1. Down Syndrome Title Page A listing of organizations worldwide, support groups, and toy catalogs for children of special needs.Category Health Conditions and Diseases down syndrome...... down syndrome Health Issues*. by Len Leshin, MD, FAAP. Medical essayson down syndrome and issues common to children with Ds. http://www.nas.com/downsyn/

The Down Syndrome WWW Page was established in February of 1995 and has been (and still is) compiled from the contributions of members of the Down Syndrome Listserv and others. Organizations Worldwide About this page Family Essays FAQ ... The Foreign Site O THER I MPORTANT L INKS Down Syndrome: Health Issues by Len Leshin, M.D., F.A.A.P. Medical essays on Down Syndrome and issues common to children with Ds. Extensive listing of other Down Syndrome Websites Recommended Books Family Village Family Village A global community that integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, their families, and those that provide them services and supports. Disability Solutions Disability Solutions The free publication of The Enoch-Gelbard Foundation. It's mission is: "To provide in a widely accessible manner, free of charge information that is useful, sensitive, and current to everyone concerned with developmental disabilities: parents, families, self-advocates, and professionals." Back issues and current issues are available in Adobe Acrobat format.

2. National Association For Down Syndrome Forum for sharing experiences and information about down syndrome. Find a familychat area, bulletin board and online DS magazine. http://www.nads.org/

ational Association for Down Syndrome (NADS), a not-for-profit organization, was founded in Chicago in 1961 by parents of children with Down syndrome who felt a need to create a better environment and bring about understanding and acceptance of people with Down syndrome. Website development by The Sefton Group

3. National Down Syndrome Society: Welcome The National down syndrome Society is a not-for-profit organization that has become the largest non-gover Category Reference Education Special Education Organizations...... 0. Return to the top of this page. Privacy Policy Contact Us Search Help Terms ofUse ©19952003 National down syndrome Society, (800) 221-4602, www.ndss.org http://www.ndss.org/

WELCOME TO NDSS.ORG! To get more out of NDSS.org, please login or sign-up to be a registered user. Act now to protect IDEA Locate a support group near you Research Conference Information Find peers in our Communities ... NDSS Partners with MotherGolf Community Info for everyone who cares. Learn More... Professionals Community Learn More... Organizations Community For affiliates, parent support groups and other orgs. Learn More... You make NDSS work! Get involved by becoming a member, donating or volunteering for the society. Get information here. GO! Find great baby items, educational materials and more at the NDSS Store. Every purchase you make helps to support our work. GO! SEARCH NDSS Get Help Now Contact Us Search Help National Down Syndrome Society, (800) 221-4602, www.ndss.org

4. UPSIDE! Down Syndrome Society THE CANADIAN down syndrome SOCIETY. 811 14 Street N.W., Calgary, Alberta, Canada T2N 2A4 http://www.telebyte.com/upside/upside.html

Welcome to UPSIDE! - an informal society of individuals, parents, and friends involved with the world of Down Syndrome. Quick Jump Menu Child of the Month All our Kids Ramblings Newsletters ... Links to More Information Please sign our GuestBook UPSIDE! Child of the Month Kelsay Kelsay is a fun 3-year old who dances and sings; she loves dogs and horses, even riding our pony (with a little help). Newsletters Kitsap County's UPSIDE! Society Newsletter Volume 3, Issue 1 - Summer 1995 Holly Ridge Happenings (Bremerton, WA) January - February 1996 Seattle's Down Syndrome Community PowerLine Newsletter Volume 3, Issue 1 - Fall 1995 KIDS NEWS by Janet Porter (Bothell, WA) Volume 1, Issue 2 - Nov/Dec 1995 Inclusion HodgePodge by Pam Wilson Inclusion HodgePodge - April 1995 The Open Window by Pam Wilson The Open Window - September 1994 Ramblings The Upside! Ramblings are short, topical articles of interest. The section has expanded sufficiently to warrant its own page, which you are heartily invited to visit. Upcoming Events A schedule of activitites covering recurring meetings and singular conferences, seminars, and social events is maintained on the Upcoming Events page for your use.

5. Uno Mas Down Syndrome Online Supportive online group of parents friends of kids with down syndrome. Message Boards and Personal Stories. Hundreds of photos. http://www.unomas21.com/

Funny Stories Photo Album The Chatroom Message Board ... Site Map People with Down syndrome have "One More" #21 Chromosome! This site exists to celebrate the uniqueness of people with Down syndrome, and to offer support to new and expectant parents. Our goal is to help all families to share experience, advice and support. Above all else, we want you to have a good time while you are visiting our site. The activities listed below are the main attractions at Uno Mas: If you would like to contribute to the costs of running and development of this site, you can do it in increments of $1 Use this button to support Uno Mas! with a donation of one dollar or more. Your support is greatly appreciated! Team Uno Mas Login to Admin Page Uno Mas! Down Syndrome Online www.UnoMas21.com Click here to view our site sponsors Message from the Editor: February 22, 2003

6. Growth Charts For Children With Down Syndrome Charts included are for height, weight, and head circumferences. Printable. http://www.growthcharts.com

Growth Charts for Children with Down Syndrome by Greg Richards (background by Bridget, age 9) www.growthcharts.com Site Navigation Down Syndrome General Overview Photos of our girls Growth Charts for Children w/DS Head Circumference Growth Charts for Typical Children Clinical and Individual Growth Charts from the Center for Disease Control (CDC) website Frequently Asked Questions (coming soon) About the author About Down Syndrome Down syndrome is a genetic condition in which there are three 21st chromosomes instead of the usual two. Most people have 46 chromosomes per cell originating from the 23 chromosomes in the mother's egg and 23 in the father's sperm. Not all people with Down syndrome have the same chromosomal arrangement, however. Ninety-five percent of people with Down syndrome (trisomy 21) have 47 chromosomes per cell (they have an extra #21 chromosome). This common type of trisomy 21 is called non-disjunction Three to four percent of people with Down syndrome have Robertsonian Translocation , where the number of chromosomes is normal, but the extra chromosome 21 material is attached with chromosome 14. The remainder have a rare type of Down syndrome in which some of their cells have 46 chromosomes and some have 47 chromosomes. This is called

7. Down Syndrome: Health Issues - Medical Essays And Information A collection of medical essays and abstracts for parents.Category Health Conditions and Diseases down syndrome......Medical essays and information about down syndrome for parents and professionals,by Len Leshin, MD. Last Updated Mar 11, 2003, by Len Leshin, MD, FAAP. http://www.ds-health.com/

Last Updated: Mar 11, 2003 by Len Leshin, M.D., F.A.A.P. Search my website! Author's note: I'm a pediatrician and the father of Avi, 9 years old, and Nathan, 11 years old. (Photos!) Avi has Down Syndrome ("DS" for short) and has inspired me to write these essays about children with DS for other parents. I have put them here for general reading. You may E-mail me with any questions about these essays. I have also included some other pediatric items of interest for parents. More up-to-date photos of Avi here Been here before? Check out what's new! For students writing reports, I have put together this page on Down syndrome to help you. Dr. Libby Kumin, chair of the Speech Pathology Dept at Loyola University, is asking for help with her survey of speech intelligibility in Down syndrome! If you have a child with DS between 1 and 21 years of age, please complete her online survey at www.loyola.edu/speechpath/survey Kennedy Krieger Institute Down Syndrome Clinic Research Project seeks children with DS and heart defects for a new study. Read their announcement here.

8. Canadian Down Syndrome Society A support group for families with children with down syndrome. http://www.cdss.ca/

Enter Site THE CANADIAN DOWN SYNDROME SOCIETY 811 - 14 Street N.W., Calgary, Alberta, Canada T2N 2A4 Phone: (403) 270-8500 Fax: (403) 270-8291 Webmaster

9. Welcome! Riverbend Down Syndrome Parent Support Group Resources and abstracts for parents and professionals on communication, early intervention, therapies, Category Health Conditions and Diseases down syndrome......Riverbend down syndrome Parent Support Group. Louis, provides support and informationto parents of children with down syndrome in Southwestern Illinois. http://www.altonweb.com/cs/downsyndrome/

Riverbend Down Syndrome Parent Support Group The non-profit Riverbend Down Syndrome Parent Support Group, a support group of the Down Syndrome Association of Greater St. Louis, provides support and information to parents of children with Down syndrome in Southwestern Illinois . Our aim is to support each other and enrich the lives of our children so they may reach their fullest potential. Our group meets periodically to encourage and strengthen each other, by striving to increase our knowledge, understanding and hope about Down syndrome. We host guest speakers and share new information, ideas and advice to become better advocates to our children. The information provided on this web site [ http://www.altonweb.com/cs/downsyndrome/ ] is for personal and non-commercial use. Click here for a text based version of this web site. Your browser does not support JavaScript or it may be disabled, to enable: Navigator 3.0. Options menu, select Network Preferences, click Language tab, check Java and JavaScript boxes. Communicator 4.0 - 6.0. Edit menu, select Preferences, click Advanced, Enable Java and Enable JavaScript.

10. Down Syndrome Sites On The Internet A large listing of sites on the internet dealing with down syndrome, compiled by Len Leshin, MD.Category Health Conditions and Diseases down syndrome......A list of over 200 important sites on the internet dealing with down syndrome,compiled by Len Leshin, MD. Recommended down syndrome Sites on the Internet. http://www.ds-health.com/ds_sites.htm

Last Updated: Feb 20, 2003 Recommended Down Syndrome Sites on the Internet Compiled by Len Leshin, MD, FAAP If you do a web search for "Down syndrome" on any of the major search engines, you'll now get thousands of websites in return. When I first started this list, my intention was to make it as comprehensive as I could, and with only a few hundred sites, it used to be easier. With the rapid expansion of the internet over the last three years, however, that goal has become almost impossible. So here are the sites that I feel have the most to offer parents of children with Down syndrome ("DS" for short). If any of these links are incorrect or out of date, please let me know. (To quote Chris Gravell: "this is what happens when you go on leave for 3 weeks - all the links have changed when you get back.") Any omissions or errors are my responsibility alone. Also, please let me know if you have any sites to add. Many of these sites contain medical information. My linking to such a site does not imply my endorsement of such medical (or other) advice. As always, caveat lector: "let the reader beware."

11. Down Syndrome What it is, symptoms, and statistics as to how often it occurs. http://www.mamashealth.com/syndrome/downsyn.asp

Mamashealth.com Home Syndromes Pages Cyclic Vomiting Syndrome Down Syndrome Syndrome Irritable Bowel Syndrome ... Williams Syndrome Links Tell A Friend about MAMA! Health Books Email Mama Floral Gift for your Loved Ones Donate $$$ and help support Mamashealth.com What is Down Syndrome? A "syndrome" is a medical condition that is categorized by a multitude of symptoms. Down syndrome, also called Trisomy 21 is the most common cause of mental retardation and malformation in a newborn. It occurs because of the presence of an extra 21st chromosome. Chromosomes are the materials that store people's genetic information. Each person inherits 23 chromosomes from their mother and twenty three chromosomes from their father. Sometimes an accident occurs and one of the parents gives an extra chromosome. When the extra chromosome happens to be chromosome number 21, Down Syndrome occurs. Down Syndrome is not contagious.

12. Welcome To Mile High Down Syndrome Association Enhances the quality of life for all individuals with down syndrome by providing resources and support to those individuals, their families, professionals and the community. http://www.mhdsa.org/

Mile High Down Syndrome Association's 2003 Down Right Beautiful Calendar Cover Our Mission It is the mission of Mile High Down Syndrome Association to enhance the quality of life for all individuals with Down syndrome by providing resources and support to those individuals, their families, professionals and the community. Down Right Beautiful CALENDARS WHAT'S NEW

13. Welcoming Babies With Down Syndrome -- English WELCOMING BABIES WITH down syndrome. We wish you all the best. What is down syndrome?down syndrome is a chromosomal anomaly that occurs in 1.3 per 1000 births. http://www.nas.com/downsyn/welcome.html

WELCOMING BABIES WITH DOWN SYNDROME If you are welcoming a new baby with Down Syndrome into your family, you probably have many questions and concerns, as do your extended family, friends, and neighbors. We have written this information keeping in mind our own diverse experiences when our children were born with DS. Congratulations on the birth of your baby. We wish you all the best. What is Down Syndrome? Down Syndrome is a chromosomal anomaly that occurs in 1.3 per 1000 births. For some unexplained reason, an error in cell development results in 47 chromosomes rather than the usual 46. The extra gene material slightly changes the orderly development of the body and brain. About 5000 babies with Down Syndrome are born in the United States every year. The national population of individuals with Down Syndrome is estimated to be 250,000. About 80% of babies with Down Syndrome are born to mothers under the age of 35. About 1 in 400 babies born to women over 35 have Down Syndrome. People with Down Syndrome are more like typically developing individuals than they are different. There is great diversity within the population in terms of personality, learning styles, intelligence, appearance, compliance, humor, compassion, congeniality, and attitude. Favorite pastimes vary from person to person and range from reading, gardening and travel to baseball, music, and beyond.

14. Down Syndrome Information Network - Home Page Provides access to journal articles about down syndrome along with information about the down syndrome Educational Trust's efforts in England. http://www.downsnet.org/

Down Syndrome Information Network The Down Syndrome Educational Trust DownsEd Shop e-Visitors' Centre ... e-Visitors' centre Welcome to the Down Syndrome Information Network The Down Syndrome Information Network offers a range of information resources and online services to the international Down syndrome community. It aims to provide information and services for families, carers, professionals and researchers worldwide. This website has over 1,000 pages of information, equivalent to at least 6,000 printed pages. New information and services Get details of recently added articles and books and new services , including our recommended web sites index. About the Down Syndrome Information Network For information about this web site and affiliated web sites and services, please refer to our ' About the Down Syndrome Network ' pages. Here you will also find information about our privacy policies, technical information about our site, details of how to contribute and more. Development plans Learn about what we have planned for the Down Syndrome Information Network , let us have your views and comments, and find out what will be available when. Â

15. Down Syndrome: For New Parents Dedicated to providing parents with information about down syndrome.Category Health Conditions and Diseases down syndrome......A site dedicated to helping new parents understand down syndrome and to appreciatethe capabilities of their wonderful child. Mikey has down syndrome. http://www.downsyn.com/

"Just when you think you have learned what you need to know in life, someone truly special comes into it and shows just how much more there is." On April 11, 1997, our son Michael was born. Mikey is a wonderful little boy and we love him with all our hearts. Mikey has Down Syndrome. This web site will attempt to be a resource for new parents of children with Down Syndrome. We will also try to provide a personal perspective by explaining how this has affected us and what it is like to be the parent of a child with Down Syndrome. Book of the Month for December 2002 The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles by Joan E. Guthrie Medlen Paperback (November 2002) Book Description Many parents of children with Down syndrome would like to help their child improve nutrition and manage weight, but don't know where to begin. Now, this much-needed book looks at all aspects of nutrition and healthy living for children with Down syndrome, from birth through young adulthood. The author, a mother of a child with Down syndrome and a registered dietitian, encourages parents to start teaching healthy habits early but stresses that it's never too late to start, no matter what age. Based on years of personal and professional experience and supported by the latest medical research and insights from other parents and adults with Down syndrome, chapters cover: Breast and bottle feeding, Basic nutrition and physiology, Celiac disease, Diabetes, Alternative therapies, Food and school, Weight management, Fitness and exercise, Cooking and menu planning, Education activities.

16. Hope University Nonprofit, fine arts facility for developmentally-disabled adults with autism, and down syndrome. Offers creative-arts therapy and focused music, art, and dance programs. http://www.hopeu.com/

Hope University is a fine-arts facility for adults with developmental disabilities. Our mission is to train the talent and diminish the disability through creative-arts therapy. Students in our school are immersed in full-time arts education, including visual arts, music, dance, drama, and storytelling. On this site, you can: - Learn about our organization - Get information on our famous musical group, the " Hi Hopes " - See a course description for our arts programs Purchase items created by our students - Become a part of the Hope University family Contact us Portrait of My Mom Jim Lin, 1999 Hope University student Hope University

17. National Down Syndrome Congress by creating a national climate in which all persons will recognize and embracethe value and dignity of persons with down syndrome to achieve a better http://www.ndsccenter.org/

Convention Information Newsline New Parent Package Membership Application ... FAPE Have You Joined Yet? Empowering our members... "...by creating a national climate in which all persons will recognize and embrace the value and dignity of persons with Down syndrome" ...to achieve a better tomorrow! Apply for membership online! -Upcoming Events- NDSC has a monthly variety of events and promotions for you and your family. Check back with us soon to find out how you can be part of the next NDSC event. (more) Did You Know? Down syndrome is a chromosomal disorder, characterized by the presence of an extra # 21 chromosome. Instead of having 46 chromosomes in each of his/her cells, a person with Down syndrome has 47. (more) Have a Question? The NDSC telephone hotline (1-800-232-NDSC) or E-mail offers its members access to a wealth of information on any subject related to Down syndrome. A telephone call can help you obtain that difficult-to-find information or assist you in establishing contact with others in a similar situation. What's New NDSC Annual Report NDSC Conducts Telephone Survey NDSC Conducts Search for Executive Director IDEA Training Workshops ... Speech Survey Popular Print Choosing Naia: A Family's Journey

18. Sharing Down Syndrome Arizona Provides information and resources available regarding down syndrome in Arizona. http://www.psln.com/~sharing/

19. Down Syndrome On The Internet down syndrome on the Internet. US National Organizations. ComprehensiveWebsites. International Sites. Internet Magazines. Medical Resources. http://www.downsyndrome.com/

Down Syndrome on the Internet US National Organizations Comprehensive Websites International Sites Internet Magazines Medical Resources Other Resources for Parents

20. Mosaic Down Syndrome On The Web Stories, message boards, and a FAQ.Category Health Conditions and Diseases down syndrome......Welcome to Mosaic down syndrome on the Web. CDSS logo.jpg (6288 bytes) Canadiandown syndrome Society. down syndrome Community. down syndrome Webring, http://www.mosaicdownsyndrome.com/

NEW - IMDSA Membership Application - Click Link Below, Left-Hand Menu - For More Information International Mosaic Down Syndrome Association Information IMDSA HomePage 1st Annual MDS Convention MDS Message Board ... E-Mail Linda Beets, the MDS Family List Facilitator, if you'd like to become a part of the growing family network, and if you'd like to correspondend with other parents of children diagnosed with MDS. Welcome to Mosaic Down Syndrome on the Web. My name is Linda Beets, and I am the proud mommy of Karlee, my beautiful angel girl, born on April 27, 1999, and diagnosed with MDS. When my daughter was born, there was absolutely nothing on the Internet about MDS. I was devastated. It was because of this devastation and lack of information that this website now exists...so new parents won't ever have to experience what I did (and so many others). I (and many others) personally thank Bree Prive of NJ DesignWorks , for taking such an enthusiastic approach in creating, designing and maintaining this website. I know that this site's contents may appear "general" to many of you, but I wish I had a website such as this to go to last April, the day I found out what my daughter's diagnosis was. I do not feel alone anymore. This site continues to be updated, so do check back frequently. Thank you. To navigate through this site, use the navigation bar to your left. There is a link on the bottom of each page that will bring you back here.

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