beweging (CFIB) is opgericht om de bekendheidvan de ziekte cystic fibrosis onder het Nederlandse publiek te vergroten en http://www.cfib.nl/

KIES HIER WAAR U HEEN WILT! Home Cystic Fibrosis Cystic Fibrosis in Beweging Geld waarvoor? Evenementen CFiB in de media Ontmoeting met Donateur? Contact met CFiB Actie resultaten Bankrekeningnummer Cystic Fibrosis is de meest voorkomende erfelijke aandoening in Nederland met een potentieel dodelijke afloop op jonge leeftijd. In Nederland lijden 1000 tot 1200 mensen aan de ziekte. Ondanks de sterke vooruitgang in de zorg overlijdt ruim de helft van de patiënten vóór het dertigste levensjaar. De Stichting Cystic Fibrosis in Beweging (CFiB) is opgericht om de bekendheid van de ziekte Cystic Fibrosis onder het Nederlandse publiek te vergroten en financiële middelen te verwerven voor medisch wetenschappelijk onderzoek en projecten van de Nederlandse Cystic Fibrosis Stichting (NCFS) ten behoeve van de kwaliteit van leven van patiënten met Cystic Fibrosis. Op deze website vindt U meer informatie over Cystic Fibrosis, de stichting CFiB en de NCFS, over de projecten die met de opbrengsten van de CFiB gefinancierd zullen kunnen gaan worden. CFiB

46. Cystic Fibrosis - Doctor's Guide To The Internet The latest medical news and information for patients or friends/parents of patientsdiagnosed with cystic fibrosis and cystic fibrosisrelated disorders. http://www.pslgroup.com/CF.HTM

47. If You Ask James About Cystic Fibrosis If You Ask James About cystic fibrosis. ASK JAMES MENU). http://azcowboy88.tripod.com/

If You Ask James About Cystic Fibrosis preload("twe44152A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44152B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44153A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44153B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44154A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44154B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44155A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); preload("twe44155B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); ... preload("twe441515A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); preload("twe441515B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); Cystic Fibrosis,CF links,diagnosis of cystic fibrosis,CF treatments,CF medications,cystic fibrosis foundations,cystic fibrosis awareness,complications of CF,symptoms of cystic fibrosis,causes of cystic fibrosis,Pseudomonas,Burkholderia cepacia,Pseudomonas aeruginosa,respiratory treatment,chest physiotherapy,cpt,digestive enzymes,mal absorption,chronic lung infections,antibiotics,James,James Binegar

48. If You Ask James About Cystic Fibrosis cystic fibrosis, CF links, cystic fibrosis information including personal experiencewith CF, treatments, medications, complications, coping, support groups http://azcowboy88.tripod.com/askjames/

If You Ask James About Cystic Fibrosis preload("twe44152A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44152B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44153A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44153B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44154A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44154B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44155A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); preload("twe44155B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); ... preload("twe441515A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); preload("twe441515B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); Cystic Fibrosis,CF links,diagnosis of cystic fibrosis,CF treatments,CF medications,cystic fibrosis foundations,cystic fibrosis awareness,complications of CF,symptoms of cystic fibrosis,causes of cystic fibrosis,Pseudomonas,Burkholderia cepacia,Pseudomonas aeruginosa,respiratory treatment,chest physiotherapy,cpt,digestive enzymes,mal absorption,chronic lung infections,antibiotics,James,James Binegar

49. Cystic Fibrosis cystic fibrosis Links and InformationCategory Health Conditions and Diseases cystic fibrosis......cystic fibrosis. Our fifteen year old son, James, has cystic fibrosis CF Thispage is devoted to the understanding and cure of this debilitating disease. http://www.goodgulf.com/cystic.html

Cystic Fibrosis Our fifteen year old son, James, has Cystic Fibrosis - CF This page is devoted to the understanding and cure of this debilitating disease. Cystic Fibrosis Foundation Canadian CF Foundation Cystic Fibrosis Victoria - Australia Cystic Fibrosis Resource Centre ... sci.med.diseases.cysticfibrosis newsgroup - not very active, how about some action here? Return to Home Page Questions, suggestions, links ? e-mail us Dudley Leaphart Billings, MT

50. CYSTIC FIBROSIS FOR KIDS This site is for children with cystic fibrosis designed by a man from the Netherlands with CF.Category Health Conditions and Diseases Personal Pages......This site is made by acenl webdesign the netherlands for children with cysticfibrosis. - - - Welcome to cystic fibrosis for KIDS !!! ). http://members.tripod.com/~jtatton/

Welcome to Cystic Fibrosis for KIDS !!! :) I am your host my name is William. Just like you I have Cystic Fibrosis. I know that much of Cystic Fibrosis that all the people I know call me Dr.Bob . On the next pages I'm going to tell you everything I know about Cystic Fibrosis. The good thing is , I'm not going to give you shots, IV's or anything so come along and follow me. Dr.Bob has many, many friends on the internet, and 3 nurses that help me with everything I don't know (even a doctor don't know everything). I'm William and I live in The Netherlands. That country lies between Germany and Belgium, look on a world map for that . I'm a boy of 38 years old and have 1 brother with Cystic Fibrosis and 1 sister without it. Sometimes I really wish I didn't have Cystic Fibrosis and I bet you feel the same. Still I know it will never go away, no matter how hard I wish. WELCOME TO YOUR OWN WEBSITE. Site updated 19-12-2002 IF YOU USE THIS WEB SITE, YOU AGREE TO GIVE UP ANY LEGAL RIGHT YOU MIGHT HAVE TO SUE THE OWNER AND OTHER USERS FOR PERSONAL DAMAGES THAT MAY OCCUR THROUGH ITS USE. THE OWNER PROVIDES THIS WEB SITE AS A FREE SERVICE, AND ASSUMES NO LIABILITY FROM ITS USE."

51. Cystic Fibrosis Nurses: The International Specialist Group Organization whose goals include setting and promoting high standards of nursing practice in the treatmen Category Health Conditions and Diseases......UK CF Nurse Specialist Group's Consensus Standards for the Nursing managementof CF. THE INTERNATIONAL NURSE SPECIALIST GROUP cystic fibrosis. http://www.cfnurses.net/

UK CF Nurse Specialist Group's Consensus Standards for the Nursing management of CF T H E I N T E R N A T I O N A L N U R S E S P E C I A L I S T G R O U P - C Y S T I C F I B R O S I S c/o Susan Madge, Department of Cystic Fibrosis, Royal Brompton Hospital, Sydney Street, London SW3 6NP, UK. Tel +44 207 352 8121 ext 4053, bleep 6013 email: S.Madge@rbh.nthames.nhs.uk Comments, suggestions, ideas ? Send us an email Last update: November 30, 2002 Webmaster: Filippo Festini, RN sw="none";sd="none";ref=""+escape(document.referrer);

52. Cysitic Fibrosis - Pulmonology Information on cystic fibrosis.Category Health Conditions and Diseases cystic fibrosis......cystic fibrosis (CF) is the most common fatal, inherited disease inthe US. CF causes the body to produce abnormally thick and sticky http://www.pulmonologychannel.com/cf/

Home Search SiteMap Ask the Dr. ... Medical Store advertisement CYSTIC FIBROSIS Overview Symptoms Diagnosis Treatment-General ... Additional Info. CONDITIONS ARDS Asthma Bronchitis Chronic Cough ... Solitary Pulmonary Nodule Tuberculosis RESOURCES Anatomy Clinical Trials Links Videos ABOUT US Healthcommunities.com Pressroom Testimonials Cystic fibrosis (CF) is the most common fatal, inherited disease in the United States (see Statistics ). CF causes the body to produce abnormally thick and sticky mucus in several different parts of the body, most prominently in the lungs and other parts of the respiratory system. It also affects the pancreas, leading to serious digestive problems. CF alters the mucus secretions of the body’s epithelial cells. Epithelial cells make up the outside layer of tissue that lines every open surface of the body, inside and out, including the various tunnels and cavities in the lungs, urinary tract, liver, and reproductive tract. In patients with CF, the mucus that the epithelial cells secrete is much thicker and stickier than normal. It clogs the airways of the lungs, blocking the flow of air and making the tissue vulnerable to continual lung infections. It blocks the flow of pancreatic juices in the pancreas, impeding digestion and the absorption of fats and fat-soluble vitamins, leading to nutrition deficiencies and intestinal complications. CF is a genetic disease resulting from the inheritance of a defective autosomal recessive gene (see Genetics of Cystic Fibrosis ). A recessive gene is one that is expressed only when both copies of the gene are present, so a person with CF must have inherited the gene that causes CF from both parents. A person who has only one copy of the gene is known as a "CF carrier."

53. Cystic Fibrosis Test what you know about cystic fibrosis.Category Health Conditions and Diseases cystic fibrosis......The following statements test what you know about cystic fibrosis. Fill button.True, False, 1. cystic fibrosis (CF) is a hereditary disease. http://www.aarc.org/patient_education/iq_tests/cf/cf_form.html

The following statements test what you know about cystic fibrosis. Fill out the test by choosing true or false, then press the submit button. True False Cystic fibrosis (CF) is a hereditary disease. CF is more common in white children than in children of other races. As many as 30% of Americans of European descent carry the gene which is responsible for CF. The lungs are the only organs affected by CF. A person with CF may have difficulty keeping off excess weight. Treatment of CF has not changed much in the past twenty-five years. The gene responsible for CF has been identified. There is no way to tell if a newborn will get CF. Gene therapy is a standardized treatment for CF. People with CF require treatment only when they have an attack. Reviewed: August, 2002.

54. Cochrane Cystic Fibrosis & Genetic Disorders Review Group At The Dept Of Child H Cochrane cystic fibrosis Genetic Disorders Review Group. cystic fibrosis. Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders. http://web.bham.ac.uk/walterss/CFcochrane1.htm

Genetic Disorders Review Group Cystic Fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders Enquiries CFGD@liv.ac.uk Welcome Our webpages have been relocated and updated at a new location. You should be automatically diverted to our new webpages in a few seconds. I this does not happen, please click on the link below. http://www.liv.ac.uk/CFGD Please update your bookmarks/favorites Last reviewed 01/10/2001.

55. Pulmonary Medicine And Cystic Fibrosis - Lucile Packard Children's Hospital Pulmonary Medicine and cystic fibrosis. cystic fibrosis The cystic fibrosisClinic is held Tuesday and Friday from 830am to 400pm and offers http://www.lpch.org/clinicalSpecialtiesServices/ClinicalSpecialties/PulmonaryMed

Day Hospital Pulmonary Function Laboratory Pulmonologists and Cystic Fibrosis Specialists Respiratory Disorders Pulmonary Medicine and Cystic Fibrosis Location: Lucile Packard Children's Hospital 725 Welch Road Palo Alto, CA 94304 Click here for map Clinic/Suite: Clinic E Mailing Address: 701 Welch Road, Suite 3328 Palo Alto, CA 94304 For Appointments: Contact Phone: Fax Number: Days and Hours: Monday-Friday 8:30 am - 4:00 pm Pulmonary Medicine The Pulmonary Medicine Clinic is held Monday and Wednesday from 8:30am to 4:00pm and offers: Comprehensive multidisciplinary approach including availability of outpatient fiberoptic bronchoscopy, 24-hour esophageal pH monitoring,cardiopulmonary exercise testing, and bronchoprovocation testing. Services include complete pulmonary function laboratory and sleep study laboratory designed for the particular needs of children. Clinic staff assess problems of sleep apnea, gastroesophageal reflux-related lung disease, and respiratory complications of neurologic and neuromuscular disorders. Cystic Fibrosis The Cystic Fibrosis Clinic is held Tuesday and Friday from 8:30am to 4:00pm and offers: Consultation and management for individuals for all ages.

56. Pediatric Pulmonary Care And Cystic Fibrosis - Lucile Packard Children's Hospita Pulmonologists at Lucile Packard Children's Hospital California, treat pulmonaryfibrosis, cystic fibrosis (CF), pulmonary hypertension, embolism and adema http://www.lpch.org/clinicalSpecialtiesServices/COE/PulmonaryCareCF/overview.htm

Overview Our Team Research and Clinical Trials Resources ... Respiratory Disorders Pulmonary Care and Cystic Fibrosis Pulmonary Care and Cystic Fibrosis Center Mailing Address: 701 Welch Road, Suite 3328 Palo Alto CA 94304-5786 General Information Phone: Days and Hours: Monday-Friday 8:30 am - 4:00 pm The Pulmonary Care and Cystic Fibrosis Center at Lucile Packard Children's Hospital, a leading California Children's Hospital, deals with children's breathing in all its aspects: chronic sinus problems or recurring colds allergies control of breathing sleep and wakefulness cystic fibrosis obstruction of airflow from common diseases such as croup, bronchiolitis, and asthma bronchopulmonary dysplasia problems breathing due to muscular disorders accidents such as inhalation of foreign bodies problems associated with other diseases such as congenital heart disease, paralysis, muscular dystrophy Our team  works closely with many other specialists at Lucile Packard Children’s Hospital, including gastroenterologists endocrinologists cardiologists neonatologists and orthopaedic surgeons . We also work closely with the lung transplant team at Stanford Hospital and Clinics. We use a team approach to care for children with chronic diseases, including:

57. Cystic Fibrosis Article detailing therapeutic options for co-management.Category Health Conditions and Diseases cystic fibrosis......cystic fibrosis Therapeutic Options For Comanagement. Patrick L. Bufi, ND. Abstract. References.1. Fitzsimmons S. The changing epidemiology of cystic fibrosis. http://www.thorne.com/altmedrev/fulltext/cystic.html

58. SixtyFiveRoses Cystic Fibrosis Resource Center Provides support, information and answers about this disease. CF news, events, links and chat rooms. http://www.65roses.com

The 65 Roses Story For 34 years, sixty-five roses has been used by children of all ages to describe their disease. But making it easier to say, does not make CF any easier to live with. The 65 Roses story has captured the hearts and emotions of all who have heard it. E-mail Us: CureCF@SixtyFiveRoses.com

59. Center For Gene Therapy Of Cystic Fibrosis And Other Genetic Diseases Gene Therapy Research Center http://genetherapy.genetics.uiowa.edu/

60. Cystic Fibrosis Foundation ... Adding Tomorrows Every Day Works to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Site includes local events, volunteer opportunities, contact information, and links to the national foundation. http://www.cff.org/alabama.htm

About the Cystic Fibrosis Foundation News Publications ... Special Event Prizes Alabama Chapter News and Information View this Chapter's News and Information GREAT STRIDES Walks View this chapter's GREAT STRIDES walks Upcoming Volunteer Opportunities Volunteer With so many events each year, the Alabama Chapter relies heavily on the time and talent of our dedicated volunteers in fund-raising efforts. Th... (more) Calendar Of Events view all past events October, 2003 Celebrity Waiter Gala 2003 For more information, call the Alabama Chapter at (205) 870-8565 or send an e-mail to alabama@cff.org. ... (more) November, 2003 Birmingham Golf Tournament 2003 Old Overton Club7251 Overton ClubBirmingham For more information, call the Alabama Chapter at (205) 870-8565 or send an e-mail to alabama@cff.org. ... (more) TBD and Ongoing Events TBD Huntsville Golf Tournament 2003 More details to follow. For more information, call the Alabama Chapter at (205) 870-8565 or send an e-mail to alabama@cff.org. ... (more) TBD Alabama Gulf Coast Fishing Tournament 2003 Details to follow. For more information, call the Alabama Chapter at (205) 870-8565 or send an e-mail to alabama@cff.org. ... (more) Sponsors We need your help!

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