21. Genetic Disorders: The Links To Diet Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis. http://www.ctds.info/genetic_disorders.html

Con nective Tissue Disorder Home Search Site Map ... Links Genetic Disorders The Links to Diet Read my Contents: Overview Genetic Disorders and Birth Defects Treatable Through Diet Prenatal Nutrition and Birth Defects Genetic Disorders, Birth Defects and Logic ... General Information on Genes, Nutrition and Disease Recommended Book: Genetic Nutritioneering by Jeffrey S. Bland with Sara H. Benum. How you can modify inherited traits and live a longer, healthier life. An interesting book about using nutrition and other lifestyle changes to overcome inherited health risks. ( more books Overview Many researchers and support groups state that birth defects and genetic disorders, especially connective tissue disorders such as Marfan syndrome osteogenesis imperfecta and Ehlers-Danlos syndrome , can't possibly be cured through diet because they are inherited genetic disorders. This conclusion is invalid simply because many birth defects and inherited genetic disorders have been found to be improved, or even cured, through diet. The old school of thinking that a birth defect or inherited disorder had to be caused by a single gene is no longer widely held in medical circles. The breakthrough concept in research is that many birth defects and inherited disorders are influenced by both genes and environmental factors, especially nutrition. Genes may make people susceptible to certain defects and disorders, but they are often only a part of the picture.

22. Down Syndrome Information Network - Home Page Welcome to the down syndrome Information Network. The down syndrome index.About the down syndrome Information Network. For information http://www.down-syndrome.info/

Down Syndrome Information Network The Down Syndrome Educational Trust DownsEd Shop e-Visitors' Centre ... e-Visitors' centre Welcome to the Down Syndrome Information Network The Down Syndrome Information Network offers a range of information resources and online services to the international Down syndrome community. It aims to provide information and services for families, carers, professionals and researchers worldwide. This website has over 1,000 pages of information, equivalent to at least 6,000 printed pages. New information and services Get details of recently added articles and books and new services , including our recommended web sites index. About the Down Syndrome Information Network For information about this web site and affiliated web sites and services, please refer to our ' About the Down Syndrome Network ' pages. Here you will also find information about our privacy policies, technical information about our site, details of how to contribute and more. Development plans Learn about what we have planned for the Down Syndrome Information Network , let us have your views and comments, and find out what will be available when. Â

23. Home Page Information and resources for parents, professionals, selfadvocates and all people who wish to gain a further understanding of down syndrome. http://www.mdsc.org/

Massachusetts Down Syndrome Congress Welcome MDSC P. O. Box 866 Melrose, MA 02176 1-800-664-MDSC

24. Constipation In Down Syndrome How to fix this problem. Includes information on senna tea, magnesium, and serotonin. http://www.tbinet.org/einstein-syndrome/health_medical/constipation.htm

Constipation in Down Syndrome People with Down Syndrome sometimes suffer with terrible, gut-wrenching constipation. Moms from the Einstein Syndrome list have shared successful techniques for winning in this area. Excerpts from relevant posts are below. Please be warned that the moms "tell it like it is" and use descriptive terminology to do so. The reality is that motherhood includes dealing with bodily functions "up close and personal." To protect the privacy of these little folks, their names and that of their mothers have been changed. Describing the Problem NuTriVene-D Serotonin Senna Tea and ... Thyroid Describing the Problem Rhonda has problems: Rose has had a terrible time with constipation. She can go for a week or more without a BM and then when she passes it she tears and bleeds. We had one episode where her rectum was pushing out. The doctor said she needed to be "trained" to have a bowel movement and did not want me to give her a suppository or enema even if that meant she would go for a week. I was not going to do that. I hope the Serotonium works. I will know soon.

25. Down Syndrome Quarterly down syndrome Quarterly. WELCOME to down syndrome Quarterly's Website.down syndrome Articles reprinted from down syndrome Quarterly. http://www.denison.edu/dsq/

HOME CALENDAR DIRECTORY ADMISSIONS ... SEARCH Down Syndrome Quarterly WELCOME to Down Syndrome Quarterly 's Website Down Syndrome Quarterly is an interdisciplinary journal devoted to advancing the state of knowledge on Down syndrome and will cover all areas of medical, behavioral, and social scientific research. It is published in March, June, September, and December and is distributed by subscription to individuals, organizations, and libraries. Journal Editors Consulting Editors Journal Description Contents ... Order Back Issues Articles reprinted from Down Syndrome Quarterly Living with Down Syndrome: The Family Experience Statement for Parents on Growth Hormone Treatment for Children with Down Syndrome Vitamins and Down Syndrome Comprehensive Speech and Language Intervention for School-Aged Children with Down Syndrome ... The Goal and Opportunity of Physical Therapy for Children with Down Syndrome Dr. Samuel J. Thios, Editor, is Vice President for Student Affairs , Dean of Students and Professor of Psychology at Denison University, Granville, Ohio. The Down Syndrome Quarterly web pages were designed by Christy Trager, Editor's Assistant. Any suggestions or comments would be appreciated and mailed to

26. Down Syndrome Quarterly down syndrome Quarterly. Health Care Guidelines for Individuals with DownSyndrome 1999 Revision. (down syndrome Preventive Medical Check List). http://www.denison.edu/dsq/health99.shtml

HOME CALENDAR DIRECTORY ADMISSIONS ... SEARCH Down Syndrome Quarterly [Reprinted from Down Syndrome Quarterly , Volume 4, Number 3, September, 1999] Health Care Guidelines for Individuals with Down Syndrome: 1999 Revision (Down Syndrome Preventive Medical Check List) Edited by William I. Cohen M.D. for the Down Syndrome Medical Interest Group Dedicated to the memories of Chris Pueschel and Thomas E. Elkins M.D., two indivisuals, who, each in his own way, has inspired us to provide compassioinate care for individuals with Down Syndrome Introduction Individuals with Down syndrome (DS) need the usual health care screening procedures recommended for the general population. For example, children with DS need the usual immunizations and well child care procedures as recommended by the American Academy of Pediatrics. Immunization practices are continually evolving: be certain to use the most up-to-date protocols. Similarly, adults with DS should have health evaluations using the standard accepted practices. However, children with DS have an increased risk of having certain congenital anomalies. Both children and adults may develop certain medical problems that occur in much higher frequency in individuals with DS. Described below is a checklist of additional tests and evaluations recommended for children and adults with DS. These recommendations should take into consideration available local expertise and referral patterns. They are based on our present level of knowledge and should be modified as new information becomes available. Modern primary health care includes educational and developmental concerns within its domain, and therefore we have included information and recommendations specific to these needs of individuals with DS.

27. Colorado Special Hockey - Down Syndrome Child And Handicapped Sports Activities Practice locations, news, sponsor links and coach profiles for an amateur ice hockey program for youth with down syndrome, Autism, ADD/HD or other developmental disabilities. http://www.goldeneagleshockey.com/

Please Visit Our Sponsors The mission of Colorado Special Hockey is to offer an amateur level ice hockey program for children and young adults, male and female, with Down Syndrome, Autism, ADD/HD or other developmental disability that would prevent the athlete from participating in any other organized program. Please visit the FAQ section of our web site for more details about handicapped sports. Practice Schedule January February S M T W T F S s s s s S M T W T F S s s s s s s s = Practice = Game practice and game times @ NOON - 1 PM every sunday Faq Jeff Odgers Endorsement Jr. Coaches Practice Location ... Return Home Colorado Special Hockey, Inc. PO Box 27006 Denver, CO 80227 Phone: (303)-933-6802 POC: Tracy Tucker e-mail: info@goldeneagleshockey.com Website Design and Marketing by Webolutions, Inc

28. Diagnosis Down Syndrome Personal, loving stories from parents on adoption of a down syndrome baby. Also stories from those Category Health Conditions and Diseases down syndrome......Diagnosis. Down. Syndrome. If you are visiting this site because you have receivedthe news that your baby has down syndrome, congratulations are in order. http://leeworks.net/DDS/

Diagnosis Down Syndrome If you are visiting this site because you have received the news that your baby has Down Syndrome, congratulations are in order. First of all you have a baby (or are going to have a baby). I realize this isn't the baby you expected. ( Welcome to Holland Babies With Down Syndrome A New Parents Guide edited by Karen Stray-Gundersen. Join the Down Syndrome News Group and ask hundreds of parents any question. Information on how to subscribe and how to contact The National Down Syndrome Society and The National Down Syndrome Congress can be found at: Welcoming New Babies and Down Syndrome Sites. And for the most comprehensive Web Site on Down Syndrome and related topics see the Riverbend Down Syndrome Parent Support Group and HealthLink U.S.A. To download or print 'Light at the End of the Tunnel' an informative pamphlet designed for parents with a prenatal diagnosis by parents who had prenatal diagnosis' and now have children with Down syndrome click here: http://www.proudonline.org/prenatal.htm If you are visiting this site because your friend has delivered a baby with Down Syndrome or has a prenatal diagnosis, please see my speech entitled:

29. Manitoba Down Syndrome Society MDSS An organization that provides support, information and opportunities for individuals with down syndrome, parents, professionals and other interested persons, to seek resolutions to issues of concern. http://www.geocities.com/Heartland/Meadows/5525/

The Manitoba Down Syndrome Society has moved... Please update your bookmark with our new address: www.mts.net/~mdss

30. DSRF Index Articles on psychological, social, and physical development, also on health issues. Research project Category Health Conditions and Diseases Organizations...... elsewhere PUBLICATIONS DSRF and other publications for sale INFORMATIONFind out more about down syndrome SITEMAP. Located http://dsrf.org/

ABOUT Mission, staff, news, the new Centre... NEWS Press releases, breaking news ... PROGRAMS Programs: educational, etc. EVENTS Conferences, Fundraising, sporting events... DONATIONS Find out how you can help the DSRF fulfill its mission and goals... CONTACT Request information from DSRF... The new Centre now open Click here to see a map to the new centre SPONSORS The organizations and people who contribute to the DSRF's well-being... RESEARCH Ongoing and new research projects, at DSRF and elsewhere... PUBLICATIONS DSRF and other publications for sale... INFORMATION Find out more about Down syndrome... SITE-MAP Located in Vancouver, BC, the Down Syndrome Research Foundation is dedicated to improving life for people with Down syndrome through research, education and services.

31. Canadian Down Syndrome Society Includes their newsletter and their position statements.Category Health Conditions and Diseases Organizations...... http://www.cdss.ca/cdssmain.html

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32. Down Syndrome: Sign Language In Down Syndrome Article that discusses whether using sign language in down syndrome interferes with speech later? http://www.tbinet.org/einstein-syndrome/development/sign_language.htm

Sign Language in Down Syndrome Donna wonders: I have been thinking about using sign language while talking to Ian Jack. I was wondering if this would be a problem with him learning to speak later. What are the opinions of those parents that use signing with their children? Does it interfere with speech later? The best way is to start with a child very early and address the oral-motor development, breathing issues, hearing, processing skills and nutrition, so that the child has the fundamentals for speech. ~Kay Ness Ginger answers: I can only tell you our experience. We were persuaded by a speech therapist to start using some signing with Carmen. She will use signs for words she knows and is capable of saying. It is most definitely a crutch, and I have seen her stop saying words once she had a sign. Now, when she pulls this with me, I hold her hands down and she says the words. Think long and hard before you start signing. This advice flies in the face of the advice you will get from any speech therapist!! Shari writes: I did not want my son to learn sign language. I thought he would rely on it instead of learning to talk. Our speech therapist convinced us this would not be the case, however, and we started learning a few signs. It worked wonderfully with Tristan. It enabled his speech. He was much less frustrated. If he couldn't grasp the word he wanted, he could use the sign, and viola, the word would pop out. He's nine now and hasn't used signs in a long time. Every now and then, though, we'll "play" with them.

33. MVDSA Home Page A nonprofit organization of families and professionals working together to improve the quality of life for persons with down syndrome. http://www.MVDSA.org

Est 1977 About Us Bulletin Board Activities Contact MVDSA ... Librarian's Corner Thank you for visiting us. We hope you enjoy your stay and find plenty of useful information on this site! member of If you would like to make a donation to that organization, please got to the contacts page and mail your donation to the address listed there. The purpose of this site is to give our visitors information about our organization. We hope that your stay is rewarding. Thank you for visiting.We are including our Meetings Schedule; Upcoming Birthdays; Events Calendar; and a Bulletin Board for messages. Simply "CLICK ON" the links to the left or down below, and it will bring you to the page that interests you. GOALS: To help families adjust to the birth of a child with Down Syndrome To provide information to parents of children with Down Syndrome To increase public awareness regarding Down Syndrom SERVICES Bi Monthly Newsletter (Mailer and most of this website) Monthly meetings with guest speakers Play groups Up-to-date library Family social functions Projects to increase public awareness Camperships and scholarship SPECIAL EVENTS The Celtic Academy of Dancers March 15th 2003 Also If you would like to sign up to become a member of MVDSA, you may use the online

34. Down Syn On-Line Magazine --- Down Syndrome Focusing on firstperson experiences, opinions, pictures and questions from thosewho love someone with down syndrome. (image map). down syndrome Webring, http://www.epix.net/~mcross/down-syn.html

F ocusing on first-person experiences, opinions, pictures and questions from those who love someone with Down Syndrome. Web Help What We're About June Issue August Issue ... Supplemental (c)1996, 1997, 1998 Ken Kalish The information in this magazine is presented as opinion only. As always, consult your doctor before you do anything about anything. Note! By entering the Down Syndrome Webring below, you are leaving Down Syn On-Line magazine and the privacy guarantees of TRUSTe no longer apply. This Down Syndrome Webring site is owned by Ken Kalish Click for the [ Next Page Skip It Next 5 Random site Want to join the ring? Click here for info! Graphics for this Down Syndrome Webring were created by Nora Lee

35. Welcome! Riverbend Down Syndrome Parent Support Group Detailed comparison of the symptoms of the two conditions, and a discussion of issues in diagnosis. http://www.altonweb.com/cs/downsyndrome/index4.html?page=autism.html

36. Association For Children With Down Syndrome Welcome to The Association for Children with down syndrome, Inc (ACDS).ACDS, a leader in its field since 1966. We are dedicated http://www.acds.org/

Home About Us Our Programs Preschool Five Plus Adult Services Clinical Services ... Resources Welcome to The Association for Children with Down Syndrome, Inc (ACDS) . ACDS, a leader in its field since 1966. We are dedicated to the education and training of children and adults with Down Syndrome and other developmental disabilities. Services are provided to children with a wide variety of developmental delays. The philosophy at ACDS is to integrate developmentally delayed children in a program which prepares them for schooling in the least restrictive environment. The school has grown to include a Nursery/Daycare program which includes typically developing children who are given the opportunity to learn, play and interact with children who have disabilities as well as services and activities for our graduates and other developmentally disabled adults. Questions or comments about this site? Contact the webmaster. Revised: March 14, 2003

37. Trisomy Films - Home Of The Award Winning Documentary UP SYNDROME Follows a year in the life of a man with down syndrome. Synopsis, Rene Moreno's biography, credits, images, review excerpts, and links. http://www.trisomyfilms.com/upsyndrome.html

Trisomy Films Home of the award winning documentary Up Syndrome runtime: 82 mins Check out Rene Moreno in Duane Graves' new short horror film HEADCHEESE UP SYNDROME IS NOW AVAILABLE ON DVD CLICK HERE TO ORDER Moreno is funny, endearing, and often more driven than anyone I've met Guerrilla Filmmaker magazine Graves has brought us a memorable experience Up Syndrome humanizes Rene in a way no over-produced network piece ever could - Film Threat The imagination and hope and love that soars in this young man means everything, and to be carried by him for an entire movie is an honor - TNT What are people saying about Up Syndrome ? Read the REVIEWS Check out Rene Moreno in Duane Graves' new short horror film HEADCHEESE E- PRESS KIT FORT WORTH AWARD / TEMECULA AWARD / VOTE FOR UP SYNDROME HI-RES IMAGE OF RENE / WHAT IS DOWN SYNDROME ? / DIRECTOR'S JOURNAL Correspondence: webmaster@trisomyfilms.com

38. Down Syndrome Educational Trust - Home Page Based in the United Kingdom. Working to advance the development and education of individuals with Category Health Conditions and Diseases Organizations......The down syndrome Educational Trust The down syndrome EducationalTrust Welcome to The down syndrome Educational Trust's website. http://www.downsed.org/

Down Syndrome Information Network The Down Syndrome Educational Trust DownsEd Shop e-Visitors' Centre ... e-Visitors' centre Welcome to The Down Syndrome Educational Trust's website The Down Syndrome Educational Trust is a UK-based charity that works to advance the development and education of individuals with Down syndrome worldwide. The Down Syndrome Educational Trust is a recognised world leader in scientific research into the development and education of individuals with Down syndrome. Building on this foundation of original research, the Trust: publishes practical information about Down syndrome organises conferences and workshops provides advice and consultancy services Through this wide range of activities we aim to provide practical guidance to parents, teachers and therapists so they can promote their children's development. We are committed to promoting the full inclusion of individuals with Down syndrome into the communities where they live. For more information about our activities, and the values and principles that guide our work, see

39. Growth Charts For Children With Down Syndrome Growth Charts for Children with down syndrome. References. Growth charts for childrenwith down syndrome can be found in the journal Pediatrics (81) 1988. http://www.growthcharts.com/charts/DS/charts.htm

Growth Charts for Children with Down Syndrome Charts should fit on one page if left an right margins are set to inches. Click on File and then Page Setup (usually) to change margins. Girls birth-3 Girls Boys birth-3 Boys Metric Weight (kg) Weight (kg) Weight (kg) Weight (kg) Metric Length (cm) Height (cm) Length (cm) Height (cm) English Weight (lbs) Weight (lbs) Weight (lbs) Weight (lbs) English Length (in) Height (in) Length (in) Height (in) References Growth charts for children with Down syndrome can be found in the journal Pediatrics (81) 1988. The charts on this website were adopted from these charts using the method shown below. If you would like to read more about growth charts as they relate to Down syndrome, you may want to check out Woodbine House, 1995. What do the Curves Mean? Each chart shows five percentile curves. An example of how percentiles work is as follows: Suppose we sample 100 children with DS (all the same age) and arrange them according to ascending height. We can find the 10th percentile by plotting child number 10, and the 90th percentile would be the height of child number 90. If you plot your child's data, and he or she is shown as being in the 50th percentile, you could assume if we lined up 100 children your child's age, that 49 would be shorter and 50 taller than he or she. Intrepretation For interpretation, Dr. Len Leshin suggests:

40. The Arc's Q&A On Down Syndrome down syndrome. by Siegfried M. Pueschel, MD, Ph.D., MPH. What is Downsyndrome? People with down syndrome are first and foremost http://www.thearc.org/faqs/down.html

Down Syndrome by Siegfried M. Pueschel, M.D., Ph.D., M.P.H What is Down syndrome? People with Down syndrome are first and foremost human beings who have recognizable physical characteristics and limited intellectual endowment which are due to the presence of an extra chromosome 21. The estimated incidence of Down syndrome is between 1 in 1,000 to 1 in 1,100 live births. Each year approximately 3,000 to 5,000 children are born with this chromosome disorder. It is believed there are about 250,000 families in the United States who are affected by Down syndrome. How do children with Down syndrome develop? Children with Down syndrome are usually smaller, and their physical and mental developments are slower, than youngsters who do not have Down syndrome. The majority of children with Down syndrome function in the mild to moderate range of mental retardation. However, some children are not mentally retarded at all; they may function in the borderline to low average range; others may be severely mentally retarded. There is a wide variation in mental abilities and developmental progress in children with Down syndrome. Also, their motor development is slow; and instead of walking by 12 to 14 months as other children do, children with Down syndrome usually learn to walk between 15 to 36 months. Language development is also markedly delayed. It is important to note that a caring and enriching home environment, early intervention, and integrated education efforts will have a positive influence on the child’s development.

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