1. Hemochromatosis Education & Research UW hemochromatosis education and research site for patients and providers aboutHHC iron overload disease including screening tests, genetics and research. http://www.uwgi.org/hemochromatosis/

2. American Hemochromatosis Society This organisation provides information and educates the public about hemochromatosis. They publish Category Health Conditions and Diseases hemochromatosis...... Welcome to the American hemochromatosis Society (AHS) Web Page. hemochromatosisHighlights Read News Highlights About hemochromatosis Below! http://www.americanhs.org/

AHS Toll-free Hemochromatosis Information Hotline: 1-888- 655-IRON (4766) Guest Book Sign-In Membership/Donations American Hemochromatosis Society (AHS) About AHS AHS Chapters AHS Educational Brochures AHS Guidelines Screening, Diagnoses, Maintenance AHS FHHF Email List Service AHS Newsletter "The BloodLetter" AHS Expert Physician AHS Public Service Announcements PSA's American Medical Association (AMA) "Celtic Connection" to HH Genetics of HH HH in Animals ... Links to AHS affiliations, awards and other important health information Memorial Tributes Neonatal Hemochromatosis On-Line Support Groups Patient Stories ... Videos We subscribe to the HONcode principles of the Health On the Net Foundation Welcome to the American Hemochromatosis Society (AHS) Web Page This website is dedicated in loving memory of Josephine Bogie Thomas, pictured above, former board member of the American Hemochromatosis Society. Seventeen years after diagnosis, she died of primary liver cancer due to HFE-associated hereditary hemochromatosis (HH) on May 13, 1999 in Pittsburgh, Pennsylvania. She was the beloved wife of 59 years to Joe Thomas and devoted mother to daughter, Sandra Thomas, who is president/founder of the American Hemochromatosis Society. Josephine was an HH activist and an inspiration to all who knew her. Her dream was for everyone to have genetic testing for HFE-associated HH so that they could have an early diagnosis, which she didn't have, before organ damage leading to premature death occurred. Her dream lives on through this web site and the work of the American Hemochromatosis Society. She is, and always will be, our "Iron Angel".

3. Iron Overload - Hemochromatosis And Other Iron Related Conditions Association aims to increase the understanding and diagnosis of ironoverload diseases, particularly hemochromatosis. hemochromatosis - Diagnosis, Treatment, and Maintenance http://www.ironoverload.org/

Hemochromatosis - Diagnosis, Treatment, and Maintenance Also check Table of Contents below Contact Us What's Happening - Association News 16 Facts You Should Know 21st Annual Symposium - June 2003 ... Objections to liver biopsy Site Preface In your search for health information regarding excess iron you will encounter other groups with web sites of varying degrees of expertise. Be careful of health information from hobbyist. How are we different than those other groups: We have been doing this for over 20 years. When IOD first began its work in 1980 no one else was handling the problems of hemochromatosis, not the medical community, not the insurance industry, not the blood banks and not the government. Early on physicians looked us in the eye and said "....never heard of it." The NIH in Bethesda, Maryland asked " How do you spell it." Through IOD's unremitting efforts that has all been changed. Now more recently, when the topic of iron began to heat up, people flocked to us offering help. When the scale of the problem became apparent hemochromatosis became a hot subject. A few of these helpers decided to form their own fringe or splinter groups. IOD does not pay high salaries but instead puts its money into 10 major programs and a number of sub programs. Some differences from some of the other sites are that are that we do not recommend either genetic testing or liver biopsy as necessary for diagnosis or treatment.

4. [THE CANADIAN HAEMOCHROMATOSIS SOCIETY...... Parent Frame.] Volunteer based organization which provides information to patients and physicians about hemochromatosis. http://www.cdnhemochromatosis.ca/

Weclome to The Canadian Hemochormatosis Society If you have received this message then your browser can not process frames. Please upgrade your browser by clicking on on of the links below. Microsoft Explorer

5. Omim, Scientific Information On Hemochromatosishttp//www.ncbi.nlm.nih.gov/htbin- Provides education and information about this genetic disease characterized by excessive absorption and accumulation of iron in the body. http://www.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?235200

6. Links On Hemochromatosis, Hemochromatosis, Haemochromatosis, Iron Overload, Heam A collection of links to sites, including scientific articles, related to the genetic iron overload disease. http://hemochromatose.tripod.com

LINKS ON HEMOCHROMATOSIS Last update: february 4, 2003 Add LINK or report a dead LINK Information sorted by COMPLAINTS Information sorted by ... IRON DISORDERS INSTITUTE (their magazine is recommended!) AMERICAN HEMOCHROMATOSIS SOCIETY The Haemochromatosis Society UK (England, Scotland, Wales and Northern Ireland CANADIAN Hemochromatosis Society ... BELGIUM homepage Belgen kunnen ook lid worden van de Nederlandse Hemochromatose Vereniging Deutsche/English/Francais information(en) uber/about/par Haemochromatose BERN * SOUTH AFRICA Haemochromatosis Society of South Africa Cape Town 7441 Tel: 021-557 4027 e-mail: hmchrosa@yahoo.co.uk Iron Overload Disease organisation (IOD) SPANISH Hemochromatosis Organisation Hemochromatosis foundation AMERICA ITALY Italian article on hemochromatosis with adresses! Allso search Haematologica.it for hemochromatosis (doctors) Frequency and biochemical expression of HFE in Italy (2001) NORWAY Hemokromatose: article Hemokromatose: some articles and links Medline: Hemochromatosis and Norway DENMARK Medline: Hemochromatosis and Denmark FINLAND SWEDEN Medline: Hemochromatosis and Sweden CZECHIA, CZECH REPUBLIC

7. THE MERCK MANUAL, Sec. 11, Ch. 128, Iron Overload Merck Manual looks at this disorder, its signs and symptoms, diagnosis and treatment. http://www.merck.com/pubs/mmanual/section11/chapter128/128a.htm

Hemosiderosis; Hemochromatosis) This Publication Is Searchable The Merck Manual of Diagnosis and Therapy Section 11. Hematology And Oncology Chapter 128. Iron Overload (Hemosiderosis; Hemochromatosis) Topics [General] [General] (For acute iron poisoning, see Table 307-3 Chronic iron (Fe) overload is characterized by increased focal or generalized deposition within the tissues. On tissue examination, this has been commonly termed hemosiderosis. hemochromatosis has been applied (see Table 128-1 ). Hemochromatosis, an HLA-linked genetic Fe overload disorder, must be differentiated from other inherited disorders accompanied by increased Fe stores (eg, aceruloplasminemia, hypotransferrinemia/atransransferrinemia) and from nongenetic Fe overload and Fe overload of undetermined etiology. Hemochromatosis in its primary form is a genetic disorder with a homozygous frequency of 1:200 and a heterozygous frequency of 1:8. The hemochromatosis gene ( HLA-H ) was recently identified on the short arm of chromosome 6 as a single point mutation in which the amino acid cysteine at position 282 changes to a tyrosine (nt 845 A, 845A; Cys 282 Tyr). Of patients with clinical hemochromatosis, 83% are homozygous for this mutation, which encodes for an HLA-A-like molecule. A mutation at nt 187C

8. MEDLINEplus: Hemochromatosis hemochromatosis General/Overviews. Hereditary hemochromatosis Too Much Iron (Mayo Foundation for Medical Education and Research) http://www.nlm.nih.gov/medlineplus/hemochromatosis.html

Skip navigation Other health topics: A B C D ... List of All Topics Hemochromatosis Contents of this page: From the NIH General/Overviews Diagnosis/Symptoms Prevention/Screening ... Children Search MEDLINE for recent research articles on Hemochromatosis You may also be interested in these MEDLINEplus related pages: Blood/Lymphatic System Digestive System Genetics/Birth Defects From the National Institutes of Health Hemochromatosis (National Digestive Diseases Information Clearinghouse) Learning About Hereditary Hemochromatosis (National Human Genome Research Institute) General/Overviews Hereditary Hemochromatosis: Too Much Iron (Mayo Foundation for Medical Education and Research) Iron Overload and Hemochromatosis: Frequently Asked Questions (National Center for Chronic Disease Prevention and Health Promotion) Overview on Iron Overload and Hemochromatosis (National Center for Chronic Disease Prevention and Health Promotion) Clinical Trials ClinicalTrials.gov: Hemochromatosis (National Institutes of Health) Diagnosis/Symptoms Detection: Iron Panel Tests (Iron Disorders Institute) Diagnosis: How Do You Find Out (Iron Overload Diseases Association) Hemochromatosis: 16 Facts You Should Know (Iron Overload Diseases Association) Disease Management Iron Overload and Hemochromatosis: Information for Patients and Their Families (National Center for Chronic Disease Prevention and Health Promotion) Prevention/Screening Screening for Iron Overload Due to Hereditary Hemochromatosis (National Center for Chronic Disease Prevention and Health Promotion)

9. University Of Pennsylvania Hemochromatosis Clinic Article on hemochromatosis from the Medical Genetics Division, Department of Medicine, Hospital of the University of Pennsylvania. http://www.med.upenn.edu/news/News_Releases/july96/iron.html

10. HealthlinkUSA Hemochromatosis Links Search results from 9 different search engines. Find hemochromatosis easily at ABCsearch.com http://www.healthlinkusa.com/Hemochromatosis.htm

11. : What Is It? Multimedia guide where you can learn what it is, what causes it, what it is like to have it, and how Category Health Conditions and Diseases hemochromatosis......American hemochromatosis Society, DNA Learning Center Link, Concept 1 Childrenresemble their parents. Learn how Mendel worked out inheritance in pea plants. http://www.yourgenesyourhealth.org/ygyh/mason/ygyh.html?syndrome=hc

12. HEREDITARY HEMOCHROMATOSIS The website of a family whose members have hemochromatosis, with a description of how they are affected, and links to hemochromatosis sites. http://munstermom.tripod.com/hemo.html

HEREDITARY HEMOCHROMATOSIS Hereditary Hemochromatosis, [HH] is a genetic condition of iron overload affecting approximately 1 out of 200-300 people, with 1 in 8-10 people being carriers. It is fatal Cindy Munn RN In this table you will find many of the organs/systems that may be affected by Hereditary Hemochromatosis, as well as the symptoms or problems that may be associated with HH. These are resources, urls, articles, etc. which I have located in my research on HH. I have attempted to somewhat "categorize" them & place them under their corresponding symptoms/problems in this table. If you click on these sections, [they should be highlighted in orange] it will take you to resources that I have found which are related to that particular topic. If anyone finds any missing links, or knows of a resource which I might want to add to my list, please let me know! HEART C hest pain, shortness of breath, fatigue, arrythmias [irregular heartbeats] rapid pulse, cardiomegaly, congestive heart failure [CHF] ... LIVER C irrhosis, [even if you are not a drinker!]

13. Hemochromatosis Education And Screening Project HESP is a twoyear project to screen low-income residents of western North Carolina for hereditary hemochromatosis (HH) and to educate health care providers about HH. http://www.hesp.unc.edu/

Project Overview Screening Education Schedule of Events ... Links H emochromatosis E ducation and S creening P roject HESP HESP is a two-year project to screen low-income residents of western North Carolina for hereditary hemochromatosis (HH) and to educate health care providers about HH. For more information about HESP and to request a brochure, please contact: Rebecca J. Laudicina, Ph.D., MT(ASCP), CLS(NCA) Associate Professor, Clinical Laboratory Science Principal Investigator, HESP Department of Allied Health Sciences, School of Medicine Medical School Wing E, CB# 7145 University of North Carolina at Chapel Hill, Chapel Hill, NC 27599-7145 Phone (919) 966-3011 FAX (919) 966-8384 Email Rebecca_Laudicina@med unc.edu Back to Top Last updated: January 19, 2001.

14. American Hemochromatosis Society AHS hemochromatosis Hotline 1 (888) 655IRON (4766). Guest Book Sign-In. Videos.Neonatal hemochromatosis. Neonatal hemochromatosis Educational Information http://www.americanhs.org/neonatal.htm

AHS Hemochromatosis Hotline: 1 (888) 655-IRON (4766) Guest Book Sign-In Membership/Donations American Hemochromatosis Society (AHS) About AHS AHS Chapters AHS Educational Brochures AHS Guidelines Screening, Diagnoses, Maintenance AHS Members Area AHS Newsletter "The Bloodletter" AHS Expert Physician AHS Public Service Announcements PSA's American Medical Association (AMA) "Celtic Connection" to HH Genetics of HH HH in Animals ... Links to AHS affiliations, awards and other important health information Memorial Tributes Neonatal Hemochromatosis On-Line Support Groups Patient Stories ... Videos Neonatal Hemochromatosis Neonatal Hemochromatosis Educational Information: www.americanhs.org/neonatal_info AHS Neonatal Hemochromatosis Children's Memorial: www.americanhs.org/ahs_neonatalmemorial

15. The Hemochromatosis Foundation, Inc. The hemochromatosis Foundation, Inc. THE hemochromatosis FOUNDATIONIS NOT ASSOCIATED OR AFFILIATED WITH ANY OTHER ORGANIZATION. http://www.hemochromatosis.org/

The Hemochromatosis Foundation, Inc. P.O. Box 8569, Albany, NY 12208-0569 ph: 518-489-0972 fax: 518-489-0227 4/13/01 - Until our web-site is updated (May 1st) WEB MD has a recorded message about HH, which we know is accurate as of about a year ago. When updated, recent and new information presented at our 7th BIOIRON Conference in Italy last August will be included. Margit A. Krikker, MD.FAAFP It has come to our attention today that a commercial supplement organization, Life Extension Foundation, is mis-representing The Hemochromatosis Foundation as being associated or affiliated with it. THE HEMOCHROMATOSIS FOUNDATION IS NOT ASSOCIATED OR AFFILIATED WITH ANY OTHER ORGANIZATION. The commercial organization is, unfortunately, innaccurately suggesting that our organization approves the alternative treatments to bleedings, such as chelation or taking supplements of vitamins, minerals, herbs, anoxidants, etc. Such alternative treatments, WHICH ARE NOT RECOMMENDED BY THE HEMOCHROMATOSIS FOUNDATION'S SCIENTIFIC ADVISORY BOARD FOR THE HEREDITARY FORM OF HEMOCHROMATOSIS, WILL INTERFERE WITH THE RAPID ELIMINATIONS OF EXCESS BODY IRON AND MAY, IN FACT, ACTUALLY HASTEN THE ONSET OF SERIOUS INJURY ESPECIALLY TO THE LIVER. THE HEMOCHROMATOSIS FOUNDATION WILL APPRECIATE BEING INFORMED IF ANY ORGANIZATION FALSELY MISREPRESENTS THE HEMOCHROMATOSIS FOUNDATION AS BEING ASSOCIATED OR AFFILATED WITH IT.

16. Links On Hemochromatosis, Hemochromatosis, Haemochromatosis, Iron Overload, Heam hemochromatosis LINKS from all over the world! hemochromatosis, haemochromatosis, iron overlaod, heamochromaotsis, hemochromotosis, hemochroamtosis, hemachromatosis, hemosiderosis LINKS ON hemochromatosis. Last update August 20, 2002 http://members.tripod.com/~hemochromatose/linkseng.html

This page has been moved to http://hemochromatose.tripod.com Click on the link above. You will be automatically transferred in 5 sec! lege cartridge / cartridges

17. Iron Overload And Hemochromatosis The US Centers for Disease Control and Prevention provide reviewed information on hemochromatosis, Category Health Conditions and Diseases hemochromatosis......Iron Overload and hemochromatosis. Iron overload and hemochromatosisInformation for Patients and Family. Cover of Iron Overload and http://www.cdc.gov/nccdphp/dnpa/hemochromatosis/

National Center for Chronic Disease Prevention and Health Promotion Home About Us Site Map Visitor Survey ... Related Links Iron Overload and Hemochromatosis Iron overload and Hemochromatosis Information for Patients and Family Available in HTML and PDF In the United States, most cases of "iron overload" are caused by a genetic condition known as "hereditary hemochromatosis." Serious and sometimes fatal health problems may result from the excess iron that accumulates in the body. These complications may include severe weakness or fatigue, unexplained joint or abdominal pain, impotence, infertility, and loss of menstrual periods. The diseases associated with hemochromatosis include liver cancer, cirrhosis, arthritis, diabetes, and heart failure. Overview on Iron Overload and Hemochromatosis This section provides basic information on hemochromatosis, the signs and symptoms, diagnosis, treatment, questions regarding blood donation, prognosis and public health issues related to hemochromatosis. Iron Overload Disease due to Hereditary Hemochromatosis Additional background information, a diagram depicting the course of hereditary hemocromatosis, CDC program activities, and priorities for 2001 can be found here.

18. Overview On Iron Overload And Hemochromatosis Iron overload and hemochromatosis Overview on Iron Overload and hemochromatosis. PublicHealth Issues Related to hemochromatosis. http://www.cdc.gov/nccdphp/dnpa/hemochromatosis/overview.htm

National Center for Chronic Disease Prevention and Health Promotion Home About Us Site Map Visitor Survey ... Related Links Iron overload and Hemochromatosis Overview on Iron Overload and Hemochromatosis Hemochromatosis is a condition in which the body accumulates excess amounts of iron. Hereditary hemochromatosis is one of the most common genetic diseases in humans. In the United States, as many as one million people have evidence of hemochromatosis, and up to one in every ten people may carry the gene for the disorder. Serious and sometimes fatal health problems may result from the excess iron that accumulates in the body as a result of this genetic disorder. Some diseases associated with hemochromatosis are arthritis, cirrhosis of the liver, diabetes, heart failure, and liver cancer. Signs and Symptoms Symptoms associated with hemochromatosis most often appear in middle age, although some people may develop problems earlier. These symptoms reflect the tissue and organ damage that result from the disease. Early disease symptoms of hemochromatosis are nonspecific and include fatigue, heart palpitations, joint pain, non-specific stomach pain, impotence, and loss of menstrual periods. Abnormalities of liver function tests can also occur in the absence of other symptoms.

19. Iron Disorders Institute | Home | The Definitive Source For Information On Hemoc Provides information about disorders of iron such as hemochromatosis, acquired iron overload , juvenile hemochromatosis , African siderosis , thalassemia , porphyria cutanea tarda , sideroblastic anemia, irondeficiency anemia and anemia of chronic disease. http://www.irondisorders.org/index.html

Iron Disorders Institute is a non-profit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis acquired iron overload sickle-cell anemia, juvenile hemochromatosis African siderosis thalassemia porphyria cutanea tarda ... iron-deficiency anemia and anemia of chronic disease Information appearing on this website is reviewed by the Institute's Scientific Advisory Board . Prior to publication of web site pages, Patient or Physician Information Series literature, magazines, or books, these experts are consulted. No information appearing in Iron Disorders Institute publications, including this website, is intended to replace but rather to augment the relationship between patients and their physicians. Advertisement: Books about Iron: "Cooking with Less Iron" Forward by Dr. Richard Passwater. Introduction by Dr. Mark Princell. "Cooking with Less Iron" provides easy to prepare, old fashioned recipes and menus with tips on how to absorb less iron from the diet. Charts, food values, shopping list, menu planner and more! Excellent companion book to

20. Nat'l Center For Biotechnology Info - Hemochromatosis Search this scientific article from the National Center for Biotechnology Information. Features case studies of ironabsorption problems. http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?235200

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